Intro and Question

January 3, 2005

Hi All

My name is Kathy and I have been slowly moving forward into fermenting.

I am gathering info.from Sally Fallon's Book .

I am wondering from a practical point of view if fermenting is helpful

for those with candida and what recipes have been found helpful?

Kathy

January 3, 2005

>I am wondering from a practical point of view if fermenting is helpful

>for those with candida and what recipes have been found helpful?

>

>Kathy

Absolutely! Kefir based fermentations especially. Kefir bacteria/yeast

are good at displacing everything else. I eat other ferments too, but

none is as good for gut issues.

I think a lot of candida is a byproduct of poor digestion though, esp.

indigestion of starches. Which is often due to IgA intolerance to

gluten or casein, or low HCL, or just too much sugar/starch in the

diet, or fructose intolerance (a lot of folks don't digest fructose

properly). Also eating foods with a good substrate, like whole apples

and kimchi (the vegetable fibers and pectin encourage butyrate production, which

is very healing to the gut, as some fats might be).

Also eating fermented stuff vs. the " raw " stuff might be good in

that the sugars are predigested so provide little food for any yeast.

I've noticed that plain fruit juice does me no good, and I had a pediatrician

tell me that it is a common cause of diarrhea in kids. But kefired fruit juice

is just fine ... the sugars are mostly gone.

Heidi Jean

January 4, 2005

Hi Heidi

Thanks for the great info.Couple of questions..

How has your health changed since you started Kefir? Has candida

been a problem for you and has it improved with kefir?

Do you us goats milk or regular cows milk?

If you tend to have a lot of mucous is goats milk a better choice then cows

milk? How do you use your Kefir?I am aware people make smoothies...

what else do people use this in?

Newbies aren't we full of questions and a general pain, LOL But I do so very

much appreciate your input.

Kathy

-- Re: Intro and question

>I am wondering from a practical point of view if fermenting is helpful

>for those with candida and what recipes have been found helpful?

>

>Kathy

Absolutely! Kefir based fermentations especially. Kefir bacteria/yeast

are good at displacing everything else. I eat other ferments too, but

none is as good for gut issues.

I think a lot of candida is a byproduct of poor digestion though, esp.

indigestion of starches. Which is often due to IgA intolerance to

gluten or casein, or low HCL, or just too much sugar/starch in the

diet, or fructose intolerance (a lot of folks don't digest fructose

properly). Also eating foods with a good substrate, like whole apples

and kimchi (the vegetable fibers and pectin encourage butyrate production,

which

is very healing to the gut, as some fats might be).

Also eating fermented stuff vs. the " raw " stuff might be good in

that the sugars are predigested so provide little food for any yeast.

I've noticed that plain fruit juice does me no good, and I had a

pediatrician

tell me that it is a common cause of diarrhea in kids. But kefired fruit

juice

is just fine ... the sugars are mostly gone.

Heidi Jean

January 4, 2005

>Hi Heidi

>Thanks for the great info.Couple of questions..

>How has your health changed since you started Kefir? Has candida

>been a problem for you and has it improved with kefir?

>Do you us goats milk or regular cows milk?

>If you tend to have a lot of mucous is goats milk a better choice then cows

>milk? How do you use your Kefir?I am aware people make smoothies...

>what else do people use this in?

First, I don't drink kefir. I don't tolerate milk well at all, I have an

IgA reaction to casein. Kefir I can tolerate better than milk by

a long shot, but I still get migraines sometimes when it's in

my diet (though I don't get the migraines WHEN I eat it, it's not

a very exact connection so I'm not sure). When I get dairy, I

get really really cold, then the next day I get fuzzy headed and

it's hard to think, and a few other things (like being thirsty

all the time and needing to go to the bathroom too often).

So, I use the extra kefir grains in juice or molasses/water to make

kefir beer. I usually have extra kefir grains because other folks

in the family drink kefir. The grains will last a long time in

juice (6 months or so, tho I usually end up changing them

" just because " ).

Now, when I drink kefir beer, my gut changes drastically.

Basically my " output " changes color (From very, very dark

to light yellowish/brown, to be way more specific than

most people want, probably) and loses most of the smell.

Also no gas much, and it gets solid and much less volume.

I've never been tested for candida myself, so I don't know

for sure. I've had some symptoms that are typically associated

with candida, like itchiness, and the kefir beer definitely

helps those. And I've heard stories from people who DID have

candida and they say it helps a lot.

Heidi Jean

January 5, 2005

Heida

You said

But kefired fruit juice

is just fine ... the sugars are mostly gone.

How do you kefir the juice?

Thanks

Kathy

April 3, 2006

mehim2catsnbaby <mehim2catsnbaby@...> wrote: So, my question is...if you

are using homeopathics, or other natural means of controlling

seizures, are you doing so in addition to using allopathic medications? My son

hasnt taken an med since last May Does your neuro

know that you are using these methods? No, The only docs that I found only

follow meds Do you even see a neuro or just a homeopath/cd

naturopath/etc? No We are in NYC if anyone has any recommendations of

holistic-friendly

pediatric neuros we could see.

Thanks for any help you can offer. I am so excited to have found this group.

June 21, 2006

Hi & welcome to the group.

I have a 16 month old brother with Down Syndrome. He takes NVD and several other supplements as well (I'll give info below). Don't be worried much about the Vit. A level in NVD. If you're on DSTNI, I'm sure you've seen the current thread about it. But, if your daughter hasn't already reacted to Vit. A, she should be fine. But, it is still recommended that you test Vitamin A levels via bloodwork. If it's fine, then there is no need to worry. If it's high, just contact INI/Dr. L and they can help you out (formulate the formula,etc).

Ambrotose - I don't believe that it has much clout to it. I don't think it'd benefit a person with DS. NVD and a few other supplements are what benefit the person with DS the most, I believe. I have some info on Ambrotose (glyconutrients), that I can forward to you, if you'd like.

This is what we give my brother:

Morning:

NTV-D Daily Supp (2 1/8 scoops)

Turmeric (1 capsule - 500 mgs) one day and 1 Blueberry extract capsule the next day

Zinc (15mgs extra one day and 7mgs extra the next day)

Afternoon:

Methylcobalamin B12 (short - MethylB12 - he takes 1/4 lozenge [250mgs])

L-Carnosine (100mgs)

Evening:

NTV-D Daily Supp (2 1/8 scoops)

1 capsule Tart Cherry

1 capsule TMG (TriMethylGlycine - 500mgs)

Before Bed:

NTV-D Nighttime

Since my brother still breastfeeds, my mom takes Nordic Naturals ProDHA for him.

We're thinking of adding in Grape Seed Extract also & possibly Resveratrol (both are things found in grapes).

We give all the "extra" things for the reasons below:

*Turmeric - Very good antioxidant. Very good anticarcinogenic (anti-cancer), particularly leukemia. Helps prevent AD . . . deals with and breaks up amyloid-beta plaques & tangles.

*Blueberry extract - Very good antioxidant - it improves memory, crosses the blood-brain barrier, reverses brain aging, improves auditory processing. (

http://www.lef.org/magazine/mag2005/dec2005_supp_blueberry_01.htm

).

*Zinc - alot of those with DS are deficient in it. My brother is. It is also a good antioxidant and also helps the thyroid.

*Methylcobalamin B12 - Homocysteine levels are normally low in DS & MCV levels are normally high in DS (which can lead to leukemia). MethylB12 helps raise homocysteine levels & lower MCV levels. Because, MethylB12 is a folate system component, and the folate cycle in DS is all messed up. Due to the overexpressed CBS gene. The SAM cycle traps folate, so even though they may not test deficient in it, they are deficient in it.

*L-Carnosine - Very good antioxidant. It is used as an anti-aging amino acid, actually. It helps with the brain. We noticed my brother was born "in tune" and "there" when we started this.

*Tart Cherry - Very good antioxidant, anti-inflammatory & anti-carcinogenic. Thyroid issues are an inflammatory issue & so is AD.

*TMG - same reason as for MethylB12. It's a way to get folate in.

*Nighttime formula - If we don't give it, my brother takes several more naps during the day & he is fussy. If we give it every night, he only takes 1 nap (since he sleeps better at night) & he is happy all day long.

Qadoshyah

*Got Down Syndrome?

www.gotdownsyndrome.net

From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of BrownSent: Wednesday, June 21, 2006 11:11 AMDown Syndrome Treatment Subject: Intro and question

Hello all!My name is Liz and I have a beautiful little girl, 13 months, who has Trisomy 21. She is doing well and is the love of our lives. I am quite interested in supplements and we've pieced together some stuff we give her. It seems to be working but i think I will always be tinkering with it slightly. We give her 1/2 dosage of NVD (worried about Vit. A right now), 1 capsule of Nordic Naturals Pro DHA, 1 capsule of tumeric, and the NVD nighttime formula. I am interested in ambrotose, but have not found the ingredients yet (not on website or i just can't find it). I also have not met someone who does both NVD and Ambrotose so i wonder if there is crossover of ingredients. Also colostrum is interesting me for cold season. Would love to hear what you all think or what you are supplementing (and if you are not then why.) Thanks!

June 22, 2006

Welcome to the list Liz :-)

I can tell you my experience with the items you are asking about, though other's have had different ones. I have found the best to know for sure is to simply try it on your child. ;-)

The kids are all so different and so react differently.

We tried Ambrotose and I didn't notice a bit of change in her. Since then we started the Specific Carbohydrate Diet and most of the sugars in it are not allowed on her diet as they are hard to digest. There used to a recipe on this site along with this very long article on it -

http://www.cdadc.com/ds/downsyndromeglyconutrients.htm

but the link no longer works. I think you would do much better to make sure your child is eating a wide variety of fruits and veggies grown organicly. :-)

I have tried Kirkmans Gold Colustrum twice now and had no results at all from it. Did nothing for . I gave it to my dd for her 3 kids and haven't heard if she thinks it did anything or not. Same for echanacia....now Sambucol makes her autoimmune issues flare up so I assume it does stimulate the immune system, but didn't prevent colds for her either.

What has worked best for us is a properly functioning gut and lots of yogurt. :-)

I also suspect that gluthathione cream helps her immunity and doesn't bother her autoimmune issues either.

We tried the nighttime formula, but at the time she was always nursing and it didn't make a bit of difference in her sleep, she slept like a rock most of the time anyway...

Right now I use Kirkman's Everyday Vitamins w/o vit A and use Carlson's cod liver oil instead. I use Carlson's fish and salmon oils, extra mag, zinc and C and sometimes add extra E and primrose oil.

Am also liking our topical gluth cream too.

--Carol in IL

-------------- Original message -------------- From: " Brown" <archiepug@...>

Hello all!My name is Liz and I have a beautiful little girl, 13 months, who has Trisomy 21. She is doing well and is the love of our lives. I am quite interested in supplements and we've pieced together some stuff we give her. It seems to be working but i think I will always be tinkering with it slightly. We give her 1/2 dosage of NVD (worried about Vit. A right now), 1 capsule of Nordic Naturals Pro DHA, 1 capsule of tumeric, and the NVD nighttime formula. I am interested in ambrotose, but have not found the ingredients yet (not on website or i just can't find it). I also have not met someone who does both NVD and Ambrotose so i wonder if there is crossover of ingredients. Also colostrum is interesting me for cold season. Would love to hear what you all think or what you are supplementing (and if you are not then why.) Thanks!

June 23, 2006

Hi Kathy R,

Sorry if I miss spoke......let's see......The alopecia is an autoimmune disorder like celiac. If you have one autoimmune you are likely to have another. For us the alopecia was a "clue" to look further. Especially since our kiddos with T21 are very prone to autoimmune disorders. Does that make sense? Sometimes alopecia is just alopecia too!

Marcy

June 23, 2006

<<ette were in S. Florida are you? I am so excited about this new site! Marcy>>

I already asked her that :-) she's in Stuart and I'm in Coconut Creek just north of lauderdale? Where are you? We should all start preparing for hurricane parties.

Sherry

June 23, 2006

Here's some Turmeric info for you:

http://www.turmeric-curcumin.com/curcumin.html

http://www.turmeric-curcumin.com/

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & list_uids=1574446 & dopt=Abstract

http://www.telegraph.co.uk/news/main.jhtml?xml=/news/2004/09/10/ncurry10.xml & sSheet=/news/2004/09/10/ixhome.html

http://www.curcuminoids.com/

When I was researching Turmeric, I found an abstract that said, they found no adverse effects of giving 8000mgs a day in patients. 500 mgs is 1/4 teaspoon. We give my brother anywhere between 250 & 500 mgs every other day.

Qadoshyah

*Got Down Syndrome?

www.gotdownsyndrome.net

From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of sharondcaswellSent: Friday, June 23, 2006 7:47 AMDown Syndrome Treatment Subject: Re: Intro and question

I am interested in starting to use Tumeric with my 5 month old, DS son. Does anyone know where I can find info on this? Is it just regular Tumeric that you buy in the Spice isles? Also, is there somewhere to check dosages?thanks.>> Hi & welcome to the group. > > I have a 16 month old brother with Down Syndrome. He takes NVD and several> other supplements as well (I'll give info below). Don't be worried much> about the Vit. A level in NVD. If you're on DSTNI, I'm sure you've seen the> current thread about it. But, if your daughter hasn't already reacted to> Vit. A, she should be fine. But, it is still recommended that you test> Vitamin A levels via bloodwork. If it's fine, then there is no need to> worry. If it's high, just contact INI/Dr. L and they can help you out> (formulate the formula,etc).> > Ambrotose - I don't believe that it has much clout to it. I don't think it'd> benefit a person with DS. NVD and a few other supplements are what benefit> the person with DS the most, I believe. I have some info on Ambrotose> (glyconutrients), that I can forward to you, if you'd like. > > This is what we give my brother:> > Morning: > NTV-D Daily Supp (2 1/8 scoops)> Turmeric (1 capsule - 500 mgs) one day and 1 Blueberry extract capsule the> next day> Zinc (15mgs extra one day and 7mgs extra the next day)> > Afternoon:> Methylcobalamin B12 (short - MethylB12 - he takes 1/4 lozenge [250mgs])> L-Carnosine (100mgs)> > Evening:> NTV-D Daily Supp (2 1/8 scoops)> 1 capsule Tart Cherry> 1 capsule TMG (TriMethylGlycine - 500mgs)> > Before Bed:> NTV-D Nighttime > > Since my brother still breastfeeds, my mom takes Nordic Naturals ProDHA> for him.> We're thinking of adding in Grape Seed Extract also & possibly> Resveratrol (both are things found in grapes).> > We give all the "extra" things for the reasons below:> > *Turmeric - Very good antioxidant. Very good anticarcinogenic (anti-cancer),> particularly leukemia. Helps prevent AD . . . deals with and breaks up> amyloid-beta plaques & tangles. > > *Blueberry extract - Very good antioxidant - it improves memory, crosses the> blood-brain barrier, reverses brain aging, improves auditory processing. ( > > <http://www.lef.org/magazine/mag2005/dec2005_supp_blueberry_01.htm>> http://www.lef.org/magazine/mag2005/dec2005_supp_blueberry_01.htm> ).> > *Zinc - alot of those with DS are deficient in it. My brother is. It is also> a good antioxidant and also helps the thyroid.> > *Methylcobalamin B12 - Homocysteine levels are normally low in DS & MCV> levels are normally high in DS (which can lead to leukemia). MethylB12 helps> raise homocysteine levels & lower MCV levels. Because, MethylB12 is a folate> system component, and the folate cycle in DS is all messed up. Due to the> overexpressed CBS gene. The SAM cycle traps folate, so even though they may> not test deficient in it, they are deficient in it.> > *L-Carnosine - Very good antioxidant. It is used as an anti-aging amino> acid, actually. It helps with the brain. We noticed my brother was born "in> tune" and "there" when we started this.> > *Tart Cherry - Very good antioxidant, anti-inflammatory & anti-carcinogenic.> Thyroid issues are an inflammatory issue & so is AD.> > *TMG - same reason as for MethylB12. It's a way to get folate in.> > *Nighttime formula - If we don't give it, my brother takes several more naps> during the day & he is fussy. If we give it every night, he only takes 1 nap> (since he sleeps better at night) & he is happy all day long. > > > > Qadoshyah > <http://www.geocities.com/gotgenetics/home.html> > *Got Down Syndrome?> www.gotdownsyndrome.net <http://www.gotdownsyndrome.net/>> <http://www.geocities.com/dsinfo05/home.html> > <http://www.geocities.com/westernsuntack> > > _____ > > From: Down Syndrome Treatment > [mailto:Down Syndrome Treatment ] On Behalf Of > Brown> Sent: Wednesday, June 21, 2006 11:11 AM> Down Syndrome Treatment > Subject: Intro and question> > > > Hello all!> My name is Liz and I have a beautiful little girl, 13 months, who has > Trisomy 21. She is doing well and is the love of our lives. I am > quite interested in supplements and we've pieced together some stuff > we give her. It seems to be working but i think I will always be > tinkering with it slightly. We give her 1/2 dosage of NVD (worried > about Vit. A right now), 1 capsule of Nordic Naturals Pro DHA, 1 > capsule of tumeric, and the NVD nighttime formula. I am interested in > ambrotose, but have not found the ingredients yet (not on website or i > just can't find it). I also have not met someone who does both NVD > and Ambrotose so i wonder if there is crossover of ingredients. Also > colostrum is interesting me for cold season. Would love to hear what > you all think or what you are supplementing (and if you are not then > why.) Thanks!>

June 25, 2006

I am using it too. But the dosage varies depending on what she eats. More if she is having her squash that day as I add it in there, less if I add it to her daily dose of vitamins.

Have oxyclean at the ready as it STAINS.

It's just a spice you know and in many countries it's used pretty heavily, so doubt you could over dose unless you are giving well over a tsp or more at time.

--Carol in IL

--------- Intro and question> > > > Hello all!> My name is Liz and I have a beautiful little girl, 13 months, who has > Trisomy 21. She is doing well and is the love of our li

ves. I am > quite interested in supplements and we've pieced together some stuff > we give her. It seems to be working but i think I will always be > tinkering with it slightly. We give her 1/2 dosage of NVD (worried > about Vit. A right now), 1 capsule of Nordic Naturals Pro DHA, 1 > capsule of tumeric, and the NVD nighttime formula. I am interested in > ambrotose, but have not found the ingredients yet (not on website or i > just can't find it). I also have not met someone who does both NVD > and Ambrotose so i wonder if there is crossover of ingredients. Also > colostrum is interesting me for cold season. Would love to hear what > you all think or what you are supplementing (and if you are not then > why.) Thanks!>

June 28, 2006

Hi ,

I wouldn't suggest using less sugar, as you would be deviating from the

recipe.

I think the answer to your question is simple. Just let it brew a little

more. After 5 days, you can insert a straw under the SCOBY and suck up a

little of the Kombucha to taste. I find that 10-12 days is more like it,

but you should be able to fine-tune it exactly to your taste.

and the K9's

-----

> It's nice, but a little sweet for my taste; but I don't want it very much

> more sour, the

> liquid the mother arrived in was vinegar-like. Can I make it with

> a little less sugar?

April 26, 2007

Hi Jinny. I am so glad to see you posted to the group. I can assure you there will be feedback and that you have found the best group for information and support. Welcome!!!!!!!!

Donna Fox-Keidel, Arthritis Foundation VolunteerJuvenile Arthritis Alliance - KY Chapter, ChairpersonArthritis EXPO, Vice Chairperson502-439-1008ajaoky@...See what's free at AOL.com.

April 26, 2007

Hi, Jinny. It sounds to me like you are

taking all the right steps in addressing the situation. What reason did the

insurance give for the denial? How awful for you that they would deny him since

the med sounds like it just the right combo and that can be so hard to find.

Sorry I cannot be of any help on any of your questions, but I did want to

welcome you to the group and I am sure someone with more experience in your

issues will post soon. Michele ( 19, spondy)

From: [mailto: ] On Behalf Of P Woods

Sent: Wednesday, April 25, 2007

6:07 PM

Subject: Intro and question

Hi

I'd like to introduce myself. I'm Jinny, mom to four children, wife to

Bob. Our oldest child, was diagnosed in 03 with pauciarticular

JRA. He is now 10 years old- 11 in July. We've been through a variety

of meds- naproxen, methotrexate, enbrel etc and had varied

successes-eventual failures with all of them. Since March 06 has

been on ketoprofen, arava, and remicade. It has been an extremely

successful combination of drugs. It was like having a child with little

to no arthritis! The remicade especially seems to have made a big

difference in his flaring. Our insurance company okayed the Remicade for

a year - which ended March 1 of this year. They have now denied to pay

for Remicade again. It has now been 9 weeks since Chris' last infusion.

He is on a low dose of prednisone to help the inflammation for now and

the indefinite future until we can figure something out. He is pretty

miserable - hurting quite a bit and swelling some. We are appealing the

insurance denial, applying for patient assistance program with Centocor,

and applying at the Shriners hospital that is in the same city as our

pediatric rheumatologist. We could apply for help with the commission of

special needs kids, but we would have to stay in state (KY) and our dr/

hospital is in Missouri.

We really don't want to have to change drs.

All of these things take time. Has anyone else dealt with this or does

anyone have any ideas? I'd also like some feedback from those that have

tried Humira. That seems to be the next biologic in line if this fails.

Thanks so much

Jinny

April 26, 2007

Hi

I’m

and my daughter has jra diagnosed in 95 she will be 14 in June (where does the

time go). We have been on remicade only a couple months but already I

have been fighting to have it covered. Our insurance didn’t want to

cover it because they could go cheaper with their pharmacy and the dr won’t

let them “brownbag” medication and insists on using their

own. Needless to say I got her covered for tomorrow but the future is

unsure of what is going to happen. When the insurance company looked

through our records and saw that this medication was necessary is when they

oked tomorrows treatment. Maybe they don’t want the dr to use his

own meds or the dr won’t let them send in meds. Will they allow a

nurse to come into your home and give the meds that may be our route before too

long. Also, the insurance company said something about the dr writing a

prescription for the meds. Not sure what that does but it is worth

looking into. I don’t know if I was any help, however; my prayers

go out to you. BIG HUGS

From: [mailto: ] On Behalf Of P Woods

Sent: Wednesday, April 25, 2007

4:07 PM