Guest guest Posted September 11, 2002 Report Share Posted September 11, 2002 Hey Patty, I'm still here, hanging in...ha I'm not married yet, most likely February 2003. I'm about the same, a lot better mentally though. I've really learned to accept this as a disability. Nothing new with the docs....same old crap. I still read everyones posts,quitely. I'm taking an online class at the community college here...trying anyway....in-between my naps from being exhausted. That's about it. How are you doing Patty? I've seen you post a lot more lately. Shirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 I'm still fighting for SS. It's been a long time, I think a year and a half? Something like that. I'm waiting for a court date right now. My lawyer says it will be around December. I'm not taking any meds right now, I'm waiting to see a new rheumy. I haven't really stuck with any of the meds that they give me, I just don't like taking them. As for the natural remedies, nothing really seem to help me. I still take vitamins and try to eat well, but I have so much inflammation. It's seems like most people get flares. I don't get flares, it's constant, and constantly causing permanent damage. It is so bad I can feel it in my legs, throbbing. I'm glad you are doing ok. I will defiantly send out some pictures from the wedding and let you know how it goes. Shirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 Hey girl glad to hear from you, sorry your not much better but glad that you are mentally doing better. hugs ----- Original Message ----- From: blksvr@... Sent: Wednesday, September 11, 2002 8:24 PM Subject: Re: Shirl, where are you? Hey Patty, I'm still here, hanging in...haI'm not married yet, most likely February 2003. I'm about the same, a lot better mentally though. I've really learned to accept this as a disability. Nothing new with the docs....same old crap. I still read everyones posts,quitely. I'm taking an online class at the community college here...trying anyway....in-between my naps from being exhausted. That's about it. How are you doing Patty? I've seen you post a lot more lately.Shirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 It's so good to hear from you Shirl! You've been so quiet, but I think about you often, and I am always hoping that you are doing much better. That's great about the online college class! At least it is a step forward. You'll have to send us your wedding pics when you finally tie the knot, OK? I'd love to see them! I am sure that accepting your situation as a disability has freed your mind of some anxiety, and I am glad to hear that. I think I pretty much had to go through the acceptance phase as well, that even though I am lots better, I think I have some permanent damage that may never go away. Once I accepted that, I felt a weight lift off my shoulders. But you can still focus on getting better, never give up.... I have been doing pretty good, but actually have been experiencing some neck and back pain. It is mostly just in the morning when I wake up, and I don't know what it is all about. I haven't had the tingling in my hands in a long time, and the brain fog seems to be gone for the most part, although sometimes I can tell it is hanging around in the shadows of my life, ready to kick in and really give me a hard time. But I have been exercising alot lately, walking lots, biking some, and getting some Vit C drips, so I think I have kept it at bay. I have also paid attention more to any food sensitivities I may have and have lost almost 10 lbs in the process, so that feels good. I am wondering about my back and neck though. Makes me wonder if it is related to the osteopenia I was diagnosed with in May. You said nothing new with the docs, Shirl, same old stuff, but are you on medications still? Is there any of the natural remedies that have given you any relief? Thanks for the update....I am so glad to hear from you! Please stay in touch, k? Love, Patty ----- Original Message ----- From: blksvr@... Sent: Wednesday, September 11, 2002 7:24 PM Subject: Re: Shirl, where are you? Hey Patty, I'm still here, hanging in...haI'm not married yet, most likely February 2003. I'm about the same, a lot better mentally though. I've really learned to accept this as a disability. Nothing new with the docs....same old crap. I still read everyones posts,quitely. I'm taking an online class at the community college here...trying anyway....in-between my naps from being exhausted. That's about it. How are you doing Patty? I've seen you post a lot more lately.Shirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 Shirl, Forgot to ask, did you finally get on Social Security Disability, or are you still fighting for that? Patty ----- Original Message ----- From: blksvr@... Sent: Wednesday, September 11, 2002 7:24 PM Subject: Re: Shirl, where are you? Hey Patty, I'm still here, hanging in...haI'm not married yet, most likely February 2003. I'm about the same, a lot better mentally though. I've really learned to accept this as a disability. Nothing new with the docs....same old crap. I still read everyones posts,quitely. I'm taking an online class at the community college here...trying anyway....in-between my naps from being exhausted. That's about it. How are you doing Patty? I've seen you post a lot more lately.Shirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 Shirl: Best wishes to you on your upcoming wedding. LM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2002 Report Share Posted September 13, 2002 I hope your court hearing is positive and beneficial to you. Make sure you let us know. I sure wish I knew how to make the inflammation stop for you. I am not even sure what works for me, but I know what makes the inflammation kick in, so I do whatever I can do avoid those things! It has changed my life dramatically. Take care, Shirl! Love, Patty ----- Original Message ----- From: blksvr@... Sent: Wednesday, September 11, 2002 10:31 PM Subject: Re: Shirl, where are you? I'm still fighting for SS. It's been a long time, I think a year and a half? Something like that. I'm waiting for a court date right now. My lawyer says it will be around December. I'm not taking any meds right now, I'm waiting to see a new rheumy. I haven't really stuck with any of the meds that they give me, I just don't like taking them. As for the natural remedies, nothing really seem to help me. I still take vitamins and try to eat well, but I have so much inflammation. It's seems like most people get flares. I don't get flares, it's constant, and constantly causing permanent damage. It is so bad I can feel it in my legs, throbbing. I'm glad you are doing ok. I will defiantly send out some pictures from the wedding and let you know how it goes. Shirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2002 Report Share Posted September 13, 2002 It seems strange that you have not made more improvement and I think that is why Patty is wondering about the capsule. I wish I could figure out why some of us heal and some of us don't. I always wonder too if some of us were going to get something any way and the implants just speeded things up. I know that you have told us before that you were extremely healthy before implants, and that seems to have been the case with most of us. Though I am the first to admit I have done many things in my past that were hard on my body, I mean I did my share of partying when I was younger. The irony of it all is that the implants were a gift to myself for getting in to the best shape of my life. I have to admit though, and maybe this has been the case for you too Shirl I don't know. But the implants and explant is part of the reason I ended up meeting my husband and the fact is that I am not sure if we would ever have met had I not had this experience, so when it comes down to it, implants did make positive things happen in my life. Anyhow I always try to see the good that comes from a bad situtation. It can be hard sometimes. I hope that things are going good for you with your upcoming wedding and all. I want to ask you too, if you ever though about sharing some photos with the group, we would all love to know what you look like and everything. hugs ----- Original Message ----- From: blksvr@... Sent: Friday, September 13, 2002 12:49 AM Subject: Re: Shirl, where are you? I'm about 99% sure that the PS removed the capsules. He was a PS that a lot of the ladies on the Ilenas list recommended. Also, I received the path report back which said they were removed. My pathologists wife was disabled from implants, so I felt they were reliable. Shirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2002 Report Share Posted September 14, 2002 I never did a lot of bad stuff to my body. I never really drank or partied or anything like that. Even before my implants I would have maybe a glass of wine at Christmas and that would be it for the year. I ate fairly healthy most of the time. The place that I worked before I got sick, I would only bring veggies for a snack. This was over 6 years I did this. I'm not sure why I'm not getting well, but I have to say as time goes by I've met more women who also aren't getting well. As for my other half, we met before I got my implants, so I can't say that I had that good thing come from them. I'm going to look for a PIC to send, I don't think I have any recent ones. I'll have to check. Shirl Quote Link to comment Share on other sites More sharing options...
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