Hello All!

[Guest guest]

In a message dated 1/22/00 12:24:15 AM Eastern Standard Time,

kjdrake@... writes:

<< I have just recently subscribed back to the list and this time I am really

single.I am looking for friends and a relationship. I go into the chat room

alot. " Pippylittle " is my nick.I am not desperate I am just looking for that

special someone. >>

e:

Really single compared to just single?

That is good that you're looking for friends and a relationship there is no

harm in that and by the way its not desperate. There is no harm in looking

for that someone special. :-)

Just remember that just because people are paired off with people don't

necessarily always mean that they're 100% happy and content with each other.

That is why they eventually break up and there are divorces.

Don't get me wrong its nice to be with someone, but its also nice to be

single too. I think there are advantages and disadvantages in both.

One has to be happy with themself and once a person comes to that point they

live a more happier life and eventually will find someone if they choose to

share it with someone else. :-)

Helen

[Guest guest]

Congratulates a & Family! Happy to hear all is going

well, and your little-little is on her way to school. ;o)

Mandy is doing exceptionally well, and is having a good

summer. She has a job starting at the end of August, and I

am quite excited for her. She will be working at the school

district day care. The job fell right into her hands, and

she is looking forward to it!

The Utah weather in Ogden is nice and hot, and the air feels

a bit heavy. We spent the first of our afternoon in our

pool, and hopefully another dip before dark.

The Hoggans are missing National, and sure wish we could be

there.

For other goers who are home this year, can't you hear the

foyer and all the LPs chatting away? National seems like so

much of our lifes that we feel we can hear everyone....

Mandy is missing the dances, and is trying to talk us into

flying in for one dance...LOL

For those having to stay home, we wish you the best of a

lonely week. Just think CANADA next year and then UTAH!!!!!

Hugs to all,

The Hoggan Clan

***********************************

Let today be the beginning of

a new experience in your life,

and treasure it with a~smile~!

***********************************

Hello all!

> Hello to all you SAHD & F...........Stay at home Dwarfs and

families. All is

> hot here down on the Whitehead farm. I signed on to find

NO mail so I had to

> fix that. I am happy to say at this time my

daughter....the light of my

> life........is doing fine and headed to her first full

year of school. I

> HOPE! She has overcome all the little draw backs and is

able to be self

> sufficient in almost everything.

>

> I hope this e-mail finds everyone healthy, happy and ready

for a beautiful

> 4th. For those of us that stayed home.........wishing you

all the best........

>

> a Whitehead

> CEO

> AIS

> Achondroplasia Information Source

> 254-533-2644

> 191 HCR 3315

> Hubbard, TX 76648

>

> ----------------------------------------------------------

----------------------

>

>

> ----------------------------------------------------------

----------------------

>

>

[Guest guest]

hello, my name is . I had the same surgery a month ago and yes it is normal

to be in a lot of pain just getting out of bed. Did he have th surgery through

the front or back?

[Guest guest]

studdard1, welcome. you just missed a great conference where a group

of young(and maybe not so young) adults with jra gathered in

minneapolis, mn for a few days. during the 2003 year there are three

conferences scheduled. you will find several adults with jra that

visit this forum and offer help when possible to parents of young

children with jra.

congrats on the new job! i am considering taking a volunteer position

for three months in the Badlands Nation Park. I don't know if i can

handle three months 75 miles away from the nearest town. i recently

retired from a 20+ year career, so i have lots of time to offer.

my home town is atlanta. lived there until 1989 when i moved to

dallas, tx.

again, welcome...you will find lots of nice people here.

aL Masters - almasters@...

http://www.jraadults.com

> My name is , and I have just found this message board. I was

> diagnosed with jra in 1971, at age 4, after I would come in from

> playing outside because my ankles hurt. I was diagnosed after a week

> of testing at Egleston Children's Hospital in Atlanta.

>

> Today, after 14 years at a desk job, as a graphic designer in

> Atlanta, (getting stiffer every day), I have just landed my dream

> job...I will soon be a Park Guide at Cumberland Gap National

Historic

> Park in TN. Feel free to come visit me at the park.

>

> I have so much to share with kids who have jra (and their

parents)...

> but the one the I must say first is hang in there! It does get

better

> as you get older. My main words of advice to anyone with this

illness

> is that you will feel better if you stay active!

>

> Here are a few topics I plan to discuss...if any of these rings a

> bell with you, feel free to email me with questions...

>

> 1. Excercising isn't fun unless you make it that way.

> 2. Splints are not comfortable to sleep in.

> 3. If you talk to people about your illness, they'll be more

> comfortable with you and make much better friends. (This took me 30

> years to learn!)

> 4. Swimming is awesome!

> 5. Kids can be really cruel...but you are tough.

> 6. You, too can put on socks and shoes!...Homemade dressing tools,

> toenail clippers, and cool shoes that you can put on without

> help...because someday you will have to leave home.

> 7. Parental love vs. overprotectiveness...a fine line. (i.e...they

> gotta grow up sometime!)

> 8. Where is my chin? (On implant surgery)

> 9. Form vs. function...don't have surgery just to have prettier

feet!

> 10. Joint replacement surgery is a good thing.

> 11. On applying for disability and interesting government jobs

under

> the " special hiring authority " .

> 12. Skinny legs and all...on loving yourself.

>

> As I am in the midst of moving...it may take me a bit of time to get

> to it all, but if any young folks need some immediate support from

> someone whos been there...please email me! If all goes well, I'd

like

> to put all of this into a book someday. I remember being a kid and

> feeling so alone...because it seemed I was the only one in the

world

> who had to deal with this.

>

> As an adult, having learned so much over the years, I feel obligated

> to pass this info along. If I can help even one kid with jra to

make it

> through those tough years, then I will feel very successful indeed!

> There are so many things that your kids may not feel comfortable

> sharing...even with you, so if they'd like to email me themself,

tell

> them to go right ahead.

[Guest guest]

hi and welcome to the group hows the moving going?

Robbin

[Guest guest]

Hello my name is kellie and my daughter's name is jessica she was diagnosed with polyarticular jra when she was 5.. what type did you have? i'd like to know more about you life growing up with it.. feel free to e-mail me.. angelsbabysis@.....

>From: "studdard1"

>Reply- > >Subject: Hello all! >Date: Thu, 15 Aug 2002 15:14:26 -0000 > >My name is , and I have just found this message board. I was >diagnosed with jra in 1971, at age 4, after I would come in from >playing outside because my ankles hurt. I was diagnosed after a week >of testing at Egleston Children's Hospital in Atlanta. > >Today, after 14 years at a desk job, as a graphic designer in >Atlanta, (getting stiffer every day), I have just landed my dream >job...I will soon be a Park Guide at Cumberland Gap National Historic >Park in TN. Feel free to come visit me at the park. > >I have so much to share with kids who have jra (and their parents)... >but the one the I must say first is hang in there! It does get better >as you get older. My main words of advice to anyone with this illness >is that you will feel better if you stay active! > >Here are a few topics I plan to discuss...if any of these rings a >bell with you, feel free to email me with questions... > >1. Excercising isn't fun unless you make it that way. >2. Splints are not comfortable to sleep in. >3. If you talk to people about your illness, they'll be more >comfortable with you and make much better friends. (This took me 30 >years to learn!) >4. Swimming is awesome! >5. Kids can be really cruel...but you are tough. >6. You, too can put on socks and shoes!...Homemade dressing tools, >toenail clippers, and cool shoes that you can put on without >help...because someday you will have to leave home. >7. Parental love vs. overprotectiveness...a fine line. (i.e...they >gotta grow up sometime!) >8. Where is my chin? (On implant surgery) >9. Form vs. function...don't have surgery just to have prettier feet! >10. Joint replacement surgery is a good thing. >11. On applying for disability and interesting government jobs under >the "special hiring authority". >12. Skinny legs and all...on loving yourself. > >As I am in the midst of moving...it may take me a bit of time to get >to it all, but if any young folks need some immediate support from >someone whos been there...please email me! If all goes well, I'd like >to put all of this into a book someday. I remember being a kid and >feeling so alone...because it seemed I was the only one in the world >who had to deal with this. > >As an adult, having learned so much over the years, I feel obligated >to pass this info along. If I can help even one kid with jra to make it >through those tough years, then I will feel very successful indeed! >There are so many things that your kids may not feel comfortable >sharing...even with you, so if they'd like to email me themself, tell >them to go right ahead. > > Send and receive Hotmail on your mobile device: Click Here

[Guest guest]

Hi ,

I just wanted to take a moment to say ..... WELCOME ! Seems like this is an incredibly busy time of year for many of us here but soon enough things will begin to settle down again. I look forward to getting to know you better. My 13 year old son Josh has systemic JRA. I have gained so much from my communications with the JRA veterans that I've met here. It does make things easier for us parents, and our kids, when we've got access to the great advice and wonderful wisdom of those who have walked this path before us. Good luck with your upcoming move. Your new career sounds wonderfully exciting! The topics you've mentioned cover many of the bases, of issues that are important to all of us at one time or another. Thank you, for your generosity and willingness to help fellow JRAers ... and those who love them : )

Aloha, Georgina

----- Original Message -----

From: studdard1

My name is , and I have just found this message board. I was diagnosed with jra in 1971, at age 4, after I would come in from playing outside because my ankles hurt. I was diagnosed after a weekof testing at Egleston Children's Hospital in Atlanta.Today, after 14 years at a desk job, as a graphic designer inAtlanta, (getting stiffer every day), I have just landed my dream job...I will soon be a Park Guide at Cumberland Gap National Historic Park in TN. Feel free to come visit me at the park.I have so much to share with kids who have jra (and their parents)... but the one the I must say first is hang in there! It does get better as you get older. My main words of advice to anyone with this illness is that you will feel better if you stay active!Here are a few topics I plan to discuss...if any of these rings abell with you, feel free to email me with questions...1. Excercising isn't fun unless you make it that way.2. Splints are not comfortable to sleep in.3. If you talk to people about your illness, they'll be more comfortable with you and make much better friends. (This took me 30 years to learn!)4. Swimming is awesome!5. Kids can be really cruel...but you are tough.6. You, too can put on socks and shoes!...Homemade dressing tools,toenail clippers, and cool shoes that you can put on without help...because someday you will have to leave home.7. Parental love vs. overprotectiveness...a fine line. (i.e...they gotta grow up sometime!)8. Where is my chin? (On implant surgery)9. Form vs. function...don't have surgery just to have prettier feet!10. Joint replacement surgery is a good thing.11. On applying for disability and interesting government jobs under the "special hiring authority".12. Skinny legs and all...on loving yourself.As I am in the midst of moving...it may take me a bit of time to getto it all, but if any young folks need some immediate support fromsomeone whos been there...please email me! If all goes well, I'd like to put all of this into a book someday. I remember being a kid and feeling so alone...because it seemed I was the only one in the world who had to deal with this.As an adult, having learned so much over the years, I feel obligatedto pass this info along. If I can help even one kid with jra to make it through those tough years, then I will feel very successful indeed! There are so many things that your kids may not feel comfortable sharing...even with you, so if they'd like to email me themself, tell them to go right ahead.

[Guest guest]

Hi Meghan,

I can't tell you much, because I haven't received my implant yet. My surgery is

not till July 1st. I am very excited. I had normal hearing till about 14 years

ago and I know what I am missing. I don't expect to get normal hearing back, but

better than what I have now. While I have been waiting I have been reading other

peoples stories and have learn a lot from this group. you can go to this page

and they have a few journels of people with CIs. Also by looking on the web

search, look under pictures of cochlear implants and if you keep at it, you can

even see a slide show of a surgery. Ugh, but you do see a fuller picture of what

is going to happen.

http://hearingexchange.com/resources/Personal_Web_Pages_-_Adults/

I wish you luck on your study, from what I have read so far, there are many

different experiences.

May

Meghan <hermoine129@...> wrote:

My name is Meghan McLaws and I am a ASL student at Mesa High School

in Mesa, Arizona. I am dooing a report on cochlear implants and I was

hoping to recieve all the imformation you can provide. And Personal

experiences that you can relate? How do you feel after? Before? Why

should you get them? ANything websites would also be benefitical.

Thank you very much. I really appriecate all you can do for me.

Meghan McLaws

[Guest guest]

Hello Tony,

It's good to hear that you are doing so well. I hope that you will continue to have pain free days and nights.

TAKE AS BEST CARE AS YOU CAN.

LARRYTony <ohmyfnback@...> wrote:

Hello All! it's been a long time but doing great! (Knock on wood)Don't ask me how the pain went away but it did. Not on any pills just advile when I get a little tight. But I know when the cold weather hits it will be back.. I hate winter!! Just wanted to say there is light at the end of the tunnel but it caves in from time to time when it caves in it is the pitts.. My moto is take it easy, if it dont have to be done don't do it, and it will waite till someone with a good back comes along its not going to hurt anyone right where it is. So the pain will be back i'm sure but till then take it easy & remember you think you have it bad till you see or hear from someone else.Good luckREMEMBER ALL OF OUR MEN AND WOMEN IN THE ARMED SERVICE OF OUR NATION

PRAY THAT THEY MAY BE SAFE AND SOUND IN BODY AND MIND

[Guest guest]

Hello Tony,

It's good to hear that you are doing so well. I hope that you will continue to have pain free days and nights.

TAKE AS BEST CARE AS YOU CAN.

LARRYTony <ohmyfnback@...> wrote:

Hello All! it's been a long time but doing great! (Knock on wood)Don't ask me how the pain went away but it did. Not on any pills just advile when I get a little tight. But I know when the cold weather hits it will be back.. I hate winter!! Just wanted to say there is light at the end of the tunnel but it caves in from time to time when it caves in it is the pitts.. My moto is take it easy, if it dont have to be done don't do it, and it will waite till someone with a good back comes along its not going to hurt anyone right where it is. So the pain will be back i'm sure but till then take it easy & remember you think you have it bad till you see or hear from someone else.Good luckREMEMBER ALL OF OUR MEN AND WOMEN IN THE ARMED SERVICE OF OUR NATION

PRAY THAT THEY MAY BE SAFE AND SOUND IN BODY AND MIND

[Guest guest]

Hello,

I know all to well what your going thru. Your not alone with what you are

feeling.

First, have you seen a good Dr.? If the medications aren't helping, then

maybe surgery may help.

Did you apply for help from Social Services? Do you have the insurance? You

have to take care of yourself, so go after what you can get. If you were hurt

at work, workman's comp can take 30 days to approve you seeing a Dr. and

another 30 days for tests and so on.

It may take time to get a good Dr. It took me a month the first

neurosurgeon I saw and let him operate on me, after I wish I had checked him out

better,

but like you, I could not walk, move or do anything and just wanted help.

Check the Dr. out at the community, hospital

and talk to other patients to see how he is as a Dr.ask and check him out

on the computer also.

I had a cat scan, MIR that showed nothing, then I had a myelogram, which is

a needle in the spine and they eject dye and then take x-rays with the cat

scan. That test in very uncomfortable but not that bad, but it showed my spine

L4, L5 was a mess.

I had my first surgery in 1985, and now am facing more surgery soon. I was

30 when my back gave out. I was working as a nurse aide, and blew my disk

lifting a patient at a nursing home.

I lost my friends also, they couldn't figure out why I hurt so, and I could

never make plans.

Then I lost my husband, I had been married Sept. 1, 84, and got hurt Feb.

20, 1985. He left me July 1989. He was tired of hearing me trying to live with

pain.

I found no one after, and my family now are my cats, birds and a dog.

My sister don't talk to me anymore, and my father passed away. My mother is

in a nursing home, and can't help me anymore, where I couldn't help her

either.

I had no children, because like you sex is the last thing you think of when

you hurt so.

Anyway, one day at a time, your not alone, and finding support on the

computer is a good step for you, you can talk to others who have been there,

done

that. We can help you in your quest of finding a life, living with back pain.

One day at a time, and the step you took finding us, is a good beginning.

Hang in there and feel free to talk anytime.

Nessa, New York.

[Guest guest]

Hello, Rebekah!

I'm sad that you need us, but glad that you found us.

Losing weight is really, *really*, REALLY hard, even for people who have no

other health issues. It's darn near impossible if you can't exercise. So

please don't beat yourself up if it's not happening as fast as you'd like!

Be patient with yourself, and do the best you can.

And needing to lose 45 pounds does *not* make you ugly. If I lost 150

pounds, I'd still be fat... and I've just spent the last hour IM-ing with a

guy who thinks I'm just plain HOT.

You're taking the right steps, coming here for support. There are a lot of

very smart, very supportive people here. Hugs!

--

On 4/14/06, Rebekah <beckydudette101_2006@...> wrote:

>

> I'm in this particular group,because I have had a hernaited disk now for

> three months and three weeks. I need support for all the pain and misery

> with my life.

> I cannot even barelly walk,sit,stand,and do any chores,nor work now.

>

> It also has affected my personal social life also. I cannot date,hang

> out with friends or family much,cannot have any kind od sex(not even

> masterbation),if I do I hurtofr a week or so...

>

> I need to lose forty five lbs,but I cannot exercise!!!!

> I am on a diet but am failing.

>

> I do not know what to do or who I am anymore?

> I feel lost,hopeless,stupid(since I have to take pain killers and cannot

> think nor read,or type right),and feel fat and ugly!

>

> I need advice,feedback,and support as much as possible! I hope to hear

> back from ANYONE that is suffering as I am.

>

> Thanks for listening. Hoping to hear back from anyone! Thanks.

>

>

> ---------------------------------

> Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

> countries) for 2¢/min or less.

>

>

[Guest guest]

I feel for you. I know when I am in pain, I am miserable and almost

incapacitated.

Rebekah <beckydudette101_2006@...> wrote:

I'm in this particular group,because I have had a hernaited disk now for three

months and three weeks. I need support for all the pain and misery with my life.

I cannot even barelly walk,sit,stand,and do any chores,nor work now.

It also has affected my personal social life also. I cannot date,hang out with

friends or family much,cannot have any kind od sex(not even masterbation),if I

do I hurtofr a week or so...

I need to lose forty five lbs,but I cannot exercise!!!!

I am on a diet but am failing.

I do not know what to do or who I am anymore?

I feel lost,hopeless,stupid(since I have to take pain killers and cannot think

nor read,or type right),and feel fat and ugly!

I need advice,feedback,and support as much as possible! I hope to hear back

from ANYONE that is suffering as I am.

Thanks for listening. Hoping to hear back from anyone! Thanks.

---------------------------------

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

countries) for 2¢/min or less.

[Guest guest]

My doctor always looks at my nails at

appointments--I'm not sure if he checks because it's a

sign I'm still hypo and need more medicine, or

what...but the last time he said he'd like to check my

ferritin levels (ferritin is stored iron), because my

nails indicated my iron was low. I've heard keeping

ferritin levels in the normal range is important for

getting thyroid hormone to the cells.

Hope this helps.

--- karenonthehill <ckh123@...> wrote:

> I hope everyone is well...if not at least feeling

> better! I have a

> questian. Lately my nails have been snapping and my

> toenails completly

> breaking off is this a sign of anything to concern

> myself with. I have

> hypothyroidism I take Levothyroxine 112 mg. I have

> been taking Protonix

> 40 mg with and wonder if the 2 may be having some

> sort of effect...

>

>

>

>

__________________________________________________

[Guest guest]

>

> > I hope everyone is well...if not at least feeling

> > better! I have a

> > questian. Lately my nails have been snapping and my

> > toenails completly

> > breaking off is this a sign of anything to concern

> > myself with. I have

> > hypothyroidism I take Levothyroxine 112 mg. I have

> > been taking Protonix

> > 40 mg with and wonder if the 2 may be having some

> > sort of effect...

> >

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

I had burning in the back of my thigh before my surgery. It was so bad I would

say to my husband, feel it feel it, it's on fire, lol. My neurosurgeon said it

was all nerve related.

Lori

<LALK92@...> wrote:

Woke up this morning felt like my lower back was on fire!! also my

elbows and my butt, and back of neck... this has happened before!! i

am icing now. It is raining here ,is that the problem? anyone else have

burning?? what causes it? thanks

---------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

I am new to this forum and have a few questions. I have an 8 year old daughter

that was born with spina bifida occulta. She was just recently diagnosed with

and Anxiety Disorder and high risk for Aspergers. I am very frustrated with the

diagnosis as I feel that the psychiatrist/psychologist only want to treat this

as an anxiety disorder and medicate her to the max. My daughter has terrible

seperation anxiety and school refusal. They started her on lorazipam which she

had a paradoxical reaction too and went into a suicidal rage. Next they tried

her on buspirone and after three weeks there was no change in her school

anxiety, now they want to put her on celexa as well as keep her on the

buspirone. can anyoone give me any advice on these medications?