New to Group

February 8, 2010

Laurie: you've put forward some pretty scary information but it would be more

helpful if you could cite at least a few of the websites or articles that state

the risk of developing cancer from low doses of methotrexate is greater than

50%.

Additionally, I'm wondering why your rheumy believes that Enbrel caused your

lupus. Lupus is a disease that's in some ways very similar to PsA, RA and

others that are caused by our immune system. Is there a possibility that you

were simply mis-diagnosed at the beginning? Anything more concrete you could

provide would be very helpful on either topic. Also with regard to the diet

you say has helped.

I'm too have questions about whether or not I have PsA. My rheumy is convinced

I have it; I'm not and my internist is skeptical, too, though at one point two

years ago, it is clear that I did have an immunological " thing " going on that

responded to Enbrel within a few short months. But it has never returned, even

when I went off all medications for a while. I am taking MTX right now but

mostly to satisfy my rheumy.

Joanna Hoelscher

February 8, 2010

Joanna,

Did you go back on MTX just to satisfy your rheumy or did you have exacerbation

of symptoms? Just curious. I went off my meds (much to my MDs chagrin) and was

OK for about 8 weeks but than had to go back on MTX and prednisone as I had a

flare and could not function. I do know that I have PsA and unfortunately diet,

though it helps a lot, doesn't seem to be enough to keep mine in check. My goal

is for highest function with the least amount of meds possible but it is not

always clear how to achieve that. Hope you have a pain-free day. God bless,

Patty

February 8, 2010

Patty: I did not have any symptoms but went on it to satisfy her. I'd been off

Enbrel for six months, though I did discuss it with both the rheumy and my

internist before stopping it. As far as my rheumy can tell me from x-rays, the

only place I have any evidence of inflammatory disease is in my sacrum and the

radiologist did diagnose mild sacroillitis there. But she's done x-rays of my

neck, hands, feet and ankles (as well as my sacrum) and there is no other

evidence of anything but osteo-arthritis any place else.

Whatever I had at the very beginning, though, was very bad and came on quickly.

My physical therapist first noticed it - I was in rehab after shoulder surgery

and nearly finished with it when she started telling me that she felt

inflammation in my body that was not there before. Then as the weeks passed, I

began really hurting all over. The PT finally insisted that I see my internist

because she was convinced I was - for some reason - suddenly developing a

systemic inflammatory disease. My internist - being the pragmatist that she is

- said that statistically the most likely reason for muscle pain in my case was

Lipitor so she tried taking me off that for two months but I just got worse.

So, she did blood tests which did show evidence of inflammation (CRP was normal

but sed rate was about 60); so she sent me to a rheumy who first said I had

fibromyalgia. But then she noticed I had a history of mild psoriasis and

immediately said, " Oh, you have

psoriatic arthritis, " I'd never even heard of it before. She put me on Enbrel

and within a couple of months I was back to normal. But the inflammation had

been bad - particularly in my feet/legs. They were so swollen I could hardly

get a pair of shoes on and before starting on Enbrel there were a few nights

when I literally crawled up the stairs to go to bed because I couldn't walk, I

hurt so much. Arms hurt too so it was even hard to get up out of a chair. So,

as I told the rheumy during this discussion that I remembered how bad that time

was and didn't want to do anything " stupid " ; at the same time, I'm with you - I

don't want to take powerful medications if I really don't need them. So, I

guess the jury's still out but I don't feel any different since going on MTX and

it's been about six months.

As an interesting little sidelight, when I had this discussion about stopping

Enbrel with my rheumy and mentioned not wanting to make a mistake that would

cause a re-occurrence of how I felt when I first went to her, she said, " Oh,

that wasn't psoriatic arthritis; it was fibromyalgia! " Now that one really

threw me . . . . . .. . and is just one more reason why I'm a bit skeptical

about the PsA diagnosis. I'm not even sure I have fibro but I sure had that

fibromyalgia fog at the time. Couldn't concentrate (I love to read and I

couldn't remember anything from one page to the next), couldn't stay awake if I

was driving. It was scary! These diseases that don't have definitive tests by

which you can diagnose them can really be a challenge . . . . . . .

Joanna Hoelscher

-

February 9, 2010

Patty,

Thank you so much for your thorough post regarding this subject.

I just started on methotrexate, and am starting Humira in one week.

I had taken Enbrel before, and I did develop some neurological symptoms

(slurred

Speech, memory problems, coordination, incontinence), so I did have to stop

it.

It did take about a year to clear up, but it went away.

I believe I remember reading that Enbrel can cause a ³lupus-like² syndrome:

This is from the Enbrel website:

ENBREL can cause serious side effects including: Infections, including

serious infections like TB; hepatitis B can become active if you already

have had it; nervous system problems, such as multiple sclerosis, seizures,

or inflammation of the nerves of the eyes; blood problems (some fatal); new

or worsening heart failure; new or worsening psoriasis; allergic reactions;

autoimmune reactions, including a lupus-like syndrome and autoimmune

hepatitis.

I have never read the 50% figure regarding methotrexate, and I do think that

we need to be careful when saying

Something like this on this board, that there is a reliable source for that

information. Whether it is true or not,

Someone might really be having sever joint damage done, and decide not to

have treatment based on that information.

I think opinions are fine but we need to be careful.

Kristy

February 9, 2010

Debbie,

Hi, my name is Lori, I was diagnosed last month with PsA after being

misdiagnosed in 2005 with fibro. I am due to start Humira on Friday, I am so

excited and hopeful that this drug will give me relief. I am 41 and already my

hands are slightly deformed from PsA.

I would be very interested to know about your diet and supplements that you take

daily as well as what happens when you stray from your plan. I myself am having

trouble adjusting to limitations on what I can do and what I can eat without

feeling the effects. I wonder if you or anyone has put together a small book of

diet do's and dont's, I know that everyone has a different trigger but I do

believe that the main foods are close to the same for us all. I would also be

interested to know if anyone has any info on how they stay active, I can't even

think of exercise at this time, I never know when my knees or ankles are going

to give out and then there is the almost constant pain. I think it would be very

helpful for people with PsA and other similar health problems to have a booklet

talking about food triggers, supplements, exercise and disability help.

I work in a pharmacy call center dealing with insurance rejections all day. I am

surrounded by about 150 people at any given time and am concerned about catching

viruses, etc... I am constantly on the internet looking up as much as I can

about PsA and the medications used to treat it and the side effects. Education

is the key, it is so important for all of us to know as much as we can about our

disease and treatments. It still surprises me how most people have no idea about

the medication they take, why they take it and how their insurance works.

Lori

April 27, 2010

Welcome ,

We are sorry you are here, but it is great to hear from you. At this point, trust me when I say that, while there may be a couple of hiccups, it gets easier to deal with every day.

Craig, Dad to , 7 year old dude DX 9/8/09 w/ std risk ALL

From: rachaelsheller <rachaelsheller@...>Subject: [ ] New to group Date: Tuesday, April 27, 2010, 9:55 AM

Hello everyone,I am new to the group and so happy to have found you. My 14 year old son was diagnosed with ALL a month ago and our family is trying so very hard to cope with this. We just started the Consolidation phase of his treatment and he seems to be doing well. Can anyone offer any insight on what to expect over the next few months? When I read things on medical websites, it can get very discouraging. I know he is receiving the best of care, but I dont' want to overlook anything that may help him. Thank you!

May 20, 2010

What do you think guys, given the symptoms he sure sounds low to me.

>

> I posted before, but did not see it show up, so I will try again. New to the

forum. I think that I might have a testosterone/estrogen imbalance. I am 55, and

took Zoloft for about 6/7 years, I really can't recall just when I started.

Anyways, I stopped cold turkey back in September of last year. I started

noticing sexual side effects the last couple of years I was on it, and tried to

stop a few times, but the withdrawal was shear hell. But I finally did withdraw

and suffered from the symptoms for a good 5 weeks. Anyways, I got ED real bad

after stopping. My libido is low as well. I was prescribed Viagra, and this

worked just fine for a few months. But then suddenly, it stopped working for me.

I belong to another forum, SSRI Medication, and read somewhere to take DIM Plus. So I

went through a bottle. And low and behold, the Viagra started working again. But

about a month or so, it stopped again. I got my testosterone level checked a few

weeks ago, and the result showed my level to be around 340. The doctor said this

was normal, and that I would not need any TRT treatment. I just recently started

DIM again, and I am taking Zinc with copper in addition, so I shall see. But

someone on the other forum said that my level is probably too low. I am pretty

healthy, and would like to get my libido back, and maybe not have to rely on

Viagra. But I don't know how much is due to my age, and how much is due to

taking the SSRI drug. Any feedback would be appreciated. All I know, is I used

to have a real healthy libido, but I am 55 and don't know if this is a natural

consequence of my age. Thanks for listening.

>

> Ed

>

May 20, 2010

I replyed to this post the first day he joined don't know what happened to it.

SSRI meds will lower your Testostreone if not make it worse.

http://www.priory.com/psych/sexdys.htm

When I first got sick a long story I was told I am suffering from Major

Depression and put on meds for 5 yrs I lost 5 yrs of my life on the it was low

testosterone that was what was wrong with me. Read this link to my story.

http://forums.realthyroidhelp.com/viewtopic.php?f=5 & t=9239

Bottom line here is to find out why you low if it can be fixed your levels will

come back up. Going on TRT with out knowing why your low makes it dam hard to

figure out why your low and you might end up like me.

Co-Moderator

Phil

> From: robbnc1 <no_reply >

> Subject: Re: New to group

>

> Date: Thursday, May 20, 2010, 2:55 PM

> What do you think guys, given the

> symptoms he sure sounds low to me.

>

> >

> > I posted before, but did not see it show up, so I will

> try again. New to the forum. I think that I might have a

> testosterone/estrogen imbalance. I am 55, and took Zoloft

> for about 6/7 years, I really can't recall just when I

> started. Anyways, I stopped cold turkey back in September of

> last year. I started noticing sexual side effects the last

> couple of years I was on it, and tried to stop a few times,

> but the withdrawal was shear hell. But I finally did

> withdraw and suffered from the symptoms for a good 5 weeks.

> Anyways, I got ED real bad after stopping. My libido is low

> as well. I was prescribed Viagra, and this worked just fine

> for a few months. But then suddenly, it stopped working for

> me. I belong to another forum, SSRI Medication, and read somewhere

> to take DIM Plus. So I went through a bottle. And low and

> behold, the Viagra started working again. But about a month

> or so, it stopped again. I got my testosterone level checked

> a few weeks ago, and the result showed my level to be around

> 340. The doctor said this was normal, and that I would not

> need any TRT treatment. I just recently started DIM again,

> and I am taking Zinc with copper in addition, so I shall

> see. But someone on the other forum said that my level is

> probably too low. I am pretty healthy, and would like to get

> my libido back, and maybe not have to rely on Viagra. But I

> don't know how much is due to my age, and how much is due to

> taking the SSRI drug. Any feedback would be appreciated. All

> I know, is I used to have a real healthy libido, but I am 55

> and don't know if this is a natural consequence of my age.

> Thanks for listening.

> >

> > Ed

> >

>

> ------------------------------------

>

January 11, 2011

Welcome to the group. I hope you find the support you need here. Have you

modified your diet at all? If I eat sugar and flour I hurt. I am on

methotrexate and a breath of prednisone and can not control my PsA with diet

alone but it has made a big difference for me. It is tough not eating flour in

our world today but it may be worth a try for you. God bless, Patty

January 11, 2011

Welcome, this group is great for questions and advice. I would say your comments about your son are very familiar. My son is in 5th and he struggles with writing too. Especially creative writing, he says he has too many ideas in his head and he can't pick one to start writing about. If we give him the idea or topic, he will do much better. When your son is depressed, all you can do is remind him of the good things he does have in life. And if he feels lonely, you can help him by trying to encourage friendships, maybe with the other kids in his social skills group. It sounds like you are doing all the right things, but sometimes it is s slow process to see improvements.

I have to ask if he is on any medications? If he is, maybe they need to be tweaked to help with his anger and frustration before the therapy and coping skills will be start to be effective. If he's not, it may be something to talk to your doctor about.

~~~~~~~~~~~~~~~~~~~~~~

Suzanne

suzmarkwood@...

From: judes11111 <wnjfabian@...>Subject: ( ) New to group Date: Tuesday, January 11, 2011, 9:12 AM

Hi all! I am new to your group. I have a 10 year old son with Aspergers, OCD, Anxiety, sensory issues and soon to be determined possible Bipolar or ADHD. He is a great kid with a huge heart. He is in 4th grade and does fairly well at school with the exception of writing assignments and anything where he needs to give an opinion or express a feeling. Anyone have the same struggles with that? He also has a VERY hard time with his anger and frustration. His current method of coping with it is hitting. Usually himself, sometimes objects. We have tried many many many many coping skills with him, but his immediate reaction is the hitting. Any suggestions?? He also gets into these really low depressed times when he sobs and says how terrible his life is, etc. So heartbreaking to see him go through it! He see's a CBT weekly and social worker weekly at school with a small group. Another social skills class will start in a few weeks outside of school also.

Busy, busy, busy! We have many conversations (fights) with the school to try to get the services we know he needs. It's like pulling teeth! So frustrating.

January 11, 2011

Not on meds...yet. We are going to psychiatrist on the 17th to discuss possibility of them. Does anyone have modifications for writing assignments?? They gave us an extra day for each one, but I think that just prolongs the anxiety.

From: judes11111 <wnjfabian@...>Subject: ( ) New to group Date: Tuesday, January 11, 2011, 9:12 AM

Hi all! I am new to your group. I have a 10 year old son with Aspergers, OCD, Anxiety, sensory issues and soon to be determined possible Bipolar or ADHD. He is a great kid with a huge heart. He is in 4th grade and does fairly well at school with the exception of writing assignments and anything where he needs to give an opinion or express a feeling. Anyone have the same struggles with that? He also has a VERY hard time with his anger and frustration. His current method of coping with it is hitting. Usually himself, sometimes objects. We have tried many many many many coping skills with him, but his immediate reaction is the hitting. Any suggestions?? He also gets into these really low depressed times when he sobs and says how terrible his life is, etc. So heartbreaking to see him go through it! He see's a CBT weekly and social worker weekly at school with a small group. Another social skills class will start in a few weeks outside of school also.

Busy, busy, busy! We have many conversations (fights) with the school to try to get the services we know he needs. It's like pulling teeth! So frustrating.

January 11, 2011

Hi,

I just joined the group yesterday hoping to get help with the same issues you

are going through. I have a 7 year old boy with ADHD, OCD, Aspergers and Sensory

Issues. He also struggles with any writting topics in school, luckily everything

else he really excels at. However, this school year he started hitting other

students and having uncontrollable outburts at school and home. Whenever he

would get frustrated he would yell at the teacher and run out of the classroom,

once the AID had to chase him all the way across campus and caught him before he

ran off school grounds. My husband and I thought it was his ADHD medicine that

was causing this (it can be a side effect from Foclin) after changing his meds 3

times nothing changed. We finally moved him to a school that has an SDP for

children with behavioral issues. Although his is very mild compared to other

kids in his class we figured it would be best that he was the really good kid in

class instead always the one in trouble. They meet with a councilor every week

and have social skills training every day. So far we haven't seen a big

improvement but he started a month before winter break so we can't expect much.

My big concern is that I have a 2 year old and 1 year old that watch these

outburts and now the 2 year old is taking on this lovely trait and I feel like I

have no control over his actions and I am finding it more and more difficult to

punish the 2 year old for her actions because she assumes she is doing something

totally normal.

Although I can't offer you much in the advice area I just wanted you to know

that you're not alone and it seems you are doing everything you can right now

help your child. I know the classes and therapy take time (sometimes a lot of

it).

Good Luck!

Shana

>

> Hi all! I am new to your group. I have a 10 year old son with Aspergers,

OCD, Anxiety, sensory issues and soon to be determined possible Bipolar or ADHD.

He is a great kid with a huge heart. He is in 4th grade and does fairly well at

school with the exception of writing assignments and anything where he needs to

give an opinion or express a feeling. Anyone have the same struggles with that?

He also has a VERY hard time with his anger and frustration. His current method

of coping with it is hitting. Usually himself, sometimes objects. We have

tried many many many many coping skills with him, but his immediate reaction is

the hitting. Any suggestions?? He also gets into these really low depressed

times when he sobs and says how terrible his life is, etc. So heartbreaking to

see him go through it! He see's a CBT weekly and social worker weekly at school

with a small group. Another social skills class will start in a few weeks

outside of school also. Busy, busy, busy! We have many conversations (fights)

with the school to try to get the services we know he needs. It's like pulling

teeth! So frustrating.

>

February 9, 2011

Dave,

I doubt that the lesion on your back had anything to do with the Rituxan.

I think it was a smart decision to continue with it and it is a smart

decision to continue continuing. Your B-cell lymphoma started off indolent.

As it picked up steam many/most of the transformed cells remained low grade

and did not adequately take up the chemo.

As you have opted for radiation, take vitamin E succinate. This can

kick up the cytotoxic sensitivity to radiation while protecting sane cells.

There is no reason that you can’t do low dose naltrexone with metenkephlin.

You have many other options. One physician in Tijuana uses a combination of

10 mg prednisone every other day along with cimetidine. I have not tried

this and I can’t verify effectiveness.

Iron deprivation and copper deprivation are both strategies that have

been used. I suggest that you complement iron deprivation with gallium. If

you have retained your chemistry skills you might make an azelaic acid salt

of it; maltolate ligands can be used PO. Copper deprivation must be

monitored by watching ceruloplasmin levels. You can conveniently use this

for angiogenesis inhibition along with a differentiation therapy (to address

residual low grade cells) by combining d-penicillamine with benzaldehyde

these can be covalently hitched without refluxing.

You have many good options, Mr. Lucky Man.

PS: Don’t watch “Law and Order – UK”. It is far too addictive.

_____

From: [mailto: ] On

Behalf Of Dave Khaliel

Sent: Wednesday, February 09, 2011 7:43 AM

Subject: [ ] New to group

Hello.

I am new here. My name is Dave Khaliel and I have been diagnosed with stage

1 undifferentiated indolent follicular lymphoma since 12/2008. " Wait and

watch " became " we have to treat " as the disease was rapidly progressing

through my lungs (non-indolently as it were) and I got to where I could

barely breathe.

R-CVP seemed to clear the PET scan completely but I elected an additional

2yr course of rituximab. After 3 doses in, a lump appeared on my back, was

excised and biopsied as large B-cell lymphoma. A further, larger excision

still showed atypical lymphoid cells around the margins (but PET scan still

otherwise completely clear) so I am to begin a 28 treatment radiation

therapy procedure on the area starting tomorrow.

Cancer-wise that is my story in a nutshell.

I am a married 68 yo retired pharmacist (wife also retired) with an interest

in photography, shooting (firearms), computers and British TV shows.

My best to all.

" I myself am a patchwork of flaws stitched together with good intentions "

---Augusten Burrows

Ô¿Ô

~

Cosmos Mariner, destination unknown

February 9, 2011

Hi Dave, with your understanding of pharmacy i think you would like to look

into a product we have used in our family for over 9 yrs now. It has good

science, history, case studies and is under a phase II trial in NY.

www.polymva.com It is quite an interesting product on how it is put

together and what it can do, we used it as great player in our

health.....combined in the right way it really changed the tide.

if i can help or explain more, feel free to ask.

all the best and god speed,

regards al

_____

From: [mailto: ] On

Behalf Of Dave Khaliel

Sent: Wednesday, February 09, 2011 7:43 AM

Subject: [ ] New to group

Hello.

I am new here. My name is Dave Khaliel and I have been diagnosed with stage

1 undifferentiated indolent follicular lymphoma since 12/2008. " Wait and

watch " became " we have to treat " as the disease was rapidly progressing

through my lungs (non-indolently as it were) and I got to where I could

barely breathe.

R-CVP seemed to clear the PET scan completely but I elected an additional

2yr course of rituximab. After 3 doses in, a lump appeared on my back, was

excised and biopsied as large B-cell lymphoma. A further, larger excision

still showed atypical lymphoid cells around the margins (but PET scan still

otherwise completely clear) so I am to begin a 28 treatment radiation

therapy procedure on the area starting tomorrow.

Cancer-wise that is my story in a nutshell.

I am a married 68 yo retired pharmacist (wife also retired) with an interest

in photography, shooting (firearms), computers and British TV shows.

My best to all.

" I myself am a patchwork of flaws stitched together with good intentions "

---Augusten Burrows

Ô¿Ô

~

Cosmos Mariner, destination unknown

February 9, 2011

:

Thank you for your reply and suggestions. I want to clarify one thing and

then ask a question.

To clarify, I had a full course of 6 treatments of R-CVP, ending 3/2010. At

that point I elected to continue the rituximab though scans showed no

activity. I do not blame the rituximab for the transformation but I do

wonder about the process of this one subcutaneous " bubble " of transformation

with no other activity showing and what that means vis-a-vis the possibility

of future " bubbles " or a full blown large scale eruption. I know about the

possibility of transformation but somehow this bump on my back took me by

surprise. I thought transformation would be on a larger scale with

accompanying severe symptoms. At the moment all my blood work is fine except

for Hgb 1 point below normal, Ca 0.1 point below normal and immunoglobulins

slightly below normal.

I don't know why but this lone invasive clump rose up in a seemingly

otherwise health field worries me quite a bit. I guess I just expected full

peace and quiet for a while or else an all out attack.

My question is this. Where would one find these chemicals and drugs you

mention and the knowledgeable person to administer them. I very highly doubt

my oncologist would consider these (though I will broach the subject if it

comes to it), or that he would know the protocols to use them or that my

insurance would pay for them. Also, where to have the tests run to monitor

the levels you suggest, should it come to that?

Thanks again for your time and kind attention.

Dave K

" I myself am a patchwork of flaws sewn together with good intentions "

---Augustin Burrows

Ô¿Ô

~

Cosmos Mariner, destination unknown

On Wed, Feb 9, 2011 at 1:30 PM, Gammill <vgammill@...>wrote:

> As you have opted for radiation, take vitamin E succinate. This can

> kick up the cytotoxic sensitivity to radiation while protecting sane cells.

> There is no reason that you can’t do low dose naltrexone with metenkephlin.

> You have many other options. One physician in Tijuana uses a combination of

> 10 mg prednisone every other day along with cimetidine. I have not tried

> this and I can’t verify effectiveness.

>

> Iron deprivation and copper deprivation are both strategies that have

> been used. I suggest that you complement iron deprivation with gallium. If

> you have retained your chemistry skills you might make an azelaic acid salt

> of it; maltolate ligands can be used PO. Copper deprivation must be

> monitored by watching ceruloplasmin levels. You can conveniently use this

> for angiogenesis inhibition along with a differentiation therapy (to

> address

> residual low grade cells) by combining d-penicillamine with benzaldehyde

> these can be covalently hitched without refluxing.

>

> You have many good options, Mr. Lucky Man.

>

February 9, 2011

Al

Thanks for your reply.

Can you tell me more about the product with respect to use in lymphoma?

Experience? Results?

Thanks

Dave K

On Wed, Feb 9, 2011 at 4:05 PM, Al S. wrote:

> Hi Dave, with your understanding of pharmacy i think you would like to look

> into a product we have used in our family for over 9 yrs now. It has good

> science, history, case studies and is under a phase II trial in NY.

>

> www.polymva.com It is quite an interesting product on how it is put

> together and what it can do, we used it as great player in our

> health.....combined in the right way it really changed the tide.

>

> if i can help or explain more, feel free to ask.

>

> all the best and god speed,

>

> regards al

February 9, 2011

Hi Dave,

Sorry to hear of your diagnosis...it's never an easy thing to hear but there are

very many things you can do on your own to help your situation.

As far as your diet I would get on the Budwig diet and Protocol ASAP. Dr.

Johanna Budwig had great success treating cancer patients for over 60 years by

changing the way they ate, having them eat only good oils as opposed to the bad

oils most Westerners eat in their diets. It is a great adjunct to any other

protocol you may choose to use and is easily done by yourself.

There is a FlaxSeedOil2 group you can join that will thoroughly explain

the diet and protocol plus it has many testimonials of how effective it is.

FlaxSeedOil2/

As with many alternative therapies there are those who poo poo this wonderful

protocol but as they say the proof is in the pudding. I personally believe one

should attack cancer from every angle possible.

Many good thoughts and wishes to you, Cosmos Mariner...surely you have some

destination in mind.

Sandy

Cancer-wise that is my story in a nutshell.

I am a married 68 yo retired pharmacist (wife also retired) with an interest

in photography, shooting (firearms), computers and British TV shows.

My best to all.

" I myself am a patchwork of flaws stitched together with good intentions "

---Augusten Burrows

Ã”Â¿Ã”

~

Cosmos Mariner, destination unknown

February 9, 2011

Dave,

I am pleased that you are not a victim of " post hoc ergo propter hoc. "

The new metastatic lesion could represent an epithelial-to-mesenchymal

transition. If the " Bubble " is the only manifestation and you have no

alternatives then conformal radiation might be smart. If it is shallow

enough you can use microwave hyperthermia instead. If it extends deeper

than 2 cm then I would inject it with xylocaine with epinephrine to block

pain and perfusion, and then nuke it with the microwaves. This is focused

through a horn-like antenna placed over the lesion.

Incidentally the FDA has approved microwave ablation and this can be very

useful. A microwave antenna (looks like a thin pencil) is inserted into the

heart of the lesion and it is fried for about ten minutes. I prefer this to

radiofrequency ablation. With RFA the business end of the probe will fan

out like the ribs of an umbrella and curl back toward the probe to give it a

spherical cooking element. You can also look into cryoablation.

There are any number of meds that you can inject straight into the

lesion. This can include hemotoxylin in DMSO (25% w/v), copper DIPS

(diisopropyl salicylate) which I would use with an ascorbate strategy.

Others have tried infiltrating with laetrile or with a 15% aq. urea soln.

You can kill any tissue with ethanol, but it hurts. Bromopyruvate is useful

but it can cause swelling before you see shrinkage.

I know of one fellow in Northern California who cured his B-cell lymphoma

about 15 years ago by using plain zeolite such as you would find at an

agricultural supply store. If interested I can suggest ways to modify it to

enhance uptake.

No oncologist will follow any of these chemical suggestions so don't alarm

them by asking. I am giving you a few suggestions as these are all easy

enough to do yourself and none are terribly expensive.

Re: [ ] New to group