Guest guest Posted February 28, 2000 Report Share Posted February 28, 2000 Penny, Don't feel like a dunce, we use so many acronyms. Here is a small list, constantly growing, hope it helps. And on this list, don't ever be afraid to ask any question, you should have many! Vicki, Md CDC - Center for Disease Control Sx - Symptoms (is Sx right, I think it is). WB - Western Blot >>PCR - Polymerase Chain Reaction (DNA test) >>ROTFL - Rolling on the Floor Laughing (Lovey's term) >>LOL - Laughing out loud, and more??? >>BTW - By the way >>CYA - Cover you a...! >>TX - Treatment LLMD or LLD is Lyme Literate Doctor , as opposed to Lyme Stupid Dr. >(Steere and Siegel) >>>Rx is a prescription >>>Dx is diagnosis >>>abx is our friend, the antibiotic >>>Herx is the reaction you get, the Herxheimer, when you take a working abx >>>OT is occupational therapy>>>PT is physical therapy >>>SSDI- Social Security Disability Insurance, what some of the disabled >Lymies end up fighting for when out of work >>>LUAT - Lyme Urine Antigen Test from Igenex Labs in California. >>OPMC - Office of Professional Medical Conduct >>PWL - People with Lyme > >Hi Joan, > >I am new to this list. My daughter has LD and I am learning about it. >Could you tell me what the initials CDC and LUAT stand for and what is LUAT? >Also is LLMD = your Lyme Doctor? >Also Dr B mentions OPMC...what is that? >i feel like a dunce. :-) >And I am sure I will have more questions. > >Penny (FL) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2000 Report Share Posted February 29, 2000 Penny, Don't feel like a dunce, we use so many acronyms. Here is a small list, constantly growing, hope it helps. And on this list, don't ever be afraid to ask any question, you should have many! Vicki, Md CDC - Center for Disease Control Sx - Symptoms (is Sx right, I think it is). WB - Western Blot >>PCR - Polymerase Chain Reaction (DNA test) >>ROTFL - Rolling on the Floor Laughing (Lovey's term) >>LOL - Laughing out loud, and more??? >>BTW - By the way >>CYA - Cover you a...! >>TX - Treatment LLMD or LLD is Lyme Literate Doctor , as opposed to Lyme Stupid Dr. >(Steere and Siegel) >>>Rx is a prescription >>>Dx is diagnosis >>>abx is our friend, the antibiotic >>>Herx is the reaction you get, the Herxheimer, when you take a working abx >>>OT is occupational therapy>>>PT is physical therapy >>>SSDI- Social Security Disability Insurance, what some of the disabled >Lymies end up fighting for when out of work >>>LUAT - Lyme Urine Antigen Test from Igenex Labs in California. >>OPMC - Office of Professional Medical Conduct >>PWL - People with Lyme > >Hi Joan, > >I am new to this list. My daughter has LD and I am learning about it. >Could you tell me what the initials CDC and LUAT stand for and what is LUAT? >Also is LLMD = your Lyme Doctor? >Also Dr B mentions OPMC...what is that? >i feel like a dunce. :-) >And I am sure I will have more questions. > >Penny (FL) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2000 Report Share Posted December 12, 2000 In a message dated 12/12/00 5:54:37 AM Pacific Standard Time, gehud119@... writes: << Medical/Hepatitis Related Acronyms: >> Thank you, thank you, thank you! But Brain Fog? I thought that was just a family joke, not a generally used term. It certainly does fit on some days since I began prednisone. (Although, oddly, I seem to be able to grasp broad concepts and see interrelationships more easily than before, although I may not be able to find the exactly the words I need to express those ideas clearly.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2000 Report Share Posted December 12, 2000 In a message dated 12/12/00 9:28:36 AM Pacific Standard Time, evinmoon@... writes: << I'm glad someone brought up " brain fog. " I thought I was getting Alzheimer's. My doctor says I'm too young. That seems to be the only thing I'm too young for! Next visit I'm going to tell her about this encephalpathy. Maybe that's what's wrong. I have the same problem of not being able to find the right word anymore. If I have time to think about it, hours later I will remember it, but it's too late then for effect.. >> Although I don't see my LiverMan, I do see my gp occasionally, ostensibly for hypertension treatment but really so I can ask general questions. I asked her about what I'll also call Brain Fog (difficulty with words and numbers, forgetfulness, amazing mistakes) and asked if it went with the disease. She said, not really, but that she wasn't concerned about it. Yeah, it's not her brain. Actually, I'm being grossly unfair to her by that sarcastic comment, as she is responsive and well informed. I know that inability to concentrate is often associated with Prednisone use. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2000 Report Share Posted December 12, 2000 Carolyn..... brain fog is an apt description of the beginnings of encephalpathy... a condition caused by the livers inability to eliminate toxic side products especially ammonia.... the course of encephalopathy leads to coma and death. Encephalopathy is an indication of severe liver damage... besides brain fog ... confusion and lack of coordination are indicators,.... I used to stop in the middle of some rambling speech and forget completely what I was talking about.. I would stumble and fall and walk as if drunk....slur my words.. fall asleep standing up...even some hallucination..... once I insisted the utility room was the bathroom and urinated there .... I forgot names ,dates, faces, how to do simple tasks... I would think it can be likened somewhat to alzheimer`s If it hadn`t been so serious ....the day I was taken to emergency was a pretty funny comedy of errors in fact it sill is to me but I don`t remember and relie on the retelling of it from my mom and ex (1st) wife.... all in all though you don`t want to go there as the treatment includes not only no red meat but a diabolical drug..... lactulose..... some other`s here are familiar with it. love and serenity jerry I'm glad someone brought up " brain fog. " I thought I was getting Alzheimer's. My doctor says I'm too young. That seems to be the only thing I'm too young for! Next visit I'm going to tell her about this encephalpathy. Maybe that's what's wrong. I have the same problem of not being able to find the right word anymore. If I have time to think about it, hours later I will remember it, but it's too late then for effect...Carolyn...Keep smiling. You never know who's life you will touch with a simple smile. Re: [ ] Acronyms > In a message dated 12/12/00 5:54:37 AM Pacific Standard Time, > gehud119@... writes: > > << Medical/Hepatitis Related Acronyms: >> > Thank you, thank you, thank you! > > But Brain Fog? I thought that was just a family joke, not a generally used > term. It certainly does fit on some days since I began prednisone. > (Although, oddly, I seem to be able to grasp broad concepts and see > interrelationships more easily than before, although I may not be able to > find the exactly the words I need to express those ideas clearly.) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2000 Report Share Posted December 12, 2000 P.. carolyn .... I hope it`s the prednisone... because have exactly the same problem as you and Harper .... not being able to find the right word and a real inability to remember names ...and not remembering things that were said or done just short periods of time ago.... jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2000 Report Share Posted December 12, 2000 I'm glad someone brought up " brain fog. " I thought I was getting Alzheimer's. My doctor says I'm too young. That seems to be the only thing I'm too young for! Next visit I'm going to tell her about this encephalpathy. Maybe that's what's wrong. I have the same problem of not being able to find the right word anymore. If I have time to think about it, hours later I will remember it, but it's too late then for effect...Carolyn...Keep smiling. You never know who's life you will touch with a simple smile. Re: [ ] Acronyms > In a message dated 12/12/00 5:54:37 AM Pacific Standard Time, > gehud119@... writes: > > << Medical/Hepatitis Related Acronyms: >> > Thank you, thank you, thank you! > > But Brain Fog? I thought that was just a family joke, not a generally used > term. It certainly does fit on some days since I began prednisone. > (Although, oddly, I seem to be able to grasp broad concepts and see > interrelationships more easily than before, although I may not be able to > find the exactly the words I need to express those ideas clearly.) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2000 Report Share Posted December 12, 2000 In a message dated 12/12/00 6:21:56 PM Pacific Standard Time, nneW5@... writes: << have a hard time understanding what I am reading or hearing.. >> When I had a demanding job and read easily (pre-AIH) I was addicted to murder mysteries. I could go through two or three a night. I joked that when other people had a drink, I read a mystery -- served the same purpose. Now that reading is so much more difficult, I don't want to bother with murder mysteries. If I have to put that much effort into reading, I want to leave with something that will stick with me, concepts that I can reflect on over a period of time. So, I'm reading and re-reading the " serious " books I always put off before. It's quite exciting mentally, actually. Just SLOOOOW. Ah, time to make a run to pick up take-out Mexican. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2000 Report Share Posted December 12, 2000 Brain fog...at last an explanation. I thought it was a sudden worsening of the post-natal senility I have had for 14 1/2 years... Now I know why it takes me as much as 3 times longer to do things..I keep forgetting what I was going to do, or have a hard time understanding what I am reading or hearing...I think my kids think I am going deaf because I have to ask them to keep repeating things. I guess I will just have to ask them to speak to me slowly from now on and use simple words. On Tue, 12 Dec 2000 13:08:21 -0500 (EST), egroups wrote: > P.. carolyn .... I hope it`s the prednisone... because have exactly the > same problem as you and Harper .... not being able to find the right > word and a real inability to remember names ...and not remembering > things that were said or done just short periods of time ago.... > jerry > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2000 Report Share Posted December 12, 2000 I'm so glad I'm not alone!...Carolyn Re: [ ] Acronyms > Brain fog...at last an explanation. I thought it was a sudden worsening of > the post-natal senility I have had for 14 1/2 years... > Now I know why it takes me as much as 3 times longer to do things..I keep > forgetting what I was going to do, or have a hard time understanding what I > am reading or hearing...I think my kids think I am going deaf because I have > to ask them to keep repeating things. I guess I will just have to ask them > to speak to me slowly from now on and use simple words. > > On Tue, 12 Dec 2000 13:08:21 -0500 (EST), egroups wrote: > > > P.. carolyn .... I hope it`s the prednisone... because have exactly the > > same problem as you and Harper .... not being able to find the right > > word and a real inability to remember names ...and not remembering > > things that were said or done just short periods of time ago.... > > jerry > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2005 Report Share Posted January 18, 2005 dd dear daughter, ds dear son, dh dear husband. Hope this helps. CarolDara Planter <gortsmoor@...> wrote: I haven't been in the group long enough to know what most of the acronyms being used are. Does someone have a shortlist of what DD, DS, etc. are? Thanks"D. Marie Ralstin-" <dralstin@...> wrote: does your DD have classic autism? I guess what I am asking is what is her level of disability. My DS has high functioning autism, I am not sure if he would qualify.>===== Original Message From Byington <froggienoodle@...> =====>Have you tried to get SSI yet? I am in Georgia & my daughter gets Medicaid through SSI. I don't know what the household income is, but, that does affect eligibilty to one degree or another. It wouldn't hurt to try & find out.>>Laha1960@... wrote:In a message dated 1/17/05 8:02:05 PM Central Standard Time, Autism and Aspergers Treatment writes:>My husband would like to have the RNY or the DS, but can not. We just>>can't afford it. We didn't realize how much ongoing time and money it>>would cost to fight the insurance company and for basic medical care,>>even though we pay 300-400 per month out of my husband's check for>>insurance, we have a deductable that equals 350 per person in our>>family, and then we pay a $20 plus 20% of the remaininb balance... Go>>figure!!!>> What is RNY or DS?>>We pay the SAME costs you do Rabacca that you listed above AND 20 and 30$ co pays for prescriptions and we have 13 of them, so costs over 100-150$ a month for prescriptions, and 400$ a month for insurance which covers only 20% after the 250$ ded per person per year , and so when the year is done, we pay out over 700$ a month in insurance and medical costs or more. Not too bad, I mean it could be worse, but this is a LARGE percent of OUR pay, so this is not easy.>I can not for the life of me understand how any insurance company could ever allow something like Autism to be not covered? That sounds illegal for them to pick and chose what they cover. That is a medicasl/mental health thing that needs to be covered. Strange. I am not clear how they get away with NOT covering those thing1.> in IL>>>---------------------------------> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 http://www.acronymfinder.com/ and similar sites are very useful. gekemp wrote: This is a great Board, but when everyone starts talking in acronyms you get a message that looks something like this: " I have LBG complicated by ZRT and MTU, which my doctor is treating with SJX and C4M. Does anyone have any info on LFK?" Not much use to a newcomer or probably half the old-timers. GEK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2010 Report Share Posted September 2, 2010 Folks - most acronyms are explained on our web site, www.cllinfogroup.org - Here are a few of the more often used ones BLOOD: hgb - hemoglobin hct - hematocryt rbc - red blood cells wbc - white blood cells plt - platelets lymphs - lymphocytes neuts - neutrophils DRUGS: F - fludarabine R - rituxan C - cytoxan (cyclophosphamide) B - bendamustine O - ofatumumab (arzerra) CHOP - four chemos together, used for transformations usually rev - revlimid thal - thalomid OTHER: DX - diagnosis TX - treatment RX - prescription Any others you need? In a message dated 9/2/2010 1:03:03 P.M. Eastern Daylight Time, dvd_pulley@... writes: :If you will google "acronyms used in CLL", you will get thousands of sites that explain the acronyms. Some more complete than others, but most have the common ones we use. Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2011 Report Share Posted April 14, 2011 Is there a list to describe all the acronyms used on this support group? When I signed up, I thought I received or saw somewhere something like this, but now I cannot find it. Can anyone point me into the right direction? Thanks, Eddie Quote Link to comment Share on other sites More sharing options...
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