Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 Delaine, Thanks for your response to my questions regarding insurance. It sure is a scary proposition to consider losing coverage. RA is certainly not an inexpensive disease to treat or get meds for. My thoughts and prayers are with you. Theresa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 Heidi The only problem is prednisone makes NASH worse. Therefore, that is why my numbers never came down. I am finally receiving some real help. The doctor in Boston prescribed Viox for the joint pain and I actually slept last night. First time in a long time. I have been sleeping an average of 2 hours per night for far too long and trying to work with no sleep. It sure hasn't been easy. Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 I have had a lot of problems with my teeth. I too have to go for many planing of my gums, and I have had many cavities and teeth pulled. I never had a problem with my teeth prior to prednisone, not even one cavity!! Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2002 Report Share Posted March 7, 2002 hello! I'm just posting cos I know you guys will understand! I said before that I have had a bit of time off work with PA (4 days in 3 months) and after 3 times they have to refer to my doctor, to prove I'm genuine so they can pay sick pay. They are only supposed to take it further if they are not satisfied. Well, they have not spoken to my doctor yet, but someone from occupational health phoned and grilled me today (example - " I'm having trouble breathing at the moment because the pain is round the rib area " - she replied " so why are you having trouble breathing? " aaaargggghhhhh!) And she is coming to see me at work on april 12th. Why do people not understand that its hard enough without having to " take an exam " to prove you have it? grrrrrrrrr! Thanks for listening!!! : p RUTH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 In a message dated 03/08/2002 10:27:36 AM Eastern Standard Time, retindall@... writes: > example - " I'm having > trouble breathing at the moment because the pain is round the rib area " - > she > replied " so why are you having trouble breathing? " > Ruth - sorry to laugh at your expense but this was just so darn STUPID it was hysterical! LOL Hope you're feeling better! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2002 Report Share Posted March 12, 2002 -Hello Ruth, Good luck, let's see... you are having this pain NOW and the super- intelligent 'all knowing' person will be coming to investigate your PRESENT PAIN on April 12th... WOW, there is no end to stupidity... I am an Occupational Therapist AND have the honor to be 'blessed' with P and PA ... it doesn't take a rocket scientist to know that our pain and symptoms vary from day to day... and surely from month to month. I am in a strange mood today and on a roll... I have been far behind on reading all the postings... but this one kind of makes me want to come and help you out on April 12th... maybe I could 'whack and crack' about 4 or 5 of her ribs with a hammer and let her carry on with your interview, this way she will have a little more insight ) I wish you the best of luck... I think we all can sympathize. #2 -- In @y..., retindall@a... wrote: > hello! > I'm just posting cos I know you guys will understand! > I said before that I have had a bit of time off work with PA (4 days in 3 > months) > and after 3 times they have to refer to my doctor, to prove I'm genuine so > they can pay sick pay. They are only supposed to take it further if they are > not satisfied. Well, they have not spoken to my doctor yet, but someone from > occupational health phoned and grilled me today (example - " I'm having > trouble breathing at the moment because the pain is round the rib area " - she > replied " so why are you having trouble breathing? " > aaaargggghhhhh!) > And she is coming to see me at work on april 12th. > Why do people not understand that its hard enough without having to " take an > exam " to > prove you have it? > grrrrrrrrr! > Thanks for listening!!! : p RUTH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2002 Report Share Posted March 13, 2002 -- Good on ya! Made me laugh to envision you " whacking and cracking " . Hope you, Ruth, and all the others have a pain-free day. -- Jan O', Alaska Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 > -Hello Ruth, > > Good luck, let's see... you are having this pain NOW and the super- > intelligent 'all knowing' person will be coming to investigate your > PRESENT PAIN on April 12th... WOW, there is no end to stupidity... > ... but this one kind of makes me want to > come and help you out on April 12th... maybe I could 'whack and > crack' about 4 or 5 of her ribs with a hammer and let her carry on > with your interview, this way she will have a little more > insight ) > I wish you the best of luck... I think we all can sympathize. > > #2 I like your style #2! Maybe that's what we need - a little more " activism. " :-) I can't tell you how often I've wished I could shift my aches and pains over to someone else, if only for a moment so they would know what it's like. Hit them with it all at once instead of gradually learning to live with it as we do, and they'd probably crumple over in pain! -- Ron Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2002 Report Share Posted March 15, 2002 Thanks Ron, You made my day... made me laugh and smile... I think the wonderful combination of wisdom (I hope..) and PA have warped my sense of humor... or sharpened it up a bit too much. I find that I don't put up with things as I did in the past... when I hit 40 I took on this new attitude... it is hard to explain. I am sure that all of us with PA have developed it as well, we have put up with so much in our everyday lives and then had all the problems of PA mixed in to make it even more exciting... I think I've become too cynical... but I like it ) Good luck to all of you and have a wonderful Saint 's Day... & all the remaining 364 days in the year...) #2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 In a message dated 03/15/2002 5:00:17 PM Eastern Standard Time, lisa_k@... writes: > I find that I don't put > up with things as I did in the past... when I hit 40 I took on this > new attitude... it is hard to explain. Wow - that describes me to a tee! I like to think of it as " I no longer take any crap " but I do feel that either PA or 40 (I was diagnosed at 38) have made me not as sweet (or able to be walked all over) as I once was. I'm trying to decide if this is a good or bad thing! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 , don't even think about it... it is a GOOD thing ) #2 > In a message dated 03/15/2002 5:00:17 PM Eastern Standard Time, > lisa_k@g... writes: > > > > I find that I don't put > > up with things as I did in the past... when I hit 40 I took on this > > new attitude... it is hard to explain. > > Wow - that describes me to a tee! I like to think of it as " I no longer > take any crap " but I do feel that either PA or 40 (I was diagnosed at 38) > have made me not as sweet (or able to be walked all over) as I once was. I'm > trying to decide if this is a good or bad thing! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 I am interested in finding out about the charter paid membership position for toxic mold directors in the state of PA. Please give me an e-mail address to contact. PeeWee1015@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2003 Report Share Posted August 31, 2003 Ah geesh, that's a long list. Lets see if I can do this without digging out my box of bottles: Milk thistle Quality multivitamins without iron Reishi mushroom Shitake mushroom Vitamin E Malic acid with magnesium Selenium Alpha Lipoic Acid B complex Wheat grass Potassium MSM Fish oil Vitamin C Wheat germ oil Flax seed oil Folic acid Bone building formula with calcium and ostivone Essential Enzymes I think that's it but I'd have to pull out my vitamin box to double check. Some I take only in the morning. Others like milk thistle and MSM I also take at night. Each weekend I sit down with 14 empty pill bottles and fill them with my two daily doses. That way I can just grab a bottle and start gulping instead of opening bottle after bottle each day. I'm drinking lots of water (and decaf green tea) and eat a moderate protein diet with high grains. I make a point of getting as much rest/sleep as I can but since I'm working that does eliminate daily naps during the week. I meditate and am always visualizing little pac men running around in my blood chomping down and the little viri. I drum on a handheld native american drum and excercise balancing my chakras. I go to the Oriental School of Medicine at least once a week for accupuncture. Sometimes it is just a balancing treatment and sometimes I go for specific aches or pains. No brain fog that I'm aware of yet....that started at about the 3 month marker when I did the rebetron so I imagine I'm closing in on that. No crankiness yet, but that also seemed to start around the 3 month marker with rebetron. I'm on Amitriptyline...last time I did prozac, but after years of prozac working like a charm for me, it stopped working about a year ago during a really high stress point in my life. I wasn't sleeping...would just hover between wakefullness and sleep and that's when my doctor switched me to amitriptyline per my request and Claudine's suggestion. When I started tx, we increased my dosage to 100mg. I also take Klonpin nightly for my restless leg syndrom. But I've noticed that it is much worse when on tx so had my doctor up the dosage on that too. I just hate it when I can't sleep because my blasted legs keep wanting to get up and move. Think that's everything I do and take.... Tatezi Re: Digest Number 1302 Re: Week 6 What alternatives (vits, herbs, supplements, other) are you taking with the treatment? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2003 Report Share Posted August 31, 2003 Ah geesh, that's a long list. Lets see if I can do this without digging out my box of bottles: Milk thistle Quality multivitamins without iron Reishi mushroom Shitake mushroom Vitamin E Malic acid with magnesium Selenium Alpha Lipoic Acid B complex Wheat grass Potassium MSM Fish oil Vitamin C Wheat germ oil Flax seed oil Folic acid Bone building formula with calcium and ostivone Essential Enzymes I think that's it but I'd have to pull out my vitamin box to double check. Some I take only in the morning. Others like milk thistle and MSM I also take at night. Each weekend I sit down with 14 empty pill bottles and fill them with my two daily doses. That way I can just grab a bottle and start gulping instead of opening bottle after bottle each day. I'm drinking lots of water (and decaf green tea) and eat a moderate protein diet with high grains. I make a point of getting as much rest/sleep as I can but since I'm working that does eliminate daily naps during the week. I meditate and am always visualizing little pac men running around in my blood chomping down and the little viri. I drum on a handheld native american drum and excercise balancing my chakras. I go to the Oriental School of Medicine at least once a week for accupuncture. Sometimes it is just a balancing treatment and sometimes I go for specific aches or pains. No brain fog that I'm aware of yet....that started at about the 3 month marker when I did the rebetron so I imagine I'm closing in on that. No crankiness yet, but that also seemed to start around the 3 month marker with rebetron. I'm on Amitriptyline...last time I did prozac, but after years of prozac working like a charm for me, it stopped working about a year ago during a really high stress point in my life. I wasn't sleeping...would just hover between wakefullness and sleep and that's when my doctor switched me to amitriptyline per my request and Claudine's suggestion. When I started tx, we increased my dosage to 100mg. I also take Klonpin nightly for my restless leg syndrom. But I've noticed that it is much worse when on tx so had my doctor up the dosage on that too. I just hate it when I can't sleep because my blasted legs keep wanting to get up and move. Think that's everything I do and take.... Tatezi Re: Digest Number 1302 Re: Week 6 What alternatives (vits, herbs, supplements, other) are you taking with the treatment? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 Re: Week 6 What alternatives (vits, herbs, supplements, other) are you taking with the treatment? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 Re: Week 6 What alternatives (vits, herbs, supplements, other) are you taking with the treatment? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 , I use clear plastic ornaments (40mm or 60mm) that I got at s and Hobby Lobby in the craft section. Just pack each side and put the halves together and twist slightly. This works for me. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 This is the same thing that I've always used. Works like a charm. I'd probably have a mess on my hands if I were to try and use a meatballer, LOL Donna -----Original Message----- , I use clear plastic ornaments (40mm or 60mm) that I got at s and Hobby Lobby in the craft section. Just pack each side and put the halves together and twist slightly. This works for me. Diane Quote Link to comment Share on other sites More sharing options...
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