Re: please read - Thank you

[Guest guest]

J

I don't quite know what to say as I feel I have tried so hard to help you

and if you feel the need to be a silent member of the group, that is up to

you. It is not my choice to make. I am so confused by the ins and outs of

all this medical insurance stuff that I don't know what to make of it. If in

fact your insurance is good in any state why can't you find a Dr who will

operate on you? This is my biggest question and maybe it is yours too.

Honey I wish you the best I hope that you will find help, and that you can

get the implants out of your body soon, no one should have to be in your

situation no matter what and it is a shame that you cannot find a good ps or

any ps that will work with you.

I can only say that I wish you will reconsider your stance on not posting,

this group is here for you if you so choose to use it and we all care and

are wanting to give you support any way we can.'

I am not doing well myself and am in pain 24 hours a day with my foot, it

has gotten so bad that my depression is bad and I am ready to try some

antidepressants if this doesn't get better soon. THe tendon in my foot and

heel is so inflammed that my only option may be to have it treated with the

ossa tron(eswt machine) which is $6,000 and not covered by insurance, so

despite getting rid of implants I am still suffering and once again looking

at spending tons of money to fix the problem. It sucks, I have been battling

pain for 4 years, it seems life is just not fair !

----- Original Message -----

From: " JHH7 " <rogerlh@...>

< >

Sent: Sunday, September 01, 2002 7:02 PM

Subject: please read - Thank you

> Hi,

>

> Thank you for your time and reply. If I come across frustrated in this

> post, it is with the medical situation.........

>

> Let me reiterate, then I am politely returning to a more silent member of

> this forum.............

> (as I have been for the last several months).

>

> My initial questions were:

> 1) how does one meet the criteria for emergent explant????

> 2) does anyone know a reputable surgeon in my area????

> 3) or of any funds may be available to help me with the co-pay and travel

> if I find a dr. out of state???

>

> 1st)

> Medicare DOES NOT LIMIT YOU by State!!!!! I have PRIMARY insurance any

> where in the US for any medical need - not just emergency care. I have

> received non-emergent care in other states. Any out-of-state physician can

> bill and accept Medicare!!!

>

> 2nd)

> Most DR's either accept Medicaid CO-pay or waive that CO-pay for patients

> with Medicaid as secondary insurance in most fields of medicine. It seems

> to be different for plastic surgeons. It is the Medicaid secondary ins.

> that presents a state to state billing problem for the co.-pay. There is

> not a problem with my primary ins.

>

> Any surgeon who would work with me on the co.-pay issue which would be 20%

> (that Medicaid would normally pay in my state but NOT PS) could have

> stepped up and performed my surgery in entirety. I have the same CO-pay

> problem in NY State as stated above.

>

> I was not told to simply start looking into explant arrangements. I was

> told " YOU NEED SURGERY!!! It is SEVERELY impacting your health and

> aggravating your medical condition. Silicone should not be spilt in your

> body and it will only get worse! " by 2 radiologist and several dr's. I

> was further told they will try not to " chop you to pieces but you need to

> get as much of the migration out as humanly possible "

>

> When you are told that you could have lymphoma, it is not a light

> conversation. The dr. has a genuine concern and wants this done ASAP. It

is

> not a stretch for ins. purposes but for my health and life. I was suppose

> to have surgery in July and waited for that but it was canceled because I

> was too sick with a respiratory infection.

>

> You do not biopsy calcifications of this kind ever or aspirate this type

of

> calcification. Nodes with this problem must be removed whole. Otherwise

you

> jeopardize your health even further. They are removed in entirety under

> general anesthesia in a Hospital. I don't know about other problems, as I

> can only speak about the specific calcifications I have - which are very

> deep and hard like a rock in the lymph nodes.

>

> It is not " I " who states the lymph's should be done simultaneously but

> rather my pc, rheumy, and the general surgeon I have consulted with. I

> have Dr's who are advising me that I would be crazy to undergo general

> anesthesia twice. Especially, since it is high risk with my general

> medical problems. With all do respect, my understanding is that removing

> lymph nodes is first year surgery and most dr.'s can do this no problem.

> This is a non issue. It is only an issue of time being of the essence.

>

> It is finding a ps to do the explant and address the migration of silicone

> that has been problematic. I have a general surgeon willing to do the

> nodes, but they do not have a ps to do the explant and migration.

>

> My Dr.'s are appalled at the lack of care they can find me for this

> procedure. The only ps they know personally actually suggested

> reimplantation with more silicone implants since this was reconstruction

> and I meet the criteria for silicone replacement. She would not be

> addressing any of the migration. This is not a consideration in our

> opinion. My Dr.'s will no longer be referring patients to that ps.

>

> I have two lymph issues: the axilla's full of silicone and the groin with

> calcification.

>

> Also, any time a Lupus patient is undergoing surgery it complicates

surgery

> and requires a VERY good physician / surgeon and usually in best case

> scenarios an attending rheumy who is familiar with Lupus.

>

> I was not asking for a complete " charity " case - just a dr. who is

> experienced in extracapsular silicone migration and lymph involvement who

> could work with me for the " co.-pay " issue.

>

> I have been urged by many - including dr's - not to go to an inexperienced

> ps. To go to one of the Dr.'s that are very familiar with explant of

> silicone and polyurethane.

> I understand the polyurethane are known to make people the sickest and are

> the hardest to remove.

>

> There are innumerable surgeons in NY city and no doubt someone is

qualified

> - - but to the patient it is like finding a needle in a hay stack. I was

> mutilated with my initial surgery and know first-hand how bad an

> " inexperienced " surgeon can be - and I required 2 subsequent surgeries for

> repair. Not to mention the emergency surgery for hematoma. And yes, I had

> drains. A personal recommendation goes a long way. So, I am more scared

> now based in my previous experience.

>

> I have already had 5 ps consults in NY (see below) after hundreds of phone

> calls to no avail.

>

> Maybe what you say is true for an intracapsular rupture but an

> extracapsular rupture with SILICONE clearly seen by ultrasound and MRI in

> my chest outside of the capsule and in the axilla lymph's should not be

> delayed this long. It is already 7 months since I have been working on

> this. This is too long for my specific case and the progression is clearly

> present on the new tests.

>

> I am inclined to believe that all insurance companies recognize spilt

> silicone as " medically necessary. " People may delay when they are either

> " not aware " of their rupture or have intracapsular rupture only. I don't

> know. But once a patient knows of extracapsular silicone rupture then only

> bureaucratic / financial issues, or health would delay a person in

> obtaining the necessary explant, I would think.

>

> OK with all that said....

> I posted the other day in simply response to who has been a great

> help and a good friend and support through all this. I decided to post on

> the forum in hope that I could broaden the ideas that I may receive.

>

> Everyone keeps telling me " you need to get money and go to Dr. Feng or Dr.

> Kolb ect. " So, I thought I would post for help.

>

> Thank you for listening.

>

> No patient should ever find themselves in the position I find myself. I

> speak not just for myself, but for all the rest of the woman who have and

> will encounter this injustice.

>

> I am just beginning to understand the magnitude of this issue.

>

> Signed,

> Another.....naive, trusting patient.

>

> J-

>

> CONSULTS:

>

> I had already been on 5 ps consults in NY (after hundreds of calls) prior

> to even agreeing to let a the begrudging original surgeon schedule me - to

> no avail.

>

> 4 were totally out of the question. Only one was qualified but now tells

me

> she " can not accommodate me as my case has progressed to much. " She urged

> my not to let my care go beyond Aug. Only underscoring my concerns.

>

> Samples of my experience are as follows:

>

> 1. How do we detect and remove the spilt silicone? Reply " we don't have

> to. Silicone is not a problem. Pacemakers, hip replacement, et. are made

of

> silicone. (not raw spilt gel) Suggestion/recommendation is that you

> replace with more silicone since you have such a nice result. You can be

in

> the study. "

>

> Note: I would have to be crazy and clearly they are not going to concern

> themselves with removing the migrated silicone.

>

> 2. Not even concerned what type of implants I have (saline vs. silicone).

> Tells me he will leave the capsule and scar tissue so it will serve to

> " augment " me. Are we kidding here? Did not even look at the films.

>

> 3. Has done a total of 20 explants only 2 without replacement. 2 explants

> only. I don't want to be only the 3rd - especially with the poly.

>

> 4. Rude - Rude - Rude has only done 20 explants total. Only 2 with a lift.

> Did not even take a medical history. Did not look at the films. Clearly

did

> not want the case.

>

> 5. Dr. Mentioned above whom states she cannot take the case now. Could

> have, but not now because of the progression and time-frame.

>

> Oh yes and then there were my 2 general surgery consults.

>

> One tells me " no need to excise " silicone and did not investigate what

> exactly was in the nodes.

>

> In the interim, I had my ultrasound after about 50 phone calls I found a

> radiologist skilled to do silicone mapping w/ ultrasound.

> Lymph Findings: silicone in axilla nodes and the groin is calcification..

>

> With that, the second general surgeon was the surgeon I WAS scheduled with

> and he was going to operate with the original ps

>

> Thank you for reading this through.

>

>

>

>

[Guest guest]

Great idea e, you are as always helpful and knowledgeable. It would seem that there is always some options for us if we chose to take them.

----- Original Message -----

From: e Rene

Sent: Sunday, September 01, 2002 9:19 PM

Subject: Re: please read - Thank you

J,

Again, PLEASE hang in there. Something will work out. I have forwarded your email to Dr. Huang and requested a response ASAP. She has already said that she accepts medicare, and encouraged you to call to schedule your explant. Do not settle for any doc, as you already know. You need to go to one that knows intimately how to deal with spilt silicone and the resulting affects on your body. Dr. Huang is one of our "recommended" doctors. She worked so well with my insr company to convince them I needed my explant emergently, and hung in there with me. The insr company even asked me and her why she had to be the explanting surgeon. Feeling awkward, because she didn't want to sound "conceited" she wrote the insr company and told them why she should do the surgery. My insr company approved. The whole issue was not her, though, it was the facilities she operates out of. They were out of network, and competing hospitals with the ones I had to go to for care. The insr said they'd pay for the surgery if I had it done at one of the hospitals in network. They ended up authorizing the surgery out of network and at one of the facilities Dr. Huang uses.

I know that I've already told you, but if you can wait and are able to wait until Nov, I will be back in Denver permanently and you can stay with me. That gets rid of a hotel issue, and I will check into my miles on AA and see if I can use some of them for you to get you a free ticket. I have plenty of miles, so it shouldn't be a problem. So, the only cost you may be looking at is some out of pocket costs for the surgery (whatever medicare doesn't cover). And I'm sure Dr. Huang would work out a payment plan. On the other hand, you may not have any costs.

What I'm trying to say is: take advantage of what I'm offering you. You will have a place to stay, a nurse to help you out, possibly a free airline ticket to Denver, and one of the best surgeons dealing with the implant issue. And again, check out that site I told you about www.modestneeds.org. It is legit, and it can't hurt to request some money. You never know until you try whether you will be awarded the money.

I will let you know when I hear from Dr. Huang. But since I don't have a personal email address, please continue to read the posts so you know when I need to get in touch with you.

e

----- Original Message -----

From: JHH7

Sent: Sunday, September 01, 2002 4:42 PM

Subject: please read - Thank you

Hi, Thank you for your time and reply. If I come across frustrated in thispost, it is with the medical situation.........Let me reiterate, then I am politely returning to a more silent member ofthis forum.............(as I have been for the last several months). My initial questions were:1) how does one meet the criteria for emergent explant????2) does anyone know a reputable surgeon in my area????3) or of any funds may be available to help me with the co-pay and travelif I find a dr. out of state???1st)Medicare DOES NOT LIMIT YOU by State!!!!! I have PRIMARY insurance anywhere in the US for any medical need - not just emergency care. I havereceived non-emergent care in other states. Any out-of-state physician canbill and accept Medicare!!! 2nd)Most DR's either accept Medicaid CO-pay or waive that CO-pay for patientswith Medicaid as secondary insurance in most fields of medicine. It seemsto be different for plastic surgeons. It is the Medicaid secondary ins.that presents a state to state billing problem for the co.-pay. There isnot a problem with my primary ins.Any surgeon who would work with me on the co.-pay issue which would be 20%(that Medicaid would normally pay in my state but NOT PS) could havestepped up and performed my surgery in entirety. I have the same CO-payproblem in NY State as stated above.I was not told to simply start looking into explant arrangements. I wastold "YOU NEED SURGERY!!! It is SEVERELY impacting your health andaggravating your medical condition. Silicone should not be spilt in yourbody and it will only get worse!" by 2 radiologist and several dr's. Iwas further told they will try not to "chop you to pieces but you need toget as much of the migration out as humanly possible"When you are told that you could have lymphoma, it is not a lightconversation. The dr. has a genuine concern and wants this done ASAP. It isnot a stretch for ins. purposes but for my health and life. I was supposeto have surgery in July and waited for that but it was canceled because Iwas too sick with a respiratory infection.You do not biopsy calcifications of this kind ever or aspirate this type ofcalcification. Nodes with this problem must be removed whole. Otherwise youjeopardize your health even further. They are removed in entirety undergeneral anesthesia in a Hospital. I don't know about other problems, as Ican only speak about the specific calcifications I have - which are verydeep and hard like a rock in the lymph nodes.It is not "I" who states the lymph's should be done simultaneously butrather my pc, rheumy, and the general surgeon I have consulted with. Ihave Dr's who are advising me that I would be crazy to undergo generalanesthesia twice. Especially, since it is high risk with my generalmedical problems. With all do respect, my understanding is that removinglymph nodes is first year surgery and most dr.'s can do this no problem.This is a non issue. It is only an issue of time being of the essence.It is finding a ps to do the explant and address the migration of siliconethat has been problematic. I have a general surgeon willing to do thenodes, but they do not have a ps to do the explant and migration. My Dr.'s are appalled at the lack of care they can find me for thisprocedure. The only ps they know personally actually suggestedreimplantation with more silicone implants since this was reconstructionand I meet the criteria for silicone replacement. She would not beaddressing any of the migration. This is not a consideration in ouropinion. My Dr.'s will no longer be referring patients to that ps.I have two lymph issues: the axilla's full of silicone and the groin withcalcification.Also, any time a Lupus patient is undergoing surgery it complicates surgeryand requires a VERY good physician / surgeon and usually in best casescenarios an attending rheumy who is familiar with Lupus. I was not asking for a complete "charity" case - just a dr. who isexperienced in extracapsular silicone migration and lymph involvement whocould work with me for the "co.-pay" issue. I have been urged by many - including dr's - not to go to an inexperiencedps. To go to one of the Dr.'s that are very familiar with explant ofsilicone and polyurethane. I understand the polyurethane are know to make people the sickest and arethe hardest to remove.There are innumerable surgeons in NY city and no doubt someone is qualified- - but to the patient it is like finding a needle in a hay stack. I wasmutilated with my initial surgery and know first-hand how bad an"inexperienced" surgeon can be - and I required 2 subsequent surgeries forrepair. Not to mention the emergency surgery for hematoma. And yes, I haddrains. A personal recommendation goes a long way. So, I am more scarednow based in my previous experience. I have already had 5 ps consults in NY (see below) after hundreds of phonecalls to no avail.Maybe what you say is true for an intracapsular rupture but anextracapsular rupture with SILICONE clearly seen by ultrasound and MRI inmy chest outside of the capsule and in the axilla lymph's should not bedelayed this long. It is already 7 months since I have been working onthis. This is too long for my specific case and the progression is clearlypresent on the new tests.I am inclined to believe that all insurance companies recognize spiltsilicone as "medically necessary." People may delay when they are either"not aware" of their rupture or have intracapsular rupture only. I don'tknow. But once a patient knows of extracapsular silicone rupture then onlybureaucratic / financial issues, or health would delay a person inobtaining the necessary explant, I would think.OK with all that said……..I posted the other day in simply response to who has been a greathelp and a good friend and support through all this. I decided to post onthe forum in hope that I could broaden the ideas that I may receive. Everyone keeps telling me "you need to get money and go to Dr. Feng or Dr.Kolb ect." So, I thought I would post for help. Thank you for listening.e, thank you very much for help and I will follow-up........... No patient should ever find themselves in the position I find myself. Ispeak not just for myself, but for all the rest of the woman who have andwill encounter this injustice.I am just beginning to understand the magnitude of this issue.Signed,Another.....naive, trusting patient.J-CONSULTS:I had already been on 5 ps consults in NY (after hundreds of calls) priorto even agreeing to let a the begrudging original surgeon schedule me - tono avail.4 were totally out of the question. Only one was qualified but now tells meshe "can not accommodate me as my case has progressed to much."Samples of my experience are as follows: 1. How do we detect and remove the spilt silicone? Reply "we don't haveto. Silicone is not a problem. Pacemakers, hip replacement, et. are made ofsilicone. (not raw spilt gel) Suggestion/recommendation is that youreplace with more silicone since you have such a nice result. You can be inthe study." Note: I would have to be crazy and clearly they are not going to concernthemselves with removing the migrated silicone.2. Not even concerned what type of implants I have (saline vs. silicone).Tells me he will leave the capsule and scar tissue so it will server to"augment" me. Are we kidding here? Did not even look at the films.3. Has done a total of 20 explants only 2 without replacement. 2 explantsonly. I don't want to be only the 3rd - especially with the poly.4. Rude - Rude - Rude has only done 20 explants total. Only 2 with a lift. Did not even take a medical history. Did not look at the films. Clearly didnot want the case.5. Dr. Mentioned above whom states she cannot take the case now. Couldhave, but not now because of the progression and time-frame.Oh yes and then there were my 2 general surgery consults. One tells me "no need to excise" silicone and did not investigate whatexactly was in the nodes. In the interim, I had my ultrasound after about 50 phone calls I found aradiologist skilled to do silicone mapping w/ ultrasound. Lymph Findings: silicone in axilla nodes and the groin is calcification…. With that, the second general surgeon was the surgeon I WAS scheduled withand he was going to operate with the original psThank you for reading this through.

[Guest guest]

Does anyone not read my posts? I have agreed to help J as much as I can, including sending her a free ticket on AA to fly out to Denver, and Dr. Huang will accept her medicare, as will the hospital. If she can wait until early Nov, I will gladly let her stay with me and I can help take care of her post surgery. I feel that NO ONE has paid any attn to what I have offered her. She is pretty much set. It is now J's decision as to what she wants to do and when. I have also given her a website that does provide funds to people who need it. I have checked out the site myself, and read about it in People magazine. It is LEGIT! I have encouraged her to visit the site and apply for the funds. The most he gives is $1000, but that is still $1000 she didn't have before. And she doesn't have to give him any money---he just wants to verify the need, then will send you a check for the amt he approves. GOD---what more do I have to do to let you all know that I have offered this woman all that I can? Dr. Huang is willing to take on her case, and the rest is up to her. Most hospitals across the country take medicare, that is why they are JCAHO certified. If they don't take medicare, then they are not JCAHO certified and you probably don't want to go to them anyway, because they more than likely don't meet the stringent criteria JCAHO requires for certification. And the hospitals Dr. Huang uses are JCAHO certified. So, J, if you're reading this, you CAN go to any hospital you'd like as long as it is JCAHO certified. e ----- Original Message ----- From: Heer Sent: Monday, September 02, 2002 8:47 AM Subject: Re: please read - Thank you JI don't quite know what to say as I feel I have tried so hard to help youand if you feel the need to be a silent member of the group, that is up toyou. It is not my choice to make. I am so confused by the ins and outs ofall this medical insurance stuff that I don't know what to make of it. If infact your insurance is good in any state why can't you find a Dr who willoperate on you? This is my biggest question and maybe it is yours too.Honey I wish you the best I hope that you will find help, and that you canget the implants out of your body soon, no one should have to be in yoursituation no matter what and it is a shame that you cannot find a good ps orany ps that will work with you.I can only say that I wish you will reconsider your stance on not posting,this group is here for you if you so choose to use it and we all care andare wanting to give you support any way we can.'I am not doing well myself and am in pain 24 hours a day with my foot, ithas gotten so bad that my depression is bad and I am ready to try someantidepressants if this doesn't get better soon. THe tendon in my foot andheel is so inflammed that my only option may be to have it treated with theossa tron(eswt machine) which is $6,000 and not covered by insurance, sodespite getting rid of implants I am still suffering and once again lookingat spending tons of money to fix the problem. It sucks, I have been battlingpain for 4 years, it seems life is just not fair !----- Original Message -----From: "JHH7" <rogerlh@...>< >Sent: Sunday, September 01, 2002 7:02 PMSubject: please read - Thank you> Hi,>> Thank you for your time and reply. If I come across frustrated in this> post, it is with the medical situation.........>> Let me reiterate, then I am politely returning to a more silent member of> this forum.............> (as I have been for the last several months).>> My initial questions were:> 1) how does one meet the criteria for emergent explant????> 2) does anyone know a reputable surgeon in my area????> 3) or of any funds may be available to help me with the co-pay and travel> if I find a dr. out of state???>> 1st)> Medicare DOES NOT LIMIT YOU by State!!!!! I have PRIMARY insurance any> where in the US for any medical need - not just emergency care. I have> received non-emergent care in other states. Any out-of-state physician can> bill and accept Medicare!!!>> 2nd)> Most DR's either accept Medicaid CO-pay or waive that CO-pay for patients> with Medicaid as secondary insurance in most fields of medicine. It seems> to be different for plastic surgeons. It is the Medicaid secondary ins.> that presents a state to state billing problem for the co.-pay. There is> not a problem with my primary ins.>> Any surgeon who would work with me on the co.-pay issue which would be 20%> (that Medicaid would normally pay in my state but NOT PS) could have> stepped up and performed my surgery in entirety. I have the same CO-pay> problem in NY State as stated above.>> I was not told to simply start looking into explant arrangements. I was> told "YOU NEED SURGERY!!! It is SEVERELY impacting your health and> aggravating your medical condition. Silicone should not be spilt in your> body and it will only get worse!" by 2 radiologist and several dr's. I> was further told they will try not to "chop you to pieces but you need to> get as much of the migration out as humanly possible">> When you are told that you could have lymphoma, it is not a light> conversation. The dr. has a genuine concern and wants this done ASAP. Itis> not a stretch for ins. purposes but for my health and life. I was suppose> to have surgery in July and waited for that but it was canceled because I> was too sick with a respiratory infection.>> You do not biopsy calcifications of this kind ever or aspirate this typeof> calcification. Nodes with this problem must be removed whole. Otherwiseyou> jeopardize your health even further. They are removed in entirety under> general anesthesia in a Hospital. I don't know about other problems, as I> can only speak about the specific calcifications I have - which are very> deep and hard like a rock in the lymph nodes.>> It is not "I" who states the lymph's should be done simultaneously but> rather my pc, rheumy, and the general surgeon I have consulted with. I> have Dr's who are advising me that I would be crazy to undergo general> anesthesia twice. Especially, since it is high risk with my general> medical problems. With all do respect, my understanding is that removing> lymph nodes is first year surgery and most dr.'s can do this no problem.> This is a non issue. It is only an issue of time being of the essence.>> It is finding a ps to do the explant and address the migration of silicone> that has been problematic. I have a general surgeon willing to do the> nodes, but they do not have a ps to do the explant and migration.>> My Dr.'s are appalled at the lack of care they can find me for this> procedure. The only ps they know personally actually suggested> reimplantation with more silicone implants since this was reconstruction> and I meet the criteria for silicone replacement. She would not be> addressing any of the migration. This is not a consideration in our> opinion. My Dr.'s will no longer be referring patients to that ps.>> I have two lymph issues: the axilla's full of silicone and the groin with> calcification.>> Also, any time a Lupus patient is undergoing surgery it complicatessurgery> and requires a VERY good physician / surgeon and usually in best case> scenarios an attending rheumy who is familiar with Lupus.>> I was not asking for a complete "charity" case - just a dr. who is> experienced in extracapsular silicone migration and lymph involvement who> could work with me for the "co.-pay" issue.>> I have been urged by many - including dr's - not to go to an inexperienced> ps. To go to one of the Dr.'s that are very familiar with explant of> silicone and polyurethane.> I understand the polyurethane are known to make people the sickest and are> the hardest to remove.>> There are innumerable surgeons in NY city and no doubt someone isqualified> - - but to the patient it is like finding a needle in a hay stack. I was> mutilated with my initial surgery and know first-hand how bad an> "inexperienced" surgeon can be - and I required 2 subsequent surgeries for> repair. Not to mention the emergency surgery for hematoma. And yes, I had> drains. A personal recommendation goes a long way. So, I am more scared> now based in my previous experience.>> I have already had 5 ps consults in NY (see below) after hundreds of phone> calls to no avail.>> Maybe what you say is true for an intracapsular rupture but an> extracapsular rupture with SILICONE clearly seen by ultrasound and MRI in> my chest outside of the capsule and in the axilla lymph's should not be> delayed this long. It is already 7 months since I have been working on> this. This is too long for my specific case and the progression is clearly> present on the new tests.>> I am inclined to believe that all insurance companies recognize spilt> silicone as "medically necessary." People may delay when they are either> "not aware" of their rupture or have intracapsular rupture only. I don't> know. But once a patient knows of extracapsular silicone rupture then only> bureaucratic / financial issues, or health would delay a person in> obtaining the necessary explant, I would think.>> OK with all that said....> I posted the other day in simply response to who has been a great> help and a good friend and support through all this. I decided to post on> the forum in hope that I could broaden the ideas that I may receive.>> Everyone keeps telling me "you need to get money and go to Dr. Feng or Dr.> Kolb ect." So, I thought I would post for help.>> Thank you for listening.>> No patient should ever find themselves in the position I find myself. I> speak not just for myself, but for all the rest of the woman who have and> will encounter this injustice.>> I am just beginning to understand the magnitude of this issue.>> Signed,> Another.....naive, trusting patient.>> J->> CONSULTS:>> I had already been on 5 ps consults in NY (after hundreds of calls) prior> to even agreeing to let a the begrudging original surgeon schedule me - to> no avail.>> 4 were totally out of the question. Only one was qualified but now tellsme> she "can not accommodate me as my case has progressed to much." She urged> my not to let my care go beyond Aug. Only underscoring my concerns.>> Samples of my experience are as follows:>> 1. How do we detect and remove the spilt silicone? Reply "we don't have> to. Silicone is not a problem. Pacemakers, hip replacement, et. are madeof> silicone. (not raw spilt gel) Suggestion/recommendation is that you> replace with more silicone since you have such a nice result. You can bein> the study.">> Note: I would have to be crazy and clearly they are not going to concern> themselves with removing the migrated silicone.>> 2. Not even concerned what type of implants I have (saline vs. silicone).> Tells me he will leave the capsule and scar tissue so it will serve to> "augment" me. Are we kidding here? Did not even look at the films.>> 3. Has done a total of 20 explants only 2 without replacement. 2 explants> only. I don't want to be only the 3rd - especially with the poly.>> 4. Rude - Rude - Rude has only done 20 explants total. Only 2 with a lift.> Did not even take a medical history. Did not look at the films. Clearlydid> not want the case.>> 5. Dr. Mentioned above whom states she cannot take the case now. Could> have, but not now because of the progression and time-frame.>> Oh yes and then there were my 2 general surgery consults.>> One tells me "no need to excise" silicone and did not investigate what> exactly was in the nodes.>> In the interim, I had my ultrasound after about 50 phone calls I found a> radiologist skilled to do silicone mapping w/ ultrasound.> Lymph Findings: silicone in axilla nodes and the groin is calcification..>> With that, the second general surgeon was the surgeon I WAS scheduled with> and he was going to operate with the original ps>> Thank you for reading this through.>>>>

[Guest guest]

Hi e,

I have read your posts and I think it is wonderful and very kind and generous of you to offer all the help that you have. It is more than most of us have done for others in this kind of situation.

I hope that this will work out for "J". At this point, it is all up to her and I do hope that she takes advantage of this offer of assistance. I know I would be more than grateful...sometimes the hoops seem very daunting.

Again, thanks for all you are doing.

Patty

----- Original Message -----

From: e Rene

Sent: Monday, September 02, 2002 2:16 PM

Subject: Re: please read - Thank you

Does anyone not read my posts? I have agreed to help J as much as I can, including sending her a free ticket on AA to fly out to Denver, and Dr. Huang will accept her medicare, as will the hospital. If she can wait until early Nov, I will gladly let her stay with me and I can help take care of her post surgery.

I feel that NO ONE has paid any attn to what I have offered her. She is pretty much set. It is now J's decision as to what she wants to do and when. I have also given her a website that does provide funds to people who need it. I have checked out the site myself, and read about it in People magazine. It is LEGIT! I have encouraged her to visit the site and apply for the funds. The most he gives is $1000, but that is still $1000 she didn't have before. And she doesn't have to give him any money---he just wants to verify the need, then will send you a check for the amt he approves.

GOD---what more do I have to do to let you all know that I have offered this woman all that I can? Dr. Huang is willing to take on her case, and the rest is up to her. Most hospitals across the country take medicare, that is why they are JCAHO certified. If they don't take medicare, then they are not JCAHO certified and you probably don't want to go to them anyway, because they more than likely don't meet the stringent criteria JCAHO requires for certification. And the hospitals Dr. Huang uses are JCAHO certified.

So, J, if you're reading this, you CAN go to any hospital you'd like as long as it is JCAHO certified.

e

[Guest guest]

Patty, Thank you for awknowledging my post. Sometimes I feel that I provide information, help, and support, and no one recognizes it. Sometimes I read posts after mine that indicate that person either didn't receive my post, or simply didn't read it. And then it makes me feel that what I do offer to this group is either taken for granted or not wanted or needed. And if what I have to offer is not wanted or needed, then I will no longer be a member of this group. I do know that I can be overbearing at times, because I am very outspoken. I don't hesitate to speak my feelings or thoughts, and when someone posts incorrect information, or someone asks for help, or someone states their opinion, you better believe I'm going to respond with my own info/opinion/suggestions. I don't shy away from conflict. In fact, I love to debate. And no one--absolutely no one, will ever scare me away, threaten me away, or otherwise. Because if they do, I've got a mouthful for them. And as you've all probably noticed, I'm very bull-headed. I'm the one who is always nominated to be the speaker for a group; I'm the one who always questions people and their ideas; I'm the one who will be the first to agree or disagree. How I got to be that way; I don't know, because up until I became a nurse, I was always very shy, and steered away from conflict and public speaking. Now I'm the exact opposite. Maybe too much so. At any rate, because of what I mentioned above, I feel that people simply just don't listen to me anymore. That they delete my posts without even glancing at them. I try to provide as much medical info as I can for the women in this group. I want them to have the power of knowledge, and I want them to be empowered, hence my strong views on certain things. What I don't do (or try not to do) is to tell someone what to do. When it comes to medicine, only a MD can tell someone what they should do. I can recommend and suggest, but to tell people what they should do is not ethically correct. Providing medical info to the group without having the formal knowledge or training is questionable." Some of us have more knowledge in certain areas than others. For instance, you, Patty, and Bonnie, have way more knowledge than I do about holistic medicine, although I'm learning. But without you, I would be clueless. However, I would not post info to someone about a certain aspect of holistic medicine if I didn't know. On the other hand, I have lots more knowledge about meds, surgical procedures, medical research, the insurance industry (worked in it for yrs), and the legal aspect of medicine than most others in this group. And I hope that you all are learning something from me. When I shoot out a post after someone has posted something, it is because it is incorrect or lacking facts. I strongly feel that women who provide medical information to this group without having formal knowledge or training, or having gone through it themselves, is practicing medicine without a license. And that bothers me because it is providing incorrect info to women who desperately need correct info. At any rate, because of my "outspoken posts", I get the impression that people probably roll their eyes when they see a post from me, and as a result, don't get the message I'm trying to convey. I'm not trying to belittle anyone or create tension, I'm simply trying to make a point, and unfortunately, because of my involvement in the implant issue, I can become very passionate about it. And I also become angry when people spurt out medical info that is incorrect and/or they tell someone to do something (medically related). Giving medical advice is a no-no--only docs can do that. And we all need to be careful when we discuss medical issues. We can provide info, suggest, and recommend, but giving medical advice is really practicing medicine without a license. So, for those reasons above, that is why I asked if anyone had read my posts in regards to J as someone posted something which to me, indicated that what I have offered to J was not noticed. And I feel that this happens more often than not. I feel like I can provide some medical info to someone who has requested it, then later, someone posts something which is exactly what I posted, and the rest of the group acts as if what I posted never existed. It really is very frustrating. Anyway, that's it. I'm also in a bad mood today because I just want summer to end. I hate summer and the heat, especially in this godforsaken place where it's 300 degrees outside. And I want to be back in Denver, and Nov seems so far away........ e ----- Original Message ----- From: ~*Patty*~ Sent: Monday, September 02, 2002 2:35 PM Subject: Re: please read - Thank you Hi e, I have read your posts and I think it is wonderful and very kind and generous of you to offer all the help that you have. It is more than most of us have done for others in this kind of situation. I hope that this will work out for "J". At this point, it is all up to her and I do hope that she takes advantage of this offer of assistance. I know I would be more than grateful...sometimes the hoops seem very daunting. Again, thanks for all you are doing. Patty ----- Original Message ----- From: e Rene Sent: Monday, September 02, 2002 2:16 PM Subject: Re: please read - Thank you Does anyone not read my posts? I have agreed to help J as much as I can, including sending her a free ticket on AA to fly out to Denver, and Dr. Huang will accept her medicare, as will the hospital. If she can wait until early Nov, I will gladly let her stay with me and I can help take care of her post surgery. I feel that NO ONE has paid any attn to what I have offered her. She is pretty much set. It is now J's decision as to what she wants to do and when. I have also given her a website that does provide funds to people who need it. I have checked out the site myself, and read about it in People magazine. It is LEGIT! I have encouraged her to visit the site and apply for the funds. The most he gives is $1000, but that is still $1000 she didn't have before. And she doesn't have to give him any money---he just wants to verify the need, then will send you a check for the amt he approves. GOD---what more do I have to do to let you all know that I have offered this woman all that I can? Dr. Huang is willing to take on her case, and the rest is up to her. Most hospitals across the country take medicare, that is why they are JCAHO certified. If they don't take medicare, then they are not JCAHO certified and you probably don't want to go to them anyway, because they more than likely don't meet the stringent criteria JCAHO requires for certification. And the hospitals Dr. Huang uses are JCAHO certified. So, J, if you're reading this, you CAN go to any hospital you'd like as long as it is JCAHO certified. e

[Guest guest]

e,

At one time I, too, was very passionate about certain things and wanted to share my viewpoint all the time. That was not that long ago.

However, I learned that I was burning myself out very easily and taking some things too personally and decided the best thing to do was for me to step back and relax and look at life through another window. It was the best thing I could have done. I realized that I cannot save women from making mistakes with their lives when it comes to implants. The best that I can do is to share what I know and pray that it will be effective, and then let it go at that. It is such a blessing to hear when women make a choice that is for the best for their health (which in my opinion is to forego implants entirely if considering implants, and deciding to remove them if already implanted). I can only hope that what I say is taking root.

However, I also realize that sometimes whatever I do is just not enough. No matter what I say or what I do, some women are either not going to hear, not going to listen, or just plain ignore me. That's Okay with me. All I can do is share what I know, and leave the rest up to God.

Once again, thanks for your information and your dedication to helping others. It is appreciated. Have a great evening.

Love,

Patty

----- Original Message -----

From: e Rene

Sent: Monday, September 02, 2002 3:23 PM

Subject: Re: please read - Thank you

Patty,

Thank you for awknowledging my post. Sometimes I feel that I provide information, help, and support, and no one recognizes it. Sometimes I read posts after mine that indicate that person either didn't receive my post, or simply didn't read it. And then it makes me feel that what I do offer to this group is either taken for granted or not wanted or needed. And if what I have to offer is not wanted or needed, then I will no longer be a member of this group.

I do know that I can be overbearing at times, because I am very outspoken. I don't hesitate to speak my feelings or thoughts, and when someone posts incorrect information, or someone asks for help, or someone states their opinion, you better believe I'm going to respond with my own info/opinion/suggestions. I don't shy away from conflict. In fact, I love to debate. And no one--absolutely no one, will ever sc are me away, threaten me away, or otherwise. Because if they do, I've got a mouthful for them. And as you've all probably noticed, I'm very bull-headed. I'm the one who is always nominated to be the speaker for a group; I'm the one who always questions people and their ideas; I'm the one who will be the first to agree or disagree. How I got to be that way; I don't know, because up until I became a nurse, I was always very shy, and steered away from conflict and public speaking. Now I'm the exact opposite. Maybe too much so.

At any rate, because of what I mentioned above, I feel that people simply just don't listen to me anymore. That they delete my posts without even glancing at them. I try to provide as much medical info as I can for the women in this group. I want them to have the power of knowledge, and I want them to be empowered, hence my strong views on cert ain things. What I don't do (or try not to do) is to tell someone what to do. When it comes to medicine, only a MD can tell someone what they should do. I can recommend and suggest, but to tell people what they should do is not ethically correct. Providing medical info to the group without having the formal knowledge or training is questionable." Some of us have more knowledge in certain areas than others. For instance, you, Patty, and Bonnie, have way more knowledge than I do about holistic medicine, although I'm learning. But without you, I would be clueless. However, I would not post info to someone about a certain aspect of holistic medicine if I didn't know.

On the other hand, I have lots more knowledge about meds, surgical procedures, medical research, the insurance industry (worked in it for yrs), and the legal aspect of medicine than most others & nbs p;in this group. And I hope that you all are learning something from me. When I shoot out a post after someone has posted something, it is because it is incorrect or lacking facts. I strongly feel that women who provide medical information to this group without having formal knowledge or training, or having gone through it themselves, is practicing medicine without a license. And that bothers me because it is providing incorrect info to women who desperately need correct info.

At any rate, because of my "outspoken posts", I get the impression that people probably roll their eyes when they see a post from me, and as a result, don't get the message I'm trying to convey. I'm not trying to belittle anyone or create tension, I'm simply trying to make a point, and unfortunately, because of my involvement in the implant issue, I can become very passionate about it. And I also become angry when people spurt out medical info that is incorrect and/or they tell someone to do something (medically related). Giving medical advice is a no-no--only docs can do that. And we all need to be careful when we discuss medical issues. We can provide info, suggest, and recommend, but giving medical advice is really practicing medicine without a license.

So, for those reasons above, that is why I asked if anyone had read my posts in regards to J as someone posted something which to me, indicated that what I have offered to J was not noticed. And I feel that this happens more often than not. I feel like I can provide some medical info to someone who has requested it, then later, someone posts something which is exactly what I posted, and the rest of the group acts as if what I posted never existed. It really is very frustrating.

Anyway, that's it. I'm also in a bad mood today because I just want summer to end. I hate summer and the heat, especially in this godforsaken place where it's 300 degrees outside. And I want to be back in Denver, and Nov seems so far away........

e

[Guest guest]

e: Without her Medicaid, she will have to cover the 20% on the hospital which is significant. .

-----Original Message-----From: e Rene [mailto:e_Rene@...]Sent: Monday, September 02, 2002 5:17 PM Subject: Re: please read - Thank you

Does anyone not read my posts? I have agreed to help J as much as I can, including sending her a free ticket on AA to fly out to Denver, and Dr. Huang will accept her medicare, as will the hospital. If she can wait until early Nov, I will gladly let her stay with me and I can help take care of her post surgery.

I feel that NO ONE has paid any attn to what I have offered her. She is pretty much set. It is now J's decision as to what she wants to do and when. I have also given her a website that does provide funds to people who need it. I have checked out the site myself, and read about it in People magazine. It is LEGIT! I have encouraged her to visit the site and apply for the funds. The most he gives is $1000, but that is still $1000 she didn't have before. And she doesn't have to give him any money---he just wants to verify the need, then will send you a check for the amt he approves.

GOD---what more do I have to do to let you all know that I have offered this woman all that I can? Dr. Huang is willing to take on her case, and the rest is up to her. Most hospitals across the country take medicare, that is why they are JCAHO certified. If they don't take medicare, then they are not JCAHO certified and you probably don't want to go to them anyway, because they more than likely don't meet the stringent criteria JCAHO requires for certification. And the hospitals Dr. Huang uses are JCAHO certified.

So, J, if you're reading this, you CAN go to any hospital you'd like as long as it is JCAHO certified.

e

----- Original Message -----

From: Heer

Sent: Monday, September 02, 2002 8:47 AM

Subject: Re: please read - Thank you

JI don't quite know what to say as I feel I have tried so hard to help youand if you feel the need to be a silent member of the group, that is up toyou. It is not my choice to make. I am so confused by the ins and outs ofall this medical insurance stuff that I don't know what to make of it. If infact your insurance is good in any state why can't you find a Dr who willoperate on you? This is my biggest question and maybe it is yours too.Honey I wish you the best I hope that you will find help, and that you canget the implants out of your body soon, no one should have to be in yoursituation no matter what and it is a shame that you cannot find a good ps orany ps that will work with you.I can only say that I wish you will reconsider your stance on not posting,this group is here for you if you so choose to use it and we all care andare wanting to give you support any way we can.'I am not doing well myself and am in pain 24 hours a day with my foot, ithas gotten so bad that my depression is bad and I am ready to try someantidepressants if this doesn't get better soon. THe tendon in my foot andheel is so inflammed that my only option may be to have it treated with theossa tron(eswt machine) which is $6,000 and not covered by insurance, sodespite getting rid of implants I am still suffering and once again lookingat spending tons of money to fix the problem. It sucks, I have been battlingpain for 4 years, it seems life is just not fair !----- Original Message -----From: "JHH7" <rogerlh@...>< >Sent: Sunday, September 01, 2002 7:02 PMSubject: please read - Thank you> Hi,>> Thank you for your time and reply. If I come across frustrated in this> post, it is with the medical situation.........>> Let me reiterate, then I am politely returning to a more silent member of> this forum.............> (as I have been for the last several months).>> My initial questions were:> 1) how does one meet the criteria for emergent explant????> 2) does anyone know a reputable surgeon in my area????> 3) or of any funds may be available to help me with the co-pay and travel> if I find a dr. out of state???>> 1st)> Medicare DOES NOT LIMIT YOU by State!!!!! I have PRIMARY insurance any> where in the US for any medical need - not just emergency care. I have> received non-emergent care in other states. Any out-of-state physician can> bill and accept Medicare!!!>> 2nd)> Most DR's either accept Medicaid CO-pay or waive that CO-pay for patients> with Medicaid as secondary insurance in most fields of medicine. It seems> to be different for plastic surgeons. It is the Medicaid secondary ins.> that presents a state to state billing problem for the co.-pay. There is> not a problem with my primary ins.>> Any surgeon who would work with me on the co.-pay issue which would be 20%> (that Medicaid would normally pay in my state but NOT PS) could have> stepped up and performed my surgery in entirety. I have the same CO-pay> problem in NY State as stated above.>> I was not told to simply start looking into explant arrangements. I was> told "YOU NEED SURGERY!!! It is SEVERELY impacting your health and> aggravating your medical condition. Silicone should not be spilt in your> body and it will only get worse!" by 2 radiologist and several dr's. I> was further told they will try not to "chop you to pieces but you need to> get as much of the migration out as humanly possible">> When you are told that you could have lymphoma, it is not a light> conversation. The dr. has a genuine concern and wants this done ASAP. Itis> not a stretch for ins. purposes but for my health and life. I was suppose> to have surgery in July and waited for that but it was canceled because I> was too sick with a respiratory infection.>> You do not biopsy calcifications of this kind ever or aspirate this typeof> calcification. Nodes with this problem must be removed whole. Otherwiseyou> jeopardize your health even further. They are removed in entirety under> general anesthesia in a Hospital. I don't know about other problems, as I> can only speak about the specific calcifications I have - which are very> deep and hard like a rock in the lymph nodes.>> It is not "I" who states the lymph's should be done simultaneously but> rather my pc, rheumy, and the general surgeon I have consulted with. I> have Dr's who are advising me that I would be crazy to undergo general> anesthesia twice. Especially, since it is high risk with my general> medical problems. With all do respect, my understanding is that removing> lymph nodes is first year surgery and most dr.'s can do this no problem.> This is a non issue. It is only an issue of time being of the essence.>> It is finding a ps to do the explant and address the migration of silicone> that has been problematic. I have a general surgeon willing to do the> nodes, but they do not have a ps to do the explant and migration.>> My Dr.'s are appalled at the lack of care they can find me for this> procedure. The only ps they know personally actually suggested> reimplantation with more silicone implants since this was reconstruction> and I meet the criteria for silicone replacement. She would not be> addressing any of the migration. This is not a consideration in our> opinion. My Dr.'s will no longer be referring patients to that ps.>> I have two lymph issues: the axilla's full of silicone and the groin with> calcification.>> Also, any time a Lupus patient is undergoing surgery it complicatessurgery> and requires a VERY good physician / surgeon and usually in best case> scenarios an attending rheumy who is familiar with Lupus.>> I was not asking for a complete "charity" case - just a dr. who is> experienced in extracapsular silicone migration and lymph involvement who> could work with me for the "co.-pay" issue.>> I have been urged by many - including dr's - not to go to an inexperienced> ps. To go to one of the Dr.'s that are very familiar with explant of> silicone and polyurethane.> I understand the polyurethane are known to make people the sickest and are> the hardest to remove.>> There are innumerable surgeons in NY city and no doubt someone isqualified> - - but to the patient it is like finding a needle in a hay stack. I was> mutilated with my initial surgery and know first-hand how bad an> "inexperienced" surgeon can be - and I required 2 subsequent surgeries for> repair. Not to mention the emergency surgery for hematoma. And yes, I had> drains. A personal recommendation goes a long way. So, I am more scared> now based in my previous experience.>> I have already had 5 ps consults in NY (see below) after hundreds of phone> calls to no avail.>> Maybe what you say is true for an intracapsular rupture but an> extracapsular rupture with SILICONE clearly seen by ultrasound and MRI in> my chest outside of the capsule and in the axilla lymph's should not be> delayed this long. It is already 7 months since I have been working on> this. This is too long for my specific case and the progression is clearly> present on the new tests.>> I am inclined to believe that all insurance companies recognize spilt> silicone as "medically necessary." People may delay when they are either> "not aware" of their rupture or have intracapsular rupture only. I don't> know. But once a patient knows of extracapsular silicone rupture then only> bureaucratic / financial issues, or health would delay a person in> obtaining the necessary explant, I would think.>> OK with all that said....> I posted the other day in simply response to who has been a great> help and a good friend and support through all this. I decided to post on> the forum in hope that I could broaden the ideas that I may receive.>> Everyone keeps telling me "you need to get money and go to Dr. Feng or Dr.> Kolb ect." So, I thought I would post for help.>> Thank you for listening.>> No patient should ever find themselves in the position I find myself. I> speak not just for myself, but for all the rest of the woman who have and> will encounter this injustice.>> I am just beginning to understand the magnitude of this issue.>> Signed,> Another.....naive, trusting patient.>> J->> CONSULTS:>> I had already been on 5 ps consults in NY (after hundreds of calls) prior> to even agreeing to let a the begrudging original surgeon schedule me - to> no avail.>> 4 were totally out of the question. Only one was qualified but now tellsme> she "can not accommodate me as my case has progressed to much." She urged> my not to let my care go beyond Aug. Only underscoring my concerns.>> Samples of my experience are as follows:>> 1. How do we detect and remove the spilt silicone? Reply "we don't have> to. Silicone is not a problem. Pacemakers, hip replacement, et. are madeof> silicone. (not raw spilt gel) Suggestion/recommendation is that you> replace with more silicone since you have such a nice result. You can bein> the study.">> Note: I would have to be crazy and clearly they are not going to concern> themselves with removing the migrated silicone.>> 2. Not even concerned what type of implants I have (saline vs. silicone).> Tells me he will leave the capsule and scar tissue so it will serve to> "augment" me. Are we kidding here? Did not even look at the films.>> 3. Has done a total of 20 explants only 2 without replacement. 2 explants> only. I don't want to be only the 3rd - especially with the poly.>> 4. Rude - Rude - Rude has only done 20 explants total. Only 2 with a lift.> Did not even take a medical history. Did not look at the films. Clearlydid> not want the case.>> 5. Dr. Mentioned above whom states she cannot take the case now. Could> have, but not now because of the progression and time-frame.>> Oh yes and then there were my 2 general surgery consults.>> One tells me "no need to excise" silicone and did not investigate what> exactly was in the nodes.>> In the interim, I had my ultrasound after about 50 phone calls I found a> radiologist skilled to do silicone mapping w/ ultrasound.> Lymph Findings: silicone in axilla nodes and the groin is calcification..>> With that, the second general surgeon was the surgeon I WAS scheduled with> and he was going to operate with the original ps>> Thank you for reading this through.>>>>

[Guest guest]

Dr. Kolb, Which is exactly why I have suggested she apply for some funds to help her out. And the accounting dept at hospitals are always willing to work with individuals to set up payment plans. e ----- Original Message ----- From: Dr. Kolb Sent: Monday, September 02, 2002 6:00 PM Subject: RE: please read - Thank you e: Without her Medicaid, she will have to cover the 20% on the hospital which is significant. . -----Original Message-----From: e Rene [mailto:e_Rene@...]Sent: Monday, September 02, 2002 5:17 PM Subject: Re: please read - Thank you Does anyone not read my posts? I have agreed to help J as much as I can, including sending her a free ticket on AA to fly out to Denver, and Dr. Huang will accept her medicare, as will the hospital. If she can wait until early Nov, I will gladly let her stay with me and I can help take care of her post surgery. I feel that NO ONE has paid any attn to what I have offered her. She is pretty much set. It is now J's decision as to what she wants to do and when. I have also given her a website that does provide funds to people who need it. I have checked out the site myself, and read about it in People magazine. It is LEGIT! I have encouraged her to visit the site and apply for the funds. The most he gives is $1000, but that is still $1000 she didn't have before. And she doesn't have to give him any money---he just wants to verify the need, then will send you a check for the amt he approves. GOD---what more do I have to do to let you all know that I have offered this woman all that I can? Dr. Huang is willing to take on her case, and the rest is up to her. Most hospitals across the country take medicare, that is why they are JCAHO certified. If they don't take medicare, then they are not JCAHO certified and you probably don't want to go to them anyway, because they more than likely don't meet the stringent criteria JCAHO requires for certification. And the hospitals Dr. Huang uses are JCAHO certified. So, J, if you're reading this, you CAN go to any hospital you'd like as long as it is JCAHO certified. e ----- Original Message ----- From: Heer Sent: Monday, September 02, 2002 8:47 AM Subject: Re: please read - Thank you JI don't quite know what to say as I feel I have tried so hard to help youand if you feel the need to be a silent member of the group, that is up toyou. It is not my choice to make. I am so confused by the ins and outs ofall this medical insurance stuff that I don't know what to make of it. If infact your insurance is good in any state why can't you find a Dr who willoperate on you? This is my biggest question and maybe it is yours too.Honey I wish you the best I hope that you will find help, and that you canget the implants out of your body soon, no one should have to be in yoursituation no matter what and it is a shame that you cannot find a good ps orany ps that will work with you.I can only say that I wish you will reconsider your stance on not posting,this group is here for you if you so choose to use it and we all care andare wanting to give you support any way we can.'I am not doing well myself and am in pain 24 hours a day with my foot, ithas gotten so bad that my depression is bad and I am ready to try someantidepressants if this doesn't get better soon. THe tendon in my foot andheel is so inflammed that my only option may be to have it treated with theossa tron(eswt machine) which is $6,000 and not covered by insurance, sodespite getting rid of implants I am still suffering and once again lookingat spending tons of money to fix the problem. It sucks, I have been battlingpain for 4 years, it seems life is just not fair !----- Original Message -----From: "JHH7" <rogerlh@...>< >Sent: Sunday, September 01, 2002 7:02 PMSubject: please read - Thank you> Hi,>> Thank you for your time and reply. If I come across frustrated in this> post, it is with the medical situation.........>> Let me reiterate, then I am politely returning to a more silent member of> this forum.............> (as I have been for the last several months).>> My initial questions were:> 1) how does one meet the criteria for emergent explant????> 2) does anyone know a reputable surgeon in my area????> 3) or of any funds may be available to help me with the co-pay and travel> if I find a dr. out of state???>> 1st)> Medicare DOES NOT LIMIT YOU by State!!!!! I have PRIMARY insurance any> where in the US for any medical need - not just emergency care. I have> received non-emergent care in other states. Any out-of-state physician can> bill and accept Medicare!!!>> 2nd)> Most DR's either accept Medicaid CO-pay or waive that CO-pay for patients> with Medicaid as secondary insurance in most fields of medicine. It seems> to be different for plastic surgeons. It is the Medicaid secondary ins.> that presents a state to state billing problem for the co.-pay. There is> not a problem with my primary ins.>> Any surgeon who would work with me on the co.-pay issue which would be 20%> (that Medicaid would normally pay in my state but NOT PS) could have> stepped up and performed my surgery in entirety. I have the same CO-pay> problem in NY State as stated above.>> I was not told to simply start looking into explant arrangements. I was> told "YOU NEED SURGERY!!! It is SEVERELY impacting your health and> aggravating your medical condition. Silicone should not be spilt in your> body and it will only get worse!" by 2 radiologist and several dr's. I> was further told they will try not to "chop you to pieces but you need to> get as much of the migration out as humanly possible">> When you are told that you could have lymphoma, it is not a light> conversation. The dr. has a genuine concern and wants this done ASAP. Itis> not a stretch for ins. purposes but for my health and life. I was suppose> to have surgery in July and waited for that but it was canceled because I> was too sick with a respiratory infection.>> You do not biopsy calcifications of this kind ever or aspirate this typeof> calcification. Nodes with this problem must be removed whole. Otherwiseyou> jeopardize your health even further. They are removed in entirety under> general anesthesia in a Hospital. I don't know about other problems, as I> can only speak about the specific calcifications I have - which are very> deep and hard like a rock in the lymph nodes.>> It is not "I" who states the lymph's should be done simultaneously but> rather my pc, rheumy, and the general surgeon I have consulted with. I> have Dr's who are advising me that I would be crazy to undergo general> anesthesia twice. Especially, since it is high risk with my general> medical problems. With all do respect, my understanding is that removing> lymph nodes is first year surgery and most dr.'s can do this no problem.> This is a non issue. It is only an issue of time being of the essence.>> It is finding a ps to do the explant and address the migration of silicone> that has been problematic. I have a general surgeon willing to do the> nodes, but they do not have a ps to do the explant and migration.>> My Dr.'s are appalled at the lack of care they can find me for this> procedure. The only ps they know personally actually suggested> reimplantation with more silicone implants since this was reconstruction> and I meet the criteria for silicone replacement. She would not be> addressing any of the migration. This is not a consideration in our> opinion. My Dr.'s will no longer be referring patients to that ps.>> I have two lymph issues: the axilla's full of silicone and the groin with> calcification.>> Also, any time a Lupus patient is undergoing surgery it complicatessurgery> and requires a VERY good physician / surgeon and usually in best case> scenarios an attending rheumy who is familiar with Lupus.>> I was not asking for a complete "charity" case - just a dr. who is> experienced in extracapsular silicone migration and lymph involvement who> could work with me for the "co.-pay" issue.>> I have been urged by many - including dr's - not to go to an inexperienced> ps. To go to one of the Dr.'s that are very familiar with explant of> silicone and polyurethane.> I understand the polyurethane are known to make people the sickest and are> the hardest to remove.>> There are innumerable surgeons in NY city and no doubt someone isqualified> - - but to the patient it is like finding a needle in a hay stack. I was> mutilated with my initial surgery and know first-hand how bad an> "inexperienced" surgeon can be - and I required 2 subsequent surgeries for> repair. Not to mention the emergency surgery for hematoma. And yes, I had> drains. A personal recommendation goes a long way. So, I am more scared> now based in my previous experience.>> I have already had 5 ps consults in NY (see below) after hundreds of phone> calls to no avail.>> Maybe what you say is true for an intracapsular rupture but an> extracapsular rupture with SILICONE clearly seen by ultrasound and MRI in> my chest outside of the capsule and in the axilla lymph's should not be> delayed this long. It is already 7 months since I have been working on> this. This is too long for my specific case and the progression is clearly> present on the new tests.>> I am inclined to believe that all insurance companies recognize spilt> silicone as "medically necessary." People may delay when they are either> "not aware" of their rupture or have intracapsular rupture only. I don't> know. But once a patient knows of extracapsular silicone rupture then only> bureaucratic / financial issues, or health would delay a person in> obtaining the necessary explant, I would think.>> OK with all that said....> I posted the other day in simply response to who has been a great> help and a good friend and support through all this. I decided to post on> the forum in hope that I could broaden the ideas that I may receive.>> Everyone keeps telling me "you need to get money and go to Dr. Feng or Dr.> Kolb ect." So, I thought I would post for help.>> Thank you for listening.>> No patient should ever find themselves in the position I find myself. I> speak not just for myself, but for all the rest of the woman who have and> will encounter this injustice.>> I am just beginning to understand the magnitude of this issue.>> Signed,> Another.....naive, trusting patient.>> J->> CONSULTS:>> I had already been on 5 ps consults in NY (after hundreds of calls) prior> to even agreeing to let a the begrudging original surgeon schedule me - to> no avail.>> 4 were totally out of the question. Only one was qualified but now tellsme> she "can not accommodate me as my case has progressed to much." She urged> my not to let my care go beyond Aug. Only underscoring my concerns.>> Samples of my experience are as follows:>> 1. How do we detect and remove the spilt silicone? Reply "we don't have> to. Silicone is not a problem. Pacemakers, hip replacement, et. are madeof> silicone. (not raw spilt gel) Suggestion/recommendation is that you> replace with more silicone since you have such a nice result. You can bein> the study.">> Note: I would have to be crazy and clearly they are not going to concern> themselves with removing the migrated silicone.>> 2. Not even concerned what type of implants I have (saline vs. silicone).> Tells me he will leave the capsule and scar tissue so it will serve to> "augment" me. Are we kidding here? Did not even look at the films.>> 3. Has done a total of 20 explants only 2 without replacement. 2 explants> only. I don't want to be only the 3rd - especially with the poly.>> 4. Rude - Rude - Rude has only done 20 explants total. Only 2 with a lift.> Did not even take a medical history. Did not look at the films. Clearlydid> not want the case.>> 5. Dr. Mentioned above whom states she cannot take the case now. Could> have, but not now because of the progression and time-frame.>> Oh yes and then there were my 2 general surgery consults.>> One tells me "no need to excise" silicone and did not investigate what> exactly was in the nodes.>> In the interim, I had my ultrasound after about 50 phone calls I found a> radiologist skilled to do silicone mapping w/ ultrasound.> Lymph Findings: silicone in axilla nodes and the groin is calcification..>> With that, the second general surgeon was the surgeon I WAS scheduled with> and he was going to operate with the original ps>> Thank you for reading this through.>>>>

[Guest guest]

Yes e I read your post and I think I told you that I thought it was a great idea, why are you seeming so angry? If I am not mistaken your post did not say that Huang was going to do the surgery for sure it said you were checking things out. Also J seems to be the one that still thinks she has no alternatives.

Why the attitude anyhow, I think I have said it several times that I was appreciative.

Geeze sometimes I have posts where I say something like how bad my pain is and not one person says they are sorry or anything, I sure don't get angry.

Ya know sometimes this site while I love it, can become a major stressor in my life. I feel too like no one freaking gives a shit about me sometimes

----- Original Message -----

From: e Rene

Sent: Monday, September 02, 2002 3:16 PM

Subject: Re: please read - Thank you

Does anyone not read my posts? I have agreed to help J as much as I can, including sending her a free ticket on AA to fly out to Denver, and Dr. Huang will accept her medicare, as will the hospital. If she can wait until early Nov, I will gladly let her stay with me and I can help take care of her post surgery.

I feel that NO ONE has paid any attn to what I have offered her. She is pretty much set. It is now J's decision as to what she wants to do and when. I have also given her a website that does provide funds to people who need it. I have checked out the site myself, and read about it in People magazine. It is LEGIT! I have encouraged her to visit the site and apply for the funds. The most he gives is $1000, but that is still $1000 she didn't have before. And she doesn't have to give him any money---he just wants to verify the need, then will send you a check for the amt he approves.

GOD---what more do I have to do to let you all know that I have offered this woman all that I can? Dr. Huang is willing to take on her case, and the rest is up to her. Most hospitals across the country take medicare, that is why they are JCAHO certified. If they don't take medicare, then they are not JCAHO certified and you probably don't want to go to them anyway, because they more than likely don't meet the stringent criteria JCAHO requires for certification. And the hospitals Dr. Huang uses are JCAHO certified.

So, J, if you're reading this, you CAN go to any hospital you'd like as long as it is JCAHO certified.

e

----- Original Message -----

From: Heer

Sent: Monday, September 02, 2002 8:47 AM

Subject: Re: please read - Thank you

JI don't quite know what to say as I feel I have tried so hard to help youand if you feel the need to be a silent member of the group, that is up toyou. It is not my choice to make. I am so confused by the ins and outs ofall this medical insurance stuff that I don't know what to make of it. If infact your insurance is good in any state why can't you find a Dr who willoperate on you? This is my biggest question and maybe it is yours too.Honey I wish you the best I hope that you will find help, and that you canget the implants out of your body soon, no one should have to be in yoursituation no matter what and it is a shame that you cannot find a good ps orany ps that will work with you.I can only say that I wish you will reconsider your stance on not posting,this group is here for you if you so choose to use it and we all care andare wanting to give you support any way we can.'I am not doing well myself and am in pain 24 hours a day with my foot, ithas gotten so bad that my depression is bad and I am ready to try someantidepressants if this doesn't get better soon. THe tendon in my foot andheel is so inflammed that my only option may be to have it treated with theossa tron(eswt machine) which is $6,000 and not covered by insurance, sodespite getting rid of implants I am still suffering and once again lookingat spending tons of money to fix the problem. It sucks, I have been battlingpain for 4 years, it seems life is just not fair !----- Original Message -----From: "JHH7" <rogerlh@...>< >Sent: Sunday, September 01, 2002 7:02 PMSubject: please read - Thank you> Hi,>> Thank you for your time and reply. If I come across frustrated in this> post, it is with the medical situation.........>> Let me reiterate, then I am politely returning to a more silent member of> this forum.............> (as I have been for the last several months).>> My initial questions were:> 1) how does one meet the criteria for emergent explant????> 2) does anyone know a reputable surgeon in my area????> 3) or of any funds may be available to help me with the co-pay and travel> if I find a dr. out of state???>> 1st)> Medicare DOES NOT LIMIT YOU by State!!!!! I have PRIMARY insurance any> where in the US for any medical need - not just emergency care. I have> received non-emergent care in other states. Any out-of-state physician can> bill and accept Medicare!!!>> 2nd)> Most DR's either accept Medicaid CO-pay or waive that CO-pay for patients> with Medicaid as secondary insurance in most fields of medicine. It seems> to be different for plastic surgeons. It is the Medicaid secondary ins.> that presents a state to state billing problem for the co.-pay. There is> not a problem with my primary ins.>> Any surgeon who would work with me on the co.-pay issue which would be 20%> (that Medicaid would normally pay in my state but NOT PS) could have> stepped up and performed my surgery in entirety. I have the same CO-pay> problem in NY State as stated above.>> I was not told to simply start looking into explant arrangements. I was> told "YOU NEED SURGERY!!! It is SEVERELY impacting your health and> aggravating your medical condition. Silicone should not be spilt in your> body and it will only get worse!" by 2 radiologist and several dr's. I> was further told they will try not to "chop you to pieces but you need to> get as much of the migration out as humanly possible">> When you are told that you could have lymphoma, it is not a light> conversation. The dr. has a genuine concern and wants this done ASAP. Itis> not a stretch for ins. purposes but for my health and life. I was suppose> to have surgery in July and waited for that but it was canceled because I> was too sick with a respiratory infection.>> You do not biopsy calcifications of this kind ever or aspirate this typeof> calcification. Nodes with this problem must be removed whole. Otherwiseyou> jeopardize your health even further. They are removed in entirety under> general anesthesia in a Hospital. I don't know about other problems, as I> can only speak about the specific calcifications I have - which are very> deep and hard like a rock in the lymph nodes.>> It is not "I" who states the lymph's should be done simultaneously but> rather my pc, rheumy, and the general surgeon I have consulted with. I> have Dr's who are advising me that I would be crazy to undergo general> anesthesia twice. Especially, since it is high risk with my general> medical problems. With all do respect, my understanding is that removing> lymph nodes is first year surgery and most dr.'s can do this no problem.> This is a non issue. It is only an issue of time being of the essence.>> It is finding a ps to do the explant and address the migration of silicone> that has been problematic. I have a general surgeon willing to do the> nodes, but they do not have a ps to do the explant and migration.>> My Dr.'s are appalled at the lack of care they can find me for this> procedure. The only ps they know personally actually suggested> reimplantation with more silicone implants since this was reconstruction> and I meet the criteria for silicone replacement. She would not be> addressing any of the migration. This is not a consideration in our> opinion. My Dr.'s will no longer be referring patients to that ps.>> I have two lymph issues: the axilla's full of silicone and the groin with> calcification.>> Also, any time a Lupus patient is undergoing surgery it complicatessurgery> and requires a VERY good physician / surgeon and usually in best case> scenarios an attending rheumy who is familiar with Lupus.>> I was not asking for a complete "charity" case - just a dr. who is> experienced in extracapsular silicone migration and lymph involvement who> could work with me for the "co.-pay" issue.>> I have been urged by many - including dr's - not to go to an inexperienced> ps. To go to one of the Dr.'s that are very familiar with explant of> silicone and polyurethane.> I understand the polyurethane are known to make people the sickest and are> the hardest to remove.>> There are innumerable surgeons in NY city and no doubt someone isqualified> - - but to the patient it is like finding a needle in a hay stack. I was> mutilated with my initial surgery and know first-hand how bad an> "inexperienced" surgeon can be - and I required 2 subsequent surgeries for> repair. Not to mention the emergency surgery for hematoma. And yes, I had> drains. A personal recommendation goes a long way. So, I am more scared> now based in my previous experience.>> I have already had 5 ps consults in NY (see below) after hundreds of phone> calls to no avail.>> Maybe what you say is true for an intracapsular rupture but an> extracapsular rupture with SILICONE clearly seen by ultrasound and MRI in> my chest outside of the capsule and in the axilla lymph's should not be> delayed this long. It is already 7 months since I have been working on> this. This is too long for my specific case and the progression is clearly> present on the new tests.>> I am inclined to believe that all insurance companies recognize spilt> silicone as "medically necessary." People may delay when they are either> "not aware" of their rupture or have intracapsular rupture only. I don't> know. But once a patient knows of extracapsular silicone rupture then only> bureaucratic / financial issues, or health would delay a person in> obtaining the necessary explant, I would think.>> OK with all that said....> I posted the other day in simply response to who has been a great> help and a good friend and support through all this. I decided to post on> the forum in hope that I could broaden the ideas that I may receive.>> Everyone keeps telling me "you need to get money and go to Dr. Feng or Dr.> Kolb ect." So, I thought I would post for help.>> Thank you for listening.>> No patient should ever find themselves in the position I find myself. I> speak not just for myself, but for all the rest of the woman who have and> will encounter this injustice.>> I am just beginning to understand the magnitude of this issue.>> Signed,> Another.....naive, trusting patient.>> J->> CONSULTS:>> I had already been on 5 ps consults in NY (after hundreds of calls) prior> to even agreeing to let a the begrudging original surgeon schedule me - to> no avail.>> 4 were totally out of the question. Only one was qualified but now tellsme> she "can not accommodate me as my case has progressed to much." She urged> my not to let my care go beyond Aug. Only underscoring my concerns.>> Samples of my experience are as follows:>> 1. How do we detect and remove the spilt silicone? Reply "we don't have> to. Silicone is not a problem. Pacemakers, hip replacement, et. are madeof> silicone. (not raw spilt gel) Suggestion/recommendation is that you> replace with more silicone since you have such a nice result. You can bein> the study.">> Note: I would have to be crazy and clearly they are not going to concern> themselves with removing the migrated silicone.>> 2. Not even concerned what type of implants I have (saline vs. silicone).> Tells me he will leave the capsule and scar tissue so it will serve to> "augment" me. Are we kidding here? Did not even look at the films.>> 3. Has done a total of 20 explants only 2 without replacement. 2 explants> only. I don't want to be only the 3rd - especially with the poly.>> 4. Rude - Rude - Rude has only done 20 explants total. Only 2 with a lift.> Did not even take a medical history. Did not look at the films. Clearlydid> not want the case.>> 5. Dr. Mentioned above whom states she cannot take the case now. Could> have, but not now because of the progression and time-frame.>> Oh yes and then there were my 2 general surgery consults.>> One tells me "no need to excise" silicone and did not investigate what> exactly was in the nodes.>> In the interim, I had my ultrasound after about 50 phone calls I found a> radiologist skilled to do silicone mapping w/ ultrasound.> Lymph Findings: silicone in axilla nodes and the groin is calcification..>> With that, the second general surgeon was the surgeon I WAS scheduled with> and he was going to operate with the original ps>> Thank you for reading this through.>>>>

[Guest guest]

Well If I had a PS within a 1,000 miles of me that was worth anything I would have no problems helping someone out, seeing as how I live in Idaho I don't think that is a possibility. I have been trying to help J now for several months but nothing has worked out. I am not sure why but if these other Dr's didn't work out, I would be curious to know what magic Huang is able to perform that no one else including Dr Kolb has been able to do?

I am not feeling well and this whole thing is making my head spin so I think I will just turn off my computer for now and go to bed.

I think that it is great that e can do these things and pray for J that it will all work out.

----- Original Message -----

From: ~*Patty*~

Sent: Monday, September 02, 2002 3:28 PM

Subject: Re: please read - Thank you

Hi e,

I have read your posts and I think it is wonderful and very kind and generous of you to offer all the help that you have. It is more than most of us have done for others in this kind of situation.

I hope that this will work out for "J". At this point, it is all up to her and I do hope that she takes advantage of this offer of assistance. I know I would be more than grateful...sometimes the hoops seem very daunting.

Again, thanks for all you are doing.

Patty

----- Original Message -----

From: e Rene

Sent: Monday, September 02, 2002 2:16 PM

Subject: Re: please read - Thank you

Does anyone not read my posts? I have agreed to help J as much as I can, including sending her a free ticket on AA to fly out to Denver, and Dr. Huang will accept her medicare, as will the hospital. If she can wait until early Nov, I will gladly let her stay with me and I can help take care of her post surgery.

I feel that NO ONE has paid any attn to what I have offered her. She is pretty much set. It is now J's decision as to what she wants to do and when. I have also given her a website that does provide funds to people who need it. I have checked out the site myself, and read about it in People magazine. It is LEGIT! I have encouraged her to visit the site and apply for the funds. The most he gives is $1000, but that is still $1000 she didn't have before. And she doesn't have to give him any money---he just wants to verify the need, then will send you a check for the amt he approves.

GOD---what more do I have to do to let you all know that I have offered this woman all that I can? Dr. Huang is willing to take on her case, and the rest is up to her. Most hospitals across the country take medicare, that is why they are JCAHO certified. If they don't take medicare, then they are not JCAHO certified and you probably don't want to go to them anyway, because they more than likely don't meet the stringent criteria JCAHO requires for certification. And the hospitals Dr. Huang uses are JCAHO certified.

So, J, if you're reading this, you CAN go to any hospital you'd like as long as it is JCAHO certified.

e

[Guest guest]

Hi e

I have been reading your posts and feel that what you are doing for J

is extremely generous. It's heartwarming to know that there are

people like you out there willing to help someone you don't even

know.

Also your other posts that have not involved helping J are always

informative and interesting. I think you're a major asset to this

group and would be sorely missed if you stopped posting.

I don't post much because I feel I don't have anything worthwhile to

share......you girls cover things beautifully! You are all so

intelligent!

Also I have to say that I WISH I had some of your hot weather over

here (In Australia), I love summer, maybe we could trade places this

time of the year...LOL!

Keli.

> Does anyone not read my posts? I have agreed to help J as much as

I can, including sending her a free ticket on AA to fly out to

Denver, and Dr. Huang will accept her medicare, as will the

hospital. If she can wait until early Nov, I will gladly let her

stay with me and I can help take care of her post surgery.

>

> I feel that NO ONE has paid any attn to what I have offered her.

She is pretty much set. It is now J's decision as to what she wants

to do and when. I have also given her a website that does provide

funds to people who need it. I have checked out the site myself, and

read about it in People magazine. It is LEGIT! I have encouraged

her to visit the site and apply for the funds. The most he gives is

$1000, but that is still $1000 she didn't have before. And she

doesn't have to give him any money---he just wants to verify the

need, then will send you a check for the amt he approves.

>

> GOD---what more do I have to do to let you all know that I have

offered this woman all that I can? Dr. Huang is willing to take on

her case, and the rest is up to her. Most hospitals across the

country take medicare, that is why they are JCAHO certified. If they

don't take medicare, then they are not JCAHO certified and you

probably don't want to go to them anyway, because they more than

likely don't meet the stringent criteria JCAHO requires for

certification. And the hospitals Dr. Huang uses are JCAHO certified.

>

> So, J, if you're reading this, you CAN go to any hospital you'd

like as long as it is JCAHO certified.

>

> e

>

> ----- Original Message -----

> From: Heer

> Sent: Monday, September 02, 2002 8:47 AM

> @y...

> Subject: Re: please read - Thank you

>

> J

>

> I don't quite know what to say as I feel I have tried so hard to

help you

> and if you feel the need to be a silent member of the group, that

is up to

> you. It is not my choice to make. I am so confused by the ins and

outs of

> all this medical insurance stuff that I don't know what to make of

it. If in

> fact your insurance is good in any state why can't you find a Dr

who will

> operate on you? This is my biggest question and maybe it is yours

too.

>

> Honey I wish you the best I hope that you will find help, and that

you can

> get the implants out of your body soon, no one should have to be in

your

> situation no matter what and it is a shame that you cannot find a

good ps or

> any ps that will work with you.

>

> I can only say that I wish you will reconsider your stance on not

posting,

> this group is here for you if you so choose to use it and we all

care and

> are wanting to give you support any way we can.'

>

> I am not doing well myself and am in pain 24 hours a day with my

foot, it

> has gotten so bad that my depression is bad and I am ready to try

some

> antidepressants if this doesn't get better soon. THe tendon in my

foot and

> heel is so inflammed that my only option may be to have it treated

with the

> ossa tron(eswt machine) which is $6,000 and not covered by

insurance, so

> despite getting rid of implants I am still suffering and once again

looking

> at spending tons of money to fix the problem. It sucks, I have been

battling

> pain for 4 years, it seems life is just not fair !

> ----- Original Message -----

> From: " JHH7 " <rogerlh@p...>

> < @y...>

> Sent: Sunday, September 01, 2002 7:02 PM

> Subject: please read - Thank you

>

>

> > Hi,

> >

> > Thank you for your time and reply. If I come across frustrated in

this

> > post, it is with the medical situation.........

> >

> > Let me reiterate, then I am politely returning to a more silent

member of

> > this forum.............

> > (as I have been for the last several months).

> >

> > My initial questions were:

> > 1) how does one meet the criteria for emergent explant????

> > 2) does anyone know a reputable surgeon in my area????

> > 3) or of any funds may be available to help me with the co-pay

and travel

> > if I find a dr. out of state???

> >

> > 1st)

> > Medicare DOES NOT LIMIT YOU by State!!!!! I have PRIMARY

insurance any

> > where in the US for any medical need - not just emergency care.

I have

> > received non-emergent care in other states. Any out-of-state

physician can

> > bill and accept Medicare!!!

> >

> > 2nd)

> > Most DR's either accept Medicaid CO-pay or waive that CO-pay for

patients

> > with Medicaid as secondary insurance in most fields of medicine.

It seems

> > to be different for plastic surgeons. It is the Medicaid

secondary ins.

> > that presents a state to state billing problem for the co.-pay.

There is

> > not a problem with my primary ins.

> >

> > Any surgeon who would work with me on the co.-pay issue which

would be 20%

> > (that Medicaid would normally pay in my state but NOT PS) could

have

> > stepped up and performed my surgery in entirety. I have the same

CO-pay

> > problem in NY State as stated above.

> >

> > I was not told to simply start looking into explant arrangements.

I was

> > told " YOU NEED SURGERY!!! It is SEVERELY impacting your health and

> > aggravating your medical condition. Silicone should not be spilt

in your

> > body and it will only get worse! " by 2 radiologist and several

dr's. I

> > was further told they will try not to " chop you to pieces but you

need to

> > get as much of the migration out as humanly possible "

> >

> > When you are told that you could have lymphoma, it is not a light

> > conversation. The dr. has a genuine concern and wants this done

ASAP. It

> is

> > not a stretch for ins. purposes but for my health and life. I was

suppose

> > to have surgery in July and waited for that but it was canceled

because I

> > was too sick with a respiratory infection.

> >

> > You do not biopsy calcifications of this kind ever or aspirate

this type

> of

> > calcification. Nodes with this problem must be removed whole.

Otherwise

> you

> > jeopardize your health even further. They are removed in entirety

under

> > general anesthesia in a Hospital. I don't know about other

problems, as I

> > can only speak about the specific calcifications I have - which

are very

> > deep and hard like a rock in the lymph nodes.

> >

> > It is not " I " who states the lymph's should be done

simultaneously but

> > rather my pc, rheumy, and the general surgeon I have consulted

with. I

> > have Dr's who are advising me that I would be crazy to undergo

general

> > anesthesia twice. Especially, since it is high risk with my

general

> > medical problems. With all do respect, my understanding is that

removing

> > lymph nodes is first year surgery and most dr.'s can do this no

problem.

> > This is a non issue. It is only an issue of time being of the

essence.

> >

> > It is finding a ps to do the explant and address the migration of

silicone

> > that has been problematic. I have a general surgeon willing to do

the

> > nodes, but they do not have a ps to do the explant and migration.

> >

> > My Dr.'s are appalled at the lack of care they can find me for

this

> > procedure. The only ps they know personally actually suggested

> > reimplantation with more silicone implants since this was

reconstruction

> > and I meet the criteria for silicone replacement. She would not be

> > addressing any of the migration. This is not a consideration in

our

> > opinion. My Dr.'s will no longer be referring patients to that ps.

> >

> > I have two lymph issues: the axilla's full of silicone and the

groin with

> > calcification.

> >

> > Also, any time a Lupus patient is undergoing surgery it

complicates

> surgery

> > and requires a VERY good physician / surgeon and usually in best

case

> > scenarios an attending rheumy who is familiar with Lupus.

> >

> > I was not asking for a complete " charity " case - just a dr. who is

> > experienced in extracapsular silicone migration and lymph

involvement who

> > could work with me for the " co.-pay " issue.

> >

> > I have been urged by many - including dr's - not to go to an

inexperienced

> > ps. To go to one of the Dr.'s that are very familiar with explant

of

> > silicone and polyurethane.

> > I understand the polyurethane are known to make people the

sickest and are

> > the hardest to remove.

> >

> > There are innumerable surgeons in NY city and no doubt someone is

> qualified

> > - - but to the patient it is like finding a needle in a hay

stack. I was

> > mutilated with my initial surgery and know first-hand how bad an

> > " inexperienced " surgeon can be - and I required 2 subsequent

surgeries for

> > repair. Not to mention the emergency surgery for hematoma. And

yes, I had

> > drains. A personal recommendation goes a long way. So, I am more

scared

> > now based in my previous experience.

> >

> > I have already had 5 ps consults in NY (see below) after hundreds

of phone

> > calls to no avail.

> >

> > Maybe what you say is true for an intracapsular rupture but an

> > extracapsular rupture with SILICONE clearly seen by ultrasound

and MRI in

> > my chest outside of the capsule and in the axilla lymph's should

not be

> > delayed this long. It is already 7 months since I have been

working on

> > this. This is too long for my specific case and the progression

is clearly

> > present on the new tests.

> >

> > I am inclined to believe that all insurance companies recognize

spilt

> > silicone as " medically necessary. " People may delay when they

are either

> > " not aware " of their rupture or have intracapsular rupture only.

I don't

> > know. But once a patient knows of extracapsular silicone rupture

then only

> > bureaucratic / financial issues, or health would delay a person in

> > obtaining the necessary explant, I would think.

> >

> > OK with all that said....

> > I posted the other day in simply response to who has been

a great

> > help and a good friend and support through all this. I decided to

post on

> > the forum in hope that I could broaden the ideas that I may

receive.

> >

> > Everyone keeps telling me " you need to get money and go to Dr.

Feng or Dr.

> > Kolb ect. " So, I thought I would post for help.

> >

> > Thank you for listening.

> >

> > No patient should ever find themselves in the position I find

myself. I

> > speak not just for myself, but for all the rest of the woman who

have and

> > will encounter this injustice.

> >

> > I am just beginning to understand the magnitude of this issue.

> >

> > Signed,

> > Another.....naive, trusting patient.

> >

> > J-

> >

> > CONSULTS:

> >

> > I had already been on 5 ps consults in NY (after hundreds of

calls) prior

> > to even agreeing to let a the begrudging original surgeon

schedule me - to

> > no avail.

> >

> > 4 were totally out of the question. Only one was qualified but

now tells

> me

> > she " can not accommodate me as my case has progressed to much. "

She urged

> > my not to let my care go beyond Aug. Only underscoring my

concerns.

> >

> > Samples of my experience are as follows:

> >

> > 1. How do we detect and remove the spilt silicone? Reply " we

don't have

> > to. Silicone is not a problem. Pacemakers, hip replacement, et.

are made

> of

> > silicone. (not raw spilt gel) Suggestion/recommendation is that

you

> > replace with more silicone since you have such a nice result. You

can be

> in

> > the study. "

> >

> > Note: I would have to be crazy and clearly they are not going to

concern

> > themselves with removing the migrated silicone.

> >

> > 2. Not even concerned what type of implants I have (saline vs.

silicone).

> > Tells me he will leave the capsule and scar tissue so it will

serve to

> > " augment " me. Are we kidding here? Did not even look at the films.

> >

> > 3. Has done a total of 20 explants only 2 without replacement. 2

explants

> > only. I don't want to be only the 3rd - especially with the poly.

> >

> > 4. Rude - Rude - Rude has only done 20 explants total. Only 2

with a lift.

> > Did not even take a medical history. Did not look at the films.

Clearly

> did

> > not want the case.

> >

> > 5. Dr. Mentioned above whom states she cannot take the case now.

Could

> > have, but not now because of the progression and time-frame.

> >

> > Oh yes and then there were my 2 general surgery consults.

> >

> > One tells me " no need to excise " silicone and did not investigate

what

> > exactly was in the nodes.

> >

> > In the interim, I had my ultrasound after about 50 phone calls I

found a

> > radiologist skilled to do silicone mapping w/ ultrasound.

> > Lymph Findings: silicone in axilla nodes and the groin is

calcification..

> >

> > With that, the second general surgeon was the surgeon I WAS

scheduled with

> > and he was going to operate with the original ps

> >

> > Thank you for reading this through.

> >

> >

> >

> >

[Guest guest]

Hi Patty,

Ditto & Amen!

MM

Martha Murdock, DirectorNational Silicone Implant Foundation | Dallas Headquarters"Supporting Survivors of Medical Implant Devices"4416 Willow LaneDallas, TX 75244-7537

----- Original Message -----

From: ~*Patty*~

Sent: Monday, September 02, 2002 7:27 PM

Subject: Re: please read - Thank you

e,

At one time I, too, was very passionate about certain things and wanted to share my viewpoint all the time. That was not that long ago.

However, I learned that I was burning myself out very easily and taking some things too personally and decided the best thing to do was for me to step back and relax and look at life through another window. It was the best thing I could have done. I realized that I cannot save women from making mistakes with their lives when it comes to implants. The best that I can do is to share what I know and pray that it will be effective, and then let it go at that. It is such a blessing to hear when women make a choice that is for the best for their health (which in my opinion is to forego implants entirely if considering implants, and deciding to remove them if already implanted). I can only hope that what I say is taking root.

However, I also realize that sometimes whatever I do is just not enough. No matter what I say or what I do, some women are either not going to hear, not going to listen, or just plain ignore me. That's Okay with me. All I can do is share what I know, and leave the rest up to God.

Once again, thanks for your information and your dedication to helping others. It is appreciated. Have a great evening.

Love,

Patty

----- Original Message -----

From: e Rene

Sent: Monday, September 02, 2002 3:23 PM

Subject: Re: please read - Thank you

Patty,

Thank you for awknowledging my post. Sometimes I feel that I provide information, help, and support, and no one recognizes it. Sometimes I read posts after mine that indicate that person either didn't receive my post, or simply didn't read it. And then it makes me feel that what I do offer to this group is either taken for granted or not wanted or needed. And if what I have to offer is not wanted or needed, then I will no longer be a member of this group.

I do know that I can be overbearing at times, because I am very outspoken. I don't hesitate to speak my feelings or thoughts, and when someone posts incorrect information, or someone asks for help, or someone states their opinion, you better believe I'm going to respond with my own info/opinion/suggestions. I don't shy away from conflict. In fact, I love to debate. And no one--absolutely no one, will ever sc are me away, threaten me away, or otherwise. Because if they do, I've got a mouthful for them. And as you've all probably noticed, I'm very bull-headed. I'm the one who is always nominated to be the speaker for a group; I'm the one who always questions people and their ideas; I'm the one who will be the first to agree or disagree. How I got to be that way; I don't know, because up until I became a nurse, I was always very shy, and steered away from conflict and public speaking. Now I'm the exact opposite. Maybe too much so.

At any rate, because of what I mentioned above, I feel that people simply just don't listen to me anymore. That they delete my posts without even glancing at them. I try to provide as much medical info as I can for the women in this group. I want them to have the power of knowledge, and I want them to be empowered, hence my strong views on cert ain things. What I don't do (or try not to do) is to tell someone what to do. When it comes to medicine, only a MD can tell someone what they should do. I can recommend and suggest, but to tell people what they should do is not ethically correct. Providing medical info to the group without having the formal knowledge or training is questionable." Some of us have more knowledge in certain areas than others. For instance, you, Patty, and Bonnie, have way more knowledge than I do about holistic medicine, although I'm learning. But without you, I would be clueless. However, I would not post info to someone about a certain aspect of holistic medicine if I didn't know.

On the other hand, I have lots more knowledge about meds, surgical procedures, medical research, the insurance industry (worked in it for yrs), and the legal aspect of medicine than most others & nbs p;in this group. And I hope that you all are learning something from me. When I shoot out a post after someone has posted something, it is because it is incorrect or lacking facts. I strongly feel that women who provide medical information to this group without having formal knowledge or training, or having gone through it themselves, is practicing medicine without a license. And that bothers me because it is providing incorrect info to women who desperately need correct info.

At any rate, because of my "outspoken posts", I get the impression that people probably roll their eyes when they see a post from me, and as a result, don't get the message I'm trying to convey. I'm not trying to belittle anyone or create tension, I'm simply trying to make a point, and unfortunately, because of my involvement in the implant issue, I can become very passionate about it. And I also become angry when people spurt out medical info that is incorrect and/or they tell someone to do something (medically related). Giving medical advice is a no-no--only docs can do that. And we all need to be careful when we discuss medical issues. We can provide info, suggest, and recommend, but giving medical advice is really practicing medicine without a license.

So, for those reasons above, that is why I asked if anyone had read my posts in regards to J as someone posted something which to me, indicated that what I have offered to J was not noticed. And I feel that this happens more often than not. I feel like I can provide some medical info to someone who has requested it, then later, someone posts something which is exactly what I posted, and the rest of the group acts as if what I posted never existed. It really is very frustrating.

Anyway, that's it. I'm also in a bad mood today because I just want summer to end. I hate summer and the heat, especially in this godforsaken place where it's 300 degrees outside. And I want to be back in Denver, and Nov seems so far away........

e

[Guest guest]

Keli, I would GLADLY trade places with you this time of year! Even in Denver, the temps are in the high 90's-100+, and it can be overbearing. But here in Tucson, it is unbelieivably miserable. I'm sure you have areas in Australia that are like this. But I am someone who loves cooler and cold weather, and would rather put on a heavy wool sweater than shorts and a tank!! I live for fall and winter, and love my Sundays, when football is on, and I can pull on sweats, sweatshirt, drink my coffee, read my newspaper, and get into football. To me, football is one of the happiest times of my life as is hockey! And then of course I am a die hard skier (although I don't know how much skiing I will be doing this yr, or in the yrs to come because of my neck). Hey, anytime you want to switch, just let me know and we can swap apts or homes for a few months during my summer, your winter. e ----- Original Message ----- From: kelijaye Sent: Monday, September 02, 2002 8:07 PM Subject: Re: please read - Thank you Hi eI have been reading your posts and feel that what you are doing for J is extremely generous. It's heartwarming to know that there are people like you out there willing to help someone you don't even know. Also your other posts that have not involved helping J are always informative and interesting. I think you're a major asset to this group and would be sorely missed if you stopped posting. I don't post much because I feel I don't have anything worthwhile to share......you girls cover things beautifully! You are all so intelligent! Also I have to say that I WISH I had some of your hot weather over here (In Australia), I love summer, maybe we could trade places this time of the year...LOL!Keli.> Does anyone not read my posts? I have agreed to help J as much as I can, including sending her a free ticket on AA to fly out to Denver, and Dr. Huang will accept her medicare, as will the hospital. If she can wait until early Nov, I will gladly let her stay with me and I can help take care of her post surgery. > > I feel that NO ONE has paid any attn to what I have offered her. She is pretty much set. It is now J's decision as to what she wants to do and when. I have also given her a website that does provide funds to people who need it. I have checked out the site myself, and read about it in People magazine. It is LEGIT! I have encouraged her to visit the site and apply for the funds. The most he gives is $1000, but that is still $1000 she didn't have before. And she doesn't have to give him any money---he just wants to verify the need, then will send you a check for the amt he approves.> > GOD---what more do I have to do to let you all know that I have offered this woman all that I can? Dr. Huang is willing to take on her case, and the rest is up to her. Most hospitals across the country take medicare, that is why they are JCAHO certified. If they don't take medicare, then they are not JCAHO certified and you probably don't want to go to them anyway, because they more than likely don't meet the stringent criteria JCAHO requires for certification. And the hospitals Dr. Huang uses are JCAHO certified.> > So, J, if you're reading this, you CAN go to any hospital you'd like as long as it is JCAHO certified.> > e> > ----- Original Message -----> From: Heer> Sent: Monday, September 02, 2002 8:47 AM> @y...> Subject: Re: please read - Thank you> > J> > I don't quite know what to say as I feel I have tried so hard to help you> and if you feel the need to be a silent member of the group, that is up to> you. It is not my choice to make. I am so confused by the ins and outs of> all this medical insurance stuff that I don't know what to make of it. If in> fact your insurance is good in any state why can't you find a Dr who will> operate on you? This is my biggest question and maybe it is yours too.> > Honey I wish you the best I hope that you will find help, and that you can> get the implants out of your body soon, no one should have to be in your> situation no matter what and it is a shame that you cannot find a good ps or> any ps that will work with you.> > I can only say that I wish you will reconsider your stance on not posting,> this group is here for you if you so choose to use it and we all care and> are wanting to give you support any way we can.'> > I am not doing well myself and am in pain 24 hours a day with my foot, it> has gotten so bad that my depression is bad and I am ready to try some> antidepressants if this doesn't get better soon. THe tendon in my foot and> heel is so inflammed that my only option may be to have it treated with the> ossa tron(eswt machine) which is $6,000 and not covered by insurance, so> despite getting rid of implants I am still suffering and once again looking> at spending tons of money to fix the problem. It sucks, I have been battling> pain for 4 years, it seems life is just not fair !> ----- Original Message -----> From: "JHH7" <rogerlh@p...>> < @y...>> Sent: Sunday, September 01, 2002 7:02 PM> Subject: please read - Thank you> > > > Hi,> >> > Thank you for your time and reply. If I come across frustrated in this> > post, it is with the medical situation.........> >> > Let me reiterate, then I am politely returning to a more silent member of> > this forum.............> > (as I have been for the last several months).> >> > My initial questions were:> > 1) how does one meet the criteria for emergent explant????> > 2) does anyone know a reputable surgeon in my area????> > 3) or of any funds may be available to help me with the co-pay and travel> > if I find a dr. out of state???> >> > 1st)> > Medicare DOES NOT LIMIT YOU by State!!!!! I have PRIMARY insurance any> > where in the US for any medical need - not just emergency care. I have> > received non-emergent care in other states. Any out-of-state physician can> > bill and accept Medicare!!!> >> > 2nd)> > Most DR's either accept Medicaid CO-pay or waive that CO-pay for patients> > with Medicaid as secondary insurance in most fields of medicine. It seems> > to be different for plastic surgeons. It is the Medicaid secondary ins.> > that presents a state to state billing problem for the co.-pay. There is> > not a problem with my primary ins.> >> > Any surgeon who would work with me on the co.-pay issue which would be 20%> > (that Medicaid would normally pay in my state but NOT PS) could have> > stepped up and performed my surgery in entirety. I have the same CO-pay> > problem in NY State as stated above.> >> > I was not told to simply start looking into explant arrangements. I was> > told "YOU NEED SURGERY!!! It is SEVERELY impacting your health and> > aggravating your medical condition. Silicone should not be spilt in your> > body and it will only get worse!" by 2 radiologist and several dr's. I> > was further told they will try not to "chop you to pieces but you need to> > get as much of the migration out as humanly possible"> >> > When you are told that you could have lymphoma, it is not a light> > conversation. The dr. has a genuine concern and wants this done ASAP. It> is> > not a stretch for ins. purposes but for my health and life. I was suppose> > to have surgery in July and waited for that but it was canceled because I> > was too sick with a respiratory infection.> >> > You do not biopsy calcifications of this kind ever or aspirate this type> of> > calcification. Nodes with this problem must be removed whole. Otherwise> you> > jeopardize your health even further. They are removed in entirety under> > general anesthesia in a Hospital. I don't know about other problems, as I> > can only speak about the specific calcifications I have - which are very> > deep and hard like a rock in the lymph nodes.> >> > It is not "I" who states the lymph's should be done simultaneously but> > rather my pc, rheumy, and the general surgeon I have consulted with. I> > have Dr's who are advising me that I would be crazy to undergo general> > anesthesia twice. Especially, since it is high risk with my general> > medical problems. With all do respect, my understanding is that removing> > lymph nodes is first year surgery and most dr.'s can do this no problem.> > This is a non issue. It is only an issue of time being of the essence.> >> > It is finding a ps to do the explant and address the migration of silicone> > that has been problematic. I have a general surgeon willing to do the> > nodes, but they do not have a ps to do the explant and migration.> >> > My Dr.'s are appalled at the lack of care they can find me for this> > procedure. The only ps they know personally actually suggested> > reimplantation with more silicone implants since this was reconstruction> > and I meet the criteria for silicone replacement. She would not be> > addressing any of the migration. This is not a consideration in our> > opinion. My Dr.'s will no longer be referring patients to that ps.> >> > I have two lymph issues: the axilla's full of silicone and the groin with> > calcification.> >> > Also, any time a Lupus patient is undergoing surgery it complicates> surgery> > and requires a VERY good physician / surgeon and usually in best case> > scenarios an attending rheumy who is familiar with Lupus.> >> > I was not asking for a complete "charity" case - just a dr. who is> > experienced in extracapsular silicone migration and lymph involvement who> > could work with me for the "co.-pay" issue.> >> > I have been urged by many - including dr's - not to go to an inexperienced> > ps. To go to one of the Dr.'s that are very familiar with explant of> > silicone and polyurethane.> > I understand the polyurethane are known to make people the sickest and are> > the hardest to remove.> >> > There are innumerable surgeons in NY city and no doubt someone is> qualified> > - - but to the patient it is like finding a needle in a hay stack. I was> > mutilated with my initial surgery and know first-hand how bad an> > "inexperienced" surgeon can be - and I required 2 subsequent surgeries for> > repair. Not to mention the emergency surgery for hematoma. And yes, I had> > drains. A personal recommendation goes a long way. So, I am more scared> > now based in my previous experience.> >> > I have already had 5 ps consults in NY (see below) after hundreds of phone> > calls to no avail.> >> > Maybe what you say is true for an intracapsular rupture but an> > extracapsular rupture with SILICONE clearly seen by ultrasound and MRI in> > my chest outside of the capsule and in the axilla lymph's should not be> > delayed this long. It is already 7 months since I have been working on> > this. This is too long for my specific case and the progression is clearly> > present on the new tests.> >> > I am inclined to believe that all insurance companies recognize spilt> > silicone as "medically necessary." People may delay when they are either> > "not aware" of their rupture or have intracapsular rupture only. I don't> > know. But once a patient knows of extracapsular silicone rupture then only> > bureaucratic / financial issues, or health would delay a person in> > obtaining the necessary explant, I would think.> >> > OK with all that said....> > I posted the other day in simply response to who has been a great> > help and a good friend and support through all this. I decided to post on> > the forum in hope that I could broaden the ideas that I may receive.> >> > Everyone keeps telling me "you need to get money and go to Dr. Feng or Dr.> > Kolb ect." So, I thought I would post for help.> >> > Thank you for listening.> >> > No patient should ever find themselves in the position I find myself. I> > speak not just for myself, but for all the rest of the woman who have and> > will encounter this injustice.> >> > I am just beginning to understand the magnitude of this issue.> >> > Signed,> > Another.....naive, trusting patient.> >> > J-> >> > CONSULTS:> >> > I had already been on 5 ps consults in NY (after hundreds of calls) prior> > to even agreeing to let a the begrudging original surgeon schedule me - to> > no avail.> >> > 4 were totally out of the question. Only one was qualified but now tells> me> > she "can not accommodate me as my case has progressed to much." She urged> > my not to let my care go beyond Aug. Only underscoring my concerns.> >> > Samples of my experience are as follows:> >> > 1. How do we detect and remove the spilt silicone? Reply "we don't have> > to. Silicone is not a problem. Pacemakers, hip replacement, et. are made> of> > silicone. (not raw spilt gel) Suggestion/recommendation is that you> > replace with more silicone since you have such a nice result. You can be> in> > the study."> >> > Note: I would have to be crazy and clearly they are not going to concern> > themselves with removing the migrated silicone.> >> > 2. Not even concerned what type of implants I have (saline vs. silicone).> > Tells me he will leave the capsule and scar tissue so it will serve to> > "augment" me. Are we kidding here? Did not even look at the films.> >> > 3. Has done a total of 20 explants only 2 without replacement. 2 explants> > only. I don't want to be only the 3rd - especially with the poly.> >> > 4. Rude - Rude - Rude has only done 20 explants total. Only 2 with a lift.> > Did not even take a medical history. Did not look at the films. Clearly> did> > not want the case.> >> > 5. Dr. Mentioned above whom states she cannot take the case now. Could> > have, but not now because of the progression and time-frame.> >> > Oh yes and then there were my 2 general surgery consults.> >> > One tells me "no need to excise" silicone and did not investigate what> > exactly was in the nodes.> >> > In the interim, I had my ultrasound after about 50 phone calls I found a> > radiologist skilled to do silicone mapping w/ ultrasound.> > Lymph Findings: silicone in axilla nodes and the groin is calcification..> >> > With that, the second general surgeon was the surgeon I WAS scheduled with> > and he was going to operate with the original ps> >> > Thank you for reading this through.> >> >> >> >

[Guest guest]

, Dr. Huang being able to perform J's explant has nothing to do with "magic she is able to perform." It simply has to do with knowlege of medicare/medicaid, and that she does accept medicare. Because medicaid is funded by each state, J will not be able to use her NY medicaid in CO, but medicare is accepted nationally, and as Dr. Huang said, in some cases, medicare will cover the cost if rupture can be documented, which J has. I have suggested, in the interim, that J seek out sources of funding to cover partially, or in whole, what her medicaid would have covered in NY. It is not magic, it is simply knowing how to work the system and work with the system. Dr. Huang has stated she will perform the explant, and has stated that J needs to call and schedule the explant. The rest is up to J. She needs to make some decisions and look for some extra money. No one else can do that for her. I have provided her with some tools, and now she needs to use them. I am not angry at you, , although I know that it seems I have singled you out lately for a few things. I am sorry I have upset you. But I also feel as if you constantly have something negative to say about Dr. Huang. She is one of the best ps' out there for explant, and is one of the pioneers of the en bloc technique. She trained with Dr. Feng. And yet it seems as if you don't even mention her name when women ask. We all have our favorites, being the ones who explanted us, but some women don't have the money it takes to go to Dr. Feng. I have no idea what Dr. Kolb charges, but I've seen other ps' prices, and Dr. Huang is very reasonable. I have worked with Dr. Huang in a professional aspect, so I not only know her as my explanting ps, but as a ps for other pts. I have a closer relationship with her than most of the women in this group have with their explanting ps. I keep in touch with Dr. Huang on a pretty consistent basis, and she knows all about my past, my problems, and even my love life. Yet when I've worked with her on a professional level, we maintain our relationship at that---professional. I have the utmost respect for her and her skills as a ps. So it bothers me when you make statements such as the one above. She is not performing any "magic." Some doctors simply don't want to accept pts who have medicare because the reimbursement is horrendous. So, many docs turn pts away with medicare/medicaid. Some docs have also opted to not accept medicare at all for reimbursement reasons. At any rate, I don't want to single you out as I know that's what it seems like I've done. Please don't take it personally. I, too, have my bad days, and my temper flares. As I stated to Patty, I am sick of the heat here, I hate Tucson, and I want to be back in Denver yesterday!! Plus I am dealing with a possible non-union of my neck, and I have chronic pain too. I also have plantar fascitis, and it sucks. And being on my feet all day doesn't make my pain any better. I have tried just about everything for this condition, and nothing helps. Birkenstocks don't do a thing for me and Danskos only made my pain worse, plus gave me blisters on my heels. What I have found is a shoe that does help slightly, and maybe you should look into these as well (if you wear scrubs at work). They are Calzuros and Medimex Plogs. They are only sold in medical supply stores, and are designed for people with foot problems. Anyway, I am only trying to do what I can to help women in need, but sometimes it seems like statements are made or info given that is incorrect. And being the outspoken, outgoing person I am, I am going to call people on it. I don't back down easily, and certainly, NO ONE scares me or will ever threaten me because they have another thing coming if they do (and that does not apply to you at all, ). So, take your break from here, and come back when you are refreshed and hopefully feeling better. And check into those shoes I mentioned above. e ----- Original Message ----- From: Heer Sent: Monday, September 02, 2002 7:20 PM Subject: Re: please read - Thank you Well If I had a PS within a 1,000 miles of me that was worth anything I would have no problems helping someone out, seeing as how I live in Idaho I don't think that is a possibility. I have been trying to help J now for several months but nothing has worked out. I am not sure why but if these other Dr's didn't work out, I would be curious to know what magic Huang is able to perform that no one else including Dr Kolb has been able to do? I am not feeling well and this whole thing is making my head spin so I think I will just turn off my computer for now and go to bed. I think that it is great that e can do these things and pray for J that it will all work out. ----- Original Message ----- From: ~*Patty*~ Sent: Monday, September 02, 2002 3:28 PM Subject: Re: please read - Thank you Hi e, I have read your posts and I think it is wonderful and very kind and generous of you to offer all the help that you have. It is more than most of us have done for others in this kind of situation. I hope that this will work out for "J". At this point, it is all up to her and I do hope that she takes advantage of this offer of assistance. I know I would be more than grateful...sometimes the hoops seem very daunting. Again, thanks for all you are doing. Patty ----- Original Message ----- From: e Rene Sent: Monday, September 02, 2002 2:16 PM Subject: Re: please read - Thank you Does anyone not read my posts? I have agreed to help J as much as I can, including sending her a free ticket on AA to fly out to Denver, and Dr. Huang will accept her medicare, as will the hospital. If she can wait until early Nov, I will gladly let her stay with me and I can help take care of her post surgery. I feel that NO ONE has paid any attn to what I have offered her. She is pretty much set. It is now J's decision as to what she wants to do and when. I have also given her a website that does provide funds to people who need it. I have checked out the site myself, and read about it in People magazine. It is LEGIT! I have encouraged her to visit the site and apply for the funds. The most he gives is $1000, but that is still $1000 she didn't have before. And she doesn't have to give him any money---he just wants to verify the need, then will send you a check for the amt he approves. GOD---what more do I have to do to let you all know that I have offered this woman all that I can? Dr. Huang is willing to take on her case, and the rest is up to her. Most hospitals across the country take medicare, that is why they are JCAHO certified. If they don't take medicare, then they are not JCAHO certified and you probably don't want to go to them anyway, because they more than likely don't meet the stringent criteria JCAHO requires for certification. And the hospitals Dr. Huang uses are JCAHO certified. So, J, if you're reading this, you CAN go to any hospital you'd like as long as it is JCAHO certified. e

[Guest guest]

e: Because of the way her insurance is set up, the hosptial cannot balance bill the patient for the 20%. It is very difficult for the hosptial to accept this as their costs are not covered. .

-----Original Message-----From: e Rene [mailto:e_Rene@...]Sent: Monday, September 02, 2002 9:58 PM Subject: Re: please read - Thank you

Dr. Kolb,

Which is exactly why I have suggested she apply for some funds to help her out. And the accounting dept at hospitals are always willing to work with individuals to set up payment plans.

e

----- Original Message -----

From: Dr. Kolb

Sent: Monday, September 02, 2002 6:00 PM

Subject: RE: please read - Thank you

e: Without her Medicaid, she will have to cover the 20% on the hospital which is significant. .

-----Original Message-----From: e Rene [mailto:e_Rene@...]Sent: Monday, September 02, 2002 5:17 PM Subject: Re: please read - Thank you

Does anyone not read my posts? I have agreed to help J as much as I can, including sending her a free ticket on AA to fly out to Denver, and Dr. Huang will accept her medicare, as will the hospital. If she can wait until early Nov, I will gladly let her stay with me and I can help take care of her post surgery.

I feel that NO ONE has paid any attn to what I have offered her. She is pretty much set. It is now J's decision as to what she wants to do and when. I have also given her a website that does provide funds to people who need it. I have checked out the site myself, and read about it in People magazine. It is LEGIT! I have encouraged her to visit the site and apply for the funds. The most he gives is $1000, but that is still $1000 she didn't have before. And she doesn't have to give him any money---he just wants to verify the need, then will send you a check for the amt he approves.

GOD---what more do I have to do to let you all know that I have offered this woman all that I can? Dr. Huang is willing to take on her case, and the rest is up to her. Most hospitals across the country take medicare, that is why they are JCAHO certified. If they don't take medicare, then they are not JCAHO certified and you probably don't want to go to them anyway, because they more than likely don't meet the stringent criteria JCAHO requires for certification. And the hospitals Dr. Huang uses are JCAHO certified.

So, J, if you're reading this, you CAN go to any hospital you'd like as long as it is JCAHO certified.

e

----- Original Message -----

From: Heer

Sent: Monday, September 02, 2002 8:47 AM

Subject: Re: please read - Thank you

JI don't quite know what to say as I feel I have tried so hard to help youand if you feel the need to be a silent member of the group, that is up toyou. It is not my choice to make. I am so confused by the ins and outs ofall this medical insurance stuff that I don't know what to make of it. If infact your insurance is good in any state why can't you find a Dr who willoperate on you? This is my biggest question and maybe it is yours too.Honey I wish you the best I hope that you will find help, and that you canget the implants out of your body soon, no one should have to be in yoursituation no matter what and it is a shame that you cannot find a good ps orany ps that will work with you.I can only say that I wish you will reconsider your stance on not posting,this group is here for you if you so choose to use it and we all care andare wanting to give you support any way we can.'I am not doing well myself and am in pain 24 hours a day with my foot, ithas gotten so bad that my depression is bad and I am ready to try someantidepressants if this doesn't get better soon. THe tendon in my foot andheel is so inflammed that my only option may be to have it treated with theossa tron(eswt machine) which is $6,000 and not covered by insurance, sodespite getting rid of implants I am still suffering and once again lookingat spending tons of money to fix the problem. It sucks, I have been battlingpain for 4 years, it seems life is just not fair !----- Original Message -----From: "JHH7" <rogerlh@...>< >Sent: Sunday, September 01, 2002 7:02 PMSubject: please read - Thank you> Hi,>> Thank you for your time and reply. If I come across frustrated in this> post, it is with the medical situation.........>> Let me reiterate, then I am politely returning to a more silent member of> this forum.............> (as I have been for the last several months).>> My initial questions were:> 1) how does one meet the criteria for emergent explant????> 2) does anyone know a reputable surgeon in my area????> 3) or of any funds may be available to help me with the co-pay and travel> if I find a dr. out of state???>> 1st)> Medicare DOES NOT LIMIT YOU by State!!!!! I have PRIMARY insurance any> where in the US for any medical need - not just emergency care. I have> received non-emergent care in other states. Any out-of-state physician can> bill and accept Medicare!!!>> 2nd)> Most DR's either accept Medicaid CO-pay or waive that CO-pay for patients> with Medicaid as secondary insurance in most fields of medicine. It seems> to be different for plastic surgeons. It is the Medicaid secondary ins.> that presents a state to state billing problem for the co.-pay. There is> not a problem with my primary ins.>> Any surgeon who would work with me on the co.-pay issue which would be 20%> (that Medicaid would normally pay in my state but NOT PS) could have> stepped up and performed my surgery in entirety. I have the same CO-pay> problem in NY State as stated above.>> I was not told to simply start looking into explant arrangements. I was> told "YOU NEED SURGERY!!! It is SEVERELY impacting your health and> aggravating your medical condition. Silicone should not be spilt in your> body and it will only get worse!" by 2 radiologist and several dr's. I> was further told they will try not to "chop you to pieces but you need to> get as much of the migration out as humanly possible">> When you are told that you could have lymphoma, it is not a light> conversation. The dr. has a genuine concern and wants this done ASAP. Itis> not a stretch for ins. purposes but for my health and life. I was suppose> to have surgery in July and waited for that but it was canceled because I> was too sick with a respiratory infection.>> You do not biopsy calcifications of this kind ever or aspirate this typeof> calcification. Nodes with this problem must be removed whole. Otherwiseyou> jeopardize your health even further. They are removed in entirety under> general anesthesia in a Hospital. I don't know about other problems, as I> can only speak about the specific calcifications I have - which are very> deep and hard like a rock in the lymph nodes.>> It is not "I" who states the lymph's should be done simultaneously but> rather my pc, rheumy, and the general surgeon I have consulted with. I> have Dr's who are advising me that I would be crazy to undergo general> anesthesia twice. Especially, since it is high risk with my general> medical problems. With all do respect, my understanding is that removing> lymph nodes is first year surgery and most dr.'s can do this no problem.> This is a non issue. It is only an issue of time being of the essence.>> It is finding a ps to do the explant and address the migration of silicone> that has been problematic. I have a general surgeon willing to do the> nodes, but they do not have a ps to do the explant and migration.>> My Dr.'s are appalled at the lack of care they can find me for this> procedure. The only ps they know personally actually suggested> reimplantation with more silicone implants since this was reconstruction> and I meet the criteria for silicone replacement. She would not be> addressing any of the migration. This is not a consideration in our> opinion. My Dr.'s will no longer be referring patients to that ps.>> I have two lymph issues: the axilla's full of silicone and the groin with> calcification.>> Also, any time a Lupus patient is undergoing surgery it complicatessurgery> and requires a VERY good physician / surgeon and usually in best case> scenarios an attending rheumy who is familiar with Lupus.>> I was not asking for a complete "charity" case - just a dr. who is> experienced in extracapsular silicone migration and lymph involvement who> could work with me for the "co.-pay" issue.>> I have been urged by many - including dr's - not to go to an inexperienced> ps. To go to one of the Dr.'s that are very familiar with explant of> silicone and polyurethane.> I understand the polyurethane are known to make people the sickest and are> the hardest to remove.>> There are innumerable surgeons in NY city and no doubt someone isqualified> - - but to the patient it is like finding a needle in a hay stack. I was> mutilated with my initial surgery and know first-hand how bad an> "inexperienced" surgeon can be - and I required 2 subsequent surgeries for> repair. Not to mention the emergency surgery for hematoma. And yes, I had> drains. A personal recommendation goes a long way. So, I am more scared> now based in my previous experience.>> I have already had 5 ps consults in NY (see below) after hundreds of phone> calls to no avail.>> Maybe what you say is true for an intracapsular rupture but an> extracapsular rupture with SILICONE clearly seen by ultrasound and MRI in> my chest outside of the capsule and in the axilla lymph's should not be> delayed this long. It is already 7 months since I have been working on> this. This is too long for my specific case and the progression is clearly> present on the new tests.>> I am inclined to believe that all insurance companies recognize spilt> silicone as "medically necessary." People may delay when they are either> "not aware" of their rupture or have intracapsular rupture only. I don't> know. But once a patient knows of extracapsular silicone rupture then only> bureaucratic / financial issues, or health would delay a person in> obtaining the necessary explant, I would think.>> OK with all that said....> I posted the other day in simply response to who has been a great> help and a good friend and support through all this. I decided to post on> the forum in hope that I could broaden the ideas that I may receive.>> Everyone keeps telling me "you need to get money and go to Dr. Feng or Dr.> Kolb ect." So, I thought I would post for help.>> Thank you for listening.>> No patient should ever find themselves in the position I find myself. I> speak not just for myself, but for all the rest of the woman who have and> will encounter this injustice.>> I am just beginning to understand the magnitude of this issue.>> Signed,> Another.....naive, trusting patient.>> J->> CONSULTS:>> I had already been on 5 ps consults in NY (after hundreds of calls) prior> to even agreeing to let a the begrudging original surgeon schedule me - to> no avail.>> 4 were totally out of the question. Only one was qualified but now tellsme> she "can not accommodate me as my case has progressed to much." She urged> my not to let my care go beyond Aug. Only underscoring my concerns.>> Samples of my experience are as follows:>> 1. How do we detect and remove the spilt silicone? Reply "we don't have> to. Silicone is not a problem. Pacemakers, hip replacement, et. are madeof> silicone. (not raw spilt gel) Suggestion/recommendation is that you> replace with more silicone since you have such a nice result. You can bein> the study.">> Note: I would have to be crazy and clearly they are not going to concern> themselves with removing the migrated silicone.>> 2. Not even concerned what type of implants I have (saline vs. silicone).> Tells me he will leave the capsule and scar tissue so it will serve to> "augment" me. Are we kidding here? Did not even look at the films.>> 3. Has done a total of 20 explants only 2 without replacement. 2 explants> only. I don't want to be only the 3rd - especially with the poly.>> 4. Rude - Rude - Rude has only done 20 explants total. Only 2 with a lift.> Did not even take a medical history. Did not look at the films. Clearlydid> not want the case.>> 5. Dr. Mentioned above whom states she cannot take the case now. Could> have, but not now because of the progression and time-frame.>> Oh yes and then there were my 2 general surgery consults.>> One tells me "no need to excise" silicone and did not investigate what> exactly was in the nodes.>> In the interim, I had my ultrasound after about 50 phone calls I found a> radiologist skilled to do silicone mapping w/ ultrasound.> Lymph Findings: silicone in axilla nodes and the groin is calcification..>> With that, the second general surgeon was the surgeon I WAS scheduled with> and he was going to operate with the original ps>> Thank you for reading this through.>>>>

[Guest guest]

Dr. Kolb, Well, I think this is something that would need to be worked out between the hospital, Dr. Huang, and J. We'll see what happens. e ----- Original Message ----- From: Dr. Kolb Sent: Tuesday, September 03, 2002 7:32 PM Subject: RE: please read - Thank you e: Because of the way her insurance is set up, the hosptial cannot balance bill the patient for the 20%. It is very difficult for the hosptial to accept this as their costs are not covered. . -----Original Message-----From: e Rene [mailto:e_Rene@...]Sent: Monday, September 02, 2002 9:58 PM Subject: Re: please read - Thank you Dr. Kolb, Which is exactly why I have suggested she apply for some funds to help her out. And the accounting dept at hospitals are always willing to work with individuals to set up payment plans. e ----- Original Message ----- From: Dr. Kolb Sent: Monday, September 02, 2002 6:00 PM Subject: RE: please read - Thank you e: Without her Medicaid, she will have to cover the 20% on the hospital which is significant. . -----Original Message-----From: e Rene [mailto:e_Rene@...]Sent: Monday, September 02, 2002 5:17 PM Subject: Re: please read - Thank you Does anyone not read my posts? I have agreed to help J as much as I can, including sending her a free ticket on AA to fly out to Denver, and Dr. Huang will accept her medicare, as will the hospital. If she can wait until early Nov, I will gladly let her stay with me and I can help take care of her post surgery. I feel that NO ONE has paid any attn to what I have offered her. She is pretty much set. It is now J's decision as to what she wants to do and when. I have also given her a website that does provide funds to people who need it. I have checked out the site myself, and read about it in People magazine. It is LEGIT! I have encouraged her to visit the site and apply for the funds. The most he gives is $1000, but that is still $1000 she didn't have before. And she doesn't have to give him any money---he just wants to verify the need, then will send you a check for the amt he approves. GOD---what more do I have to do to let you all know that I have offered this woman all that I can? Dr. Huang is willing to take on her case, and the rest is up to her. Most hospitals across the country take medicare, that is why they are JCAHO certified. If they don't take medicare, then they are not JCAHO certified and you probably don't want to go to them anyway, because they more than likely don't meet the stringent criteria JCAHO requires for certification. And the hospitals Dr. Huang uses are JCAHO certified. So, J, if you're reading this, you CAN go to any hospital you'd like as long as it is JCAHO certified. e ----- Original Message ----- From: Heer Sent: Monday, September 02, 2002 8:47 AM Subject: Re: please read - Thank you JI don't quite know what to say as I feel I have tried so hard to help youand if you feel the need to be a silent member of the group, that is up toyou. It is not my choice to make. I am so confused by the ins and outs ofall this medical insurance stuff that I don't know what to make of it. If infact your insurance is good in any state why can't you find a Dr who willoperate on you? This is my biggest question and maybe it is yours too.Honey I wish you the best I hope that you will find help, and that you canget the implants out of your body soon, no one should have to be in yoursituation no matter what and it is a shame that you cannot find a good ps orany ps that will work with you.I can only say that I wish you will reconsider your stance on not posting,this group is here for you if you so choose to use it and we all care andare wanting to give you support any way we can.'I am not doing well myself and am in pain 24 hours a day with my foot, ithas gotten so bad that my depression is bad and I am ready to try someantidepressants if this doesn't get better soon. THe tendon in my foot andheel is so inflammed that my only option may be to have it treated with theossa tron(eswt machine) which is $6,000 and not covered by insurance, sodespite getting rid of implants I am still suffering and once again lookingat spending tons of money to fix the problem. It sucks, I have been battlingpain for 4 years, it seems life is just not fair !----- Original Message -----From: "JHH7" <rogerlh@...>< >Sent: Sunday, September 01, 2002 7:02 PMSubject: please read - Thank you> Hi,>> Thank you for your time and reply. If I come across frustrated in this> post, it is with the medical situation.........>> Let me reiterate, then I am politely returning to a more silent member of> this forum.............> (as I have been for the last several months).>> My initial questions were:> 1) how does one meet the criteria for emergent explant????> 2) does anyone know a reputable surgeon in my area????> 3) or of any funds may be available to help me with the co-pay and travel> if I find a dr. out of state???>> 1st)> Medicare DOES NOT LIMIT YOU by State!!!!! I have PRIMARY insurance any> where in the US for any medical need - not just emergency care. I have> received non-emergent care in other states. Any out-of-state physician can> bill and accept Medicare!!!>> 2nd)> Most DR's either accept Medicaid CO-pay or waive that CO-pay for patients> with Medicaid as secondary insurance in most fields of medicine. It seems> to be different for plastic surgeons. It is the Medicaid secondary ins.> that presents a state to state billing problem for the co.-pay. There is> not a problem with my primary ins.>> Any surgeon who would work with me on the co.-pay issue which would be 20%> (that Medicaid would normally pay in my state but NOT PS) could have> stepped up and performed my surgery in entirety. I have the same CO-pay> problem in NY State as stated above.>> I was not told to simply start looking into explant arrangements. I was> told "YOU NEED SURGERY!!! It is SEVERELY impacting your health and> aggravating your medical condition. Silicone should not be spilt in your> body and it will only get worse!" by 2 radiologist and several dr's. I> was further told they will try not to "chop you to pieces but you need to> get as much of the migration out as humanly possible">> When you are told that you could have lymphoma, it is not a light> conversation. The dr. has a genuine concern and wants this done ASAP. Itis> not a stretch for ins. purposes but for my health and life. I was suppose> to have surgery in July and waited for that but it was canceled because I> was too sick with a respiratory infection.>> You do not biopsy calcifications of this kind ever or aspirate this typeof> calcification. Nodes with this problem must be removed whole. Otherwiseyou> jeopardize your health even further. They are removed in entirety under> general anesthesia in a Hospital. I don't know about other problems, as I> can only speak about the specific calcifications I have - which are very> deep and hard like a rock in the lymph nodes.>> It is not "I" who states the lymph's should be done simultaneously but> rather my pc, rheumy, and the general surgeon I have consulted with. I> have Dr's who are advising me that I would be crazy to undergo general> anesthesia twice. Especially, since it is high risk with my general> medical problems. With all do respect, my understanding is that removing> lymph nodes is first year surgery and most dr.'s can do this no problem.> This is a non issue. It is only an issue of time being of the essence.>> It is finding a ps to do the explant and address the migration of silicone> that has been problematic. I have a general surgeon willing to do the> nodes, but they do not have a ps to do the explant and migration.>> My Dr.'s are appalled at the lack of care they can find me for this> procedure. The only ps they know personally actually suggested> reimplantation with more silicone implants since this was reconstruction> and I meet the criteria for silicone replacement. She would not be> addressing any of the migration. This is not a consideration in our> opinion. My Dr.'s will no longer be referring patients to that ps.>> I have two lymph issues: the axilla's full of silicone and the groin with> calcification.>> Also, any time a Lupus patient is undergoing surgery it complicatessurgery> and requires a VERY good physician / surgeon and usually in best case> scenarios an attending rheumy who is familiar with Lupus.>> I was not asking for a complete "charity" case - just a dr. who is> experienced in extracapsular silicone migration and lymph involvement who> could work with me for the "co.-pay" issue.>> I have been urged by many - including dr's - not to go to an inexperienced> ps. To go to one of the Dr.'s that are very familiar with explant of> silicone and polyurethane.> I understand the polyurethane are known to make people the sickest and are> the hardest to remove.>> There are innumerable surgeons in NY city and no doubt someone isqualified> - - but to the patient it is like finding a needle in a hay stack. I was> mutilated with my initial surgery and know first-hand how bad an> "inexperienced" surgeon can be - and I required 2 subsequent surgeries for> repair. Not to mention the emergency surgery for hematoma. And yes, I had> drains. A personal recommendation goes a long way. So, I am more scared> now based in my previous experience.>> I have already had 5 ps consults in NY (see below) after hundreds of phone> calls to no avail.>> Maybe what you say is true for an intracapsular rupture but an> extracapsular rupture with SILICONE clearly seen by ultrasound and MRI in> my chest outside of the capsule and in the axilla lymph's should not be> delayed this long. It is already 7 months since I have been working on> this. This is too long for my specific case and the progression is clearly> present on the new tests.>> I am inclined to believe that all insurance companies recognize spilt> silicone as "medically necessary." People may delay when they are either> "not aware" of their rupture or have intracapsular rupture only. I don't> know. But once a patient knows of extracapsular silicone rupture then only> bureaucratic / financial issues, or health would delay a person in> obtaining the necessary explant, I would think.>> OK with all that said....> I posted the other day in simply response to who has been a great> help and a good friend and support through all this. I decided to post on> the forum in hope that I could broaden the ideas that I may receive.>> Everyone keeps telling me "you need to get money and go to Dr. Feng or Dr.> Kolb ect." So, I thought I would post for help.>> Thank you for listening.>> No patient should ever find themselves in the position I find myself. I> speak not just for myself, but for all the rest of the woman who have and> will encounter this injustice.>> I am just beginning to understand the magnitude of this issue.>> Signed,> Another.....naive, trusting patient.>> J->> CONSULTS:>> I had already been on 5 ps consults in NY (after hundreds of calls) prior> to even agreeing to let a the begrudging original surgeon schedule me - to> no avail.>> 4 were totally out of the question. Only one was qualified but now tellsme> she "can not accommodate me as my case has progressed to much." She urged> my not to let my care go beyond Aug. Only underscoring my concerns.>> Samples of my experience are as follows:>> 1. How do we detect and remove the spilt silicone? Reply "we don't have> to. Silicone is not a problem. Pacemakers, hip replacement, et. are madeof> silicone. (not raw spilt gel) Suggestion/recommendation is that you> replace with more silicone since you have such a nice result. You can bein> the study.">> Note: I would have to be crazy and clearly they are not going to concern> themselves with removing the migrated silicone.>> 2. Not even concerned what type of implants I have (saline vs. silicone).> Tells me he will leave the capsule and scar tissue so it will serve to> "augment" me. Are we kidding here? Did not even look at the films.>> 3. Has done a total of 20 explants only 2 without replacement. 2 explants> only. I don't want to be only the 3rd - especially with the poly.>> 4. Rude - Rude - Rude has only done 20 explants total. Only 2 with a lift.> Did not even take a medical history. Did not look at the films. Clearlydid> not want the case.>> 5. Dr. Mentioned above whom states she cannot take the case now. Could> have, but not now because of the progression and time-frame.>> Oh yes and then there were my 2 general surgery consults.>> One tells me "no need to excise" silicone and did not investigate what> exactly was in the nodes.>> In the interim, I had my ultrasound after about 50 phone calls I found a> radiologist skilled to do silicone mapping w/ ultrasound.> Lymph Findings: silicone in axilla nodes and the groin is calcification..>> With that, the second general surgeon was the surgeon I WAS scheduled with> and he was going to operate with the original ps>> Thank you for reading this through.>>>>

[Guest guest]

:

Hi. I know how you feel........

LM