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Re: To Kathy

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Dear Kathy:

Hi. I can relate to your pain as I am disfigured too. I can't let a man see me either. I've resigned myself to a sexless life.

If I were you, I'd call Feng and tell her to fix whatever can be done. I'm wondering if it's possible to take tissue from one part of the body, place it in the breast to create a new breast mound?

Call Feng, get the help you deserve.

Take care,

LM

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Dear Kathy:

Hi. Thanks for writing. You know I thought about what you've said about the sexless life thing and I think you're on to something!

Please tell me more about your surgery with Dr. Feng. Is it that the outcome of her actual work is poor or is it that you don't have breast tissue and she didn't give you the lift? Regardless of WHY you're not happy, I hope it gets resolved because you--and all of us deserve the best of what a doc can give. I don't know Dr. Feng personally, but I hear good things about her and that she does revisional work without a surgeon's fee. I think you did the appropriate thing by contacting her. What I would suggest however, is that you call her directly as I know they are not good about reading e-mails--at least that was the case months back.

I recently had revisional surgery (May) and my breast still don't look great (though my scars are skinny and revised). I can't expect great looking breasts because my implanting/explanting jerk- of -a -doc already messed me up to a point where I can never look normal again. Sad but true. I really like my current PS as he is very patient with me and is willing to do more work on me to improve things. During my last appointment with my current PS, I thought things could look better--he agreed with enthusiasm. When you can tell a doc that you're not completely satisfied and they're still willing to help you and treat you with kindness--this is a good doc. What troubles me is I have heard of PS's actually being ANGRY AT THEIR PATIENTS for their dissatisfaction. To make matters worse, they blow them off too as they don't matter at all -- this is a red flag for bad character! I went through this with my implanting/explanting PS. It makes you feel awful. They turn it around on you as though you're to blame for their lack of skill. All that *pre-surgery sweetness* evaporates in an instant.

I don't think a doctor like Feng would be like this. I believe she will help to do what can be medically done to help you.

Please let me know of anything I can do to help. You helped me after all....

Take care,

-Marie

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  • 1 year later...

--

Dear dimonds

I think your gyne should know what it is. It has to be POWDERED

ORAL nystatin. The oral kind is very gentle. It comes in a dark

brown bottle and is a yellow

powder and has to be refrigerated. You use only 1 tsp in a quart of

water. It is very mild. I reacted to everything but not to this.

The low level of yeast that I had never showed as more than just the

slightest whitish discharge. The way I could tell was not by

discharge but by the burning sensation I would get. And by seeing

redness and irritation. Sometimes I wouldn't even have those

symptoms but I would get urinary frequency and some urethral burning

sensations or it would feel raw or hurt alot after sex. The point I

am trying to make it that most yeast infections are so obvious that

both you and the doctor know you have one. This was a chronic low

level and the doctor wouldn't even think that you necessarily had

one. But my system had become so senstive that it was reacting (an

autoimmune type reaction) to even the low level yeast by having

an " allergic " type reaction---pain, redness, swelling, dryness, etc.

Not only did my system become so sensitive to the yeast, but even

more so to the creams and suppositories commonly used to treat

yeast. I would use these and get worse whereas years ago they used

to work just fine. This system was the biggest factor in helping me

to control my vulvadynia. It was a gentle way to clean the

irritating yeast off of me. the other, for me, was cutting out foods

high in oxalates. Oxalates are known to cause pain and

imflammation. Foods high in oxalates include chocolate (sigh)

pepper, soy, nuts,etc. I now can eat pretty much whatever again,

except pepper, which if I start to consume regularly, starts pain up

again. But even now, I can't go longer than a week or two without

needing to use the nystatin one time. For me though, it is quick,

easy and a lifesaver! I tried the diflucan in the past, but it gave

me a terrible headache and didn't solve the low level problem. I

have often wondered if I could've tolerated it for like a solid

week, if it would have helped. For how long do you take diflucan?

I know several people on the rheumatic sites that have sytemic yeast

have reported great success with diflucan for that.

smiles, kathy

- In , " dimonds68 " <XENA6881@a...>

wrote:

> Kathy ..hello. thank you for the great tips in your post. Can you

> tell me, if I ask the GYN for powdered Nyastatin(is that what you

> take), will he know what I am taking about?? Is that the better

form

> to take? I hear that taking the Nysatatin powdered form is better

> to absorb in the body. I have a visit with the gyn on Thurs.(a new

> Gyn. The old gyn does not take my insurance anymore, and he

usually

> gives me diflucan, which helps me alot. Thank you so much..xoxxox

> dimonds68

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