just wondering

[Guest guest]

It is not a weight limit it is you BMI ( Body mass Index). I was not a

canidate since my BMI was over 31- I think that was the number that the

dr quoted. However, since that was the " trials " specifications, and it

has been reported that the FDA has approved one appliance, it may no

longer be an issue.

MJ

Jane Le Kanides

http://www.my.tupperware.com/maryjanelk Visit my online Tupperware store

[Guest guest]

Hi Mazza

TKR = total knee replacement

PKR = partial knee replacement

I don't really think there is an actual weight limits on resurfacing, I think

you are just

unfortunate that your femor is so deformed. I know it has been suggested before

but you

could still email your x-rays to De Smet or even MB just as another opinion - it

wouldn't

cost anything!!!!

you take care now

jane - in Wales

> > I agree with Chris. Check out everything, and find a dr who does

> both.

> > My husband chose a dr who does both, and when I need my hip

> replaced I

> > went to him also - despite a 5 hr road trip. Because of my

> weight, I was

> > not a canidate for resurfacing. I dieted, and tried to reduce my

> BMI,

> > but was unsucessful, and I was in too much pain to postpone my

> replaement

> > much longer.

[Guest guest]

Hello Mazza,

Weight limits in resurfacing depend on the surgeon. I know of some in the

USA

who probably not havedone me because of my size (6'5 " , 270 lbs). My surgeon,

though, (DeSmet in Belgium) has done a patient over 400 lbs!! I guess the best

advice

is to not take the first refusal as final. DeSmet, I know, will give a free

analysis based

on an x-ray and an email. Many other docs do the same.

TKR is total knee replacement.

PKR is (I think) partial knee replacement.

Joe Alvord Eagle River, Alaska

> > I agree with Chris. Check out everything, and find a dr who does

> both.

> > My husband chose a dr who does both, and when I need my hip

> replaced I

> > went to him also - despite a 5 hr road trip. Because of my

> weight, I was

> > not a canidate for resurfacing. I dieted, and tried to reduce my

> BMI,

> > but was unsucessful, and I was in too much pain to postpone my

> replaement

> > much longer.

[Guest guest]

> i see lots of posts on here..but amazingly enough it takes over 24

> hours if at all to post..why is that?

If an emails doesn't appear, was it really sent? Excuse me for being

exestential.

The reason it may take some time for posts to show up is because the

2 moderators -- me & Whims -- actually have lives outside of this

list. We have these crazy things called " jobs " and " families " that

tend to require time & attention. Additionally, there have been 2

situations that happened at the same time:

1) The max amount of posting was increased to 5. (I did not vote for

this rule change!!!!)

2) We are getting A LOT (caps intended) of newbies. Remember that

every new person on this list is automatically on moderation so with

the increased activity/membership, it takes longer to go through the

posts that are waiting in the queue.

I'm spending a lot of time having to go back & check how many times

anyone person has posted. Being that some people are sending upto 12

posts a day, I need to keep count of how many posts have gone

through already. This behavior does not inspire me to change the

moderation status so this list can become anyone's personal blog and

therefore this takes more of my time.

Does this answer your question?

Rose

[Guest guest]

my son goes to the clinic from time to time. so have both of my daughters. its a great place. evelynSue <sweetsueohio2002@...> wrote: I'm reading as many of these posts as I can. While I don't know where most of you are located, I,m wondering if anyone here knows about THE CLEVELAND CLINIC http://www.clevelandclinic.org? People from all walks of life, come from all over the world to be treated at this hopital. They are on the cutting edge of just about everything you can think of, and then some. Check out the link, the place is hudge. Sueevelyn <peaches0106@...> wrote: hi sandy. glad to have you join the group. you will find lots of support here. evelynSandy <pavlovswoo@...> wrote: Hey My name is Sandy and I have endometriosis and IC. Some days are so frustrating I dont want to live. I cant go a day without pain medicine. I have been down a long road undiagnosed for a long time. I just want it to be over. Sandy~~~~ *** ~~~ *** ~~~ *** ~~~~The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or

problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.---

Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

Heidi,

The biggest thing that got to me in your message was " he rarely is happy " .

Sounds very familiar to me! was not a happy camper for a long time.

His peak behaviors occurred at age 9. He also slammed heads against walls

and floors. The breaking stuff still occurs...sigh! Anyway, get him back

to the doctor and try to document as much as you can. I would keep track of

his day (24 hour) and mark what food he gets when, when he sleeps, what

behavior occurs, what precipitated it, etc. Hopefully you will see some

pattern develop. Another thing..puberty hit when he was nine years

old. I can't imagine how the hormones played havoc with his moods.

You are right, people and family around you won't understand. ph's

needs are a bit more than the average child with DS. My mother in law tells

everyone that would talk if I quit using sign language with

him.....lol! Hang in there and get some professional help.

I recently started another list for those who have children with a dual

diagnosis (but not autism or asd b/c there is already a list for that

subgroup). The other group is downsyn . Should

have named it something else...but I was in a hurry when I created it. We

have 33 members so far and the kids have ADHD, OCD, ADHD, etc.

just wondering

> Hello all, My name is Heidi , I mostly lurk and read all the

> good

> advice, but on occasion I ask questions. Well here is another kind

> of.....

> Ok ph is 8 almost 9 with Downs, ADHD, and Allergies, but lately

> wonder if there is something else or if there is another kind of

> medication.

>

>

> Behaviors include: Choking brother, sister, or myself when he gets mad,

> Not listening typical of most kids at some time or another, but it is like

> nothing sinks in at all., hitting, spitting, saying I hate all the time,

> throwing things, Banging sisters head on the floor, and just with in the

> last few days breaking whatever is in sight glass, (on that one I think he

> likes the reaction of what happens when he does it.), He is just plan

> mean

>

>

> He is taking Tenex and Clonidine for his ADHD and the Clonidine is to also

> help sleep.

>

> To me I guess he seems very angry at times, he is rarely happy. I am just

> kind of feeling like I don't know what to do and maybe just need to vent,

> sometimes I feel like the people and family I am around do not understand.

> I guess I just need to know if there is something else that needs to be

> addressed or just an ear to vent. Any advice would be appreciated.

>

> How do you discipline a kid that just does not care that much about

> anything? He does not care about what you take away, I do know there

> has

> to be a way though, any ideas... I don't know why I feel so lost on

> everything now but feel like nothing works that I have tried.

>

> Thank you all in advance and thank you all for listening to me vent.

> Hugs Heidi

>

>

[Guest guest]

In a message dated 8/9/2006 1:32:45 P.M. Central Standard Time,

writes:

Hello all, My name is Heidi , I mostly lurk and read all the good

advice, but on occasion I ask questions. Well here is another kind of.....

Ok ph is 8 almost 9 with Downs, ADHD, and Allergies, but lately

wonder if there is something else or if there is another kind of medication.

Behaviors include: Choking brother, sister, or myself when he gets mad,

Not listening typical of most kids at some time or another, but it is like

nothing sinks in at all., hitting, spitting, saying I hate all the time,

throwing things, Banging sisters head on the floor, and just with in the

last few days breaking whatever is in sight glass, (on that one I think he

likes the reaction of what happens when he does it.), He is just plan mean

He is taking Tenex and Clonidine for his ADHD and the Clonidine is to also

help sleep.

To me I guess he seems very angry at times, he is rarely happy. I am just

kind of feeling like I don't know what to do and maybe just need to vent,

sometimes I feel like the people and family I am around do not understand.

I guess I just need to know if there is something else that needs to be

addressed or just an ear to vent. Any advice would be appreciated.

How do you discipline a kid that just does not care that much about

anything? He does not care about what you take away, I do know there has

to be a way though, any ideas... I don't know why I feel so lost on

everything now but feel like nothing works that I have tried.

Thank you all in advance and thank you all for listening to me vent.

Hugs Heidi

Heidi,

Sorry to say but I know what you are talking about. Was this behavior

happening before the current meds? I ask because our son had horrible nastiness

on

clonidine until we got the doseage correct. He also became self-injurious and

nasty on some other drugs.

I know the trick with our son was to stay positive and reinforce over and

over but that is very difficult with other kids involved and I'm sure they react

to his behaviors.

I don't have any great answers but definitely understand your frustration.

Karyn

[Guest guest]

Hi, Heidi & welcome!

I was also struck by the rarely happy observation. He seems very young to

be so often unhappy.

's suggestion of observing and tracking behaviors is what I would also

suggest - pay attention to everything that is happening, not just his

responses. Also be prepared to go back to something that happens in the

morning to help explain behavior that happens at lunch or even after - kids

remember their feelings more than we adults sometimes realize.

The other thing that nudged me from your post was the anger and that he

seems to feel a need for control and is trying to assert control in some

really unacceptable ways - is he getting enough opportunities to make some

choices in his daily life? (not just at home - all environments matter)

Sometimes with Jess, it wasn't even a matter of the choice itself as of her

being allowed to express her opinion and have it validated - for example,

telling a teacher that she didn't want to do something. Teachers who got

into a control battle over her saying she didn't want to __ almost always

had behavior issues while if a teacher acknowledged her feelings and

validated that she could feel them the teacher almost always got no behavior

and usually got what needed to be done done without problems.

Somewhere between ages 9 - about 16 seem to be the hardest (for parents

anyway ; )) no matter whether the child is typical for ds or even typical

nda. Jess was her most disagreeable at 12 - 14 and seems to be mellowing

down at 17 (of course, her brother is 13. . . ). I've heard several other

parents say that some point in those ages was a terrible time in terms of

behavior for their kids w/ds too. It does get better (our older two, now in

their twenties, are much more agreeable than they used to be), but he does

need to stop some of these things now since you surely don't want him still

doing them when he's older and bigger.

Judi

_____

From: [mailto: ] On Behalf

Of

Sent: Tuesday, August 08, 2006 6:21 PM

Heidi and Josh;

Subject: Re: just wondering

Heidi,

The biggest thing that got to me in your message was " he rarely is happy " .

Sounds very familiar to me! was not a happy camper for a long time.

His peak behaviors occurred at age 9. He also slammed heads against walls

and floors. The breaking stuff still occurs...sigh! Anyway, get him back

to the doctor and try to document as much as you can. I would keep track of

his day (24 hour) and mark what food he gets when, when he sleeps, what

behavior occurs, what precipitated it, etc. Hopefully you will see some

pattern develop. Another thing..puberty hit when he was nine years

old. I can't imagine how the hormones played havoc with his moods.

You are right, people and family around you won't understand. ph's

needs are a bit more than the average child with DS. My mother in law tells

everyone that would talk if I quit using sign language with

him.....lol! Hang in there and get some professional help.

I recently started another list for those who have children with a dual

diagnosis (but not autism or asd b/c there is already a list for that

subgroup). The other group is downsyn@

<mailto:downsyn%40> . Should

have named it something else...but I was in a hurry when I created it. We

have 33 members so far and the kids have ADHD, OCD, ADHD, etc.

just wondering

> Hello all, My name is Heidi , I mostly lurk and read all the

> good

> advice, but on occasion I ask questions. Well here is another kind

> of.....

> Ok ph is 8 almost 9 with Downs, ADHD, and Allergies, but lately

> wonder if there is something else or if there is another kind of

> medication.

>

>

> Behaviors include: Choking brother, sister, or myself when he gets mad,

> Not listening typical of most kids at some time or another, but it is like

> nothing sinks in at all., hitting, spitting, saying I hate all the time,

> throwing things, Banging sisters head on the floor, and just with in the

> last few days breaking whatever is in sight glass, (on that one I think he

> likes the reaction of what happens when he does it.), He is just plan

> mean

>

>

> He is taking Tenex and Clonidine for his ADHD and the Clonidine is to also

> help sleep.

>

> To me I guess he seems very angry at times, he is rarely happy. I am just

> kind of feeling like I don't know what to do and maybe just need to vent,

> sometimes I feel like the people and family I am around do not understand.

> I guess I just need to know if there is something else that needs to be

> addressed or just an ear to vent. Any advice would be appreciated.

>

> How do you discipline a kid that just does not care that much about

> anything? He does not care about what you take away, I do know there

> has

> to be a way though, any ideas... I don't know why I feel so lost on

> everything now but feel like nothing works that I have tried.

>

> Thank you all in advance and thank you all for listening to me vent.

> Hugs Heidi

>

>

[Guest guest]

where do you live? My son also has DS and ADHD. He takes Dexadrine for the

ADHD.

He is 9 years old.

I recommend looking into Wrap Around services for any child with challenging

behaviors.

We've been getting wrap around for about 2 years now and will be discharging

them very soon. We are at a point where Nic's behaviors are now manageable.

Wrap around is a service where a team of professionals come in, evaluate

your child's behaviors, make a plan and come into your home(or wherever the

behaviors seem to be happening) and teach you techniques and strategies to

get them under control.

we are in PA. The services are covered by his insurance under the mental

health section.

Di

just wondering

> Hello all, My name is Heidi , I mostly lurk and read all the

> good

> advice, but on occasion I ask questions. Well here is another kind

> of.....

> Ok ph is 8 almost 9 with Downs, ADHD, and Allergies, but lately

> wonder if there is something else or if there is another kind of

> medication.

>

>

> Behaviors include: Choking brother, sister, or myself when he gets mad,

> Not listening typical of most kids at some time or another, but it is like

> nothing sinks in at all., hitting, spitting, saying I hate all the time,

> throwing things, Banging sisters head on the floor, and just with in the

> last few days breaking whatever is in sight glass, (on that one I think he

> likes the reaction of what happens when he does it.), He is just plan

> mean

>

>

> He is taking Tenex and Clonidine for his ADHD and the Clonidine is to also

> help sleep.

>

> To me I guess he seems very angry at times, he is rarely happy. I am just

> kind of feeling like I don't know what to do and maybe just need to vent,

> sometimes I feel like the people and family I am around do not understand.

> I guess I just need to know if there is something else that needs to be

> addressed or just an ear to vent. Any advice would be appreciated.

>

> How do you discipline a kid that just does not care that much about

> anything? He does not care about what you take away, I do know there

> has

> to be a way though, any ideas... I don't know why I feel so lost on

> everything now but feel like nothing works that I have tried.

>

> Thank you all in advance and thank you all for listening to me vent.

> Hugs Heidi

>

>

[Guest guest]

You make a good point.

Last year we tried switching Nic to Strattera. It made him extremely

violent!

Check into you meds situation. They may need adjusting.

Di

>>

>>

>

> Heidi,

> Sorry to say but I know what you are talking about. Was this behavior

> happening before the current meds? I ask because our son had horrible

> nastiness on

> clonidine until we got the doseage correct. He also became self-injurious

> and

> nasty on some other drugs.

>

[Guest guest]

Not for me, I am right handed and was born in Nov. Am I the only one

messing that theory up?

>

> hi, i have a question, i've met 4 or 5 people with heterochromia,

and

> the thing is, they've all been left handed and born in february like

> me. Is this a coincidence or are there more of you out there?

>

[Guest guest]

>

>

> what percent of people have heterochromia, it's still a shock for me

> to find out this many people have it. and also how many have

> heterochromia iridis, which is more rare? Any one who knows please

> shre the info. thanks for your time. Ashlee

I'm right handed and born in November too! Maybe we have a new

trend.....

>

[Guest guest]

i'm right handed and born on christmas day.klagisthe1 <klagisthe1@...> wrote: hi, i have a question, i've met 4 or 5 people with heterochromia, and the thing is, they've all been left handed and born in february like me. Is this a coincidence or are there more of you out there?

[Guest guest]

Sorry to spoil anyones theory, but I am right handed and was born in

April. I do like all these theories, as in all my 50 years, I have

only ever seen one other person with heterochromia, and it is

intersting to hear what other people think.

Lesley White

>

> hi, i have a question, i've met 4 or 5 people with heterochromia,

and

> the thing is, they've all been left handed and born in february like

> me. Is this a coincidence or are there more of you out there?

>

[Guest guest]

In a message dated 9/26/2006 6:13:42 PM Pacific Standard Time, klagisthe1@... writes:

they've all been left handed and born in february like me. Is this a coincidence or are there more of you out there?

I'm right handed and was born in April.

[Guest guest]

I'm right handed and born in May.

Zawislanski

From: heterochromia [mailto:heterochromia ] On Behalf Of LesleySent: Wednesday, September 27, 2006 5:14 AMheterochromia Subject: Re: just wondering

Sorry to spoil anyones theory, but I am right handed and was born in April. I do like all these theories, as in all my 50 years, I have only ever seen one other person with heterochromia, and it is intersting to hear what other people think.Lesley White>> hi, i have a question, i've met 4 or 5 people with heterochromia, and > the thing is, they've all been left handed and born in february like > me. Is this a coincidence or are there more of you out there?>

[Guest guest]

Right handed and born in May... Perhaps a poll would work for this

question, but it already seems like there isn't much of a

correlation.

> >

> > hi, i have a question, i've met 4 or 5 people with

heterochromia,

> and

> > the thing is, they've all been left handed and born in february

like

> > me. Is this a coincidence or are there more of you out there?

> >

>

[Guest guest]

My BD is March 19,but my friend Tammy who is also heterochromic is May 23.

just wondering

hi, i have a question, i've met 4 or 5 people with heterochromia, and the thing is, they've all been left handed and born in february like me. Is this a coincidence or are there more of you out there?

[Guest guest]

>

> hi, i have a question, i've met 4 or 5 people with heterochromia, and

> the thing is, they've all been left handed and born in february like

> me. Is this a coincidence or are there more of you out there?

>

To add to the spoilers to this theory... My three month old with

Heterochromia is just that three months old so there for born in June.

Obviously he hasn't show a preffrence to hand use but his father is a

lefty and I'm predominately left but write right so go figure on what

he'll want to do when he's older!

[Guest guest]

I'm right handed and was born October 30th.

>

> hi, i have a question, i've met 4 or 5 people with heterochromia,

and

> the thing is, they've all been left handed and born in february like

> me. Is this a coincidence or are there more of you out there?

>

[Guest guest]

Right handed born in September

>

> hi, i have a question, i've met 4 or 5 people with heterochromia, and

> the thing is, they've all been left handed and born in february like

> me. Is this a coincidence or are there more of you out there?

>

[Guest guest]

My son, , is also a righty (I'm pretty sure anyway) and born in

September.

He just turned one last weekend and we are getting the referral to go see

an opthamologist. His eyes were the same color (deep blue) when he was

born and around 5 months, one stayed blue and the other turned mostly

brown with a little blue.

> Right handed born in September

>

>

>>

>> hi, i have a question, i've met 4 or 5 people with heterochromia, and

>> the thing is, they've all been left handed and born in february like

>> me. Is this a coincidence or are there more of you out there?

>>

>

>

>

>

>

>

[Guest guest]

If anyone wants to peek, I created an album called 's Eyes and put a

photo of him at 9 months - not sure if the photo is up yet - and his eyes

look mostly the same now, 3 months later. The blue side has since

lightened a bit more so in brighter light, I think the color contrast is

more apparent now.

> My son, , is also a righty (I'm pretty sure anyway) and born in

> September.

>

> He just turned one last weekend and we are getting the referral to go see

> an opthamologist. His eyes were the same color (deep blue) when he was

> born and around 5 months, one stayed blue and the other turned mostly

> brown with a little blue.

>

>

>

>> Right handed born in September

>>

>>

>>>

>>> hi, i have a question, i've met 4 or 5 people with heterochromia, and

>>> the thing is, they've all been left handed and born in february like

>>> me. Is this a coincidence or are there more of you out there?

>>>

>>

>>

>>

>>

>>

>>

>

>

>

[Guest guest]

Mine changed when I was 10 months and are

still the same.

From:

heterochromia [mailto:heterochromia ] On Behalf Of julie@...

Sent: Wednesday, September 27,

2006 2:13 PM

heterochromia

Subject: Re: Re:

just wondering

My son, , is also a righty (I'm pretty sure

anyway) and born in

September.

He just turned one last weekend and we are getting the referral to go see

an opthamologist. His eyes were the same color (deep blue) when he was

born and around 5 months, one stayed blue and the other turned mostly

brown with a little blue.

> Right handed born in September

>

>

>>

>> hi, i have a question, i've met 4 or 5 people with heterochromia, and

>> the thing is, they've all been left handed and born in february like

>> me. Is this a coincidence or are there more of you out there?

>>

>

>

>

>

>

>

[Guest guest]

I have the same type of eyes. You can check out my pictures in the

photos section under Rochelle.

> >>

> >> hi, i have a question, i've met 4 or 5 people with

heterochromia, and

> >> the thing is, they've all been left handed and born in february

like

> >> me. Is this a coincidence or are there more of you out there?

> >>

> >

> >

> >

> >

> >

> >

>