Re: 1 step forward, 2 steps back - For

[Guest guest]

Hi

Have you had his hearing tested?

My son age 6 repeats nay yayayaya and he say Mom & Dad & PA for his brother

Padraig but he is hearing impaired. He loves the loud also and when a law mower

comes near his attention is on it. He has moderate to severe hearing loss

besides being on the spectrum.

If loud gets to your son you may want to think of requesting a FM system for

school. This amplifies the sound of the teachers' voice.

Because of my son's hearing they used it at school and it has helps. A therapist

that works with another boy that is NOT hearing impaired

tried using this with the boy and it helped with the attention issue.

Helps the kids cancel out the other sounds....

Just an idea.

>

> Yes, my son does sleep better with someone next to him. He's 4 and a half,

btw. We do the hugs and squishes and that sort of thing. But I'll do a bit more,

I think. No, he doesn't nap at all unless he's sick.

>

> Thanks! I appreciate it.

>

>

>

>

> ----- Receiving the following content -----

> From: Henrietta Osodi

> Receiver:

> Time: 2010-09-13, 13:25:24

> Subject: Re: 1 step forward, 2 steps back

>

>

>

>

> >,

> >I do not have 100% solutions for you. We go through the sleep deprivation in

my

> >house too. My 4 year old will not sleep through the night so I wake up

several

> >times through the night to put him back to bed. What he tends to seek is body

> >warmth. He sleeps if there is someone sleeping next to him that he can

cuddle.

> >The occupational therapist has suggested a weighted blanket for my son, we

are

> >still waiting on our order. The other things they suggested are heavy work

> >before bed time such as pulling and carrying heavy stuff. I have no idea how

> >old your child is. My son also does the putting his hand in my shirt and I

> >constantly take his hand away, he does it more for attention seeking. My son

> >also benefits from deep pressure all over his body every few hours during the

> >day, he likes to get squeezes through out the day. I hope this helps a bit

at

> >least. I am with you there, the sleep deprivation works a number on our

> >bodies. D

> >Does your son still take naps?, if he does, you may want to cut it out. I

know

> >that has helped a great deal in our household. If my son takes a nap, it has

to

> >be before 2pm and only for about 30minutes. Stay strong even in the midst of

> >not seeing the light at the end of the tunnel. I have not gone the DAN route

> >yet because the only one I thought of seeing was not completely honest. I

felt

> >it was too money driven. Good luck.

> >

> >

> >

> >

> >

> >________________________________

> >From: West

> >

> >Sent: Mon, September 13, 2010 2:13:16 PM

> >Subject: 1 step forward, 2 steps back

> >

> >

> >I'm longing for the 1 step forward... We got my elder son's OAT back last

week,

> >and it was awful. The DAN doc says it's the worst she's seen. She called the

lab

> >(she has a friend there) and he said it was one of the worst he'd seen. So,

now

> >I'm looking at it going " What now? " and unfortunately, so are they. The

theory

> >is that he's got a food allergy that is enflaming him so badly that his gut

is

> >leaking terribly - so for that, we're doing an elimination diet. The

serotonin

> >markers are nuts. He's terribly toxic from solvents and plastics, phthalates

> >being the worst. There's no sign of yeast or bacteria or viruses. That's the

> >only good thing.

> >But his symptoms are so out of control and nothing seems to be working. He's

got

> >a vocal tic that makes me insane. " Uh! Ay! " around 6 times per minute, every

> >minute he's awake. And it varies between conversation volume and LOUD and

> >SHRILL. Like my ears are literally pounding. His sleep is utterly hosed. Last

> >night, he slept from 3 to 9. He's obsessed with putting his fingers into my

> >shirt. He's so hyper and inattentive that he can't even sit still long enough

to

> >eat. He has no interest in anything other than occasionally stacking cards or

> >cds. Mostly, he runs around and jumps and harasses the dog. Oh, and he's

happy

> >about it all. Or at least appears that way. He's not meltdown-y. He doesn't

cry

> >most of the time. The only thing that makes any of it better is if we go

> >someplace loud/bright. Like Walmart or Best Buy or Costco. He's content

there.

> >And better for a while at home afterward. Weird, I know.

> >I'm all for ideas. Because he's deafening me. And I'm so sleep deprived it's

> >crazy.

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Yes, his hearing has been tested. It's fine. I do like the idea of trying

amplification. He's only 4.5 now, so no school for at least a year, probably 2.

Thanks a lot!

----- Receiving the following content -----

From: kfh812

Receiver:

Time: 2010-09-15, 07:28:47

Subject: Re: 1 step forward, 2 steps back - For

>Hi

>

>Have you had his hearing tested?

>

>My son age 6 repeats nay yayayaya and he say Mom & Dad & PA for his brother

Padraig but he is hearing impaired. He loves the loud also and when a law mower

comes near his attention is on it. He has moderate to severe hearing loss

besides being on the spectrum.

>

>If loud gets to your son you may want to think of requesting a FM system for

school. This amplifies the sound of the teachers' voice.

>

>Because of my son's hearing they used it at school and it has helps. A

therapist that works with another boy that is NOT hearing impaired

>tried using this with the boy and it helped with the attention issue.

>Helps the kids cancel out the other sounds....

>

>Just an idea.

>

>

>

>>

>> Yes, my son does sleep better with someone next to him. He's 4 and a half,

btw. We do the hugs and squishes and that sort of thing. But I'll do a bit more,

I think. No, he doesn't nap at all unless he's sick.

>>

>> Thanks! I appreciate it.

>>

>>

>>

>>

>> ----- Receiving the following content -----

>> From: Henrietta Osodi

>> Receiver:

>> Time: 2010-09-13, 13:25:24

>> Subject: Re: 1 step forward, 2 steps back

>>

>>

>>

>>

>> >,

>> >I do not have 100% solutions for you. We go through the sleep deprivation

in my

>> >house too. My 4 year old will not sleep through the night so I wake up

several

>> >times through the night to put him back to bed. What he tends to seek is

body

>> >warmth. He sleeps if there is someone sleeping next to him that he can

cuddle.

>> >The occupational therapist has suggested a weighted blanket for my son, we

are

>> >still waiting on our order. The other things they suggested are heavy work

>> >before bed time such as pulling and carrying heavy stuff. I have no idea

how

>> >old your child is. My son also does the putting his hand in my shirt and I

>> >constantly take his hand away, he does it more for attention seeking. My

son

>> >also benefits from deep pressure all over his body every few hours during

the

>> >day, he likes to get squeezes through out the day. I hope this helps a bit

at

>> >least. I am with you there, the sleep deprivation works a number on our

>> >bodies. D

>> >Does your son still take naps?, if he does, you may want to cut it out. I

know

>> >that has helped a great deal in our household. If my son takes a nap, it

has to

>> >be before 2pm and only for about 30minutes. Stay strong even in the midst

of

>> >not seeing the light at the end of the tunnel. I have not gone the DAN

route

>> >yet because the only one I thought of seeing was not completely honest. I

felt

>> >it was too money driven. Good luck.

>> >

>> >

>> >

>> >

>> >

>> >________________________________

>> >From: West

>> >

>> >Sent: Mon, September 13, 2010 2:13:16 PM

>> >Subject: 1 step forward, 2 steps back

>> >

>> >

>> >I'm longing for the 1 step forward... We got my elder son's OAT back last

week,

>> >and it was awful. The DAN doc says it's the worst she's seen. She called the

lab

>> >(she has a friend there) and he said it was one of the worst he'd seen. So,

now

>> >I'm looking at it going " What now? " and unfortunately, so are they. The

theory

>> >is that he's got a food allergy that is enflaming him so badly that his gut

is

>> >leaking terribly - so for that, we're doing an elimination diet. The

serotonin

>> >markers are nuts. He's terribly toxic from solvents and plastics, phthalates

>> >being the worst. There's no sign of yeast or bacteria or viruses. That's the

>> >only good thing.

>> >But his symptoms are so out of control and nothing seems to be working. He's

got

>> >a vocal tic that makes me insane. " Uh! Ay! " around 6 times per minute, every

>> >minute he's awake. And it varies between conversation volume and LOUD and

>> >SHRILL. Like my ears are literally pounding. His sleep is utterly hosed.

Last

>> >night, he slept from 3 to 9. He's obsessed with putting his fingers into my

>> >shirt. He's so hyper and inattentive that he can't even sit still long

enough to

>> >eat. He has no interest in anything other than occasionally stacking cards

or

>> >cds. Mostly, he runs around and jumps and harasses the dog. Oh, and he's

happy

>> >about it all. Or at least appears that way. He's not meltdown-y. He doesn't

cry

>> >most of the time. The only thing that makes any of it better is if we go

>> >someplace loud/bright. Like Walmart or Best Buy or Costco. He's content

there.

>> >And better for a while at home afterward. Weird, I know.

>> >I'm all for ideas. Because he's deafening me. And I'm so sleep deprived it's

>> >crazy.

>> >

>> >

>> >

>> >

>> >

>> >

>> >

>> >