Re: Dr's help or on your own?

[Guest guest]

I would do research on your own and if you have the money to keep a doctor

informed and have him/her help in treatment decisions, that is great. Many of

us don't work with a doctor because we would have to pay approximately $100-300

per appointment and cannot afford that when we also have to buy the supplements,

books, additional therapies and everything else involved in treatment. You

have to be realistic on how many appointments it will take for the doctor to

really get to know your child. It is great if you have the money for that.

I have found that chelation is the answer for OCD, and I believe it's the answer

for almost everything else too. The reason I think chelation helps with OCD is

because I have noticed that chelating increases it greatly in myself and my

children. Things that chelation increases eventually wither and die away. My

older son's tics increased during chelation and after several rounds they were

gone completely.

Both tics and OCD are said to be part of PANDAS and the PANDAS " people " would

have you take antibiotics for this - no. There are good reasons for NOT doing

that. Bacteria, fungus and other pathogens thrive on calcium, magnesium, and

iron. Many of our kids waste, or have excess of these minerals because toxic

metals take their place or kick them out of processes where they should be used.

Therefore, you can't just kill the pathogens and expect them not to come back

(in greater strength, likely) - you have to take away what they are feeding off

of, and correct the mineral imbalances by chelating.

To see what mineral imbalances and toxic metals issues she has, you should order

a Doctor's Data Hair Elements Test. If you mention this group, you can get a

discount. After you get the results, you can post them here and people will

look them over and help you decide what actions to take.

My son had trouble transitioning too and it got better the more we chelated. I

think some choline/inositol will help with that and the OCD. In a way, trouble

transitioning has to do with OCD because you are " stuck " on something you like

and it almost hurts to pull you away from it.

The " w " questions take several parts of the brain communicating together to

answer. It is harder to come up with verbs to answer questions than to say or

comprehend most anything else. Chelation will help the speech areas of the

brain to function normally again by lessening inflammation and allowing iron to

transport oxygen to all areas like it should be.

You might be overwhelmed learning about all the supplements that help, but there

are a minimum amount required for chelation that can be found in the files.

Along with those, I suggest you get some biotin and Candidaise for yeast. Many

of us use coconut oil regularly and it is great at controlling yeast and is also

a good source of Omega 6 fat. I like cultured vegetables or young coconut kefir

for probiotics, but you can use whatever you like, just make sure you give

probiotics.

So to recap, here are things I suggest you get:

Hair Test - Doctor's Data Hair Elements

Chelator - DMSA or ALA depending on Hair Elements test

Choline/Inositol - for OCD

Biotin - keep gut bacteria in check

Coconut oil - contains omegas/caprylic acid for yeast

Candidaise - Yeast fighter

and the minimum supps for chelation as listed in the files.

Liz

>

> My daughter is almost 4 yrs old and has reactions to several foods, although

she has never been allergy tested. Right now she is on a very limited rotation

diet. She's also on Trienza (2 caps 3x a day) and No Fenol powder (1/8 tsp 2x a

day). I do have her on a multivitamin, but just a generic one, Now Foods

probiotic-10, and epsom salt baths 3-5x a week. She has a language delay also

and is getting speech therapy once a week. Before I put her of gf/cf diet at 2

1/2 yrs she only said about 15 words consistently, but now talks all the time.

>

> She seems to have trouble with transitioning from one activity to another. It

also seems worse at preschool than it is at home and the only thing I can think

of is maybe the paints or something else that she plays with there could be

setting her off. I do notice some obsessive behaviors, like she has to put her

blankie on her stepstool before standing on it to brush her teeth, then she has

to get her toothbrush wet and tap it on the side of the sink before I can put

toothpaste on it. This is probably the worst thing she does as far as obsessive

behavior. If I turn on her water for her, she gets upset with me. Her bm's are

mostly normal except every once in a while they will be really loose. Her diet

never changes, so I'm not sure if it's due to yeast or bacterial overgrowth or

possibly a nervous stomach? I did try OLE and GSE, but she seemed to act out a

little more each time I tried to increase the dose...maybe that's normal to have

an adjustment time? I started with 2 drops and worked up, increasing every 4

days, but only did this for about a month.

>

> How long is it safe to use GSE and OLE for? Do I need additional yeast

fighters like Candidase? What are the symptoms for PANDAS? I've heard

obsessive behaviors can be caused by this.

>

> I should add that I don't feel she's that bad off. I don't even know for sure

if she has toxic metals in her system. She seems to be a little behind socially

and her language is about 1 yr behind. She has trouble with the " w " questions.

She speaks, plays well with others, but is somewhat rigid in her routines.

>

> Are you working with dr's at all, or doing this on your own? Is it possible

to self treat/heal?

>

> I am feeling very lost and overwhelmed in all of this. I truly appreciate any

help you can give me.

>

>

>

[Guest guest]

curious why you say no on antibiotics for pandas. they are helping my

daughter get better from her facial tics....

kathy

> Both tics and OCD are said to be part of PANDAS and the PANDAS " people "

> would have you take antibiotics for this - no. There are good reasons for

> NOT doing that. Bacteria, fungus and other pathogens thrive on calcium,

> magnesium, and iron. Many of our kids waste, or have excess of these

> minerals because toxic metals take their place or kick them out of

> processes where they should be used. Therefore, you can't just kill the

> pathogens and expect them not to come back (in greater strength, likely) -

> you have to take away what they are feeding off of, and correct the

> mineral imbalances by chelating.

>

[Guest guest]

Because they are a temporary fix. The bacteria could become resistant.

Antibiotics do nothing to address the environment in which the bacteria thrive.

If the environment remains favorable for infection and overgrowth, the problem

will continue. You have to get rid of the environmental conditions by working

on the acid/alkaline balance as well as chelating toxic metals so that the

minerals (that feed the bacteria) are no longer out of balance.

>

> curious why you say no on antibiotics for pandas. they are helping my

> daughter get better from her facial tics....

> kathy

>

>

> > Both tics and OCD are said to be part of PANDAS and the PANDAS " people "

> > would have you take antibiotics for this - no. There are good reasons for

> > NOT doing that. Bacteria, fungus and other pathogens thrive on calcium,

> > magnesium, and iron. Many of our kids waste, or have excess of these

> > minerals because toxic metals take their place or kick them out of

> > processes where they should be used. Therefore, you can't just kill the

> > pathogens and expect them not to come back (in greater strength, likely) -

> > you have to take away what they are feeding off of, and correct the

> > mineral imbalances by chelating.

> >

>

[Guest guest]

Thanks, I will look into those supplements. Should I go ahead and start them

now even before the hair test? Also, I see that choline is derived from soy,

but my daughter is allergic to that, any other options? Also, is IgG testing

necessary? She's never been tested before.

>

> I would do research on your own and if you have the money to keep a doctor

informed and have him/her help in treatment decisions, that is great. Many of

us don't work with a doctor because we would have to pay approximately $100-300

per appointment and cannot afford that when we also have to buy the supplements,

books, additional therapies and everything else involved in treatment. You

have to be realistic on how many appointments it will take for the doctor to

really get to know your child. It is great if you have the money for that.

>

> I have found that chelation is the answer for OCD, and I believe it's the

answer for almost everything else too. The reason I think chelation helps with

OCD is because I have noticed that chelating increases it greatly in myself and

my children. Things that chelation increases eventually wither and die away.

My older son's tics increased during chelation and after several rounds they

were gone completely.

>

> Both tics and OCD are said to be part of PANDAS and the PANDAS " people " would

have you take antibiotics for this - no. There are good reasons for NOT doing

that. Bacteria, fungus and other pathogens thrive on calcium, magnesium, and

iron. Many of our kids waste, or have excess of these minerals because toxic

metals take their place or kick them out of processes where they should be used.

Therefore, you can't just kill the pathogens and expect them not to come back

(in greater strength, likely) - you have to take away what they are feeding off

of, and correct the mineral imbalances by chelating.

>

> To see what mineral imbalances and toxic metals issues she has, you should

order a Doctor's Data Hair Elements Test. If you mention this group, you can

get a discount. After you get the results, you can post them here and people

will look them over and help you decide what actions to take.

>

> My son had trouble transitioning too and it got better the more we chelated.

I think some choline/inositol will help with that and the OCD. In a way,

trouble transitioning has to do with OCD because you are " stuck " on something

you like and it almost hurts to pull you away from it.

>

> The " w " questions take several parts of the brain communicating together to

answer. It is harder to come up with verbs to answer questions than to say or

comprehend most anything else. Chelation will help the speech areas of the

brain to function normally again by lessening inflammation and allowing iron to

transport oxygen to all areas like it should be.

>

> You might be overwhelmed learning about all the supplements that help, but

there are a minimum amount required for chelation that can be found in the

files. Along with those, I suggest you get some biotin and Candidaise for

yeast. Many of us use coconut oil regularly and it is great at controlling

yeast and is also a good source of Omega 6 fat. I like cultured vegetables or

young coconut kefir for probiotics, but you can use whatever you like, just make

sure you give probiotics.

>

> So to recap, here are things I suggest you get:

>

> Hair Test - Doctor's Data Hair Elements

> Chelator - DMSA or ALA depending on Hair Elements test

> Choline/Inositol - for OCD

> Biotin - keep gut bacteria in check

> Coconut oil - contains omegas/caprylic acid for yeast

> Candidaise - Yeast fighter

>

> and the minimum supps for chelation as listed in the files.

>

> Liz

>

>

[Guest guest]

>

>

> Are you working with dr's at all, or doing this on your own? Is it possible

to self treat/heal?

>

I am self-treating (me and my sons) and I haven't seen a doctor in over 3 1/2

years -- and that appointment was for a physical to prove I am medically

handicapped and qualify for job-hunting assistance as a handicapped person, not

for medical care. (Fortunately, I got a job on my own just as they were wrapping

up the intake process. I suspect they would have helped me to remain

underemployed and poverty-stricken for a long time to come.) It has been more

like 4 years or so since I saw a doctor for medical care.

Read, read, read. See a doctor if you really feel you must but don't let them

make your decisions for you. A naturopath might be a better option than a

regular MD. I have spoken with a couple of people using naturpaths for support

for medical conditions. If you get to the point where you feel confident you

can treat it on your own, gradually back out of the use of a doctor. I just saw

a doctor less and less and then moved and didn't bother to find a new one. It

really doesn't have to be one or the other -- unless you get to the point you

are confident that the doctors can't help you and are only suggesting things

which cause harm and you know a better way. At which point you probably won't

be intimidated or agonizing over the decision. I never agonized over whether or

not to see a doctor. I just gradually stopped having any use for them.

Good luck with this.

Michele

http://www.healthgazelle.com

http://www.kidslikemine.com

http://www.solanorail.com

[Guest guest]

>>This is probably the worst thing she does as far as obsessive behavior. If I

turn on her water for her, she gets upset with me. Her bm's are mostly normal

except every once in a while they will be really loose.

At my house, my son's OCD was eliminated with yeast control, anti-virals, and

B12/folic acid.

Strep bacteria can also cause OCD issues.

> How long is it safe to use GSE and OLE for?

I have used them for years. No longer needed here, but when I used them, they

were very helpful.

>>Do I need additional yeast fighters like Candidase?

I used biotin and GSE.

>>What are the symptoms for PANDAS? I've heard obsessive behaviors can be

caused by this.

OCD is the most common symptom.

> Are you working with dr's at all, or doing this on your own? Is it possible

to self treat/heal?

My son has not seen a doctor since he was about 4 years old. He is 14 now, and

almost biomedically recovered.

Dana

[Guest guest]

I tried mb12 for a couple of weeks 1/2 of a 1000 mcg lozenge and it seemed to

make her hyper. Would using it with folic acid eliminate that?

Is there another antiviral recommended besides OLE?

> >>This is probably the worst thing she does as far as obsessive behavior. If

I turn on her water for her, she gets upset with me. Her bm's are mostly normal

except every once in a while they will be really loose.

>

>

> At my house, my son's OCD was eliminated with yeast control, anti-virals, and

B12/folic acid.

>

> Strep bacteria can also cause OCD issues.

>

> > How long is it safe to use GSE and OLE for?

>

>

> I have used them for years. No longer needed here, but when I used them, they

were very helpful.

>

>

> >>Do I need additional yeast fighters like Candidase?

>

>

> I used biotin and GSE.

>

>

> >>What are the symptoms for PANDAS? I've heard obsessive behaviors can be

caused by this.

>

>

> OCD is the most common symptom.

>

>

> > Are you working with dr's at all, or doing this on your own? Is it possible

to self treat/heal?

>

>

> My son has not seen a doctor since he was about 4 years old. He is 14 now,

and almost biomedically recovered.

>

> Dana

>

[Guest guest]

> I tried mb12 for a couple of weeks 1/2 of a 1000 mcg lozenge and it seemed to

make her hyper. Would using it with folic acid eliminate that?

Adding folic usually decreases hyper.

B12 also tends to increase yeast, which can also cause hyper.

> Is there another antiviral recommended besides OLE?

You can try Virastop.

To correct my son's immune system and eliminate all viruses, my son needed high

doses of vitamin A, vitamin C, vitamin D, and lysine.

Dana

[Guest guest]

Most of us are. My ped does give the script for enzymes to be given at school.

I have her full support. She'll also sign for any testing I want with Great

Plains. Read, internet, you can do it!

Tammy

Dr's help or on your own?

I'm just curious if anyone is treating their child without the assistance of a

Dr?

I know my daughter has several allergies that affect her behaviorally. As I

read more in this group, I recognize more and more things going on with her. She

has not been diagnosed with anything, and I am not pushing for it. I'm just

wondering if it's possible to self treat with natural remedies or if it's

necessary to work with a Dr? TIA