Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 I too had childhood migraines--and they also mention spontaneous aborts (had one) and intermittent claudication (still get occasionally but almost gone) I sent for a booklet that the site offered and found out a little more--it seems that something makes the blood thicken even more--they think it's an infection that sets it off. This makes sense for me as it when soon after the infection that I had the strokes. I also gather than antibodies are not always present--while the two tests mentioned will usually catch the condition when it's stirred up or more thickened, I think the INR (internationally normalised ratio) can be used to measure the thickness of the blood under regular circumstances. Along with the Bayer baby aspirin, I drink 64 ozs water daily--it took a while to get to that amount, but once there, it's easy. That Penta will get into the bloodstream even quicker. In a few weeks, I'm going to try dropping the aspirin and see what happens. You are getting a whole new life, e--once you get past creating the new habit of pill-taking, bet you won't recognize how good you feel. The antioxidants are very important. My conventional doc dropped his voice real low when he told me he takes them daily. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2003 Report Share Posted February 18, 2003 in LA writes: > For more information or listings for docs who treat this way now, > check out <A HREF= " www.wilsonssyndrome.com " >www.wilsonssyndrome.com</A>. Look under the patient area for the > doc > referrals. Even if you don't have 's Syndrome, their doctors are more > > skilled in treating people, not numbers. You might find someone kind an > caring and knowlegable right near you! Thank you so much ! Its a great web site and prompted me to start the temperature check at home (so far it's low). I found a provider on that web site who is only about 1 1/2 hours from me so I'll contact her. She is listed as an ARNP, not sure what that means. I called my doctor yesterday and asked for more info on my lasts tests. I've only had TSH tests, so I had full thyroid testing and antibody testing yesterday. In light of my son's diagnosis, our pediatrician will test my daughter as she is slow in developing also. Are there others on this list who have children with hypothyroidism? Must admit I'm struggling with a great deal of guilt and sadness that I've given it to my children. I feel I trusted the wrong doctors and wish I'd been more aggressive about my suspicions during pregnancies. Jenelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2003 Report Share Posted February 18, 2003 In a message dated 2/18/2003 9:38:41 AM Pacific Standard Time, jcalla5152@... writes: > Must > admit I'm struggling with a great deal of guilt and sadness that I've given > > it to my children. I feel I trusted the wrong doctors and wish I'd been > more > aggressive about my suspicions during pregnancies. > Dear Jenelle, I recognize those feelings, too. Forturnately, WTS is reversible in many people. So, with prompt treatment, your kids could start to do well, if the diagnosis applies to them. And you could do well, too! Sounds like the person you found on the WTS list is a Nurse Practitioner. They usually work under the supervision of an MD and can write for medicines under the doc's signature. This could be a very good thing! Good luck, in LA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2003 Report Share Posted February 18, 2003 Jenelle, do you know how often children should be tested. My baby is 4 months old. You sparked my curiosity - It's definitely something I should be thinking about. _________________________________________________________________ Add photos to your messages with MSN 8. Get 2 months FREE*. http://join.msn.com/?page=features/featuredemail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2003 Report Share Posted February 19, 2003 writes: " do you know how often children should be tested. My baby is 4 months old. " Sorry, I don't know. Fortunately, by law babies in the US must be screened at birth to diagnose congenital hypothyroidism. Babies with secondary hypothyroidism and those with a normal TSH and low T4 won't be identified so you should look for symptoms. According to the book " Living Well with Hypothyroidism, " in infants, symptoms could include puffy face, swollen tongue, hoarse cry, thick coarse hair that grows low on the forehead, prolonged jaundice, herniated belly button, lethargy, sleeping most of the time, appearing tired when awake, persistent constipation, and little growth. My son didn't have those symptoms and really didn't start having symptoms until he was about 6 or 7. He started having persistent constipation, snored, had a host of unidentified allergies, complained of muscle aches, was diagnosed with ADD, gained a lot of weight, height growth slowed down considerably, etc. I thought what he went through was normal because I had similar symptoms as a child. In hindsight, I see it, but when you are hit with each one slowly and individually, its hard to see the big picture. Jenelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2003 Report Share Posted February 19, 2003 In a message dated 2/19/03 10:28:41 AM Eastern Standard Time, JCalla5152 writes: > Fortunately, by law babies in the US must be screened at birth to diagnose > congenital hypothyroidism. Ooops, meant a few days after birth babies are screened. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 Syndrome is genetic. Based on what you have written here, I suspect that the little boy has a deletion or microdeletion on his #7 chromosome, specifically at 7q11.2 This condition is what is known as a contiguous gene syndrome in that several genes are involved that all reside in the same area on the same chromosome. Different degrees on disruption of this area lead to the variability seen in the disorder. --Lissy [ ] Syndrome Does Syndrome have any connection with mercury poisoning? There is a sweet little boy with this condition in my son's kindergarten/learning support classes. His mother says that Syndrome is somewhat related to Down Syndrome and that he is missing part of a chromosome (#7?). From reading about the condition, he does have the accompanying facial traits. If anyone know if there is a mercury relationship with Syndrome, I just want to be able to pass on the information to the mother. Thanks! ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 > Does Syndrome have any connection with mercury poisoning? I don't know, but I do know that dietary and other interventions work for Down Syndrome kids, so it is possible that certain similar things work for Syndrome kids. Dana Quote Link to comment Share on other sites More sharing options...
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