New to Group

[Guest guest]

Randy, I can certainly understand how lonely you feel with people not

understanding. Let me tell you something that actually happened to

me. I work for one of the Big 3 on the assembly line, so I'm always

having a hard time. But I don't LOOK sick, and I don't act sick.

One day (before I was diagnosed) I lifted a heavy box and it just

hurt me soooo bad. I tried going on with my work, realized I

couldn't and asked to go to the medical office. As I was walking

away heading up to the medical office, I heard two women (yes, grown

women) heckling me very loudly " waaaaa, waaaaa, waaaaa " , like a

crying baby. I was so embarrassed and more hurt that someone would

treat me like this. People don't know what you're going through until

they've walked in your shoes. Ever since that incident, I try so

hard to keep any aches and pains to myself and not let anyone know.

" billsbabe1 " <billsbabe1@...>

[Guest guest]

Yeah, once something like that happens, you kind of develop this feeling of

thinking as you hobble along - everyone is thinking things like that. What is

worse - is if you do not have family support. My kids are understanding when I

struggle sometimes and can not give 100%, but my wife - she says she does - but

NOT.

Randy Gribble <randyebr2005@...>

[Guest guest]

Hi, Janet! I think I may know you from the NPF group? Like you, I was

relieved in a way to finally develop P because that's what finally got

me the correct diagnosis - and explained what had been going on for

years. I hope the MTX totally stops your flare! best regards, sherry z

[Guest guest]

Hi Janet,

You may want check on the MTX as I don't believe there is a full

dosage???? Are you taking pills or giving yourself an injection??

It can take 6 to 8 wks before you notice anything.

FYI

I took prednisone for a very short time and it really bothered my

lower back. I believe the fluid put pressure on the nerve and gave

me great pain.

I know there are a lot of drugs out there ( I'm looking for a new one

myself) but please check them out; what they are for, ingredients,

how long before they work, etc. it only take a minute on internet.

I noticed a few people don't understand the meds but they complain

and offer no replacement they would try. The Arthritis Society does

have publications available for free about all aspects of the

arthritis.

Please be as informed as possible, you will feel better and more

confident about your personal choices.

SD

[Guest guest]

Yup that is me on NPF. I found this group and decided to join it.

" Janet " <kajakat@...>

--- In , " S. Zorzi " <szorzi_1999@...>

<< I think I may know you from the NPF group? >>

[Guest guest]

You are correct about the full dosage. I understand the 6 pills to

be my full dose. Thanks SD for the advice.

Janet

> You may want check on the MTX as I don't believe there is a full

> dosage???? Are you taking pills or giving yourself an injection??

[Guest guest]

As a general rule of thumb, the maximum oral dose of methotrexate given

for RA or PA is 25 mg weekly, which is 10 of the 2.5 mg tablets. I was

on this dose until I started the Enbrel (later switched to Humira),

when the rheumy tapered me down to my current dose of 10 mg (4 of the

2.5 mg tablets).

Of course, cancer patients take much higher doses of MTX.

" dreimutter1957 " <dreimutter1957@...>

[Guest guest]

Welcome Cherrie! I`m so glad you found LDN and I`m sure it`ll help so much

once you get it perscribed. Fibro people do very well indeed with LDN.

I dont know where you live but if it`s in the US then try to get it compounded

from a knowledgable pharmacy - Crystal keeps a list and I`m sure will help you

out if you need it.

If it helps to persuade your doctor, a small trial was just completed at

Stanford using LDN for Fibro and they got good results. I think they are now

planning a larger trial. If you Google it you`ll find all the info there -

sometimes it helps to give your doctor written info so they can look at it if

they need help deciding.

Good luck and let us know how it goes.

Bev

- In low dose naltrexone , Cherrie Mckinstry-Brunner

<cherswares2001@...> wrote:

>

> I have been suffering with fibromyalgia since High school, but didn't know

what it was back then. Finally as I went out in the work world, I would force

myself to keep going and sometimes I was better than others. It didn't really

become aparent till I got poisoned in a greenhouse and got chemical

sensitivities along with the fibro. Eventually I started having some MS

symptoms, but after joining a H.E.A.L. group in the 90s, they helped with alot.

I got rid of my leaky gut problem and force myslef to go most of the time

without the pain meds as when on them I got so weak I got scared. And the

rebound migrains just before the next dose of moetrin was unbearable! Of course

I got sent to a psychiatrist.  They put me on prozac and it did help some to

keep me mobile and I got off all pain meds and only used them after working

through the pain in the garden didn't do it totally.  But usually I would go out

in pain and come in so tired I would fall asleep on

> the sofa..My family was good enough to let me sleep where ever it happened.. 

I went back to work full time but doing home sitting of elders, and I could sit

and nap when they did, but always jumped up and cared for them when I had

to..Finally my body was just getting worse..but I kept going till I got injured

and nobody wanted to know me then.. I was so stress and my body would go into

bouts of weakness and I would get these flush red streaks on my face and

unbearable pains in my arms and calfs..Each night of trying to go to sleep meant

jerking or flinching myslef awake till I couldnt get back to sleep or it was

very disturbing to my husband..but when the doctors got tired of seeing me, my

husband got frustrated and said " The doctors can't find anything?..and then of

course the family just wanted me to get over it..Well I persisted and kept my

dignity and stated that I AM having problems and they are real..Finally a doctor

did tell me accidently that I

> was diagnosed with fibromyalgia, because my previous doctor believed in the

possibility but thought that patients were worse if told they had it!  So my new

doctor asked how my fibro was doing, and I looked suprised. She didn't mind

talking to me about it, where as when I went back to the old clinic they still

had me written up as a person just looking for attention and possibly emotional

problems.. I had a file that was 3 inches thick. When I asked for a copy of my

file, it dimished to 10 sheets of paper that were not very nice what they

said..so I can imagine what the other papers said. 

>

> Anyway..I just wanted to say hello..and I plan to approach my med therapist

with my plan to want to try LDN.. Though they are going to lecture me on " Do you

know what this medication is?? "   I have no problem asking for what I want.  I

once had to persue my doctor for several months for Xanax, for my PMDD, instead

of being put on an antipsychotic..(they don't even tell people that these drugs

are dangerous and only got passed to help people with severe medical problems,

but I couldn't have xanax to help me through my terrible period becuse I might

possibly abuse it..Now I have them on hand but rarely take them since my

hysterectomy..I find gardening much better and more soothing.  They are glad to

write me a script for neurontin for just about anything and I tell them to keep

it..but ask for something else and its " Why? " lol...

>

[Guest guest]

Hi Cherrie Wow your story sounds a lot like mine! It's been a long journey, but you have learned a lot form it, I know I have from mine!I hope you can get LDN and that it helps you too!-- Warmest Regards,

Robin Little

" Cherrie Mckinstry-Brunner " said:snipforce myself to keep goingsnippoisoned

in a greenhouse and got chemical sensitivitiessnipgot sent to a psychiatrist.  They put me on prozacsnipcome in so tired I would fall asleep

on the sofa..snipnobody wanted to know me

then.. I was so stresssnipdoctors got tired of seeing me,

my husband got frustrated and said " The doctors can't find

anything?..and then of course the family just wanted me to get over

it..Well I persisted and kept my dignity and stated that I AM having

problems and they are real.sniphad me written up as a person just

looking for attention and possibly emotional problems.. I had a file

that was 3 inches thick. When I asked for a copy of my file, it

dimished to 10 sheets of paper that were not very nice what they

said..so I can imagine what the other papers said. 

[Guest guest]

Hi Cherrie,

So sorry to hear of your problems with doctors. Unfortunately, there have been so many people with fibromyalgia that have had the same thing happen to them. You are not crazy. Also, the jerking and flinching of your muscles as you are going to sleep may be a sign of Restless Legs Syndrome. There is a really great group for that at rlssupport . One of the things that I have noticed is that LDN has seemed to help my RLS a little as it has my Fibromyalgia. While I recommend staying with this group, I also wanted to let you know that there is now a separate group for people with Fibro that are either taking LDN or thinking of taking it. The address is below my name. Good luck with taking charge of your life and trying LDN.

Judy HTo better health through knowledgeTaking LDN for Fibromyalgia, Hypothyroid, PCOS and Restless Legs SyndromeLDNforFibro

From: Cherrie Mckinstry-Brunner

Sent: Sunday, May 17, 2009 5:37 PM

low dose naltrexone

Subject: [low dose naltrexone] New to group

I have been suffering with fibromyalgia since High school, but didn't know what it was back then. Finally as I went out in the work world, I would force myself to keep going and sometimes I was better than others. It didn't really become aparent till I got poisoned in a greenhouse and got chemical sensitivities along with the fibro. Eventually I started having some MS symptoms, but after joining a H.E.A.L. group in the 90s, they helped with alot. I got rid of my leaky gut problem and force myslef to go most of the time without the pain meds as when on them I got so weak I got scared. And the rebound migrains just before the next dose of moetrin was unbearable! Of course I got sent to a psychiatrist. They put me on prozac and it did help some to keep me mobile and I got off all pain meds and only used them after working through the pain in the garden didn't do it totally. But usually I would go out in pain and come in so tired I would fall asleep on the sofa..My family was good enough to let me sleep where ever it happened. I went back to work full time but doing home sitting of elders, and I could sit and nap when they did, but always jumped up and cared for them when I had to..Finally my body was just getting worse..but I kept going till I got injured and nobody wanted to know me then.. I was so stress and my body would go into bouts of weakness and I would get these flush red streaks on my face and unbearable pains in my arms and calfs..Each night of trying to go to sleep meant jerking or flinching myslef awake till I couldnt get back to sleep or it was very disturbing to my husband..but when the doctors got tired of seeing me, my husband got frustrated and said "The doctors can't find anything?..and then of course the family just wanted me to get over it..Well I persisted and kept my dignity and stated that I AM having problems and they are real..Finally a doctor did tell me accidently that I was diagnosed with fibromyalgia, because my previous doctor believed in the possibility but thought that patients were worse if told they had it! So my new doctor asked how my fibro was doing, and I looked suprised. She didn't mind talking to me about it, where as when I went back to the old clinic they still had me written up as a person just looking for attention and possibly emotional problems.. I had a file that was 3 inches thick. When I asked for a copy of my file, it dimished to 10 sheets of paper that were not very nice what they said..so I can imagine what the other papers said. Anyway..I just wanted to say hello..and I plan to approach my med therapist with my plan to want to try LDN.. Though they are going to lecture me on "Do you know what this medication is??" I have no problem asking for what I want. I once had to persue my doctor for several months for Xanax, for my PMDD, instead of being put on an antipsychotic..(they don't even tell people that these drugs are dangerous and only got passed to help people with severe medical problems, but I couldn't have xanax to help me through my terrible period becuse I might possibly abuse it..Now I have them on hand but rarely take them since my hysterectomy..I find gardening much better and more soothing. They are glad to write me a script for neurontin for just about anything and I tell them to keep it..but ask for something else and its "Why?" lol...

[Guest guest]

This is how it started for me I got sick after an auto accident about 6 months

after. I seen a Dr. he told me I am low on Iron and taking Iron pills I did not

feel better. You can read my story at this link I was on Antidepressants and

seeing a Psychiatrist for 5 yrs before I found out I am not suffering from Major

Depression but low Testosterone.

http://forums.realthyroidhelp.com/viewtopic.php?f=5 & t=9239

Your doing Propecia might be why your Testosterone levels are low I have seen

this happen to many men. Here is a link to a site and it has a forum there you

can post at. Here are some links you need to read and watch the Video's.

http://www.propeciasideeffects.com/

http://www.musclechatroom.com/forum/showthread.php?t=3611

In this link Dr. Gordon M.D. talks about what will happen to you if you don't

get your Testosterone levels back up one big thing is it will shorten your life.

http://www.thehiddendisease.com/tdthedisease.html

Also go to Dr. Gordon's site and watch his Video's about low Testosterone very

good info more then anyone can post here about to you.

http://www.thehiddendisease.com/

If I were you I would get off them AD meds they make low Testosterone worse at

least it did for me. Getting your Total Testosterone levels back up and keeping

your Estradiol levels down you will be your old self again and men that used

Propecia have very high levels of Estradiol E2. When E2 is too high your brain

thinks it's Testosterone because it can't tell the difference between the two.

So your brain slows down sending the LH and FSH to your testis to make more

testosterone. So if this was not checked check it before getting that MRI if

your E2 levels are above 40 getting this down might fix your problems.

Not all men using Propecia get low Testosterone so check your E2 levels if high

get some Arimidex take .5 mgs or a half a one mg. pill ever other day try to get

your levels down to 20 pg/ml. You can tell when your levels come down you will

get back your night time and morning wood.

Here is a link that talks about high E2 in older men and low Testosterone.

http://www.medibolics.com/ArimidexBoostsTestosterone.htm

http://jcem.endojournals.org/cgi/content/full/89/3/1174

Going on TRT without finding out why your low makes it dam hard to find out why

your low. So it's good you did not start on the Testosterone meds. yet.

Co-Moderator

Phil

> From: hedgesclinic1 <hedgesclinic1@...>

> Subject: New to group

>

> Date: Thursday, July 2, 2009, 8:15 AM

> 49 year old male. For past two years

> had feelings of deppression. Saw psychiatrist

> started   me on antidepressants. Libido and

> mood have been down. Recently had early am total

> testosterone level which was low at 170. Thyroid

> tests/liver/cbc were fine. I started to take DHEA 50 mg/day.

> Had been on Dhea for about 1 week. Had FSH/LH levels checked

> both were low. Spoke to endocrinologist said I needed MRI

> and to start TRT. Saw urologist did prostate exam/psa test

> both fine. Gave me samples of TRT. I saw him yesterday. Also

> had redrawn total/ free testosterone. A while back , for

> about 6months I took propecia for male pattern baldness. I

> hope this wasn't the cause. I am afraid to take the TRT. I

> am done having kids , but I am only 49. Any advice would be

> helpful. I do want to feel like myself again, but I am

> afraid. Thanks.

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

>

> > From: hedgesclinic1 <hedgesclinic1@...>

> > Subject: New to group

> >

> > Date: Thursday, July 2, 2009, 8:15 AM

> > 49 year old male. For past two years

> > had feelings of deppression. Saw psychiatrist

> > started   me on antidepressants. Libido and

> > mood have been down. Recently had early am total

> > testosterone level which was low at 170. Thyroid

> > tests/liver/cbc were fine. I started to take DHEA 50 mg/day.

> > Had been on Dhea for about 1 week. Had FSH/LH levels checked

> > both were low. Spoke to endocrinologist said I needed MRI

> > and to start TRT. Saw urologist did prostate exam/psa test

> > both fine. Gave me samples of TRT. I saw him yesterday. Also

> > had redrawn total/ free testosterone. A while back , for

> > about 6months I took propecia for male pattern baldness. I

> > hope this wasn't the cause. I am afraid to take the TRT. I

> > am done having kids , but I am only 49. Any advice would be

> > helpful. I do want to feel like myself again, but I am

> > afraid. Thanks.

> >

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

Yes if I were you I would start TRT to feel better as long as you get that MRI

done to rule out a tumor. This is rare to be cancer and the treatment is the

same. Go on TRT if doing shots start with 100 mgs of Depo T every week if doing

gels start with 5 grams. But test in 2 weeks to be sure the gels are getting

though your skin most men do better on 10 grams of gel / day.

When I stopped the AD meds and went on TRT I was back to work in less then 30

days after being off work most of the time on sick leave for 5 yrs.

Co-Moderator

Phil

> From: hedgesclinic1 <hedgesclinic1@...>

> Subject: Re: New to group

>

> Date: Thursday, July 2, 2009, 10:28 AM

>

> >

> > > From: hedgesclinic1 <hedgesclinic1@...>

> > > Subject: New to group

> > >

> > > Date: Thursday, July 2, 2009, 8:15 AM

> > > 49 year old male. For past two years

> > > had feelings of deppression. Saw psychiatrist

> > > started   me on antidepressants. Libido and

> > > mood have been down. Recently had early am total

> > > testosterone level which was low at 170. Thyroid

> > > tests/liver/cbc were fine. I started to take DHEA

> 50 mg/day.

> > > Had been on Dhea for about 1 week. Had FSH/LH

> levels checked

> > > both were low. Spoke to endocrinologist said I

> needed MRI

> > > and to start TRT. Saw urologist did prostate

> exam/psa test

> > > both fine. Gave me samples of TRT. I saw him

> yesterday. Also

> > > had redrawn total/ free testosterone. A while

> back , for

> > > about 6months I took propecia for male pattern

> baldness. I

> > > hope this wasn't the cause. I am afraid to take

> the TRT. I

> > > am done having kids , but I am only 49. Any

> advice would be

> > > helpful. I do want to feel like myself again, but

> I am

> > > afraid. Thanks.

> > >

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > >

[Guest guest]

That's great news and apparently, depending upon the situation, the vaccine made

from your own tissue is

effective. This is also done right across the border at The San Diego Clinic

and I think particulars can be learned from The Center For The Study Of Natural

Oncology in Southern, California.

Joe C.

[Guest guest]

Treating Crohn's Disease With Low Dose Naltrexone

http://www.webspawner.com/users/ldnforcrohns/index.html

Crohn's/yeast/LDN/etc. protocol of Dr. McCandless'

http://preview.tinyurl.com/l68wbk

Group for those with Crohn's disease & LDN

LDNandIBD/

>

> Hi Everyone,

>

> I have an indeterminate diagnosis: Crohns/UC according to my MD...

>

> I'm so excited to be on LDN, two nights now. A friend told me about it...I

saw the Penn State research and my GI wrote me a script (secretly wanting me on

humera i know)...I am currently on 20 mg pred tapering 5 mg per week. I take

Klonapin at night to sleep for the Pred so I am not having much difficulty with

that part. I like getting up early (4:30 am)...and to bed early after the kids

are asleep. I grind my pills into a powder and then mix into the water for

dosage.

>

> My questions are:

> 1. I've been on a broth/liquid diet for about two weeks almost now...should I

continue to do this while the LDN is working on healing inflammation? I don't

mind it...have people done different diets with success with the med?

>

> 2. How long before most people see a difference with GI sx? I am already

feeling the energy boost- it's fantastic! My mood has improved too.

>

> That's all I can think of now...

>

> Good luck and love to all who are on the journey to wellness...

>

> Liz K

>

[Guest guest]

> > >

> > > > From: hedgesclinic1 <hedgesclinic1@>

> > > > Subject: New to group

> > > >

> > > > Date: Thursday, July 2, 2009, 8:15 AM

> > > > 49 year old male. For past two years

> > > > had feelings of deppression. Saw psychiatrist

> > > > started   me on antidepressants. Libido and

> > > > mood have been down. Recently had early am total

> > > > testosterone level which was low at 170. Thyroid

> > > > tests/liver/cbc were fine. I started to take DHEA

> > 50 mg/day.

> > > > Had been on Dhea for about 1 week. Had FSH/LH

> > levels checked

> > > > both were low. Spoke to endocrinologist said I

> > needed MRI

> > > > and to start TRT. Saw urologist did prostate

> > exam/psa test

> > > > both fine. Gave me samples of TRT. I saw him

> > yesterday. Also

> > > > had redrawn total/ free testosterone. A while

> > back , for

> > > > about 6months I took propecia for male pattern

> > baldness. I

> > > > hope this wasn't the cause. I am afraid to take

> > the TRT. I

> > > > am done having kids , but I am only 49. Any

> > advice would be

> > > > helpful. I do want to feel like myself again, but

> > I am

> > > > afraid. Thanks.

> > > >

> > > >

> > > >

> > > >

> > > > ------------------------------------

> > > >

> > > >

[Guest guest]

Please when you reply post at the top of the thread most will not go to the

bottom to see your reply and think the post does not have a reply.

Most of the men I know that have done Popecia and I am not saying this is what

caused you low Testosterone don't get back why I can't say most good Dr.'s like

Dr. don't really know how propecia does this to men.

One first starting on TRT one needs to do labs every 6 to 8 weeks until there

are leveled know there will not be any problems on TRT.

In my case being Hypopituitary I have been doing labs every 8 weeks for over 27

yrs. My heath care pays for my labs and I have a lot of low hormones that my

Pituitary does not tell my body to make like Cortisol, Thyroid, Aldosterone,

Renin and Fettrin or Iron. So I need to keep on top of all of this and I have

low levels of V-D, Folic Acid and need to take supplements to keep going.

Don't let this upset you it took me yrs to find out what was wrong with me.

Your right on top of this not treating low Testosterone will shorten your life

and can cause you heart problems. I just am getting over Heart by pass sugary

the 2 bad blockages I had were very old and have been there for your yrs. I am

lucky I did not just fall dead like Michale did. I feel all the yrs I

went with low testosterone did not help my heart. From day one my problem was

very bad fatigue and shot of breath. Even going on TRT did not help this I was

a walking time boom Dr.'s told me they don't know how I lived so long with this

problem I could have just died and fast.

Co-Moderator

Phil

> From: hedgesclinic1 <hedgesclinic1@...>

> Subject: Re: New to group

>

> Date: Friday, July 3, 2009, 10:19 AM

>

> > > >

> > > > > From: hedgesclinic1

> <hedgesclinic1@>

> > > > > Subject: New to group

> > > > >

> > > > > Date: Thursday, July 2, 2009, 8:15 AM

> > > > > 49 year old male. For past two years

> > > > > had feelings of deppression. Saw

> psychiatrist

> > > > > started   me on antidepressants.

> Libido and

> > > > > mood have been down. Recently had early

> am total

> > > > > testosterone level which was low at

> 170. Thyroid

> > > > > tests/liver/cbc were fine. I started to

> take DHEA

> > > 50 mg/day.

> > > > > Had been on Dhea for about 1 week. Had

> FSH/LH

> > > levels checked

> > > > > both were low. Spoke to endocrinologist

> said I

> > > needed MRI

> > > > > and to start TRT. Saw urologist did

> prostate

> > > exam/psa test

> > > > > both fine. Gave me samples of TRT. I

> saw him

> > > yesterday. Also

> > > > > had redrawn total/ free testosterone. A

> while

> > > back , for

> > > > > about 6months I took propecia for male

> pattern

> > > baldness. I

> > > > > hope this wasn't the cause. I am afraid

> to take

> > > the TRT. I

> > > > > am done having kids , but I am only 49.

> Any

> > > advice would be

> > > > > helpful. I do want to feel like myself

> again, but

> > > I am

> > > > > afraid. Thanks.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ------------------------------------

> > > > >

> > > > >

[Guest guest]

Sorry, about posting at bottom. I am just frustrated with my symptoms. I am

almost sure that my low T and low FSH/LH is due to having taken propecia/

followed by antidepressants. When all along probably was my low T. As I said I

am new to all of this. My thyroid/ prolactin levels were fine. Have scheduled

MRI. I went to several boards that talked about finesteride causing secondary

hypogonadism. Many talked about clomid/novolog? To try and jump start HPTA. Will

taking the TRT just mask the problem? I know it's what my body needs. But if

this is caused by the finesteride. Are there other options.

---In , philip georgian <pmgamer18@...> wrote:

>

>

> Please when you reply post at the top of the thread most will not go to the

bottom to see your reply and think the post does not have a reply.

>

> Most of the men I know that have done Popecia and I am not saying this is what

caused you low Testosterone don't get back why I can't say most good Dr.'s like

Dr. don't really know how propecia does this to men.

>

> One first starting on TRT one needs to do labs every 6 to 8 weeks until there

are leveled know there will not be any problems on TRT.

>

> In my case being Hypopituitary I have been doing labs every 8 weeks for over

27 yrs. My heath care pays for my labs and I have a lot of low hormones that my

Pituitary does not tell my body to make like Cortisol, Thyroid, Aldosterone,

Renin and Fettrin or Iron. So I need to keep on top of all of this and I have

low levels of V-D, Folic Acid and need to take supplements to keep going.

>

> Don't let this upset you it took me yrs to find out what was wrong with me.

Your right on top of this not treating low Testosterone will shorten your life

and can cause you heart problems. I just am getting over Heart by pass sugary

the 2 bad blockages I had were very old and have been there for your yrs. I am

lucky I did not just fall dead like Michale did. I feel all the yrs I

went with low testosterone did not help my heart. From day one my problem was

very bad fatigue and shot of breath. Even going on TRT did not help this I was

a walking time boom Dr.'s told me they don't know how I lived so long with this

problem I could have just died and fast.

> Co-Moderator

> Phil

>

>

>

>

> > From: hedgesclinic1 <hedgesclinic1@...>

> > Subject: Re: New to group

> >

> > Date: Friday, July 3, 2009, 10:19 AM

> >

> > > > >

> > > > > > From: hedgesclinic1

> > <hedgesclinic1@>

> > > > > > Subject: New to group

> > > > > >

> > > > > > Date: Thursday, July 2, 2009, 8:15 AM

> > > > > > 49 year old male. For past two years

> > > > > > had feelings of deppression. Saw

> > psychiatrist

> > > > > > started   me on antidepressants.

> > Libido and

> > > > > > mood have been down. Recently had early

> > am total

> > > > > > testosterone level which was low at

> > 170. Thyroid

> > > > > > tests/liver/cbc were fine. I started to

> > take DHEA

> > > > 50 mg/day.

> > > > > > Had been on Dhea for about 1 week. Had

> > FSH/LH

> > > > levels checked

> > > > > > both were low. Spoke to endocrinologist

> > said I

> > > > needed MRI

> > > > > > and to start TRT. Saw urologist did

> > prostate

> > > > exam/psa test

> > > > > > both fine. Gave me samples of TRT. I

> > saw him

> > > > yesterday. Also

> > > > > > had redrawn total/ free testosterone. A

> > while

> > > > back , for

> > > > > > about 6months I took propecia for male

> > pattern

> > > > baldness. I

> > > > > > hope this wasn't the cause. I am afraid

> > to take

> > > > the TRT. I

> > > > > > am done having kids , but I am only 49.

> > Any

> > > > advice would be

> > > > > > helpful. I do want to feel like myself

> > again, but

> > > > I am

> > > > > > afraid. Thanks.

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > > ------------------------------------

> > > > > >

> > > > > >

[Guest guest]

No TRT is not a mask to the problems a lot of men tried this doing clomid and

such and all they got from this was a longer time feeling bad. You just don't

get levels as low as yours and jump start your self like you were doing

steroids. But if it will put your mind a ease try it you can't feel worse then

you do now. Try to find a good Dr. that knows about trying this go to Dr.

's and Dr. M's site and post about doing this see if you can get some good

input on how to do this or a Dr. in your area that is good at this.

http://www.musclechatroom.com/forum/forumdisplay.php?f=2

http://www.definitivemind.com/forums/index.php

These are to 2 top Dr.'s I know that are good at this.

Co-Moderator

Phil

> >

> > > From: hedgesclinic1 <hedgesclinic1@...>

> > > Subject: Re: New to group

> > >

> > > Date: Friday, July 3, 2009, 10:19 AM

> > >

> > > > > >

> > > > > > > From: hedgesclinic1

> > > <hedgesclinic1@>

> > > > > > > Subject: New

> to group

> > > > > > >

> > > > > > > Date: Thursday, July 2, 2009,

> 8:15 AM

> > > > > > > 49 year old male. For past

> two years

> > > > > > > had feelings of deppression.

> Saw

> > > psychiatrist

> > > > > > > started   me on

> antidepressants.

> > > Libido and

> > > > > > > mood have been down. Recently

> had early

> > > am total

> > > > > > > testosterone level which was

> low at

> > > 170. Thyroid

> > > > > > > tests/liver/cbc were fine. I

> started to

> > > take DHEA

> > > > > 50 mg/day.

> > > > > > > Had been on Dhea for about 1

> week. Had

> > > FSH/LH

> > > > > levels checked

> > > > > > > both were low. Spoke to

> endocrinologist

> > > said I

> > > > > needed MRI

> > > > > > > and to start TRT. Saw

> urologist did

> > > prostate

> > > > > exam/psa test

> > > > > > > both fine. Gave me samples of

> TRT. I

> > > saw him

> > > > > yesterday. Also

> > > > > > > had redrawn total/ free

> testosterone. A

> > > while

> > > > > back , for

> > > > > > > about 6months I took propecia

> for male

> > > pattern

> > > > > baldness. I

> > > > > > > hope this wasn't the cause. I

> am afraid

> > > to take

> > > > > the TRT. I

> > > > > > > am done having kids , but I

> am only 49.

> > > Any

> > > > > advice would be

> > > > > > > helpful. I do want to feel

> like myself

> > > again, but

> > > > > I am

> > > > > > > afraid. Thanks.

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> ------------------------------------

> > > > > > >

> > > > > > >

[Guest guest]

Other places grow your tumors to make vaccines. Expensive, but if it works, go

for it.

 

Remember though, these treatments should be periodic. Just because you completed

a course or trial and you had great results doesn't mean you can't go back for

more injections, boosters, etc.

 

Also, combine with other protocols is great tool!

[Guest guest]

-rec- In , philip georgian <pmgamer18@...> wrote:

>

>received new lab test result SHBG 10.6nmol/l (13-71 nmol/l) other results were

given previously. I had been taking DHEA for approx 10 days prior to SHBG level

being drawn. Currently on 3rd day testim gel. any new concern with this SHBG

level?

> No TRT is not a mask to the problems a lot of men tried this doing clomid and

such and all they got from this was a longer time feeling bad. You just don't

get levels as low as yours and jump start your self like you were doing

steroids. But if it will put your mind a ease try it you can't feel worse then

you do now. Try to find a good Dr. that knows about trying this go to Dr.

's and Dr. M's site and post about doing this see if you can get some good

input on how to do this or a Dr. in your area that is good at this.

> http://www.musclechatroom.com/forum/forumdisplay.php?f=2

> http://www.definitivemind.com/forums/index.php

> These are to 2 top Dr.'s I know that are good at this.

> Co-Moderator

> Phil

>

>

>

> > >

> > > > From: hedgesclinic1 <hedgesclinic1@>

> > > > Subject: Re: New to group

> > > >

> > > > Date: Friday, July 3, 2009, 10:19 AM

> > > >

> > > > > > >

> > > > > > > > From: hedgesclinic1

> > > > <hedgesclinic1@>

> > > > > > > > Subject: New

> > to group

> > > > > > > >

> > > > > > > > Date: Thursday, July 2, 2009,

> > 8:15 AM

> > > > > > > > 49 year old male. For past

> > two years

> > > > > > > > had feelings of deppression.

> > Saw

> > > > psychiatrist

> > > > > > > > started   me on

> > antidepressants.

> > > > Libido and

> > > > > > > > mood have been down. Recently

> > had early

> > > > am total

> > > > > > > > testosterone level which was

> > low at

> > > > 170. Thyroid

> > > > > > > > tests/liver/cbc were fine. I

> > started to

> > > > take DHEA

> > > > > > 50 mg/day.

> > > > > > > > Had been on Dhea for about 1

> > week. Had

> > > > FSH/LH

> > > > > > levels checked

> > > > > > > > both were low. Spoke to

> > endocrinologist

> > > > said I

> > > > > > needed MRI

> > > > > > > > and to start TRT. Saw

> > urologist did

> > > > prostate

> > > > > > exam/psa test

> > > > > > > > both fine. Gave me samples of

> > TRT. I

> > > > saw him

> > > > > > yesterday. Also

> > > > > > > > had redrawn total/ free

> > testosterone. A

> > > > while

> > > > > > back , for

> > > > > > > > about 6months I took propecia

> > for male

> > > > pattern

> > > > > > baldness. I

> > > > > > > > hope this wasn't the cause. I

> > am afraid

> > > > to take

> > > > > > the TRT. I

> > > > > > > > am done having kids , but I

> > am only 49.

> > > > Any

> > > > > > advice would be

> > > > > > > > helpful. I do want to feel

> > like myself

> > > > again, but

> > > > > > I am

> > > > > > > > afraid. Thanks.

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > ------------------------------------

> > > > > > > >

> > > > > > > >

[Guest guest]

Hear is what Dr. M says about low SHBG get this checked out.

==========================================================================

Insulin also will drive SHBG down. Insulin has the strongest effect on SHBG,

compared to any other factor.

Low SHBG is a good sign that a person has insulin resistance or diabetes - with

lowers testosterone production. Insulin resistance or diabetes greatly increases

the risk for cardiovascular disease.

Co-Moderator

Phil

> > > >

> > > > > From: hedgesclinic1

> <hedgesclinic1@>

> > > > > Subject: Re: New to

> group

> > > > >

> > > > > Date: Friday, July 3, 2009, 10:19 AM

> > > > >

> > > > > > > >

> > > > > > > > > From:

> hedgesclinic1

> > > > > <hedgesclinic1@>

> > > > > > > > > Subject:

> New

> > > to group

> > > > > > > > >

> > > > > > > > > Date: Thursday,

> July 2, 2009,

> > > 8:15 AM

> > > > > > > > > 49 year old male.

> For past

> > > two years

> > > > > > > > > had feelings of

> deppression.

> > > Saw

> > > > > psychiatrist

> > > > > > > > > started   me on

> > > antidepressants.

> > > > > Libido and

> > > > > > > > > mood have been

> down. Recently

> > > had early

> > > > > am total

> > > > > > > > > testosterone level

> which was

> > > low at

> > > > > 170. Thyroid

> > > > > > > > > tests/liver/cbc

> were fine. I

> > > started to

> > > > > take DHEA

> > > > > > > 50 mg/day.

> > > > > > > > > Had been on Dhea

> for about 1

> > > week. Had

> > > > > FSH/LH

> > > > > > > levels checked

> > > > > > > > > both were low.

> Spoke to

> > > endocrinologist

> > > > > said I

> > > > > > > needed MRI

> > > > > > > > > and to start TRT.

> Saw

> > > urologist did

> > > > > prostate

> > > > > > > exam/psa test

> > > > > > > > > both fine. Gave me

> samples of

> > > TRT. I

> > > > > saw him

> > > > > > > yesterday. Also

> > > > > > > > > had redrawn total/

> free

> > > testosterone. A

> > > > > while

> > > > > > > back , for

> > > > > > > > > about 6months I

> took propecia

> > > for male

> > > > > pattern

> > > > > > > baldness. I

> > > > > > > > > hope this wasn't

> the cause. I

> > > am afraid

> > > > > to take

> > > > > > > the TRT. I

> > > > > > > > > am done having kids

> , but I

> > > am only 49.

> > > > > Any

> > > > > > > advice would be

> > > > > > > > > helpful. I do want

> to feel

> > > like myself

> > > > > again, but

> > > > > > > I am

> > > > > > > > > afraid. Thanks.

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > ------------------------------------

> > > > > > > > >

> > > > > > > > >

> Links

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >     mailto: -fullfeatured

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > Thanks for the response.

> Since I have

> > > had the

> > > > > blood tests

> > > > > > > done. Not the DHEA/estradiol/

> iron

> > > studies. Would

> > > > > it hurt to

> > > > > > > start the testosterone that

> was

> > > prescribed by

> > > > > urologist. I

> > > > > > > just want to feel better. I

> stopped all

> > > the

> > > > > antidepressant

> > > > > > > medication several months

> ago. Thanks,

> > >

> > > > > > > Dan

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> ------------------------------------

> > > > > > >

> > > > > > >

[Guest guest]

Hi Chris

Welcome back!

It sounds like your neuro is trying to scare you and saying the traditional MS

drugs are the only thing to stop MS progressing is just plain lies.

Many people find and start LDN because the traditional drugs fail them and they

continue to get worse. As for Copaxone only costing $50 a month - that also

sounds highly unbelievable. 5 years ago when my husband`s neuro wanted him to

start Avonex, the quote we got was $1,200 a month - I cant imagine these toxic

overpriced drugs have gotten any cheaper!

We " did a deal " with our neuro - we said that my husband refused to take

anything until he`d tried LDN for 6 months and it would be nice if we could do

it with support but were quite willing to do it without. He caved and my

husband has been on it since. He never planned on taking Avonex anyway but

sometimes you have to play " head games " with the doctors and let them think they

are in control!!

That same doctor still prescribes LDN and only mentions anything else once a

year and we laugh and ignore him! He`s a rare nice open minded guy.

Crystal has a list of doctors in different areas and will probably see your post

and respond to you. If not then post again with the subject: for Crystal.

If worst comes to worst you can always buy the 50mg Naltrexone pills from an

Indian pharmacy and make you own smaller dose, as many many people here do. I

have mine just arrived and I`m going to start at the weekend (for Fibromyalgia).

Good luck!

Bev

-- In low dose naltrexone , christine long <beagle10@...> wrote:

>

> Hi everyone,

> I just joined this group yesterday though I was on it back in 2002 when it was

brand new. At that time there was a list of drs who would prescribe LDN and I

haven;t come across it so far. Is there still such a list for those of us with

drs. who won't give LDN a chance? Long story short, I was able to get a script

from my internist in Vegas but when we moved to Wi,. and the script ran out I

stopped taking it, I'vew been very lucky as I only have uveitis and some minor

problems with balance for my MS so I really thought I didn;t have it. Now I

started seeing a neurologist after 5 yrs and again they wanbt to put me on

Copaxone after the MRI showed new plaques. The dr. insists the ABC drugs are the

ONLY  thing that will stop the progrssion once these white plaques attack.

>  

> When I was taking LDN for 1 1/2 yrs I didn't notice any difference as to how I

felt before or after I took  it but when we were in the process of moving and

had some problems with the buyer I was very stressed and felt pain. Now all the

drs. I have talked to say there is no pain with MS, just weakness. I would like

to know if the extreme b urning pain I felt in my leg where I could not possibly

bend the leg was MS pain because after the stress was over it seemed to fade

away. I've never felt it could be MS because I was 58 when I was diagnosed and

I  am  very mobile with no drugs. Now I find I would rather go on LDN then try

the ABC drugs plus what I thought was the high cost of them. The new neuro tells

me the most it would cost me is $50 a month for Copaxone whewn a few years back

they wanted me to pay half which would have bee $900 a month for me. Does anyone

know if they now have Copaxone available for $50 a mt. and if Medicare will take

care of

> it? I have a lot more reading to do obviously and the ABC drugs are not my

first choice but if I can;t get a script for LDN I think this new dr. has scared

me enough to go on something else. Thank you all for listening and any advise

you can give. I think I am still in denial since my symptoms have been mild and

I am afraid I just don;t have a healthy trust of neurologists.

> Thanks in Wi..

>

[Guest guest]

Welcome. It's a long journey and you have lots of good friends to run it with.

________________________________

From: ken.yazici <ken.yazici@...>

Sent: Tuesday, September 8, 2009 6:25:16 PM

Subject: [ ] New to Group

Hi Guys

My name is Ken Yazici & I am dad to Adem who is 2yr old and recently diagnosed

with ASD. We live in Syd Australia and have begun our journey of discovery.

We are seeing a DAN doctor in Sydney. During initial blood tests (Locally) and

hair/stool tests in the US, we discovered a high level of Mercury in his hair

and blood samples. I am now in the process of reading up on the Cutler protocol

for chelation, but as it is such a ugly word with our Dr's here, I think it is

going to require alot of re-education on my behalf as a parent. I will no doubt

call upon others to offer advice as we begin the process of de-toxification of

our little bloke.

Ken - Dad to Adem 2yrs ASD

[Guest guest]

Hi ken,

I am an Australian living abroad and I can tell you its just as bad with

convincing doctors overseas, as it is for you in Australia. My son is 7

years old and we are a year into chelating and biomedical treatments.

Please feel free to lean on me and I will share with you my experiences too. The

people on this group are absolutely fantastic so you are in good hands.

You are one of the lucky ones with an early diagnosis. We started biomed and

chelation when was 6 years old.Good on you.

Let me know whatever you need,

Joanna

________________________________

From: nancy cook <endofautism@...>

Sent: Wednesday, September 9, 2009 9:52:32 AM

Subject: Re: [ ] New to Group

 

Welcome. It's a long journey and you have lots of good friends to run it with.

____________ _________ _________ __

From: ken.yazici <ken.yazicigmail (DOT) . com>

Sent: Tuesday, September 8, 2009 6:25:16 PM

Subject: [ ] New to Group

Hi Guys

My name is Ken Yazici & I am dad to Adem who is 2yr old and recently diagnosed

with ASD. We live in Syd Australia and have begun our journey of discovery.

We are seeing a DAN doctor in Sydney. During initial blood tests (Locally) and

hair/stool tests in the US, we discovered a high level of Mercury in his hair

and blood samples. I am now in the process of reading up on the Cutler protocol

for chelation, but as it is such a ugly word with our Dr's here, I think it is

going to require alot of re-education on my behalf as a parent. I will no doubt

call upon others to offer advice as we begin the process of de-toxification of

our little bloke.

Ken - Dad to Adem 2yrs ASD