Tell the White House You Want Real Research and Treatment For Children With Autism

[Guest guest]

On Thu, Mar 12, 2009 at 5:07 AM, Generation Rescue, Autism Action Network,

Illinois <info@...> wrote:

> Tell the White House You Want Real Research and Treatment For

> Children With " Autism " *Action Alert: Support Legislation That Will

> REALLY Help Children With " Autism " *

>

> More Info

>

> <http://capwiz.com/a-champ/issues/alert/?alertid=12900101 & queueid=3040484181>

Tell

> the White House That You Support an Honest and Transparent Autism Research

> Agenda *Generation Rescue, Autism Action Network, Illinois Biomedical

> Kids*

> **

> *ACTION ALERT - PART 3*

> **

> *THE WHITE HOUSE*

>

>

> *For far too long, medical organizations such as the American Academy of

> Pediatrics and governmental health agencies have disregarded the accounts of

> thousands of family members of children with autism, rejecting their

> personal experiences of regression, ignoring the presence of other medical

> conditions often occurring with autism and the treatments parents have

> observed to be most promising. *

> *

> Many scientific studies have found that children with autism often suffer

> from multiple medical conditions, including gastrointestinal, immunological,

> mitochondrial and other underlying pathologies. When appropriately diagnosed

> and treated with the help of dedicated physicians, thousands of children are

> improving and some are even recovering to the extent they no longer meet the

> diagnostic criteria of autism. *

> *

> We believe there is a better way and we are hopeful that President Obama

> will too.*

> *

> We are encouraged by the President's following comments that he made

> recently:*

>

> * " Promoting science isn't just about providing resources -- it's also

> about protecting free and open inquiry. It's about letting scientists like

> those who are here today do their jobs, free from manipulation or coercion,

> and listening to what they tell us, even when it's inconvenient --

> especially when it's inconvenient. "

>

> " It is about ensuring that scientific data is never distorted or concealed

> to serve a political agenda -- and that we make scientific decisions based

> on facts, not ideology. " *

>

> *This is a refreshing statement that brings hope for so many of our

> families who have waited for independent scientific investigation into

> autisms' causes and treatments.*

> *

> Now, it's up to each of us to speak up for what our children truly need and

> who should be deciding their medical care.*

>

> Please take action today to direct the future of autism research and

> treatments toward areas that actually reflect the medical needs of our

> children.

>

> Parents of children with autism are advocating for legislation that:

>

> - Includes findings consistent with most up-to-date scientific

> investigations regarding Autism Spectrum Disorders emphasizing essential

> areas of promising research.

> - Establishes a National Autism Executive Committee that would provide

> stakeholder input into research and policy initiatives and future research

> allocations made through Combating Autism Act appropriations.

> - Advances research initiatives that help to identify sub-cohorts,

> biomarkers, and etiological factors including environmental and genetic

> through actual clinical investigations of persons with Autism Spectrum

> Disorder.

> - Requires the establishment of continuing medical education in

> treating Autism Spectrum Disorders to further the quality of care and to

> reflect up-to-date scientific findings.

> - Requires the evaluation and treatment for other medical conditions

> which may occur with autism, such as gastrointestinal, immunological and

> metabolic conditions.

> - Requires insurance coverage for diagnostic, medical and therapeutic

> services such as speech, occupational therapy, physical therapy,

> nutriceuticals and Applied Behavior Analysis in addition to other medically

> necessary services when prescribed by a physician.

>

> If you want to speak out for change for your child with autism, please go

> to www.whitehouse.gov/administration/eop/opl/ and leave your message for

> the Office of Public Liaison:

>

> - Tell them you support Generation Rescue, Autism Action Network (AAN)

> and Illinois Biomedical Kids as they work directly with Senators Durbin,

> Casey and the Office of Public Liaison to relay parental concerns on the

> current draft bill.

> - Write a short message describing your personal story and the

> importance of allowing parents to make the medical decisions necessary for

> their children.

>

> To read more on the original Action Alert from Generation Rescue and Autism

> Action Network (AAN) and to access the current draft legislation, go here:

>

>

http://www.ageofautism.com/2009/02/generation-rescue-and-autism-action-network-o\

n-healthcare-legislation.html

>

> Together we must raise our voices and help to ensure a brighter future for

> our children. Change will not happen if you don't act!

>

> GO TO *AGE OF AUTISM*

>

>

http://www.ageofautism.com/2009/03/generation-rescue-autism-action-network-illin\

ois-biomedical-kids.html#more FOR

> PERIODIC UPDATES ON THIS ALERT.

>

>

> If you no longer wish to receive e-mail from us, you can unsubscribe

> here <http://capwiz.com/a-champ/lmx/u/?jobid=119228518 & queueid=3040484181>.

>

>

[Guest guest]

#yiv373393944

Tell the White House You Want Real Research and Treatment For Children With

" Autism "

Action Alert: Support Legislation That Will REALLY Help Children With

" Autism "

More Info

Tell the White House That You Support an Honest and Transparent Autism

Research Agenda

 

Generation Rescue, Autism Action Network, Illinois Biomedical Kids

ACTION ALERT - PART 3

THE WHITE HOUSE

For far too long, medical organizations such as the American Academy of

Pediatrics and governmental health agencies have disregarded the accounts of

thousands of family members of children with autism, rejecting their personal

experiences of regression, ignoring the presence of other medical conditions

often occurring with autism and the treatments parents have observed to be most

promising.

Many scientific studies have found that children with autism often suffer from

multiple medical conditions, including gastrointestinal, immunological,

mitochondrial and other underlying pathologies. When appropriately diagnosed and

treated with the help of dedicated physicians, thousands of children are

improving and some are even recovering to the extent they no longer meet the

diagnostic criteria of autism.

We believe there is a better way and we are hopeful that President Obama will

too.

We are encouraged by the President's following comments that he made recently:

" Promoting science isn't just about providing resources -- it's also about

protecting free and open inquiry. It's about letting scientists like those who

are here today do their jobs, free from manipulation or coercion, and listening

to what they tell us, even when it's inconvenient -- especially when it's

inconvenient. "

" It is about ensuring that scientific data is never distorted or concealed to

serve a political agenda -- and that we make scientific decisions based on

facts, not ideology. "

This is a refreshing statement that brings hope for so many of our families who

have waited for independent scientific investigation into autisms' causes and

treatments.

Now, it's up to each of us to speak up for what our children truly need and who

should be deciding their medical care.

Please take action today to direct the future of autism research and treatments

toward areas that actually reflect the medical needs of our children.

Parents of children with autism are advocating for legislation that:

Includes findings consistent with most up-to-date scientific investigations

regarding Autism Spectrum Disorders emphasizing essential areas of promising

research.

Establishes a National Autism Executive Committee that would provide stakeholder

input into research and policy initiatives and future research allocations made

through Combating Autism Act appropriations.

Advances research initiatives that help to identify sub-cohorts, biomarkers,

and etiological factors including environmental and genetic through actual

clinical investigations of persons with Autism Spectrum Disorder.

Requires the establishment of continuing medical education in treating Autism

Spectrum Disorders to further the quality of care and to reflect up-to-date

scientific findings.

Requires the evaluation and treatment for other medical conditions which may

occur with autism, such as gastrointestinal, immunological and metabolic

conditions.

Requires insurance coverage for diagnostic, medical and therapeutic services

such as speech, occupational therapy, physical therapy, nutriceuticals and

Applied Behavior Analysis in addition to other medically necessary services when

prescribed by a physician.

If you want to speak out for change for your child with autism, please go to

www.whitehouse.gov/administration/eop/opl/ and leave your message for the Office

of Public Liaison:

Tell them you support Generation Rescue, Autism Action Network (AAN) and

Illinois Biomedical Kids as they work directly with Senators Durbin, Casey and

the Office of Public Liaison to relay parental concerns on the current draft

bill.

Write a short message describing your personal story and the importance of

allowing parents to make the medical decisions necessary for their children.

To read more on the original Action Alert from Generation Rescue and Autism

Action Network (AAN) and to access the current draft legislation, go here:

http://www.ageofautism.com/2009/02/generation-rescue-and-autism-action-network-o\

n-healthcare-legislation.html

Together we must raise our voices and help to ensure a brighter future for our

children. Change will not happen if you don't act!

GO TO AGE OF AUTISM 

http://www.ageofautism.com/2009/03/generation-rescue-autism-action-network-illin\

ois-biomedical-kids.html#more FOR PERIODIC UPDATES ON THIS ALERT.  

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