New to Group

[Guest guest]

Thanks for the encouraging words

Can I ask what protocol you are following and what chelator you are using?

Ken

>

> Hi ken,

>

> I am an Australian living abroad and I can tell you its just as bad with

convincing doctors overseas, as it is for you in Australia. My son is 7

years old and we are a year into chelating and biomedical treatments.

>

> Please feel free to lean on me and I will share with you my experiences too.

The people on this group are absolutely fantastic so you are in good hands.

>

> You are one of the lucky ones with an early diagnosis. We started biomed and

chelation when was 6 years old.Good on you.

>

> Let me know whatever you need,

>

> Joanna

>

>

>

>

> ________________________________

> From: nancy cook <endofautism@...>

>

> Sent: Wednesday, September 9, 2009 9:52:32 AM

> Subject: Re: [ ] New to Group

>

>  

> Welcome. It's a long journey and you have lots of good friends to run it with.

>

>

>

> ____________ _________ _________ __

> From: ken.yazici <ken.yazicigmail (DOT) . com>

>

> Sent: Tuesday, September 8, 2009 6:25:16 PM

> Subject: [ ] New to Group

>

> Hi Guys

>

> My name is Ken Yazici & I am dad to Adem who is 2yr old and recently diagnosed

with ASD. We live in Syd Australia and have begun our journey of discovery.

>

> We are seeing a DAN doctor in Sydney. During initial blood tests (Locally) and

hair/stool tests in the US, we discovered a high level of Mercury in his hair

and blood samples. I am now in the process of reading up on the Cutler protocol

for chelation, but as it is such a ugly word with our Dr's here, I think it is

going to require alot of re-education on my behalf as a parent. I will no doubt

call upon others to offer advice as we begin the process of de-toxification of

our little bloke.

>

> Ken - Dad to Adem 2yrs ASD

>

>

[Guest guest]

Welcome to the group. You're in the right place! Check

www.danasview.net/metals for sources of exposure. Try to identify and

reduce/remove sources of exposure to mercury.

S S

New to Group

Posted by: " ken.yazici " ken.yazici@... ken.yazici

Tue Sep 8, 2009 6:25 pm (PDT)

Hi Guys

My name is Ken Yazici & I am dad to Adem who is 2yr old and recently diagnosed

with ASD. We live in Syd Australia and have begun our journey of discovery.

We are seeing a DAN doctor in Sydney. During initial blood tests (Locally) and

hair/stool tests in the US, we discovered a high level of Mercury in his hair

and blood samples. I am now in the process of reading up on the Cutler protocol

for chelation, but as it is such a ugly word with our Dr's here, I think it is

going to require alot of re-education on my behalf as a parent. I will no doubt

call upon others to offer advice as we begin the process of de-toxification of

our little bloke.

Ken - Dad to Adem 2yrs ASD

------------------------------------------------------------

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[Guest guest]

Hi Ken,

We are using the Andy Cutler (AC) protocol and doing DMSA plus ALA, Friday

afternoon until Monday morning. we dose every 3 hrs during the day and

4hours at night (just so we can get an extra hours sleeep). We are on round 30

adn have slowly moved up to 25mg of DMSA and 25mg of ALA. Before this,we had

done 10 rounds of 200mg of DMSA every 8 hrs as advised by our DAN. This was

horrendous and it was not until I joined this group and started the AC protocol

that my son calmed down and was able to start dumping metals.

We did a challenge test with DMSA and DMPS and discovered that he dumped more

metals with DMSA and this is why we are using DMSA plus ALA . Some people use

DMPS + ALA but it depends on which one is right for you.

Joanna

________________________________

From: ken.yazici <ken.yazici@...>

Sent: Wednesday, September 9, 2009 3:14:04 PM

Subject: [ ] Re: New to Group

 

Thanks for the encouraging words

Can I ask what protocol you are following and what chelator you are using?

Ken

>

> Hi ken,

>

> I am an Australian living abroad and I can tell you its just as bad with

convincing doctors overseas, as it is for you in Australia. My son is 7

years old and we are a year into chelating and biomedical treatments.

>

> Please feel free to lean on me and I will share with you my experiences too.

The people on this group are absolutely fantastic so you are in good hands.

>

> You are one of the lucky ones with an early diagnosis. We started biomed and

chelation when was 6 years old.Good on you.

>

> Let me know whatever you need,

>

> Joanna

>

>

>

>

> ____________ _________ _________ __

> From: nancy cook <endofautism@ ...>

>

> Sent: Wednesday, September 9, 2009 9:52:32 AM

> Subject: Re: [ ] New to Group

>

>  

> Welcome. It's a long journey and you have lots of good friends to run it with.

>

>

>

> ____________ _________ _________ __

> From: ken.yazici <ken.yazici@ gmail.. com>

>

> Sent: Tuesday, September 8, 2009 6:25:16 PM

> Subject: [ ] New to Group

>

> Hi Guys

>

> My name is Ken Yazici & I am dad to Adem who is 2yr old and recently diagnosed

with ASD. We live in Syd Australia and have begun our journey of discovery.

>

> We are seeing a DAN doctor in Sydney. During initial blood tests (Locally) and

hair/stool tests in the US, we discovered a high level of Mercury in his hair

and blood samples. I am now in the process of reading up on the Cutler protocol

for chelation, but as it is such a ugly word with our Dr's here, I think it is

going to require alot of re-education on my behalf as a parent. I will no doubt

call upon others to offer advice as we begin the process of de-toxification of

our little bloke.

>

> Ken - Dad to Adem 2yrs ASD

>

>

[Guest guest]

You are in the right place. Don't let the doctor talk you into any dangerous

chelation protocols.

The AC protocol is the safest and most effective.

TJ

________________________________

From: ken.yazici <ken.yazici@...>

Sent: Tuesday, September 8, 2009 6:25:16 PM

Subject: [ ] New to Group

 

Hi Guys

My name is Ken Yazici & I am dad to Adem who is 2yr old and recently diagnosed

with ASD. We live in Syd Australia and have begun our journey of discovery.

We are seeing a DAN doctor in Sydney. During initial blood tests (Locally) and

hair/stool tests in the US, we discovered a high level of Mercury in his hair

and blood samples. I am now in the process of reading up on the Cutler protocol

for chelation, but as it is such a ugly word with our Dr's here, I think it is

going to require alot of re-education on my behalf as a parent. I will no doubt

call upon others to offer advice as we begin the process of de-toxification of

our little bloke.

Ken - Dad to Adem 2yrs ASD

[Guest guest]

Avoid the challenge test, they can be harmful because they usually use a large

dose of chelator.

Many use a hair test. You could just start chelation and see if you get good

results. This is the easiest thing to do.

Obviously your child has issues, or you wouldn't be here. Start chelation with

low and frequent dosage. Very safe.

If you are getting positive results, you know you are heading in the right

direction. Then just keep going.....

TJ

________________________________

From: Joanna Nicoli <nicolijoanna@...>

Sent: Wednesday, September 9, 2009 6:45:38 AM

Subject: Re: [ ] Re: New to Group

 

Hi Ken,

We are using the Andy Cutler (AC) protocol and doing DMSA plus ALA, Friday

afternoon until Monday morning. we dose every 3 hrs during the day and

4hours at night (just so we can get an extra hours sleeep). We are on round 30

adn have slowly moved up to 25mg of DMSA and 25mg of ALA. Before this,we had

done 10 rounds of 200mg of DMSA every 8 hrs as advised by our DAN. This was

horrendous and it was not until I joined this group and started the AC protocol

that my son calmed down and was able to start dumping metals.

We did a challenge test with DMSA and DMPS and discovered that he dumped more

metals with DMSA and this is why we are using DMSA plus ALA . Some people use

DMPS + ALA but it depends on which one is right for you.

Joanna

____________ _________ _________ __

From: ken.yazici <ken.yazicigmail (DOT) com>

Sent: Wednesday, September 9, 2009 3:14:04 PM

Subject: [ ] Re: New to Group

 

Thanks for the encouraging words

Can I ask what protocol you are following and what chelator you are using?

Ken

>

> Hi ken,

>

> I am an Australian living abroad and I can tell you its just as bad with

convincing doctors overseas, as it is for you in Australia. My son is 7

years old and we are a year into chelating and biomedical treatments.

>

> Please feel free to lean on me and I will share with you my experiences too.

The people on this group are absolutely fantastic so you are in good hands.

>

> You are one of the lucky ones with an early diagnosis. We started biomed and

chelation when was 6 years old.Good on you.

>

> Let me know whatever you need,

>

> Joanna

>

>

>

>

> ____________ _________ _________ __

> From: nancy cook <endofautism@ ...>

>

> Sent: Wednesday, September 9, 2009 9:52:32 AM

> Subject: Re: [ ] New to Group

>

>  

> Welcome. It's a long journey and you have lots of good friends to run it with.

>

>

>

> ____________ _________ _________ __

> From: ken.yazici <ken.yazici@ gmail.. com>

>

> Sent: Tuesday, September 8, 2009 6:25:16 PM

> Subject: [ ] New to Group

>

> Hi Guys

>

> My name is Ken Yazici & I am dad to Adem who is 2yr old and recently diagnosed

with ASD. We live in Syd Australia and have begun our journey of discovery.

>

> We are seeing a DAN doctor in Sydney. During initial blood tests (Locally) and

hair/stool tests in the US, we discovered a high level of Mercury in his hair

and blood samples. I am now in the process of reading up on the Cutler protocol

for chelation, but as it is such a ugly word with our Dr's here, I think it is

going to require alot of re-education on my behalf as a parent. I will no doubt

call upon others to offer advice as we begin the process of de-toxification of

our little bloke.

>

> Ken - Dad to Adem 2yrs ASD

>

>

[Guest guest]

normally when androgel does not work it is because due to absorption issues due

to improper skin hydration due to adrenal or thyroid imbalances that may have

not been uncovered by your dr due to errors in traditional medicine schools

teaching methods. Please apply the gel 2 hour before the application then have

blood drawn from the opposite arm which it is applited. IF you are taking it

the day after application then your getting a false reading. If you are applying

it with your hands you could be lossing alot of it on your hands. You also need

to look at the down stream of metaboites because cancer can cause a huge

alterations in these which can block testosteron receptros in the the brain. If

you are taking 5 grams then you are not taking enough. You may need to increase

the dosage to 10 grams or switch to a compounded form which may be better

absorbed.

>

> Hi my name is Mike and I started TRT around 2 months ago. I had a orchiectomy

due to testicular cancer. I was feeling tired, moody, and could not

concentrate. I had my Tlevels checked. My total T came back at 271. My

oncologist felt this was still in normal range. The second test came back at

210 at which time I started Androgel. After a couple of weeks on 6 pumps my

test came back at 271. Is the androgel not working for me? Should I push for

injections? I have appt. Wednesday with a different urologist, any advice?

Thank you and. By the way I am 31 years of age.

>

[Guest guest]

Hi Mike,

Welcome to the group. I had TC in 2002. If you are having problems with your

hormones, this is the place. Good info here. When was your surgery and what

stage?

>

> Hi my name is Mike and I started TRT around 2 months ago. I had a orchiectomy

due to testicular cancer. I was feeling tired, moody, and could not

concentrate. I had my Tlevels checked. My total T came back at 271. My

oncologist felt this was still in normal range. The second test came back at

210 at which time I started Androgel. After a couple of weeks on 6 pumps my

test came back at 271. Is the androgel not working for me? Should I push for

injections? I have appt. Wednesday with a different urologist, any advice?

Thank you and. By the way I am 31 years of age.

>

[Guest guest]

Hi Mike and Welcome,

Are you sure on 7.5 grams your labs were the same as your first test or was your

Dr. looking at your old labs. Your first test was 271 your test after doing gel

is 271 looks to me like your Dr. was looking at your old labs this happens. It

happened to me a few times with my old Dr.

If not you need to switch to shots go to Dr. 's site www.allthingsmale.com

and read TRT: A Recipe for Success and in this he says start with 100 mgs. of

Depo T every week. You can do your shot your self and most of us use a small

27g 1ml x 1/2 " lg needle and shoot into the thigh.

Here is a cut and paste about what can happen when you first start gels and like

Hardasnails said your skin might not be letting the gel get the T into your

blood. But I think your Dr. was reading an old lab test.

==========================================================================

Yes this happens a lot you start on a low starting dose 5 grams when your brain

sees the testosterone in your blood even just a little it slows down even stops

sending the LH and FSH message to your testis to make the Testosterone you were

making. So lets say your labs for Total T were 350 you add this dose of gel

your brain sees this and you lose the base level you had before the gel.

Now lets say you need more then 5 grams most do so now all your left with is

what the gel is doing so lets say it's doing 200 so you lost 150.

The reason you feel good is your levels go up that 200 the gel is doing in the

first 2 weeks so your levels go up to 550 in theory. The brain sees this and

you fall back.

Why can this happen it might be how your putting on the gel with Androgel you

need to spread it over your upper arms and shoulders and down your back as far

as you can reach this is half of your dose then do the other side. Just spread

it over the area but don't rub it in.

The other thing is it's not getting through your skin good so you need more. If

you have a thyroid problem your skin will become thicker and gels and creams

don't get through the skin and you need to switch to shots.

I tell men when they go on Gels to retest in 2 weeks because you can end up

feeling worse. Most me just need more gel. Dr.'s that tell men to go on 5

grams of gel and come back in 8 to 12 weeks for labs don't know much about the

use of gels. Dr.'s that treat a lot of men for low T on gels see this happen

and test them again in 2 weeks.

Call your Dr. and tell him this and that your not feeling good you were but fell

back.

Co-Moderator

Phil

> From: mikerizzo2007 <mikerizzo2007@...>

> Subject: New to Group

>

> Date: Sunday, November 22, 2009, 7:10 PM

> Hi my name is Mike and I started TRT

> around 2 months ago.  I had a orchiectomy due to

> testicular cancer.  I was feeling tired, moody, and

> could not concentrate.  I had my Tlevels checked. 

> My total T came back at 271.  My oncologist felt this

> was still in normal range.  The second test came back

> at 210 at which time I started Androgel.  After a

> couple of weeks on 6 pumps my test came back at 271. 

> Is the androgel not working for me?  Should I push for

> injections?  I have appt. Wednesday with a different

> urologist, any advice?  Thank you and. By the way I am

> 31 years of age.

>

>

>

> ------------------------------------

>

>

[Guest guest]

Hi and welcome this is a copy of a post I just did at the ED site.

==========================================================================

Yes when your on Testosterone if your doing shots do them 100 mgs every week.

Dr.'s like to give men 200 mgs every 2 weeks this is dam old and puts you up

after the shots only to fall to low by the next one. And this drives up

Estradiol levels you should have had this tested with your Testosteone if high

getting it down can bring up your T levels some 200 to 300 points. Older men

tend to make more Estradiol then there women at an age over 50 this kills your

wood and your sex life.

About doing shots read page 11 of this link it states to do shots every 7 to 10

days some of us men do them 2x's a week to keep leveled and hold down Estradiol

levels.

http://www.aace.com/pub/pdf/guidelines/hypogonadism.pdf

If you started on gels Androgel 5 grams this is a start dose and you need to do

labs in 2 weeks. So you know it's working your levels can go down on this low

dose. This is a cut and paste of what I tell men starting on gels.

====================================================

Yes this happens a lot you start on a low starting dose 5 grams when your brain

sees the testosterone in your blood even just a little it slows down even stops

sending the LH and FSH message to your testis to make the Testosterone you were

making. So lets say your labs for Total T were 350 you add this dose of gel

your brain sees this and you lose the base level you had before the gel.

Now lets say you need more then 5 grams most do so now all your left with is

what the gel is doing so lets say it's doing 200 so you lost 150.

The reason you feel good is your levels go up that 200 the gel is doing in the

first 2 weeks so your levels go up to 550 in theory. The brain sees this and

you fall back.

Why can this happen it might be how your putting on the gel with Androgel you

need to spread it over your upper arms and shoulders and down your back as far

as you can reach this is half of your dose then do the other side. Just spread

it over the area but don't rub it in.

The other thing is it's not getting through your skin good so you need more. If

you have a thyroid problem your skin will become thicker and gels and creams

don't get through the skin and you need to switch to shots.

I tell men when they go on Gels to retest in 2 weeks because you can end up

feeling worse. Most me just need more gel. Dr.'s that tell men to go on 5

grams of gel and come back in 8 to 12 weeks for labs don't know much about the

use of gels. Dr.'s that treat a lot of men for low T on gels see this happen

and test them again in 2 weeks.

Call your Dr. and tell him this and that your not feeling good you were but fell

back.

====================================================

In this link it tells you all about going on TRT and Estradiol levels. It

states to get your Total T levels up into the upper 1/3 of your labs range and

to keep your Estradiol at about 20 pg/ml doing this then your go up on your dose

of T by how you feel.

http://www.griffinmedical.com/male_hormone_modulation_therapy.html

This link tells how older men getting Estradiol levels down bring up there

Testosterone levels.

http://jcem.endojournals.org/cgi/content/full/89/3/1174

In this link we use Arimidex to keep Estradiol levels down.

http://www.medibolics.com/ArimidexBoostsTestosterone.htm

In this link it shows how bad high levels of Estradiol are for men.

http://www.lef.org/magazine/mag2008/nov2008_Dangers-of-Excess-Estrogen-in-the-Ag\

ing-Male_01.htm

For more info about TRT go to Dr. 's site www.allthingsmale.com and read

TRT: A Recipe for Success and his HCG update he puts this out there free for you

and your Dr.

If your doing shots at your Dr.'s office get him to show you how to do them your

self and do them every week.

I hope this helps you.

Co-Moderator

Phil

> From: ryangregory2011 <ryangregory2011@...>

> Subject: New to Group

>

> Date: Saturday, November 28, 2009, 10:41 PM

> Hi, This is my first post.  I

> started TRT Saturday.  I was having low testosterone

> issues and now I am on 200mg cypo something every two

> weeks.  Is helpful advice would be appreciated. 

>

>

>

> ------------------------------------

>

>

[Guest guest]

Welcome ryan

Can you give us alittle back ground into how old you are? Some times for many

young guys TRT is not the right way to go and looking at other factors may point

to other reasons why such as elevated cortisol, over training, sleep hygiene,

ect. Testosterone shots need to be admintered weekly or biweekly to keep the

levels stablized and e2 from jumping all over the place. Your Dr needs to be

aware of this. If they are not you need to look in our data bases of dr's that

are well adversed in this field. DR O and I are located in philly. We can be

referenced in the data base as well.

>

> Hi, This is my first post. I started TRT Saturday. I was having low

testosterone issues and now I am on 200mg cypo something every two weeks. Is

helpful advice would be appreciated.

>

[Guest guest]

Hello and sorry it took so long to respond back. I met with a new Urologist and

he is going to start me on cypo 200 every two weeks. In 2 months in between

shots he want to test my total T and PSA. I read it's better to have 100 every

week. Is this true. Should I make another appointment and ask him about this?

>

> Hi my name is Mike and I started TRT around 2 months ago. I had a orchiectomy

due to testicular cancer. I was feeling tired, moody, and could not

concentrate. I had my Tlevels checked. My total T came back at 271. My

oncologist felt this was still in normal range. The second test came back at

210 at which time I started Androgel. After a couple of weeks on 6 pumps my

test came back at 271. Is the androgel not working for me? Should I push for

injections? I have appt. Wednesday with a different urologist, any advice?

Thank you and. By the way I am 31 years of age.

>

[Guest guest]

No it is very old your up after this dam big shot only to fall back down by the

next one. It's best to do your own shots I feel Dr.'s tell men every 2 weeks

because they what the money for doing them in there office. Have him show you

how to do your own shots. I use a small 27g 1ml x 1/2 " lg needle and shoot into

my thigh so if you get a 10 ml. vial of Depo T 200mgs/ml to do 100 mg shot it's

small only .5mls. No pain using this size needle here is a link about doing

shots and one from the AACE Guildlines read page 11 it states to do shots every

7 to 10 days.

http://spotinjections.com/index3.htm

http://www.aace.com/pub/pdf/guidelines/hypogonadism.pdf

Co-Moderator

Phil

> From: mikerizzo2007 <mikerizzo2007@...>

> Subject: Re: New to Group

>

> Date: Wednesday, December 2, 2009, 4:19 PM

>

> Hello and sorry it took so long to respond back.  I

> met with a new Urologist and he is going to start me on cypo

> 200 every two weeks.  In 2 months in between shots he

> want to test my total T and PSA. I read it's better to have

> 100 every week.  Is this true.  Should I make

> another appointment and ask him about

> this?   

>

> >

> > Hi my name is Mike and I started TRT around 2 months

> ago.  I had a orchiectomy due to testicular

> cancer.  I was feeling tired, moody, and could not

> concentrate.  I had my Tlevels checked.  My total

> T came back at 271.  My oncologist felt this was still

> in normal range.  The second test came back at 210 at

> which time I started Androgel.  After a couple of weeks

> on 6 pumps my test came back at 271.  Is the androgel

> not working for me?  Should I push for

> injections?  I have appt. Wednesday with a different

> urologist, any advice?  Thank you and. By the way I am

> 31 years of age.

> >

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

With all due respect to Phil, his syringe is not the " standard " . It works for

him, but I'm very comfortable with a bigger, longer needle.

I use a 22g 1 1/2 " syringe with a detachable needle. I use an 18 ga needle to

draw and then replace the 22 ga needle for the injection.

My wife is a Registered Nurse and she gives me the shot in the gluteur maximus

(butt or hip). A few times when she was not available I gave myself the shot

in the vastus lateralis (outer thigh ).

I know a 22 ga 1 1/2 " needle looks wicked, but I find it is not painful and I'm

very happy with the testosterone deep in the glute.

The nerves are in the skin and close to the surface. I personally wouldn't want

to use a needle designed for subcutaneous use. Testosterone Cypionate is

designed for deep intramuscular injection.

Your doctor will probably have his nurse instruct you or your significant other

in giving the injection. Insurance companies would frown on weekly physician

visits. Some insist on no more often than once a month.

Regardless of your selection of hardware, be sure to carefully wash your hands

and use an alcohol prep. Any time you break the skin you want to have things

sterile.

>

<snip>

I use a small 27g 1ml x 1/2 " lg needle and shoot into my thigh so if you get a

10 ml. vial of Depo T 200mgs/ml to do 100 mg shot it's small only .5mls.

<snip>

> Co-Moderator

> Phil

[Guest guest]

If I could get my wife to do this I would do the same as your doing. My needle

is only a 1/2 " lg but my shot is not subQ I drive the needle in to my thigh

past any fat into the muscle. There are a lot of guys out there doing the same

a I am and even Dr. Shippen does this to his self but he dose subQ same dose

every 3 days as I do I go this Idea from him. I can't do subQ shots it stings

for hrs after but into my thigh works great and for a lot of other men that do

shots.

Co-Moderator

Phil

> From: k0cm <Randy@...>

> Subject: Re: New to Group

>

> Date: Wednesday, December 2, 2009, 6:41 PM

> With all due respect to Phil, his

> syringe is not the " standard " .  It works for him, but

> I'm very comfortable with a bigger, longer needle.

>

> I use a 22g 1 1/2 " syringe with a detachable needle. 

> I use an 18 ga needle to draw and then replace the 22 ga

> needle for the injection.

>

> My wife is a Registered Nurse and she gives me the shot in

> the gluteur maximus (butt or hip).   A few

> times when she was not available I gave myself the shot in

> the vastus lateralis (outer thigh ).

>

> I know a 22 ga 1 1/2 " needle looks wicked, but I find it is

> not painful and I'm very happy with the testosterone deep in

> the glute.

>

> The nerves are in the skin and close to the surface. 

> I personally wouldn't want to use a needle designed for

> subcutaneous use. Testosterone Cypionate is designed for

> deep intramuscular injection.

>

> Your doctor will probably have his nurse instruct you or

> your significant other in giving the injection. 

> Insurance companies would frown on weekly physician

> visits.  Some insist on no more often than once a

> month.

>

> Regardless of your selection of hardware, be sure to

> carefully wash your hands and use an alcohol prep.  Any

> time you break the skin you want to have things sterile.

>

>

> >

> <snip>

> I use a small 27g 1ml x 1/2 " lg needle and shoot into my

> thigh so if you get a 10 ml. vial of Depo T 200mgs/ml to do

> 100 mg shot it's small only .5mls. 

> <snip>

> > Co-Moderator

> > Phil

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Thanks for the info. My Doctor did mention somthing about me doing them myself.

He said he was going to put me on this trial period with shots to see how they

worked out.

> > >

> > <snip>

> > I use a small 27g 1ml x 1/2 " lg needle and shoot into my

> > thigh so if you get a 10 ml. vial of Depo T 200mgs/ml to do

> > 100 mg shot it's small only .5mls. 

> > <snip>

> > > Co-Moderator

> > > Phil

> >

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

Keep us posted how your doing it helps.

Co-Moderator

Phil

> From: mikerizzo2007 <mikerizzo2007@...>

> Subject: Re: New to Group

>

> Date: Thursday, December 3, 2009, 2:21 PM

> Thanks for the info.  My Doctor

> did mention somthing about me doing them myself.  He

> said he was going to put me on this trial period with shots

> to see how they worked out. 

>

>

> > > >

> > > <snip>

> > > I use a small 27g 1ml x 1/2 " lg needle and shoot

> into my

> > > thigh so if you get a 10 ml. vial of Depo T

> 200mgs/ml to do

> > > 100 mg shot it's small only .5mls. 

> > > <snip>

> > > > Co-Moderator

> > > > Phil

> > >

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > >

[Guest guest]

Yes. I have pretty severe issues with my SI joint. Right now I am recovering

from a knee replacement on my left side and at this point my SI joint on

that side is about 10 times more painful than the leg. It's been really bad.

Bad to the point where I feel ill. I do take Meloxicam twice a day but it is

doing nothing this time. When I get back from my Christmas holidays I may

see about having a shot into it.

Gareeth

silverfx40 wrote:

<<I've been reading a lot of your postings and was wondering if other

members had sacroiliitis.>>

[Guest guest]

Hi,

The doctor had suggested Celebrex, but I took that medication for a back injury

some years back and couldn't take them. I was having trouble breathing with

them so I took only 2 of those pills and they went...lol

I've been very lucky with getting that doctor, my husband works for him as his

x-ray lab technician, so he offered to take me as a patient free of charge

because I still live in Ontario, so I'll only have to pay my meds.

EmLynn

[Guest guest]

I agree with you Karla! My 4 year old has aspergers P.D.D. and one dr siad she could not diagnose him with it because of his scores, but the his normal child psychologist diagnosed him with it because he shows all the signs of being in the autism spectrum. I think because my son is not full blown autistic that the school child psychologist was scared to diagnose him when i think that is what she is used to seeing come through our school corporation here. The full blown autistic kids. He is just as bad off as those kids though even though he may not talk like it or as dependent as those kids are. He has most of the symptoms that your child displays and he also pick fights with his older sister. my sons neurologist told me when he was two when this all first came about not to use spanking as

a form of discipline because whatever it was causing his brain to make him act out the way he was, he didn't understand why he was doing it and was also not aware of his beahviors. As my child has gotten older I have reverted back to using that as a form of disciplin, because I have tried everything else like time out, in the corner, and even early beedtime and nothing seems to phase him at all. So I am at a blanknow as well. I have tried to study up as much as I can about this disorder and I am not having any luck on getting my son to understand the concept of discipline or just about anything else. So if you have any ideas that you can share with me, I would greatly appreciate it! Thanks so much for your time and concern, for I truely know what it is like! Thanks Again.

Sincerely,

Jenna Aguilar

From: karla <llamattude@...> Sent: Tue, December 29, 2009 10:32:24 AMSubject: ( ) new to group

Hi;I'm new here. My 11 year old son has been diagnosed with bipolar four years ago. While that did and did not fit him we have went on that diagnosis for a long time. We went for a neuropsych test back in the summer of this year and it said something about markers of Asperger's. We also added and new psychatrist in the mix and she mentioned mild Asperger's as well. I read one book on that so far, still don't understand it fully. My son also sees a psychologist, now here is where I get confused, both claim to be experts in Asperger's the psychatrist says mild, the psychologist says he doesn't have it at all because he has great eye contact and his IQ scores are to low. Unfortunately because of insurance dropping our psychiatrist we were seeing we have now had to get another, we have saw her once, and she also says that she feels he has Asperger's. So, here I am confused, three saying he has markers or mild Asperger's and another who

says he doesn't. I hope to learn more about this through this group and how to handle it as it gets very confusing sometimes. We have had to start homeschooling him because of stress and bullying at school. What I am seeing at home is that he is agging things on and then he claims he isn't doing anything. He does not seem to realize what he is doing. There are rages, there are babish things, he sticks everything in his mouth like a baby does no matter what it is. But then he is smart even thought his scores don't show it. Thanks, I hope I didn't confuse many people as the world I live in right now is confusing and I'm trying very hard to learn. I spend the last four years learning everything I could about bipolar and none of the parenting for that has helped at all. It seemed to have the opposite effect. One of the big issues I have now is that my bp/asp son picks on my younger son and well that starts a huge fight that lasts all day

long. Talked to the psych about it she said to punish my younger son and leave the older alone. I don't think that is right either, why should my younger be punished for my older's actions. But nothing we do to the older seems to get through to him. So, I feel like I'm at my wits end a lot of times. Thanks,Karla

[Guest guest]

My son is 7 and was diagnosed at 4 1/2 with AS. We've never used spanking as a

punishment. He takes things so literally (life is black and white) that there

is no way we could explain to him why it was okay for us to spank him if he did

something wrong, but not okay for him to hit other people if they did something

he thought was wrong/unfair.

A large portion of his difficult behavior issues went away when we put him on

the Feingold diet, which eliminates artificial colors, artificial flavors, and

petroleum-based preservatives. We found out that he was sensitive to certain

foods which would make him get extremely violent, so we could limit or eliminate

those based on the severity of the reaction.

You may also want to take a look at a book by Ross Greene, called " Lost at

School " He has a website at www.livesinthebalance.org which gives an overview

of the philosophy behind his ideas. When my husband read the book he finally

understood my son and how to work with him to get things done.

>

> I agree with you Karla! My 4 year old has aspergers P.D.D. and one dr siad she

could not diagnose him with it because of his scores, but the his normal child

psychologist diagnosed him with it because he shows all the signs of being in

the autism spectrum. I think because my son is not full blown autistic that the

school child psychologist was scared to diagnose him when i think that is what

she is used to seeing come through our school corporation here. The full blown

autistic kids. He is just as bad off as those kids though even though he may not

talk like it or as dependent as those kids are. He has most of the symptoms that

your child displays and he also pick fights with his older sister. my sons

neurologist told me when he was two when this all first came about not to use

spanking as a form of discipline because whatever it was causing his brain to

make him act out the way he was, he didn't understand why he was doing it and

was also not aware of

> his beahviors. As my child has gotten older I have reverted back to using

that as a form of disciplin, because I have tried everything else like time out,

in the corner, and even early beedtime and nothing seems to phase him at all. So

I am at a blanknow as well. I have tried to study up as much as I can about this

disorder and I am not having any luck on getting my son to understand the

concept of discipline or just about anything else. So if you have any ideas that

you can share with me, I would greatly appreciate it! Thanks so much for your

time and concern, for I truely know what it is like! Thanks Again.

>

> Sincerely,

> Jenna Aguilar

>

>

>

>

> ________________________________

> From: karla <llamattude@...>

>

> Sent: Tue, December 29, 2009 10:32:24 AM

> Subject: ( ) new to group

>

>  

> Hi;

> I'm new here. My 11 year old son has been diagnosed with bipolar four years

ago. While that did and did not fit him we have went on that diagnosis for a

long time. We went for a neuropsych test back in the summer of this year and it

said something about markers of Asperger's. We also added and new psychatrist in

the mix and she mentioned mild Asperger's as well. I read one book on that so

far, still don't understand it fully. My son also sees a psychologist, now here

is where I get confused, both claim to be experts in Asperger's the psychatrist

says mild, the psychologist says he doesn't have it at all because he has great

eye contact and his IQ scores are to low.

>

> Unfortunately because of insurance dropping our psychiatrist we were seeing we

have now had to get another, we have saw her once, and she also says that she

feels he has Asperger's.

>

> So, here I am confused, three saying he has markers or mild Asperger's and

another who says he doesn't.

>

> I hope to learn more about this through this group and how to handle it as it

gets very confusing sometimes. We have had to start homeschooling him because of

stress and bullying at school. What I am seeing at home is that he is agging

things on and then he claims he isn't doing anything. He does not seem to

realize what he is doing. There are rages, there are babish things, he sticks

everything in his mouth like a baby does no matter what it is. But then he is

smart even thought his scores don't show it.

>

> Thanks, I hope I didn't confuse many people as the world I live in right now

is confusing and I'm trying very hard to learn. I spend the last four years

learning everything I could about bipolar and none of the parenting for that has

helped at all. It seemed to have the opposite effect. One of the big issues I

have now is that my bp/asp son picks on my younger son and well that starts a

huge fight that lasts all day long. Talked to the psych about it she said to

punish my younger son and leave the older alone. I don't think that is right

either, why should my younger be punished for my older's actions. But nothing we

do to the older seems to get through to him. So, I feel like I'm at my wits end

a lot of times.

>

> Thanks,

> Karla

>

[Guest guest]

Thanks all.

My son the day before yesterday through a good rage on us. We had to go get a few things in town, the boys wanted to go with. We told them several times they were not getting anything as we just had Christmas. They both said alright. We get avoid Wal-Mart as that is the main place where we have fits to get the stuff we need. Pay double that we really can't afford in this, but figure it is better than the fight that we would deal with.

After I wanted to make one other stop to see if a place has something I wanted, wasn't going to buy just see for future reference. (We are rarely out without the kids.) My youngest made a comment he wanted to go someplace and get something. We told him no as we just had Christmas.

In the car after the stop I wanted to make my oldest through a fit blaming the youngest for the reason they didn't go to Hobby Lobby, (which is where they wanted to go.) We tried so hard to explain to him that we told them, but he starts screaming at us and telling us it was the younger son's fault. Next thing we know, (all this before we get out of the parking lot) my older son just dives over the seat and starts pounding on the younger son. We have to stop the car right there and pull them apart. When we do get them apart then the older is screaming at the other the whole way home, which is about a 30 minute or so drive. After we got home he dove on the younger in the yard and started pounding him again, which caused us to have to pull them apart again.

Another incident was yesterday, we had an appointment with the psychologist. We are down to one vehicle right now as my dh's truck is broke down. Dh was coming home early from work so we could go to the dr. The appointment was at 1:30 and this one is 30 minutes from here. My DS calls DH at 11:00 yelling at him over the phone that we were going to be late for his appointment. We are both trying to tell him there was more than pleanty of time. But he wouldn't listen.

In the dr office he claims that he doesn't spend enough time with his DD and wants more time. Yes, DH works two full time jobs and is gone a lot, but he is home during the week at 3:30. Dr. calls us back to talk about that, we tell her this. She asks DS how many hours that he spends with his Dad. DS answered 5 hours, she then asked how many hours do you want to spend with your Dad. His answer two hours. She looks at us, and we finally had a break through. She started seeing some of the things I had been complaining about for the last year. As everything else started coming out as well.

She then admitted at that moment she didn't know what to tell us and that she didn't know for sure how to help him. I don't think she believed us before that moment. Where is this going to go I don't know, and this coming from a person that told us she was an expert on AS.

As for displine, we have tried it all. Spanking, setting in the corner, taking away, giving rewards for good behavior, seems like there was something else, and nothing has worked. The taking away and rewards work for short periods of time, but after a day or two of this it is like nope not enough. There have been things that he really wants bad, and well tell him he has to say not fight with his brother for x number of days to get the big reward and if he doesn't fight for x number of hours he gets this reward. He is alright with that, then after maybe two hours nope he isn't interested any more. Same with taking stuff away, we take what he really wants away for bad behavior, he throws a fit kicking and screaming for a few minutes then it is like no big deal he can live without it and goes back to doing what he got him trouble again. Very frustrating. Setting in the corner literally wore me out as I would have to litterally set on him or hold him in

the spot for how ever long, and if he fought the time didn't start until he calmed down. If he got up we would start all over again. That would go on for hours and hours and hours with the fight start over, get up start over, etc. I would set on him for the alotted minutes and he didn't learn anything by all this.

I'm still searching. Right now I'm trying to find out all I can about this disorder so that I can help him. I will say that somethings have gotten better since I started homeschooling him at the end of last month. Some of the stress and battles have ended there. But we still have other battles.

Thanks

Karla

[Guest guest]

The way I put it to one GP was that I suffered Chronic Fatigue and

Fibromyalgia, and was doing really well, but that I was chemically

sensitive and had to be really careful about medications, or they

destroyed my digestive system. That I found I could manage simpler,

herbal medications, and if they knew any of those, I'd be willing to

give them a try.

One did in fact suggest garlic and parsley tablets for some problem,

which is amazing!

All of it true, too.

DMSO is worth researching for bladder problems and cancer. Lots of Info

here:

DimethylSulfoxide-DMSO

All the best

Rowena

Patty Soza wrote:

> Hi,

> I just joined the group and browsed a bit through what's been posted recently.

I hope I'm not being too bold, jumping right in.

> December 30th I woke up in a cold sweat and had severe pain in my lower

abdomen on the way to work. Once I got to work I found that I was bleeding from

my bladder, and called a nurse to advise whether to see the doctor or go to the

emergency room.

> She advised me to go to the emergency room where they did a CT scan and found

that I have a mass on my liver and my bladder wall is thickened.

> New Years Eve I saw a urologist who told me he didn't want to alarm me but a

thickened bladder wall usually indicated cancer. He prescribed antibiotics for

the next two weeks, Cipro, and will put a scope in my bladder to learn more in

two weeks. Tonight at 9:00 p.m. I'm scheduled at the hospital to have an MRI.

> I turned to alternative medicine years ago because of chronic bladder

infections and other medical problems, but I think what had transpired before

with the bladder infections took its toll. I've been under extreme stress for

quite awhile too, which I think also took its toll.

> Alternative medicine has been so much more effective for me over the years,

and doctors tend to be so condescending with me and I know right now that this

is my responsibility to seek out what's best for me. I had Mohs surgery a year

ago and wondered then if my immune system wasn't working properly to have gotten

skin cancer. I'm cured from that, but now this.

> I don't know whether I started a healing crisis for myself because recently I

was taking Serrazimes, or whether this was just a ticking time bomb in me, but

here I am!

> I also use CDs that lead me through guided imagery and affirmations, which

I've found has also been very effective for me.

> I'm looking forward to hearing others stories and gleaning some wisdom from

the group.

>

> Patty

>

>

>

>

[Guest guest]

Thank you Rowena! I looked it up and I'm now pending membership.

Patty

Re: [ ] New to group

The way I put it to one GP was that I suffered Chronic Fatigue and

Fibromyalgia, and was doing really well, but that I was chemically

sensitive and had to be really careful about medications, or they

destroyed my digestive system. That I found I could manage simpler,

herbal medications, and if they knew any of those, I'd be willing to

give them a try.

One did in fact suggest garlic and parsley tablets for some problem,

which is amazing!

All of it true, too.

DMSO is worth researching for bladder problems and cancer. Lots of Info

here:

DimethylSulfoxide-DMSO<http://health.groups\

../group/DimethylSulfoxide-DMSO>

All the best

Rowena

[Guest guest]

Hi ,

I don't visit this group much anymore because the Docs have decided that I may

not have PsA after all...that's after 6 years. First, my name is Laurie and I am

also 55. I have PsA, fibromyalgia and now....Lupus! Thanks to the Enbrel I took

for 4 years. (I was also on MTX injection) My Rheumy said she had an obligation

to take me off the Enbrel and report it to the CDC. Then I was left with MTX. I

listened to my " gut " and did some in-depth research about MTX and found many, I

mean many, studies that say; people on low dose MTX have a better than 50%

chance of getting ANY form of CANCER!!!!!!!! Ok, need more info??? This scared

the crap out of me. I'm not a nurse but have a strong med background (should

have bee a nurse) because I worked in a group med home for mentally handicapped

people. I also read everything I can get my hands on. I had been told for years

that it was the fibro but I wanted to blame the pain on PsA. Well after about 3

years of

being in denial, I escaped from the confines of the modern medical beliefs and

was VERY fortunate to find a " functional " medicaine Doc. She is terrific and is

board certified (for those skeptics out there). I decided to follow her

instructions and feel so much better. I don't mean to say that I'm 100% but on

some days I'm about 60-70%, then I also have my bad days when I eat something

that I'm not supposed to, or do waaay more than I should. As someone with all

this and still trying to have a " normal " life I hear what you are saying!

I don't want you to decide not to take Enbrel, I want you to " think " about it

and do your research now! They may only keep you on Enbrel for a couple of

years, then it may stop working. The next step to more hard line biologics. It

never ends and you are the experiment for the drug companies. I would never have

said that 5 years ago. But I will now! I don't want to be someone's experiment.

I just want to live a life

that I can participate in and enjoy. Like I said in the beginning, I don't get

on this list often but for some reason I did today and for some reason your

email stood out to me so I read it. I hope that I don't scare you but you

do need to educate yourself to ALL the possibilities out there. I say this

because I've been through this and I hate to see others follow the same road.

If you want to talk further on this, the best way to contact me is to email me

at k9bigdog@...  As you can see from my signature, I am a fibro

support group leader.

Even if I don't hear from you, I wish you the best! I also applaud you for being

an ER nurse!! That takes a special person to do but it's not without it's

pitfalls. did you know that the group of people with the most fibro are Nurses,

then teachers.....hmmmmm

Blessings to you! 

 ~Laurie

Moderator of the Fibromyalgia Self Management Network

[Guest guest]

Laurie,

I read your post with interest because I have also done much research on both

MTX (which I'm currently on) and biologics.  (My degree is in genetics, so I

can't help but be research-minded )  I haven't come across the studies that

you reference with regard to MTX or anything that indicates that Enbrel may

trigger lupus.  I'd be interested in seeing the references as I'm constantly

assessing the risk-benefit balance of the drugs I take (MTX and Celebrex at this

point). 

I have come across studies that say MTX may increase your risk of getting

certain cancers (specifically lymphoma) by 50 to 100%, but as the risk of

that is only 1% in the rheumatoid arthritis/psoriatic arthritis group anyway,

you're looking at a 1.5% to 2% risk overall.  Of course, people with RA or PsA

are at higher risk of lymphoma anyway, no matter what drugs they're on (or not

on), so that does skew the results somewhat.  An increase of 100% means that

your overall risk is doubled.  That's not the same as having a 50% (or 100%)

chance of getting something.

I've also seen studies that indicate that Enbrel may trigger a form of multiple

sclerosis, which is reversible once you stop taking Enbrel.  However this is

rare.  But I haven't seen anything that mentions lupus as a rare, or otherwise,

side effect.

I don't mean to belittle the importance of alternative approaches.  I myself eat

a very high vegetable and fruit diet, and take a stack of supplements every

day.  I notice when I stray from my diet and supplements . . .  And I'm open to

anything that helps (meditation, massage, herbal medicine, etc.)  But it's

important, I think, to consider every option we have available to us - both the

pros and cons - and make our own decisions.  I know that I don't *like* taking

powerful drugs.  On the other hand I certainly don't like living in severe pain

and at 41, don't really want to end up disabled in my 50's.  Some people

do react very badly to drugs (you should see what happens to me on Tylenol +

codeine!), but many - in fact the vast majority - do not.  The key I think is to

listen to your body, try different things, and watch for adverse reactions like

a hawk.

Debbie