Intro

[Guest guest]

Hello ,

Welcome to our group. I am relatively new also. I too take Naproxen, like you, I could use more of something. I am due for a visit to my rehumy. I hope he does something different. I need my knees replaced and decided to take some Glucosimine and Chondroitin to see if it would help. It helps to make my knees more stable and the pain there is less. I too have problem with my feet and left hand. When my feet swell, I roll a golf ball with each foot. Don't do it so hard you bruise your feet. It has helped relieve the swelling in my feet.

As you get emails..read through each and everyone. This group has a vast knowledge of what is out there. I've learned so much since joining. Share with us and I'm sure someone will help by sharing their experiences also. The support group has a way of making you feel that you aren't alone and others do understand. Believe me it helps.

Donna

" G. Acevedo " <Daimyo1@...> wrote:

Hello everyone,My name is and I am a School Counselor who just started suffering fromPA last year. I am 33 years old and am wrestling with this problem. I hopethat by communicating with you all, I can find some comfort. Lord knowsthat I need it.So far, all I know about my condition is that even with Naproxen, I am inpain daily.I have it in both my thumbs, my feet, and my spine. I am also a member ofthe NPF.--The man who has confidence in himself gains the confidence of others.--Hasidic Saying------------------------------------------------------------------------eGroups eLertsIt's Easy. It's Fun. Best of All, it's Free!1/3863/3/_/494167/_/957632734/------------------------------------------------------------------------Please visit our new web page at:http://www.wpunj.edu/icip/paWe are currently discussing new chat times. moderates a chat on arthritis atwww.about.com on Thursday evenings, so check thatout in the meantime! E mail at RA@... for details.

[Guest guest]

,

Are you seeing a Rhumatoligist? I found it very hard to accept the fact that I had arthritis at the age of 27. It took me awhile for me to be convinced that I should see a specialist. I strongly recommend it, if you have not.

You will find this list very helpful, I have been reading it daily for quite awhile now. The people are great and truly know how you feel.

Hang in there, Becky

[ ] Intro

Hello everyone,My name is and I am a School Counselor who just started suffering fromPA last year. I am 33 years old and am wrestling with this problem. I hopethat by communicating with you all, I can find some comfort. Lord knowsthat I need it.So far, all I know about my condition is that even with Naproxen, I am inpain daily.I have it in both my thumbs, my feet, and my spine. I am also a member ofthe NPF.--The man who has confidence in himself gains the confidence of others.--Hasidic Saying

Please visit our new web page at:http://www.wpunj.edu/icip/paWe are currently discussing new chat times. moderates a chat on arthritis atwww.about.com on Thursday evenings, so check thatout in the meantime! E mail at RA@... for details.

[Guest guest]

Dear Yumi,

I recommend you call American Nutriceuticals at (888) 848-2548 ask for Sara.

I feel she will recommend Badmaev 269, Ecomer (shark oil capsule ), Noni (in

capsule form), Natura 401, and Nutrizyme (enzyme). This is not multi level,

this is product my Dr. put me on to build immune and purify blood and enzymes

to help assimilate. I recommend this to all to fight or prevent cancer and

other diseases. I still take vit. c (6000), and minerals as well as good

multi vitamin.

Does she have someone in Japan that can muscle test her for amounts of each

to take? If not tell her to use the max dose on each.

Hope this helps.

Ann

[Guest guest]

Ann,

Thank you for the info. Do they have a website that I could look at? She

doesn't have anybody who can do a muscle testing.

--

Yumi Guidotti

yumig@...

[Guest guest]

Yumi

I don't know of a website, but call Sara and ask her it is a toll free

number. I know they have brochures. These products do well to aid chemo and

radiation if she is going that route. Hope this helps.

Ann

[Guest guest]

Hi Machelle, I'm Terry 48 year old grandfather

transplanted from central MO now living in AZ. I just

started peg-intron treatment last month. It's not

pleasant at first but the side affects do lesten. The

side affects very from one person to the next.

Terry

--- Machelle <catkrazy@...> wrote:

> Hi Everyone,

> I am new to the group. My name is Machelle. I'm from

> Georgia, 28 yrs old,

> married, one son and have just been told I have

> Hepatitis C and not much

> more. What I would like to know is what does the

> treatment involve? Is it

> as bad as I've heard?

>

> Machelle

>

>

>

__________________________________________________

[Guest guest]

Did you have to stay in the hospital at all or did you start it in the dr.

office?

Last year I went through having cancer and going through Chemo with months

at the time in the hospital, I just don't know how much hosptial I can

stand....

Machelle

Re: [ ] Intro

Hi Machelle, I'm Terry 48 year old grandfather

transplanted from central MO now living in AZ. I just

started peg-intron treatment last month. It's not

pleasant at first but the side affects do lesten. The

side affects very from one person to the next.

Terry

--- Machelle <catkrazy@...> wrote:

> Hi Everyone,

> I am new to the group. My name is Machelle. I'm from

> Georgia, 28 yrs old,

> married, one son and have just been told I have

> Hepatitis C and not much

> more. What I would like to know is what does the

> treatment involve? Is it

> as bad as I've heard?

>

> Machelle

>

>

>

__________________________________________________

[Guest guest]

Machelle, No time in the hospital. I have a weekly

injection & take five pills a day. The first two weeks

I went to the Doctors office & have some blood work

done. Then it was two weeks I went to the Doctors

office, now it's once a month. There is some side

affects. The first two weeks I had flew like feeling.

Then I couldn't sleep. But I'm doing fine now. The

thought of beating this dragon keeps me going.

Terry

--- Machelle <catkrazy@...> wrote:

> Did you have to stay in the hospital at all or did

> you start it in the dr.

> office?

> Last year I went through having cancer and going

> through Chemo with months

> at the time in the hospital, I just don't know how

> much hosptial I can

> stand....

>

> Machelle

>

> Re: [ ] Intro

>

>

> Hi Machelle, I'm Terry 48 year old grandfather

> transplanted from central MO now living in AZ. I

> just

> started peg-intron treatment last month. It's not

> pleasant at first but the side affects do lesten.

> The

> side affects very from one person to the next.

> Terry

> --- Machelle <catkrazy@...> wrote:

> > Hi Everyone,

> > I am new to the group. My name is Machelle. I'm

> from

> > Georgia, 28 yrs old,

> > married, one son and have just been told I have

> > Hepatitis C and not much

> > more. What I would like to know is what does the

> > treatment involve? Is it

> > as bad as I've heard?

> >

> > Machelle

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

First of all, welcome. We don't know how bad you've

been told it was.. It can be difficult. Some of us

are able to cope with it better than others. I found

it drained me emotionally and physically, but I wasn't

really too sick after the first couple of weeks. Some

people can't take it at all, I guess it depends how

your body reacts to the drugs. The current treatment

is usually peg/combo which means giving yourself a

shot once a week and taking 4-6 pills a day (depending

on weight). I was on the old combo which was 3 shots a

week and the same amount of pills. I managed it and

was able to keep working. I have completed it and am

currently in remission, waiting for my 6 month

checkup. Hang in there and feel free to ask any

questions you can think of. Chances are somebody will

have an answer for you. -dz-

--- Machelle <catkrazy@...> wrote:

> Hi Everyone,

> I am new to the group. My name is Machelle. I'm from

> Georgia, 28 yrs old,

> married, one son and have just been told I have

> Hepatitis C and not much

> more. What I would like to know is what does the

> treatment involve? Is it

> as bad as I've heard?

>

> Machelle

>

>

>

__________________________________________________

[Guest guest]

I only took my first shot in the dr's office, just so

they could see that I was doing it right. Otherwise I

just went in once a month for blood tests. I only

stayed in the hospital for a half a day when they did

the liver biopsy. -dz-

--- Machelle <catkrazy@...> wrote:

> Did you have to stay in the hospital at all or did

> you start it in the dr.

> office?

> Last year I went through having cancer and going

> through Chemo with months

> at the time in the hospital, I just don't know how

> much hosptial I can

> stand....

>

> Machelle

>

> Re: [ ] Intro

>

>

> Hi Machelle, I'm Terry 48 year old grandfather

> transplanted from central MO now living in AZ. I

> just

> started peg-intron treatment last month. It's not

> pleasant at first but the side affects do lesten.

> The

> side affects very from one person to the next.

> Terry

> --- Machelle <catkrazy@...> wrote:

> > Hi Everyone,

> > I am new to the group. My name is Machelle. I'm

> from

> > Georgia, 28 yrs old,

> > married, one son and have just been told I have

> > Hepatitis C and not much

> > more. What I would like to know is what does the

> > treatment involve? Is it

> > as bad as I've heard?

> >

> > Machelle

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Machelle first of all welcome to the group..By now I am sure you have gotten info from this group already on your question so I won't interfer this time..If not I'll tell ya what I know..Oh I am Jan and from Louisiana and it is nice meeting you....

[Guest guest]

No question is silly to us either..We have asked them all trust me....

[Guest guest]

Machelle,

Welcome to our loving and caring group of support..... We are like a

family here and if one can't answer your questions someone else

will...... Hang in there.... We are all here for you!

Angel Hugs,

Diane

May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity

[Guest guest]

Hi Machelle

The treatment involves taking 5 or six pills a day plus shots 3 times a week

or 1 time a week depending on which treatment you are receiving. The side

effects can be rough on some people, but most of us are able to tolerate

them. It affects everyone a little different. Most of the common side

effects are flu ;like symptoms, hair thinning, sometimes depression.

Welcome to the group.

[ ] Intro

> Hi Everyone,

> I am new to the group. My name is Machelle. I'm from Georgia, 28 yrs old,

> married, one son and have just been told I have Hepatitis C and not much

> more. What I would like to know is what does the treatment involve? Is it

> as bad as I've heard?

>

> Machelle

>

>

>

>

>

[Guest guest]

Most of us self administer the treatment ourselves. It is not very difficult

at all.

Re: [ ] Intro

>

>

> Hi Machelle, I'm Terry 48 year old grandfather

> transplanted from central MO now living in AZ. I just

> started peg-intron treatment last month. It's not

> pleasant at first but the side affects do lesten. The

> side affects very from one person to the next.

> Terry

> --- Machelle <catkrazy@...> wrote:

> > Hi Everyone,

> > I am new to the group. My name is Machelle. I'm from

> > Georgia, 28 yrs old,

> > married, one son and have just been told I have

> > Hepatitis C and not much

> > more. What I would like to know is what does the

> > treatment involve? Is it

> > as bad as I've heard?

> >

> > Machelle

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

The Azulfidine will not help with your pains.

I think it only helps slow the deterioration of the

joints. I have been on Azulfidine for over 2 years. My

Rheumy tells me to just keep taking it. It helps in

the long run. IT IS NOT A SHORT TERM HELP!

If your Rheumy is telling you it should be working and

not to come back if you still have pain, GET A NEW

RHEUMY!!!

You should get your Rheumy to get you on Celebrex or

Vioxx. If those do not work, your next step will be

Methotrexate (MTX), then on to Remicade, Enbrel etc...

Good luck,

in Atlanta, GA

--- HOWARD

<scunderia@...> wrote:

> My name's Jo and I'm 21. I've had P for quite a few

> years (not sure how long). I was diagnosed with PA

> in sept. but had it for nearly a year before being

> diagnosed. I have problems with both feet, 1 ankle,

> 1 knee. I was involved in a car accident and have

> problems with my neck, back and one shoulder. I'm

> on sulfasalazine and voltarol at the minute. I went

> to see my rheumy on monday and she said that I could

> have a cortisone injection or nothing, and wasn't

> quite sure why I was there even though she'd asked

> me to make an appointment. Admittedly I did ask for

> an appointment sooner (they gave me one a few weeks

> earlier) because the pain was getting worse and I'd

> started getting the odd pain in joints that i had

> not experienced pain in before. She went on to tell

> me how they'd not used sufa. for 50 years because

> they didn't take it for long enough and if I wasn't

> going to take her advice then not to tell her I was

> in pain.

> So I want to ask when is the Sulfasalazine going to

> start working?! There were a few days when I first

> started taking tablets when I thought that things

> had stopped getting worse, but things seem to be

> getting slowly worse and not better. It's getting

> quite depressing!

>

> Jo

[Guest guest]

Jo, you need to find another doctor. This one sounds like really bad

news. I just hate it when doctors attack their patients. Maybe if they

lose enough of them, they'll mend their ways. But I doubt it. I think

some people become doctors because they want to help people, and others

become doctors so they can cause pain -- physical or mental. There are

kind, helpful doctors out there who will take your pain seriously and

really try to help. Maybe some of the folks in this group can give you

ideas. -- Jan O', Alaska

HOWARD wrote:

>My name's Jo and I'm 21. I've had P for quite a few years (not sure how long).

I was diagnosed with PA in sept. but had it for nearly a year before being

diagnosed. I have problems with both feet, 1 ankle, 1 knee. I was involved in

a car accident and have problems with my neck, back and one shoulder. I'm on

sulfasalazine and voltarol at the minute. I went to see my rheumy on monday and

she said that I could have a cortisone injection or nothing, and wasn't quite

sure why I was there even though she'd asked me to make an appointment.

Admittedly I did ask for an appointment sooner (they gave me one a few weeks

earlier) because the pain was getting worse and I'd started getting the odd pain

in joints that i had not experienced pain in before. She went on to tell me how

they'd not used sufa. for 50 years because they didn't take it for long enough

and if I wasn't going to take her advice then not to tell her I was in pain.

>So I want to ask when is the Sulfasalazine going to start working?! There were

a few days when I first started taking tablets when I thought that things had

stopped getting worse, but things seem to be getting slowly worse and not

better. It's getting quite depressing!

>

>Jo

[Guest guest]

In <20021126181657.1254.qmail@...>, on 11/26/02

at 10:16 AM, Bell <web63@...> said:

>The Azulfidine will not help with your pains.

>I think it only helps slow the deterioration of the

>joints. I have been on Azulfidine for over 2 years. My

>Rheumy tells me to just keep taking it. It helps in

>the long run. IT IS NOT A SHORT TERM HELP!

>If your Rheumy is telling you it should be working and

>not to come back if you still have pain, GET A NEW

>RHEUMY!!!

Hmm... I was on azulfidine, and because my pain and swelling did not

subside after a few months, I've been moving on to other things. My

rheumy told me that it should reduce the pain (in conjunction with

naproxen) if it was truly working toreduce the damage from arthritis. YOU

might want to see if your rheumy is leading down the wrong path.

--

-----------------------------------------------------------

" Mark Abramowitz " <marka@...

-----------------------------------------------------------

[Guest guest]

http://drhuldaclark.org/ Start here

mel.. ;-)

INTRO

Hello All!

My name is and I'm a 34 year old mother of three from Southern

California. I have Candida and have just finished a 30-candida program. I now

feel much better, but am still on the Candida diet and plain on staying on it

forever, as I do not want to get sick again. I'm also taking Yeast Fighters to

knock out any lingering yeast.

I am interested in finding an intensive detox/cleansing for all organs including

a parasite cleanse.

I'm looking forward to getting to know you all! )

in CA

[Guest guest]

<<http://drhuldaclark.org/ Start here >>

Thank you Mel! )

[Guest guest]

With TRT my level fluctuates between 27.0 and 41.5

My best days are currently Monday to Wednesday when the testo hits it's peak

on Monday, however by Friday (the day after my shot) and for the rest of the

weekend my energy and mood are completely sapped.

Like now, it's 8.30pm and I feel like I have been awake for 2 days!

I receive 150mg every 7 days.

In my case puberty was delayed and did not happen until I was in my early

twenties, but in effect I will never complete the pubescent cycle. The

trials and tribulations of XXY!

Steph

----- Original Message -----

From: Carpenter

Sent: Wednesday, February 19, 2003 10:53 PM

> Hi all

>

> I'm 36 and have just been diagnosed with secondary hypogonadism. I started

> reading this list after my first endo appointment, and I've just had the

> diagnosis confirmed at a second one. It looks like this is a pretty useful

> place to exchange information and experiences, so I hopeto contribute from

> time to time..................

>

[Guest guest]

Hi Eileen,

I take Bextra, its much easier on the stomach. Do you have psoriasis?

[Guest guest]

> Hi Everyone,

>

> I'm Eileen from Dallas Texas. I don't know if I have PA. Have been

> diagnosed with osteo, but always ask the docs why the joints are

affected

> symmetrically and they don't know. They say it has to be something

auto

> immune, but RA tests come back negative. Is PA considered auto

immune or

> degenerative, like osteo? As I keep reading, I'll learn more. I

> particularly want to know what you do to protect your tummies from

the

> NSAIDs.

>

> Some of you seem to be so young to be suffering with this and my

heart

> breaks to read this.

> Yes.. pa is considered an autoimune illness and is often

symetrical. Do you have psoriasis? I guess you can get it without

the skin problems but I think it is unusual.

Marti W.

> Eileen

>

>

[Guest guest]

Hello Eileen,

I'm 31 and have had psoriatic arthritis for 7 years now.

It sounds like you may be in the process of obtaining a diagnosis.

There are some things you should probably know to arm yourself during

this process.

1. There are over 100 forms of arthritis.

2. Some are auto-immune, some are degenerative, some are caused by

outside factors like a disease, virus, or bacterial infection.

3. You should be seeing a rheumatologist already for treatment of the

aparent osteo arthritis. Rheumies specialize in all of the forms of

arthritis and are the best people to see for it.

4. There is a form of rheumatoid arthritis that they currently call

" sero-negative rheumatoid arhritis " . That is when you do not have the

rheumatoid factor, but show all other symptoms of RA (rheumatoid

arthritis).

5. There is no positive test for PsA (psoriatic arthritis) other than

to test negative for all other forms of arthritis AND you have

psoriasis.

Do you have psoriasis? Are your nails pitted or ridged at all? That

information would be very helpful to show the rheumatologist.

6. As for NSAID's: the best regimen is to always take them with food.

If you begin to show signs of stomach upset, see if the over-the-

counter medications are helpful. If those become less helpful, ask

your doctor if they will prescribe a medication to help with the

stomach symptoms. Try and be aware of any other symptoms that might

be signs of gastrointestinal bleeding. If the pain is incredibly

severe, call your doctor immediately.

7. In general, there are a lot of treatments and medication to

relieve the pain. Try and find a medical team of doctors who supports

pain relief and symptom relief. Suffering should not be an automatic

effect with diseases anymore.

Best wishes,

Meghan

> Hi Everyone,

>

> I'm Eileen from Dallas Texas. I don't know if I have PA. Have been

> diagnosed with osteo, but always ask the docs why the joints are

> affected symmetrically and they don't know. They say it has to be

> something auto immune, but RA tests come back negative. Is PA

> considered auto immune or degenerative, like osteo? As I keep

> reading, I'll learn more. I particularly want to know what you do>

> to protect your tummies from the NSAIDs.

> Eileen

>

>

[Guest guest]

> I read somewhere that we can get the joint pain prior to the

psoriasis with PA. I don't have skin problems (yet), but do have like an

excess of skin growing under my nail tips. Nothing on the surface of the

fingers and toes though.>>

Hi Eileen,

Years ago when I first had one toe swell up I had only a small amount

of skin involvement and it wasn't diagnosed as psoriasis. The PA

diagnosis actually changed the skin diagnosis. Sounds like you could

be on the right track. Good Luck! Marti