New to Group

[Guest guest]

> Are there any posts on here relating to Parkinson's? I am in need of

> information for my father who has had to move in with me because he is

> unable to cure himself. I have read some reports that Fava Beans are

> helpful? Any info will be greatly appreciated.

,

One of my clients who has Parkinson's is doing very well. She is

taking a couple of supplements to stop the continuing damage, a few

supplements to regenerate the damage that has already occurred, and a

nutritional back-up.

All but two she gets at the store.

The approach is backed by medical ressearch; contact me for details.

regards,

[Guest guest]

Welcome to the group and good luck.

If you want to preserve your fertility I would question exogenous T in any

form. Ask your doctor about HCG which has been used to restart natural T

production in some men.

Did the doc prescribe 50 mcg/day of Cytomel for " a little " hypothyroidism or

did you self medicate? I had marginally low T3 and my doc prescribed 5 mcg

Cytomel not 50. If I take 10 I really get the jitters.

HTH.

_____

From: kodiak_421 [mailto:kodiak_421@...]

Sent: Friday, August 06, 2004 8:45 AM

Subject: New to Group

New here and wanted to talk about my issues.

I was a bodybuilder since age 16 and used heavy amounts of steroids

nonstop until I was 31. Age 31 I was doing squats and herniated 2

disks in my lower back, Dec 1999. Since then I've stopped working

out and using steroids. Since then everything has gone down hill.

More so in the last 16 months. No sex drive, tired all the time, no

energy, gain fat, loss of muscle. I had my test levels checked and

they were horribly low.

Total was 76 (260-1000)

Free 15.9 (50-220).

It seems long term abuse has shut down my natural T production. My

first doctor not knowing anything gave me androgel 5% and that did

NOTHING. I'm now seeing another doctor and taking 200mg a week of

Depo T. I just had my blood drawn and waiting for the results for

week 6 now. With just 200mg/week gyno has flared up and I'm taking

1mg twice a week arimidex. I've always had problems with gyno. Even

the androgel irritated it. My questions are this. anyone here with

this low Free and total and what does of Depo T put you in the high

range. I would like to be near 1000 or just above if possible. I

want to get back into Bodybuilding and put back some size but want

to be safe about it now. I'm also take cytomel 50mcg /day since I'm

a little hypo thyroid. Thanks guys!

[Guest guest]

At 200mg/week it won't be too long before the half-lifes build up and you are

way past 1000ng/dl. At least, that was my experience. And I mean way, way

past 1000ng/dl. I will be cutting back to about 100mg/week after a few weeks to

let my levels drop.

Also, someone posted that cytomel can cause bone loss. Have you had a dexa

scan to measure bone density?

In a message dated 8/6/2004 3:49:41 PM Eastern Daylight Time,

kodiak_421@... writes:

New here and wanted to talk about my issues.

I was a bodybuilder since age 16 and used heavy amounts of steroids

nonstop until I was 31. Age 31 I was doing squats and herniated 2

disks in my lower back, Dec 1999. Since then I've stopped working

out and using steroids. Since then everything has gone down hill.

More so in the last 16 months. No sex drive, tired all the time, no

energy, gain fat, loss of muscle. I had my test levels checked and

they were horribly low.

Total was 76 (260-1000)

Free 15.9 (50-220).

It seems long term abuse has shut down my natural T production. My

first doctor not knowing anything gave me androgel 5% and that did

NOTHING. I'm now seeing another doctor and taking 200mg a week of

Depo T. I just had my blood drawn and waiting for the results for

week 6 now. With just 200mg/week gyno has flared up and I'm taking

1mg twice a week arimidex. I've always had problems with gyno. Even

the androgel irritated it. My questions are this. anyone here with

this low Free and total and what does of Depo T put you in the high

range. I would like to be near 1000 or just above if possible. I

want to get back into Bodybuilding and put back some size but want

to be safe about it now. I'm also take cytomel 50mcg /day since I'm

a little hypo thyroid. Thanks guys!

[Guest guest]

Jackie, look into the Gerson Therapy. It is great for people who have liver

problems, because it detoxifies the liver. Has been successful with cases of

liver cancer even. Go to www.gerson.org. Good luck, Amelia

[ ] New to group

I am new to the group. My husband has just been diagnosed with follicular

center cell mixed lymphoma involving all his lymph nodes.

Not yet graded or staged but hoping to find that out this week following his

pet scan on Saturday. He is in a lot of pain from his liver and waiting to

see if it has spread to his liver.

[Guest guest]

Hi ! Welcome to the group..

Its good that you have taken this step for your husband. Dealing with the diagnosis

of this disease is the hardest part for many of us. I was so angry when I found out,

that I could hardly focus on anything else! My Doctors had many opportunities

to figure this out, and yet it went un-checked for so long.

Unfortunately most of what you will read about it online will produce even more

anxiety. So, it's good that you are willing to sift thru it for him...(he won't need the

additional stress right now)

It can be easier to "digest" when it comes from a second party who cares about

us. I too contracted it after a surgery when I was 13. I am 40 now, and just found

out this past April. It was actually picked up on by my dermatologist.

My liver enzymes were only slightly elevated, so my GP saw no cause for alarm.

I went to the dermatologist for unexplained hair loss, and the first thing she wanted

to do was run liver tests. I gave her my most recent test results...and she imediately

asked to test further. Imagine my surprise!

So, some docs are just more on top of things than others I guess.

I have had health problems of one kind or another for the past six years,

and before that I never even had a cold!

The hardest thing I had to do was tell my kids that they would have to test.

My youngest son tested positive as well. I believe my oldest will too, but we

are waiting until we get him adequate insurance coverage. He is 20, and has

many of the same problems I do...

Luckily your husband has a genotype that is responsive to treatment. We do not.

So, even if I could afford treatment...chances of it doing any good are slim to none.

I know that research is ongoing, but the general opinion of most in the field, is

that "it isn't killing anyone" so..it isn't a priority, and is very slow.

Maybe we don't drop dead right away...but it kills us slowly everyday. At the

very least it has robbed us of "quality". I know without this, I would live much

better...more fully. And what will it take from my children?

I truly believe it needs to part of a regular physical exam at some point.

For women...it should be included in a regular prenatal screen. Considering

they test for everything else under the sun...including HIV now! how hard

would it be to this?

It is all very frustrating...and can definately be overwhelming at times..

I encourage you to learn all you can, and please keep checking in if you

need on his behalf! He is lucky to have you.

April.

[Guest guest]

, Some of the others may know more about this than I do, but we have been told that the company that makes the Peg and Copeg give away treatment to at least some of the people who don't have another way to pay. My dh was already on disability and Medicaid so this was not a problem for us. His hep clinic told them they could help arrange for free med if it had been necessary. Another girl i met online was able to arrange this.

Does anyone know about the requirements for getting on Medicare? We are in Mississippi and my dh is on state Medicare. Our state is phasing out this program. We were told that anyone who has been on Medicare for 2 or maybe 3 years automatically qualifies for Medicare, but when we called about it Medicare said that is not so. Maybe we just talked to the wrong person there. He is on SSI disability.

thanks for any info

trish

On Sun, 09 Jan 2005 18:47:24 -0000 " Forbes" <leroyforbes2003@...> writes:

My husband was diagnosed with Chronic Hep C in Oct. 2004. Genotype 3, with moderate liver inflammation, 3/4 stage Portal Fibrosis with Focal Bridging Fibrosis verging on Cirrhosis. He has not worked since April of last year. Been to lots of doctors in the last few years trying to find out just what was wrong with him, and only recently found a doctor that questioned the elevated liver enzymes and had him tested for Hep C! It seems my husband had contracted this virus from a blood transfusion about 25 years ago. Don't know why all the other doctors didn't question the elevated liver enzymes?? Our referred specialist has a Pegasus / Copegasus treatment plan laid out for him. Doc thinks he will respond quite well to this. We do not have the $ to pay even the co-pay from my work insurance. Of course when he was diagnosed with this disease we right away applied for temporary disability from SSI - without his income we are barely scraping by on mine. But the wheels of the federal gov. turn very slowly. Meanwhile we are waiting for their determination so that hopefully we can afford the treatment he needs.So far my husband is not open to discussion or support groups. I'm hoping that he will come around. I know from past experience how helpful in so many ways these groups can be. My horse is alive today because of an Equine Cushings Group that I joined almost 2 years ago.I'm learning all I can about this debilitating disease. Pretty steep learning curve for me! Being a member of a group can help tremendously in this area.Thank you for listening.

[Guest guest]

Welcome, . One good note, I believe genotype 3 is easier to treat

than 1, which most of us have. Doctors have been very ignorant of this

disease. It's kind of tricky, liver enzymes sometimes can be elevated for

unknown reasons. I had elevated enzyme levels on my physicals from

1982-1999 before I finally asked my doctor to test me for hepatitis c.

-dz-

At 12:47 PM 1/9/2005, you wrote:

My husband was diagnosed

with Chronic Hep C in Oct. 2004. Genotype

3, with moderate liver inflammation, 3/4 stage Portal Fibrosis with

Focal Bridging Fibrosis verging on Cirrhosis. He has not worked

since April of last year. Been to lots of doctors in the last few

years trying to find out just what was wrong with him, and only

recently found a doctor that questioned the elevated liver enzymes

and had him tested for Hep C! It seems my husband had contracted

this virus from a blood transfusion about 25 years ago. Don't know

why all the other doctors didn't question the elevated liver

enzymes?? Our referred specialist has a Pegasus / Copegasus

treatment plan laid out for him. Doc thinks he will respond quite

well to this. We do not have the $ to pay even the co-pay from my

work insurance. Of course when he was diagnosed with this disease

we right away applied for temporary disability from SSI - without

his income we are barely scraping by on mine. But the wheels of the

federal gov. turn very slowly. Meanwhile we are waiting for their

determination so that hopefully we can afford the treatment he

needs.

So far my husband is not open to discussion or support groups. I'm

hoping that he will come around. I know from past experience how

helpful in so many ways these groups can be. My horse is alive

today because of an Equine Cushings Group that I joined almost 2

years ago.

I'm learning all I can about this debilitating disease. Pretty

steep learning curve for me! Being a member of a group can help

tremendously in this area.

Thank you for listening.

[Guest guest]

Big Thanks!!!

trish

On Tue, 11 Jan 2005 16:44:13 -0800 (PST) Bob <mellowcargo2003@...> writes:

Trish, I just looked for the booklet I have and it's SSA Publication No. 05-10029 pg. 14. Bobstandup7@... wrote:

Thanks Bob, That is what we thought. When we called Medicare they said that was only for 65 or older. Maybe we talked with a new person. Will try again.

trish

[Guest guest]

Hi Susie,

From my experience with PA I can tell you absolutely it causes fatigue (and I'm

sure many of the other illness you listed do as well) ~ when trying to explain

it to people I would always say I felt like one does coming down with or

recovering from the flu... The extreme tiredness and the achy feeling ~ like

you body is fighting something (and low and behold, it is ~ darn it)...

Anyway, for me it " mostly " effects the joints in my right ankle and knee, the

tendons in my right foot, my left hip, my back (both lower and sholderblades)

and sometimes my fingers... Psoriasis on my right elbow, the back of my skull,

the bottom of my left foot and few too embarrassing spots)...

Remicade (one of the biologics) has been the answer for me. No more pain and

swelling anywhere except my back now and then ~ and the psoriasis is pretty much

gone except for some itching...

Best of luck to you.

(Idaho)

[Guest guest]

Hi Susie,

Welcome to the group! I am almost 27 and been diagnosed with pa for

about four years. It has effected my ability to walk at times, the

ability to get up and down from a chair, even bathing can be difficult.

Sometimes the littlest things that I need to do are tough. I have pa in

my left hip, and my right knee for sure. I sometimes feel that it has

progressed to my shoulders and hands. My grip is not as good as it used

to be either.

I've gotten a support cane to walk with when I need it. I try to sit in

chairs or on couches that are higher up. My bed is even high up...its a

higher matress so that I can get in and out of bed easier. Its easier

to push up sometimes than have to get up from something very low. I

don't know how to explain it really...lol. I even have one of those

body puffy's on a handle to use instead of a wash cloth on the tough

days in the shower. Stairs can be very difficult to, and I now live in

an apartment that is on ground floor so I don't have to worry about too

many stairs now.

I've been on various medications. I was on Vioxx until it was pulled

from the market, Bextra which didn't do anything for me, and now

Diclofenac and that seems to help. I'm also taking methotrexate 20mg a

week. I've just recently started that back up again as I had various

sinus infections this first part of the winter and couldn't take it

while on an anti-biotic. I take Tylenol Arthritis or Hydrocodone

depending on my severity of pain. I also have medication for depression

and anxiety, as well as allergies, and bladder control. Oh and a muscle

relaxer for the times that my muscles are so tenst and overworked from

having to compensate for the joints that don't work well from the pa.

Welcome to the group, and feel free to write me anytime.

Hugs,

Carla

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.832 / Virus Database: 566 - Release Date: 1/10/2005

[Guest guest]

In a message dated 1/14/2005 6:32:36 AM Eastern Standard Time,

kjreed0929@... writes:

Remicade (one of the biologics) has been the answer for me. No more pain

and swelling anywhere except my back now and then ~ and the psoriasis is pretty

much gone except for some itching...

Best of luck to you.

(Idaho)

Hi ,

I just wanted to know if you tried any other of the biologics before going

to Remicade. ALso do you take mtx with it?

Janet

[Guest guest]

Hi Susie,

I've been diagnosed with PA for 3.5 years (had symptoms 1.5 years

prior). I've been taking 10mg MTX 1x per week for 3 years. Prior to

MTX, My days( & nights) were hell. I could barely walk, had several

sausage fingers & toes. It seemed every joint ached.

Since MTX, my life is fairly normal. Stress or overdoing can bring

on a flare and make me a little achy, but that has happened very

infrequently. I do notice that I need more sleep 9-10hrs wereas I

used to need only 6-7.

So PA can be successfully treated. MTX doesn't work well with

everyone, but I have suffered NO ill effects from the MTX. There are

some longterm MTX users (10-15 years +) on this list who have had no

longterm effects, So hopefully, I'll join them.

Stay Well,

[Guest guest]

Hi Janet,

No, for some reason the doctor started me on Remicade first ~ not sure how they

decide which one is best. And yes, I do take it in combination with MTX... I

was lucky though, as soon as I was diagnosed, he put me on both of these drugs

saying: treating PA as aggressively as possible as early as possible is the best

course and luckily, the insurance company also believed...

Best Wishes,

(Idaho)

[Guest guest]

In a message dated 1/14/2005 5:52:07 PM Eastern Standard Time,

kjreed0929@... writes:

Hi Janet,

No, for some reason the doctor started me on Remicade first ~ not sure how

they decide which one is best. And yes, I do take it in combination with

MTX... I was lucky though, as soon as I was diagnosed, he put me on both of

these drugs saying: treating PA as aggressively as possible as early as

possible

is the best course and luckily, the insurance company also believed...

I believe Remicade is usually given with mtx. It has something to do with

the antibodies that Remicade produces and the mtx counteracts it.

Glad to hear you are doing well.

Janet

[Guest guest]

Hi Susie,

Welcome to the group. (Belatedly) Great that you found us but sorry that you

had to.

Yeah I think we would all agree that fatigue comes with the PA. If you have

to go through any given day with a great deal of pain and stiff joints, you

end up worn out before the day is half way through. I don't have all the other

problems you have too, so it must be even more difficult for you.

Hope things settle down for you again,

[Guest guest]

Hi Jen,

Welcome to the group. I'm glad you found us but sorry that you had to. You

have come to the right place. I'm sure just about everyone will identify with

what you said about the depression.

Being in this group though will help you. Just to know that others

understand what you are going through is a help in itself.

I hope you can get this latest flare under control again and you can get

back into remission.

Hope to here from you again.

Take care,

[Guest guest]

,

All I know for brain cancer is ozone. Ear insufflation has had

excellent success with brain tumors of all types. Daily, 15 minutes

per ear, 1 - 3 times per day. It kills parasites, candida, reverses

Parkinson's, and brain fog also. It helps repair damage done by

radiation & helps repair nerve damage. The brain uses 15% of the

body's oxygen supply, being only 2% of the body, so it will love

extra oxygen. The ozone goes through the ear drum, into the sinuses,

and through that thin spot behind the nose & into the brain.

Take Care,

Gaylen

>

> Hi, my husband has brain cancer and I have been on a brain tumor

> support group for the last year. It has been difficult because a

> few members are so anti-alternative they become bullies to those

who

> voice their thought. Big flame was when I questioned everyone

> eating ice cream and donuts and dieing of brain cancer??? Anyway,

> lost some good people and decided to look for like-minded people.

>

> Are there any on this site with brain cancer? My husband has

> Glioblastoma Multiforme. He is taking polymva, flaxoil and

cottage

> cheese, diet change and many supplements. He has been tumor free

> for 14 months but having some problems with radiation necrosis.

As

> to my questions....He is using a magnet over his surgical site to

> reduce edema...any thoughts? We have this zapper that one holds

in

> each hand and it sends electrical waves thru you (I think that is

> how it works). This and the magnet were given to us by a contact

> reflex analysis (CRA). I am looking for thoughts on these and for

> others doing well with brain tumors. He also has an MRI today and

> if there are any prayer warriors out there we could use some

prayers.

> Thank you in advance for any input.

>

> w/o Jim

> dx/sx 12/3/03 GBM

> radiation/ stereotactic radiosurgery

> 10/18/04 surgery 98% necrosis

[Guest guest]

I must make something very clear. The only " products " Hulda Regehr , PhD,

has, are the books that she has written. In those books she advises some very

stringent lifestyle changes. She has given virtually everything she has done to

the public domain. There are many, many people out there who sell products

according to what she advises. They use her name. She gets no profit from them.

Jan Bolen

gdgel35 <gdgel35@...> wrote:

Hello.

I heard about Dr through an acquaintance who told me about

this product that cures a wide range of diseases.

I was diagnosed as a Hepatitis C carrier last year and although I do

not have any symptoms, I have been advised to undergo treatment

called pegasys through weekly injections and daily tablets, for one

year.

I was told that the treatment is not easy and 50% of those treated

are cured.

I would be very grateful if there were people out there who are

familiar with Dr 's product, take it and have had favourable

results, could contact me.

Thanking you very much in advance.

Gideon.

gdgel35@...

[Guest guest]

Thank you very much for your response, Jan.

Forgive my ignorance.

Has Mrs written a book on how to combat the Hepatitis C virus, and if so,

how can I order this?

Thank you, Jan.

Gideon.

Jan Bolen <jurimed@...> wrote:

I must make something very clear. The only " products " Hulda Regehr , PhD,

has, are the books that she has written. In those books she advises some very

stringent lifestyle changes. She has given virtually everything she has done to

the public domain. There are many, many people out there who sell products

according to what she advises. They use her name. She gets no profit from them.

Jan Bolen

gdgel35 <gdgel35@...> wrote:

Hello.

I heard about Dr through an acquaintance who told me about

this product that cures a wide range of diseases.

I was diagnosed as a Hepatitis C carrier last year and although I do

not have any symptoms, I have been advised to undergo treatment

called pegasys through weekly injections and daily tablets, for one

year.

I was told that the treatment is not easy and 50% of those treated

are cured.

I would be very grateful if there were people out there who are

familiar with Dr 's product, take it and have had favourable

results, could contact me.

Thanking you very much in advance.

Gideon.

gdgel35@...

[Guest guest]

Thank you very much for your response, Jan.

Forgive my ignorance.

Has Mrs written a book on how to combat the Hepatitis C virus, and if so,

how can I order this?

Thank you, Jan.

Gideon.

Jan Bolen <jurimed@...> wrote:

I must make something very clear. The only " products " Hulda Regehr , PhD,

has, are the books that she has written. In those books she advises some very

stringent lifestyle changes. She has given virtually everything she has done to

the public domain. There are many, many people out there who sell products

according to what she advises. They use her name. She gets no profit from them.

Jan Bolen

gdgel35 <gdgel35@...> wrote:

Hello.

I heard about Dr through an acquaintance who told me about

this product that cures a wide range of diseases.

I was diagnosed as a Hepatitis C carrier last year and although I do

not have any symptoms, I have been advised to undergo treatment

called pegasys through weekly injections and daily tablets, for one

year.

I was told that the treatment is not easy and 50% of those treated

are cured.

I would be very grateful if there were people out there who are

familiar with Dr 's product, take it and have had favourable

results, could contact me.

Thanking you very much in advance.

Gideon.

gdgel35@...

[Guest guest]

I don't give that kind of advice. There are a lot of very knowledgeable list

members who share their experiences. Ask them.

Gideon Gelberg <gdgel35@...> wrote:

Thank you very much for your response, Jan.

Forgive my ignorance.

Has Mrs written a book on how to combat the Hepatitis C virus, and if so,

how can I order this?

Thank you, Jan.

Gideon.

Jan Bolen <jurimed@...> wrote:

I must make something very clear. The only " products " Hulda Regehr , PhD,

has, are the books that she has written. In those books she advises some very

stringent lifestyle changes. She has given virtually everything she has done to

the public domain. There are many, many people out there who sell products

according to what she advises. They use her name. She gets no profit from them.

Jan Bolen

gdgel35 <gdgel35@...> wrote:

Hello.

I heard about Dr through an acquaintance who told me about

this product that cures a wide range of diseases.

I was diagnosed as a Hepatitis C carrier last year and although I do

not have any symptoms, I have been advised to undergo treatment

called pegasys through weekly injections and daily tablets, for one

year.

I was told that the treatment is not easy and 50% of those treated

are cured.

I would be very grateful if there were people out there who are

familiar with Dr 's product, take it and have had favourable

results, could contact me.

Thanking you very much in advance.

Gideon.

gdgel35@...

[Guest guest]

Jan and Gideon,

I have to agree that there are lots of organizations using Dr. 's name

(I've encountered lots of them.)

Here is her real contact information :

Dr. Research Association

8135 Engineer Road, San Diego, CA 92111

www.Drclark.com

Telephone: 1-800-220-3741

Fax: 1-858-565-0058

Gideon, I have taken Dr. clark's products for over 5 years and I've seen

improvements in my health. For example, I had severe depression and within a

few weeks of first taking her parasite cleanse, I no longer was suffering from

depression. I also have Multiple Sclerosis and even though I am not cured from

the disease, I've seen so much improvements, along with eating healthier and

taking vitamins/mineals, I no longer take medications-it's been over 2 years. I

hope that this information was helpful.

Jan Bolen <jurimed@...> wrote:

I must make something very clear. The only " products " Hulda Regehr , PhD,

has, are the books that she has written. In those books she advises some very

stringent lifestyle changes. She has given virtually everything she has done to

the public domain. There are many, many people out there who sell products

according to what she advises. They use her name. She gets no profit from them.

Jan Bolen

gdgel35 <gdgel35@...> wrote:

Hello.

I heard about Dr through an acquaintance who told me about

this product that cures a wide range of diseases.

I was diagnosed as a Hepatitis C carrier last year and although I do

not have any symptoms, I have been advised to undergo treatment

called pegasys through weekly injections and daily tablets, for one

year.

I was told that the treatment is not easy and 50% of those treated

are cured.

I would be very grateful if there were people out there who are

familiar with Dr 's product, take it and have had favourable

results, could contact me.

Thanking you very much in advance.

Gideon.

gdgel35@...

[Guest guest]

,

The Dr. Research Association is Amrein's group. Amrein has no

direct connection with Dr. .

Jan

Ault <mstique18@...> wrote:

Jan and Gideon,

I have to agree that there are lots of organizations using Dr. 's name

(I've encountered lots of them.)

Here is her real contact information :

Dr. Research Association

8135 Engineer Road, San Diego, CA 92111

www.Drclark.com

Telephone: 1-800-220-3741

Fax: 1-858-565-0058

Gideon, I have taken Dr. clark's products for over 5 years and I've seen

improvements in my health. For example, I had severe depression and within a

few weeks of first taking her parasite cleanse, I no longer was suffering from

depression. I also have Multiple Sclerosis and even though I am not cured from

the disease, I've seen so much improvements, along with eating healthier and

taking vitamins/mineals, I no longer take medications-it's been over 2 years. I

hope that this information was helpful.

Jan Bolen <jurimed@...> wrote:

I must make something very clear. The only " products " Hulda Regehr , PhD,

has, are the books that she has written. In those books she advises some very

stringent lifestyle changes. She has given virtually everything she has done to

the public domain. There are many, many people out there who sell products

according to what she advises. They use her name. She gets no profit from them.

Jan Bolen

gdgel35 <gdgel35@...> wrote:

Hello.

I heard about Dr through an acquaintance who told me about

this product that cures a wide range of diseases.

I was diagnosed as a Hepatitis C carrier last year and although I do

not have any symptoms, I have been advised to undergo treatment

called pegasys through weekly injections and daily tablets, for one

year.

I was told that the treatment is not easy and 50% of those treated

are cured.

I would be very grateful if there were people out there who are

familiar with Dr 's product, take it and have had favourable

results, could contact me.

Thanking you very much in advance.

Gideon.

gdgel35@...

[Guest guest]

It’s possible that whatever is going

on with your immune system would convince them to “wait and see”

before going on this treatment. The interferon is like steroids to your

auto-immune system… (my analogy). I probably had

it for about 20 years as well, before it was diagnosed, and only then because I

insisted they test me for it. There is still a lot of ignorance about hcv. I would certainly ask more about it though, and

especially about getting immunized against A and B. –dz-

[ ] New

to group

I'm a 54 y/o grandma to five of the most gorgeous

pre-schoolers ever

seen. I've had a lot of medical problems

since 1978 and finally got a

diagnosis of a rare autoimmune disease in

1980. To put this monster in

check, I was given lots of prednisone as well as

other drugs as

prednisone wasn't effective getting it under

control. I have all the

typicasl side effects of that decision but I was

able to watch my

children grow up and I am extremely thankful for

that. Along my

treatment path were many units of blood and blood

products - most of

that in 1984. One hospital admission had 15

units alone! The risks of

prednisone were explained in detail - nobody

explained the risks of

blood and blood products. Why nobody ever

tested for it over the years

knowing my risk is beyond immagination.

The hepatologist said I probably contracted it 20

years ago, handed me a

pamphlet on clinical trials and sent me on my

way!! My next appointment

is AUGUST!! My rheumatologist said perhaps

he would just watch it. I

don't understand that - why not treat it? Is

it too challenging to

treat me? Nobody has memtioned vaccination

against Hep A & /or B. I got

a copy of the hepatologist report from my

GP. He indicated the labwork

shows Lupus in addition to the autoimmune disease

I already have. I

have so many questions and no answers. The

Internet has been my only

souurce of information and some of that I take

with a grain of salt. I

would appreciate a reply.

--

~*~ " What lies

behind us and what lies

before us are tiny matters to that

which lies

within us. " Ralph

Waldo Emerson ~*~

[Guest guest]

Hi Leah,

Was he prescribed finasteride (proscar) and did he take it for only

one month, or a longer time?

Vornan

> Hi,

> I am new to the group. I am here for my husband who I hope will

take

> time to read and learn also. The language here is a whole new

world

> for us. To make a long story short. My husband was fine in all

ways.

> Seven months ago he was given a medication used for enlarged

> prostate, and or urinary tract problem, only to take for one

month.

> He went from a man with a normal sex drive, to impotence, lack of

> feeling. Now of coarse the depression has set in, frustration,

anger

> and all that you men speak of here. He has been back and forth to

our

> GP since, different from the original doctor who prescribed the

meds.

> He has had several tests run. I have taken the list of tests

needed

> from the site recently and the my husband will try to get the

doctor

> to run more specific tests. Looking at the original tests, his

> estsradiol level is 35, my understanding from all the posts is

this

> is way to high. He has many symptoms of Low T, doctor telling him

he

> is right around 350, he is only 45 years old. The doctor ran a

DHEA

> sulphate test, coming up with the total over all T. We will ask to

> have done a more specific tests. My husband has been taking alot

of

> natural support supplements, this has helped to some degree. I

know

> that next appointment our doctor will be trying some T gel, and

> running more tests. I will be reading and learning more from your

> group, please bare with me is I ask questions that have been asked

> often. I don't understand alot of your abbreviations, but I'm

getting

> it.

> Thanks, Leah, and