New to Group

[Guest guest]

Hi Leah:

I'm new to this list, having discovered it from an e-mail someone sent

to another list on which I'm a member.

I'm using intravenous vitamin C therapy, along with low-dose naltrexone.

I am also on an alkaline diet. If you google any of these you will find

many websites with good information. I printed out a stack of research

papers an inch and a half thick to take to my oncologist to prove to him

that I was serious, and he told me that although he didn't use IV

vitamin C therapy at his clinic, he knew someone who did, which is how I

was referred to my present doctor, another MD who is very open to

alternative therapies. I haven't been on IV vitamin C long enough to

know yet if it is working for me, but there is plenty of information out

there that proves that given intravenously (not orally) in very large

doses (I'm on 75 grams per treatment, three days a week, MWF), it does

work. There are indications that it is more effective for people who

have not yet had chemo or radiation like I have, but I'm still keeping

my fingers crossed.

I wish you and your Mom the very best.

>

>

> I am wondering if anyone has experience with treating late stage

> cancer with diet and cleanses with any success...I am not looking to

> cure her, but I would like the quality of her life to be better for

> the years she has left. I say late stage because I just have a

> feeling that if the tumors are in both organs, it's probably late

> stage, right? Maybe not, I don't know much about cancer except what

> I've read over the past couple of weeks. Anyway, I look forward to

> searching through this group's past messages to see what I can find.

> Hopefully she will have a good doctor that will be open to

> alternative therapy, but I'm not holding my breath.

>

> Leah

>

>

[Guest guest]

Here's my " file " on Intravenous Vitamin C (also, I believe, available in

the " Files " section of this group). I've become a big proponent of it, I

guess just based on something on an intuitive level. However, my mom, a

number of years ago, was facing a (non-cancer) surgery, and she had

heard of IVC as something that was good for speeding recovery from

surgery. After researching it, she was able to convince her physician to

provide it for her during her surgery, and afterwards he expressed

genuine surprise at the quality and rapidity of her recovery.

Best,

RB

----------------

http://www.canceraction.org.gg/inext.htm

http://www.maryclinic.com

http://www.orthomed.com/cancer.htm

http://www.brightspot.org/cresearch/ivccancer.shtml

Vitamin C: Cancer Cure?

Date: 6/30/06 Author: Marie McCullough Inquirer Staff Writer; Source:

KansasCity.com

The government nutrition researcher has published new evidence that

suggests vitamin C can work like chemotherapy - only better. But so far,

he hasn't been able to interest cancer experts in conducting the kind of

conclusive studies that, one way or the other, would advance treatment.

Read more:

http://www.healthliesexposed.com/articles/article_2006_06_30_1233.shtml

Web Sites and Information (from article above) For more information on

the pros and cons of intravenous vitamin C use, and where you might find

the treatment:

• The Center for the Improvement of Human Functioning in Wichita,

Kan., specializes in certain alternative medical approaches, including

intravenous vitamin C: http://www.brightspot.org/

Its intravenous C treatment protocol can be found at:

http://www.canceraction.org.gg/recnac.htm

• The American College for Advancement of Medicine is a medical

society that educates health-care professionals about alternative

therapies. It teaches vitamin C infusion protocols as part of training

in chelation therapy. It has a physician referral phone line

(1-888-439-6891) and a searchable online physician directory:

http://www.acam.org/dr_search/index.php

• The American Cancer Society is a national research, education,

advocacy, and service organization. It offers information on alternative

therapies. A Web page on vitamin C is at:

http://www.cancer.org/docroot/ETO/content/ETO_5_3X_Vitamin_C.asp?sitearea=ETO

• The National Cancer Institute's Office of Cancer Complementary and

Alternative Medicine has information about treatments, research, and

clinical trials:

http://www.cancer.gov/cam/

Original story can be found here:

http://www.kansascity.com/mld/kansascity/living/health/14842932.htm

-------------

----Original message to group-----

        Posted by: " Airedalean "

airedalean@... lindab9663   Date: Tue Aug 1, 2006 8:19 am (PDT)

Hi Leah:

I'm new to this list, having discovered it from an e-mail someone sent

to another list on which I'm a member.

I'm using intravenous vitamin C therapy, along with low-dose naltrexone.

I am also on an alkaline diet. If you google any of these you will find

many websites with good information. I printed out a stack of research

papers an inch and a half thick to take to my oncologist to prove to him

that I was serious, and he told me that although he didn't use IV

vitamin C therapy at his clinic, he knew someone who did, which is how I

was referred to my present doctor, another MD who is very open to

alternative therapies. I haven't been on IV vitamin C long enough to

know yet if it is working for me, but there is plenty of information out

there that proves that given intravenously (not orally) in very large

doses (I'm on 75 grams per treatment, three days a week, MWF), it does

work. There are indications that it is more effective for people who

have not yet had chemo or radiation like I have, but I'm still keeping

my fingers crossed.

I wish you and your Mom the very best.

I am wondering if anyone has experience with treating late stage cancer

with diet and cleanses with any success...I am not looking to cure her,

but I would like the quality of her life to be better for the years she

has left. I say late stage because I just have a feeling that if the

tumors are in both organs, it's probably late stage, right? Maybe not, I

don't know much about cancer except what I've read over the past couple

of weeks. Anyway, I look forward to searching through this group's past

messages to see what I can find. Hopefully she will have a good doctor

that will be open to alternative therapy, but I'm not holding my breath.

Leah

[Guest guest]

Welcome Rick. I don't have Klinefelters, but I have delt with numerous side

effects. I have primary hypogonadism, and I also had a very unstable childhood.

If you can share your experiences and other stuff, maybe it would make you feel

a bit better. The gentlemen members are like brothers here. I never felt judged

nor uncomfortable. I have gotten sound advice and friendships. This group, will

help you Rick.

rfolms64 <no_reply > wrote: Hello Im 41 years old and just found

out that im 47xxy Klinefelters

syndrome.Its alittle hard to deal with a lot of my childhood is

starting to make sense anyone else feel this way?? its hard to deal

with that i'm differt an have been my whole life. Thanks Rick

[Guest guest]

>

> Hello Im 41 years old and just found out that im 47xxy Klinefelters

> syndrome.Its alittle hard to deal with a lot of my childhood is

> starting to make sense anyone else feel this way?? its hard to deal

> with that i'm differt an have been my whole life. Thanks Rick

>

We all have spelling & language problems. Many of us went into loner

fields. I wound up as a computer programmer. Computer languages

seems easier that English. More logical

Welcome. You will find this group more helpful than the KS groups.

They are usually very bitchy.

I have KS Mosaic 47xxy/xy. I just found out about it a couple of

years ago. That discovery helped me understand all the emotional

pain since the early teen years when I knew I was different from

most males. At 13 my boobs were as big as the the girls in the group

I ran around with. Never had a beard or upper body hair. Hated high

school gym class with tyhe skins & shirt games. Never played them &

got " D " s

I married & had kids.

You probably have had low testosterone & high estradiol all you life.

I had the hormone levels of a female when mine was discovered.

My " T " is now in the upper 1/4 of the " Normal " male range & the " E "

is in the lower 1/4 of the " Normal " range.

I feel the best of my life.

Read the last few hundred post at this site & you will learn much.

Good luck.

[Guest guest]

Hi,

Your treatment is unusual and requires an expert endocrinologist.

If you wish to send questions to someone I consider is that kind of

doctor, you should go to his web site to get his e-mail address. He

may take more than a week to get back to you for his view of what type

of treatment you should be receiving.

http://www.members.aol.com/gambr999/

You can verifyhis credentials by looking him up on GOOGLE.

ernestnolan

>

> Hello,

> I am a 65 year old male who has been diagnosed with hypogonadism. I

> had both testicles removed because of a medical necessity which was

> not my choosing. In the past few years, I started to grow breasts. My

> doctor said it was because of the testosterone replacement that I was

> taking. I have also suffered severe hot flashes and have seeked help

> from an Endocrine doctor, but he has not helped me any. I ask my

> regular MD. about taking estrogen to help. Women take this for

> menopause symtoms to help with their hot flashes. I have been taking

> about 2mg of estrodoil for about a year. I do feel some better, but

> still have some hot flashes from time to time.

>

> Can anyone tell me if you have had hot flashes due to low testosterone

> levels? I would like to know what else could help me. I may increase

> the estrogen to see how this works out. Hope to hear from some of you

> all. Have a great day.....

>

> Jerry

>

[Guest guest]

Hi Jerry and welcome,

The problem is Estradiol stop taking this and get on some Arimidex to lower it

down. The hot flash that I has were from high E2 Estradiol plus I had bad panic

attacks, bad ED and could not reach an orgasm. My face and upper body looked red

and was felt how and would sweat all day and night long. It is a dam shame your

Dr. did this to you a lot of men over 40 start getting higher levels of

Estradiol and the brain can't tell the difference thinks it's testosterone and

stops sending the messages to the testis to make testosterone. Getting this

down there levels go back up.

Here are some links for you to read.

http://www.medibolics.com/ArimidexBoostsTestosterone.htm

http://www.smart-drugs.com/ias-estrogen.htm

http://jcem.endojournals.org/cgi/content/full/89/3/1174

It is now believed that prostate problems are caused by high levels of

Estradiol.

http://www.lef.org/protocols/male_reproductive/male_hormone_restoration_01.htm

I don't know how you should go about fixing this so if you can go to this web

site and post this to Dr. tell him Phil sent you.

http://anabolicminds.com/forum/male-anti-aging/

Phil

jdbell7 <jdbell7@...> wrote:

Hello,

I am a 65 year old male who has been diagnosed with hypogonadism. I

had both testicles removed because of a medical necessity which was

not my choosing. In the past few years, I started to grow breasts. My

doctor said it was because of the testosterone replacement that I was

taking. I have also suffered severe hot flashes and have seeked help

from an Endocrine doctor, but he has not helped me any. I ask my

regular MD. about taking estrogen to help. Women take this for

menopause symtoms to help with their hot flashes. I have been taking

about 2mg of estrodoil for about a year. I do feel some better, but

still have some hot flashes from time to time.

Can anyone tell me if you have had hot flashes due to low testosterone

levels? I would like to know what else could help me. I may increase

the estrogen to see how this works out. Hope to hear from some of you

all. Have a great day.....

Jerry

---------------------------------

How low will we go? Check out Messenger’s low PC-to-Phone call rates.

[Guest guest]

Hi Jerry - Welcome to the Group

I am really confused by your post. If you have had your testicles removed did

they put you on testosterone replacement and if so what method. Your symptoms

sound like high estradiol and supplementing with more E2 sound wrong to me. Most

of us are not medical professionals so we can only give you info based on our

personal experinces. What is typical is we get testosterone (from shots, gels,

pellets.....) and have to take an aromatase inhibitor (like arimidex). Aromatase

is the enzyme that converts our T to E2. The heavier (fatter) a person is, the

more aromatase they typically have so their E2 goes even higher. I have never

heard of anyone being treated with E2 in your situation. Based on the limited

information, this could be why you are seeing breast growth, having hot

flashes........ Please provide more information like what your T level and range

tested is and what your E2 levels are also. There are also issues with high

prolactin levels possibly. Have you been tested

for that? I think we can help you if you provide additional information.

Arkansas

jdbell7 <jdbell7@...> wrote:

Hello,

I am a 65 year old male who has been diagnosed with hypogonadism. I

had both testicles removed because of a medical necessity which was

not my choosing. In the past few years, I started to grow breasts. My

doctor said it was because of the testosterone replacement that I was

taking. I have also suffered severe hot flashes and have seeked help

from an Endocrine doctor, but he has not helped me any. I ask my

regular MD. about taking estrogen to help. Women take this for

menopause symtoms to help with their hot flashes. I have been taking

about 2mg of estrodoil for about a year. I do feel some better, but

still have some hot flashes from time to time.

Can anyone tell me if you have had hot flashes due to low testosterone

levels? I would like to know what else could help me. I may increase

the estrogen to see how this works out. Hope to hear from some of you

all. Have a great day.....

Jerry

---------------------------------

Get your email and more, right on the new .com

[Guest guest]

Jerry,

Phil is absolutley right on this one...you have an estrogen

dominance problem that your Doctor failed to treat. Instead the boob

gave you the very hormone that will make you worse. Fire him and get

a real Doctor! And I'm not one to generally say such things!

Vickie

In , " jdbell7 " <jdbell7@...> wrote:

>

> Hello,

> I am a 65 year old male who has been diagnosed with hypogonadism.

I

> had both testicles removed because of a medical necessity which

was

> not my choosing. In the past few years, I started to grow breasts.

My

> doctor said it was because of the testosterone replacement that I

was

> taking. I have also suffered severe hot flashes and have seeked

help

> from an Endocrine doctor, but he has not helped me any. I ask my

> regular MD. about taking estrogen to help. Women take this for

> menopause symtoms to help with their hot flashes. I have been

taking

> about 2mg of estrodoil for about a year. I do feel some better,

but

> still have some hot flashes from time to time.

>

> Can anyone tell me if you have had hot flashes due to low

testosterone

> levels? I would like to know what else could help me. I may

increase

> the estrogen to see how this works out. Hope to hear from some of

you

> all. Have a great day.....

>

> Jerry

>

[Guest guest]

Now Vickie, surely you could have used a word other than " boob " to descrbe a

doc who gave Jerry man-boobs (aka gyno). LOL

_____

From: [mailto: ]

On Behalf Of Vickie

Sent: Wednesday, October 11, 2006 9:46 AM

Subject: Re: New to group

Jerry,

Phil is absolutley right on this one...you have an estrogen

dominance problem that your Doctor failed to treat. Instead the boob

gave you the very hormone that will make you worse. Fire him and get

a real Doctor! And I'm not one to generally say such things!

Vickie

In @ <mailto: %40> ,

" jdbell7 " <jdbell7@...> wrote:

>

> Hello,

> I am a 65 year old male who has been diagnosed with hypogonadism.

I

> had both testicles removed because of a medical necessity which

was

> not my choosing. In the past few years, I started to grow breasts.

My

> doctor said it was because of the testosterone replacement that I

was

> taking. I have also suffered severe hot flashes and have seeked

help

> from an Endocrine doctor, but he has not helped me any. I ask my

> regular MD. about taking estrogen to help. Women take this for

> menopause symtoms to help with their hot flashes. I have been

taking

> about 2mg of estrodoil for about a year. I do feel some better,

but

> still have some hot flashes from time to time.

>

> Can anyone tell me if you have had hot flashes due to low

testosterone

> levels? I would like to know what else could help me. I may

increase

> the estrogen to see how this works out. Hope to hear from some of

you

> all. Have a great day.....

>

> Jerry

>

[Guest guest]

In a message dated 30/11/2006 12:10:25 GMT Standard Time,

vjrademacher@... writes:

I'm new to the group. My doc referred me to Rheumatologist who told

me in first appt. I have PA. My doc is convinced but goes along with

it. I " m taking sulfasalasine but it doesn't seem to do much, still

have joint pain, swelling, redness, pins/needles, chest pains and the

whole nine yards. Can any experienced PA people tell me what to

expect?

Hi vjrademacher,

Welcome to the group. It's hard to tell you what to expect as we are all

different with regard to the way it affects us and also how the treatments work

with us.

Do you have any Psoriasis? I'm just asking because you say that your doctor

doesn't necessarily agree with your Rheumy's diagnosis. If you don't have any

or much Psoriasis showing, the chances are that the Rheumy has based his

decision on something else he has seen along with your sore joints, like nail

changes.

When do you see your Rheumy again? You could ask him about getting on to some

of the better meds to try to calm some of your symptoms down.

Chest pains? Well, of course it could be something to do with PA (

Costchondritis effects the cartilage where the ribs meet the breast bone. I have

had

problems with this through PA)) but it is always better to get that checked out

anyway just in case it is something else.

I am glad you found us but sorry that your diagnosis brings you here. There

are a lot of caring and knowledgeable people here.....................but if

you have sore ribs, look out for Betz and a few of the others. They will have

you laughing so much at times that it will really hurt! lol

Take care,

[Guest guest]

Hi ,

Thank you for responding and for welcoming me to the group.

So true, I can imagine that everyone is affected differently with PA

and reacts differently to medications. I will definitely ask my

Rheumy for something different. (I see him in January)

My family doctor was leaning towards lupus rather than PA. I do

have psoriasis on the side of one foot and palm of one hand.

Costchondritis sounds about right. I've been reading up on that.

I'll keep an eye out for Betz! People seem really nice from what

I've read in different posts. It's nice to get some ideas and just

to share thoughts on PA.

Thank you again,

VJ

[Guest guest]

Do these things and see if it helps.

Change to an alkaline diet. No beef, pork, Dairy, sugar, potatoes or peanuts.

An occasional piece of dark chocolate is OK.

You Must get sunlight 15 minutes every other day. Join a tanning salon if you

have to. I joined and feel much better after every session.

Buy emu oil on eBay. Heat it up in its container in just boiled water and rub

it on the troubled areas of let someone massage you with it.

Eat whole foods fruit, vegetables, chicken and fresh water fish.

Don't drink fruit juices. Just eat the fruit.

vjrademacher <vjrademacher@...> wrote: Hi ,

Thank you for responding and for welcoming me to the group.

So true, I can imagine that everyone is affected differently with PA

and reacts differently to medications. I will definitely ask my

Rheumy for something different. (I see him in January)

My family doctor was leaning towards lupus rather than PA. I do

have psoriasis on the side of one foot and palm of one hand.

Costchondritis sounds about right. I've been reading up on that.

I'll keep an eye out for Betz! People seem really nice from what

I've read in different posts. It's nice to get some ideas and just

to share thoughts on PA.

Thank you again,

VJ

---------------------------------

Access over 1 million songs - Music Unlimited.

[Guest guest]

Well...I'm not too funny lately but welcome to the group none the

less. I've had a bit of a time here lately and not been posting every

other day as I was accustomed to doing. This is a strange disease and

mine has taken a not so common turn. It's effecting my eyes. And my

last name is Jack. So it would not be good for me to lose vision even

in ONE eye...you know? It's the whole " one-eyed-Jack " thing that has

me concerned. I'm home, not working, unable to drive and get around

unless it's a cloudy day...light sensitive. I'll be honest, I have

hesitated to write much and respond to our new folks because I did

not want to scare them. I don't want anyone thinking that this is how

this disease goes. I think there are only a few people (myself and

two others that I know of) in this big old group right now who have

PA induced Iritis (inflamation of the optic nerve). I was in the ER

Thanksgiving Day because the eye pain made me throw up for 18 hours.

Never had pain that made me ill before. I did get a neighbor to get

me Emitrol for nausea but I barfed it up too. The EMT's found me on

the sofa with empty water bottles all around. They laughed and

commented on how it was usually booze bottles they had to kick their

way through. I was still dehyrdated and got to experience the thrill

of putting an IV into dehydrated veins. They put two lines in so if

one gave out there would be a backup line. After Morphine, Phenergan

(for nausea) and fluids, I came home to sleep the Morphine off and

dream of turkey....except mine were still alive, running through the

woods laughing. Must have been the Morphine. I also dreamt that I

married Quinn for some reason. I have not even thought of him

in 25 years. Where that came from, I don't know. Friends came from

New Jersey to help me Friday.....cleaned and took me out to the

market. I cannot get to the eye doc until Medicaid kicks in. I've

applied. Social Services came to my house and when I needed to go

there, they came after me. I am learning alot through all of this. My

daughter is learning too. She has high functioning autism and is

doing great when we expected her to crash when my new wave of health

issues arrived. I can tell you this....Group helps. It makes you feel

a like a part of something rather than one who is all alone with a

problem the general population does not have to deal with. It is also

a wealth of information that can help you manage your disease and

keep you informed. Sorry you had to be here but glad you found us. I

need to welcome other new folks too but I'm sure I won't ever recover

from this bout of itis (a disease found only where our dear

member lurks....the only symptom is being incrediby behind in

answering posts). I can only type a bit at a time and then come back

to it so I'm not going to be attempting a catch up. I just want to

say that I'm reading posts as I can and thinking of those of you who

are going through rougher times right now. Love Betz

[Guest guest]

BETZ I>M WTITING IN BIG PRINT SO YOU CAN READ THIS > WE ARE THINKING OF YOU

> TAKE CARE OF YOURSELF AND IF I AM CORRECT YOUCAN GO TO THEDOCTOR WITH

MEDICAID AND THEY WILL BILL YOU RETROACTIVELY UP TO # MONTHS BACK > IF SOCIAL

SERVICES HAS BEEN TO YOUR HOUSE FOR HOME CARE > THEY KNOW THIS > GO TO BED AND

REST > TAKE CARE > CATHY FROM MA

[Guest guest]

Betz, I'd noticed your absence and feared you were having a tough time

of it. I've been praying for you faithfully. Do they think they will

be able to get your iritis under control soon? Has it caused any

permanent damage? Tell I've had her on my mind, too, and that

I'm so proud of how well she's helping you!

Good to hear your sweet voice again!

sherry z

>

> Well...I'm not too funny lately but welcome to the group none the

> less. I've had a bit of a time here lately and not been posting every

[Guest guest]

HI Betz.... saddened to read what you are going thru. I'll be

praying for you. Hang tough!

Dotti

>

> Well...I'm not too funny lately but welcome to the group none the

> less. I've had a bit of a time here lately and not been posting

every

> other day as I was accustomed to doing. This is a strange disease

and

> mine has taken a not so common turn. It's effecting my eyes. And

my

> last name is Jack. So it would not be good for me to lose vision

even

> in ONE eye...you know? It's the whole " one-eyed-Jack " thing that

has

> me concerned. I'm home, not working, unable to drive and get

around

> unless it's a cloudy day...light sensitive. I'll be honest, I have

> hesitated to write much and respond to our new folks because I did

> not want to scare them. I don't want anyone thinking that this is

how

> this disease goes. I think there are only a few people (myself and

> two others that I know of) in this big old group right now who

have

> PA induced Iritis (inflamation of the optic nerve). I was in the

ER

> Thanksgiving Day because the eye pain made me throw up for 18

hours.

> Never had pain that made me ill before. I did get a neighbor to

get

> me Emitrol for nausea but I barfed it up too. The EMT's found me

on

> the sofa with empty water bottles all around. They laughed and

> commented on how it was usually booze bottles they had to kick

their

> way through. I was still dehyrdated and got to experience the

thrill

> of putting an IV into dehydrated veins. They put two lines in so

if

> one gave out there would be a backup line. After Morphine,

Phenergan

> (for nausea) and fluids, I came home to sleep the Morphine off and

> dream of turkey....except mine were still alive, running through

the

> woods laughing. Must have been the Morphine. I also dreamt that I

> married Quinn for some reason. I have not even thought of

him

> in 25 years. Where that came from, I don't know. Friends came from

> New Jersey to help me Friday.....cleaned and took me out to the

> market. I cannot get to the eye doc until Medicaid kicks in. I've

> applied. Social Services came to my house and when I needed to go

> there, they came after me. I am learning alot through all of this.

My

> daughter is learning too. She has high functioning autism and is

> doing great when we expected her to crash when my new wave of

health

> issues arrived. I can tell you this....Group helps. It makes you

feel

> a like a part of something rather than one who is all alone with a

> problem the general population does not have to deal with. It is

also

> a wealth of information that can help you manage your disease and

> keep you informed. Sorry you had to be here but glad you found us.

I

> need to welcome other new folks too but I'm sure I won't ever

recover

> from this bout of itis (a disease found only where our dear

> member lurks....the only symptom is being incrediby behind

in

> answering posts). I can only type a bit at a time and then come

back

> to it so I'm not going to be attempting a catch up. I just want to

> say that I'm reading posts as I can and thinking of those of you

who

> are going through rougher times right now. Love Betz

>

[Guest guest]

>

> Betz, I'd noticed your absence and feared you were having a tough

time

> of it. I've been praying for you faithfully. Do they think they

will

> be able to get your iritis under control soon? Has it caused any

> permanent damage? Tell I've had her on my mind, too, and that

> I'm so proud of how well she's helping you!

>

>................Sheri....I'll tell her. She amazes me. Last week she

passed out on the school bus and took an ambulance to the ER where I

met her. The hospital is right down the road from my apt so it was ok

as far as driving there. They told me on the phone that they thought

she was having a siezure but thankfully was not. She'd had 3 rough

moments at school and one on the bus due to the fact that she went to

Mexico with her Dad for Thanksgiving and was just plain tired. She was

just exhausted. SHe stayed home with me for a few days to recover and I

think she is getting caught up. It was a scare that turned out ok. Same

ER I was in on Thanksgiving! We should get a family discount. lol.

Thank you for your prayers and yes...there is some permanent damage.

I'm just not responding well to the meds and they might put tubes in to

drain them. I have not ask what that entails. I'm picturing tubes

sticking out of my eyes....a sci fi looking thing. I'll cross that

bridge when I get there. Usually I want to know all about a treatment.

I'm just not up for getting the details on that one until they say it's

time to do it. Kind of creeps me out to think about it. I have a peace

about things though....I know that's from the prayers. I miss everyone

on here. I'll be active again eventually. Love, Betz

[Guest guest]

Betz, I'm glad everything turned out OK with , but sorry y'all

had to go through all that. Yipes - tubes in your eyes! Yea, don't

think about it...

Are you in much pain from the eye problem? From other joints? I don't

have too much pain right now and I wish I could take some of yours for

you!

best,

sherry z

>

> >................Sheri....I'll tell her. She amazes me. Last week she

> passed out on the school bus and took an ambulance to the ER where >

drain them. I have not ask what that entails.

[Guest guest]

Sherry wrote: Are you in much pain from the eye problem? From other

joints? I don't

> have too much pain right now and I wish I could take some of yours

for

> you!

Betz wrote: Honey...that is so sweet but I would not let you take it

from me. Yep...it hurts. My joints are acting up now but it's that

time of year for all of us. I thank God that I love this time of year

and that being a transplanted Southerner living here in the beautiful

Hudson Valley Region of New York State for 10 yrs, I still marvel at

the snow...until March. Then I'm done with it. Actually....I might

end up shoving my little bean head into a snow bank next time I get

that sickening eye pain....that could work. This year, I have not

focused on the usual onslaught of joint pain with the coming of the

colder temperatures because I now have eye pain to compair it to and

it does not seem so bad compaired to that. So I guess THAT's

something to be thankful for. lol. It hurt so badly that it made me

vomit for 18 hours on Thanksgiving Eve. Finally called 911

Thanksgiving morning. I'd been drinking water...lots of it....the

EMTs had to wade through empty water bottles to get to me but they

still had trouble getting a line in. Never had pain that made me

physically ill. I'll take joint pain over that anyday. I am getting

closer and closer to Medicaid kicking in and SS is being VERY

helpful...even coming out to my house... but it's a slow process. I

have a dental prescription for Vicodin and I broke each one in half

and that helps. Ultracet worked for my joints but does not touch

this. The Morphine helped in the ER but it made me dream I was

married to Quinn which still haunts me. Ewwwww. lol. Between

the Vicodin and the prayers, I feel at peace. Thank you for asking

and caring. Hope things are going ok with you...I'm trying to at

least read the posts in little bits at a time. I have to be careful

not to strain my eyes. But keeping up like I used to is just not

going to happen right now. When I get the Medicaid, I can go to the

eye doc weekley like I need to. Still trying to figure out if I'll be

able to see my same doc. I pray that I will. He has two MD degrees

and is tuned in to the PA connection....will even sit there and show

me things on his computer he has found in his research of my case.

He's a hippy and prone to look in my eyes and say " Oh Sh*t " but I

know where I stand with him which I appreciate. Thanks again for

thinking of me. Hope this was not too jumbled. It gets typed in

stages so it might not make alot of sense. lol. Love Betz

[Guest guest]

i hate to bring this up betz but it is known that marijuiana will reduce

pressure in the eye and i think that some doctors will give aprescription for

this to help reduce pressure in eyes for people who have glaucoma . you might

want t check that out . I think it may come in pill form . dont know check it

out . cathy from ma

[Editor's Note: Betz, I don't want you to experiment, so I'll try the marijuana

first to make sure it's OK for you to take. Kathy F.]

[Guest guest]

do whatever it takes to save your eyesight. I know that they give

betablockers in a drop form . is that what your on ?cathy from ma

[Editor's Note: , you are so right and kidding aside, your earlier

suggestion re medical marijuana is also worth looking into. Kathy F.]

[Guest guest]

Kathy F.: What an excuse to experiment !!! You do not have eye problems, do

you!

[Editor's Note: , you know I'd help you out, too, LOL. Kathy F.]

pretzelb3@... wrote:

i hate to bring this up betz but it is known that marijuiana will

reduce

pressure in the eye and i think that some doctors will give aprescription for

this to help reduce pressure in eyes for people who have glaucoma . you might

want t check that out . I think it may come in pill form . dont know check it

out . cathy from ma

[Editor's Note: Betz, I don't want you to experiment, so I'll try the marijuana

first to make sure it's OK for you to take. Kathy F.]

---------------------------------

Everyone is raving about the all-new beta.

[Guest guest]

My good people...when my friends in high school were " experimenting "

and the article of experimentation was passed to me, they said " Don't

give her any....she's weird enough without it " . True story. Wouldn't

that be a kicker if after all of these years of bragging that I was

one of the rare few who never smoked pot I ended up having to take in

in prescription form. lol. -Betz

> i hate to bring this up betz but it is known that

marijuiana will reduce

> pressure in the eye and i think that some doctors will give

aprescription for

> this to help reduce pressure in eyes for people who have glaucoma .

you might

> want t check that out . I think it may come in pill form . dont

know check it

> out . cathy from ma

>

> [Editor's Note: Betz, I don't want you to experiment, so I'll try

the marijuana first to make sure it's OK for you to take. Kathy F.]

>

>

>

>

>

>

> ---------------------------------

> Everyone is raving about the all-new beta.

>

>

[Guest guest]

LOL. You just never know.....

[ ] Re: New to Group

My good people...when my friends in high school were " experimenting "

and the article of experimentation was passed to me, they said " Don't

give her any....she's weird enough without it " . True story. Wouldn't

that be a kicker if after all of these years of bragging that I was

one of the rare few who never smoked pot I ended up having to take in

in prescription form. lol. -Betz

[Guest guest]

...I do take a beta blocker drop as well as 5 other drops...each

with a different schedule. So literally all day long I am concentrated

on saving my eyesight. I set the alarm on my cell phone to remind me. I

am very diligent and strict with my drop schedule. We are getting ready

to move me on to another level of treatment as this one is not doing

the trick. The amount of vision I lost in a short amount of time is

alarming. And as frustrating as it is to always be saying to my

daughter " bring it closer, I can't see it " everytime she wants to show

me something, I am not going to let myself lose any more than is

possible. Filling out all of the papers for SS and Disability and Food

Stamps is a nightmare because the papers all look exactly alike to me

until I put them inches from my face. Oh I am fighting this. Whatever

happens will not be my fault. I don't want to have to live with

blindness AND guilt. The comic relief today was great for me because

this whole ordeal has been and IS terrifying. I can't live in that fear

mode 24/7. I take this very seriously but also see the need to so what

we did today when I can. The whole reason I'm applying for Medicaid is

for my eyes. Limping is not an issue for me right now. Suddenly not

having good use of my legs seems so minor. It's all about my eyes now.

I won't go down easy. Not to worry. Love Betz

>

> do whatever it takes to save your eyesight. I know that they give

> betablockers in a drop form . is that what your on ?cathy from ma

>

>

> [Editor's Note: , you are so right and kidding aside, your

earlier suggestion re medical marijuana is also worth looking into.

Kathy F.]

>