Guest guest Posted February 9, 2011 Report Share Posted February 9, 2011 I was going to do a 504 for Tristen who started kindergarten this year but the school said she didn't need it yet and are very flexible with her. I'm sure next year we may do one since she will start having homework, but for now I just deal with the teacher. Our school has been very accommodating with Tristen. I'm told of all major illnesses in the school. I talk with her teacher regularly and she has learned to know when tristens not feeling well. She's allowed to lay down in the nurses room if she needs a break. I'm very thankful the school has been so easy to deal with. le Sent from my iPad On Feb 9, 2011, at 10:51 AM, e Salamone <justine200042@...> wrote: > Wow! My son is only 4 so I haven't had this issue yet! But these are great > ideas I never would have thought of them... > On Feb 9, 2011 1:41 PM, " Ursula Holleman " <uahollem@...> wrote: > > Abscences > > Water at desk > > Able to go to the bathroom as needed > > Hepa filter in room > > Sanitizer on entering room each time > > Extra time for tests - grew out of that > > Notification of grade level illnesses > > Set of school books just for the house > > > > Ursula - mom to Macey (15,CVID) > > > > > > On Feb 9, 2011, at 1:06 PM, " April " <n2katz2003@...> wrote: > > > >> Does anybody have an IEP for their child because of the PID? My son is > 3.5 years old and attends a special ed preschool due to various delays so he > has an IEP already. > >> > >> I met with the nurse at his school the other day and she asked a bunch of > questions and seemed very interested and helpful about the new CVID > diagnosis. She didn't know anything about it, but our Immunologist sent her > a packet with information. > >> > >> We have an IEP Revision meeting coming up so the nurse said she would > have some stuff written up to add to his IEP. We agreed this would just be a > starting point for adding to his IEP regarding the CVID since right now we > won't have to add anything about excessive absence since he has no homework, > grades or anything like that. > >> > >> I am wondering what exactly you all have in the IEP. > >> > >> > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2011 Report Share Posted February 9, 2011 there is an example on the book from IDF for schools. it is well done and you can order for them for free. BARBIE ________________________________ From: Ursula Holleman <uahollem@...> " " < > Sent: Wed, February 9, 2011 10:41:30 AM Subject: Re: IEP Abscences Water at desk Able to go to the bathroom as needed Hepa filter in room Sanitizer on entering room each time Extra time for tests - grew out of that Notification of grade level illnesses Set of school books just for the house Ursula - mom to Macey (15,CVID) On Feb 9, 2011, at 1:06 PM, " April " <n2katz2003@...> wrote: > Does anybody have an IEP for their child because of the PID? My son is 3.5 >years old and attends a special ed preschool due to various delays so he has an >IEP already. > > I met with the nurse at his school the other day and she asked a bunch of >questions and seemed very interested and helpful about the new CVID diagnosis. >She didn't know anything about it, but our Immunologist sent her a packet with >information. > > We have an IEP Revision meeting coming up so the nurse said she would have some >stuff written up to add to his IEP. We agreed this would just be a starting >point for adding to his IEP regarding the CVID since right now we won't have to >add anything about excessive absence since he has no homework, grades or >anything like that. > > > I am wondering what exactly you all have in the IEP. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2011 Report Share Posted February 9, 2011 depending on the school I would start getting an evalution going since the later you wait the harder it is to get them to be accountable. We struggled and had to take my son out of Public school because they would not work with us. Private school was Much more willing to accomadate him but as he got older we went back to public and they realized how much he needed the supports. We have a full IEP now for everything but his IQ is in the top .5% of the kids in his HS but struggles with absences and also with staying up on assignments due to fatigue and his ADD causing him difficulties in organizing. He also has SEVERE Auditory Processing Disorder which his ADD med help immensely. His score showed 2% results without his Adderall but went to 96% with meds. It was amazing and it told me that we were on the right track. BARBIE ________________________________ From: le Mina <daniellemina@...> " " < > Sent: Wed, February 9, 2011 12:31:15 PM Subject: Re: IEP I was going to do a 504 for Tristen who started kindergarten this year but the school said she didn't need it yet and are very flexible with her. I'm sure next year we may do one since she will start having homework, but for now I just deal with the teacher. Our school has been very accommodating with Tristen. I'm told of all major illnesses in the school. I talk with her teacher regularly and she has learned to know when tristens not feeling well. She's allowed to lay down in the nurses room if she needs a break. I'm very thankful the school has been so easy to deal with. le Sent from my iPad On Feb 9, 2011, at 10:51 AM, e Salamone <justine200042@...> wrote: > Wow! My son is only 4 so I haven't had this issue yet! But these are great > ideas I never would have thought of them... > On Feb 9, 2011 1:41 PM, " Ursula Holleman " <uahollem@...> wrote: > > Abscences > > Water at desk > > Able to go to the bathroom as needed > > Hepa filter in room > > Sanitizer on entering room each time > > Extra time for tests - grew out of that > > Notification of grade level illnesses > > Set of school books just for the house > > > > Ursula - mom to Macey (15,CVID) > > > > > > On Feb 9, 2011, at 1:06 PM, " April " <n2katz2003@...> wrote: > > > >> Does anybody have an IEP for their child because of the PID? My son is > 3.5 years old and attends a special ed preschool due to various delays so he > has an IEP already. > >> > >> I met with the nurse at his school the other day and she asked a bunch of > questions and seemed very interested and helpful about the new CVID > diagnosis. She didn't know anything about it, but our Immunologist sent her > a packet with information. > >> > >> We have an IEP Revision meeting coming up so the nurse said she would > have some stuff written up to add to his IEP. We agreed this would just be a > starting point for adding to his IEP regarding the CVID since right now we > won't have to add anything about excessive absence since he has no homework, > grades or anything like that. > >> > >> I am wondering what exactly you all have in the IEP. > >> > >> > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2011 Report Share Posted February 10, 2011 My son also has written in his that if he feels sick-he is to go to the nurse immediatly. Our kids get sick fast, with no outward symptoms. At his school, if you went to the nurse and had no fever, you were sent back to class. doesn't run fevers. Now, he tells the teacher he is sick, he goes to the nurse, she hands him the phone. I determine if he needs to check out. From: justine200042@... Date: Wed, 9 Feb 2011 13:51:40 -0500 Subject: Re: IEP Wow! My son is only 4 so I haven't had this issue yet! But these are great ideas I never would have thought of them... On Feb 9, 2011 1:41 PM, " Ursula Holleman " <uahollem@...> wrote: > Abscences > Water at desk > Able to go to the bathroom as needed > Hepa filter in room > Sanitizer on entering room each time > Extra time for tests - grew out of that > Notification of grade level illnesses > Set of school books just for the house > > Ursula - mom to Macey (15,CVID) > > > On Feb 9, 2011, at 1:06 PM, " April " <n2katz2003@...> wrote: > >> Does anybody have an IEP for their child because of the PID? My son is 3.5 years old and attends a special ed preschool due to various delays so he has an IEP already. >> >> I met with the nurse at his school the other day and she asked a bunch of questions and seemed very interested and helpful about the new CVID diagnosis. She didn't know anything about it, but our Immunologist sent her a packet with information. >> >> We have an IEP Revision meeting coming up so the nurse said she would have some stuff written up to add to his IEP. We agreed this would just be a starting point for adding to his IEP regarding the CVID since right now we won't have to add anything about excessive absence since he has no homework, grades or anything like that. >> >> I am wondering what exactly you all have in the IEP. >> >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2011 Report Share Posted February 10, 2011 That is kind of strange, you mentioned not having fevers. My son hardly ever gets a fever when he is sick. He has only ever had a true fever maybe 2-3 times which generally were the times we ended up in the hospital. I wonder if that is common for kids with PID? Thanks for all of the comments, I will be writing them down and taking them with me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2011 Report Share Posted February 10, 2011 Yes, it is common to not run a fever. It shows the body's trying to fight off infection, and a lot of our kids don't fight infection off. : ( From: n2katz2003@... Date: Thu, 10 Feb 2011 17:02:36 +0000 Subject: Re: IEP That is kind of strange, you mentioned not having fevers. My son hardly ever gets a fever when he is sick. He has only ever had a true fever maybe 2-3 times which generally were the times we ended up in the hospital. I wonder if that is common for kids with PID? Thanks for all of the comments, I will be writing them down and taking them with me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2011 Report Share Posted February 10, 2011 Yes, it is common to not run a fever. It shows the body's trying to fight off infection, and a lot of our kids don't fight infection off. : ( From: n2katz2003@... Date: Thu, 10 Feb 2011 17:02:36 +0000 Subject: Re: IEP That is kind of strange, you mentioned not having fevers. My son hardly ever gets a fever when he is sick. He has only ever had a true fever maybe 2-3 times which generally were the times we ended up in the hospital. I wonder if that is common for kids with PID? Thanks for all of the comments, I will be writing them down and taking them with me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2011 Report Share Posted February 10, 2011 * Set of school books just for the house This I haven’t added to our IEP, but I think I’m going to next year!! Great idea. I just broke my back going to pick up Caelan’s books again. He is on day 26 absent tomorrow plus about 5 ½ days. We have the water bottle one on ours plus some extra hand washing stuff for his food allergies as well. Most of the time they fail to do what is listed in his IHP. _____ From: [mailto: ] On Behalf Of e Salamone Sent: Wednesday, February 09, 2011 12:52 PM Subject: Re: IEP Wow! My son is only 4 so I haven't had this issue yet! But these are great ideas I never would have thought of them... On Feb 9, 2011 1:41 PM, " Ursula Holleman " <uahollem@... <mailto:uahollem%40gmail.com> > wrote: > Abscences > Water at desk > Able to go to the bathroom as needed > Hepa filter in room > Sanitizer on entering room each time > Extra time for tests - grew out of that > Notification of grade level illnesses > Set of school books just for the house > > Ursula - mom to Macey (15,CVID) > > > On Feb 9, 2011, at 1:06 PM, " April " <n2katz2003@... <mailto:n2katz2003%40> > wrote: > >> Does anybody have an IEP for their child because of the PID? My son is 3.5 years old and attends a special ed preschool due to various delays so he has an IEP already. >> >> I met with the nurse at his school the other day and she asked a bunch of questions and seemed very interested and helpful about the new CVID diagnosis. She didn't know anything about it, but our Immunologist sent her a packet with information. >> >> We have an IEP Revision meeting coming up so the nurse said she would have some stuff written up to add to his IEP. We agreed this would just be a starting point for adding to his IEP regarding the CVID since right now we won't have to add anything about excessive absence since he has no homework, grades or anything like that. >> >> I am wondering what exactly you all have in the IEP. >> >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2011 Report Share Posted February 10, 2011 * Set of school books just for the house This I haven’t added to our IEP, but I think I’m going to next year!! Great idea. I just broke my back going to pick up Caelan’s books again. He is on day 26 absent tomorrow plus about 5 ½ days. We have the water bottle one on ours plus some extra hand washing stuff for his food allergies as well. Most of the time they fail to do what is listed in his IHP. _____ From: [mailto: ] On Behalf Of e Salamone Sent: Wednesday, February 09, 2011 12:52 PM Subject: Re: IEP Wow! My son is only 4 so I haven't had this issue yet! But these are great ideas I never would have thought of them... On Feb 9, 2011 1:41 PM, " Ursula Holleman " <uahollem@... <mailto:uahollem%40gmail.com> > wrote: > Abscences > Water at desk > Able to go to the bathroom as needed > Hepa filter in room > Sanitizer on entering room each time > Extra time for tests - grew out of that > Notification of grade level illnesses > Set of school books just for the house > > Ursula - mom to Macey (15,CVID) > > > On Feb 9, 2011, at 1:06 PM, " April " <n2katz2003@... <mailto:n2katz2003%40> > wrote: > >> Does anybody have an IEP for their child because of the PID? My son is 3.5 years old and attends a special ed preschool due to various delays so he has an IEP already. >> >> I met with the nurse at his school the other day and she asked a bunch of questions and seemed very interested and helpful about the new CVID diagnosis. She didn't know anything about it, but our Immunologist sent her a packet with information. >> >> We have an IEP Revision meeting coming up so the nurse said she would have some stuff written up to add to his IEP. We agreed this would just be a starting point for adding to his IEP regarding the CVID since right now we won't have to add anything about excessive absence since he has no homework, grades or anything like that. >> >> I am wondering what exactly you all have in the IEP. >> >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2011 Report Share Posted March 17, 2011 My son was always diagnosed with a disability in written expression. He was just tested again this year and it was discovered that he also had a disability in reading comprehension. He is a Senior and we have his IEP meeting next week. Does anyone have any suggestions as to what we should have in the IEP for reading comprehension at this late date? Thank you, Krista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2011 Report Share Posted March 17, 2011 Wow that is late. I too have a severe disability in reading comprehension. I would ask for recordings for books (you can register for Records For the Blind and Dyslexic for free- I am and all I had to do was send my testing), unlimited time for his tests, testing in a quiet place (less distractions) and tutors to help when he is struggling. I also used my testing in college with great success, I received my Associates in Nursing about 11 yrs ago and just a few months ago received my Bachelors in Nursing. Good luck to your son. Carolyn From: K ClY <krisclyburn@...> Sent: Thu, March 17, 2011 12:42:43 PMSubject: ( ) IEP My son was always diagnosed with a disability in written expression. He was just tested again this year and it was discovered that he also had a disability in reading comprehension. He is a Senior and we have his IEP meeting next week.Does anyone have any suggestions as to what we should have in the IEP for reading comprehension at this late date? Thank you,Krista Quote Link to comment Share on other sites More sharing options...
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