Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Hi sherry, I grew up around DC with a fair bit of time in the Carolinas, where my folks live now. I don't have much of an accent speaking anymore (until I've been home for a few days, or had a couple of drinks) after living on the west coast for 20 years, but I know it comes out when I write. Baton Rouge has probably changed a great deal since the one and only time I was there, in 1985, but I remember it being a pretty nice stop on a drive from Shreveport to Philadelphia that started late in the day on spring break in college. Nice to meet you. --- " S. Zorzi " <szorzi_1999@...> wrote: > Welcome, Jaye! Where are " y'all " originally from? > (I'm in Baton > Rouge.) <grin> Glad to welcome someone who speaks > my language. > > regards, > sherry > > > > > > Hi folks, > > > > I thought I should introduce myself to this group. > My > > name is Jaye, and I am 42. I live in Bellevue, > WA. > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2006 Report Share Posted June 28, 2006 Hi, Your story so similar to me yes I had a dream and help went down hill from there now Im on disability and taking methotrexate and hydromorphine not much they can do except try to live with it. Well, Im in British Colombia and its very nice here and moutains are very nice Ive just moved here three years ago and still learining about the place. Im sorry that you had to stop your plan but I know how PA can change ones life and trying to find a way to live with it Keep a possitive out look and I will keep you in my prayers. take care t [ ] Intro Hi folks, I thought I should introduce myself to this group. My name is Jaye, and I am 42. I live in Bellevue, WA. I was first diagnosed with Palmar Plantar Pustular Psoriasis in September, 2004, while living in the SF Bay Area with my husband on our boat. My hands and feet were so painful that I could barely walk, or use my hands. I tried topicals, which did next to nothing, and finally ended up on 50mg of Soriatane a day, which actually worked pretty well for my hands and feet. In the spring of 2005, my husband and I quit our jobs to realize a long held dream of spending a season cruising on our boat in Washington and British Columbia. About half way through our cruise, my knee started to swell alarmingly, and HURT. I knew what it probably was, but I wasn't giving up on our trip, so I started buying aspirin by the half gallon and gritted my teeth through the end of our trip. Cruising is fairly physical, so it probably wasn't the greatest thing to do, but it was something I really wanted. By the time we got back to Anacortes, where we had a slip for the boat and hoped to work and live, I could barely walk. I had symptoms in my knee, both thumbs, both hips and shoulders and in my neck. I had no job at this point, but I had COBRA, so I set about finding a rheumatologist. No easy job in a small town. Finally found one who could take me, an 80 minute drive away. She put me on Feldene, Sulfasalazine and gave me cortisone shots, which worked for a while. In the meantime, my husband and I both found work in the Seattle area, so we resigned ourselves to moving off the boat and renting an apartment. When my new insurance from my job kicked in, I started Enbrel. All this time, I had been trying to get off Soriatane, since it was making my hair fall out and had other annoying side effects. Enbrel worked great for my joints, but didn't do jack for my skin. Found a dermatologist down here, who prescribed Tazorac and Clobex spray. Still no go. This dermatologist referred me to a closer rheumatologist, who I saw last week. She wants me to start Remicade and MTX at a very low dose. I'll decide this week if I'm going to try it. MTX scares me, and there's no way that I'm going to cut drinking out of my life entirely -- I've given up enough from this -- running, wearing nice shoes, walking everywhere, being an active co-captain on our boat -- but she's quite adamant that I should take 7.5 mgs/week, and just says she'll monitor my liver. It's amazing, and quite depressing, frankly, to have gone from a healthy, active 40 year old to a rather disabled 42 year old. I imagine you all have similar stories. This looks like an interesting -- glad y'all are here. ____________ _________ _________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2006 Report Share Posted June 28, 2006 - Thanks for the rec. I may check his office out. I picked up the MTX prescription Monday, but haven't taken any. I may lobby for just staying on Sulfasalazine, which has worked reasonably well for me with very few side effects. -- Jaye --- rachelviognier@... wrote: > > In a message dated 6/27/2006 3:46:52 A.M. Pacific > Daylight Time, > jayesails@... writes: > > She wants me to > start Remicade and MTX at a very low dose. I'll > decide this week if I'm going to try it. MTX scares > me, and there's no way that I'm going to cut > drinking > out of my life entirely -- I've given up enough > from > this -- running, wearing nice shoes, walking > everywhere, being an active co-captain on our boat > -- > but she's quite adamant that I should take 7.5 > mgs/week, and just says she'll monitor my liver > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2006 Report Share Posted June 29, 2006 Hi Jaye, I hate to " butting in " but..... I was slightly apprehensive about taking MTX too. I changed my mind. I realized with the help of my Rheumy that by taking only NSAIDS like your sulfazine, I was merely treating symptoms and not getting to the cause of my PA. DMARDs like MTX actually treat the cause of the disease. So while you may be easing your pain with Sulfazine, the reason you have pain will not diminish. In fact it could continue and increase. I've been taking MTX orally for over 4 years. I have ZERO side effects and went from barely walking to 98% normal. I've had a flare or two, but they are usually short-lived. I started on 10mg per week and just 3 months ago increased to 12.5mg. I was starting to have some sausage digits that weren't going away. But, I'm fine now. YES, you need to be committed to giving up alcohol, but as I've mentioned in other posts, I do have a glass of wine now and then. But, I limit it to one, and really it's rare that I have 2 glasses in a month. I know it's tough to try and figure the best choice, but I thought rather the just keep medicating the symptom, I'd medicated the cause. Stay Well, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2006 Report Share Posted June 29, 2006 In a message dated 6/29/2006 1:02:40 P.M. Pacific Daylight Time, david@... writes: help of my Rheumy that by taking only NSAIDS like your sulfazine, I was merely treating symptoms and not getting to the cause of my PA. DMARDs like MTX actually treat the cause of the disease. Sulfasalazine is not an NSAID, it is a DMARD. It isn't effective for all, but is for some. For a good classification of all of the meds, the Arthritis Foundation magazine (Arthritis Today, comes with your membership to the Foundation) publishes a very thorough guide once a year. I didn't save the last one or I would send you a copy. MTX is prescribed much more frequently, and their have been clinical trials that represent the efficacy of MTX + each of the biologics, which is why most rheumies recommend it. Obviously, MTX is a personal decision to be made with your doctor...but if someone doesn't want or can't deal with the side effects of MTX, there is no reason not to start with sulfasalazine along with a biologic...you can always change to MTX if the sulfasalazine doesn't work. I am proof that the combination of sulfasalazine and Remicade can work:-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 In a message dated 27/06/2006 11:46:30 GMT Daylight Time, jayesails@... writes: I thought I should introduce myself to this group. My name is Jaye, and I am 42. I live in Bellevue, WA. Hi Jaye, ............and welcome to the group. It's great that you didn't let all the pain you were going through stop you from doing the things you wanted to do. I hope the change to Remicade along with the MTX works wonders for your skin as well as your joints. Have you actually started it or have you yet to? Best of luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 I thought I should introduce myself to this group. My name is Jaye, and I am 42. I live in Bellevue, WA. Welcome to the group Jaye... My name is Shaun... I am fairly new myself... Love and Peace Always Shaun and Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2006 Report Share Posted August 13, 2006 CAT, I usually leave the welcoming job to the pros (Betz and ). However your intro hit home with me. I also have multiple medical problems. At times I have been on as many as 32 different medications which keeps the pharmacist on his toes making sure the doc and I don't end up killing me as a side effect. Feel free to share and express your concerns about this disease and mixing meds. We have a few medical folks here who may be able to put your mind at ease or to alert you to possible problems. Sandy swOhio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2006 Report Share Posted August 13, 2006 Welcome, Cat. It may be that the meds he will try will be different ones from what you have been taking for OA. Don't panic. If it is PA, there are meds that can make you feel better plus stop the progress of the disease. You may find you feel *much* better if you are finally treating the *right* disease! wishing you well, sherry z > > Hi all, > > My name is Cat and I live in Southeast TN with my husband of 21 years and > 6cats and one dog. I am dealing with multiple medical conditions. I've had Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2006 Report Share Posted August 13, 2006 > > Hi all, > > My name is Cat and I live in Southeast TN > > now my doctor is thinking this might really be PA. I > guess I'm afraid he might be right too. > Thanks for listening > Cat > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2006 Report Share Posted August 13, 2006 I hadn't looked at it that way. Thanks, that is hopeful. Cat -- [ ] Re: Intro Welcome, Cat. It may be that the meds he will try will be different ones from what you have been taking for OA. Don't panic. If it is PA, there are meds that can make you feel better plus stop the progress of the disease. You may find you feel *much* better if you are finally treating the *right* disease! wishing you well, sherry z > > Hi all, > > My name is Cat and I live in Southeast TN with my husband of 21 years and > 6cats and one dog. I am dealing with multiple medical conditions. I've had Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2006 Report Share Posted August 21, 2006 In a message dated 13/08/2006 12:24:11 GMT Daylight Time, LaffinCat@... writes: My name is Cat and I live in Southeast TN with my husband of 21 years and 6cats and one dog. I am dealing with multiple medical conditions. I've had psoriasis for about 15 years and OA but now my doctor is thinking this might really be PA. I guess I'm afraid he might be right too. Anyway I thought I'd check it out and see. I don't know what can be done about it cos I am already on so many medications. Hi Cat, Welcome to the group. You have come to the right place. There are plenty of caring and knowledgeable people here so if you have any questions, fire away. Someone will be able to help I'm sure. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 Hi Kat, nice to hear from you. I whought I would comment upon your question: " 4 years ago had a mild back injury that literally changed my life. Needless to say it took 2 years to recupe from that injury and I was never diagnosed with Arthritis for 3 yrs - my drs all thought I just had sore muscles and it would go away. Amazing...I sometimes wonder if I was a guy with the same problems for that long if I would have been so neglected. " I have had TMJ problems since shortly after the huge strp infection I got 30 years ago. Regarding my being a man and having my back complaint diagnosed: It took about 15 years to find that my spine and SI joint complaints have been PA/AS. I have about 1/2 of an SI joint left; my spine is 80% involved; and, I had to make the diagnosis myself and show it to the rheumatologist! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 HI Kat- Welcome! I'm sorry to hear that this has affected you at a young age. I am 27 and was diagnosed at 17- I think one of the more frustrating things is people telling you that you are too young to have arthritis.I know I always fell a bit jealous of the people who get it later in life. I too, pop and creak more than i'd like- I love how you said like a bowl of rice krispies:) This is a great group of people, who are really willing to give any advice they can. You've picked a good spot to share.I hope your new meds work wonders for you! Try to stay positve! - -- In , " Kat " <vicenza77@...> wrote: > > Hi Everyone! > > Glad I finally decided to reach out and find other folks who are > suffering from PsA! > > My story in a nutshell. I am 28 yr old and was diagnosed with PsA a > year and a half ago. Actually, it was my new oral surgeon checking > out my TMJ who realized that I had a serious Rheumtological disorder, > not the usual suspects in TMJ and promptly sent me to my Rhumy. > > I started with TMJ when i was 19 yrs old and 4 years ago had a mild > back injury that literally changed my life. Needless to say it took 2 > years to recupe from that injury and I was never diagnosed with > Arthritis for 3 yrs - my drs all thought I just had sore muscles and > it would go away. Amazing...I sometimes wonder if I was a guy with > the same problems for that long if I would have been so neglected. > The amazing thing is this...my Primary Physician is a Rheumtologist as > well. Needless to say I don't see him anymore. > > So then started my long winded path to where I am now. After a process > of elimiation it was determined I have PsA - I have never had the skin > condition. So at my tender age I have a bad neck, jaw, back, Left > knee and now it is creeping into both of my hands. Although I will > say this...PsA seems to effect my left side more than the right. > Which lead to a scare a few years ago that I had MS...but mulitple > MRIs and a new scare related to Enbrel shows that i don't. > > So I was on Enbrel for 1 month and it was working great until the MS > symptoms creeped up. So after months of tests and being depressed, I > asked my Rhumy for an alternative medicine...so now I am taking > Sulfalasazine...I think I spelt that right. All I know is that I > can't pronounce it! I hope it works - so far I have had minimual > side effects...with me and my super sensitivity to medications, that > is a miracle. Or a sign that it won't work. > > Since my intial diagnosis, I have gone through a litany of alternative > medicine and tons of Dr appts to see if I have food allergies (none - > but i found out i was allergic to cats and dogs!), leaky gut syndrome > by taking the Sinai Sugar Test (I do, but the regimine to fix it was > incredible and the test itself was not fool-proof), taking > Glucosamine, vitamin D, Vitamin C, Calcium and Magnesium supplanments > (nothing worked), and other alternative medical routes. > > I will say this...when my back was at its worst 2 years ago, it was > Chiropratic care that got me walking again...and it was Acupunture and > a Barbara Brennan healer that were able to give me respite from the > pain. Unfortunatly, I can't affoard any of these so I just pop Advil > like it is candy and exercise. I have found water aerobics to be a > god send. > > Also, there is a new side effect of PsA that i have been > expereincing...maybe some of you are familiar with it...ligament and > tendinosis problems. > > Sorry this is so long! I rarely ever tell anyone the details of my > PsA because of my age no one seems to understand or believe anything > is wrong with me! I am pretty functional...I jsut can't walk 10 miles > anymore, have difficulty getting out of the car and pop like a bowl of > Rice Krispie cereal - especially on rainy days! I hope to learn from > everyone here and to find glimers of hope and stories of bravery > because right now i am feeling pretty hopeless and alone with this > disease. I really don't know anyone else with PsA and I am terrified > of my future with it. > > Thanks for listening! > Kat > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 Hi Kat We guys get no quicker diagnosis... First time I went to a doc for joint problems was 1978, I was finally diagnosed with PsA last summer and started dmards. The last 5 years were pretty rough, if it wasn't for bodywork and a regular stretching program I would've had no relief. Joint problems have been episodic, but I've had chronic tendonitis and tenosynovitis for 15 years. I've been on Enbrel since April and that has made a big difference in the tenosynovitis in general, but certain areas flare unpredictably here and there... Sorry you're a member of the club, but glad you found us. This is a great group of supportive folks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2006 Report Share Posted August 28, 2006 Kat...that sounded alot like me when I was 28. I had some rashes though that nobody ever thought was psoriasis. Now I know that it was. I'm 45 now. I take Enbrel now but am off of it (temporarily I hope) til a UTI clears up. I also take Plaquinel. You are lucky that you are diagnosed early and not years down the road. You'll do better than most of us and the horror stories you read about us will be things that you can be thankful that you won't have to worry about hopefully with all the research and progress that is being done now. Glad you are here Kat but I'm not glad that you have to be here. -Betz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2006 Report Share Posted August 28, 2006 In a message dated 27/08/2006 13:34:58 GMT Daylight Time, vicenza77@... writes: have difficulty getting out of the car and pop like a bowl of Rice Krispie cereal - especially on rainy days! I hope to learn from everyone here and to find glimers of hope and stories of bravery because right now i am feeling pretty hopeless and alone with this disease. Hi Kat, Well, once you start to snap and crackle you will really know you are in trouble. lol Welcome to the group. I am glad you found us but sorry that you are in the position that you had to. No need to be alone with this now. You have just found 2831 friends in one move! lol I'm sorry the Enbrel caused you so much bother and worry. I hope the Sulphalazine works wonders for you. Regarding stories of bravery. Some day I will tell you about the time I fought an escaped lion but I don't want to bore you when you have just newly joined. lol Hope to hear from you again Kat. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 Hey Kat... Welcome aboard... You'll find a lot of people her who have a lot of the same symptoms and problems you have... Don't be afraid to ask if anyone feels a certain way, or has had some of your symptoms or side effects, because there probably a dozen or so who have... OK ... on the subject of the escaped lion... let me guess, toothless and clawless??? michael > > > In a message dated 27/08/2006 13:34:58 GMT Daylight Time, vicenza77@... > writes: > > have difficulty getting out of the car and pop like a bowl of > Rice Krispie cereal - especially on rainy days! I hope to learn from > everyone here and to find glimers of hope and stories of bravery > because right now i am feeling pretty hopeless and alone with this > disease. > > > Hi Kat, > > Well, once you start to snap and crackle you will really know you are in > trouble. lol > > Welcome to the group. I am glad you found us but sorry that you are in the > position that you had to. No need to be alone with this now. You have just > found 2831 friends in one move! lol > I'm sorry the Enbrel caused you so much bother and worry. I hope the > Sulphalazine works wonders for you. > Regarding stories of bravery. Some day I will tell you about the time I > fought an escaped lion but I don't want to bore you when you have just newly > joined. lol > > Hope to hear from you again Kat. > > Take care, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 In a message dated 30/08/2006 02:33:49 GMT Daylight Time, michaelr_321@... writes: OK ... on the subject of the escaped lion... let me guess, toothless and clawless??? Lol Yes , ...............and that goes along just fine with me as I'm brainless and clueless! lol Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 In a message dated 30/08/2006 02:36:33 GMT Daylight Time, hannah_disney@... writes: My name is Hannah I have had PA for 15 years, since I was 11. Hi Hannah, Welcome to the group. I see Kathy has told you about the Biologics so that saves my little fingers. lol I hope you can see a rheumatologist soon and you can look into the possibility of starting on one of these. Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 That's OK, . We love you even if you ARE tootless and clawless! > > > In a message dated 30/08/2006 02:33:49 GMT Daylight Time, > michaelr_321@... writes: > > OK ... on the subject of the escaped lion... let me guess, > toothless and clawless??? > > > > > Lol Yes , > > ..............and that goes along just fine with me as I'm brainless and > clueless! lol > > Take care, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 My name is Hannah I have had PA for 15 years, since I was 11. Welcome Hannah... Love and Peace Always Shaun and Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2006 Report Share Posted September 9, 2006 have difficulty getting out of the car and pop like a bowl of Rice Krispie cereal - especially on rainy days! I hope to learn from everyone here and to find glimers of hope and stories of bravery because right now i am feeling pretty hopeless and alone with this disease. Nope um your not alone... I have a lot of trouble with my back, hips, legs and feet... Going to the damn store is a trial in its own... I sometimes borrow the little carts that drive themselves and me around... Its not your fault... This disease has a lot of does and don'ts and I wish it would just stop but we know that wont be happening... Just do what you can and go on as best you can... That's my motto... Love and Peace Always Shaun and Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Hi : Welcome to the group. was appointed by Betz (how are you Betz? Long time!) to be the official greeter, I expect him to send you a welcome message as soon as he can. there are great people in this group as I am sure you know by now. I have similar symptoms to yours but to a much lesser extent. For the A, I use Mobic only and very sparingly. Since Feb. I used about 55 tablets. I am not sure if Mobic stops the progression or just reduce the pain. I also have a few spots of P on my scalp and very few on other places including the inside of my ears. A few days ago I shaved my head and I am using Clobextasol (0.05%) and I find immediate improvement. I used Clobex in my ears two or three times then the P go away and I stop, the P comes back, etc. Since I bothered to shave my head I think I will stick to twice daily on my scalp for a week or more. I also use Clobex very sparingly. About a month ago there were a few emails about treating the P on the scalp. I saved those emails and I intend to read them again, no energy or no time or no both. I share with you the use of Mobic and Clobex. Welcome again to the group. [Editor's Note: Hiya, . Mobic is an NSAID (non steroidal anti inflamatory drug) that treats the pain and inflammation of arthritis but it does not slow the progression of the disease. For that you would need a DMARD (disease modifying arthritis drug) or a biologic. Kathy F.] momto23weeker <momto23weeker@...> wrote: I've been occasionally lurking for a few months and have finally had a chance for an intro post. I was officially dx'd with PsA this past summer. I've unknowingly had psoriasis since my early 20's (now 37). Nearly three years ago, I had six strep throat infections and not long after starting having nail changes (always had pitting) and then psoriasis on my scalp. It was misdiagnosed for quite some time as first ringworm, then a fungal infection. About the same time as the nail changes, I started having chronic low back pain. I self-referred to a rheumy over a year ago and he totally blew me off, saying, " You must have broken your tailbone sometime. " No lab, no Xrays, minimal physical exam. I was so mad. I then went to a chiropractor who at least took spinal Xrays. I have severe degeneration in my cervical spine (more in line with OA). My lumbar- sacral area doesn't show anything on Xray. The chiro helped my neck a little bit, but it did nothing for my lower back. At the same time, I had a huge plantar fasciitis flare up so the podiatrist put me on Mobic 15. It helped my back for quite some time. It got expensive when my new insurance wouldn't cover it, so I went to taking Aleve. That helped for awhile, too. Finally this past summer I'd had enough. The plantar fasciitis came back with a vengeance. We'd moved and the new podiatrist did an MRI of my foot and ankle, b/c I also had some serious ankle pain. The MRI showed extensive fluid on my ankle, and also in my large toe. My bunions that I've had for a long time are arthritic. I self-referred to a pain clinic while waiting to find a family practice doc. They finally took me seriously and did a full lab workup and also static and motion Xrays. I tried Relafen and it didn't do squat, so I went back on Mobic. I was doing so-so for a few months, but now I've had enough. I just went to the FP doc and told him I needed a referral to a rheumy, so that will happen next week. I've been dealing with a lot of depression from " adjustment disorder " due to our out-of-state move, and from hormonal changes, so the doc put me on Effexor 37.5 to see if it helps until I can get in to see the rheumy. In addition to the PsA, I have the OA in my neck and also polycystic ovarian syndrome. So I'm on a lot of meds: oral contraceptive (monophasic Levlen taken continously), Avandia, Spironolactone, Verapamil (migraine prevention), Mobic, and now the Effexor. The FP said it sounds like I need a DMARD, and I agree. Things are just quickly progressing and I feel like I'm falling apart. I have kids ages 8 and 6. I homeschool the 8 yr old, and the 6 yr old (public school) has multiple disabilities. So I need to keep up with them. The joints that bother me are the aforementioned neck and low back, plantar fascia, R ankle, R jaw joint, three L finger joints (thankfully not the hand I write with), R & L large toes, L elbow, L knee...I think that's all (this week anyway). Thankfully the psoriasis is usually limited to my scalp. The FP gave me a 'script for Clobetasol today that I think will help. It's been an hour since I put it on and already feel better. I use Denorex and Scalpacin it helps some, but not much. I've had spots on my neck and elbow and can get rid of it with capisican arthritis rub. I just keep my nails trimmed down and it helps. I appreciate having a group to read and feel " at home " with others in the same situation. I'm on many other groups for other topics, so this is an easy way to connect. Thank you to the moderators! Off to take a nap and rest my fingers after all this typing! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Hi , I am also a " " who is new to the group. I was just diagnosed with PA in September by a Rheummy. I went straight to a Rheumatologist when I started to have joint pain in my fingers for the first time in August. My right thumb actually felt broken. I also had something sticking out of the side of my left foot which was painful which I thought was an arthritic spur. The MRI and bone scan showed that it was swelling from Psoriatic Tendonitis and Arthritis in that area. I have had some pain in my feet for a couple of years now, but I always thought it was from wearing flip flops all the time or from walking bare foot so much. Now I know I was wrong. Now I wear very good and supportive shoes and that really helps my PA in my feet. I have PA in both feet, both ankles, my right wrist and most of my fingers. I have had P since I was 22, mostly on my scalp, and now PA at 34. I also have two children close to the same ages as yours, an 8 year old daughter and a 7 year old son, and running around with them is hard sometimes. Today, I took them ice skating for the first time, and it was so much fun, but my ankles and hands are soar, especially because I fell on my hands and cut one of them open. We still had a blast though. My daughter also has some issues that are hard to deal with at times, she has Obsessive Compulsive Disorder. Thanks to a good child psychologist she started seeing in October, her OCD is so much better. I just need to keep an eye on her and her stress level. I also need to take care of my stress level as well. I know how hard an out-of state move is. We moved here to Florida from California 4 1/2 years ago and it was very stressful, and I didn't even have PA yet, so I know that it must have been extra hard on you. Since my diagnosis, I have found Arava very helpful( that is a DMARD) and Aleve. There are a lot of helpful medicines out there for PA. I hope you find a good Rheumatologist soon, so that you can get medicines to help with the progression of your disease. Good luck with everything. from FL. momto23weeker <momto23weeker@...> wrote: I've been occasionally lurking for a few months and have finally had a chance for an intro post. I was officially dx'd with PsA this past summer. I've unknowingly had psoriasis since my early 20's (now 37). Nearly three years ago, I had six strep throat infections and not long after starting having nail changes (always had pitting) and then psoriasis on my scalp. It was misdiagnosed for quite some time as first ringworm, then a fungal infection. About the same time as the nail changes, I started having chronic low back pain. I self-referred to a rheumy over a year ago and he totally blew me off, saying, " You must have broken your tailbone sometime. " No lab, no Xrays, minimal physical exam. I was so mad. I then went to a chiropractor who at least took spinal Xrays. I have severe degeneration in my cervical spine (more in line with OA). My lumbar- sacral area doesn't show anything on Xray. The chiro helped my neck a little bit, but it did nothing for my lower back. At the same time, I had a huge plantar fasciitis flare up so the podiatrist put me on Mobic 15. It helped my back for quite some time. It got expensive when my new insurance wouldn't cover it, so I went to taking Aleve. That helped for awhile, too. Finally this past summer I'd had enough. The plantar fasciitis came back with a vengeance. We'd moved and the new podiatrist did an MRI of my foot and ankle, b/c I also had some serious ankle pain. The MRI showed extensive fluid on my ankle, and also in my large toe. My bunions that I've had for a long time are arthritic. I self-referred to a pain clinic while waiting to find a family practice doc. They finally took me seriously and did a full lab workup and also static and motion Xrays. I tried Relafen and it didn't do squat, so I went back on Mobic. I was doing so-so for a few months, but now I've had enough. I just went to the FP doc and told him I needed a referral to a rheumy, so that will happen next week. I've been dealing with a lot of depression from " adjustment disorder " due to our out-of-state move, and from hormonal changes, so the doc put me on Effexor 37.5 to see if it helps until I can get in to see the rheumy. In addition to the PsA, I have the OA in my neck and also polycystic ovarian syndrome. So I'm on a lot of meds: oral contraceptive (monophasic Levlen taken continously), Avandia, Spironolactone, Verapamil (migraine prevention), Mobic, and now the Effexor. The FP said it sounds like I need a DMARD, and I agree. Things are just quickly progressing and I feel like I'm falling apart. I have kids ages 8 and 6. I homeschool the 8 yr old, and the 6 yr old (public school) has multiple disabilities. So I need to keep up with them. The joints that bother me are the aforementioned neck and low back, plantar fascia, R ankle, R jaw joint, three L finger joints (thankfully not the hand I write with), R & L large toes, L elbow, L knee...I think that's all (this week anyway). Thankfully the psoriasis is usually limited to my scalp. The FP gave me a 'script for Clobetasol today that I think will help. It's been an hour since I put it on and already feel better. I use Denorex and Scalpacin it helps some, but not much. I've had spots on my neck and elbow and can get rid of it with capisican arthritis rub. I just keep my nails trimmed down and it helps. I appreciate having a group to read and feel " at home " with others in the same situation. I'm on many other groups for other topics, so this is an easy way to connect. Thank you to the moderators! Off to take a nap and rest my fingers after all this typing! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.