Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Welcome , I am sure you will love it here... This is a great group of people... I am not on as much as I would like lately, but a lot of things going on and hopefully it will pick up some... Hope you and your family had a wonderful New Year's and more to come... Love and Peace Always, Shaun and Barb... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 I have HBP, high cholestrol and increased sugar too. I hear it's common among hypogonadal men. bryce_j_j <no_reply > wrote: Late in life discovery of 46xy/47xxy mosiac. Low levels of T which I feel might explain hypertriglyceridemia,possible vascular symptoms in legs & probable neuropathy in feet + hands. Primary care doctors living in a state of denial on the basis if I " (you) got this far in life without " T " supplementation why worry now " Concerned that without approprite therapy could be heading towards metabolic syndrome (already have high cholestrol, high B Pressure & raising B sugar) Also has anyone ever suffered hyperkeratosis as a result of Klinefelter's syndrome (MOSIAC) and/or low testosterone? Cheers " Will " --------------------------------- Pinpoint customers who are looking for what you sell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2007 Report Share Posted December 1, 2007 Kris – I’m just doing the Houston Trio of enzymes, the Zyme, no-fenol and AFP chewables. Spelling???? NCD is natural cellular defense. I got mind from Brainchild. We do 1 cup of Epson salt in baths and ordered the a cream from kirkman I think. Life is such a blurr, sorry. Late, need to hit the hay! Also I think doing a yeast protocol, which I may need more research myself on, I think is key to the sensory issues for us. This board is so inspiring and lot to learn and try. Love it! Hang in there. We’ll learn together from each others experiences! Thanks Tammy Re: Intro Hi to you all. I am new to the group and have up to now just been reading the posts to see what information I can gather. Tammy, I was very moved by your reports of your son's progress. My son (just turned 8) is also PDD-NOS, as well as ADHD and quite possibly Bipolar. He is very high functioning (talking at 6 months, full sentences by a year). He too is extremely loving and social boy and quite musically talented. (it is so easy to brag about our kids, isn't it?) We have tried just about every mood stabilizer, stimulant and psychotropic med out there. Nothing really seems to help completely. Stimulants make him calm and help relieve his sensory stuff, a little. But then he is a zombie with no purpose. Mood stabilizers calm the rages and rapid cycling, but his sensory stuff goes off the charts and he has zero impulse control (lately he has to have his chewy on a lanyard around his neck so that he won't ruin his clothes and coat, he also has started peeing on the walls and floor and running around the house flapping his arms). I am seriously encouraged by your son's progress and would love to try this as well. Can you tell me exactly what you mean by " enzymes " ? I am so new to this world of alternative care that I am afraid I don't have a clue as to what everyone is talking about most times. Thanks for the post. Kris Intro Hello, My name is Sara. I have a 7 yr ds diagnosed at 3.5 with SPD and at 4.5 with PDD-Asperger's. I have a 3 yr ds that is not diagnosed with anything, but shows alot of sensory sensitivities. We have done homeopathy for the past 2 years. Older ds did OT about 3 years ago. We do not do any special diets. We do not do any special supplementations. Things have improved at our house, but it just seems like there is something more I can do for both boys. I have been sitting on Defelice's book for a while now, but am hesitant. I started re- reading it this past weekend. I am very interested in enzymes, but not so much starting GFCF diet. I would love to hear from anyone that did enzymes with either no diet modification or minimal diet modification. What have been your results? Thanks! Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2007 Report Share Posted December 1, 2007 That's great Tammy... I haven't started any of my boys on enzymes yet...still reading and trying to figure out how to get going...I am so overwhelmed by it all! Any advise on how to get going would be great. Thanks. Carla Intro > > > > Hello, > > My name is Sara. I have a 7 yr ds diagnosed at 3.5 with SPD and at > 4.5 with PDD-Asperger's. I have a 3 yr ds that is not diagnosed with > anything, but shows alot of sensory sensitivities. We have done > homeopathy for the past 2 years. Older ds did OT about 3 years ago. > We do not do any special diets. We do not do any special > supplementations. > > Things have improved at our house, but it just seems like there is > something more I can do for both boys. I have been sitting on > Defelice's book for a while now, but am hesitant. I started re- > reading it this past weekend. I am very interested in enzymes, but > not so much starting GFCF diet. > > I would love to hear from anyone that did enzymes with either no diet > modification or minimal diet modification. What have been your > results? > > Thanks! > Sara > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2007 Report Share Posted December 1, 2007 Carla – Your at a great place, this web site. I guess if you haven’t ordered or read book and Dana’s web site, that is a great place to get started. My 8 year old doesn’t have food sensitivities, at least that I can tell or his skin testing didn’t show. So I dove in after reading this board, reading ’s book and just placed an order with Houston. I think I started out with Zyme Prime and slowly added the other two, we had no issues. Houston sends you a dosing chart with recommended dosing. I followed that with no issues or reactions that I could see. I guess I would start getting your boys to swallow a pill or capsule, start with even Vit C to practice. It will save you a ton of money. We are stuck with the chewables until ???????? Gurrrr, sore subject here but pick my battles, could be worse. You’ll learn so much here from other parents. Read, keep an open mind and realize it isn’t a quick fix, maybe little and small gains, and just seeing what works for your child. I don’t have a DAN, no support really, except here. My ped she’s all for what I’m doing but learning from me and our successes hopefully, along with the schools. We’ll see. Time and money will tell! Hope this helps. Tammy Re: Re: Intro That's great Tammy... I haven't started any of my boys on enzymes yet...still reading and trying to figure out how to get going...I am so overwhelmed by it all! Any advise on how to get going would be great. Thanks. Carla Intro > > > > Hello, > > My name is Sara. I have a 7 yr ds diagnosed at 3.5 with SPD and at > 4.5 with PDD-Asperger's. I have a 3 yr ds that is not diagnosed with > anything, but shows alot of sensory sensitivities. We have done > homeopathy for the past 2 years. Older ds did OT about 3 years ago. > We do not do any special diets. We do not do any special > supplementations. > > Things have improved at our house, but it just seems like there is > something more I can do for both boys. I have been sitting on > Defelice's book for a while now, but am hesitant. I started re- > reading it this past weekend. I am very interested in enzymes, but > not so much starting GFCF diet. > > I would love to hear from anyone that did enzymes with either no diet > modification or minimal diet modification. What have been your > results? > > Thanks! > Sara > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 Sharon, I find acupuncture to be very helpful with the pain as well as the breakouts. Reiki may also be worth looking into. All of these can be assisted with learning and practicing meditation. Since much of what we suffer with is made worse by stress, lowering the stress levels can be extremely beneficial, and since you can meditate at any time and any place as many times as you need, it is a handy therapy to embrace. Good luck. Penkoff <girlfriendgeneration@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 I am on Medicare and have BC/BS Medicare Rx. I am on Enbrel and it is $400/month until you hit the $2200 level and start the donut hole. Then it really gets expensive because you have to pay the entire cost ($1400) until you have paid out of pocket $4200. So the beginning of the year is very rough, financially. However, after you've paid the out of pocket and go into the " catastrophic " coverage (or whatever they call it), my Enbrel goes down to $70 a month for the remainder of the year. Don't know if this helps any but after the $4200, all your meds are very inexpensive. I went into the donut hole in mid-February and a month ago got out of it and into the catastrophic coverage so everything will be a breeze for the rest of the year. But for two months, the costs seemed astronomic!!!! So, there is light at the end of the tunnel if you can just get thru that donut hole. It is tough, though, for that few months. Joanna Hoelscher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 Joanna, thanks so much for this info. I'm not on Medicare yet, but I can see that when I do go on it I will need to save up at least $5,000 in advance each year to help with the beginning-of-year copays. Now to figure out how I'm going to be able to save that much, since our family income is reduced by 40% due to my disability caused by PA... the frustration never ends, sherry z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 I appreciate your concern. We live on SS and have some retirement savings but those savings - that I'd certainly like to use for something else - are paying for my first 3 months of meds. It's really tough to get hit so hard over such a short period of time. But after the donut hole, it's really great. Literally everything is really so cheap. Joanna Hoelscher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2008 Report Share Posted May 19, 2008 Hi Sharon nice to meet you, I to live with my partner who has PA and had it before I met him think he has had it for about the same amount of time as your husband or longer, and the long range forecast does not look good. All we can do is be there for them and be as supportive as possible. Take care Steph. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2008 Report Share Posted May 20, 2008 Hi Steph and Sharon, Don't bury your partners yet!! The long range forecast can be very hopeful. There are many of us out here who have PA and are dealing with it quite well with the aid of medications. Yes, we may need support, but don't start lighting the candles to hold vigils. Help your partners to find information about the different drug therapies, encourage them to try the ones they believe have the best opportunity to work for them. There are so many of us very successfully dealing with our PA. I've been on Methotrexate for over 5 years and have been 99% normal for those 5 years. I fully expect that in the long range I will continue to successfully manage my disease. My protocol might change, there may be newer, better drugs implemented, but the long range forecast looks just fine to me. I applaud you for being involved and being in this group, but you need to be much more than just hopeful for your partners. You can't afford to look forward with a dismal outlook. You need to be there to push your partners towards finding and using a drug protocol or therapy that allows them to have as near a normal life that they can. Stay Well, I am. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2008 Report Share Posted September 3, 2008 DHEA is a crock according to the latest studies. Does not work orally because of breakdown in the liver. Tribulus must be cycled 3 weeks on and 2 to 3 off as it looses efficiency over time as the body recognizes it I tried that route for a while and others (1AD andros and others) T gels and injections are FAR safer than any oral forms. Tribulus is safe but more of a patch than a long term solution IMHO. Sent from my Verizon Wireless BlackBerry Intro Hi I am new here. I am on a few othe r group boards. I have hemochromatosis and the iron overload has messed with my pituitary and my gonads. I have the iron overload under control by phlebotomy but still express low testosterone, lutenizing hormone and human growth hormone. I try to refrain from meds and usually give diet and supplements a try ebfore anything. Imy testosterone was around 150-170 " I was able ot boost it in 2 months with Tribuplex 750, which contains tribulos terrestris, looks like a fern, Euros have used it forever. Virility and performance only started to become an issue and the Tribupolex seems to have mitigated any slight noticable decrease with erections or amount of seamen. However, my metabolism is not responding and I realize I need my testosterone levels up more and that Tribuplex 750 isnt going to get it there. Sooooooooo any advice would be appreciated. Also, is DHEA and HCG to be addressed in conjunction with TRT? Thanks, Tom U Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2008 Report Share Posted September 3, 2008 Randy, Thanks for the info. The good news story is that if Tribulus can cause a beneficial response, I suspect T injections will make me fell alot better. The virility part is fine, I am more interested in metabolic response and getting back to a normal BMI. What do you know about HCG. The people at cengenics address it instead of LH. Also, should HG and TRT be in tandem? I have processed over 20,000 pages on topic related to hemochromatosis and atril fibrillation. I appreciate your knowledge and the time savings it yields for me, thank you. Best Regards, Tom U > > DHEA is a crock according to the latest studies. Does not work orally because of breakdown in the liver. > > Tribulus must be cycled 3 weeks on and 2 to 3 off as it looses efficiency over time as the body recognizes it > > I tried that route for a while and others (1AD andros and others) T gels and injections are FAR safer than any oral forms. Tribulus is safe but more of a patch than a long term solution IMHO. > Sent from my Verizon Wireless BlackBerry > > Intro > > > Hi I am new here. I am on a few othe r group boards. I have > hemochromatosis and the iron overload has messed with my pituitary > and my gonads. I have the iron overload under control by phlebotomy > but still express low testosterone, lutenizing hormone and human > growth hormone. > > I try to refrain from meds and usually give diet and supplements a > try ebfore anything. Imy testosterone was around 150-170 " I was able > ot boost it in 2 months with Tribuplex 750, which contains tribulos > terrestris, looks like a fern, Euros have used it forever. > > Virility and performance only started to become an issue and the > Tribupolex seems to have mitigated any slight noticable decrease with > erections or amount of seamen. > > However, my metabolism is not responding and I realize I need my > testosterone levels up more and that Tribuplex 750 isnt going to get > it there. Sooooooooo any advice would be appreciated. Also, is DHEA > and HCG to be addressed in conjunction with TRT? > > Thanks, > > Tom U > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2008 Report Share Posted September 3, 2008 Hi Randy, My DHEA was the bottom of range, and when I take 50mg of DHEA daily it goes right to the top of range. According to Dr. , a cardiologist that writes on the web, DHEA lowers a deadly (heart attack) lipoprotein called LP(a). http://heartscanblog.blogspot.com/search/label/DHEA Neil Randy Boback wrote: > > DHEA is a crock according to the latest studies. Does not work orally > because of breakdown in the liver. > > Tribulus must be cycled 3 weeks on and 2 to 3 off as it looses > efficiency over time as the body recognizes it > > I tried that route for a while and others (1AD andros and others) T > gels and injections are FAR safer than any oral forms. Tribulus is > safe but more of a patch than a long term solution IMHO. > Sent from my Verizon Wireless BlackBerry > > Intro > > > Hi I am new here. I am on a few othe r group boards. I have > hemochromatosis and the iron overload has messed with my pituitary > and my gonads. I have the iron overload under control by phlebotomy > but still express low testosterone, lutenizing hormone and human > growth hormone. > > I try to refrain from meds and usually give diet and supplements a > try ebfore anything. Imy testosterone was around 150-170 " I was able > ot boost it in 2 months with Tribuplex 750, which contains tribulos > terrestris, looks like a fern, Euros have used it forever. > > Virility and performance only started to become an issue and the > Tribupolex seems to have mitigated any slight noticable decrease with > erections or amount of seamen. > > However, my metabolism is not responding and I realize I need my > testosterone levels up more and that Tribuplex 750 isnt going to get > it there. Sooooooooo any advice would be appreciated. Also, is DHEA > and HCG to be addressed in conjunction with TRT? > > Thanks, > > Tom U > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2008 Report Share Posted September 4, 2008 " Randy Boback wrote: > > > > DHEA is a crock according to the latest studies. Does not work orally > > because of breakdown in the liver. " > I would have to disagree with with this! Have you ever taken DHEA and had a blood test done? My DHEA was only in 1/4 of the normal range after taking 50mg It pushed me to the top of normal range I have since switched to pregnenolone and have seen a dramatic increase in DHEA, Testoterone and other homones requiring me to take less medications. I would say that the jury is out on the effects of elevated DHEA but suplematation does affect overall blood levels. > > . > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2008 Report Share Posted September 4, 2008 Sorry I meant in context to increasing T levels DHEA was log considered a T precursor twice removed and was a body builder staple. The us govt wanted to place it on the original prohormone list 3 or 4 years back until the study came out stating unequivocally that DHEA was very ineffective at increasing T levels. That doesn't detract from its other uses but as an effective homeopathic T enhancer you are far better off with triblus Sent from my Verizon Wireless BlackBerry Intro > > > Hi I am new here. I am on a few othe r group boards. I have > hemochromatosis and the iron overload has messed with my pituitary > and my gonads. I have the iron overload under control by phlebotomy > but still express low testosterone, lutenizing hormone and human > growth hormone. > > I try to refrain from meds and usually give diet and supplements a > try ebfore anything. Imy testosterone was around 150-170 " I was able > ot boost it in 2 months with Tribuplex 750, which contains tribulos > terrestris, looks like a fern, Euros have used it forever. > > Virility and performance only started to become an issue and the > Tribupolex seems to have mitigated any slight noticable decrease with > erections or amount of seamen. > > However, my metabolism is not responding and I realize I need my > testosterone levels up more and that Tribuplex 750 isnt going to get > it there. Sooooooooo any advice would be appreciated. Also, is DHEA > and HCG to be addressed in conjunction with TRT? > > Thanks, > > Tom U > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2008 Report Share Posted September 4, 2008 Same here my levels were very low and I started at 25mgs of DHEA a day my levels come up some but when I took this 2x's a day it when to mid range. I can't say I felt any better but levels are now good. One needs to not do to much of this in men it turns into Estradiol in women it turns into Testosterone if your doing to much or don't need it. Co-Moderator Phil > > > > DHEA is a crock according to the latest studies. Does > not work orally > > because of breakdown in the liver. > > > > Tribulus must be cycled 3 weeks on and 2 to 3 off as > it looses > > efficiency over time as the body recognizes it > > > > I tried that route for a while and others (1AD andros > and others) T > > gels and injections are FAR safer than any oral forms. > Tribulus is > > safe but more of a patch than a long term solution > IMHO. > > Sent from my Verizon Wireless BlackBerry > > > > Intro > > > > > > Hi I am new here. I am on a few othe r group > boards. I have > > hemochromatosis and the iron overload has messed with > my pituitary > > and my gonads. I have the iron overload under control > by phlebotomy > > but still express low testosterone, lutenizing hormone > and human > > growth hormone. > > > > I try to refrain from meds and usually give diet and > supplements a > > try ebfore anything. Imy testosterone was around > 150-170 " I was able > > ot boost it in 2 months with Tribuplex 750, which > contains tribulos > > terrestris, looks like a fern, Euros have used it > forever. > > > > Virility and performance only started to become an > issue and the > > Tribupolex seems to have mitigated any slight > noticable decrease with > > erections or amount of seamen. > > > > However, my metabolism is not responding and I realize > I need my > > testosterone levels up more and that Tribuplex 750 > isnt going to get > > it there. Sooooooooo any advice would be appreciated. > Also, is DHEA > > and HCG to be addressed in conjunction with TRT? > > > > Thanks, > > > > Tom U > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2008 Report Share Posted September 6, 2008 I take 100 mg/day of DHEA and it brings mine up to about 275 with a lab reference range of 95-530 ug/dL. I'm thinking about increasing it to either 150 or 200 mg/day. LEF recommends a level of 400+. Steve Neil wrote: > Hi Randy, > > My DHEA was the bottom of range, and when I take 50mg of DHEA daily it > goes right to the top of range. > > According to Dr. , a cardiologist that writes on the web, DHEA > lowers a deadly (heart attack) lipoprotein called LP(a). > > http://heartscanblog.blogspot.com/search/label/DHEA > > Neil > > > Randy Boback wrote: >> DHEA is a crock according to the latest studies. Does not work orally >> because of breakdown in the liver. >> >> Tribulus must be cycled 3 weeks on and 2 to 3 off as it looses >> efficiency over time as the body recognizes it >> >> I tried that route for a while and others (1AD andros and others) T >> gels and injections are FAR safer than any oral forms. Tribulus is >> safe but more of a patch than a long term solution IMHO. >> Sent from my Verizon Wireless BlackBerry >> >> Intro >> >> >> Hi I am new here. I am on a few othe r group boards. I have >> hemochromatosis and the iron overload has messed with my pituitary >> and my gonads. I have the iron overload under control by phlebotomy >> but still express low testosterone, lutenizing hormone and human >> growth hormone. >> >> I try to refrain from meds and usually give diet and supplements a >> try ebfore anything. Imy testosterone was around 150-170 " I was able >> ot boost it in 2 months with Tribuplex 750, which contains tribulos >> terrestris, looks like a fern, Euros have used it forever. >> >> Virility and performance only started to become an issue and the >> Tribupolex seems to have mitigated any slight noticable decrease with >> erections or amount of seamen. >> >> However, my metabolism is not responding and I realize I need my >> testosterone levels up more and that Tribuplex 750 isnt going to get >> it there. Sooooooooo any advice would be appreciated. Also, is DHEA >> and HCG to be addressed in conjunction with TRT? >> >> Thanks, >> >> Tom U -- Steve - dudescholar4@... Take World's Smallest Political Quiz at http://www.theadvocates.org/quiz.html " If a thousand old beliefs were ruined on our march to truth we must still march on. " --Stopford Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2008 Report Share Posted September 6, 2008 Is LEF referring to regular DHEA or 7-KETO DHEA? 7-Keto does not convert to estrogen, but I think if you were to take 400+ of regular DHEA you would be shopping for bras in a few weeks J From: [mailto: ] On Behalf Of Steve Sent: Saturday, September 06, 2008 3:22 PM Subject: Re: Intro I take 100 mg/day of DHEA and it brings mine up to about 275 with a lab reference range of 95-530 ug/dL. I'm thinking about increasing it to either 150 or 200 mg/day. LEF recommends a level of 400+. Steve Neil wrote: > Hi Randy, > > My DHEA was the bottom of range, and when I take 50mg of DHEA daily it > goes right to the top of range. > > According to Dr. , a cardiologist that writes on the web, DHEA > lowers a deadly (heart attack) lipoprotein called LP(a). > > http://heartscanblog.blogspot.com/search/label/DHEA > > Neil > > > Randy Boback wrote: >> DHEA is a crock according to the latest studies. Does not work orally >> because of breakdown in the liver. >> >> Tribulus must be cycled 3 weeks on and 2 to 3 off as it looses >> efficiency over time as the body recognizes it >> >> I tried that route for a while and others (1AD andros and others) T >> gels and injections are FAR safer than any oral forms. Tribulus is >> safe but more of a patch than a long term solution IMHO. >> Sent from my Verizon Wireless BlackBerry >> >> Intro >> >> >> Hi I am new here. I am on a few othe r group boards. I have >> hemochromatosis and the iron overload has messed with my pituitary >> and my gonads. I have the iron overload under control by phlebotomy >> but still express low testosterone, lutenizing hormone and human >> growth hormone. >> >> I try to refrain from meds and usually give diet and supplements a >> try ebfore anything. Imy testosterone was around 150-170 " I was able >> ot boost it in 2 months with Tribuplex 750, which contains tribulos >> terrestris, looks like a fern, Euros have used it forever. >> >> Virility and performance only started to become an issue and the >> Tribupolex seems to have mitigated any slight noticable decrease with >> erections or amount of seamen. >> >> However, my metabolism is not responding and I realize I need my >> testosterone levels up more and that Tribuplex 750 isnt going to get >> it there. Sooooooooo any advice would be appreciated. Also, is DHEA >> and HCG to be addressed in conjunction with TRT? >> >> Thanks, >> >> Tom U -- Steve - dudescholar4@... <mailto:dudescholar4%40basicmail.net> Take World's Smallest Political Quiz at http://www.theadvocates.org/quiz.html " If a thousand old beliefs were ruined on our march to truth we must still march on. " --Stopford Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2008 Report Share Posted September 6, 2008 In reference to the " level of 400+ " , Steve was mentioning the reference range of blood levels of DHEA (in mcg/dL), not the amount to supplement (in mg). > >> DHEA is a crock according to the latest studies. Does not work orally > >> because of breakdown in the liver. > >> > >> Tribulus must be cycled 3 weeks on and 2 to 3 off as it looses > >> efficiency over time as the body recognizes it > >> > >> I tried that route for a while and others (1AD andros and others) T > >> gels and injections are FAR safer than any oral forms. Tribulus is > >> safe but more of a patch than a long term solution IMHO. > >> Sent from my Verizon Wireless BlackBerry > >> > >> Intro > >> > >> > >> Hi I am new here. I am on a few othe r group boards. I have > >> hemochromatosis and the iron overload has messed with my pituitary > >> and my gonads. I have the iron overload under control by phlebotomy > >> but still express low testosterone, lutenizing hormone and human > >> growth hormone. > >> > >> I try to refrain from meds and usually give diet and supplements a > >> try ebfore anything. Imy testosterone was around 150-170 " I was able > >> ot boost it in 2 months with Tribuplex 750, which contains tribulos > >> terrestris, looks like a fern, Euros have used it forever. > >> > >> Virility and performance only started to become an issue and the > >> Tribupolex seems to have mitigated any slight noticable decrease with > >> erections or amount of seamen. > >> > >> However, my metabolism is not responding and I realize I need my > >> testosterone levels up more and that Tribuplex 750 isnt going to get > >> it there. Sooooooooo any advice would be appreciated. Also, is DHEA > >> and HCG to be addressed in conjunction with TRT? > >> > >> Thanks, > >> > >> Tom U > > -- > > Steve - dudescholar4@... <mailto:dudescholar4%40basicmail.net> > > Take World's Smallest Political Quiz at > http://www.theadvocates.org/quiz.html > > " If a thousand old beliefs were ruined on our march > to truth we must still march on. " --Stopford > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2008 Report Share Posted September 6, 2008 Correct. The 400+ level is the DHEAs blood level per testing. A consideration however is what to take to get there, DHEA or 7-KETO DHEA. I currently sticking with DHEA since I haven't researched 7-KETO DHEA's effect on blood levels using the DHEAs blood test. Steve d00fu524 wrote: > In reference to the " level of 400+ " , Steve was mentioning the > reference range of blood levels of DHEA (in mcg/dL), not the amount to > supplement (in mg). > > >>>> DHEA is a crock according to the latest studies. Does not work > orally >>>> because of breakdown in the liver. >>>> >>>> Tribulus must be cycled 3 weeks on and 2 to 3 off as it looses >>>> efficiency over time as the body recognizes it >>>> >>>> I tried that route for a while and others (1AD andros and others) T >>>> gels and injections are FAR safer than any oral forms. Tribulus is >>>> safe but more of a patch than a long term solution IMHO. >>>> Sent from my Verizon Wireless BlackBerry >>>> >>>> Intro >>>> >>>> >>>> Hi I am new here. I am on a few othe r group boards. I have >>>> hemochromatosis and the iron overload has messed with my pituitary >>>> and my gonads. I have the iron overload under control by phlebotomy >>>> but still express low testosterone, lutenizing hormone and human >>>> growth hormone. >>>> >>>> I try to refrain from meds and usually give diet and supplements a >>>> try ebfore anything. Imy testosterone was around 150-170 " I was able >>>> ot boost it in 2 months with Tribuplex 750, which contains tribulos >>>> terrestris, looks like a fern, Euros have used it forever. >>>> >>>> Virility and performance only started to become an issue and the >>>> Tribupolex seems to have mitigated any slight noticable decrease with >>>> erections or amount of seamen. >>>> >>>> However, my metabolism is not responding and I realize I need my >>>> testosterone levels up more and that Tribuplex 750 isnt going to get >>>> it there. Sooooooooo any advice would be appreciated. Also, is DHEA >>>> and HCG to be addressed in conjunction with TRT? >>>> >>>> Thanks, >>>> >>>> Tom U >> -- >> >> Steve - dudescholar4@... <mailto:dudescholar4%40basicmail.net> -- Steve - dudescholar4@... Take World's Smallest Political Quiz at http://www.theadvocates.org/quiz.html " If a thousand old beliefs were ruined on our march to truth we must still march on. " --Stopford Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 Hi Michele, If I were you, I would take your daughter to a LLMD as soon as possible. I'm sure you know this is nothing to fool around with. All of the symptoms that you mentioned, including the eye and jaw problems could definitely be a cause for concern. I also wouldn't give her any more steroid drops without consulting an LLMD. You have the best pediatric LLMD right there in CT (that's where I take my 16 yo daughter -- we're from MA), but she's old enough to see someone else if you prefer.(Please email me privately if you want to discuss doctors). Unfortuntately, the fact that her primary care doc wasn't interested in the eye or jaw problems in relation to Lyme is not surprising. It has been my experience that one is lucky to find a pcp that is tolerant of the concept of Lyme as a multi-systemic and sometimes chronic illness -- never mind one that is actually Lyme literate. I think it's a good thing that you are having more testing done at her school and it should be interesting to see if there are further deficits since previous rounds of testing. If you get this info before you see the LLMD, be sure to bring copies of the new test reports as well as previous testing. If money is not a problem, you might also (or instead) want to have neuro-psych testing done by an LLMD that specializes in that, as they often know what to look and which tests will show specific Lyme-induced deficits. This can help to prove your case and can be helpful when dealing with your insurance company regarding further treatment, if necessary. We have ADD/ADHD and Lyme in my family as well -- so, unfortunately, I do have some experience here... Good luck! from MA > > My daughter was given six weeks of antibiotics at my insistence, and > she seems better, but still tired more than normal. Additionally, by > chance an eye dr. found a spot of inflammation in each eye when > fitting her for contacts. We followed up once where my daughter was > given steroid and antibiotic drops to use for a month when we will > follow up again. > > Her regular dr. didn't seem to care or be the least bit interested in > my daughter's jaw pain or the inflammation in her eyes. The jaw pain > does seem to have subsided for now (it manifested after 5 weeks on > antibiotics, so I was definitely concerned). > > I don't know whether to look for a LLMD for my daughter to follow up > just to make sure she is not still dealing with Lyme, or just go by > symptoms? She does seem to have worse memory problems (worse because > she has had memory problems her whole life due to a concussion when > she was very little). Her grades seem to be slipping. At my > insistence, the school is testing her for learning disabilities and > screening her for ADHD which does run in our family (well before any > of us was exposed to Lyme). > > I look forward to any advice or information that can be provided. > > Thank you, > Michele in CT > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 Michele, I agree with , find a LLMD for your daughter ASAP. Barbara From: susanfp86 <pitzers@...> Subject: [ ] Re: Intro Date: Tuesday, November 11, 2008, 6:34 PM Hi Michele, If I were you, I would take your daughter to a LLMD as soon as possible. I'm sure you know this is nothing to fool around with. All of the symptoms that you mentioned, including the eye and jaw problems could definitely be a cause for concern. I also wouldn't give her any more steroid drops without consulting an LLMD. You have the best pediatric LLMD right there in CT (that's where I take my 16 yo daughter -- we're from MA), but she's old enough to see someone else if you prefer.(Please email me privately if you want to discuss doctors). Unfortuntately, the fact that her primary care doc wasn't interested in the eye or jaw problems in relation to Lyme is not surprising. It has been my experience that one is lucky to find a pcp that is tolerant of the concept of Lyme as a multi-systemic and sometimes chronic illness -- never mind one that is actually Lyme literate. I think it's a good thing that you are having more testing done at her school and it should be interesting to see if there are further deficits since previous rounds of testing. If you get this info before you see the LLMD, be sure to bring copies of the new test reports as well as previous testing. If money is not a problem, you might also (or instead) want to have neuro-psych testing done by an LLMD that specializes in that, as they often know what to look and which tests will show specific Lyme-induced deficits. This can help to prove your case and can be helpful when dealing with your insurance company regarding further treatment, if necessary. We have ADD/ADHD and Lyme in my family as well -- so, unfortunately, I do have some experience here... Good luck! from MA > > My daughter was given six weeks of antibiotics at my insistence, and > she seems better, but still tired more than normal. Additionally, by > chance an eye dr. found a spot of inflammation in each eye when > fitting her for contacts. We followed up once where my daughter was > given steroid and antibiotic drops to use for a month when we will > follow up again. > > Her regular dr. didn't seem to care or be the least bit interested in > my daughter's jaw pain or the inflammation in her eyes. The jaw pain > does seem to have subsided for now (it manifested after 5 weeks on > antibiotics, so I was definitely concerned). > > I don't know whether to look for a LLMD for my daughter to follow up > just to make sure she is not still dealing with Lyme, or just go by > symptoms? She does seem to have worse memory problems (worse because > she has had memory problems her whole life due to a concussion when > she was very little). Her grades seem to be slipping. At my > insistence, the school is testing her for learning disabilities and > screening her for ADHD which does run in our family (well before any > of us was exposed to Lyme). > > I look forward to any advice or information that can be provided. > > Thank you, > Michele in CT > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 Welcome Diane You have come to the right place. When I was first diagnosed and had so many questions and concerns, the wonderful people on here were a wealth of information and full of experience! At least I found out I wasn't crazy!!!! Feel free to ask questions or just vent! Welcome!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2009 Report Share Posted May 21, 2009 Hi Diane, Welcome to the group. Your feelings of relief at being finally diagnosed with something echo many of the folks here. Now that you have an actual diagnosis, you can go about treating your disease. Working for a pharmaceutical firm, you likely have good insight into drugs and their positive and negative effects. Sadly P and PA have many drugs that folks use to treat the disease. Some drugs work well for some folks while other drugs are better for other folks. You may need to do some trial and error testing to see what works best for you, unless of course you are a scientist and are working on a breakthrough cure for P & PA. Stay Well, Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.