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RE: My Pet Peeve

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I agree, Rogene, and I have thought about how to rectify this problem

also....the only thing I can come up with is either a law that makes

it criminal for a doctor to say this to any patient, or tough

penalties established by medical boards when doctors are reported as

having said this to any patient. There has to be some consequence to

the doctor! And to think that the doctors even charge fees to the

patients after saying this! Who wants to pay a doctor to tell them

that crap?

e,do you have any ideas here?

Patty

> If there's one thing in this entire world that makes

> me so angry I want to scream, it's doctors who deny

> our symptoms! Not only does the doctor endanger our

> health by denying treatment, but he/she degrades us.

> Ignoring our symptoms is akin to calling us liars . .

> .

>

> It seems this is the preferred " treatment " of breast

> implants women! One woman reported that she had so

> many symtoms, was so sick . . . that her doctor didn't

> know where to begin. His suggestion: Go home and have

> a good life.

>

> How can we address these doctors so we can stop this?

>

> Rogene

>

> __________________________________________________

>

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Rogene

I think the best way to address these doctors that don't believe us is

the first, go get a new doctor; List the BI surgery & explantation, but

don't talk about it. That's exactly what I did when I got my new primary

doctor about a month ago. Within a couple weeks he Dx this GB problem &

I had it out. I wonder had I mentioned silicone would I ave gotten the

same treatment.

BTW, I described my pain to this new doctor exactly the way I did to the

other one.

Yesterday, a friend who goes to that same doctors office called me &

asked what exactly are the GB symptoms I was having. She had been

complaining about the same pains I was having + nausea. He daughter who

works there old her to bypass the office & go staight to the ER. Just

last week when she complained, no tests were ordered, just more Rx drugs

were given. She went to the ER; sonogram showed GB stones; she'll see

the surgeon on Friday. I def think this group of doctors realy ought to

consider a change in occupation; They are a lawsuit waiting to happen.

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Show them peer reviewed articles like the Journal of Rheumatology May 2001

issue and ask them to review the literature. .

-----Original Message-----

From: Rogene S [mailto:saxony01@...]

Sent: Wednesday, July 10, 2002 10:13 AM

Subject: My Pet Peeve

If there's one thing in this entire world that makes

me so angry I want to scream, it's doctors who deny

our symptoms! Not only does the doctor endanger our

health by denying treatment, but he/she degrades us.

Ignoring our symptoms is akin to calling us liars . .

..

It seems this is the preferred " treatment " of breast

implants women! One woman reported that she had so

many symtoms, was so sick . . . that her doctor didn't

know where to begin. His suggestion: Go home and have

a good life.

How can we address these doctors so we can stop this?

Rogene

__________________________________________________

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Dr. Kolb,

Could you either post, or email the article to me?

I have to see a new doctor soon.

Thanks,

Rogene

--- " Dr. Kolb " <drkolb@...> wrote:

> Show them peer reviewed articles like the Journal of

> Rheumatology May 2001

> issue and ask them to review the literature. .

>

__________________________________________________

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Patty and Rogene, Unfortunately, there is nothing that can or will be done to prevent doctors from saying or doing what they want. The majority of doctors still think they're God, and feel that they can say and do whatever they want without repercussions. And unfortunately, this is true. If you were to file a complaint with the medical board, they are required to investigate it, but I'm willing to bet money I don't have that they will send you a letter within a few wks stating that they "have not found any reason to discipline this doctor, and are closing the investigation/complaint." And physicians know this. The medical boards in the majority of states are very lenient with doctors in all aspects. If you look at disciplinary records of physicians, most just get their hand slapped, and are allowed to continue practicing, albeit with some restrictions. But when you look at the same offenses made by RN's, the majority of RN's lose their licenses. So, I guess what I'm trying to say is that there simply is not enough people out there who would stand up to their physicians and push for a law. And furthermore, how would a law like that be enforced? It would be the physicians word against the pts, and it would be very easy for the physician to say, "I never said that." So, creating a law would not work nor would it be very enforceable. And because medical boards really do not like to discipline "one of their own," imposing penalties would also not work. Again, it would be the physicians word against the pts, and the board will more than likely always believe the physician unless there is hard evidence (like tape recording). And showing a physician an article in a medical journal, or telling them to read it and educate themselves, will not do it either. Most docs want to see hard data coming from a controlled study, both double blind and open studies. While there is data out there supporting our views on the dangers of implants, there simply is not enough for most doctors to believe it. And again, until ps' stop implanting women, then how can the medical community ever expect to believe implants are dangerous? Their thought is that if implants were as dangerous as we claim (and we know), then ps' wouldn't be continuing to implant women. They are potentially doing more harm than good, and one portion of the Hippocratic Oath is "to do no harm." But as long as ps's continue to implant women, there are really two messages being delivered here: one from those of us harmed, and that is that implants are dangerous and have seriously affected our health and our lives; and the other, from ps': implants can be harmful, and we've seen pts with ill effects from implants (we think), and we remove the implants, but we still are putting in implants because "it makes women feel better about themselves." So, looking at that statement, can you see why very few doctors believe us? When ps' stop implanting women and start making statements to their pts as to why they are not putting implants in, then maybe the rest of the medical community will start taking a closer look at this whole issue. In the meantime, finding a doc that you are comfortable with is not an easy task. And finding one that believes you is even more difficult. There are docs out there that are empathetic and while they may not understand the whole issue surrounding implants, they are willing to listen and do what they can for you. I was lucky with my docs in Denver. Not one of them (other than my rheumy) understood anything about the implant issue. But they were willing to listen to me and do their own research. Now they believe me, but still want to see hard data related to the dangers of implants. Unfortunately, finding a good doc who will listen to you involves lots of research and frequently involves travel to see this doc. Go by word of mouth as to how a doctor treats his pts. Also, it wouldn't hurt to call the doctors office and get a feel of how you're treated when you call. Are you put on hold immediately? If so, for how long? Was the receptionist friendly or rude? Ask what kind of system is in place for after hrs emergencies. Ask where the doc went to school, how long he's been a doc, what is his bedside manner like? I have found that the majority of the time the receptionists will tell you the truth. I have had receptionists tell me before that a docs bedside manner sucks, but he is a very good doc. And she was right on. If they don't want to answer your questions, then find another doc. Also, you might want to take the direct approach. Ask them how he feels about breast implants and their relation to illness. I was referred to a rheumy in Seattle, and when I called to "interview" his office, I asked the secretary if he treated a lot of women with implants who were ill, and what was his feeling on the whole implant issue. She was stumped, and said that she would have to ask him. She did, and called me back the next day and told me that he was referring me to another doctor. Didn't give me a direct answer, but obviously since he was referring me to another doc, he either didn't believe in implants causing illness, didn't care about the fact that they might, or he may have not had the knowledge to adequately treat me, and appropriately referred me on. Even though I was frustrated, I respected him for doing that and not wasting my time (or his). Hope this answers some of your questions. Let me know if you have any more. e ----- Original Message ----- From: faussettdp Sent: Wednesday, July 10, 2002 7:19 AM Subject: Re: My Pet Peeve I agree, Rogene, and I have thought about how to rectify this problemalso....the only thing I can come up with is either a law that makesit criminal for a doctor to say this to any patient, or toughpenalties established by medical boards when doctors are reported ashaving said this to any patient. There has to be some consequence tothe doctor! And to think that the doctors even charge fees to thepatients after saying this! Who wants to pay a doctor to tell themthat crap?e,do you have any ideas here?Patty> If there's one thing in this entire world that makes> me so angry I want to scream, it's doctors who deny> our symptoms! Not only does the doctor endanger our> health by denying treatment, but he/she degrades us.> Ignoring our symptoms is akin to calling us liars . .> .>> It seems this is the preferred "treatment" of breast> implants women! One woman reported that she had so> many symtoms, was so sick . . . that her doctor didn't> know where to begin. His suggestion: Go home and have> a good life.>> How can we address these doctors so we can stop this?>> Rogene>> __________________________________________________>

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I do not have the article in email form but it is in the saline support

group archieves. .

-----Original Message-----

From: Rogene S [mailto:saxony01@...]

Sent: Thursday, July 11, 2002 10:45 AM

Subject: RE: My Pet Peeve

Dr. Kolb,

Could you either post, or email the article to me?

I have to see a new doctor soon.

Thanks,

Rogene

--- " Dr. Kolb " <drkolb@...> wrote:

> Show them peer reviewed articles like the Journal of

> Rheumatology May 2001

> issue and ask them to review the literature. .

>

__________________________________________________

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