ROLL CALL.... We need to get this group going...Â

[Guest guest]

Hi, I’m Beth, Mom to Colton 6, Hannah 4, who has DS, and Jenna 10 months.

Hannah was diagnosed with AML subtype M6 at 10 months old on Feb 13, 2006.

She did 8 months of intense chemo, all of which required hospitalization, with

small breaks between as her ANC would increase to at least 250-300 or more.

Once it would hit 1000 it was back in for more chemo. She was treated on COG

A2971.

My husband Jerry is in the Air Force and we were stationed at Vandenberg AFB, CA

at the time so she was treated at Santa Barbara Cottage Hospital in CA. Last

spring we moved back to Colorado Springs, CO and she now follows up with The

Children’s Hospital Oncology Group here. (Recent name change so I’m not

entirely sure if that is the correct name).

In October we made it 3 years off treatment and are now at 6-month visits, YEAH!

Still makes me nervous when she gets bugs that she can’t seem to kick for

several weeks. Had a little scare in Aug/Sept to this effect but her blood work

seems to still look good so we will take it. The oncologist assures us that he

next to never sees AML relapse after 3 years, but I can’t tell you how many

times we have heard phrases like that that she then beats the odds for, so

I’ll feel better when we hit 5 years. But honestly, I remember at the time

thinking that I would never stop thinking about Leukemia and as time rolls on it

does in fact get much better, just seems to creep in when she’s not feeling

well for lengths of time etc.

Wishing you all well, it has been great to read up on people’s stories!