Re: Layne emergency procedure QUESTION explant surgery on June 2

[Guest guest]

J- I am correct in understanding that you have primary as medicare, secondary as medicaid? And you have confirmed this explant will be covered? I completely understand your dilemna about "good" and "bad" insr. No one wants to take medicare/medicaid because the reimbursement is so poor, but it doesn't give doctors an excuse to deny or "turn away" pts from getting care they need. I ask the same question as you--why does it seem that people with "poor" insr are worse off than those w/o insr? I don't know that we will ever have those answers. All I can say is that our health care system is one of the worst in the world as far as the insr issue goes, and it's only getting worse. And what pisses me off even more, is that I was just on a website this past wknd where it reviewed average salaries of MD's, nurses, and pharmacists. The salaries would astound you--even me, who is a RN, and has some knowledge of what docs are making, well, it blew me away. After seeing these salaries, you'd think that a few charitable cases a yr wouldn't be a big deal. But it comes down to greed, and the almighty dollar! Anyway, I have some ideas about your situation. First of all, I would like to try to clarify what would be classified as an "emergency" explant. Now, Dr. Kolb or anyone else can correct me, because I could very well be wrong, but based on my own personal situation and what Dr. Huang told me a yr ago, is that an emergency explant would be any case in which your health is endangered, or you are experiencing a severe reaction, in which waiting for any period of time could be detrimental to you. I can't remember the exact circumstances of your situation, but if I recall correctly, I remember you writing that something major had happened (a rupture?). And do you have silicone or saline? How long have you had them? What health problems do you have? The fact that your doc is willing to support you with a letter is a plus, now it is just finding a doc who accepts your insr---correct? And what state are you in? I can see what I can do when I have the answers to the above questions. I will honestly do what I can, to see what info I can obtain for you. Also, what docs have you contacted to do the explant? e ----- Original Message ----- From: JHH7 Sent: Thursday, August 29, 2002 9:39 PM Subject: Re: Layne emergency procedure QUESTION explant surgery on June 21 As I said below, in greater length.........."my insurance covers explant, But try to find a dr. who is willing toaccept the insurance."Seems to be a catch ? I am a victim of the system! It seems then, one is in a worse position when they have poor insurance vsno insurance? Something is not right.I want to thank the girls who are so kind in offering to help me!!! I am still trying to learn what qualifies an emergent explant? My dr. iswilling to write the insurance co. and express the ergency? Otherwise,how does one 'realistically' get explanted with poor insurance?Thank you for your support! I hope to hear back.Warmly,J-----------> From: Dr. Kolb <drkolb@...>> > Subject: RE: Layne emergency procedure QUESTION explantsurgery on June 21> Date: Thursday, August 29, 2002 11:23 PM> > She is much less likely to qualify for charitable funds as she had full> insurance in New York. Out best bet is to find her a surgeon in thestate> where she is covered. I have done many charitable explants and evengotten> the hospitals to cover OR and anesthesia fees but this will be very> difficult with her insurance situation. You have to prove you have no> resources to qualify for these charitable programs. .> > -----Original Message-----> From: Heer [mailto:idagirl@...]> Sent: Thursday, August 29, 2002 9:50 AM> > Subject: Re: Layne emergency procedure QUESTION explant> surgery on June 21> > > I am not trying to put any pressure on you at all I just thoughtthat> being a Dr you might at least be able to give us some ideas as to what we> could do to set up some kind of trust or something.> > hugs> > ----- Original Message -----> From: " Heer" <idagirl@...>> < >> Sent: Thursday, August 29, 2002 7:34 AM> Subject: Re: Layne emergency procedure QUESTION explant> surgery on June 21> > > > Ladies there has to be something we can do to help J. Dr Kolb I am> pleading> > with you, would you somehow take this case on as a charitable typething.> It> > could help you to earn a reputation for caring and compassion, while I> > realize that it could sprout others looking for free surgery, I feel it> > would be such a good thing for you, I plead to you, is there nothingyou> can> > do?> >> > I don't know what the deal is J, but yes if we set up some kind of fund> that> > was held in trust for you, I would donate to it. My only issue is I amso> > totally clueless about these kind of issues.> >> > Anyone out there have any ideas?> >> > Let me know> > HUGS> > ----- Original Message -----> > From: "JHH7" <rogerlh@...>> > < >> > Sent: Wednesday, August 28, 2002 10:47 PM> > Subject: Re: Layne emergency procedure QUESTION explant> > surgery on June 21> >> >> > > I am interested to know under what circumstances explant is anemergency> > > procedure?> > > And what the circumstances of Laynes was?> > > Anyone else have explant covered as an emergency?> > >> > > That is how the dr. here made it sound extremely "urgent" she said,take> > > care of it "immediately" but I don't see anyone rushing me in as ifit> > were> > > truly emergent.> > >> > > My insurance definitely covers explants of extracapsular ruptured> spilling> > > silicone as well as lymph's, not to mention calcifications thatcould> be> > > cancer. There is no doubt it is a medically necessary procedure andNOT> > > elective and covered by my insurance. It is not elective surgery. Noone> > > elects to have this spilling in there body and being absorbed through> out> > > their lymph system.> > > But try to find a dr. who is willing to accept the insurance.> > >> > > OUT OF STATE PROVIDERS for me I am told:> > > for an out of state provider to be covered it would have to be an> > > emergency. My dr. here is willing to write a letter stating that and> that> > > my condition is worsening and really needs immediate attention. But Iam> > > not sure that is what constitutes an emergency procedure like Layne> > > mentions in this post back then. That is why I am trying tounderstand> > her> > > situation.> > >> > > My care has waited too long already. No one should have to waitmonths> on> > > end and it has progressed significantly. My original surgeon as youknow> > > delayed my care far too long. The longer this goes the less chance of> > > cleaning it up and having a reduction in my medical problems.> > >> > > But now with the thought that a lymphoma could be in the mix with all> the> > > other issues in my groin only further adds to the need to have thisdone> > > quickly.> > >> > > Dr. Feng opted out of Medicare - so there would be no hope of> > > reimbursement. I have no money to pay out of pocket!!! The travel> expenses> > > alone is a hardship.> > >> > > , I have been on disability for a VERY long time/ YEARS andhave> no> > > assets what so ever. It is terrible - - I barely have enough moneyfor> my> > > food and personal needs. I was young when I first go sick so my> disability> > > is next to nothing.> > > This is it. I have been struggling for so many years and have tons of> > > medical bills for things that were not covered like optical, dental,> et.,> > > and some co.-pays but over many many years it adds up to a lot of> medical> > > bills. I am single and have no idea what people do and how theymanage.> > >> > > I had a very bright future until I became so ill.> > >> > > The only help I get now is Medicaid secondary (Medicare primary)which> has> > > now helped from incurring more medical debt. I don't even have moneyfor> > my> > > prescription medications. Now Medicaid has prescription coverage.> > >> > > This is so demoralizing and painful to even talk about. I came from a> very> > > nice hard working middle class family but everyone has died.> > >> > > START A DONATION FUND PLEASE> > > I thought of that.........maybe a donation fund.......if we could ask> > > people to just donate what they can.> > > I had thought if we could get 200 people to donate $50. each I would> > almost> > > have enough to go.> > >> > > It makes me so mad all the "foundation"/ funds people get for thisor> > that> > > .....you know all those righteous issues and NOT for medical care. I> don't> > > want to ruffle any feathers, but it does totally dishearten me. Thisis> > > America, why can't I go to the appropriate surgeon and get thenecessary> > > care?> > >> > > It doesn't look like someone is going to come in and sweep me off my> feet> > > nor am I going to be in a position to receive jewelry of any value to> > sell.> > >> > > Well, those are my thoughts.> > > I would still like to know what constitutes and emergency explant???> > > I still don't know and my case is very advanced.> > >> > > I am sorry to post all this but I did see a request for more> > participation.> > >> > >> > > Thanks.> > > I hope Layne or others will respond.> > > Thank you for listening.> > >> > > Warmly,> > > J-> > > ----------> > > > From: Heer <idagirl@...>> > > > > > > > Subject: Re: Layne emergency procedure QUESTION> explant> > > surgery on June 21> > > > Date: Wednesday, August 28, 2002 11:23 PM> > > >> > > > J> > > >> > > > I would think that there has got to be a way to get this coveredwith> > > your> > > > insurance somehow. Is Dr Feng totally uinable to accept theinsurance> > you> > > > have? Hqave you considered getting a letter from a former patientlike> > > me,> > > > what about if we formed a bunch of signatures and got everyone to> donate> > > a> > > > small amount of money to help you along. Is there no way you cancome> up> > > > with some cash like seelling a ring or something of value? Thinkand> let> > > me> > > > know what ideas you have!@> > > > hugs to you> > > > c> > > > ----- Original Message -----> > > > From: "JHH7" <rogerlh@...>> > > > < >> > > > Sent: Wednesday, August 28, 2002 7:06 PM> > > > Subject: Layne emergency procedure QUESTION explant> > > surgery> > > > on June 21> > > >> > > >> > > > > Hi Layne,> > > > >> > > > > I hope you don't mind my asking a question so late after yourpost.> > > > >> > > > > I just came across this post and I am DESPERATELY trying to getmy> > very> > > > > ruptured silicone implants explanted.> > > > >> > > > > You mention that your insurance covered it as an "emergency> > procedure."> > > I> > > > > have been inquiring about that exact issue!!!> > > > >> > > > > Can you tell me more about it being a "emergency" especially inthe> > > eyes> > > > of> > > > > your insurance. I really could use some input on this. My dr.said> he> > > will> > > > > write the insurance co.> > > > >> > > > > Anything you can share with me would be most appreciated.> > > > >> > > > > Thank you very much in advance.> > > > > J> > > > >> > > > > ----------> > > > > > From: Laynie1434@...> > > > > > > > > > > > Subject: Re: explant surgery on June 21> > > > > > Date: Wednesday, June 26, 2002 12:50 PM> > > > > >> > > > > ,> > > > >> > > > > Wow, you really went through alot! I had no idea of what you went> > > through.> > > > > Im> > > > > gald that you will soon have your explant, and be on your way toa> > more> > > > > healthier and happier life. I never went through anything likethat> > > > before,> > > > >> > > > > and I could not even imagine what hell you went through. I toohad> > mine> > > > for> > > > > 5> > > > > years, and just recently had an infection on my left breast. Test> are> > > > still> > > > >> > > > > being done, and I have not recieved all the information yet. You> > > > mentioned,> > > > >> > > > > that you were saving up the $$$$$, but can't your insurance cover> it,> > > as> > > > an> > > > >> > > > > emergency procedure, and pick up the cost for you? Mine did... Im> just> > > > > courious, because the sooner, the better for you. Gosh, I feel so> > > terrible> > > > > that you had to go through all that. I do wish you the best andhope> > > that> > > > > you> > > > > will stay in touch. I love being connected to women as yourself,> being> > > we> > > > > all> > > > > have something in common. "Implants".... If I had only knew ofall> > this> > > > > sooner, or had known the problems associated with them, I wouldhave> > > > > thought> > > > > twice. Thanks for sharing your story with me!> > > > >> > > > > Your Friend> > > > > Layne> > > > >> > > > >> > > > >> > > > >

[Guest guest]

Thank you e,

Yes. There is no doubt that my insurance covers this! I spoke with the ins.

personally!!!

Medicare primary and Medicaid secondary (which would pick up the co.-pay).

That is important because I will require a hospital stay (and a bill for

that too).

But ps is a whole other story............a general surgeon could do the

lymph's simultaneously. But the silicone spill has to be addressed by an

experienced ps.

I have severely ruptured old MEME (Polyurethane) SILICONE under the muscle

with extracapsular rupture, migration outside of the capsule, and silicone

seen in the axilla lymph nodes and most importantly I have calcification in

the lymph node in my groin.

plastic surgery indicated it was silicone but My rheumy thought surgery

ALSO explained to me that if the " calcification " in the lymph in the groin

area is NOT silicone then it could be a lymphoma (which is cancer). There

is no way to know until its removed and checked. I did not know this until

a week ago. Because of my cardiac and pulmonary status undergoing 2

surgeries is NOT recommended.

NOW also a minor problem on my upper arm is a BIG problem that they are

evaluating. He is looking for " silicone debris " I have a lump and pain,

now numbness in my fingers. Just great huh? They think it is part of the

" shell or something " I can see it on the MRI films myself.

I could see the progression of the extracapsular migration myself and I

have major increase in localized symptoms. It is just going to get messier

and more complex the longer the delays.

I have severe systemic medical problems (that is why I am on disability) as

well as localized problems (SEVERE burning / pain). Most likely from the

raw silicone in my tissue and the inflammatory response!!!

My primary dx is lupus with all the complications - secondary dx are too

long to list. I have pulmonary, cardiac, vascular, skin, muscle, bone,

ect..... involvement

I have known about the rupture since FEB and STILL can't get this out!!! I

keep trying and trying......Everything is getting worse!!!

Obviously, no one is suppose to have silicone " spilt " in their body. It is

a " medically necessary and urgent procedure and not elective surgery.

I need a very good dr. I guess I could have gone to any " butcher " at some

clinic somewhere, but my case definitely warrants a SKILLED and EXPERIENCED

surgeon. I can not undergo several surgeries!!!

Calling the insurance co. for a referral is joke, as they would probably

recommend a clinic (i.e. the cheapest way to go)......Yah right like their

going to know how to handle a silicone spill outside the capsule and lymph

involvement and potentially lymphoma on a Lupus patient!!

Calling the American Board of Aesthetics and American Plastic surgeons is

also a joke, as they just have a list of board certified surgeons. Spilt

silicone is not exactly listed as a specialty or on their CV. Who would

pick a dr. out of a hat like that for this type of procedure? You would

have to be totally ignorant. I suppose, ignorance is bliss.

And then there is the insurance and financial issues......

As you say and as I know all to well from this experience.......... try to

find a dr. willing to accept my insurance. It is really a catch isn't

it???!!!!????

I hope I have answered your questions. Thank you for listening and thank

you for your reply and support!!!

Love,

J-

----------

From: e Rene <e_Rene@...>

< >

Subject: Re: Layne emergency procedure QUESTION explant

surgery on June 2

Date: Friday, August 30, 2002 11:01 PM

J-

I am correct in understanding that you have primary as medicare, secondary

as medicaid? And you have confirmed this explant will be covered?

I completely understand your dilemna about " good " and " bad " insr. No one

wants to take medicare/medicaid because the reimbursement is so poor, but

it doesn't give doctors an excuse to deny or " turn away " pts from getting

care they need. I ask the same question as you--why does it seem that

people with " poor " insr are worse off than those w/o insr? I don't know

that we will ever have those answers. All I can say is that our health

care system is one of the worst in the world as far as the insr issue goes,

and it's only getting worse. And what pisses me off even more, is that I

was just on a website this past wknd where it reviewed average salaries of

MD's, nurses, and pharmacists. The salaries would astound you--even me,

who is a RN, and has some knowledge of what docs are making, well, it blew

me away. After seeing these salaries, you'd think that a few charitable

cases a yr wouldn't be a big deal. But it comes down to greed, and the

almighty dollar!

Anyway, I have some ideas about your situation. First of all, I would like

to try to clarify what would be classified as an " emergency " explant. Now,

Dr. Kolb or anyone else can correct me, because I could very well be wrong,

but based on my own personal situation and what Dr. Huang told me a yr ago,

is that an emergency explant would be any case in which your health is

endangered, or you are experiencing a severe reaction, in which waiting for

any period of time could be detrimental to you. I can't remember the exact

circumstances of your situation, but if I recall correctly, I remember you

writing that something major had happened (a rupture?). And do you have

silicone or saline? How long have you had them? What health problems do

you have?

The fact that your doc is willing to support you with a letter is a plus,

now it is just finding a doc who accepts your insr---correct? And what

state are you in? I can see what I can do when I have the answers to the

above questions. I will honestly do what I can, to see what info I can

obtain for you. Also, what docs have you contacted to do the explant?

e

----- Original Message -----

From: JHH7

Sent: Thursday, August 29, 2002 9:39 PM

Subject: Re: Layne emergency procedure QUESTION explant

surgery on June 21

As I said below, in greater length..........

" my insurance covers explant, But try to find a dr. who is willing to

accept the insurance. "

Seems to be a catch ? I am a victim of the system!

It seems then, one is in a worse position when they have poor insurance vs

no insurance? Something is not right.

I want to thank the girls who are so kind in offering to help me!!!

I am still trying to learn what qualifies an emergent explant? My dr. is

willing to write the insurance co. and express the ergency? Otherwise,

how does one 'realistically' get explanted with poor insurance?

Thank you for your support! I hope to hear back.

Warmly,

J-

----------

> From: Dr. Kolb <drkolb@...>

>

> Subject: RE: Layne emergency procedure QUESTION explant

surgery on June 21

> Date: Thursday, August 29, 2002 11:23 PM

>

> She is much less likely to qualify for charitable funds as she had full

> insurance in New York. Out best bet is to find her a surgeon in the

state

> where she is covered. I have done many charitable explants and even

gotten

> the hospitals to cover OR and anesthesia fees but this will be very

> difficult with her insurance situation. You have to prove you have no

> resources to qualify for these charitable programs. .

>

> -----Original Message-----

> From: Heer [mailto:idagirl@...]

> Sent: Thursday, August 29, 2002 9:50 AM

>

> Subject: Re: Layne emergency procedure QUESTION explant

> surgery on June 21

>

>

> I am not trying to put any pressure on you at all I just thought

that

> being a Dr you might at least be able to give us some ideas as to what we

> could do to set up some kind of trust or something.

>

> hugs

>

> ----- Original Message -----

> From: " Heer " <idagirl@...>

> < >

> Sent: Thursday, August 29, 2002 7:34 AM

> Subject: Re: Layne emergency procedure QUESTION explant

> surgery on June 21

>

>

> > Ladies there has to be something we can do to help J. Dr Kolb I am

> pleading

> > with you, would you somehow take this case on as a charitable type

thing.

> It

> > could help you to earn a reputation for caring and compassion, while I

> > realize that it could sprout others looking for free surgery, I feel it

> > would be such a good thing for you, I plead to you, is there nothing

you

> can

> > do?

> >

> > I don't know what the deal is J, but yes if we set up some kind of fund

> that

> > was held in trust for you, I would donate to it. My only issue is I am

so

> > totally clueless about these kind of issues.

> >

> > Anyone out there have any ideas?

> >

> > Let me know

> > HUGS

> > ----- Original Message -----

> > From: " JHH7 " <rogerlh@...>

> > < >

> > Sent: Wednesday, August 28, 2002 10:47 PM

> > Subject: Re: Layne emergency procedure QUESTION explant

> > surgery on June 21

> >

> >

> > > I am interested to know under what circumstances explant is an

emergency

> > > procedure?

> > > And what the circumstances of Laynes was?

> > > Anyone else have explant covered as an emergency?

> > >

> > > That is how the dr. here made it sound extremely " urgent " she said,

take

> > > care of it " immediately " but I don't see anyone rushing me in as if

it

> > were

> > > truly emergent.

> > >

> > > My insurance definitely covers explants of extracapsular ruptured

> spilling

> > > silicone as well as lymph's, not to mention calcifications that

could

> be

> > > cancer. There is no doubt it is a medically necessary procedure and

NOT

> > > elective and covered by my insurance. It is not elective surgery. No

one

> > > elects to have this spilling in there body and being absorbed through

> out

> > > their lymph system.

> > > But try to find a dr. who is willing to accept the insurance.

> > >

> > > OUT OF STATE PROVIDERS for me I am told:

> > > for an out of state provider to be covered it would have to be an

> > > emergency. My dr. here is willing to write a letter stating that and

> that

> > > my condition is worsening and really needs immediate attention. But I

am

> > > not sure that is what constitutes an emergency procedure like Layne

> > > mentions in this post back then. That is why I am trying to

understand

> > her

> > > situation.

> > >

> > > My care has waited too long already. No one should have to wait

months

> on

> > > end and it has progressed significantly. My original surgeon as you

know

> > > delayed my care far too long. The longer this goes the less chance of

> > > cleaning it up and having a reduction in my medical problems.

> > >

> > > But now with the thought that a lymphoma could be in the mix with all

> the

> > > other issues in my groin only further adds to the need to have this

done

> > > quickly.

> > >

> > > Dr. Feng opted out of Medicare - so there would be no hope of

> > > reimbursement. I have no money to pay out of pocket!!! The travel

> expenses

> > > alone is a hardship.

> > >

> > > , I have been on disability for a VERY long time/ YEARS and

have

> no

> > > assets what so ever. It is terrible - - I barely have enough money

for

> my

> > > food and personal needs. I was young when I first go sick so my

> disability

> > > is next to nothing.

> > > This is it. I have been struggling for so many years and have tons of

> > > medical bills for things that were not covered like optical, dental,

> et.,

> > > and some co.-pays but over many many years it adds up to a lot of

> medical

> > > bills. I am single and have no idea what people do and how they

manage.

> > >

> > > I had a very bright future until I became so ill.

> > >

> > > The only help I get now is Medicaid secondary (Medicare primary)

which

> has

> > > now helped from incurring more medical debt. I don't even have money

for

> > my

> > > prescription medications. Now Medicaid has prescription coverage.

> > >

> > > This is so demoralizing and painful to even talk about. I came from a

> very

> > > nice hard working middle class family but everyone has died.

> > >

> > > START A DONATION FUND PLEASE

> > > I thought of that.........maybe a donation fund.......if we could ask

> > > people to just donate what they can.

> > > I had thought if we could get 200 people to donate $50. each I would

> > almost

> > > have enough to go.

> > >

> > > It makes me so mad all the " foundation " / funds people get for this

or

> > that

> > > .....you know all those righteous issues and NOT for medical care. I

> don't

> > > want to ruffle any feathers, but it does totally dishearten me. This

is

> > > America, why can't I go to the appropriate surgeon and get the

necessary

> > > care?

> > >

> > > It doesn't look like someone is going to come in and sweep me off my

> feet

> > > nor am I going to be in a position to receive jewelry of any value to

> > sell.

> > >

> > > Well, those are my thoughts.

> > > I would still like to know what constitutes and emergency explant???

> > > I still don't know and my case is very advanced.

> > >

> > > I am sorry to post all this but I did see a request for more

> > participation.

> > >

> > >

> > > Thanks.

> > > I hope Layne or others will respond.

> > > Thank you for listening.

> > >

> > > Warmly,

> > > J-

> > > ----------

> > > > From: Heer <idagirl@...>

> > > >

> > > > Subject: Re: Layne emergency procedure QUESTION

> explant

> > > surgery on June 21

> > > > Date: Wednesday, August 28, 2002 11:23 PM

> > > >

> > > > J

> > > >

> > > > I would think that there has got to be a way to get this covered

with

> > > your

> > > > insurance somehow. Is Dr Feng totally uinable to accept the

insurance

> > you

> > > > have? Hqave you considered getting a letter from a former patient

like

> > > me,

> > > > what about if we formed a bunch of signatures and got everyone to

> donate

> > > a

> > > > small amount of money to help you along. Is there no way you can

come

> up

> > > > with some cash like seelling a ring or something of value? Think

and

> let

> > > me

> > > > know what ideas you have!@

> > > > hugs to you

> > > > c

> > > > ----- Original Message -----

> > > > From: " JHH7 " <rogerlh@...>

> > > > < >

> > > > Sent: Wednesday, August 28, 2002 7:06 PM

> > > > Subject: Layne emergency procedure QUESTION explant

> > > surgery

> > > > on June 21

> > > >

> > > >

> > > > > Hi Layne,

> > > > >

> > > > > I hope you don't mind my asking a question so late after your

post.

> > > > >

> > > > > I just came across this post and I am DESPERATELY trying to get

my

> > very

> > > > > ruptured silicone implants explanted.

> > > > >

> > > > > You mention that your insurance covered it as an " emergency

> > procedure. "

> > > I

> > > > > have been inquiring about that exact issue!!!

> > > > >

> > > > > Can you tell me more about it being a " emergency " especially in

the

> > > eyes

> > > > of

> > > > > your insurance. I really could use some input on this. My dr.

said

> he

> > > will

> > > > > write the insurance co.

> > > > >

> > > > > Anything you can share with me would be most appreciated.

> > > > >

> > > > > Thank you very much in advance.

> > > > > J

> > > > >

> > > > > ----------

> > > > > > From: Laynie1434@...

> > > > > >

> > > > > > Subject: Re: explant surgery on June 21

> > > > > > Date: Wednesday, June 26, 2002 12:50 PM

> > > > > >

> > > > > ,

> > > > >

> > > > > Wow, you really went through alot! I had no idea of what you went

> > > through.

> > > > > Im

> > > > > gald that you will soon have your explant, and be on your way to

a

> > more

> > > > > healthier and happier life. I never went through anything like

that

> > > > before,

> > > > >

> > > > > and I could not even imagine what hell you went through. I too

had

> > mine

> > > > for

> > > > > 5

> > > > > years, and just recently had an infection on my left breast. Test

> are

> > > > still

> > > > >

> > > > > being done, and I have not recieved all the information yet. You

> > > > mentioned,

> > > > >

> > > > > that you were saving up the $$$$$, but can't your insurance cover

> it,

> > > as

> > > > an

> > > > >

> > > > > emergency procedure, and pick up the cost for you? Mine did... Im

> just

> > > > > courious, because the sooner, the better for you. Gosh, I feel so

> > > terrible

> > > > > that you had to go through all that. I do wish you the best and

hope

> > > that

> > > > > you

> > > > > will stay in touch. I love being connected to women as yourself,

> being

> > > we

> > > > > all

> > > > > have something in common. " Implants " .... If I had only knew of

all

> > this

> > > > > sooner, or had known the problems associated with them, I would

have

> > > > > thought

> > > > > twice. Thanks for sharing your story with me!

> > > > >

> > > > > Your Friend

> > > > > Layne

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

J, With your permission, could I forward your email to Dr. Huang? I have contacted her to see if she does reduced fee surgeries or could help out in any way. I'd like for her to be able to read what your health problems are and what implants you have. If you don't want me to forward it, I won't. Just let me know either way. In the meantime, I will try my hardest to help you out. I know that if Dr. Huang pulls through on this, and you can get out to Denver (I actually have a companion ticket I might be able to give you on American Airlines), I can help you out even more. I won't be back in Denver until Nov, but if you were willing to wait a couple more months, you are more than welcome to stay with me. AND, Dr. Huang operates out of the hospital I will be working at--so if you wanted, I could take care of you in the recovery room. Please hang in there, and we will work something out. I know Denver sounds far away from where you're at, but Dr. Huang really is one of the best surgeons out there, and if I can give you a companion ticket, and you can stay with me, it would be well worth it. Unfortunately, I just don't know if she accepts medicare/medicaid. I have emailed her and asked her. But please do let me know if I can forward your email to her. e ----- Original Message ----- From: JHH7 Sent: Friday, August 30, 2002 9:14 PM Subject: Re: Layne emergency procedure QUESTION explant surgery on June 2 Thank you e,Yes. There is no doubt that my insurance covers this! I spoke with the ins.personally!!! Medicare primary and Medicaid secondary (which would pick up the co.-pay).That is important because I will require a hospital stay (and a bill forthat too). But ps is a whole other story............a general surgeon could do thelymph's simultaneously. But the silicone spill has to be addressed by anexperienced ps.I have severely ruptured old MEME (Polyurethane) SILICONE under the musclewith extracapsular rupture, migration outside of the capsule, and siliconeseen in the axilla lymph nodes and most importantly I have calcification inthe lymph node in my groin. plastic surgery indicated it was silicone but My rheumy thought surgeryALSO explained to me that if the "calcification" in the lymph in the groinarea is NOT silicone then it could be a lymphoma (which is cancer). Thereis no way to know until its removed and checked. I did not know this untila week ago. Because of my cardiac and pulmonary status undergoing 2surgeries is NOT recommended. NOW also a minor problem on my upper arm is a BIG problem that they areevaluating. He is looking for "silicone debris" I have a lump and pain,now numbness in my fingers. Just great huh? They think it is part of the"shell or something" I can see it on the MRI films myself. I could see the progression of the extracapsular migration myself and Ihave major increase in localized symptoms. It is just going to get messierand more complex the longer the delays.I have severe systemic medical problems (that is why I am on disability) aswell as localized problems (SEVERE burning / pain). Most likely from theraw silicone in my tissue and the inflammatory response!!! My primary dx is lupus with all the complications - secondary dx are toolong to list. I have pulmonary, cardiac, vascular, skin, muscle, bone,ect..... involvementI have known about the rupture since FEB and STILL can't get this out!!! Ikeep trying and trying......Everything is getting worse!!! Obviously, no one is suppose to have silicone "spilt" in their body. It isa "medically necessary and urgent procedure and not elective surgery.I need a very good dr. I guess I could have gone to any "butcher" at someclinic somewhere, but my case definitely warrants a SKILLED and EXPERIENCEDsurgeon. I can not undergo several surgeries!!! Calling the insurance co. for a referral is joke, as they would probablyrecommend a clinic (i.e. the cheapest way to go)......Yah right like theirgoing to know how to handle a silicone spill outside the capsule and lymphinvolvement and potentially lymphoma on a Lupus patient!! Calling the American Board of Aesthetics and American Plastic surgeons isalso a joke, as they just have a list of board certified surgeons. Spiltsilicone is not exactly listed as a specialty or on their CV. Who wouldpick a dr. out of a hat like that for this type of procedure? You wouldhave to be totally ignorant. I suppose, ignorance is bliss.And then there is the insurance and financial issues......As you say and as I know all to well from this experience.......... try tofind a dr. willing to accept my insurance. It is really a catch isn'tit???!!!!????I hope I have answered your questions. Thank you for listening and thankyou for your reply and support!!!Love,J- ----------From: e Rene <e_Rene@...> < >Subject: Re: Layne emergency procedure QUESTION explantsurgery on June 2Date: Friday, August 30, 2002 11:01 PMJ-I am correct in understanding that you have primary as medicare, secondaryas medicaid? And you have confirmed this explant will be covered? I completely understand your dilemna about "good" and "bad" insr. No onewants to take medicare/medicaid because the reimbursement is so poor, butit doesn't give doctors an excuse to deny or "turn away" pts from gettingcare they need. I ask the same question as you--why does it seem thatpeople with "poor" insr are worse off than those w/o insr? I don't knowthat we will ever have those answers. All I can say is that our healthcare system is one of the worst in the world as far as the insr issue goes,and it's only getting worse. And what pisses me off even more, is that Iwas just on a website this past wknd where it reviewed average salaries ofMD's, nurses, and pharmacists. The salaries would astound you--even me,who is a RN, and has some knowledge of what docs are making, well, it blewme away. After seeing these salaries, you'd think that a few charitablecases a yr wouldn't be a big deal. But it comes down to greed, and thealmighty dollar!Anyway, I have some ideas about your situation. First of all, I would liketo try to clarify what would be classified as an "emergency" explant. Now,Dr. Kolb or anyone else can correct me, because I could very well be wrong,but based on my own personal situation and what Dr. Huang told me a yr ago,is that an emergency explant would be any case in which your health isendangered, or you are experiencing a severe reaction, in which waiting forany period of time could be detrimental to you. I can't remember the exactcircumstances of your situation, but if I recall correctly, I remember youwriting that something major had happened (a rupture?). And do you havesilicone or saline? How long have you had them? What health problems doyou have? The fact that your doc is willing to support you with a letter is a plus,now it is just finding a doc who accepts your insr---correct? And whatstate are you in? I can see what I can do when I have the answers to theabove questions. I will honestly do what I can, to see what info I canobtain for you. Also, what docs have you contacted to do the explant? e----- Original Message -----From: JHH7Sent: Thursday, August 29, 2002 9:39 PM Subject: Re: Layne emergency procedure QUESTION explantsurgery on June 21As I said below, in greater length.........."my insurance covers explant, But try to find a dr. who is willing toaccept the insurance."Seems to be a catch ? I am a victim of the system! It seems then, one is in a worse position when they have poor insurance vsno insurance? Something is not right.I want to thank the girls who are so kind in offering to help me!!! I am still trying to learn what qualifies an emergent explant? My dr. iswilling to write the insurance co. and express the ergency? Otherwise,how does one 'realistically' get explanted with poor insurance?Thank you for your support! I hope to hear back.Warmly,J-----------> From: Dr. Kolb <drkolb@...>> > Subject: RE: Layne emergency procedure QUESTION explantsurgery on June 21> Date: Thursday, August 29, 2002 11:23 PM> > She is much less likely to qualify for charitable funds as she had full> insurance in New York. Out best bet is to find her a surgeon in thestate> where she is covered. I have done many charitable explants and evengotten> the hospitals to cover OR and anesthesia fees but this will be very> difficult with her insurance situation. You have to prove you have no> resources to qualify for these charitable programs. .> > -----Original Message-----> From: Heer [mailto:idagirl@...]> Sent: Thursday, August 29, 2002 9:50 AM> > Subject: Re: Layne emergency procedure QUESTION explant> surgery on June 21> > > I am not trying to put any pressure on you at all I just thoughtthat> being a Dr you might at least be able to give us some ideas as to what we> could do to set up some kind of trust or something.> > hugs> > ----- Original Message -----> From: " Heer" <idagirl@...>> < >> Sent: Thursday, August 29, 2002 7:34 AM> Subject: Re: Layne emergency procedure QUESTION explant> surgery on June 21> > > > Ladies there has to be something we can do to help J. Dr Kolb I am> pleading> > with you, would you somehow take this case on as a charitable typething.> It> > could help you to earn a reputation for caring and compassion, while I> > realize that it could sprout others looking for free surgery, I feel it> > would be such a good thing for you, I plead to you, is there nothingyou> can> > do?> >> > I don't know what the deal is J, but yes if we set up some kind of fund> that> > was held in trust for you, I would donate to it. My only issue is I amso> > totally clueless about these kind of issues.> >> > Anyone out there have any ideas?> >> > Let me know> > HUGS> > ----- Original Message -----> > From: "JHH7" <rogerlh@...>> > < >> > Sent: Wednesday, August 28, 2002 10:47 PM> > Subject: Re: Layne emergency procedure QUESTION explant> > surgery on June 21> >> >> > > I am interested to know under what circumstances explant is anemergency> > > procedure?> > > And what the circumstances of Laynes was?> > > Anyone else have explant covered as an emergency?> > >> > > That is how the dr. here made it sound extremely "urgent" she said,take> > > care of it "immediately" but I don't see anyone rushing me in as ifit> > were> > > truly emergent.> > >> > > My insurance definitely covers explants of extracapsular ruptured> spilling> > > silicone as well as lymph's, not to mention calcifications thatcould> be> > > cancer. There is no doubt it is a medically necessary procedure andNOT> > > elective and covered by my insurance. It is not elective surgery. Noone> > > elects to have this spilling in there body and being absorbed through> out> > > their lymph system.> > > But try to find a dr. who is willing to accept the insurance.> > >> > > OUT OF STATE PROVIDERS for me I am told:> > > for an out of state provider to be covered it would have to be an> > > emergency. My dr. here is willing to write a letter stating that and> that> > > my condition is worsening and really needs immediate attention. But Iam> > > not sure that is what constitutes an emergency procedure like Layne> > > mentions in this post back then. That is why I am trying tounderstand> > her> > > situation.> > >> > > My care has waited too long already. No one should have to waitmonths> on> > > end and it has progressed significantly. My original surgeon as youknow> > > delayed my care far too long. The longer this goes the less chance of> > > cleaning it up and having a reduction in my medical problems.> > >> > > But now with the thought that a lymphoma could be in the mix with all> the> > > other issues in my groin only further adds to the need to have thisdone> > > quickly.> > >> > > Dr. Feng opted out of Medicare - so there would be no hope of> > > reimbursement. I have no money to pay out of pocket!!! The travel> expenses> > > alone is a hardship.> > >> > > , I have been on disability for a VERY long time/ YEARS andhave> no> > > assets what so ever. It is terrible - - I barely have enough moneyfor> my> > > food and personal needs. I was young when I first go sick so my> disability> > > is next to nothing.> > > This is it. I have been struggling for so many years and have tons of> > > medical bills for things that were not covered like optical, dental,> et.,> > > and some co.-pays but over many many years it adds up to a lot of> medical> > > bills. I am single and have no idea what people do and how theymanage.> > >> > > I had a very bright future until I became so ill.> > >> > > The only help I get now is Medicaid secondary (Medicare primary)which> has> > > now helped from incurring more medical debt. I don't even have moneyfor> > my> > > prescription medications. Now Medicaid has prescription coverage.> > >> > > This is so demoralizing and painful to even talk about. I came from a> very> > > nice hard working middle class family but everyone has died.> > >> > > START A DONATION FUND PLEASE> > > I thought of that.........maybe a donation fund.......if we could ask> > > people to just donate what they can.> > > I had thought if we could get 200 people to donate $50. each I would> > almost> > > have enough to go.> > >> > > It makes me so mad all the "foundation"/ funds people get for thisor> > that> > > .....you know all those righteous issues and NOT for medical care. I> don't> > > want to ruffle any feathers, but it does totally dishearten me. Thisis> > > America, why can't I go to the appropriate surgeon and get thenecessary> > > care?> > >> > > It doesn't look like someone is going to come in and sweep me off my> feet> > > nor am I going to be in a position to receive jewelry of any value to> > sell.> > >> > > Well, those are my thoughts.> > > I would still like to know what constitutes and emergency explant???> > > I still don't know and my case is very advanced.> > >> > > I am sorry to post all this but I did see a request for more> > participation.> > >> > >> > > Thanks.> > > I hope Layne or others will respond.> > > Thank you for listening.> > >> > > Warmly,> > > J-> > > ----------> > > > From: Heer <idagirl@...>> > > > > > > > Subject: Re: Layne emergency procedure QUESTION> explant> > > surgery on June 21> > > > Date: Wednesday, August 28, 2002 11:23 PM> > > >> > > > J> > > >> > > > I would think that there has got to be a way to get this coveredwith> > > your> > > > insurance somehow. Is Dr Feng totally uinable to accept theinsurance> > you> > > > have? Hqave you considered getting a letter from a former patientlike> > > me,> > > > what about if we formed a bunch of signatures and got everyone to> donate> > > a> > > > small amount of money to help you along. Is there no way you cancome> up> > > > with some cash like seelling a ring or something of value? Thinkand> let> > > me> > > > know what ideas you have!@> > > > hugs to you> > > > c> > > > ----- Original Message -----> > > > From: "JHH7" <rogerlh@...>> > > > < >> > > > Sent: Wednesday, August 28, 2002 7:06 PM> > > > Subject: Layne emergency procedure QUESTION explant> > > surgery> > > > on June 21> > > >> > > >> > > > > Hi Layne,> > > > >> > > > > I hope you don't mind my asking a question so late after yourpost.> > > > >> > > > > I just came across this post and I am DESPERATELY trying to getmy> > very> > > > > ruptured silicone implants explanted.> > > > >> > > > > You mention that your insurance covered it as an "emergency> > procedure."> > > I> > > > > have been inquiring about that exact issue!!!> > > > >> > > > > Can you tell me more about it being a "emergency" especially inthe> > > eyes> > > > of> > > > > your insurance. I really could use some input on this. My dr.said> he> > > will> > > > > write the insurance co.> > > > >> > > > > Anything you can share with me would be most appreciated.> > > > >> > > > > Thank you very much in advance.> > > > > J> > > > >> > > > > ----------> > > > > > From: Laynie1434@...> > > > > > > > > > > > Subject: Re: explant surgery on June 21> > > > > > Date: Wednesday, June 26, 2002 12:50 PM> > > > > >> > > > > ,> > > > >> > > > > Wow, you really went through alot! I had no idea of what you went> > > through.> > > > > Im> > > > > gald that you will soon have your explant, and be on your way toa> > more> > > > > healthier and happier life. I never went through anything likethat> > > > before,> > > > >> > > > > and I could not even imagine what hell you went through. I toohad> > mine> > > > for> > > > > 5> > > > > years, and just recently had an infection on my left breast. Test> are> > > > still> > > > >> > > > > being done, and I have not recieved all the information yet. You> > > > mentioned,> > > > >> > > > > that you were saving up the $$$$$, but can't your insurance cover> it,> > > as> > > > an> > > > >> > > > > emergency procedure, and pick up the cost for you? Mine did... Im> just> > > > > courious, because the sooner, the better for you. Gosh, I feel so> > > terrible> > > > > that you had to go through all that. I do wish you the best andhope> > > that> > > > > you> > > > > will stay in touch. I love being connected to women as yourself,> being> > > we> > > > > all> > > > > have something in common. "Implants".... If I had only knew ofall> > this> > > > > sooner, or had known the problems associated with them, I wouldhave> > > > > thought> > > > > twice. Thanks for sharing your story with me!> > > > >> > > > > Your Friend> > > > > Layne> > > > >> > > > >> > > > >> > > > >

[Guest guest]

J, Also, there are some excellent general surgeons for the lymph issue. I know Dr. Huang has worked with some, so getting a general surgeon to work on you is something we could also work on. e ----- Original Message ----- From: JHH7 Sent: Friday, August 30, 2002 9:14 PM Subject: Re: Layne emergency procedure QUESTION explant surgery on June 2 Thank you e,Yes. There is no doubt that my insurance covers this! I spoke with the ins.personally!!! Medicare primary and Medicaid secondary (which would pick up the co.-pay).That is important because I will require a hospital stay (and a bill forthat too). But ps is a whole other story............a general surgeon could do thelymph's simultaneously. But the silicone spill has to be addressed by anexperienced ps.I have severely ruptured old MEME (Polyurethane) SILICONE under the musclewith extracapsular rupture, migration outside of the capsule, and siliconeseen in the axilla lymph nodes and most importantly I have calcification inthe lymph node in my groin. plastic surgery indicated it was silicone but My rheumy thought surgeryALSO explained to me that if the "calcification" in the lymph in the groinarea is NOT silicone then it could be a lymphoma (which is cancer). Thereis no way to know until its removed and checked. I did not know this untila week ago. Because of my cardiac and pulmonary status undergoing 2surgeries is NOT recommended. NOW also a minor problem on my upper arm is a BIG problem that they areevaluating. He is looking for "silicone debris" I have a lump and pain,now numbness in my fingers. Just great huh? They think it is part of the"shell or something" I can see it on the MRI films myself. I could see the progression of the extracapsular migration myself and Ihave major increase in localized symptoms. It is just going to get messierand more complex the longer the delays.I have severe systemic medical problems (that is why I am on disability) aswell as localized problems (SEVERE burning / pain). Most likely from theraw silicone in my tissue and the inflammatory response!!! My primary dx is lupus with all the complications - secondary dx are toolong to list. I have pulmonary, cardiac, vascular, skin, muscle, bone,ect..... involvementI have known about the rupture since FEB and STILL can't get this out!!! Ikeep trying and trying......Everything is getting worse!!! Obviously, no one is suppose to have silicone "spilt" in their body. It isa "medically necessary and urgent procedure and not elective surgery.I need a very good dr. I guess I could have gone to any "butcher" at someclinic somewhere, but my case definitely warrants a SKILLED and EXPERIENCEDsurgeon. I can not undergo several surgeries!!! Calling the insurance co. for a referral is joke, as they would probablyrecommend a clinic (i.e. the cheapest way to go)......Yah right like theirgoing to know how to handle a silicone spill outside the capsule and lymphinvolvement and potentially lymphoma on a Lupus patient!! Calling the American Board of Aesthetics and American Plastic surgeons isalso a joke, as they just have a list of board certified surgeons. Spiltsilicone is not exactly listed as a specialty or on their CV. Who wouldpick a dr. out of a hat like that for this type of procedure? You wouldhave to be totally ignorant. I suppose, ignorance is bliss.And then there is the insurance and financial issues......As you say and as I know all to well from this experience.......... try tofind a dr. willing to accept my insurance. It is really a catch isn'tit???!!!!????I hope I have answered your questions. Thank you for listening and thankyou for your reply and support!!!Love,J- ----------From: e Rene <e_Rene@...> < >Subject: Re: Layne emergency procedure QUESTION explantsurgery on June 2Date: Friday, August 30, 2002 11:01 PMJ-I am correct in understanding that you have primary as medicare, secondaryas medicaid? And you have confirmed this explant will be covered? I completely understand your dilemna about "good" and "bad" insr. No onewants to take medicare/medicaid because the reimbursement is so poor, butit doesn't give doctors an excuse to deny or "turn away" pts from gettingcare they need. I ask the same question as you--why does it seem thatpeople with "poor" insr are worse off than those w/o insr? I don't knowthat we will ever have those answers. All I can say is that our healthcare system is one of the worst in the world as far as the insr issue goes,and it's only getting worse. And what pisses me off even more, is that Iwas just on a website this past wknd where it reviewed average salaries ofMD's, nurses, and pharmacists. The salaries would astound you--even me,who is a RN, and has some knowledge of what docs are making, well, it blewme away. After seeing these salaries, you'd think that a few charitablecases a yr wouldn't be a big deal. But it comes down to greed, and thealmighty dollar!Anyway, I have some ideas about your situation. First of all, I would liketo try to clarify what would be classified as an "emergency" explant. Now,Dr. Kolb or anyone else can correct me, because I could very well be wrong,but based on my own personal situation and what Dr. Huang told me a yr ago,is that an emergency explant would be any case in which your health isendangered, or you are experiencing a severe reaction, in which waiting forany period of time could be detrimental to you. I can't remember the exactcircumstances of your situation, but if I recall correctly, I remember youwriting that something major had happened (a rupture?). And do you havesilicone or saline? How long have you had them? What health problems doyou have? The fact that your doc is willing to support you with a letter is a plus,now it is just finding a doc who accepts your insr---correct? And whatstate are you in? I can see what I can do when I have the answers to theabove questions. I will honestly do what I can, to see what info I canobtain for you. Also, what docs have you contacted to do the explant? e----- Original Message -----From: JHH7Sent: Thursday, August 29, 2002 9:39 PM Subject: Re: Layne emergency procedure QUESTION explantsurgery on June 21As I said below, in greater length.........."my insurance covers explant, But try to find a dr. who is willing toaccept the insurance."Seems to be a catch ? I am a victim of the system! It seems then, one is in a worse position when they have poor insurance vsno insurance? Something is not right.I want to thank the girls who are so kind in offering to help me!!! I am still trying to learn what qualifies an emergent explant? My dr. iswilling to write the insurance co. and express the ergency? Otherwise,how does one 'realistically' get explanted with poor insurance?Thank you for your support! I hope to hear back.Warmly,J-----------> From: Dr. Kolb <drkolb@...>> > Subject: RE: Layne emergency procedure QUESTION explantsurgery on June 21> Date: Thursday, August 29, 2002 11:23 PM> > She is much less likely to qualify for charitable funds as she had full> insurance in New York. Out best bet is to find her a surgeon in thestate> where she is covered. I have done many charitable explants and evengotten> the hospitals to cover OR and anesthesia fees but this will be very> difficult with her insurance situation. You have to prove you have no> resources to qualify for these charitable programs. .> > -----Original Message-----> From: Heer [mailto:idagirl@...]> Sent: Thursday, August 29, 2002 9:50 AM> > Subject: Re: Layne emergency procedure QUESTION explant> surgery on June 21> > > I am not trying to put any pressure on you at all I just thoughtthat> being a Dr you might at least be able to give us some ideas as to what we> could do to set up some kind of trust or something.> > hugs> > ----- Original Message -----> From: " Heer" <idagirl@...>> < >> Sent: Thursday, August 29, 2002 7:34 AM> Subject: Re: Layne emergency procedure QUESTION explant> surgery on June 21> > > > Ladies there has to be something we can do to help J. Dr Kolb I am> pleading> > with you, would you somehow take this case on as a charitable typething.> It> > could help you to earn a reputation for caring and compassion, while I> > realize that it could sprout others looking for free surgery, I feel it> > would be such a good thing for you, I plead to you, is there nothingyou> can> > do?> >> > I don't know what the deal is J, but yes if we set up some kind of fund> that> > was held in trust for you, I would donate to it. My only issue is I amso> > totally clueless about these kind of issues.> >> > Anyone out there have any ideas?> >> > Let me know> > HUGS> > ----- Original Message -----> > From: "JHH7" <rogerlh@...>> > < >> > Sent: Wednesday, August 28, 2002 10:47 PM> > Subject: Re: Layne emergency procedure QUESTION explant> > surgery on June 21> >> >> > > I am interested to know under what circumstances explant is anemergency> > > procedure?> > > And what the circumstances of Laynes was?> > > Anyone else have explant covered as an emergency?> > >> > > That is how the dr. here made it sound extremely "urgent" she said,take> > > care of it "immediately" but I don't see anyone rushing me in as ifit> > were> > > truly emergent.> > >> > > My insurance definitely covers explants of extracapsular ruptured> spilling> > > silicone as well as lymph's, not to mention calcifications thatcould> be> > > cancer. There is no doubt it is a medically necessary procedure andNOT> > > elective and covered by my insurance. It is not elective surgery. Noone> > > elects to have this spilling in there body and being absorbed through> out> > > their lymph system.> > > But try to find a dr. who is willing to accept the insurance.> > >> > > OUT OF STATE PROVIDERS for me I am told:> > > for an out of state provider to be covered it would have to be an> > > emergency. My dr. here is willing to write a letter stating that and> that> > > my condition is worsening and really needs immediate attention. But Iam> > > not sure that is what constitutes an emergency procedure like Layne> > > mentions in this post back then. That is why I am trying tounderstand> > her> > > situation.> > >> > > My care has waited too long already. No one should have to waitmonths> on> > > end and it has progressed significantly. My original surgeon as youknow> > > delayed my care far too long. The longer this goes the less chance of> > > cleaning it up and having a reduction in my medical problems.> > >> > > But now with the thought that a lymphoma could be in the mix with all> the> > > other issues in my groin only further adds to the need to have thisdone> > > quickly.> > >> > > Dr. Feng opted out of Medicare - so there would be no hope of> > > reimbursement. I have no money to pay out of pocket!!! The travel> expenses> > > alone is a hardship.> > >> > > , I have been on disability for a VERY long time/ YEARS andhave> no> > > assets what so ever. It is terrible - - I barely have enough moneyfor> my> > > food and personal needs. I was young when I first go sick so my> disability> > > is next to nothing.> > > This is it. I have been struggling for so many years and have tons of> > > medical bills for things that were not covered like optical, dental,> et.,> > > and some co.-pays but over many many years it adds up to a lot of> medical> > > bills. I am single and have no idea what people do and how theymanage.> > >> > > I had a very bright future until I became so ill.> > >> > > The only help I get now is Medicaid secondary (Medicare primary)which> has> > > now helped from incurring more medical debt. I don't even have moneyfor> > my> > > prescription medications. Now Medicaid has prescription coverage.> > >> > > This is so demoralizing and painful to even talk about. I came from a> very> > > nice hard working middle class family but everyone has died.> > >> > > START A DONATION FUND PLEASE> > > I thought of that.........maybe a donation fund.......if we could ask> > > people to just donate what they can.> > > I had thought if we could get 200 people to donate $50. each I would> > almost> > > have enough to go.> > >> > > It makes me so mad all the "foundation"/ funds people get for thisor> > that> > > .....you know all those righteous issues and NOT for medical care. I> don't> > > want to ruffle any feathers, but it does totally dishearten me. Thisis> > > America, why can't I go to the appropriate surgeon and get thenecessary> > > care?> > >> > > It doesn't look like someone is going to come in and sweep me off my> feet> > > nor am I going to be in a position to receive jewelry of any value to> > sell.> > >> > > Well, those are my thoughts.> > > I would still like to know what constitutes and emergency explant???> > > I still don't know and my case is very advanced.> > >> > > I am sorry to post all this but I did see a request for more> > participation.> > >> > >> > > Thanks.> > > I hope Layne or others will respond.> > > Thank you for listening.> > >> > > Warmly,> > > J-> > > ----------> > > > From: Heer <idagirl@...>> > > > > > > > Subject: Re: Layne emergency procedure QUESTION> explant> > > surgery on June 21> > > > Date: Wednesday, August 28, 2002 11:23 PM> > > >> > > > J> > > >> > > > I would think that there has got to be a way to get this coveredwith> > > your> > > > insurance somehow. Is Dr Feng totally uinable to accept theinsurance> > you> > > > have? Hqave you considered getting a letter from a former patientlike> > > me,> > > > what about if we formed a bunch of signatures and got everyone to> donate> > > a> > > > small amount of money to help you along. Is there no way you cancome> up> > > > with some cash like seelling a ring or something of value? Thinkand> let> > > me> > > > know what ideas you have!@> > > > hugs to you> > > > c> > > > ----- Original Message -----> > > > From: "JHH7" <rogerlh@...>> > > > < >> > > > Sent: Wednesday, August 28, 2002 7:06 PM> > > > Subject: Layne emergency procedure QUESTION explant> > > surgery> > > > on June 21> > > >> > > >> > > > > Hi Layne,> > > > >> > > > > I hope you don't mind my asking a question so late after yourpost.> > > > >> > > > > I just came across this post and I am DESPERATELY trying to getmy> > very> > > > > ruptured silicone implants explanted.> > > > >> > > > > You mention that your insurance covered it as an "emergency> > procedure."> > > I> > > > > have been inquiring about that exact issue!!!> > > > >> > > > > Can you tell me more about it being a "emergency" especially inthe> > > eyes> > > > of> > > > > your insurance. I really could use some input on this. My dr.said> he> > > will> > > > > write the insurance co.> > > > >> > > > > Anything you can share with me would be most appreciated.> > > > >> > > > > Thank you very much in advance.> > > > > J> > > > >> > > > > ----------> > > > > > From: Laynie1434@...> > > > > > > > > > > > Subject: Re: explant surgery on June 21> > > > > > Date: Wednesday, June 26, 2002 12:50 PM> > > > > >> > > > > ,> > > > >> > > > > Wow, you really went through alot! I had no idea of what you went> > > through.> > > > > Im> > > > > gald that you will soon have your explant, and be on your way toa> > more> > > > > healthier and happier life. I never went through anything likethat> > > > before,> > > > >> > > > > and I could not even imagine what hell you went through. I toohad> > mine> > > > for> > > > > 5> > > > > years, and just recently had an infection on my left breast. Test> are> > > > still> > > > >> > > > > being done, and I have not recieved all the information yet. You> > > > mentioned,> > > > >> > > > > that you were saving up the $$$$$, but can't your insurance cover> it,> > > as> > > > an> > > > >> > > > > emergency procedure, and pick up the cost for you? Mine did... Im> just> > > > > courious, because the sooner, the better for you. Gosh, I feel so> > > terrible> > > > > that you had to go through all that. I do wish you the best andhope> > > that> > > > > you> > > > > will stay in touch. I love being connected to women as yourself,> being> > > we> > > > > all> > > > > have something in common. "Implants".... If I had only knew ofall> > this> > > > > sooner, or had known the problems associated with them, I wouldhave> > > > > thought> > > > > twice. Thanks for sharing your story with me!> > > > >> > > > > Your Friend> > > > > Layne> > > > >> > > > >> > > > >> > > > >

[Guest guest]

We take both Medicare and Medicaid but if she does not have out of state beneifts except for emergency procedures she need to research plastic surgeons in the state of New York. I suggest she start to make some appointments. .

-----Original Message-----From: e Rene [mailto:e_Rene@...]Sent: Friday, August 30, 2002 11:01 PM Subject: Re: Layne emergency procedure QUESTION explant surgery on June 2

J-

I am correct in understanding that you have primary as medicare, secondary as medicaid? And you have confirmed this explant will be covered?

I completely understand your dilemna about "good" and "bad" insr. No one wants to take medicare/medicaid because the reimbursement is so poor, but it doesn't give doctors an excuse to deny or "turn away" pts from getting care they need. I ask the same question as you--why does it seem that people with "poor" insr are worse off than those w/o insr? I don't know that we will ever have those answers. All I can say is that our health care system is one of the worst in the world as far as the insr issue goes, and it's only getting worse. And what pisses me off even more, is that I was just on a website this past wknd where it reviewed average salaries of MD's, nurses, and pharmacists. The salaries would astound you--even me, who is a RN, and has some knowledge of what docs are making, well, it blew me away. After seeing these salaries, you'd think that a few charitable cases a yr wouldn't be a big deal. But it comes down to greed, and the almighty dollar!

Anyway, I have some ideas about your situation. First of all, I would like to try to clarify what would be classified as an "emergency" explant. Now, Dr. Kolb or anyone else can correct me, because I could very well be wrong, but based on my own personal situation and what Dr. Huang told me a yr ago, is that an emergency explant would be any case in which your health is endangered, or you are experiencing a severe reaction, in which waiting for any period of time could be detrimental to you. I can't remember the exact circumstances of your situation, but if I recall correctly, I remember you writing that something major had happened (a rupture?). And do you have silicone or saline? How long have you had them? What health problems do you have?

The fact that your doc is willing to support you with a letter is a plus, now it is just finding a doc who accepts your insr---correct? And what state are you in? I can see what I can do when I have the answers to the above questions. I will honestly do what I can, to see what info I can obtain for you. Also, what docs have you contacted to do the explant?

e

----- Original Message -----

From: JHH7

Sent: Thursday, August 29, 2002 9:39 PM

Subject: Re: Layne emergency procedure QUESTION explant surgery on June 21

As I said below, in greater length.........."my insurance covers explant, But try to find a dr. who is willing toaccept the insurance."Seems to be a catch ? I am a victim of the system! It seems then, one is in a worse position when they have poor insurance vsno insurance? Something is not right.I want to thank the girls who are so kind in offering to help me!!! I am still trying to learn what qualifies an emergent explant? My dr. iswilling to write the insurance co. and express the ergency? Otherwise,how does one 'realistically' get explanted with poor insurance?Thank you for your support! I hope to hear back.Warmly,J-----------> From: Dr. Kolb <drkolb@...>> > Subject: RE: Layne emergency procedure QUESTION explantsurgery on June 21> Date: Thursday, August 29, 2002 11:23 PM> > She is much less likely to qualify for charitable funds as she had full> insurance in New York. Out best bet is to find her a surgeon in thestate> where she is covered. I have done many charitable explants and evengotten> the hospitals to cover OR and anesthesia fees but this will be very> difficult with her insurance situation. You have to prove you have no> resources to qualify for these charitable programs. .> > -----Original Message-----> From: Heer [mailto:idagirl@...]> Sent: Thursday, August 29, 2002 9:50 AM> > Subject: Re: Layne emergency procedure QUESTION explant> surgery on June 21> > > I am not trying to put any pressure on you at all I just thoughtthat> being a Dr you might at least be able to give us some ideas as to what we> could do to set up some kind of trust or something.> > hugs> > ----- Original Message -----> From: " Heer" <idagirl@...>> < >> Sent: Thursday, August 29, 2002 7:34 AM> Subject: Re: Layne emergency procedure QUESTION explant> surgery on June 21> > > > Ladies there has to be something we can do to help J. Dr Kolb I am> pleading> > with you, would you somehow take this case on as a charitable typething.> It> > could help you to earn a reputation for caring and compassion, while I> > realize that it could sprout others looking for free surgery, I feel it> > would be such a good thing for you, I plead to you, is there nothingyou> can> > do?> >> > I don't know what the deal is J, but yes if we set up some kind of fund> that> > was held in trust for you, I would donate to it. My only issue is I amso> > totally clueless about these kind of issues.> >> > Anyone out there have any ideas?> >> > Let me know> > HUGS> > ----- Original Message -----> > From: "JHH7" <rogerlh@...>> > < >> > Sent: Wednesday, August 28, 2002 10:47 PM> > Subject: Re: Layne emergency procedure QUESTION explant> > surgery on June 21> >> >> > > I am interested to know under what circumstances explant is anemergency> > > procedure?> > > And what the circumstances of Laynes was?> > > Anyone else have explant covered as an emergency?> > >> > > That is how the dr. here made it sound extremely "urgent" she said,take> > > care of it "immediately" but I don't see anyone rushing me in as ifit> > were> > > truly emergent.> > >> > > My insurance definitely covers explants of extracapsular ruptured> spilling> > > silicone as well as lymph's, not to mention calcifications thatcould> be> > > cancer. There is no doubt it is a medically necessary procedure andNOT> > > elective and covered by my insurance. It is not elective surgery. Noone> > > elects to have this spilling in there body and being absorbed through> out> > > their lymph system.> > > But try to find a dr. who is willing to accept the insurance.> > >> > > OUT OF STATE PROVIDERS for me I am told:> > > for an out of state provider to be covered it would have to be an> > > emergency. My dr. here is willing to write a letter stating that and> that> > > my condition is worsening and really needs immediate attention. But Iam> > > not sure that is what constitutes an emergency procedure like Layne> > > mentions in this post back then. That is why I am trying tounderstand> > her> > > situation.> > >> > > My care has waited too long already. No one should have to waitmonths> on> > > end and it has progressed significantly. My original surgeon as youknow> > > delayed my care far too long. The longer this goes the less chance of> > > cleaning it up and having a reduction in my medical problems.> > >> > > But now with the thought that a lymphoma could be in the mix with all> the> > > other issues in my groin only further adds to the need to have thisdone> > > quickly.> > >> > > Dr. Feng opted out of Medicare - so there would be no hope of> > > reimbursement. I have no money to pay out of pocket!!! The travel> expenses> > > alone is a hardship.> > >> > > , I have been on disability for a VERY long time/ YEARS andhave> no> > > assets what so ever. It is terrible - - I barely have enough moneyfor> my> > > food and personal needs. I was young when I first go sick so my> disability> > > is next to nothing.> > > This is it. I have been struggling for so many years and have tons of> > > medical bills for things that were not covered like optical, dental,> et.,> > > and some co.-pays but over many many years it adds up to a lot of> medical> > > bills. I am single and have no idea what people do and how theymanage.> > >> > > I had a very bright future until I became so ill.> > >> > > The only help I get now is Medicaid secondary (Medicare primary)which> has> > > now helped from incurring more medical debt. I don't even have moneyfor> > my> > > prescription medications. Now Medicaid has prescription coverage.> > >> > > This is so demoralizing and painful to even talk about. I came from a> very> > > nice hard working middle class family but everyone has died.> > >> > > START A DONATION FUND PLEASE> > > I thought of that.........maybe a donation fund.......if we could ask> > > people to just donate what they can.> > > I had thought if we could get 200 people to donate $50. each I would> > almost> > > have enough to go.> > >> > > It makes me so mad all the "foundation"/ funds people get for thisor> > that> > > .....you know all those righteous issues and NOT for medical care. I> don't> > > want to ruffle any feathers, but it does totally dishearten me. Thisis> > > America, why can't I go to the appropriate surgeon and get thenecessary> > > care?> > >> > > It doesn't look like someone is going to come in and sweep me off my> feet> > > nor am I going to be in a position to receive jewelry of any value to> > sell.> > >> > > Well, those are my thoughts.> > > I would still like to know what constitutes and emergency explant???> > > I still don't know and my case is very advanced.> > >> > > I am sorry to post all this but I did see a request for more> > participation.> > >> > >> > > Thanks.> > > I hope Layne or others will respond.> > > Thank you for listening.> > >> > > Warmly,> > > J-> > > ----------> > > > From: Heer <idagirl@...>> > > > > > > > Subject: Re: Layne emergency procedure QUESTION> explant> > > surgery on June 21> > > > Date: Wednesday, August 28, 2002 11:23 PM> > > >> > > > J> > > >> > > > I would think that there has got to be a way to get this coveredwith> > > your> > > > insurance somehow. Is Dr Feng totally uinable to accept theinsurance> > you> > > > have? Hqave you considered getting a letter from a former patientlike> > > me,> > > > what about if we formed a bunch of signatures and got everyone to> donate> > > a> > > > small amount of money to help you along. Is there no way you cancome> up> > > > with some cash like seelling a ring or something of value? Thinkand> let> > > me> > > > know what ideas you have!@> > > > hugs to you> > > > c> > > > ----- Original Message -----> > > > From: "JHH7" <rogerlh@...>> > > > < >> > > > Sent: Wednesday, August 28, 2002 7:06 PM> > > > Subject: Layne emergency procedure QUESTION explant> > > surgery> > > > on June 21> > > >> > > >> > > > > Hi Layne,> > > > >> > > > > I hope you don't mind my asking a question so late after yourpost.> > > > >> > > > > I just came across this post and I am DESPERATELY trying to getmy> > very> > > > > ruptured silicone implants explanted.> > > > >> > > > > You mention that your insurance covered it as an "emergency> > procedure."> > > I> > > > > have been inquiring about that exact issue!!!> > > > >> > > > > Can you tell me more about it being a "emergency" especially inthe> > > eyes> > > > of> > > > > your insurance. I really could use some input on this. My dr.said> he> > > will> > > > > write the insurance co.> > > > >> > > > > Anything you can share with me would be most appreciated.> > > > >> > > > > Thank you very much in advance.> > > > > J> > > > >> > > > > ----------> > > > > > From: Laynie1434@...> > > > > > > > > > > > Subject: Re: explant surgery on June 21> > > > > > Date: Wednesday, June 26, 2002 12:50 PM> > > > > >> > > > > ,> > > > >> > > > > Wow, you really went through alot! I had no idea of what you went> > > through.> > > > > Im> > > > > gald that you will soon have your explant, and be on your way toa> > more> > > > > healthier and happier life. I never went through anything likethat> > > > before,> > > > >> > > > > and I could not even imagine what hell you went through. I toohad> > mine> > > > for> > > > > 5> > > > > years, and just recently had an infection on my left breast. Test> are> > > > still> > > > >> > > > > being done, and I have not recieved all the information yet. You> > > > mentioned,> > > > >> > > > > that you were saving up the $$$$$, but can't your insurance cover> it,> > > as> > > > an> > > > >> > > > > emergency procedure, and pick up the cost for you? Mine did... Im> just> > > > > courious, because the sooner, the better for you. Gosh, I feel so> > > terrible> > > > > that you had to go through all that. I do wish you the best andhope> > > that> > > > > you> > > > > will stay in touch. I love being connected to women as yourself,> being> > > we> > > > > all> > > > > have something in common. "Implants".... If I had only knew ofall> > this> > > > > sooner, or had known the problems associated with them, I wouldhave> > > > > thought> > > > > twice. Thanks for sharing your story with me!> > > > >> > > > > Your Friend> > > > > Layne> > > > >> > > > >> > > > >> > > > >