Re: Just found the group and looking for advice

[Guest guest]

Have you tried him in OT for sensory issues and deep pressure issues?. Sometimes weighted blankets and brushing help. Ask the doctor for a referral for OT then call around to see if they have a sensory specialist.

Just a few thoughts.

Sandy

In a message dated 12/21/2010 11:55:54 A.M. Eastern Standard Time, judyreemoore@... writes:

HiMy son was just diagnoised 8 weeks ago!! and I am trying to get every bit of help, support and information I can. He is 6 1/2, caring, loving and so very smart little boy. BUT some days he is like a stranger with his moods. We have and IEP for help with reading, math, social skills and writing...and with in 5 days he went up a level in reading and is grasping skills so fast. We also had him checked for sensory issues and get that report back tomorrow and I hope they can give us some help on dealing with his moods. I have learned to ask him "what is it like to by Shane" and he can tell me he is frustrated or mad. I am trying my best to help him...but now my daughter is acting out seeing that he doesnt get introuble to for things she thinks are inappropriate (she is 5). We are waiting to get the paper work for the developmental MD but that is 10 month wait!! so I am looking for any info to try and keep educating myself.Sorry to ramble but last night I had to wrap him in a blanket like when he was a baby and rock him to go to sleep....I knew he was just so over stimulated and frustrated I wanted to help it go away ....but then I was thinking (may sound like a crazy lady)....am I going to be doing this when he is like 15!! and my heart was breaking cause I know he isnt mean, nasty or a bad kid!!! He just doesnt know how to deal!!so any advice would be greatly appriciatedthanksJudy

[Guest guest]

Oh, Judy. Hugs to you.

Just my experience,,,,,,,,,but I doubt you'll be rocking him to sleep in a blanket at 15. I feel your compassion and love for him.

My son is 14 now..........and we are going through different challenges than you, right now, because of the age-difference.

But, I wish someone had told me to calm down when my son was younger. He he.

I know - easier said than done. When your child is 1st diagnosed and actually, when they;re going through a rough patch,,,,well,,,,,,it seems soooo overwhelming. For everyone.

Take a deep breath and know that you are doing the best job for your son that hou can and need to do. YOU may not always know what the best course should be,,,,,,,,but when he is sad and upset......you're the gal!!!!

Rock him whenever he needs it. Heck - whenever YOU need it and be glad that he wants to have contact. Many don't. Mine has always liked to be near us but on HIS terms. he he. When little and before his dx, if we or anyone, asked for a hug or kiss., he'd bend his forhead to us to ALLOW us to kiss it. he he.

Anywho......you're doing the best job and being an amazing mom.

Oh - and I wanted to address where you said your 5 yr old daughter is getting mad because he gets "treated differently". When my son was dx'd, we had a daughter who was 1 year younger adn over the years, we've just let her know, like we have him, that he has AS and that is why he does........such and such. They've known it all. She also knows that that's why he's treated differently. Sigh......I've noticed more anger from her as they've gotten older. Maybe it's hormones,,,,but she doesn't just accept his actions anymore. Oh well...........

My advice would be that you keep her informed as much as her age will allow and suck it up!!! He he. Gotta remember that they are siblings, too. My "typical" kids fight just as badly as the once with AS and other issues.

Hugs.

Robin

PEOPLE MAY NOT REMEMBER EXACTLY

WHAT YOU DID OR WHAT YOU SAID,

BUT THEY WILL ALWAYS REMEMBER

HOW YOU MADE THEM FEEL

From: Judith <judyreemoore@...>Subject: ( ) Just found the group and looking for advice Date: Tuesday, December 21, 2010, 8:05 AM

HiMy son was just diagnoised 8 weeks ago!! and I am trying to get every bit of help, support and information I can. He is 6 1/2, caring, loving and so very smart little boy. BUT some days he is like a stranger with his moods. We have and IEP for help with reading, math, social skills and writing...and with in 5 days he went up a level in reading and is grasping skills so fast. We also had him checked for sensory issues and get that report back tomorrow and I hope they can give us some help on dealing with his moods. I have learned to ask him "what is it like to by Shane" and he can tell me he is frustrated or mad. I am trying my best to help him...but now my daughter is acting out seeing that he doesnt get introuble to for things she thinks are inappropriate (she is 5). We are waiting to get the paper work for the developmental MD but that is 10 month wait!! so I am looking for any info to try and keep educating myself.Sorry to ramble

but last night I had to wrap him in a blanket like when he was a baby and rock him to go to sleep....I knew he was just so over stimulated and frustrated I wanted to help it go away ....but then I was thinking (may sound like a crazy lady)....am I going to be doing this when he is like 15!! and my heart was breaking cause I know he isnt mean, nasty or a bad kid!!! He just doesnt know how to deal!!so any advice would be greatly appriciatedthanksJudy