Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Hi Rogene, I would like to know the purpose of these very general questions, and where you are going with this matter? My grandchildren are very affected, yet, Arden & I do not freely give out any details until we know what the purpose of the information is being used for, and who is doing what with it! We are very protective of their privacy, etc. MM Martha Murdock, Director National Silicone Implant Foundation | Dallas Headquarters " Supporting Survivors of Medical Implant Devices " 4416 Willow Lane Dallas, TX 75244-7537 ----- Original Message ----- From: " Rogene S " <saxony01@...> < > Sent: Thursday, July 18, 2002 10:31 PM Subject: Children born after implants? > Do any of you have children who were born after > getting implants? > > If so, are they experiencing any health problems? . . > > Like arthritis, digestive problems, allergies, > deformaties? > > Rogene > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Rogene, I have saline implants that I will soon have removed. I had them when I was pregnant with my son. He is 24 months now. He has always had hard to treat fungal problems. Jock Itch constantly as a baby(realy a yeast infection) , once had ringworm (also a fungus) and athletes foot constantly now to this day. His athletes foot is now being treated with his fifth prescription of a different med, because all the other stuff had not helped! Even after months of treatment. Neither my husband or me have athletes foot or yeast problems. I know in my heart, that these 8 year old permiating bags of saline are filled with staph, and fungus, and it has effected my son. The doctors are baffled as to why this strain is so hard for him to fight. He has had tests run, and his immune system is fine. I know its because it's not a normal fungus, but a fungus that has been breeding in warm 98 degree bags of saline for over 8 years. Not even the doctors can't tell me that its a little strange that it has been found saline implants are filled with organisms, fungus, and staph, and my son has always had a problem with fungus! Thank God, I didn't listen to them, I only breast fed for 3 days. After many complications, I just stopped. I wonder now, would if I had breast fed? Would he have gotten even more of it of this terrible stuff? Let me know, if you know of any web sites of children affected by implants. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 , There is a group that was formed by PJ Brent and Jama Russano, called C.A.T.S. or Children Affected by Toxic Silicone. PJ Brent's story is in our archives, as she testified before the FDA of what her saline implants had done to two of her six children, the two born after she got implants. Tragically, PJ committed suicide over this issue in May of 2000. There are not any websites that I am aware of, although you will find links to pages that discuss this sad affair. Here is one article that appeared in England. I will continue to look for the other links for you. Patty Abstract: States that legal aid has been granted for 21-month-old la Bowler to pursue a claim in the United Kingdom against an unidentified foreign company because her mother's silicone breast implant has allegedly damaged her health. Details about the court case; The suggestion by professionals that studies involving more than 10,000 individuals show that implants sensitise the immune system to silicone.. CHILD CLAIM OVER HAZARDS OF SILICONE BREAST IMPLANT PLANNED IN UK Legal aid has been granted for 21-month-old la Bowler to pursue a claim in the UK against an unidentified foreign company because her mother's silicone breast implant has allegedly damaged her health. The award does not cover proceedings, only the cost of obtaining an expert's opinion. Then a decision will be made about further funding. Director of Silicone Support Group UK, Margot Cameron, believes that la is an example of a baby who received transplacental transfer of silicone as well as silicone in her mother's milk. Cameron claims to have records of 75 children in 50 families who are similarly affected. Immunologist, Smally, and pathologist, Radford Shanklin, (University of Tennessee, TN, USA) believe that the court case has a strong chance of success. They maintain that studies involving more than 10000 individuals show that implants sensitise the immune system to silicone. They also point to animal studies that indicate the transplacental movement of silicone. "The people who says there is no evidence that this occurs are sticking their heads in the sand", says Shanklin. But president of the British Association of Aesthetic Plastic Surgeons, T Sharp, is extremely dubious about the standard of the evidence that purports to show transplacental passage of silicone or silicone products as well as the suggested link between silicone implants and connective tissue disease. He also points out that there is more silicone in proprietary milk products than in breast milk and that silicone is a major constituent of anticolic products as well as items such as bottle teats. Jama Russano, director of the US interest group Children Affected by Toxic Substances, is concerned about the lack of information available to women before they have an implant. She claims that the manufacturers have ignored the issue of the safety of implants in pregnant and breastfeeding women. As a consequence, she believes that their lack of basic research gives the Bowler case a strong chance of success. On the other hand, Baum, professor of surgery at University College London, UK, thinks that the case is an atrocious waste of UK taxpayer's money. "The court room is not the right place to resolve a scientific argument and emotional cases do not serve the public or science." ----- Original Message ----- From: JULIEJJPALANCA@... Sent: Friday, July 19, 2002 8:26 AM Subject: Re: Children born after implants? Rogene, I have saline implants that I will soon have removed. I had them when I was pregnant with my son. He is 24 months now. He has always had hard to treat fungal problems. Jock Itch constantly as a baby(realy a yeast infection) , once had ringworm (also a fungus) and athletes foot constantly now to this day. His athletes foot is now being treated with his fifth prescription of a different med, because all the other stuff had not helped! Even after months of treatment. Neither my husband or me have athletes foot or yeast problems. I know in my heart, that these 8 year old permiating bags of saline are filled with staph, and fungus, and it has effected my son. The doctors are baffled as to why this strain is so hard for him to fight. He has had tests run, and his immune system is fine. I know its because it's not a normal fungus, but a fungus that h as been breeding in warm 98 degree bags of saline for over 8 years. Not even the doctors can't tell me that its a little strange that it has been found saline implants are filled with organisms, fungus, and staph, and my son has always had a problem with fungus! Thank God, I didn't listen to them, I only breast fed for 3 days. After many complications, I just stopped. I wonder now, would if I had breast fed? Would he have gotten even more of it of this terrible stuff? Let me know, if you know of any web sites of children affected by implants. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 CATSChildren Affected by Toxic SubstancesJama Russano413 Ft. Salonga Rd.Northport, NY 11768(E-mail) JRussano@... (Phone) (516)757-4829(Fax) (516) 757-4827Problems of children of implanted mothers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Here's another address I found listed: C.A.T.S. (Children Affected by Toxic Substances) Jama Roussano 60 Oser Avenue Hauppauge, NY 11788 (516)273-CATS (516)273-2375 (fax) email:jrussano@... Services: Provides information on the effects of silicone on breast-fed children of mothers with implants (silicone and saline). ----- Original Message ----- From: JULIEJJPALANCA@... Sent: Friday, July 19, 2002 8:26 AM Subject: Re: Children born after implants? Rogene, I have saline implants that I will soon have removed. I had them when I was pregnant with my son. He is 24 months now. He has always had hard to treat fungal problems. Jock Itch constantly as a baby(realy a yeast infection) , once had ringworm (also a fungus) and athletes foot constantly now to this day. His athletes foot is now being treated with his fifth prescription of a different med, because all the other stuff had not helped! Even after months of treatment. Neither my husband or me have athletes foot or yeast problems. I know in my heart, that these 8 year old permiating bags of saline are filled with staph, and fungus, and it has effected my son. The doctors are baffled as to why this strain is so hard for him to fight. He has had tests run, and his immune system is fine. I know its because it's not a normal fungus, but a fungus that h as been breeding in warm 98 degree bags of saline for over 8 years. Not even the doctors can't tell me that its a little strange that it has been found saline implants are filled with organisms, fungus, and staph, and my son has always had a problem with fungus! Thank God, I didn't listen to them, I only breast fed for 3 days. After many complications, I just stopped. I wonder now, would if I had breast fed? Would he have gotten even more of it of this terrible stuff? Let me know, if you know of any web sites of children affected by implants. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 http://www.angelfire.com/fl/MELMAR/ChildrenSupport2.html Second Generation Support Groups C.A.T.S.Children Afflicted by Toxic Substances413 Fort Salonga Rd.Northpoint, NY 11768PH: (516) 757-4829Fax: (516) 757-4872 B.I.B.S.505 South 88th StreetTacoma, WA 98444 Children & Silicone IssuesParents Support Group470 Stone Mill TrailAtlanta, GA 30328 J.A.S.S.1940 Ct.Burleson, TX 76028 ABDCAmerican Birth Defect ChildrenRegister: 1-800-313-ABDCInformation: (407) 245-7035 SYMPTOMS OF CHILDREN AFFECTED BY SILICONE POISONING A.D.D. Hyper activityAbdominal painBowel irregularityUnexplained rashesFatigue and weaknessRenal problems Fingertip discolorationSevere headachesSevere leg crampsEsophageal disease (Children don't eat properly: they eat small amounts, pushing their food away after several bites. They complain of burning or pain in the chest and throat.)Rotting teethPain and burning in chest and throatDifficulty swallowingMouth ulcersLoss of bone densitySway back appearanceExtended stomach Continue ----- Original Message ----- From: JULIEJJPALANCA@... Sent: Friday, July 19, 2002 8:26 AM Subject: Re: Children born after implants? Rogene, I have saline implants that I will soon have removed. I had them when I was pregnant with my son. He is 24 months now. He has always had hard to treat fungal problems. Jock Itch constantly as a baby(realy a yeast infection) , once had ringworm (also a fungus) and athletes foot constantly now to this day. His athletes foot is now being treated with his fifth prescription of a different med, because all the other stuff had not helped! Even after months of treatment. Neither my husband or me have athletes foot or yeast problems. I know in my heart, that these 8 year old permiating bags of saline are filled with staph, and fungus, and it has effected my son. The doctors are baffled as to why this strain is so hard for him to fight. He has had tests run, and his immune system is fine. I know its because it's not a normal fungus, but a fungus that h as been breeding in warm 98 degree bags of saline for over 8 years. Not even the doctors can't tell me that its a little strange that it has been found saline implants are filled with organisms, fungus, and staph, and my son has always had a problem with fungus! Thank God, I didn't listen to them, I only breast fed for 3 days. After many complications, I just stopped. I wonder now, would if I had breast fed? Would he have gotten even more of it of this terrible stuff? Let me know, if you know of any web sites of children affected by implants. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 P. J. Brent's Personal Crusade Against Breast Implants Jane Henney, M.D.Commissioner of Food and Drugs5600 Fishers LaneRockville, MD 20857Dear Dr. Henney,I traveled to Washington in early March for the hearings on saline implants with my husband Ed and our two daughters. We came in good faith to explain to the medical panel our concerns regarding the effects of implants on the second generation. To us this was the moral and ethical thing to do in light of the fact that my double-lumen implants were found to be leaking chemicals and were contaminated with micro-organisms and fungi upon explantation. Dr. Pierre Blais reported these findings in 1992 and if you will contact him, he will explain the seriousness of his findings. The condition that this "medical device" was found to be in was devastating to me. I had lovingly and confidently breast-fed my two daughters while implanted with this defective product. I was assured that it was safe to have a baby and breast feed. I want to know how anyone could justify exposing an infant to so many toxins if the safety studies were never conducted?I have since been told that my trip to Washington was an utter waste of time because the Panel was instructed to IGNORE me and my family. This is not the first time that I have requested that you answer me as to why the panel was instructed not to listen to my very legitimate concerns.Dr. Witten has sent me a letter "thanking" me after I sent a packet of information to you. Dr. Henney, I do not want to be thanked. I want you to help me and all the other families that have sick children. What has happened to my family and countless other families cannot continue to happen. THE FDA is supposed to protect the consumer.Please do not allow saline implants to be approved until your agency knows the full level of risk to the fetus and nursing infant. That is the moral and ethical thing to do under the circumstances. To do anything less would be criminal.I look forward to hearing from you soon.Sincerely and Respectfully, J. BrentAtlanta, GA 30328 To the Editor of the New York Post:webmaster@...In the recent article about breast implants an "expert in implant problems" is quoted as saying:"I've seen a couple women with moldyimplants, but that's very, very rare," says Marguerite Barnett, a plastic surgeon in Venice, Fla., and an expert in implant problems. "When we first started taking implants out in the early 1990s lawyers would have them boxed up. After sitting in a closet they'll grow mold but that's not the condition they're in when they come out of the women."My question to this "expert" is this:Would not the environment of the human breast, 98.6 degrees and filled with body fluid, be more conducive for the implant to grow mold in or on it than if the implant was boxed up and sitting in a closet at room temperature of 72 degrees ?I am one of those "very, very rare" women who had the black fungi in her implant (aspergillus niger).What is more disturbing is that I nursed my two daughters while implanted with these contaminated implants. My children suffer from gastroesopageal disorders as well as a rare neurological disease.I believe it is time for these plasticsurgeons to stop trying to justify a verydefective product, breast implants, andstart helping these sick women and children.Does "First Do No Harm" not mean anything to these so-called physicians?As a mother it means something to me.Sincerely, J. BrentAtlanta, GA PJ Brent and FamilyThe Atlanta Journal and ConstitutionJune 2, 2000OBITUARIES: SANDY SPRINGS: P.J. Brent, 49, launched crusade against breast implantsStephania H. , StaffThe last movie P.J. Brent saw was " Brockovich," the story of an ordinary woman who excelled at getting money from a big corporation for people poisoned by toxins.Mrs. Brent found her own poison to fight against right under her skin. Thebreast implants she received in 1982 --- which she believed caused herhealth problems and those of her two youngest children --- led her tolaunch a worldwide crusade against implants."She had been in Washington testifying and on CNN Headline News and innewspapers and on radio, all in an effort to say don't let women havebreast implants, because it killed her," said her husband, Ed Brent ofSandy Springs. Jeanne "P.J." Brent, 49, of Sandy Springs, died Monday frominjuries sustained when she jumped from a Dunwoody parking garage. Thefuneral was Thursday. Sandy Springs Chapel Funeral Directors was in chargeof arrangements.A native of Jersey City, N.J., Mrs. Brent moved to Atlanta in 1983 and mether second husband when both worked for Delta Airlines. Mrs. Brent hadstarted with the company as a flight attendant a few years after highschool.Shortly after she and Mr. Brent married in 1984, she began suffering from aconnective tissue disease."She told me on a good day it felt like you were getting out of bed withthe flu," said Mr. Brent. "You know, that achy, draggy feeling." Mrs. Brentwas already the mother of four healthy children, but her fifth child, bornin 1985, has gastrointestinal problems that make it difficult for her toswallow. Her sixth child has constant stomach problems, aching legs andmysterious rashes, said her husband. It became clear to Mrs. Brent, herhusband said, that the toxins the children ingested from breast-feeding wasthe cause."One of my daughters sleeps in leg braces and walks like a drunk becauseshe has no feeling in her feet," said Mr. Brent. "But her mother gave hersuch self-esteem. She doesn't think there's anything she can't do."After reading a newspaper article describing her symptoms perfectly, Mrs.Brent had the implants removed in 1992. Still, guilt and concern about theeffect the implants had on her children lingered."She struggled with the fact that her poor decision affected her children,"said her friend Elna Sheetz of Sandy Springs.Mrs. Brent joined Children Afflicted by Toxic Substances (CATS), whichprovides information about children whose mothers had breast implants. Mrs.Brent and the organization were featured in a 1995 article in Redbookmagazine.Even as her various disorders sapped her strength, she spent hours in e-mail conversations with women all over the globe looking for information onimplants.She also car pooled for her children and volunteered at her church."She had this angelic personality. She was a very sweet and caring womanwho took the time to listen and get back to people and make sure they gotthe information they needed," said Jama Russano of Northport, N.Y., founderof CATS."But it's difficult to fight a battle when you're sick yourself. She musthave felt that she exhausted everything she had."Survivors other than her husband include four daughters, Brentand Chrissy Brent, both of Sandy Springs, and Kohnen and Kohnen, both of New York; two sons, Philip Kohnen of Sandy Springs and Kohnen of Athens; a stepdaughter, Brent of Athens; hermother, Florence Driscoll of Hawthorne, N.J.; her father and stepmother,ph F. and Mildred Caren of Tampa; a sister, Kathleen M. Caren of WestMilford, N.J.; and two brothers, ph F. Caren Jr. of Tampa and M.Caren of Saddle River, N.J.In lieu of flowers, the family requests contributions be made to ChildrenAfflicted by Toxic Substances, 413 Fort Salonga Road, Northport, NY 11768.P.J. Brent moved to Atlanta in 1983 and worked for Delta Airlines. toxic2Kids toxic2Kids Silicone Breast Implant Info http://www.ts-tech.com/sbi-info Fuchs-sey fuchsmorrissey@... CO-CHAIR OF TOXIC2KIDS ----- Original Message ----- From: JULIEJJPALANCA@... Sent: Friday, July 19, 2002 8:26 AM Subject: Re: Children born after implants? Rogene, I have saline implants that I will soon have removed. I had them when I was pregnant with my son. He is 24 months now. He has always had hard to treat fungal problems. Jock Itch constantly as a baby(realy a yeast infection) , once had ringworm (also a fungus) and athletes foot constantly now to this day. His athletes foot is now being treated with his fifth prescription of a different med, because all the other stuff had not helped! Even after months of treatment. Neither my husband or me have athletes foot or yeast problems. I know in my heart, that these 8 year old permiating bags of saline are filled with staph, and fungus, and it has effected my son. The doctors are baffled as to why this strain is so hard for him to fight. He has had tests run, and his immune system is fine. I know its because it's not a normal fungus, but a fungus that h as been breeding in warm 98 degree bags of saline for over 8 years. Not even the doctors can't tell me that its a little strange that it has been found saline implants are filled with organisms, fungus, and staph, and my son has always had a problem with fungus! Thank God, I didn't listen to them, I only breast fed for 3 days. After many complications, I just stopped. I wonder now, would if I had breast fed? Would he have gotten even more of it of this terrible stuff? Let me know, if you know of any web sites of children affected by implants. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Martha, I'm not looking for any details. I want women to know that their children are not alone, that there are support groups (see posts in response to my message). Also, women should know that one person they should tell about their children's problems (in general, not specifics) is Leonard. Her email address is: NML@.... She has been receiving some messages regarding this issue . . . she needs more! Only if those affected speak up loud and clear about what has happened to their children will anything change. Still, nothing may happen, but if no one says anything, we can be sure nothing will change. IMHO, the worst crime of the implant fiasco is what has been done to the children. They had no choice! Rogene --- MARTHA <MAM-NSIF@...> wrote: > Hi Rogene, > > I would like to know the purpose of these very > general questions, and where > you are going with this matter? My grandchildren > are very affected, yet, > Arden & I do not freely give out any details until > we know what the purpose > of the information is being used for, and who is > doing what with it! We are > very protective of their privacy, etc. > > MM > Martha Murdock, Director > National Silicone Implant Foundation | Dallas > Headquarters > " Supporting Survivors of Medical Implant Devices " > 4416 Willow Lane > Dallas, TX 75244-7537 > ----- Original Message ----- > From: " Rogene S " <saxony01@...> > < > > Sent: Thursday, July 18, 2002 10:31 PM > Subject: Children born after > implants? > > > > Do any of you have children who were born after > > getting implants? > > > > If so, are they experiencing any health problems? > . . > > > > Like arthritis, digestive problems, allergies, > > deformaties? > > > > Rogene > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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