Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 > Hi. Along the same lines as the NDSS conference... Is anyone going to the > NDSC conference? I live 2 hrs away from San Diego and left the reservations > to late for NDSS so I missed out... but I am thinking about going to NDSC... > Please let me know if anyone from this group is going... and I hope to be there! We are still waiting to make sure he can get it off work and to firm up plans for the kids, but... Hope to see you there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 We hope to attend. Kelli, Joe and Austin > >--- : > > Hi. Along the same lines as the NDSS conference... Is anyone going >to the > > NDSC conference? > > Please let me know if anyone from this group is >going... > > and I hope to be there! We are still waiting to make sure he >can get it off work and to firm up plans for the kids, but... > >Hope to see you there! > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Yes, We are. Just put in our registration this week. Have had hotel reservations for awhile. We'll have to figure out a way to recognize members of the list. This is our first one. Nicky (12 y.o) is going along, so we'll see how the weekend goes. My hubby is also going, so we figure if nothing else we can take turns sitting at the pool with Nick, and attending the conference. Nick is also pretty good about sitting through meetings, as long as it's not all day, so we can both attend some of the sessions. Is your whole family attending? a mom of 3, including Nicky, 12 y/o, DS, Hirschsprungs NDSC > HI, > > Anyone going to the NDSC convention in Philly in August? > > mom to Bridget 10 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Yes, We are. Just put in our registration this week. Have had hotel reservations for awhile. We'll have to figure out a way to recognize members of the list. This is our first one. Nicky (12 y.o) is going along, so we'll see how the weekend goes. My hubby is also going, so we figure if nothing else we can take turns sitting at the pool with Nick, and attending the conference. Nick is also pretty good about sitting through meetings, as long as it's not all day, so we can both attend some of the sessions. Is your whole family attending? a mom of 3, including Nicky, 12 y/o, DS, Hirschsprungs NDSC > HI, > > Anyone going to the NDSC convention in Philly in August? > > mom to Bridget 10 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Hi, When is the conference again? I was seriously considering coming for just the day on saturday if that is an option. a, if you can send me the contact info, just one more time, id appreciate it! Thanks, ~ Mom to 12 DS and Diabetes Type 1 and 9 NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Hi , The conference is August 22,23 and 24 at the Mark Hotel in Philly. Here is the link for the National Down Syndrome Congress website: http://www.ndsccenter.org/newsAndEvents/convention03/convention.html It looks like the registration on the website is just for the whole convention. I believe there is phone numbers where you can call for info listed. I'd give them a call to see if there is a one day rate. Hope to see you there. a mom of 3, including Nicky, 12 y/o, DS, Hirschsprungs Re: NDSC > Hi, > When is the conference again? I was seriously considering coming for just > the day on saturday if that is an option. a, if you can send me the > contact info, just one more time, id appreciate it! > > Thanks, > > ~ Mom to 12 DS and Diabetes Type 1 and 9 NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 Hi ! I am a regular reader here but haven't posted since my daughter was a baby. I am planning to go to the convention....not sure yet what sessions I will be able to attend. My husband is unable to get away for the Friday sessions, so I will have to see. I would love to meet up with other list members who will be there! (I won't be staying overnight in any case as I am nearby in South Jersey.) Kathi Mom to -17, -14, and Lizzy-4 w/Ds > HI, > > Anyone going to the NDSC convention in Philly in August? > > mom to Bridget 10 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 UGH, I really did want to go, but my son is having his tonsils out on aug 22- too bad its soo close this year and I would have loved to hook up with some people from the list! maybe another time when its nearby on the east coast! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2009 Report Share Posted March 28, 2009 .. -----Inline Attachment Follows----- March 20, 2009 2011 Leadership Conference: Key Points Dear Community Leaders, To further our common cause - promotion of equal rights and opportunities for people with Down syndrome and creation of a national climate in which all people recognize and embrace the value and dignity of people with Down syndrome - the NDSC Board of Directors submits the following: National Down Syndrome Congress First, allow us to state who we are. We are you!! Before we began our work with the NDSC, we were engaged with our local organizations. Most of us remain deeply involved. The majority of NDSC directors are affiliate executive directors or leaders, Buddy Walk organizers, teen group organizers, parent support group facilitators and so on. We are, however, part of something larger - the national and, increasingly international, movement dedicated to enhancing the lives of people with Down syndrome. We receive NO compensation to travel to the two board meetings annually. We are volunteers who work hard, locally and nationally, for our families and children. We are "you" and have embarked on a journey over the past three years to revamp and reinvigorate the NDSC to give affiliates what they need. We have made extraordinary strides in a short time. We expanded our center staff, increased the hours for our DC-based political affairs consultant, launched the first national awareness campaign created for affiliates, increased minority membership, responded to national and international issues with a unified voice, and created best-practices for physicians. It is just a beginning - let us know what else you would like from the NDSC. As stated by our Executive Director at the recent AIA conference, we are in this together. By working together in a sincere spirit of collaboration, we can attain a shared vision. We hear with frequency people refer to the "nationals" as if the two organizations to which they refer are alike. That is not true. The NDSC is a membership organization in which all have an equal vote. We are about parents and their children because we are parents, their children and the professionals who support us. For four decades we have been single minded in dedication to enhancing the lives of people with Down syndrome. The NDSC is focused on positive communications with all audiences in order to unify and further our Down syndrome movement. We will not engage in conversations that disparage and remain committed to constructive dialogue recognizing needs, obstacles and struggles, while seeking effective problem solving and action steps. Important work remains to be done and we are moving toward its completion. Won't you join us? A National 2011 Leadership Conference - for and by Affiliates Much has been accomplished in three years through Affiliates In Action (AIA) and we recognize that information sharing and collaboration is essential to all of our organizations. The Down Syndrome Guild of Greater Kansas City has done a fine job addressing those needs with AIA and encouraging its evolving extensions. To their credit, it has grown to the point that no one group should have to bear the ongoing responsibility of producing the event. A few years ago, the NDSC Executive Director was asked if the Congress might develop and launch what became AIA. The answer at that time was appropriate: the NDSC did not then have the capacity to take it on. Now, a reinvigorated NDSC, with our sharp focus on affiliated members' needs, will develop, manage and promote a 2011 conference for community leaders. We will take a hard look at adding this to our national efforts and determine if it can be done within existing resources, or by adding resources as appropriate. We will work with the members of our Partnership Alliance and any other community leaders who wish to participate, including all who served on the AIA planning committee. The details of the conference will be determined in an inclusive, transparent manner. All will have an equal voice, regardless of the size of the affiliate. The members of the Partnership Alliance are finalizing a governance structure that will afford local and regional organizations a truly representative voice in the NDSC and on national Down syndrome issues. The NDSC is amending its bylaws to expand the board of directors and reserve two directorships for members nominated by their Partnership Alliance peers. That will become reality at our 2009 annual general meeting in Sacramento. Involvement of the Partnership Alliance, other affiliate leaders and the junction between the Alliance and the NDSC will assure that the leadership conference will enjoy deep community support, address crucial needs and have the backing of NDSC officers, directors and staff. The NDSC is crafting a job description for an Affiliate Relations position tasked with handling all aspects of affiliate relations, and resources allowing, will move to add this position to our staffing. We have 37 years of experience producing successful conventions. Our convention coordinator will take on the planning of the conference and our new full-time development director is prepared to develop supplemental funding for the event. The NDSC, however, can no more assume sole responsibility for conducting an annual leadership conference than could the Kansas City Guild alone shoulder the burden of a growing AIA event. Given our long experience with large-scale events, we have a clear understanding of the costs in both financial and human resources required to hold the conference. After we have discussed the scope and objectives of the 2011 conference with community leaders, we will offer a proposal on cost sharing for consideration by our entire community. Our hope is that the cost to affiliates will be nominal and not much more than travel and lodging costs to attend the conference. We will not undertake this effort to generate revenue. Instead, we will conduct the conference to break even financially as we do for the NDSC convention. Finally, by assuming this role and working in a positive, transparent, and collaborative manner with our affiliates, we can make important strides toward uniting rather than further dividing the Down syndrome community. Please join us in this effort to unify the national Down syndrome movement and let us hear from you with a reply to the President of the NDSC, or any other NDSC Board Officer. Please reply with your comments by March 30, 2009 directly to info@.... Sincerely and on behalf of the National Down Syndrome Congress Board of Directors,F. President National Down Syndrome Congress 1370 Center Drive Suite 102 Atlanta, Georgia 30338 2011 National Leadership Conference Key Points ChallengeThere is need for organizations serving people with Down syndrome to meet, share ideas, network and acquire management and administrative skills and knowledge. No one local or regional organization, however, should bear the responsibility for such an event.Proposal Therefore, the National Down Syndrome Congress, in collaboration with community leaders, will develop, manage and promote a 2011 National Leadership Conference. We will work with the NDSC Partnership Alliance and all community leaders who wish to participate, including the members of the AIA planning committee. Involvement of the Partnership Alliance, other affiliate leaders and the junction between the Alliance and the NDSC will assure deep support for a conference that addresses crucial needs and has the full backing of the NDSC. Most importantly, we will respond to affiliates and demonstrate national leadership on the critical challenge of unifying our movement. Capabilities To ensure an effective conference, the NDSC offers: 37 years of experience producing successful conventions. The services of a professional event planner, the NDSC convention coordinator, to plan and manage the conference. The skills of the NDSC development director to secure sponsorships and supplemental funding. Cost Sharing As the primary beneficiaries of the conference will be local and regional Down syndrome organizations, a fair cost-sharing proposition must be agreed upon by participants. Based on the NDSC's experience with large-scale events, we have a clear understanding of the resources required by this conference. After discussing the scope and objectives of the 2011 conference with community leaders, the NDSC will frame a cost-sharing proposal for community consideration. Our objective will be to conduct the conference to break-even financially, like the national convention. Your thoughts? Please reply by March 30, 2009 directly to F. , NDSC President at info@... This email was sent to info@... by ndsc@.... Update Profile/Email Address | Instant removal with SafeUnsubscribeâ„¢ | Privacy Policy. Email Marketing by National Down Syndrome Congress | 1370 Center Drive | Suite 102 | Atla Quote Link to comment Share on other sites More sharing options...
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