Intro

[Guest guest]

Dear , Welcome to our group. Your psoriasis is much worse than mine,

and every time I read an email from someone who has it bad, I remember how

lucky I truly am. I'm sorry you have to suffer so much and now have to add

arthritis to the mix. Enbrel didn't work for me, but a lot of people have

had success with it on their psoriasis and arthritis pain. I think it's

great that the dermatologist works with the rheumatologist. So often it's

impossible to even get your doctor to talk to another doctor. Two heads are

always better than one.

Hang in there and I hope you get some answers soon. This is a great group

and you'll find that most people are very compassionate and understanding.

It seems like someone has gone through the same thing at one point in time.

Good luck with the dermatologist and let us know how you do. Take care and

I hope you feel better soon. Welcome, Fran [ ] Intro

Hi folks. I am ,57 years old and currently

suffering with Psoriasis. I have an appointment

with a dermatologist next week (sent by my GP).

I was not sure if i should see a dermy or a

rheumy, but my doc said they sort of work in

pairs and co-operate with treatment. Does this

sound right?

I have had psoriasis for about 6 months, and

haven't had any aggressive treatment yet.

For the past ten years I have used a wheelchair

most of the time because of an auto accident, but

for the past couple of months, the pain in my

hands, elbows and shoulders have made it almost

impossible to manage the chair. Therefore I

don't get out much; only where I can navigate

with forearm canes for short distances. Now with

the arth. affecting my thumbs, wrists and feet,

and the psor. starting on my palms and

soles...even that is becoming less possible. Also

it is so bad on my scalp. I have had to shave my

head and wear a hat (ugh).

I hate seeing my bedsheets with little blood

spots all over them in the morning, not to

mention waking up feeling like I am sleeping in a

sandbox from all the skin shed during the night.

Needless to say, I can't sleep with my husband

with all this.

I have found out that my father, mother and

maternal grandmother all had psoriasis, but quite

mild in comparison to mine.

I am hoping that after seeing the dermy, I will

have a better state of mind, but for now, I am

really depressed and miserable...and misery loves

company they say...well HELLO COMPANY!

=====

Shalom

__________________________________________________

[Guest guest]

Hello Yourself COMPANY! Sorry you found it necessary to find us. You are

definitely experiencing a horrible flare. I think your docs should & will

work together to get you whatever relief they can. There are meds that can

help, let's just hope they hit on a combination that will get you quick

relief. The depression is certainly normal just don't let it rule your days

if you can help it. You are correct, we love company in our misery but we

also share triumphs so I am looking forward to yours.

Welcome, Cheri

[ ] Intro

>

>

>

> Hi folks. I am ,57 years old and currently

> suffering with Psoriasis. I have an appointment

> with a dermatologist next week (sent by my GP).

> I was not sure if i should see a dermy or a

> rheumy, but my doc said they sort of work in

> pairs and co-operate with treatment. Does this

> sound right?

>

> I have had psoriasis for about 6 months, and

> haven't had any aggressive treatment yet.

>

> For the past ten years I have used a wheelchair

> most of the time because of an auto accident, but

> for the past couple of months, the pain in my

> hands, elbows and shoulders have made it almost

> impossible to manage the chair. Therefore I

> don't get out much; only where I can navigate

> with forearm canes for short distances. Now with

> the arth. affecting my thumbs, wrists and feet,

> and the psor. starting on my palms and

> soles...even that is becoming less possible. Also

> it is so bad on my scalp. I have had to shave my

> head and wear a hat (ugh).

>

> I hate seeing my bedsheets with little blood

> spots all over them in the morning, not to

> mention waking up feeling like I am sleeping in a

> sandbox from all the skin shed during the night.

> Needless to say, I can't sleep with my husband

> with all this.

>

> I have found out that my father, mother and

> maternal grandmother all had psoriasis, but quite

> mild in comparison to mine.

>

> I am hoping that after seeing the dermy, I will

> have a better state of mind, but for now, I am

> really depressed and miserable...and misery loves

> company they say...well HELLO COMPANY!

>

>

>

> =====

> Shalom

[Guest guest]

Hi ,

Wecome to the group but sorry that circumstances have brought you here. It

would or should usually work that the Rheumy and Derm (Sounds like a comedy

show. lol) would sort of work together or at least be aware of what each other

is doing. I don't think that will always be the case though.

I hope that between them they can come up with something that will help both

the P and the PA.

Good luck,

[Guest guest]

---

Hi ,

So sorry to hear about your PA!! I also have P on my scalp real bad

and have chopped my hair off as short as I can-my husband hates it,

but he doesn't have to live with the awful problem with the itching,

flakes, etc. It drives me crazy. I also use a wheelchair and have

to wait for someone to push me because I can't use my hands to make

it go-I can use a walker, but that really hurts my hands so if it's

not something important I stay home sitting in my favorite chair.

I hope you get started on Enbrel or something like it soon to help

you. My prays are with you.

God Bless, Sue in Michigan.

In , Griffee <whlcat51@y...>

wrote:

>

>

> Hi folks. I am ,57 years old and currently

> suffering with Psoriasis. I have an appointment

> with a dermatologist next week (sent by my GP).

> I was not sure if i should see a dermy or a

> rheumy, but my doc said they sort of work in

> pairs and co-operate with treatment. Does this

> sound right?

>

> I have had psoriasis for about 6 months, and

> haven't had any aggressive treatment yet.

>

> For the past ten years I have used a wheelchair

> most of the time because of an auto accident, but

> for the past couple of months, the pain in my

> hands, elbows and shoulders have made it almost

> impossible to manage the chair. Therefore I

> don't get out much; only where I can navigate

> with forearm canes for short distances. Now with

> the arth. affecting my thumbs, wrists and feet,

> and the psor. starting on my palms and

> soles...even that is becoming less possible. Also

> it is so bad on my scalp. I have had to shave my

> head and wear a hat (ugh).

>

> I hate seeing my bedsheets with little blood

> spots all over them in the morning, not to

> mention waking up feeling like I am sleeping in a

> sandbox from all the skin shed during the night.

> Needless to say, I can't sleep with my husband

> with all this.

>

> I have found out that my father, mother and

> maternal grandmother all had psoriasis, but quite

> mild in comparison to mine.

>

> I am hoping that after seeing the dermy, I will

> have a better state of mind, but for now, I am

> really depressed and miserable...and misery loves

> company they say...well HELLO COMPANY!

>

>

>

> =====

> Shalom

>

> __________________________________________________

>

[Guest guest]

Hi ,

Great name don't you think, so sorry we share more than that!!

Cheri has said it all ~ so simply let me say " ditto " ...

Welcome... There is hope and there is no better place to see that then here in

the lines of these e-mails.

Best wishes,

Cheri Yost <cdyost@...> wrote:

Hello Yourself COMPANY! Sorry you found it necessary to find us. You are

definitely experiencing a horrible flare. I think your docs should & will

work together to get you whatever relief they can. There are meds that can

help, let's just hope they hit on a combination that will get you quick

relief. The depression is certainly normal just don't let it rule your days

if you can help it. You are correct, we love company in our misery but we

also share triumphs so I am looking forward to yours.

Welcome, Cheri

[Guest guest]

In a message dated 3/24/05 9:10:27 PM Eastern Standard Time,

animo64@... writes:

> Through the interlibrary loan association I received a

> copy of " The Cure for all Cancers " and within a matter

> of minutes I understood my dream.

>

Hi,

What is the interlibrary loan association? Is there a website?

Thanks,

[Guest guest]

Wow, how in the world do you do all that? All nine children with Lyme?

How about your husband? Has he been tested? My husband and I both have

it as well as our daughter. We believe it was transmitted sexually from

me to him and then my daughter was born with it. We can barely function

with just the three of us sick. I was impressed with your ability to

even write everything you did about your family. I have great

difficulty getting my thoughts down. I was also surprised that you

have been able to teach your children to do needle work. I have

difficulty doing that now even though I did lots of it before, as well

as painting. I certainly can relate to the danger in the kitchen. I

sometimes wonder how we have managed to keep from getting hurt. So

sorry that you have so many dealing with this. Hope you can find

support on this group.

Granny

[Guest guest]

Dear Raen Shirley,

You are exceptional and an inspiration to us all. 12 yrs of battling Lyme (my

son and I), we, too, have learned that we must break out of the traditional

educational box and meet the needs of our son. Educational videos available

through video mail clubs (Netflix, etc.) has helped us a great deal. They carry

PBS documentaries, History channel production, Independent documentaries, etc.

Art, music, and poetry are life savers. I pray your family is blessed beyond

measure. Thank you for blessing our family with your story of courage,

commitment, and love. Jillian and family

star_phoenix_9 <star.phoenix.9@...> wrote:

I guess I should introduce myself. I'm Raen Shirley, mom to nine

wonderful children ages 8 wks, 1, 3, 4, 8, 9, 11, 12, and 13 years.

I home school my 4 through 13 yr olds. My children were born with

Lyme. They caught it from me. Some had immediate symptoms from

birth and others have had progressive ones. After years of failing

health and failing to chase down what is wrong with me, I finally

diagnosed us all using the internet. My doctor doesn't know about

my children's issues but isn't willing to look at lyme as a

possibility with me. I actually remember the tick and the troubles

starting within a few weeks of that bite.

None of my children have had contact with ticks but two (12 and 3 yr

old) have had the bull's eye rashes. Four of them (1,3,4, 11, and

13 yr olds) have had eczema type skin problems as younger children.

Two (12 and 11 yr olds) have had unidentified rashes went away

either on their own after a couple of weeks of non-treatment or

after a few days with antibiotic cremes; Both of these had this rash

at age eight so one had it one year and the other the following

year. The first of the two was born with joint problems and the

second started having joint problems right after the disappearance

of the rash.

Several of the children have painful popping joints that seem to

flare up and get worse as the air pressure outside gets closer to

30.0 ;Popping, aching joints, sharp stabbing pains through limbs,

angina and other heart symptoms, exhaustion, confusion, inability to

sequence, memory problems, hearing and comprehension difficulties,

insomnia and sleeping 12 hours non-stop; anger, frustration, and

depression were serious issues until we figured out how to help the

emotional health...now we see much less of that. One child has

autisic type tendancies. A couple of children have begun

complaining that their limbs don't move when they want them to,

resulting in injury. I'm sure I'm forgetting some stuff but the list

would take forever and a day to write out anyway.

Most days we just endure how we feel, take hot showers, give warm

baths, use heating pads on particularly painful joints. But when

the children get to the point of tears or screaming as in the case

of the youngest ones as the seasons change or bad storms roll

through, I give them tylenol for the pain. My husband asks why i

don't just tylenol everyone every day. I tell him my point is to

improve health, not make it worse. We drink only distilled water to

cut down on bacteria intake. I've tried many different vitamins on

thme and have settled on Emer'gen-C Jr. vitamin supplements. They

say it makes them feel better on days they drink that.

If I were the provider of meals then we would avoid milk and sugars,

cut way back on starchy foods too..... but my husband is the cook

and grocery shopper. My job is to care for the babies, direct

traffic, educate the children, and deal with the emotional well

being of everyone. For a woman that was always very active, a

perfectionist about cleanliness, and believed no job could be done

right unless it was done by myself....this has been a difficult

adjustment. But, for instance, we realised it wasn't safe for me to

cook when I started getting burned, breaking things due to shaking

weakened hands, and forgettign to turn off the fire or letting

things burn because I forgot I was cooking. So I am thankful; to

still be a useful contributing member of the family and take what I

do very seriously even if others gossip about me and think I'm

pathetic.

When they were younger, my now 12 yr old had a lot of the symptoms

of a child with adhd. So I shaped our entire home school to her

needs. This meant that all our lessons had to engage as many of

their senses as possible. We went to great effort to make school

fun, and art became a very important part of our lives. This turned

out to be a very good thing because as my own illness progressed, I

came to realise that the things I loved to do would not be possible

for me anymore, and once I realised my children also had whatever I

had.... I knew they would need to feel useful even though disabled

and that they would need to be able to do things they loved to keep

their emotional selves healthy especially when their bodies failed

them. So they would need to love things they could actually do.

My husband introduced them to computers and I began teaching them

pen and paint, sculpting, and needle work crafts (sewing, crochet,

cross-stitch, etc). We didn't know it then but this approach has

naturally lead into the next step which was to unschool our older

children. Once they read, write, etc well, we begin introducing

them to different projects, ideas, areas of study.... and feed

whatever they spark on for as long as they are excited about it.

This in turn has lead to my 13 year old and 11 year old now looking

into what they want to do in terms of a future career. My 13 year

old decided last year that she wants to be a Graphic Artist. She

has been putting a lot of energy into that direction and has

impressive talents along those lines. She competes and wins in

contests with other peopel of all ages, even adults.

Recently, my eleven year old has decided she wants to be a computer

programmer. I started her on her way with this but I do not have

enough information to school her properly so she is now being

tutored on the weekends and practices throughout the week between.

My 12 year old is inclined towards comic book art, writing fiction,

and astronomy, but she hasn't really chosen a career idea yet and

I'm not pressuring her. It will come when it comes, just as it did

with my other two. My nine year old is interested in massage

therapy and I secretly hope she will combine that with herbal

knowledge. My eight year old just wants to be a Jedi and my four

year old girl wants to be a boy like my 8 year old. *laugh*

So, as you can see, even though lyme is a big factor in our lives...

we're just very busy living, learning, and enjoying our lives to the

fullest. Thankfully, my husband is still capable of providing for

us. We have a family living near us that also have lyme where the

father has come down very ill and isn't able to provide for his

family anymore. In fact, we live in a home where just such a family

lived before us. So we consider ourselves very blessed.

I hope this has been an okay introduction. I wasn't sure what

should be included.

Raen

---------------------------------

[Guest guest]

Hi Raen,

I also homeschool my Lyme ill children. I also have had this for about

28 years and gave it to them in utero. I only have 3 children though.

They are 13, and 16 year old twins. I will post more later, I have

to take my daughter to the ENT she is experiencing hearing problems,

that I believe are due to lyme disease.

Congrats on sticking with it, although you and I both know this is the

only choice for our sick kids, right? I know mine would never make it

in school, due to health issues. I also homeschool for spiritual

convictions.

Talk to you soon,

>

> I guess I should introduce myself. I'm Raen Shirley, mom to nine

> wonderful children ages 8 wks, 1, 3, 4, 8, 9, 11, 12, and 13 years.

> I home school my 4 through 13 yr olds. My children were born with

> Lyme. They caught it from me. Some had immediate symptoms from

> birth and others have had progressive ones. After years of failing

> health and failing to chase down what is wrong with me, I finally

> diagnosed us all using the internet. My doctor doesn't know about

> my children's issues but isn't willing to look at lyme as a

> possibility with me. I actually remember the tick and the troubles

> starting within a few weeks of that bite.

>

> None of my children have had contact with ticks but two (12 and 3 yr

> old) have had the bull's eye rashes. Four of them (1,3,4, 11, and

> 13 yr olds) have had eczema type skin problems as younger children.

> Two (12 and 11 yr olds) have had unidentified rashes went away

> either on their own after a couple of weeks of non-treatment or

> after a few days with antibiotic cremes; Both of these had this rash

> at age eight so one had it one year and the other the following

> year. The first of the two was born with joint problems and the

> second started having joint problems right after the disappearance

> of the rash.

>

> Several of the children have painful popping joints that seem to

> flare up and get worse as the air pressure outside gets closer to

> 30.0 ;Popping, aching joints, sharp stabbing pains through limbs,

> angina and other heart symptoms, exhaustion, confusion, inability to

> sequence, memory problems, hearing and comprehension difficulties,

> insomnia and sleeping 12 hours non-stop; anger, frustration, and

> depression were serious issues until we figured out how to help the

> emotional health...now we see much less of that. One child has

> autisic type tendancies. A couple of children have begun

> complaining that their limbs don't move when they want them to,

> resulting in injury. I'm sure I'm forgetting some stuff but the list

> would take forever and a day to write out anyway.

>

> Most days we just endure how we feel, take hot showers, give warm

> baths, use heating pads on particularly painful joints. But when

> the children get to the point of tears or screaming as in the case

> of the youngest ones as the seasons change or bad storms roll

> through, I give them tylenol for the pain. My husband asks why i

> don't just tylenol everyone every day. I tell him my point is to

> improve health, not make it worse. We drink only distilled water to

> cut down on bacteria intake. I've tried many different vitamins on

> thme and have settled on Emer'gen-C Jr. vitamin supplements. They

> say it makes them feel better on days they drink that.

>

> If I were the provider of meals then we would avoid milk and sugars,

> cut way back on starchy foods too..... but my husband is the cook

> and grocery shopper. My job is to care for the babies, direct

> traffic, educate the children, and deal with the emotional well

> being of everyone. For a woman that was always very active, a

> perfectionist about cleanliness, and believed no job could be done

> right unless it was done by myself....this has been a difficult

> adjustment. But, for instance, we realised it wasn't safe for me to

> cook when I started getting burned, breaking things due to shaking

> weakened hands, and forgettign to turn off the fire or letting

> things burn because I forgot I was cooking. So I am thankful; to

> still be a useful contributing member of the family and take what I

> do very seriously even if others gossip about me and think I'm

> pathetic.

>

> When they were younger, my now 12 yr old had a lot of the symptoms

> of a child with adhd. So I shaped our entire home school to her

> needs. This meant that all our lessons had to engage as many of

> their senses as possible. We went to great effort to make school

> fun, and art became a very important part of our lives. This turned

> out to be a very good thing because as my own illness progressed, I

> came to realise that the things I loved to do would not be possible

> for me anymore, and once I realised my children also had whatever I

> had.... I knew they would need to feel useful even though disabled

> and that they would need to be able to do things they loved to keep

> their emotional selves healthy especially when their bodies failed

> them. So they would need to love things they could actually do.

>

> My husband introduced them to computers and I began teaching them

> pen and paint, sculpting, and needle work crafts (sewing, crochet,

> cross-stitch, etc). We didn't know it then but this approach has

> naturally lead into the next step which was to unschool our older

> children. Once they read, write, etc well, we begin introducing

> them to different projects, ideas, areas of study.... and feed

> whatever they spark on for as long as they are excited about it.

>

> This in turn has lead to my 13 year old and 11 year old now looking

> into what they want to do in terms of a future career. My 13 year

> old decided last year that she wants to be a Graphic Artist. She

> has been putting a lot of energy into that direction and has

> impressive talents along those lines. She competes and wins in

> contests with other peopel of all ages, even adults.

>

> Recently, my eleven year old has decided she wants to be a computer

> programmer. I started her on her way with this but I do not have

> enough information to school her properly so she is now being

> tutored on the weekends and practices throughout the week between.

>

> My 12 year old is inclined towards comic book art, writing fiction,

> and astronomy, but she hasn't really chosen a career idea yet and

> I'm not pressuring her. It will come when it comes, just as it did

> with my other two. My nine year old is interested in massage

> therapy and I secretly hope she will combine that with herbal

> knowledge. My eight year old just wants to be a Jedi and my four

> year old girl wants to be a boy like my 8 year old. *laugh*

>

> So, as you can see, even though lyme is a big factor in our lives...

> we're just very busy living, learning, and enjoying our lives to the

> fullest. Thankfully, my husband is still capable of providing for

> us. We have a family living near us that also have lyme where the

> father has come down very ill and isn't able to provide for his

> family anymore. In fact, we live in a home where just such a family

> lived before us. So we consider ourselves very blessed.

>

> I hope this has been an okay introduction. I wasn't sure what

> should be included.

>

> Raen

[Guest guest]

Hi~

I am brand new here, and was wondering if anyone can share what the " zapping "

has done for you personally? Has anyone had any positive results with diabetes?

Thank You

Lynn

[Guest guest]

Hi Lynn, I am a diabetic too, i wrote a post asking for help on

diabetes but it looks like nobody knows or have expierenced it against

diabetes..anyways I found some info on the zapper with diabetes on the

zapper forum of the site www.curezone.com at this link

http://curezone.com/forums/m.asp?f=292 & i=8659

Hope this helps!

>

> Hi~

> I am brand new here, and was wondering if anyone can share what

the " zapping " has done for you personally? Has anyone had any positive

results with diabetes?

>

> Thank You

> Lynn

>

[Guest guest]

It is normal that after a week of zapping the tension of the battery

decreases below 9volt. To know if the zapper works you must measure the

tension between the handfolds.

The tension must be 4.5 volts.

It is impossible to cure a cold with a zapper.

Dr. recommends to take 10 grammes vitamin c.

She claims that a cold arises when you have molds in your body.

Only vitamin c can kill molds.Read her first book.It is on line in this list.

At 12:18 25/01/2006 -0000, you wrote:

> Hello. By way of Introduction, my name is Deb. I live in Australia and

> have stumbled upon Ms. 's book. Actually, my Chiropractor had it

> on his shelf and I kept picking it up each time I went in. Eventually

> I bought my own copy. I must say, some of the stuff sounds extreme by

> " " ) but it all makes

> sense. We managed to clear up my husband's psoriasis (it's back now

> b/c we only worked out in hindsight what exactly worked, sort of) and

> he gained overall better health. I'm on the way. I do have a couple

> questions....

>

> " " being sold by bestzapper.com? I

> made my own but, ever the skeptic, wonder sometimes if it's actually

> working. We hooked a multi-meter up to it and there is 9V of current

> passing through but it doesn't stay at 9V for long once you've done a

> weeks' worth of zaps. That being said, I'm just looking around to

> maybe purchase one. Another thing, too, we experienced no symptoms

> (cold or flu) after zapping and, tried zapping at the onset of our

> next cold and it didn't head it off.

>

> * Along the way I've had my metal fillings replaced by composite but

> still retain 2 gold crowns. Has anyone experienced relief at getting

> gold removed or noticed a change in their health? I ask b/c I think

> it's affecting my vision internally, if that makes sense.

>

> There was one other one but it's gone now. It'll circle back around

> and I'll post it when that happens. Thanks for taking the time to read

> and thanks, too, if you reply.

>

> Cheers.

>

>

>

>

>

>

>

>

>

[Guest guest]

Thanks for the reply - I'll do as you've suggested. I've been poring

through " Cure For All Diseases " the last couple days and am going to

try to source some items today. It's difficult to locate some things.

(Even 4 lb. test fishing line is proving elusive - forget about 2lb.

test.) I read some where about a high dose of CoQ10 and need to find

where I read it and what exactly it's good for.....among other things.

Thanks again for taking the time....

> > Hello. By way of Introduction, my name is Deb.<SNIP>

[Guest guest]

OK question about zapping. Does getting electricuted do the same thing? My

boyfriend electricuted himself last week doing some electrical work.... It

wasn't too bad that he got knocked out... Maybe he doesn't need to zap?

Shefy

Deb <debwilkes2@...> wrote: Thanks for the reply - I'll do as

you've suggested. I've been poring

through " Cure For All Diseases " the last couple days and am going to

try to source some items today. It's difficult to locate some things.

(Even 4 lb. test fishing line is proving elusive - forget about 2lb.

test.) I read some where about a high dose of CoQ10 and need to find

where I read it and what exactly it's good for.....among other things.

Thanks again for taking the time....

> > Hello. By way of Introduction, my name is Deb.<SNIP>

[Guest guest]

My mom got off of her diabetes pills (forget if they were glyburide or

metformin) after about two months on the Auto-Zap zapper. She passed away of a

heart attack a year later, but had no more diabetes that I know of...

Blessings!

Arthur

888-533-7007

www.BestZapper.com

www.BestWithoutDrugs.com

Re: Intro

Hi Lynn, I am a diabetic too, i wrote a post asking for help on

diabetes but it looks like nobody knows or have expierenced it against

diabetes..anyways I found some info on the zapper with diabetes on the

zapper forum of the site www.curezone.com at this link

http://curezone.com/forums/m.asp?f=292 & i=8659

Hope this helps!

>

> Hi~

> I am brand new here, and was wondering if anyone can share what

the " zapping " has done for you personally? Has anyone had any positive

results with diabetes?

>

> Thank You

> Lynn

>

[Guest guest]

Hi Lynn, I have used Dr. s whole protocol (herbs *and* zapping)

to be rid of diabetes. It works very well if you do your best to avoid

wood alcohol and take the anti-parasite herbs on a regular basis (and

since I can't zap just now, I do the herbs on a 5 day schedule instead

of a weekly one, and that seems to suffice).

Did your mom not do the anti-parasite herbs too, Arthur?

Annette

> >

> > Hi~

> > I am brand new here, and was wondering if anyone can share what

> the " zapping " has done for you personally? Has anyone had any positive

> results with diabetes?

> >

> > Thank You

> > Lynn

> >

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Dear Annette,

My mom only used the zapper.

Blessings!

Arthur

888-533-7007

www.BestZapper.com

www.BestWithoutDrugs.com

Re: Intro

Hi Lynn, I have used Dr. s whole protocol (herbs *and* zapping)

to be rid of diabetes. It works very well if you do your best to avoid

wood alcohol and take the anti-parasite herbs on a regular basis (and

since I can't zap just now, I do the herbs on a 5 day schedule instead

of a weekly one, and that seems to suffice).

Did your mom not do the anti-parasite herbs too, Arthur?

Annette

> >

> > Hi~

> > I am brand new here, and was wondering if anyone can share what

> the " zapping " has done for you personally? Has anyone had any positive

> results with diabetes?

> >

> > Thank You

> > Lynn

> >

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Did she not want to follow Dr. 's protocol in full? Or do you

think her heart failure was not related to the parasites Dr.

implicates? I ask because heart problems run in my family, and I am

always curious as to how this stuff works with other diseases besides

diabetes and high blood pressure.

Thanks!

Annette

> > >

> > > Hi~

> > > I am brand new here, and was wondering if anyone can share

what

> > the " zapping " has done for you personally? Has anyone had any

positive

> > results with diabetes?

> > >

> > > Thank You

> > > Lynn

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

No, she went as far as zapping, but did not do the clean-ups.

Arthur

Re: Intro

Did she not want to follow Dr. 's protocol in full? Or do you

think her heart failure was not related to the parasites Dr.

implicates? I ask because heart problems run in my family, and I am

always curious as to how this stuff works with other diseases besides

diabetes and high blood pressure.

Thanks!

Annette

> > >

> > > Hi~

> > > I am brand new here, and was wondering if anyone can share

what

> > the " zapping " has done for you personally? Has anyone had any

positive

> > results with diabetes?

> > >

> > > Thank You

> > > Lynn

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Ahh ok, Arthur. So we don't really know for sure about how Dr.

's protocol works at that level, in this case then. Thanks!

> > > >

> > > > Hi~

> > > > I am brand new here, and was wondering if anyone can share

> what

> > > the " zapping " has done for you personally? Has anyone had any

> positive

> > > results with diabetes?

> > > >

> > > > Thank You

> > > > Lynn

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Welcome, Jaye! Where are " y'all " originally from? (I'm in Baton

Rouge.) <grin> Glad to welcome someone who speaks my language.

regards,

sherry

>

> Hi folks,

>

> I thought I should introduce myself to this group. My

> name is Jaye, and I am 42. I live in Bellevue, WA.

[Guest guest]

Hi Jayne from Washington,

Welcome to the group. Your story about PA is not unlike many here,

though I believe most people have had their symptoms progress at a

slower rate. Your story about you and your husband quitting your jobs

and cuising the straits, the narrows and the sounds of the NW coast is

a bit more romantic than many have done. I have scaled back on the

outdoor activities that I do, but I still enjoy nature as much as

possible. As live-aboard boats require so much maintenance, we are

down to a 56 pound Kevlar (somewhat beamy) canoe and a smallish

camping trailer - no barnacles to scrape. We still get out in nature,

but not in a Gale, and we run with the tide. Fighting the progression

of this disease is enough that I wish not to fight mother nature as

well.

Brent...from BC

[Guest guest]

In a message dated 6/27/2006 3:46:52 A.M. Pacific Daylight Time,

jayesails@... writes:

She wants me to

start Remicade and MTX at a very low dose. I'll

decide this week if I'm going to try it. MTX scares

me, and there's no way that I'm going to cut drinking

out of my life entirely -- I've given up enough from

this -- running, wearing nice shoes, walking

everywhere, being an active co-captain on our boat --

but she's quite adamant that I should take 7.5

mgs/week, and just says she'll monitor my liver

Hi Jaye,

A few of us on this board see Dr Mease in Seattle at Swedish Hospital (I

recently moved here and was referred to him by patients of his from this

group).

I don't take MTX and do take Remicade, and their office has been very

supportive of this...if you feel strongly about it, you might want to try their

office. You can always add the MTX if you need to. I talk sulfasalazine with

the Remicade, and that combination seems to work for me...

While most rheumies do advocate MTX and Remicade (or any of the

biologicals), I haven't wanted to do MTX and have found Dr Mease's office to be

open to

having me be part of the decision making...may be worth a vist:-)

[Guest guest]

Hi Brent,

Our cruise last summer was something we'll remember

for the rest of our lives. This is a truly wonderful

area for almost any kind of boating. We have a small

kayak -- a beamy kevlar (wow -- 56 pounds! that's

amazing) canoe sounds like it would be fun, since we

could do it together.

> Fighting the progression

> of this disease is enough that I wish not to fight

> mother nature as

> well.

Well said. We're pretty fair weather, downwind

sailors ourselves -- except when the weather gods

decide otherwise.

--- skrewtz <brentherman@...> wrote:

> Hi Jayne from Washington,

>

> Welcome to the group. Your story about PA is not

> unlike many here,

> though I believe most people have had their symptoms

> progress at a

> slower rate. Your story about you and your husband

> quitting your jobs

> and cuising the straits, the narrows and the sounds

> of the NW coast is

> a bit more romantic than many have done. I have

> scaled back on the

> outdoor activities that I do, but I still enjoy

> nature as much as

> possible. As live-aboard boats require so much

> maintenance, we are

> down to a 56 pound Kevlar (somewhat beamy) canoe and

> a smallish

> camping trailer - no barnacles to scrape. We still

> get out in nature,

> but not in a Gale, and we run with the tide.

> Fighting the progression

> of this disease is enough that I wish not to fight

> mother nature as

> well.

>

> Brent...from BC

>

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

Welcome Jaye

This site is great you will get lots of information here and lots of support.

I am with you my love on the age thing. I am 43 years old and know exactly what

you are talking about. I can only imagine what is in store for me next. I have

two spots on me that are psoriasis. I actually didn't know that that is what

they were, my dr told me that they were psoriasis. Who in the world would have

ever thought that psoriasis would cause something like psoriatic arthritis? It

is crazy isn't it? I have had it in my knee, like you the pain being so severe

that it is almost impossible to work or do anything. I just had a flair in

April on my right ankle and girl it through me for a loop!! I told my husband

that I have had 3 children and the pain was not this severe..... Oh it was so

unbelieveable..... I had to use a wheelchair to get into the Dr. I could not

walk around in my house.... I crawled around to get to the restroom... My sweet

husband said is there anything that

I can get you, Like something to drink? I said no way because what goes in

must come out!! I was having such a time getting from point A to point B that I

was looking for ways to limit my movements as much as possible. It was so

painful that I could not lay my foot on the bed while laying down. What causes

it? Oh Lord I wish I knew more about it. I really do. I think that stress

plays a huge part of it. Not all of it but a major roll in it.

Once again welcome to this group. You will love it, there are some great

folks here. I just love Kathy, Betsy, , and so many others that I have

totally drawn a blank for the moment. Read the post and you will learn so much

about PsA.

Good luck and blessings

Tammy

Jaye Eldridge <jayesails@...> wrote:

Hi folks,

I thought I should introduce myself to this group. My

name is Jaye, and I am 42. I live in Bellevue, WA.

I was first diagnosed with Palmar Plantar Pustular

Psoriasis in September, 2004, while living in the SF

Bay Area with my husband on our boat. My hands and

feet were so painful that I could barely walk, or use

my hands. I tried topicals, which did next to

nothing, and finally ended up on 50mg of Soriatane a

day, which actually worked pretty well for my hands

and feet.

In the spring of 2005, my husband and I quit our jobs

to realize a long held dream of spending a season

cruising on our boat in Washington and British

Columbia. About half way through our cruise, my knee

started to swell alarmingly, and HURT. I knew what it

probably was, but I wasn't giving up on our trip, so I

started buying aspirin by the half gallon and gritted

my teeth through the end of our trip. Cruising is

fairly physical, so it probably wasn't the greatest

thing to do, but it was something I really wanted. By

the time we got back to Anacortes, where we had a slip

for the boat and hoped to work and live, I could

barely walk. I had symptoms in my knee, both thumbs,

both hips and shoulders and in my neck.

I had no job at this point, but I had COBRA, so I set

about finding a rheumatologist. No easy job in a

small town. Finally found one who could take me, an

80 minute drive away. She put me on Feldene,

Sulfasalazine and gave me cortisone shots, which

worked for a while.

In the meantime, my husband and I both found work in

the Seattle area, so we resigned ourselves to moving

off the boat and renting an apartment. When my new

insurance from my job kicked in, I started Enbrel.

All this time, I had been trying to get off Soriatane,

since it was making my hair fall out and had other

annoying side effects. Enbrel worked great for my

joints, but didn't do jack for my skin. Found a

dermatologist down here, who prescribed Tazorac and

Clobex spray. Still no go.

This dermatologist referred me to a closer

rheumatologist, who I saw last week. She wants me to

start Remicade and MTX at a very low dose. I'll

decide this week if I'm going to try it. MTX scares

me, and there's no way that I'm going to cut drinking

out of my life entirely -- I've given up enough from

this -- running, wearing nice shoes, walking

everywhere, being an active co-captain on our boat --

but she's quite adamant that I should take 7.5

mgs/week, and just says she'll monitor my liver.

It's amazing, and quite depressing, frankly, to have

gone from a healthy, active 40 year old to a rather

disabled 42 year old. I imagine you all have similar

stories.

This looks like an interesting -- glad y'all are here.

__________________________________________________