Guest guest Posted February 5, 2002 Report Share Posted February 5, 2002 Hi Jan Hang in there and remember we are all here for you. Re: [ ] (no subject) Hi Terry..Ask for Trazadone..It really helps..Hey even over the counter Benedryl helps..I used that alot too because I didn't like the effects of the trazadone that much..I honestly think the reason I couldn't handle the tx was I had alot of personal things going on in my life at the time..I was suppose to go for an appt. today but I messed up and missed my appt. so I will have to reschedule..You know when the Dr. office sends a certified letter to you saying MAKE AN APPT ASAP that your viral l oad isn't that good..Guess maybe I'm a litle scared to find the results..There I finally admitted it..I'm scared too..I have known I have this for about 2 yrs and I still have a fear of the NOT KNOWING..Ok so I'm human like everyone else but I am going to reschedule tomorrow morning..It's nice hearing from you Terry I just wonder where everyone else is..I know they didn't just disappear off the face of the earth. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2002 Report Share Posted February 5, 2002 Hi Darlene I can understand not taking the shots while being sick, but for the life of me I can't see stopping the treatment after only 7 weeks. Both times I was on the treatment my doctors waited 6 months to find out if it was working. I had to have lab work done on a regular basis to check for problems caused by the treatment though. Re: [ ] (no subject) > Charlie came home from the hospital Friday night (he has pneumonia). He was > supposed to take his injection today, but his Doctor told him to wait for > the results of the bloodwork........was supposed to let him know today, but > he never called until 8:00 tonight, I was on line & he left a message on > the machine saying he would call again tomorrow. He did not take his shot. > The Dr. said if the counts are still high, the peg-intron is not working, > so he is to stop treatment. But he only took it for 7 weeks (today would > have been the 8th week). I don't understand why he would have him quit it > so soon. He is on 2 antibiotics and a cough medication. While in the > hospital they were giving him shots in his belly, he said he thought they > were blood thinners. > Darlene > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2002 Report Share Posted February 5, 2002 Try to get him to schedule the classes. They might be informative and help alleviate some of his fears.Living here in South Texas I didn't have the opportunity for any classes or support groups. Probably would have been available if I had lived in one of the large cities. I had to get my support from my family and groups on the Internet. It would be great if these classes were led by someone who is infected. At least that way they could help him to understand what to expect. Re: [ ] (no subject) Hi Terry..Ask for Trazadone..It really helps..Hey even over the counter Benedryl helps..I used that alot too because I didn't like the effects of the trazadone that much..I honestly think the reason I couldn't handle the tx was I had alot of personal things going on in my life at the time..I was suppose to go for an appt. today but I messed up and missed my appt. so I will have to reschedule..You know when the Dr. office sends a certified letter to you saying MAKE AN APPT ASAP that your viral l oad isn't that good..Guess maybe I'm a litle scared to find the results..There I finally admitted it..I'm scared too..I have known I have this for about 2 yrs and I still have a fear of the NOT KNOWING..Ok so I'm human like everyone else but I am going to reschedule tomorrow morning..It's nice hearing from you Terry I just wonder where everyone else is..I know they didn't just disappear off the face of the earth. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2002 Report Share Posted February 5, 2002 I tried to talk to him a bit last night hopefully he will get a grasp on reality. The classes he is talking about are through the HMO itself. I don't know if hosted by someone infected or a nurse or a doctor etc. I can tell that what he is doing is to try to throw himself into living. And there is nothing wrong with that but he needs to take responsibility for his health too. I am doing what I can.. And I think his computer has something boobooed on the mother board.... It will not recognize yet another brand new modem. So bear with us. Re: [ ] (no subject) Hi Terry..Ask for Trazadone..It really helps..Hey even over the counter Benedryl helps..I used that alot too because I didn't like the effects of the trazadone that much..I honestly think the reason I couldn't handle the tx was I had alot of personal things going on in my life at the time..I was suppose to go for an appt. today but I messed up and missed my appt. so I will have to reschedule..You know when the Dr. office sends a certified letter to you saying MAKE AN APPT ASAP that your viral l oad isn't that good..Guess maybe I'm a litle scared to find the results..There I finally admitted it..I'm scared too..I have known I have this for about 2 yrs and I still have a fear of the NOT KNOWING..Ok so I'm human like everyone else but I am going to reschedule tomorrow morning..It's nice hearing from you Terry I just wonder where everyone else is..I know they didn't just disappear off the face of the earth. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2002 Report Share Posted February 5, 2002 I'm still futzing with my new pc, so I'll be on and off until I get the thing figured... It seems my graphics card and my sound card are having issues getting along with each other... I was rooting for the Pats, mostly because they were the underdogs. It was a good game anyway... Superbowls often tend to be blowouts.. -dz- --- Jannewilms42@... wrote: > Ok where is everyone at?? I know I am not the only > one here today someone > else has got to be here too..Ok so the Superbowl > didn't go as I wanted it > to..How bout you Dave?? I was going for the Rams..It > was a good game > though..I hope today finds everyone ok..Get in > touch.... > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2002 Report Share Posted February 5, 2002 I have heard some people say that they can tell in a relatively short time whether it is working (I believe I heard 3 mos). My dr waited 6 mos to retest me. Good luck and I hope the counts have come down!! -dz- --- C & D DOEPP <amber1@...> wrote: > Charlie came home from the hospital Friday night (he > has pneumonia). He was > supposed to take his injection today, but his Doctor > told him to wait for > the results of the bloodwork........was supposed to > let him know today, but > he never called until 8:00 tonight, I was on line & > he left a message on > the machine saying he would call again tomorrow. He > did not take his shot. > The Dr. said if the counts are still high, the > peg-intron is not working, > so he is to stop treatment. But he only took it for > 7 weeks (today would > have been the 8th week). I don't understand why he > would have him quit it > so soon. He is on 2 antibiotics and a cough > medication. While in the > hospital they were giving him shots in his belly, he > said he thought they > were blood thinners. > Darlene > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2002 Report Share Posted February 5, 2002 They say that health is the only thing that, if ignored, will go away... Keep at it.. -dz- --- WILLIAM A WALTKE <kbwaltke@...> wrote: > So this is like normal. I saw Greg tonight and he > has not scheduled the classes yet. > Its like if I ignore this will it go away ....... > > > Re: [ ] (no subject) > > Hi Terry..Ask for Trazadone..It really helps..Hey > even over the counter Benedryl helps..I used that > alot too because I didn't like the effects of the > trazadone that much..I honestly think the reason I > couldn't handle the tx was I had alot of personal > things going on in my life at the time..I was > suppose to go for an appt. today but I messed up and > missed my appt. so I will have to reschedule..You > know when the Dr. office sends a certified letter to > you saying MAKE AN APPT ASAP that your viral l oad > isn't that good..Guess maybe I'm a litle scared to > find the results..There I finally admitted it..I'm > scared too..I have known I have this for about 2 yrs > and I still have a fear of the NOT KNOWING..Ok so > I'm human like everyone else but I am going to > reschedule tomorrow morning..It's nice hearing from > you Terry I just wonder where everyone else is..I > know they didn't just disappear off the face of the > earth. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2002 Report Share Posted February 5, 2002 I am trying but I am also mom he really needs some positive support from some source besides mom. I really have never seen Greg like this ever. Re: [ ] (no subject)> > Hi Terry..Ask for Trazadone..It really helps..Hey> even over the counter Benedryl helps..I used that> alot too because I didn't like the effects of the> trazadone that much..I honestly think the reason I> couldn't handle the tx was I had alot of personal> things going on in my life at the time..I was> suppose to go for an appt. today but I messed up and> missed my appt. so I will have to reschedule..You> know when the Dr. office sends a certified letter to> you saying MAKE AN APPT ASAP that your viral l oad> isn't that good..Guess maybe I'm a litle scared to> find the results..There I finally admitted it..I'm> scared too..I have known I have this for about 2 yrs> and I still have a fear of the NOT KNOWING..Ok so> I'm human like everyone else but I am going to> reschedule tomorrow morning..It's nice hearing from> you Terry I just wonder where everyone else is..I> know they didn't just disappear off the face of the> earth. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2002 Report Share Posted February 5, 2002 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2002 Report Share Posted February 5, 2002 Sorry I"m not on today..Got too much going on right now..Dave it's good to hear from you.. thanks and Terry you're a dear..Thankyou..To everyone else hello and lets keep Diane in our prayers and thoughts..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2002 Report Share Posted February 6, 2002 , I know you are, and you can only do so much. As long as you are there for him with a shoulder to lean on, you are doing all you can do. Only he can take the next step. Don't get too worried. It takes time. I thought for a long while of not doing anything about my hcv. I figured I lasted for 20 years I could just let it go and take my chances. I don't know if this is true, but my dr told me that most people died " with " hcv, not " of " it. Yet, even if I live out my normal lifespan, I believe hcv could adversely affect the quality of my remaining life, that's why I finally decided to do something about it. Hang in there and let him take some time to figure out how he wants to deal with it. Many people do opt to go without treatment or with herbal treatments, it's a personal choice. -dz- --- WILLIAM A WALTKE <kbwaltke@...> wrote: > I am trying but I am also mom he really needs some > positive support from some source besides mom. > I really have never seen Greg like this ever. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2002 Report Share Posted February 6, 2002 Hi Darlene... I'm sure there are many, but one I know of is on http://www.hepatitis-central.com It has a link to a bulletin board for hcv related discussion. -dz- --- C & D DOEPP <amber1@...> wrote: > Charlie was able to take his injection today. His > dr. called & said the > blood test came back undetected. But he is upset, he > said he doesn't think > he can go for another 40 weeks. > > Can someone let me know the website for Hepatitis C > (that has the message > board?) Our computer crashed & we lost everything in > our favorites & I can > not remember what it was > Darlene > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2002 Report Share Posted February 6, 2002 I tried to pretend I didn't have it either..That it had to be a mistake then was too ashamed to tell ayone for a long time..It's like I felt dirty or something..I don't know but now I habdle it great thanks to everyone here... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2002 Report Share Posted February 6, 2002 I am in a panic feeling much like chicken little and the sky is falling and Greg, hes like I've had it probably 10 plus years so it won't do me under tomorrow and if it does I am living large today. What if I am to tired tomorrow or on treatment soon. We are not on the same page at all. I have to quit speed reading and he has to at least pick up the book sometime Such is life. Re: [ ] (no subject) , I know you are, and you can only do so much. Aslong as you are there for him with a shoulder to leanon, you are doing all you can do. Only he can take thenext step. Don't get too worried. It takes time. Ithought for a long while of not doing anything aboutmy hcv. I figured I lasted for 20 years I could justlet it go and take my chances. I don't know if this istrue, but my dr told me that most people died "with"hcv, not "of" it. Yet, even if I live out my normallifespan, I believe hcv could adversely affect thequality of my remaining life, that's why I finallydecided to do something about it. Hang in there andlet him take some time to figure out how he wants todeal with it. Many people do opt to go withouttreatment or with herbal treatments, it's a personalchoice. -dz---- WILLIAM A WALTKE <kbwaltke@...> wrote:> I am trying but I am also mom he really needs some> positive support from some source besides mom.> I really have never seen Greg like this ever. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2002 Report Share Posted February 6, 2002 Thanks dz, this is the one I was looking for. Darlene: >Hi Darlene... I'm sure there are many, but one I know >of is on http://www.hepatitis-central.com It has a >link to a bulletin board for hcv related discussion. > -dz- > >--- C & D DOEPP <amber1@...> wrote: > > Charlie was able to take his injection today. His > > dr. called & said the > > blood test came back undetected. But he is upset, he > > said he doesn't think > > he can go for another 40 weeks. > > > > Can someone let me know the website for Hepatitis C > > (that has the message > > board?) Our computer crashed & we lost everything in > > our favorites & I can > > not remember what it was > > Darlene > > > > > > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2002 Report Share Posted February 6, 2002 Hugs..... Re: [ ] (no subject) I tried to pretend I didn't have it either..That it had to be a mistake then was too ashamed to tell ayone for a long time..It's like I felt dirty or something..I don't know but now I habdle it great thanks to everyone here... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2002 Report Share Posted February 7, 2002 just be patient..He does seem to be in denial..I agree on that..I hope he does wake up and realize he does need to see about this..I too thought that way at one time..I didn't go on a binge though but I did say "Oh what the hell"..I fighured I was already this old and hadn't died from it yet so it ididn't matter..I then realized since I had it for this long it was time I did have to wake up and fight...I do need the group at times to help me pick up my butt....dust it off..aand fight somemore.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2002 Report Share Posted February 7, 2002 your son will come to the right decision..He is handling this situation the best he can or wants to right now but like we said Hep C is a SLOW disease...I'm not saying he shouldn't jump right now and demand to know everything and get help I am saying let him handle this in his own way..When he is ready you and your husband will be the first he chooses to speak with...Please don't feel I am interferring I am just giving my opinion..I wish when I had found out that I had someone who would listen to me and be there for the tears but I had to handle it all alone..That is until 2 years later when I found everyone here... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2002 Report Share Posted February 7, 2002 , alcohol accelerates the reproduction of the virus, as well as putting a strain on the liver. It sounds as if he may be in a state of denial, which is common. I would sit back and let him take his time letting all this sink in. I'm not sure if living large includes alcohol binges, but I would at least warn him about that and then put the rest in God's hands. I don't know if you are familiar with the serenity prayer, but many of us are and it comes in handy in times like these. God grant me the serenity to accept the things that I cannot change, The courage to change the things I can, And the wisdom to know the difference. You have done all you can, now leave God and your son to do the rest. We are all praying for your son to come around in his time. -dz- --- WILLIAM A WALTKE <kbwaltke@...> wrote: > I am in a panic feeling much like chicken little and > the sky > is falling and Greg, hes like I've had it probably > 10 plus years > so it won't do me under tomorrow and if it does I am > living > large today. What if I am to tired tomorrow or on > treatment > soon. We are not on the same page at all. I have > to quit > speed reading and he has to at least pick up the > book sometime > Such is life. > > > Re: [ ] (no subject) > > , I know you are, and you can only do so much. > As > long as you are there for him with a shoulder to > lean > on, you are doing all you can do. Only he can take > the > next step. Don't get too worried. It takes time. I > thought for a long while of not doing anything about > my hcv. I figured I lasted for 20 years I could just > let it go and take my chances. I don't know if this > is > true, but my dr told me that most people died " with " > hcv, not " of " it. Yet, even if I live out my normal > lifespan, I believe hcv could adversely affect the > quality of my remaining life, that's why I finally > decided to do something about it. Hang in there and > let him take some time to figure out how he wants to > deal with it. Many people do opt to go without > treatment or with herbal treatments, it's a personal > choice. -dz- > --- WILLIAM A WALTKE <kbwaltke@...> wrote: > > I am trying but I am also mom he really needs some > > positive support from some source besides mom. > > I really have never seen Greg like this ever. > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2002 Report Share Posted February 7, 2002 Bill and I ( husband ) decided we are going to let this roll a bit. There is somehow more to this than meets the eye. Perhaps some stuggles at home for him or some issues. So we need to just drop back a bit. If he has not done some things in a few weeks then well I don't know what we shall do .... think of something I guess... Re: [ ] (no subject) just be patient..He does seem to be in denial..I agree on that..I hope he does wake up and realize he does need to see about this..I too thought that way at one time..I didn't go on a binge though but I did say "Oh what the hell"..I fighured I was already this old and hadn't died from it yet so it ididn't matter..I then realized since I had it for this long it was time I did have to wake up and fight...I do need the group at times to help me pick up my butt....dust it off..aand fight somemore.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2002 Report Share Posted February 7, 2002 We are fortunate that alcohol is not a problem in this case. Gregs thrill is more xtreme boarding ( snow boarding ) and thrills type stuff. No rest just go go go go go.. So for that we are lucky I guess. Re: [ ] (no subject)> > , I know you are, and you can only do so much.> As> long as you are there for him with a shoulder to> lean> on, you are doing all you can do. Only he can take> the> next step. Don't get too worried. It takes time. I> thought for a long while of not doing anything about> my hcv. I figured I lasted for 20 years I could just> let it go and take my chances. I don't know if this> is> true, but my dr told me that most people died "with"> hcv, not "of" it. Yet, even if I live out my normal> lifespan, I believe hcv could adversely affect the> quality of my remaining life, that's why I finally> decided to do something about it. Hang in there and> let him take some time to figure out how he wants to> deal with it. Many people do opt to go without> treatment or with herbal treatments, it's a personal> choice. -dz-> --- WILLIAM A WALTKE <kbwaltke@...> wrote:> > I am trying but I am also mom he really needs some> > positive support from some source besides mom.> > I really have never seen Greg like this ever. > > > > > > __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2002 Report Share Posted February 7, 2002 I thank that's a wise idea. I have to remember that with my kids. Terry --- WILLIAM A WALTKE <kbwaltke@...> wrote: > Bill and I ( husband ) decided we are going to let > this roll a bit. There is somehow > more to this than meets the eye. Perhaps some > stuggles at home for him or some > issues. So we need to just drop back a bit. If he > has not done some things > in a few weeks then well I don't know what we shall > do .... think of something > I guess... > > Re: [ ] (no subject) > > just be patient..He does seem to be in > denial..I agree on that..I hope he does wake up and > realize he does need to see about this..I too > thought that way at one time..I didn't go on a binge > though but I did say " Oh what the hell " ..I fighured > I was already this old and hadn't died from it yet > so it ididn't matter..I then realized since I had > it for this long it was time I did have to wake up > and fight...I do need the group at times to help me > pick up my butt....dust it off..aand fight > somemore.... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2002 Report Share Posted February 7, 2002 I does more harm than good to push.... the best motto I can think of is never let them see you sweat..... Re: [ ] (no subject)> > just be patient..He does seem to be in> denial..I agree on that..I hope he does wake up and> realize he does need to see about this..I too> thought that way at one time..I didn't go on a binge> though but I did say "Oh what the hell"..I fighured> I was already this old and hadn't died from it yet> so it ididn't matter..I then realized since I had> it for this long it was time I did have to wake up> and fight...I do need the group at times to help me> pick up my butt....dust it off..aand fight> somemore.... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2002 Report Share Posted February 7, 2002 That's a big plus. It sounds like they don't suspect too much liver damage, so he's probably got some time to let it all sink in and decide what he wants to do about it. -dz- --- WILLIAM A WALTKE <kbwaltke@...> wrote: > We are fortunate that alcohol is not a problem in > this case. > Gregs thrill is more xtreme boarding ( snow boarding > ) and > thrills type stuff. No rest just go go go go go.. > So for > that we are lucky I guess. > > Re: [ ] (no subject) > > > > , I know you are, and you can only do so > much. > > As > > long as you are there for him with a shoulder to > > lean > > on, you are doing all you can do. Only he can take > > the > > next step. Don't get too worried. It takes time. I > > thought for a long while of not doing anything > about > > my hcv. I figured I lasted for 20 years I could > just > > let it go and take my chances. I don't know if > this > > is > > true, but my dr told me that most people died > " with " > > hcv, not " of " it. Yet, even if I live out my > normal > > lifespan, I believe hcv could adversely affect the > > quality of my remaining life, that's why I finally > > decided to do something about it. Hang in there > and > > let him take some time to figure out how he wants > to > > deal with it. Many people do opt to go without > > treatment or with herbal treatments, it's a > personal > > choice. -dz- > > --- WILLIAM A WALTKE <kbwaltke@...> wrote: > > > I am trying but I am also mom he really needs > some > > > positive support from some source besides mom. > > > I really have never seen Greg like this ever. > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2002 Report Share Posted February 7, 2002 I joined this group not only to learn all I could but to also so that I might be able to know how best to handle or not handle our role as his parents He is an adult first and foremost but yet even so we shall continue to support him throughout our lives .... I would never even think you are interfering I came on board to be interefered with in that sense.. Hugs Silly Goose Re: [ ] (no subject) your son will come to the right decision..He is handling this situation the best he can or wants to right now but like we said Hep C is a SLOW disease...I'm not saying he shouldn't jump right now and demand to know everything and get help I am saying let him handle this in his own way..When he is ready you and your husband will be the first he chooses to speak with...Please don't feel I am interferring I am just giving my opinion..I wish when I had found out that I had someone who would listen to me and be there for the tears but I had to handle it all alone..That is until 2 years later when I found everyone here... Quote Link to comment Share on other sites More sharing options...
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