New member here!

[Guest guest]

What

a great resource! This link directly addresses the issue in question. Great

post!

From:

[mailto: ] On Behalf Of toivonen4

Sent: Thursday, May 15, 2008 10:49 AM

Subject: Re: New member here!

Hi Kim - Welcome to the group. I haven't

personally tested the

milk issue, but I would suggest printing off articles from the

internet about JRA and give them to your step mom. There is stuff

out there about how Juvenile Rheumatoid arthritis is different than

it is in adults. I also found this info on the milk issue:

http://www.arthritis.org/ask-white.php

Q. My 5-1/2-year-old daughter was diagnosed with juvenile

rheumatoid arthritis (JRA) when she was 19 months old. My question

is what are your thoughts on milk allergies related to JRA. The

reason I ask is that I have a 2-1/2-year-old son who is highly

allergic to milk, and I have stumbled across some articles on the

Internet linking food allergies with JRA symptoms. My daughter's

primary drinks are milk and water; she is not a juice or soda

drinker. I am considering testing my daughter for this allergy even

though she does not manifest any of the symptoms related to this

allergy.

A. You ask an interesting question. Allergies can cause many of the

symptoms that appear similar to JRA but may not be the cause JRA.

Most children with JRA do not have milk allergies. If you have

withdrawn the milk products and your daughter's symptoms continued,

an allergy is unlikely. Before you have your daughter tested for a

milk allergy, understand what positive and negative results would

mean. Sometimes showing an allergy by a skin test may have nothing

to do with her primary problem, arthritis. Also, milk is the major

source of calcium which is an important building block for her bones

and she will need to take calcium if she can not drink milk or eat

dairy products.

Hopefully this will stop her pestering.

& Grant (11, PsA/Uveitis)

> >

> > Hi everyone!

> >

> > I joined the group a few weeks ago (thanks so much for the

invite,

> > Terri!) but I've just been reading and lurking so far. But I

wanted

> > to take a minute to introduce myself. I'm Kim, and my 3-year-old

> > daughter, Maggie, was diaganosed with juvenile arthritis in

December.

> > She has it mostly on her left side .. a toe, a few fingers and

her

> > ankle, but also in her neck and today we learned her right kneww

is

> > swollen. She was on oral methotrexate for a while, but it didn't

seem

> > to be working, so she's been on injectibles for two months.

> >

> > Until the swollen knee popped up, I really thought she was doing

a

> > lot better. Her neck hasn't gotten stiff in over three weeks

(this

> > had become our biggest issue). She had cortisone shots in her

ankle

> > and one finger in February and the swelling in those joints has

> > stayed down, thank goodness.

> >

> > Her ped. rheumatologist wants to give the injectible mc a few

more

> > months and if we don't see improvement in the knee, possibly add

> > Enbrel. I really hope it doesn't come to that!

> >

> > I do have one question for you all. Do you have people in your

lives

> > who are always second-guessing you? My step-mom is a nurse, and

one

> > of her daughters has a lot of allergies. She seems to think that

all

> > Maggie's probably are allergy based and that if I just

eliminated

> > milk, the arthritis goes away. She drive me crazy because she's

> > always sending my articles that relate to adult arthritis, not

> > juvenile. And I know she disagrees with my and my husband's

decision

> > to start methotrexate.

> >

> > I'm not discounting allergies (I did try eliminating tomato

products

> > and that had no effect), but Maggie has such a limited diet

(being

> > only three), there's only so much I want to take away from her.

Could

> > milk really be a culprit?

> >

> > I know this post is long, but it's just so good to know I've

found a

> > place where people will understand what I'm going through.

> >

> >

> > Kim

> >

>

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4:44 PM

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[Guest guest]

,

This is good advice! :-)

(Aundrea 12 fibromyalgia)-

-- In , and Schulz

<snooksmama@...> wrote:

>

> What wonderful advice! I'm going to keep your email...it is so

helpful!!

> and Rob 19 JAS

>

> Re: New member here!

>

>

> >

> > Hi Kim - Welcome!

> >

> > I will try to keep this short [] .

> >

> > I have some experience with " well-meaning " family members, and I

have

> > found what works best is to:

> >

> > 1. Listen respectfully

> >

> > 2. Don't engage in a debate

> >

> > 3. Thank them for their concern

> >

> > 4. Acknowledge that they love and care for your child just as

> > you do

> >

> > 5. Tell them you will be happy to discuss their concerns with your

> > child's doctors

> >

> > 6. Then just change the subject

> >

> > This method keeps the peace in the family, makes them feel a

> > part of the

> > process, and reminds you that they really are trying to help, even

> > though they are slightly irritating and not very helpful!

> >

> > I have avoided many conflicts this way and it keeps my energy

directed

> > in a positive light instead of getting sidetracked with

negativity.

> >

> > Best of luck,

> >

> >

> >

> >

>

[Guest guest]

Hi, All!

My name is Joy and my son who is 17yrs. old has high functioning autism. We just moved to Carlsbad, CA and am looking for parent support groups, and, an activity group that meets together so my son can make friends. I am having the hardest time right now because he is a TEENAGER with an attitude! And he is depressed because he has no friends because he is addicted to Xbox. Can anyone here offer any advice??? Thanks so much.

[Guest guest]

Here is a link to ASA of San Diego http://www.sd-autism.org/ Look around the site for a lot of helpful resources and support groups. I seem to always find stuff for older kids/teens but never for the little ones like my son's age.

Also here is one I just happened to come across today: http://respectrum.org/news-updates/rethink-aspergers-updates/

Welcome to CA. There seems to be a lot of resources but you really have to dig or get hooked up with a really good Dr that knows the ASA community and resources. We've lived here 3 years and unfortunately I'm still "digger".

( ) New member here!

Hi, All!

My name is Joy and my son who is 17yrs. old has high functioning autism. We just moved to Carlsbad, CA and am looking for parent support groups, and, an activity group that meets together so my son can make friends. I am having the hardest time right now because he is a TEENAGER with an attitude! And he is depressed because he has no friends because he is addicted to Xbox. Can anyone here offer any advice??? Thanks so much.

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.5.449 / Virus Database: 271.1.1/3569 - Release Date: 04/12/11 18:35:00

[Guest guest]

Thank you so much for the helpful links!! Funny, all I have found are groups for the younger kids. Joy

From: SoCalVal <socalval@...> Sent: Tue, April 12, 2011 11:00:51 PMSubject: Re: ( ) New member here!

Here is a link to ASA of San Diego http://www.sd-autism.org/ Look around the site for a lot of helpful resources and support groups. I seem to always find stuff for older kids/teens but never for the little ones like my son's age.

Also here is one I just happened to come across today: http://respectrum.org/news-updates/rethink-aspergers-updates/

Welcome to CA. There seems to be a lot of resources but you really have to dig or get hooked up with a really good Dr that knows the ASA community and resources. We've lived here 3 years and unfortunately I'm still "digger".

( ) New member here!

Hi, All!

My name is Joy and my son who is 17yrs. old has high functioning autism. We just moved to Carlsbad, CA and am looking for parent support groups, and, an activity group that meets together so my son can make friends. I am having the hardest time right now because he is a TEENAGER with an attitude! And he is depressed because he has no friends because he is addicted to Xbox. Can anyone here offer any advice??? Thanks so much.

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.5.449 / Virus Database: 271.1.1/3569 - Release Date: 04/12/11 18:35:00

[Guest guest]

Hi, there!

Sounds like our sons are very much alike. He refuses to go to groups offerred at HS because he doesn't want to be associated with teens with "disabilities." He is forced to go to school clubs, but says that he doesn't have much in common with them (he also doesn't participate enough to really find out!) My son want to be on the Track team, only because it's Co-ed. He'd give his right arm to have a girlfriend!

My son is okay with school, but forgets to turn in homework, loses important notes, but umbelievable passes tests without rmembering to study. He is on meds for ADD, but he is still very disorganized. Also, my son says that he only has a "little bit of Autism." Sometimes I feel like I am going crazy! He is a sophmore now, and will be 17 in 2 months. joy

From: rushen janice <jrushen@...> Sent: Wed, April 13, 2011 11:06:51 PMSubject: Re: ( ) New member here!

Joy,

My son is 15....a little addicted to Xbox, has a few friends but is angry and depressed. My son will not participate in any group and refuses wrap around services. Would your son go to groups? My son says he doesn't have AS ...he does realize he has ADHD though.

My son has all the teen symptoms...attitude, lazy, doesn't want me involved, etc. But I have to be because he has been inappropriate at times. My son is in 9th grade and is interested in girls and wants a girlfriend. Friends come first to him. He hates school and does not apply himself. He just doesn't care about the consequences of failing...he just doesn't get it.

What grade is your son in?

j

"In the Midst of Difficulty lies Opportunity" Albert Einstein

Success is not measured by one's position but by the obstacles one has overcome to obtain that position

From: joy O. <joy_zzz_94@...> Sent: Wed, April 13, 2011 7:11:13 PMSubject: Re: ( ) New member here!

Thank you so much for the helpful links!! Funny, all I have found are groups for the younger kids. Joy

From: SoCalVal <socalval@...> Sent: Tue, April 12, 2011 11:00:51 PMSubject: Re: ( ) New member here!

Here is a link to ASA of San Diego http://www.sd-autism.org/ Look around the site for a lot of helpful resources and support groups. I seem to always find stuff for older kids/teens but never for the little ones like my son's age.

Also here is one I just happened to come across today: http://respectrum.org/news-updates/rethink-aspergers-updates/

Welcome to CA. There seems to be a lot of resources but you really have to dig or get hooked up with a really good Dr that knows the ASA community and resources. We've lived here 3 years and unfortunately I'm still "digger".

( ) New member here!

Hi, All!

My name is Joy and my son who is 17yrs. old has high functioning autism. We just moved to Carlsbad, CA and am looking for parent support groups, and, an activity group that meets together so my son can make friends. I am having the hardest time right now because he is a TEENAGER with an attitude! And he is depressed because he has no friends because he is addicted to Xbox. Can anyone here offer any advice??? Thanks so much.

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.5.449 / Virus Database: 271.1.1/3569 - Release Date: 04/12/11 18:35:00

[Guest guest]

Joy,

My son has had a few girlfriends but they don't last. He has said some inappropriate things on Facebook and now is not allowed on it. He has about 3 really close friends...no make it 4. I am told he is very social in school...but all the drama going on with the girls has gotten him into trouble. They began spreading rumors that he abused his girlfriend when all they were doing was fooling around wrestling and he flipped her onto the couch. The girls in 8th and 9th grade act and dress like they are 18 years old ...they are teasers....and my son doens't get all the social cues. Right now he no longer goes to the lunch room...he never ate anyways...the drama is too much. So,now he goes to his old casemanagers room and gets to listen to his ipod and take a nap. His math class is split by lunch...he has 45 min. of math, lunch and then 45 more min. of

math. He came back from lunch one time so fustrated and angry that when the teacher tried to get them all to settle down ...he said under his breath...shut the Fxxk up. UGH! But, at least the school seems to understand. He got lunch detention and then had to apologize to the teacher.

My son won't join anything at school. He can't run because of his knees and he is awkward. The other clubs he says are for nerds. He is in band but this year he has been focused on it and forgets to go to lessons. I don't think he likes the lessons so he just doesn't go.

I have to keep on top of my son too. He forgets things and loses things. So far he has been getting 87's in Algebra, 83 or so in English and in Earth Science a 87. I basically don't help him...he is doing the work on his own. He does fail the vocab tests because he doesn't study at all for them. If he really applied himself he would get in the 90's but he doesn't care.

j

"In the Midst of Difficulty lies Opportunity" Albert Einstein

Success is not measured by one's position but by the obstacles one has overcome to obtain that position

From: joy O. <joy_zzz_94@...> Sent: Thu, April 14, 2011 11:11:25 AMSubject: Re: ( ) New member here!

Hi, there!

Sounds like our sons are very much alike. He refuses to go to groups offerred at HS because he doesn't want to be associated with teens with "disabilities." He is forced to go to school clubs, but says that he doesn't have much in common with them (he also doesn't participate enough to really find out!) My son want to be on the Track team, only because it's Co-ed. He'd give his right arm to have a girlfriend!

My son is okay with school, but forgets to turn in homework, loses important notes, but umbelievable passes tests without rmembering to study. He is on meds for ADD, but he is still very disorganized. Also, my son says that he only has a "little bit of Autism." Sometimes I feel like I am going crazy! He is a sophmore now, and will be 17 in 2 months. joy

From: rushen janice <jrushen@...> Sent: Wed, April 13, 2011 11:06:51 PMSubject: Re: ( ) New member here!

Joy,

My son is 15....a little addicted to Xbox, has a few friends but is angry and depressed. My son will not participate in any group and refuses wrap around services. Would your son go to groups? My son says he doesn't have AS ...he does realize he has ADHD though.

My son has all the teen symptoms...attitude, lazy, doesn't want me involved, etc. But I have to be because he has been inappropriate at times. My son is in 9th grade and is interested in girls and wants a girlfriend. Friends come first to him. He hates school and does not apply himself. He just doesn't care about the consequences of failing...he just doesn't get it.

What grade is your son in?

j

"In the Midst of Difficulty lies Opportunity" Albert Einstein

Success is not measured by one's position but by the obstacles one has overcome to obtain that position

From: joy O. <joy_zzz_94@...> Sent: Wed, April 13, 2011 7:11:13 PMSubject: Re: ( ) New member here!

Thank you so much for the helpful links!! Funny, all I have found are groups for the younger kids. Joy

From: SoCalVal <socalval@...> Sent: Tue, April 12, 2011 11:00:51 PMSubject: Re: ( ) New member here!

Here is a link to ASA of San Diego http://www.sd-autism.org/ Look around the site for a lot of helpful resources and support groups. I seem to always find stuff for older kids/teens but never for the little ones like my son's age.

Also here is one I just happened to come across today: http://respectrum.org/news-updates/rethink-aspergers-updates/

Welcome to CA. There seems to be a lot of resources but you really have to dig or get hooked up with a really good Dr that knows the ASA community and resources. We've lived here 3 years and unfortunately I'm still "digger".

( ) New member here!

Hi, All!

My name is Joy and my son who is 17yrs. old has high functioning autism. We just moved to Carlsbad, CA and am looking for parent support groups, and, an activity group that meets together so my son can make friends. I am having the hardest time right now because he is a TEENAGER with an attitude! And he is depressed because he has no friends because he is addicted to Xbox. Can anyone here offer any advice??? Thanks so much.

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.5.449 / Virus Database: 271.1.1/3569 - Release Date: 04/12/11 18:35:00