Re: SED rate question? Inflammation indicator for our kids

June 12, 2009

In my son's case, he has high sedimentation rate because he has autism (I

thought)I

hope many moms chime into this subject, I assumed the sed rate in my son is high

because of inflammation in the gut and in the brain, I assumed it was there

before he started enzymes, his sed rate is 45.

I wonder if moms in the board check the sed rate every year to measure if the

inflammtion is going down or not, or if any DAN doc is checking the sed rate

out, maybe the kids that get better or recover began with a higher sed rate?

>

> Hi, I have never posted to the group, but I wondered if you could help me out.

My son has been on DPP IV enzyme for a year and a half now. He just had blood

work done and his SED rate came back really high. They are going to retest it,

but in the meantime, I am trying to figure out if it is something that I gave

him that could have caused a problem. Have any of you come across and elevated

SED rate and could the enzyme have caused some kind of inflamation or problem?

He isn't showing any signs of anything, but he does not express pain, so it is

all from my observation. Any advice would be greatly appreciated.

> Thank you,

> Addriane

>

June 12, 2009

How did they determine that it was inflammation in the gut and brain? Did they

run other tests? All of the other blood work that they ran was normal (CBC and

other stuff), so they are wondering if there was a lab error. I have been very

anxious about this since the doc is not the one to put him on enzymes, I chose

to do that instead of taking him off of casein. I hope they don't have to keep

doing different tests. It is so hard to have blood work on him, but I want to be

sure that there is nothing going on. Thank you for responding.

Addriane

> >

> > Hi, I have never posted to the group, but I wondered if you could help me

out. My son has been on DPP IV enzyme for a year and a half now. He just had

blood work done and his SED rate came back really high. They are going to retest

it, but in the meantime, I am trying to figure out if it is something that I

gave him that could have caused a problem. Have any of you come across and

elevated SED rate and could the enzyme have caused some kind of inflamation or

problem? He isn't showing any signs of anything, but he does not express pain,

so it is all from my observation. Any advice would be greatly appreciated.

> > Thank you,

> > Addriane

> >

>

June 13, 2009

My daughter's sed rate was 47 when we first went to our DAN provider (Dr.

Elice on Long Island) when she was four years old. It decreased to 21

then to 11 which is the normal range. This occurred over the first eight months

we were seeing him.

My understanding is the same as yours that the sed rate indicates inflammation.

The decrease for my daughter occurred while we were on first the elimination

diet, then a gfcf-soy free diet (where we eventually added Houston's enzymes),

and while we were addressing PANDAS and viral issues. She has environmental

allergies as well as food so I've always believed the inflammation was from both

the gut issues and PANDAS but I don't think there is anyway of knowing with

absolute certainty.

We have now been chelating for a year (she is seven) and we have continued to

see improvements.

Hope this helps.

Debbie