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RE: Digest Number 1265

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Hi and Barbara:

I am also from Canada! Originally from Toronto, past few years I have lived

in Waterloo.

I was diagnosed after I had a long period of flu like symptoms and blood

work showed elevated liver enzymes.

I went to see Dr. Stafford, Women's College, was in hospital for a few

weeks.

They had trouble pinpointing the actual type of liver disease.

Eventually I found and went to see a specialist at Mount Sinai, who told me

it was AIH, but that he specialized in different types of Hepatitis's, but

not mine.

He suggested staying w/ Dr. Stafford, who is a gastro.

She has been great with keeping my body in check, but has little patience

for all the side affects.

Her underlining tone is that I must be making up my symptoms and reactions,

as no one should have all my problems or any problems if their liver is

working properly.

I keeping going back to her as she saved my life when I was so very ill in

the very beginning, and I respect her for her medical talents.

She is also great at doing a biopsy. I didn't even know it was completed.

No kidding.

She just finds it very odd that the drugs can cause so many problems.

(Depression, brain fog, excessive weight gain, lack of concentration, loss

of hair. All seems a mystery to her).

Please whoever you see, make sure they know all your reactions to drugs,

flu-shots, anti-depressants, etc.

You might think of keeping a journal, over the years many symptoms can

reappear while you try changing your meds.

The one thing you need in your care giver is for them to be your advocate,

if they aren't, you may run into problems when they are asked to file

reports and " opinions " .

Even though I have said all this, I would not change doctors, as I believe

she is giving me the best medical care I could get anywhere.

I rely on me GP for help with all the other issues that arise from the

meds.She has known me for over 15 years which comes in very handy.

When tests are required, I have them taken in Toronto.

There is one blood test that I must have done at McMaster. It is an

Anti -LKM antibodies test. It is a simple serum sample but the tests are

only conducted in a few hospitals in Toronto. Western was one of them but

now only does the test on in-patients.

My experience is that there are not many of us living in SW Ontario. I have

known of Hutchinson for a few years, she had been seeing Dr.

Heathcote, you may want to ask her how her appointments went with the

Doctor.

The last I heard, she was trying Budenisode, as a an alternative. I did not

hear about the results.

There are a few other people, who were active on this list, with AIH,

Madonna in Nfld., and Lorne Cochrane who lives in BC. Both are on full

disability and have had AIH for about 6 years.

It would be nice to find out if there are more individuals who are out there

who could benefit from this group.

I never post much, just lurk. But I could not resist when I saw TWO

Canadians on at the same time.

How did you find out that you had AIH, where are you having your biopsy

done?

Are you on any meds now?

Take Care,

,

[ ] Digest Number 1265

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  • 5 months later...
Guest guest

> Message: 15

> Date: Sat, 28 Apr 2001 18:50:44 EDT

> From: Bryarwoode@...

> Subject: Re: Re: Slept Well

>

>

> Geoff, I'm sending this to the rheumatic site because it was returned

from

> yur address.

>

> Bev

Grab a variety of flours, and NONE bleached. IOW, if you were to use

wheat flour, it would be whole wheat - not white. But in this case you

would use things like rye, amaranth, oat, quinoa, etc. Most health food

stores and some grocers stock variety of ground flours.

HTH

Regards, -----------------------

Geoff ** Usual Disclaimers **

-----------------------

How can you have hope?

Get under the blood of the Passover Lamb.

EXO 12:7-3 / MAR 14:24 / REV 12:11

http://www.healingyou.org/ Nonprofit: Herbs, Homeopathics & supp's.

http://www.800-800-cruise.com/index-aff.html Make money & travel!

http://www.800-800-cruise.com/ Over a MILLION travel deals!

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  • 5 months later...

>Billie has had weird food issues for practically as long as she's been

>eating food. Hers mostly consist of being extremely picky, no sauces, no

>foods mixed together (ie no casseroles) and she will eat the same half a

>dozen foods for months, then decide she doesn't like them any more and get

>stuck on a different handful of food choices. I never thought of it

>particularly as an OCD thing but reading back over what I've just written,

>now I'm beginning to wonder.

I'm the same way. I'll tend to eat the same thing, over and over, until I

wear it out, and then move on to something else. Texture is a huge part of

taste to me. For example, I'll eat a whole dill pickle, a sliced one where

the slices have ridges, or a pickle spear, but I won't eat a straight-cut

slice or one that has been ground into relish. I also tend to keep my food

" segregated " on the plate, though that's gotten better over time with meds.

I can't eat meat that isn't " homogenous " throughout - steak is fine, for

example, but ground beef, chicken-fried steak, or any other beef dish with a

modified texture makes me gag and/or throw up (literally). I get nauseated

even looking at meatloaf *G*.

Certain clothing textures will do the same to me.

On the other hand, I once ate fried chicken feet (bones and claws and all) -

you never know what OCD will allow and what it won't *G*.

-

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  • 6 months later...
Guest guest

Anthrax Vaccine Network, Inc.

P.O. Box 844 • Missoula, MT 59806

PH: 1-888-411-3200 • e-mail: contact@...

May 10, 2002

Greetings to everyone,

...and many apologies that it’s been so long since you heard from

us. A combination of illness, a family emergency (all that now happily

resolved), a lot of new business in, and an onslaught of the lovely W32

Klez Worm virus in our computer system delayed us quite a bit. So onward!

Tom Heemstra, whose book “Anthrax - a Deadly Shot in the Dark” is

hot off the press, will be featured on CSpan2 Book TV, three times this

weekend: at 9:15 p.m. Saturday, 9:55 a.m. Sunday, and 6:00 a.m.

Monday. All times are Eastern Standard - check your listings to confirm

local times, or go to http://www.booktv.org/schedule.

It’s incredible that Tom’s hour-long presentation and interview is

being run three different times, but we understand the good folks at CSpan2

thought the topic that important. Tom, who now flies for Delta Airlines,

is a former F-16 squadron commander whose investigation of the vaccine and

refusal to give it to the troops under his command resulted in his forced

retirement from the Air Force.

You can order the book from the Anthrax Vaccine Network (Tom is kindly

donating proceeds to the Network for those books we sell, so please

consider it!) - just send a check or money order to us for $14.95 + $ 2.00

shipping and handling - OR you can order it via online credit card purchase

from http://www.adscripts.com. Just check out the drop-down box listing

products for sale. The AdScripts site is completely secure for e-commerce

shopping. All proceeds from AdScripts will also go to the Anthrax Vaccine

Network.

It was also great to see Tom at the National Gulf War Resource

Center's annual convention in Atlanta last weekend, where his book

attracted a lot of interest. More on the conference below!

Braslow, a partner with Alan Milstein at Sherman,

Silverstein, Kohl, Rose & Podolksy Law Offices (New Jersey and

Pennsylvania) called in yesterday to say that the firm has now filed a

response to BioPort’s and Michigan’s motion to dismiss their lawsuit. You

can read about it on their web site at http://www.sskrplaw.com/vaccine.

To put some rumors to rest, this law firm has not taken cash up

front from plaintiffs in the case; they are working on a contingency basis,

and will be taking their fees from any judgements they are able to collect

from the defendants. Meantime, Mr. Braslow tells us that you can still

contact them and give them your information, and they will consider whether

or not they will continue to file more actions. Braslow can be

reached at dbraslow@....

Notes on other lawsuits: There will be a hearing on June 1 to

determine the fate of the lawsuit which Major Russ Dingle and Major Tom

Rempfer of the Connecticut Air National Guard have brought against

BioPort. They filed this lawsuit pro se, which means without legal

representation - and are still looking for an attorney to take on the

case. They also need legal help to challenge the lack of action on the

FDA’s part in response to the Citizen Petition (the FDA did respond within

the legal time period, but merely said it needed more time to

respond.). If any of you can help Russ and Buzz, please contact

redingle@... or trempfer@..., and thanks.

is also looking for legal representation for her son,

ph . As most of you know, ph has been plagues with over 100

grand mal seizures since taking the anthrax vaccine, and although he

sometimes enjoys a reprieve of a few weeks between seizures, they just

haven’t gone away. Joe’s health continues to deteriorate badly; his memory

loss is now severe. The VA has decided to reduce Joe’s benefits from 30% to

10% - and you’ll love this - that decision withstood a recent appeal

because the VA cannot find Joe’s paperwork, nor even a file on him, thus

leading them to conclude he no longer needed medical assistance.

reports as of this morning that Texas Senator Kay Hutchison has a

directive from Washington to check into the case, and Congressman Ron

has worked to help, but she does not have specific information on

progress. If you can provide any assistance or referrals for legal help,

please call at

(612) 258-9165 or e-mail her at TmominTx@... Thanks once again.

A new study of 900 Gulf War vets in Ohio finds the anthrax vaccine

associated with a

health decline. Our thanks to for providing the following:

" Those veterans who received anthrax vaccine reported more

reactions to vaccines than those who did not receive anthrax vaccine. "

(cover page)

" Declines in longterm subjective health were associated with receipt of

anthrax vaccine by Gulf War veterans but not for those who did not deploy

to the Gulf, although few of the latter received anthrax vaccine. " (cover page)

" It is recommended that servicemembers who experience severe reactions to

anthrax vaccine be medically reevaluated before receiving further anthrax

vaccine and that careful follow-ups be conducted of those receiving the

vaccine currently, in accordance with Nass' 1999 recommendations. " (page 640)

" While the U.S. military maintains that " There have been no longterm side

effects from the vaccine " (footnote, p.8), our research and Unwin, et al's

(footnote 36) suggest to the contrary that anthrax vaccination might have

direct and indirect longterm side effects on health, most notably for those

individuals who have the most severe reactions to the vaccinations

initially. " (page 651)

' " Armed with such research today and pending better information on the

longterm safety of the anthrax vaccine, we cannot but recommend that

extreme caution be used with respect to the severe punishment of those

servicemembers who have reservations about the safety of the anthrax

vaccination for their longterm health. " (page 651)

Study just published in Psychological Reports, 2002, 90, pp. 639653

For a copy of this study, please contact: email: Schumm@...

Dr. W.R. Schumm

School of Family Studies and Human Services - Hall

Kansas State University

1700 Ave

Manhattan, KS 665061403

Your faithful scribe Kathy Hubbell filled in for Sonnie Bates at

the National Gulf War

Resource Center’s annual conference in Atlanta last week, and gave a

presentation on the anthrax vaccine, as did Redmond Handy from N.O.

A.B.U.S.E. We received several compliments on our presentations. AVN

Treasurer Rugo also flew out for the conference, and it was wonderful

to see our group so well represented. We had an AVN display table that

attracted a great deal of interest. Saturday night, it was a pleasure

listening to keynote speaker Ross Perot, and hearing first-hand his

incredible support for veterans.

You can find the text of the presentation Kathy gave on our web

site (this weekend, if not before) at http://www.anthraxvaccine.net. You

can find all of the conference presentations, including ours, available via

online video at http://www.ngwrc.org/conf2002/media.htm

And finally, an enormous, ongoing and permanent THANK YOU to Mike

Schienle of Interactive Visuals, Inc., at http://wwwivosoftware.com. Mike

is, even as I type, combining www.majorbates.com with

www.anthraxvaccine.net, which is an absolutely enormous and complex job;

and is hosting the combined web site for free and doing all the programming

for free. Mike and his wife, Rhonda, became involved on behalf of Rhonda’s

brother, Latham, a very ill Gulf War veteran. Their involvement has

made a critical difference in our ability to operate these past few months,

and we cannot give them enough of our gratitude, good thoughts - and

business referrals!!!!

That’s all for now. There are undoubtedly more things to include,

but they’ll have to wait until the next newsletter. Meanwhile, we take it

as a good sign that where we were sure the Pentagon was announcing a

resumption of the AVIP, there has been no announcement as yet. Keep those

cards and letters flowing to Congress....

All our best to everyone.

Kathy Hubbell, President

Sonnie Bates, Vice-President

Rugo, Treasurer

Gloria Graham, Secretary

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  • 3 weeks later...
Guest guest

Please take me off your e-mail list.

Thank you,

Herman J. Overholser

-----Original Message-----

From:

[mailto: ]

Sent: Friday, May 31, 2002 1:59 PM

Subject: [] Digest Number 1265

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  • 2 months later...

My now 14 year old daughter, Holly, has been in band since the 5th grade.

She " plays " , the clarinet. She has pretty good tone, and rhythm, but still

only plays really simple things. Band class, has been a great experience for

her. One of her band teachers told me that band was about a whole lot more

than making music...it was learning skills for a lifetime :-) (Boy did I

love that teacher!) She will join the beginning band at the High School in a

few weeks. I hope it will be as good experience as Middle school was for her!

M.

In a message dated 8/10/02 8:16:17 PM, writes:

<< I was just wondering how many of our kids have been a member of their

elementary school band? I know Barbara's son Mark is, has anyone else tried

it?

Caty seems to like it, and this will be the grade that she would start. She's

interested in " sticks " as she calls it (drums). But I don't think she can

keep with the beat and all the kids fight to be a drummer. Her fifth grade

teacher said she has a cousin with DS (out of state) that helps with the high

school band....she helps the majorettes with their equipment, etc. Sort of

like a football manager does for a football team. But the elementary band

just has a concert and plays in a couple parades. >>

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  • 6 months later...

I'm going to cross post this to the FlaxseedOil2 list which focuses on

Johanna Budwig's protocol.... By, the way, I used the same method on my

sister's dog with quite some success last year....... spoonfeeding at first

as the dog was that debilitated.

mjh

In a message dated 2/16/03 5:43:56 AM Eastern Standard Time,

writes:

> Date: Sat, 15 Feb 2003 18:03:28 EST

> From: Heckelk@...

> Subject: Re: Help!! Myelogenous Leukemia

>

> My dog Shilo had the same type of Leukemia. I give him Flaxoil mixed with

> cottage cheese He has been cancer free since April 1999. He has his own web

>

> page It goes into more detail

> http://home.earthlink.net/~texas2step/ShilosTale.html Please check out. I

> hope it helps, Take care, Kirk Heckel

>

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  • 2 months later...
Guest guest

My time to say I very much agree with , with Dr. Kolb, Martha, Patty,

and . If you don't have first hand knowledge of " all " Plastic

Surgeons " or other matters, it is always best to not generalize. Be

specific. It would behove all of us to remember our grammer, psychology,

and or sociology studies...or just plain common sense. Since this group is

somewhat public, responsiblity for what we say is most important. Use of

the pronoun " we " is an unconscious (or maybe conscious) way to avoid

responsibility and have others share it. " We is most often used without the

other's knowledge or consent and since no one is named, it is not often

confronted. The use of " I " or " my " reflects one's acceptance of

responsibility for self and his/her actions. While the use of " we " makes an

ass of you or me. I hope we can let this be a lesson for each of us

reminding us to accept responsiblity for our posts. Love to all

Message: 18

Date: Thu, 8 May 2003 22:44:13 -0500

From: " MARTHA " <MAM-NSIF@...>

Subject: Re: Re......to Carry and all /Dr. Haung

Hi Dr. ,

I want you to know that I continue to personally support you, along with our

NSIF group. I am still amazed at how much verbal abuse you tolerate,

unneccessarily. Perhaps some of this communication will help explain why

the Dallas Area physicians in all specialties are so protected by our BI

ladies!

Sincerely,

mm

Martha Murdock, Director

National Silicone Implant Foundation | Dallas Headquarters

" Supporting Survivors of Medical Implant Devices "

4416 Willow Lane

Dallas, TX 75244-7537

----- Original Message -----

From: " Dr.Kolb " <drkolb@...>

< >

Sent: Thursday, May 08, 2003 8:41 AM

Subject: RE: Re......to Carry and all /Dr. Haung

> Just to clear up any misunderstanding that this group may have about how

> much money we make as plastic surgeons, last year my practice lost

> $100,000 as no pays from the economic problems of 9/11 went from 20% to

> 50%. So for the privledge of working 100 to 120 hours a week, I not

> only made nothing, but had to borrow money to stay open. So far this

> year, we haven't made anything as well, although I've done a lot of free

> work including calling patients with implant problems from all over the

> world to help them at no charge. Please gather more information prior

> to making sweeping generalizations about others. See the silicone and

> saline newsletter at www.plastikos.com and let me know if I did these

> for the money. .

>

> -----Original Message-----

> From: dimonds68 [mailto:XENA6881@...]

> Sent: Wednesday, May 07, 2003 10:27 PM

>

> Subject: Re......to Carry and all /Dr. Haung

>

> Carry I think it is safe to say in my own opinion. 'We' meaning

> sickend by implants DO NOT HAVE any Dr.s that are 'FOR US'/. It is

> all about the american dollar $$$$$$$$..it is about who is getting

> them rich whether it is taking them out or putting them in!!!!!

> $$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$ GREED! IT is an issue that will NEVER

> end and will be around long after we are not!! I am not a quitter, I

> am a fighter. BUT this is a fight that will never be won. AND to boot

> we have a disease that DOES NOT exsist in 75% of the Dr.s (even if we

> had CFS or FMS and were not sickened by implants we STILL have a

> disease that has no cure, minimal research, and no good

> treatments)..I hope I don't get slack for this post, but it is one

> woman's opinion(mine) and I believe it is TRUTH...dimonds68

________________________________________________________________________

________________________________________________________________________

Message: 19

Date: Thu, 8 May 2003 20:02:40 -0700

From: " Dr.Kolb " <drkolb@...>

Subject: RE: surgeon

Please see the information on breast explantation in frequently asked

questions at www.plastikos.com <http://www.plastikos.com/> . We get

insurance coverage for the majority of explant patients so that they

have less of a financial burden. Most surgeons do not go to this

trouble. .

Message: 20

Date: Thu, 8 May 2003 20:16:25 -0700

From: " Dr.Kolb " <drkolb@...>

Subject: RE: Re......to Carry and all /Dr. Haung

This post was in response to the " all " " that was in the previous post.

I am not defending the other plastic surgeons but pointing out that

whenever all, always, and never are used in posts that we have to

question if the person posting has bothered to research and gather

information on what they are posting about. Venting at the expense of

others is not ever a great idea. For example, how would you feel if I

posted that all women sick from implants were emotional and childish.

Would this be an accurate statement? Would you like to be grouped with

such a generalization? Probably not. .

-----Original Message-----

From: JOSEPH PALANCA [mailto:juliejp61@...]

Sent: Thursday, May 08, 2003 10:09 AM

Subject: Re: Re......to Carry and all /Dr. Haung

Well said Patty. I think the large % of Plastic surgeons are out for the

money, but Dr Kolb is in a totally different position, being a holistic

doctor, as well as a caring PS. I have been blessed to have a closer,

more personal relationship with her, as my doctor and my friend. My

husband agrees, she is a workhorse to get the knowledge out there on the

dangers and the disease, on detox, and most importanatly healing, and

is also considered a close friend of mine that truely cares.She truely

loves her patients, its hard to describe. I know deep down inside of

me, that she is there for me, no matter how many years down the road,

with compassion, and advise on any problems I may have. I absolutly

love her. And to me, anything negative said about her specifically

(which I dont think were made here on this site recently at all!) , by

people that dont have the opportunity of personally knowing her,

professional or otherwise, are opinions that are completly unworthy of

being aired. jULIE

We

> ----- Original Message -----

> From: Dr.Kolb

>

> Sent: Thursday, May 08, 2003 6:41 AM

> Subject: RE: Re......to Carry and all /Dr. Haung

> Just to clear up any misunderstanding that this group may have about

how

> much money we make as plastic surgeons, last year my practice lost

> $100,000 as no pays from the economic problems of 9/11 went from 20%

to

> 50%. So for the privledge of working 100 to 120 hours a week, I not

> only made nothing, but had to borrow money to stay open. So far this

> year, we haven't made anything as well, although I've done a lot of

free

> work including calling patients with implant problems from all over

the

> world to help them at no charge. Please gather more information prior

> to making sweeping generalizations about others. See the silicone and

> saline newsletter at www.plastikos.com and let me know if I did these

> for the money. .

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  • 5 months later...

In a message dated 10/12/03 8:22:23 AM Eastern Daylight Time,

writes:

> Dee,

>

> If she's having an absence seizure it lasts seconds, but if she's having

> a grand mal, the seizure itself lasts less than 2 minutes and approx. 10

> minutes for her to be back to normal. When the dr. told me to use the

> Diastat on my daughter if the seizure lasts longer than 3 minutes, I was

> under the impression that he was talking about the convulsions not after

> she stopped convulsing because after she stops convulsing she's able to

> breathe, she's just disoriented for about 10 minutes and then she's back

> to normal.

>

> Grace

>

Grace

My son's gran mal seizures take days to recover from. He does not stop

breathing. I don't wait before administering medication.

MJH

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  • 2 years later...
Guest guest

Message: 1

Date: Sat, 18 Mar 2006 06:30:59 -0700

From: " Suzanne "

Subject: Re: Newbie Here, Hello All :)

HI everyone,

I am also new to this group and am glad I found it. I've been taking Lexapro

for about 3 months and so far am happy with the results. I've had a long

history of depression (runs in the family) and started having bad problems

with anxiety while in a bad marriage with a raging bi-polar/ADD partner in

2000 (I'm now divorced).

I often wonder about how it would feel to take 20mg of Lexapro instead of

the 10 that I am now taking. It's tempting when I'm having a " down " day but

I know that it's something I probably shouldn't really do without my

doctor's approval or supervision. I also know that people who take the drug

themselves often have much more information and an understand of how the

drug can affect us.

Again, I'm glad to be here. Oh, one question. I'm sure you have all talked

about this in prior posts, but I haven't had a chance to go back yet and

read some of them. Have any of you experienced weight gain taking the

Lexapro? My doctor told me that I shouldn't gain weight, but I've gained

about 15 pounds since taking it. I'm not sure yet if it's the Lexapro or

other factors such as work and stress.

Suzanne

I'm on 20 mg in the a.m. and it does a good job, though I was originally on 10

mg. After one episode, the doc suggested moving to 20. So I would always check

with your doc if you need to. Most times I felt fine on 10. 20 does really put

me out.

Hope this helps and good luck. Do you take any other meds with? That seems

to be the biggest factor.

Charlie

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