Overwhelmed

[Guest guest]

Todd,

Welcome! I feel your pain...literally! I'm a 37yo female.

Have you been to a Rheumatologist yet? I finally went to one and have

been taking Methotrexate shots weekly and Humira injections every

other week. I have had PA for 14 years. 3 days ago, my pain started

to go away. I'm so excited. I don't want to get my hopes up, but I

think the injections are finally starting to work. God willing! I

took all the pills, creams, etc. The injections are the only thing

that has worked for me. It may not work for you, but definitely worth

talking to a rheumy.

Hope this helps! Best of luck to you. Email me anytime if you wanna

chat!

Kari in Alaska

[Guest guest]

Todd, hang in there! Things should get better, although it can take

a few months. Are you in the U.S.? Are you seeing a

rheumatologist? The Celebrex is an anti-inflammatory which might

help the pain and swelling and sometimes can put the flare into

remission if it hasn't gotten too bad yet. But it sounds like you're

in pretty serious pain. You need to let the doctor know within a

month if the meds are not helping you significantly. They will need

to put you on one of the disease-modifying anti-rheumatic drugs which

can actually slow or stop the progression of this disease. If you

don't speak up it could longer than necessary.

best regards and welcome,

sherry z

[Guest guest]

Todd: from the list of drugs you provided, it appears that you are treating the

symptoms but not the disease. I don't know what you have but you likely need to

see a rheumatologist ASAP because you appear to have some signs of either RA. PA

or some other auto-immune disease. If so, you need medications that will halt

the progression of the disease and protect your joints - plus help tremendously

with pain. Pain killers do nothing but mask the damage that is likely being

done. Get the proper medical help as quickly as possible. You are far too

young to put your life on hold.

Joanna Hoelscher

[Guest guest]

Todd, it is overwhelming at first. I was in bed and thought my life was

over, too. I couldn't do anything that required hands or feet. There

are a lot of meds that help. I get Remicade infusions and take

methotrexate and folic acid, and I have my life back. I still have bad

days once in a while. I can always tell when the infusion date is

coming because the arthritis comes creeping back and my psoriasis acts

up. Stay positive and consider looking into the biologic meds if your

insurance will cover them. It will get better!

Tammie

[Guest guest]

Todd --

I can tell you that I understand and that I have a great deal of

empathy for how you are feeling right now, but I don't know that I can

tell you that it will necessarily get better. I still feel as if my

life has been ripped away from me. All the things I had planned to do.

The education that I have that I cannot use. The honors and everything

else I worked so hard for. Not of it is of any value now. It can't

stop the pain. It can't stop the degeneration of my bones or the

drying out of my skeletal system and discs that keep creating more and

more bone on bone pain. That's the bad news. The place I cannot wallow.

In contrast, I know that I am not alone. I think it has helped me a

lot to find the online support groups. I feel less isolated and less

alone. There is a community of people to ask questions so that you

know you can check out treatment options, etc. here and people will

respond and share their experiences.

I was where you are, just older. My daughter was diagnosed with a

similar, but different disabling disease at 23 and my partner was dx

with Rheumatoid Arthritis at 26. I initially felt fortunate not to

have been dx with RA, then learned that PA is really just as bad,

maybe worse in some ways and on some days, they are just different.

But I was dx with PA in fall 2000 and pushed ahead until I could no

more by June 2003. I had finished my education that I waited for until

all my children were grown and out of HS on their own or in college

themselves. Then came back the day after final graduation May 11?,

2002, to help my daughter who was very sick and we did not yet know

what was wrong. Figured I'd look for my dream job for the 2d half of

my life while getting her back on her feet, finding out what was wrong

with her and help with my granddaughter and d's business in the

meantime. Two years later, we knew she had Crohn's and I had done all

I could for her. Meanwhile, my body had crumbled w/no income to

support my supp regimen.

I am surprised looking at your druglist that you are not on any

sulfonomides, methotrexate, or biologics at all. Have they discussed

these options with you? Enbrel? Remicade? How bad is your psoriasis?

Because this is an autoimmune disease, the mult vitamin will hopefully

strengthen your system. The Omego 3 may not help the pain per se, but

it is something that should help parts of your body in ways that you

may never be able to physically see. It's an excellent supplement to

keep taking. You might also want to consider adding Magnesium Malate

by Source Natural; mega doses of Ester C (powder); Vit B complex; Move

Free, or some other glucosamin chondroitin; vitamin E; EmergiC (also

helpful w/energy and rebalancing your electrolytes). In the very

beginning, I controlled everything with supplements, vitamins, all

over the counter stuff. Another one that is really and good for your

immune system is Wellness Formula (could replace your multivitamin).

You could ask for provigil to be prescribed to wake you up if you

want. Have you applied for disability?

In addition, I also did daily gentle yoga routine with a DVD on back

strengthening. Now I understand that Somatic Yoga is good. And I made

certain that I got a good massage every week. If you have a good

health food store around, they can help you too. Heat -- just take a

hand towel or whatever size fits the area, wet it and ring it out,

then put it in the microwave to warm it up and the wrap it on your

hands or wherever it is hurting. I've also used parafin wax and that

was good too. But the hot moist towels feel sooo good on my neck, my

back -- although I also use a heating pad now!

Memory foam toppers on your bed and/or a memory foam mattress will be

your friend. My preference is Tempur-Pedic.

You mentioned your hands. Is there any chance of carpal tunnel or have

you been tested?

I may have just make your feelings of being overwhelmed worse, but if

not, please feel free to post again or to email me privately if you'd

like anymore information. I am happy to help in any way I can. Don't

ever be afraid to ask any of us for help or for information. That's

we're all here to do is to support and help one another. And

seriously, do NOT be afraid to be assertive with the doctors about

your treatment and pain relief.

Sincerely,

Cheryl M. (AK)

[Guest guest]

Hey Todd,

I know what you mean. I am 43 and feel like 93. From being a

cyclist, runner, golfer, and tennis player, my life came to a halt 3

years ago. But I'm learning to cope. I just tried climate therapy

and it work very well with me. It got me out of my depression and

got me 3 good weeks of relatively no pain.

I hope you feel better soon.

" " <raulalex67@...>

[Guest guest]

Todd,

I quit my secure but unrewarding job of 20 years in January 2007 and

enrolled in a 2-year masters degree program in a subject area meaningful to me.

I had just enough savings to get me through the two-year program while working

part-time, and 18 months of COBRA.

A moth before the first semester started, with 10 months left on my COBRA, I

developed PA. Fortunately I recognized my symptoms as a rheumatological

problem rather than an osteo problem, and was quickly diagnosed with PA. My

internet research taught me that the prognosis for PA is much better for people

who start treatment with DMARDs (disease-modifying anti-rheumatic drugs) within

1 year, before the inflammation has a chance to cause permanent damage, so I

was insistent in starting DMARDs promptly.

I started on 15 mgs weekly of methotrexate (MTX) by October. In November,

after the MTX alone had no impact and my symptoms continued to worsen, I upped

the MTX to 25 mgs and added bi-weekly injections of Humira. Note, these meds

didn't replace each other, they are taken in combination, because they are

understood to work better that way.

I made it through the first semester with the increasing pain, stiffness (and

resultant economic drain and depression), but in January, after the MTX-Humira

combination had no impact and my symptoms had me almost entirely confined to

the first floor of my house, I added 20 mgs Arava daily and cut my school

course load down so I only had to get to one building on campus and only one

day a week.

The MTX-Humira-Arava combination gave me some, but inadequate relief. I could

walk better, and was encouraged, but still had widespread pain and stiffness.

After 2 months had passed, I was panicked. My insurance coverage was running

out, as were my savings, since my part-time work had become quite minimal. I

was unable to collect short-term disability because I was essentially

unemployed.

In March, I substituted Remicade for the Humira. I noticed further

improvement within a few weeks, and now, using Remicade with MTX and Arava, 2

weeks before my COBRA expires, I am finally at a place where I think I can start

working again. My liver enzymes are up, but I am going to try to reduce the

MTX dosage to take care of that. Until I find a job, I will stay in school and

use the school's health insurance. I am selling my house to reduce my

monthly expenses.

I estimate that my symptoms are about 80% relieved. I have mostly hand and

lower back stiffness, with some tendinitis and intermittent pain in other

joints. I asked my rheumy whether this degree of relief is enough to indicate

that no permanent damage is being done and, with no guarantees of course, she

said it is close enough.

The only pain med I have taken throughout this process has been Celebrex, 2x

daily. I don't know how I would have gauged the relief I was getting from the

DMARDs if I had been more aggressively treating the pain -- I guess from visual

signs of inflammation and blood tests -- but my symptoms were always much were

than my inflammation suggested.

In any event, I am concerned that you haven't started DMARDs. If you treat

only the pain and allow your disease to progress and cause more and more

permanent damage, I fear you will need more and more pain meds.

Best of luck, fight for the right treatment.

Liz

P.S. I forgot to mention Folic acid but I have taken 1 mg daily since starting

MTX.

[Guest guest]

Hi Todd,

While you certainly need pain meds and anti-inflammatories, You

should ask your Rheumatologist about other protocols that will

actually address your disease instead of just the symptoms.

Options may include, Methotrexate, Enbrel, Humira.

I know how you must feel, although I was 40 when I started having

symptoms. But, I came around quickly and decided that I was going to

fight aggressively. I started on MTX and it gave me my life back.

6 years later... I am 99% normal.

Don't give up, don't give in. You can have a very normal life with PA.

Yes, I know I may have a few bumps ahead, but I'll deal with them as

they occur. You can too.

Stay Well,

[Guest guest]

Hi there,

Welcome to our group of candida warriors! Is your name le? We

like to go by first names here so that we can keep track of everyone.

It's hard to remember everyone by their email address.

The likely reason why your husband was cranky on the other candida

diet you tried is because of the toxins being released into the

system. This is quite common and could happen when he tries this

program as well. Feeling hungry is also normal in the beginning as

well as the body starts to convert from using glucose to fat as fuel.

It's more likely that he wasn't getting enough fat, not protein.

Tell your husband that there are no quick fixes. Taking pills will

only mask symptoms. The only way to heal the body of a candida

overgrowth is by building up the immune system so that the body can

'make' the candida turn back into a friendly entity in the body. This

is what Bee's program is all about, which is why she recommends the

diet and supplements. They all work to strengthen the immune system.

I, too, was a vegetarian for 16 years prior to starting this diet, so

I totally get the 'yuck factor'! Everyone on this board has heard

many times about my meat nightmares (yes, nightmares!) that I had

prior to going on Bee's program! I can laugh about it now, but I did

have quite a strong aversion to meat. I wanted to get well so badly

that I had to really psyche myself up for it. It took a lot of soul

searching and crying (!) but I finally got over it. I started this

program eating fish for every meal for a month and gradually worked my

way up to red meat. It took some time, but I haven't once regretted

it because I feel sooooo much better now.

It would be really great if you could split a cow or pig with someone,

but even if you can't afford to, eating 'regular' meat from the store

is still going to be beneficial to you. Don't let that stop you from

starting on Bee's program. Many of us can't get and/or afford organic

foods and we are still improving.

I, too, had an intense sugar addiction. For me, it was easier to go

cold turkey because after a few days the addiction was nearly gone

(unbelievable, I know!).

You will have to give up the baking. All of those flours and oatmeal

you mention are too high in carbs for candida sufferers. They will

also increase your cravings for sugar. You can gradually take those

out of your diet, too. Side dishes will be things like eggs and

cooked veggies with lots of butter! Quinoa isn't recommended until

after a person is completely healed, so you'll have to hold off on

that, too.

As for the supplements, it's really best to follow Bee's

recommendations. Prenatal supplements aren't very good anyway because

there is no way they can possibly cram all those good quality vitamins

into one pill at the right dosages. It's much better to have each of

them separate like Bee writes here:

http://www.healingnaturallybybee.com/articles/supp1.php

This program will also help your nursing baby. Here's a good article

about that:

http://www.healingnaturallybybee.com/articles/baby.php

If you haven't already read them, here are two good articles to get

you started on Bee's program:

-How to Successfully Overcome Candida

http://www.healingnaturallybybee.com/articles/intro2.php

-Curing Candida, How to Get Started

http://www.healingnaturallybybee.com/articles/intro1.php

For inspiration and motivation, check out the Success Stories written

by some of the members:

http://www.healingnaturallybybee.com/success/index.php

Good luck and if you have anymore questions after you've read, let us

know!

>

<snip>

I live in a rural area so unless I split a

> cow, and pig with someone (and buy a freezer), I don't know what to

> do about the natural meat - although I can buy hamburger that way,

> but it's $5.00/lb. According to Tyson, their chicken says it's ok,

> but is it really? I really want to get this over with (bad attitude

I know), I know I am addicted to sugar. Can you please guide me as

to how to proceed given a few of my issues. Do I quit sugar cold

turkey, and move on to C? I don't eat wheat, but I do bake with rice

flours, starches, bean flours, and have oatmeal. I was looking at

some of the recipes for main dishes, what are recommended side dishes?

Quinoa possibly? I take a prenatal vitamin, and chelated cal/mag/?

and a Carlson Fish Oil. Sorry, I am all over the place.

>

[Guest guest]

Robin, I've been out of the loop----sitting for grandchildren, so forgive me if

this has been recommended----------have you talked to the folks on the LDN

group?? They might be more in touch with what your experiencing.

God Bless,

Sara

[Guest guest]

Hey Robin,

I would say that a label of cfs or fms is not bogus. It is a statement that you

have a disease for which the cause is unknown - not that you are mentally ill.

LDN may be helpful in that you may sleep better,and you may feel better the next

day, as in more happy or calm. It may boost your immune system function. But it

is probably not going to be a CURE.

Let me encourage you to keep looking for the CAUSE(S) of your own illness. If I

were you I would certainly find a Lyme literate doctor even if you eventually

decide those infections are not your issue. Until you get some accurate testing

to rule things out you just can't know if you have severe infections. (You might

not even know after you get tested, but it would be better than struggling with

no clue.)

If you write me off list I may be able to suggest some doctors near you, or you

can go to the ILADS website and see if you can locate a doctor list there. Sorry

I don't have a list on this. I can also send you some excellent guidelines on

how to interpret the western blot test at IgeneX. (It was written by a Lyme

specialist MD, not me.)

a Carnes

pj7@...

>

> 3 weeks on LDN; I'm feeling very tired and having more pain. I can put up

with this because I know this is common and I'm trying to remain positive.

After reading many of the posts here, I've looked into the Pall protocol,

oxidative cell damage, PFO, ME, etc. etc., and the opinion of some that CFS/FM

are bogus diagnoses. How does one who is feeling so bad anyway sort this all

out? Maybe one of you who feels up to it can briefly explain how they are able

to weed through it all without feeling so overwhelmed.

>

> Many thanks to all of you who are a constant source of encouragement.

>

> Robin

>

[Guest guest]

Hi Robin: I am sorry to hear of any side reaactions to the LDN; a. LDN can cause

Insomnia b. LDN blocks opidos receptors;

this can cause a depressed mood; I just simply don't like the drug; a.

and no I have never used LDN so I do not speak form experience; (I PS What is

the Pall THERAPY ? is this apart from yasko's; ? Anne usa

>

> 3 weeks on LDN; I'm feeling very tired and having more pain. I can put up

with this because I know this is common and I'm trying to remain positive.

After reading many of the posts here, I've looked into the Pall protocol,

oxidative cell damage, PFO, ME, etc. etc., and the opinion of some that CFS/FM

are bogus diagnoses. How does one who is feeling so bad anyway sort this all

out? Maybe one of you who feels up to it can briefly explain how they are able

to weed through it all without feeling so overwhelmed.

>

> Many thanks to all of you who are a constant source of encouragement.

>

> Robin

>

[Guest guest]

I am not pushing LDN but I think an accurate summary of what it is supposed to

do might be helpful. For most who take 3 or 4 mg (compouned to this dose) at

bedtime (NOT 300MG for alcoholism)it improves sleep and blocks dopamine

receptors for 4 or 5 hours. Then when you wake up you have excess dopamine and

you get a mild high - you feel GOOD not depressed. It is supposed to improve

immune system function as well.

It works for me and a LOT of other patients with MS.

a Carnes

>

> Hi Robin: I am sorry to hear of any side reaactions to the LDN; a. LDN can

cause Insomnia b. LDN blocks opidos receptors;

> this can cause a depressed mood; I just simply don't like the drug; a.

>

> and no I have never used LDN so I do not speak form experience; (I PS What is

the Pall THERAPY ? is this apart from yasko's; ? Anne usa

> >

> > 3 weeks on LDN; I'm feeling very tired and having more pain. I can put up

with this because I know this is common and I'm trying to remain positive.

After reading many of the posts here, I've looked into the Pall protocol,

oxidative cell damage, PFO, ME, etc. etc., and the opinion of some that CFS/FM

are bogus diagnoses. How does one who is feeling so bad anyway sort this all

out? Maybe one of you who feels up to it can briefly explain how they are able

to weed through it all without feeling so overwhelmed.

> >

> > Many thanks to all of you who are a constant source of encouragement.

> >

> > Robin

> >

>

[Guest guest]

Hi robin

Yeah, it's a nightmare, isn't it? On top of bone-crushing fatigue & horrible

brain fog, you have to become your own doctor, researcher, advocate.

All I can do is tell you what has worked for me, and I have labs to show it is

working.

I have had CFS for close to 15 years. Sudden, viral onset. Steady state since

then. Primary problems are fatigue and cognitive dysfunction. Had to quit work

twice. Currently unemployed.

I saw conventional doctors from 98 to 2005. Got nowhere.

In Feb 2007, I started a programme to support methylation. I took the 5

supplements recommened by Rich Van Konynenburg. That restored my deep sleep

immediately. I had previously had 2 sleep studies showing alapha intrusion and a

lack of stage 3 & 4 sleep.

The only medication that gave me refreshing sleep was Xyrem, but I lost my mind

on Xyrem, & I also passed out cold in the bathroom when i was unwise enough to

make a bathroom trip between doses. Ultimately, Xyrem was not an option.

Fortunately for me, bioactive forms of folate, sam-e, Amy Yakso's multi, and b12

seemed to do the trick without any of the " rebound anxiety " associated with

Xyrem.

Over time, I transitioned to longer Yasko. Her website for reference is

www.ch3nutrigenomics.com.

I've been on some type of methylation support for 2 years now. My body temp has

increased from 94/95 to 98 and above. I get refreshing sleep. My periods

returned to normal. (This took a long time.)

Brain function was slow to come around. For background: I had 2

neuropsychological studies that documented many deficts.. poor concentration,

distractibility, slow processing, impaired memory etc.

I am much better, esp. with respect to concentration and memory. Still some way

to go though. I recently started on Valtrex for chronic EVB as shown by high IGG

titers.

I had an immediate improvement in cognitive function on Valtrex, which I am

assuming is due to its adenosine modulation effect. It has also caused some

profound fatigue..even at 250 mg a day. A very modest dose.

In short, definately on the path to recovery, but it's been a slow process and I

wonder if other modalities would help, but I kind of feel this is the foundation

for me.

However, I am also interested in OSR, & may experiment with other forms of B12.

Labs: I have labs from Vitamin Diagnoistics showing a methylation cycle block.

I have labs from Acumen showing dysfunctional mitochondria. Both labs show low

glutathione. It's really tuff to try and get glutathione up .. at least in my

case.

After 2 years on methylation support, I feel I am not running an energy deficit

as I did for years and years, but am making modest amounts of energy. The Acumen

labs bear this out. I have posted them over at the CFS-yasko group in the

files section in Louella's test results folder.

The Vitamin Diagnostics panel & the acumen labs are really the only labs in

years of running labs that showed up abnormal, or gave me any actionable

intelligence.

I'm still a work in progress, but I was in really bad shape 2 years ago. Now I'm

somewhat functional.

HTH. More info @ cfs_yasko group & yasko's site.

Cheers

L.

>

> 3 weeks on LDN; I'm feeling very tired and having more pain. I can put up

with this because I know this is common and I'm trying to remain positive.

After reading many of the posts here, I've looked into the Pall protocol,

oxidative cell damage, PFO, ME, etc. etc., and the opinion of some that CFS/FM

are bogus diagnoses. How does one who is feeling so bad anyway sort this all

out? Maybe one of you who feels up to it can briefly explain how they are able

to weed through it all without feeling so overwhelmed.

>

> Many thanks to all of you who are a constant source of encouragement.

>

> Robin

>

[Guest guest]

Thanks to everyone who replied to my post. I got something from every reply

given. It helps to hear that others feel the same way. Thank goodness for all

of you. For what it's worth, I've decided to go on a strict vegan diet after

reading " The China Study " . My doctor has told me from the beginning that it

would definitely help my CFS/FM. Vegan and gluten free as well. It wont be

easy at first, but I'm willing to do anything. Any thoughts on this?

Robin

> >

> > 3 weeks on LDN; I'm feeling very tired and having more pain. I can put up

with this because I know this is common and I'm trying to remain positive.

After reading many of the posts here, I've looked into the Pall protocol,

oxidative cell damage, PFO, ME, etc. etc., and the opinion of some that CFS/FM

are bogus diagnoses. How does one who is feeling so bad anyway sort this all

out? Maybe one of you who feels up to it can briefly explain how they are able

to weed through it all without feeling so overwhelmed.

> >

> > Many thanks to all of you who are a constant source of encouragement.

> >

> > Robin

> >

>

[Guest guest]

I don't think it would. Animal protein and zinc is needed for adrenal health.

vegan diet worsens my condition.

Cindi

Re: overwhelmed

Thanks to everyone who replied to my post. I got something from every reply

given. It helps to hear that others feel the same way. Thank goodness for all

of you. For what it's worth, I've decided to go on a strict vegan diet after

reading " The China Study " . My doctor has told me from the beginning that it

would definitely help my CFS/FM. Vegan and gluten free as well. It wont be

easy at first, but I'm willing to do anything. Any thoughts on this?

[Guest guest]

I never felt so well in 50 years as I felt when in China in 2002. Most of

the time was spent at high altitude (3500 to 5000 metres) which I found

beneficial. However, it was the food that really impressed me. We ate best

in small ethnic, hole-in-the wall cafes used by the local Chinese. Lots of

vegies, not much rice (not polite to serve too much peasant food to honoured

guests) and not much meat. It was by no means vegetarian or even less vegan,

a fair quantity of eggs, not much fish (long way from the sea or coastal

freshwater fisheries). On this regime of eating as much as I could (and

enjoying everything, including vegetables I , as a botanist, could not

identify) I lost weight and felt wonderful. My suspicions are that the near

total absence of dairy products, the low level of wheat products and the

enormous diversity of vegetables contributed greatly.

R

Re: overwhelmed

> Thanks to everyone who replied to my post. I got something from every

> reply given. It helps to hear that others feel the same way. Thank

> goodness for all of you. For what it's worth, I've decided to go on a

> strict vegan diet after reading " The China Study " . My doctor has told me

> from the beginning that it would definitely help my CFS/FM. Vegan and

> gluten free as well. It wont be easy at first, but I'm willing to do

> anything. Any thoughts on this?

>

> Robin

>> >

>> > 3 weeks on LDN; I'm feeling very tired and having more pain. I can put

>> > up with this because I know this is common and I'm trying to remain

>> > positive. After reading many of the posts here, I've looked into the

>> > Pall protocol, oxidative cell damage, PFO, ME, etc. etc., and the

>> > opinion of some that CFS/FM are bogus diagnoses. How does one who is

>> > feeling so bad anyway sort this all out? Maybe one of you who feels up

>> > to it can briefly explain how they are able to weed through it all

>> > without feeling so overwhelmed.

>> >

>> > Many thanks to all of you who are a constant source of encouragement.

>> >

>> > Robin

>> >

>>

>

>

>

>

> ------------------------------------

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

[Guest guest]

Hi there,

What's your name? We like to go by first names here.

> I do not want to 'push my body' but, please know I am also feeling very

excited about curing candida. Q: How do I measure 20%protein to 60% fat? Also in

addition to adding the coconut oil(which I have not >purchased yet),Q: what

supplements do I need?

I'm glad you're excited about curing your candida. You don't have to push

yourself, you can take things as slow as you'd like in order to fully

incorporate all the steps.

Have you calculated your food ratios? Here's how you do it:

http://www.healingnaturallybybee.com/articles/foods8.php

The supplements are thoroughly discussed in Bee's main Candida article. You

received it when you joined the group and you can also find it here:

http://www.healingnaturallybybee.com/articles/intro2.php

A list of the supplements is here:

http://www.healingnaturallybybee.com/articles/supp1.php

and here's a handy chart:

http://www.healingnaturallybybee.com/articles/supp7.php

> SO far I have eliminated all but one sugar iand that is my coffemate creamer

--- I know how bad it is for me!!! Today is my last day!!! I need to grieve. I

LOVE my coffee and feel missing it or >drinkng it black will become a problem

for me.

Swiss water processed decaf coffee is allowed and some folks love the fake cream

recipe. You can find the fake cream and many other recipes on Bee's website.

Just click the recipe link in the left menu.

Here's a direct link to the fake cream:

http://www.healingnaturallybybee.com/recipes/recipe169.php

> I am off of grains and dairy! I will miss fruit! Sugar cravings are very hard

and the feeling of being deprived. HELP!

>

Good for you for eliminating grains and dairy. This is just a new way of

thinking about food and eating and you really don't have to feel deprived. Here

are some ways to help ease cravings:

http://www.healingnaturallybybee.com/articles/help3.php

and

http://www.healingnaturallybybee.com/articles/help5.php

all the best,

Jackie

(group moderator)

[Guest guest]

My name is Joyce! Thank you Jackie. I am new at this and appreciate the

suggestions and help navigating Bee's site!!

Sent via BlackBerry from T-Mobile

[Guest guest]

Hi Jackie,

I thought swiss water processed decaf coffee is considered a cheat on the

program? I thought even though it's a better choice if someone is going to drink

coffee it still isn't allowed on the program, right? I wouldn't mind having a

cup every couple weeks or so but don't want to if it's considered a cheat. Can

you clarify this?

Thanks!

________________________________

Swiss water processed decaf coffee is allowed and some folks love the fake cream

recipe.

all the best,

Jackie

(group moderator)

[Guest guest]

I am just frustrated!!! My 8 yr son was dx July 2010 with HFA. The school refused to qualify him under Autism but did qualify him under Other Health Impairment by only focusing on his prior borderline diagnosis of ADHD, which was ruled out by the HFA diagnosis.

Today, I met with the psychologist at San s Regional Center (a community-based, private nonprofit corporation that is funded by the State of California to serve people with developmental disabilities as required by the Lanterman Developmental Disabilities Act), who disqualified him from receiving services because she disagrees with the HFA dx and feels he likely meets diagnostic criteria for Pervasive Developmental Disorder NOS.

I feel so overwhelmed... tears. It's so hard...

It's comforting to know that others have traveled this road and are so willing to share their experience.

Thanks for allowing me to share.

Yemie

[Guest guest]

I don't understand why he would not qualify if she doesn't agree with the DC of

HFA but thinks he has PDD NOS. They are both developmental disabilities and

autism spectrum disorders and isn't that what the center is for??? Errr it just

makes you want to scream! I hope you can get a second opinion. Or go above her.

Is that a possibility?

Sent from my Verizon Wireless Phone

Yemeseratch Girma <yemieg@...> wrote:

> I am just frustrated!!! My 8 yr son was dx July 2010 with HFA.  The school

>refused to qualify him under Autism but did qualify him under Other Health

>Impairment by only focusing on his prior borderline diagnosis of ADHD, which

was

>ruled out by the HFA diagnosis.

>

>Today, I met with the psychologist at San s Regional Center (a

>community-based, private nonprofit corporation that is funded by the State of

>California to serve people with developmental disabilities as required by the

>Lanterman Developmental Disabilities Act),  who disqualified him from

receiving

>services because she disagrees with the HFA dx and feels he likely meets

>diagnostic criteria for Pervasive Developmental Disorder NOS. 

>

>

>I feel so overwhelmed... tears. It's so hard...

>

>It's comforting to know that others have traveled this road and are so willing

>to share their experience.

>

>

>Thanks for allowing me to share.

>Yemie

>

>

>

>

[Guest guest]

She said there is an appeal process, notice will be sent to me next week. I have t Wait and see what that involves.

Thanks for being there!!

From: "s_hansen34@..." <s_hansen34@...> Sent: Fri, March 4, 2011 5:16:43 PMSubject: Re: ( ) Overwhelmed

I don't understand why he would not qualify if she doesn't agree with the DC of HFA but thinks he has PDD NOS. They are both developmental disabilities and autism spectrum disorders and isn't that what the center is for??? Errr it just makes you want to scream! I hope you can get a second opinion. Or go above her. Is that a possibility?Sent from my Verizon Wireless Phone<yemieg@...> wrote:> I am just frustrated!!! My 8 yr son was dx July 2010 with HFA. The school >refused to qualify him under Autism but did qualify him under Other Health >Impairment by only focusing on his prior borderline diagnosis of ADHD, which was >ruled out by the HFA diagnosis.>>Today, I met with the psychologist at San s Regional Center (a >community-based, private nonprofit

corporation that is funded by the State of >California to serve people with developmental disabilities as required by the >Lanterman Developmental Disabilities Act), who disqualified him from receiving >services because she disagrees with the HFA dx and feels he likely meets >diagnostic criteria for Pervasive Developmental Disorder NOS. >>>I feel so overwhelmed... tears. It's so hard...>>It's comforting to know that others have traveled this road and are so willing >to share their experience. >>>Thanks for allowing me to share.>Yemie>>>>

[Guest guest]

Oh this is just the usual in California.  The Regional Center will only take severe appearing kids and typically their evals minimize autism tremendously.  You need a private autism eval at a reputable autism center like UCLA, Children's Health Council, etc.  People have not had as good of results at UCSF getting reports that will support their regional center admissions so I would likely steer clear of them.  It is a game. 

On Fri, Mar 4, 2011 at 4:32 PM, Yemeseratch Girma <yemieg@...> wrote:

 I am just frustrated!!! My 8 yr son was dx July 2010 with HFA.  The school refused to qualify him under Autism but did qualify him under Other Health Impairment by only focusing on his prior borderline diagnosis of ADHD, which was ruled out by the HFA diagnosis.

 

Today, I met with the psychologist at San s Regional Center (a community-based, private nonprofit corporation that is funded by the State of California to serve people with developmental disabilities as required by the Lanterman Developmental Disabilities Act),  who disqualified him from receiving services because she disagrees with the HFA dx and feels he likely meets diagnostic criteria for Pervasive Developmental Disorder NOS. 

 

I feel so overwhelmed... tears. It's so hard...

 

It's comforting to know that others have traveled this road and are so willing to share their experience.

 

Thanks for allowing me to share.

Yemie

 

[Guest guest]

I agree.

Pam

>

> > I am just frustrated!!! My 8 yr son was dx July 2010 with HFA. The school

> > refused to qualify him under Autism but did qualify him under Other Health

> > Impairment by only focusing on his prior borderline diagnosis of ADHD, which

> > was ruled out by the HFA diagnosis.

> >

> > Today, I met with the psychologist at San s Regional Center (a

> > community-based, private nonprofit corporation that is funded by the State

> > of California to serve people with developmental disabilities as required by

> > the Lanterman Developmental Disabilities Act), who disqualified him from

> > receiving services because she disagrees with the HFA dx and feels he likely

> > meets diagnostic criteria for Pervasive Developmental Disorder NOS.

> >

> > I feel so overwhelmed... tears. It's so hard...

> >

> > It's comforting to know that others have traveled this road and are so

> > willing to share their experience.

> >

> > Thanks for allowing me to share.

> > Yemie

> >

> >

> >

>