Guest guest Posted December 28, 2002 Report Share Posted December 28, 2002 Lynette.....I am trying to get on the waiting list to go as soon as it opens back up. I had a space in Nov. but couldn't get the money thing together...now thats together and maybe I'll get another chance. I have stage 4 breast cancer and altho it's never gone into a major organ I have extensive lymph node involvement in the neck and chest. Of course I'd love to hear your story and all the details of the treatment and the outcome so far. No detail is too small to relate. Thanks so much Judy Hoffman PS My cancer is being controlled right now with Taxotere (chemo) treatments once a month which are wearing me down but if I stop Tx it comes back [ ] Cytoluminescent Therapy Patient I went to Ireland last month and had the CLT (Cytoluminescent Therapy) treatment (a form of PDT...Photodynamic Therapy). I was with the first group of patients accompanied by Ralph Moss. If anyone has any interest or questions, please feel free to ask me. Lynnette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2002 Report Share Posted December 28, 2002 Hello Lynnette, I am very interested in CLT. I had a brother who died of Esophageal Cancer on April 1st and several other friends have died since then. Bad Year. I also know of several more people who have only months to live and others who are just starting to fight the disease. I would like to know how you did and the details on it. And I hope you are doing better . I have followed Dr. Moss's reports with great interest, and also whether there are plans to train people in the USA and other countries. I live in the USA. Thanks. Alan Schulz alan_schulz@... " lanetmarie <lanetmarie@...> " <lanetmarie@...> wrote:I went to Ireland last month and had the CLT (Cytoluminescent Therapy) treatment (a form of PDT...Photodynamic Therapy). I was with the first group of patients accompanied by Ralph Moss. If anyone has any interest or questions, please feel free to ask me. Lynnette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Dear Judy, As you obviously know, I, too, have been told that the East Clinic isn't currently taking any more patients. There are, however, other clinics in the world doing similar treatments. I have stage IV breast cancer to the bone. It's too early to have a bone scan (it's just been a month since my treatment) be able to reveal and differentiate between active cancer and necrotic lesions, so I haven't had any scans yet. I did however, experience an almond-sized breast mass reduce to pea size, and I am imagining it is going to dissipate completely. Lynnette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Dear Alan, I'm so sorry for your losses. I lost my best friend (actually today would have been her 46th birthday) and my dad to cancer (unnecessarily) so I know how it feels. I have been researching other options for friends with regard to this treatment, as the East Clinic is currently refusing patients. Would you be interested in any additional info? Lynnette PS As far as the rest of you who have written, I will get back with you soon. Sorry, I've got to run off to work!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Hi!!! What kind of a therapy is that? I was not following up the emails so want to know about it and if it works. Thanks, Suzanna Re: [ ] Cytoluminescent Therapy Patient Dear Judy, As you obviously know, I, too, have been told that the East Clinic isn't currently taking any more patients. There are, however, other clinics in the world doing similar treatments. I have stage IV breast cancer to the bone. It's too early to have a bone scan (it's just been a month since my treatment) be able to reveal and differentiate between active cancer and necrotic lesions, so I haven't had any scans yet. I did however, experience an almond-sized breast mass reduce to pea size, and I am imagining it is going to dissipate completely. Lynnette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Dear Lynette, Please send any further info to me at alan_schulz@... CLT is very interesting. Thanks. Alan lanetmarie@... wrote:Dear Alan, I'm so sorry for your losses. I lost my best friend (actually today would have been her 46th birthday) and my dad to cancer (unnecessarily) so I know how it feels. I have been researching other options for friends with regard to this treatment, as the East Clinic is currently refusing patients. Would you be interested in any additional info? Lynnette PS As far as the rest of you who have written, I will get back with you soon. Sorry, I've got to run off to work!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 Hi and all, I continue to apologize for the delay in responding. Computer problems and time constraints...but I do definitely plan to tell you all I can about my CLT experience and research and similar treatment options very soon. Please bear with me. Happy New Year! Lynnette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Thanks Lynnette. It is due to people like yourself, that have been willing to share their experiences with cancer therapies, that has meant so much to my surviving my own cancer for almost 4 years now. I have Dr. 's advanced cancer program to thank for keeping me going this long, but I am always looking for whatever works. From my reading the CLT sounds promising, though I do wonder about how well they are following patients up for detox reactions. I heard from another patient from there that she thought the treatment was effective, but that detox could be difficult. Regards, > Hi and all, > I continue to apologize for the delay in responding. Computer problems and > time constraints...but I do definitely plan to tell you all I can about my > CLT experience and research and similar treatment options very soon. Please > bear with me. > Happy New Year! > Lynnette > > > Quote Link to comment Share on other sites More sharing options...
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