Re: I'm new-and desperate!

[Guest guest]

Dr. Kolb,

Is it your experience that yeast overgrowth alone is the cause of this unrelenting pain? So many women have the constant pain--do any researchers know what causes it? In any case, can you give us any suggestions for relief?

Daryl, according to what I have read about the Gerson therapy, the coffee enema is very effective for relieving pain. You can find out more about this therapy in the files section under Healing therapies, or if you want more info, ask me about it. I know it sounds strange, but I encourage you to look into it for what value it might offer you.

Patty

----- Original Message -----

From: Daryl

Sent: Wednesday, October 02, 2002 3:42 PM

Subject: I'm new-and desperate!

I met Patty here in Las Vegas a few weeks ago. It took me awhile to get the courage to write because I keep thinking that I'm going to get better somehow.

I had my saline implants in when I was 21 and living in Ft.Lauderdlae Fl. where I'm from. I've always been peppy, positive, and athletic. I am now 35 and living in Las Vegas with my husband and 1year old baby, Quinn. I'm a flight attendant and love my job even though I haven't worked in 6 months.

4 years ago I started getting terrible abdominal pain and I had 2 different laparscopys done. The doctors thought that I had endometriosis but weren't sure. 6 months after that I had awful all over body pain. My muscles and joints feel like I've been in a train wreck. I've been to the Mayo clinic in Phoenix twice, UCLA in LA.and afibromyalgia hospital in Chicago. After speaking to Patty I'm scheduled to have my implants out on Nov. 6th in Phoenix. For the past 3 years I've been going to a fibromyalgia support group and have seen dozens of doctors for chronic pain. I can't believe what a mess my life is and sometimes I don't think that it's worth it to get out of bed. The days are so long! Every doctor I've ever asked has told me my implants are not the problem and to leave them alone. I recently has a doctor tell me that I must have an overgrowth on yeast in my body and that is causing my pain. Has anyone ever heard that before? I'm so depresed and feel hopeless. My husband has been very patient with my illness but I feel like such a burden. I can't even pick up my baby and we don't have any family here! I would appreciare any advice, I just want my life back!!! Thanks-Daryl

[Guest guest]

Hi Daryl,

If you want to see excellent BI doctors in the DFW area, please send me a private email to:

MAM-NSIF@...

We will be happy to provide you with the names, and contact numbers, etc. for various specialties, and a couple of excellent PSs that all understand our disease(s)!

MM

Martha Murdock, DirectorNational Silicone Implant Foundation | Dallas Headquarters"Supporting Survivors of Medical Implant Devices"4416 Willow LaneDallas, TX 75244-7537

----- Original Message -----

From: Daryl

Sent: Wednesday, October 02, 2002 5:42 PM

Subject: I'm new-and desperate!

I met Patty here in Las Vegas a few weeks ago. It took me awhile to get the courage to write because I keep thinking that I'm going to get better somehow.

I had my saline implants in when I was 21 and living in Ft.Lauderdlae Fl. where I'm from. I've always been peppy, positive, and athletic. I am now 35 and living in Las Vegas with my husband and 1year old baby, Quinn. I'm a flight attendant and love my job even though I haven't worked in 6 months.

4 years ago I started getting terrible abdominal pain and I had 2 different laparscopys done. The doctors thought that I had endometriosis but weren't sure. 6 months after that I had awful all over body pain. My muscles and joints feel like I've been in a train wreck. I've been to the Mayo clinic in Phoenix twice, UCLA in LA.and afibromyalgia hospital in Chicago. After speaking to Patty I'm scheduled to have my implants out on Nov. 6th in Phoenix. For the past 3 years I've been going to a fibromyalgia support group and have seen dozens of doctors for chronic pain. I can't believe what a mess my life is and sometimes I don't think that it's worth it to get out of bed. The days are so long! Every doctor I've ever asked has told me my implants are not the problem and to leave them alone. I recently has a doctor tell me that I must have an overgrowth on yeast in my body and that is causing my pain. Has anyone ever heard that before? I'm so depresed and feel hopeless. My husband has been very patient with my illness but I feel like such a burden. I can't even pick up my baby and we don't have any family here! I would appreciare any advice, I just want my life back!!! Thanks-Daryl

[Guest guest]

Daryl,

I am really glad you finally wrote to the group about your situation. You sound allot like I was especially the symptoms, and the denial. I was sick for along time(18 months) with implants, and yet I tried so hard top hang onto them, and to tell myself I would get well in time. How could it be the implants, everyone told me they were so safe? I wanted to just get better and get on with my life, I was an active, vital career woman too, and didn't want to lose it all , plus be deformed. It was all so difficult. However, when I finally found a Dr who believed in my illness it all became allot easier. Does this PS you are going to happen to be the one Patty went to? Do you trust him and feel that he is sympathetic to your situation? I ask because for me this was so important, and frankly, though it doesn't seem to bother everyone, to me, I didn't want another man touching my breasts, (meaning Surgeon) I just had no faith in some man, who knew nothing of breasts really, to cut those things out of me. I also felt it was of utmost importance to go to a woman who understood what I was dealing with and who not only believed in implant illness, but understood how important it is to do a good, clean explant, with a beautiful lift, and to get all that garbage out of my body so I had the best possible chance at healing completely.

I chose to travel to Ohio, I felt and still do feel 100% that I made the wisest decision of my life, and I share it with this group frequently! I don't care if it sounds as if I am promoting my PS because she did the best possible lift and explant I could get and yeah I am happy with my results, and with my health improvements. I also figured I had made enough mistakes with implants, now I was going to do a proper explant and lift and never have to look back and say man, I should've went to Dr Feng instead of "blank"

anyhow there are other PS's that are very good, Kolb is another who I can honestly recomend, and Dr Huang too. As far as the others, I just don't know, and when it comes to explant, well you need to be sure of what your doing, don't just jump at the first one you find unless you absolutley have to. It will not hurt to take the extra time, $$$ to go to the very best, it will ensure you will get well too.

Have I recovered oh YES! I am healing well, I am almost my old self, with some new self esteem and happiness that comes from going through hell and making it out ! Trust me I had the pain, the whole thing, I still have some problems and life is not all perfect, but I am so much better than with implants! You can get well.

Trust me, take charge of your health and get a great PS that is not only sympathetic but who really understands and knows how to treat you.

Let me know if I can do anything else for you and please think hard about what I have said here. Trust me, it is going to get better.

Hugs

From: Daryl

Sent: Wednesday, October 02, 2002 4:42 PM

Subject: I'm new-and desperate!

I met Patty here in Las Vegas a few weeks ago. It took me awhile to get the courage to write because I keep thinking that I'm going to get better somehow.

I had my saline implants in when I was 21 and living in Ft.Lauderdlae Fl. where I'm from. I've always been peppy, positive, and athletic. I am now 35 and living in Las Vegas with my husband and 1year old baby, Quinn. I'm a flight attendant and love my job even though I haven't worked in 6 months.

4 years ago I started getting terrible abdominal pain and I had 2 different laparscopys done. The doctors thought that I had endometriosis but weren't sure. 6 months after that I had awful all over body pain. My muscles and joints feel like I've been in a train wreck. I've been to the Mayo clinic in Phoenix twice, UCLA in LA.and afibromyalgia hospital in Chicago. After speaking to Patty I'm scheduled to have my implants out on Nov. 6th in Phoenix. For the past 3 years I've been going to a fibromyalgia support group and have seen dozens of doctors for chronic pain. I can't believe what a mess my life is and sometimes I don't think that it's worth it to get out of bed. The days are so long! Every doctor I've ever asked has told me my implants are not the problem and to leave them alone. I recently has a doctor tell me that I must have an overgrowth on yeast in my body and that is causing my pain. Has anyone ever heard that before? I'm so depresed and feel hopeless. My husband has been very patient with my illness but I feel like such a burden. I can't even pick up my baby and we don't have any family here! I would appreciare any advice, I just want my life back!!! Thanks-Daryl

[Guest guest]

I wanted to tell you that yes, lots of Dr's say the yeast is a problem, others disagree with this area of medicine. I have done yeast free diets, and taken some stuff for it, like oregano oil and garlic, mostly all natural things but in the end to me the smartest and wisest thing was to get the implants out and take it from there, either way, you have to get the implants out if you want to get well in my own opinion because frankly, if they are weakening the immune system nothing is going to heal or function properly. So in doing this you should find that you can do many different types of therapy to heal naturally.

As for chronic pain, don't be afraid to go and take some pain meds esp to get through this time in your life, but be cautious as to which ones you take. I was on vicodin and they became a big time problem in my life too, so on top of the pain I had an addiction or dependancy on them, not that I think I didn't need something, but looking back I took way too many of them over time. I found a pain specialist that took me off the vicodin and put me on oxycontin, now you may hear allot of negatives about this drug but to me, it saved me ! I only had to take it 2x a day and that was it, it helped me get through the rough times with the pain and it made a difference in my ability to function. I have been employed throughout my illness and I feel the pain meds helped alot with that, I refused to give up my life because of my illness.

Anyhow just thought I would throw it out there, it is easy for people who do not have pain to be judgmental about taking drugs, but they have not had to walk in those shoes, or they might just change their tune.

Hugs

----- Original Message -----

From: Heer

Sent: Thursday, October 03, 2002 8:02 AM

Subject: Re: I'm new-and desperate!

Daryl,

I am really glad you finally wrote to the group about your situation. You sound allot like I was especially the symptoms, and the denial. I was sick for along time(18 months) with implants, and yet I tried so hard top hang onto them, and to tell myself I would get well in time. How could it be the implants, everyone told me they were so safe? I wanted to just get better and get on with my life, I was an active, vital career woman too, and didn't want to lose it all , plus be deformed. It was all so difficult. However, when I finally found a Dr who believed in my illness it all became allot easier. Does this PS you are going to happen to be the one Patty went to? Do you trust him and feel that he is sympathetic to your situation? I ask because for me this was so important, and frankly, though it doesn't seem to bother everyone, to me, I didn't want another man touching my breasts, (meaning Surgeon) I just had no faith in some man, who knew nothing of breasts really, to cut those things out of me. I also felt it was of utmost importance to go to a woman who understood what I was dealing with and who not only believed in implant illness, but understood how important it is to do a good, clean explant, with a beautiful lift, and to get all that garbage out of my body so I had the best possible chance at healing completely.

I chose to travel to Ohio, I felt and still do feel 100% that I made the wisest decision of my life, and I share it with this group frequently! I don't care if it sounds as if I am promoting my PS because she did the best possible lift and explant I could get and yeah I am happy with my results, and with my health improvements. I also figured I had made enough mistakes with implants, now I was going to do a proper explant and lift and never have to look back and say man, I should've went to Dr Feng instead of "blank"

anyhow there are other PS's that are very good, Kolb is another who I can honestly recomend, and Dr Huang too. As far as the others, I just don't know, and when it comes to explant, well you need to be sure of what your doing, don't just jump at the first one you find unless you absolutley have to. It will not hurt to take the extra time, $$$ to go to the very best, it will ensure you will get well too.

Have I recovered oh YES! I am healing well, I am almost my old self, with some new self esteem and happiness that comes from going through hell and making it out ! Trust me I had the pain, the whole thing, I still have some problems and life is not all perfect, but I am so much better than with implants! You can get well.

Trust me, take charge of your health and get a great PS that is not only sympathetic but who really understands and knows how to treat you.

Let me know if I can do anything else for you and please think hard about what I have said here. Trust me, it is going to get better.

Hugs

From: Daryl

Sent: Wednesday, October 02, 2002 4:42 PM

Subject: I'm new-and desperate!

I met Patty here in Las Vegas a few weeks ago. It took me awhile to get the courage to write because I keep thinking that I'm going to get better somehow.

I had my saline implants in when I was 21 and living in Ft.Lauderdlae Fl. where I'm from. I've always been peppy, positive, and athletic. I am now 35 and living in Las Vegas with my husband and 1year old baby, Quinn. I'm a flight attendant and love my job even though I haven't worked in 6 months.

4 years ago I started getting terrible abdominal pain and I had 2 different laparscopys done. The doctors thought that I had endometriosis but weren't sure. 6 months after that I had awful all over body pain. My muscles and joints feel like I've been in a train wreck. I've been to the Mayo clinic in Phoenix twice, UCLA in LA.and afibromyalgia hospital in Chicago. After speaking to Patty I'm scheduled to have my implants out on Nov. 6th in Phoenix. For the past 3 years I've been going to a fibromyalgia support group and have seen dozens of doctors for chronic pain. I can't believe what a mess my life is and sometimes I don't think that it's worth it to get out of bed. The days are so long! Every doctor I've ever asked has told me my implants are not the problem and to leave them alone. I recently has a doctor tell me that I must have an overgrowth on yeast in my body and that is causing my pain. Has anyone ever heard that before? I'm so depresed and feel hopeless. My husband has been very patient with my illness but I feel like such a burden. I can't even pick up my baby and we don't have any family here! I would appreciare any advice, I just want my life back!!! Thanks-Daryl

[Guest guest]

,

You eventually got off the pain drugs, didn't you? I seem to remember you saying that. Anyway, I think you will be a great encouragement to Daryl, since she is suffering from so much pain. I know she needs the pain meds, like you did, so you can help her alot with this!

Patty

----- Original Message -----

From: Heer

Sent: Thursday, October 03, 2002 7:13 AM

Subject: Re: I'm new-and desperate!

I wanted to tell you that yes, lots of Dr's say the yeast is a problem, others disagree with this area of medicine. I have done yeast free diets, and taken some stuff for it, like oregano oil and garlic, mostly all natural things but in the end to me the smartest and wisest thing was to get the implants out and take it from there, either way, you have to get the implants out if you want to get well in my own opinion because frankly, if they are weakening the immune system nothing is going to heal or function properly. So in doing this you should find that you can do many different types of therapy to heal naturally.

As for chronic pain, don't be afraid to go and take some pain meds esp to get through this time in your life, but be cautious as to which ones you take. I was on vicodin and they became a big time problem in my life too, so on top of the pain I had an addiction or dependancy on them, not that I think I didn't need something, but looking back I took way too many of them over time. I found a pain specialist that took me off the vicodin and put me on oxycontin, now you may hear allot of negatives about this drug but to me, it saved me ! I only had to take it 2x a day and that was it, it helped me get through the rough times with the pain and it made a difference in my ability to function. I have been employed throughout my illness and I feel the pain meds helped alot with that, I refused to give up my life because of my illness.

Anyhow just thought I would throw it out there, it is easy for people who do not have pain to be judgmental about taking drugs, but they have not had to walk in those shoes, or they might just change their tune.

Hugs

[Guest guest]

The pain is also due to neurological problems with too many cytokines. Much of the pain is due to yeast overgrowth with myalgias and arthalgias. .

-----Original Message-----From: ~*Patty*~ [mailto:fdp@...]Sent: Wednesday, October 02, 2002 9:57 PM Subject: Re: I'm new-and desperate!

Dr. Kolb,

Is it your experience that yeast overgrowth alone is the cause of this unrelenting pain? So many women have the constant pain--do any researchers know what causes it? In any case, can you give us any suggestions for relief?

Daryl, according to what I have read about the Gerson therapy, the coffee enema is very effective for relieving pain. You can find out more about this therapy in the files section under Healing therapies, or if you want more info, ask me about it. I know it sounds strange, but I encourage you to look into it for what value it might offer you.

Patty

----- Original Message -----

From: Daryl

Sent: Wednesday, October 02, 2002 3:42 PM

Subject: I'm new-and desperate!

I met Patty here in Las Vegas a few weeks ago. It took me awhile to get the courage to write because I keep thinking that I'm going to get better somehow.

I had my saline implants in when I was 21 and living in Ft.Lauderdlae Fl. where I'm from. I've always been peppy, positive, and athletic. I am now 35 and living in Las Vegas with my husband and 1year old baby, Quinn. I'm a flight attendant and love my job even though I haven't worked in 6 months.

4 years ago I started getting terrible abdominal pain and I had 2 different laparscopys done. The doctors thought that I had endometriosis but weren't sure. 6 months after that I had awful all over body pain. My muscles and joints feel like I've been in a train wreck. I've been to the Mayo clinic in Phoenix twice, UCLA in LA.and afibromyalgia hospital in Chicago. After speaking to Patty I'm scheduled to have my implants out on Nov. 6th in Phoenix. For the past 3 years I've been going to a fibromyalgia support group and have seen dozens of doctors for chronic pain. I can't believe what a mess my life is and sometimes I don't think that it's worth it to get out of bed. The days are so long! Every doctor I've ever asked has told me my implants are not the problem and to leave them alone. I recently has a doctor tell me that I must have an overgrowth on yeast in my body and that is causing my pain. Has anyone ever heard that before? I'm so depresed and feel hopeless. My husband has been very patient with my illness but I feel like such a burden. I can't even pick up my baby and we don't have any family here! I would appreciare any advice, I just want my life back!!! Thanks-Daryl

[Guest guest]

Yes I did eventually get off the pain meds, but when things were bad I took them and it is important to have help when you are suffering so yes, I can be support to her over pain issues. Been there!

----- Original Message -----

From: ~*Patty*~

Sent: Thursday, October 03, 2002 8:56 AM

Subject: Re: I'm new-and desperate!

,

You eventually got off the pain drugs, didn't you? I seem to remember you saying that. Anyway, I think you will be a great encouragement to Daryl, since she is suffering from so much pain. I know she needs the pain meds, like you did, so you can help her alot with this!

Patty

----- Original Message -----

From: Heer

Sent: Thursday, October 03, 2002 7:13 AM

Subject: Re: I'm new-and desperate!

I wanted to tell you that yes, lots of Dr's say the yeast is a problem, others disagree with this area of medicine. I have done yeast free diets, and taken some stuff for it, like oregano oil and garlic, mostly all natural things but in the end to me the smartest and wisest thing was to get the implants out and take it from there, either way, you have to get the implants out if you want to get well in my own opinion because frankly, if they are weakening the immune system nothing is going to heal or function properly. So in doing this you should find that you can do many different types of therapy to heal naturally.

As for chronic pain, don't be afraid to go and take some pain meds esp to get through this time in your life, but be cautious as to which ones you take. I was on vicodin and they became a big time problem in my life too, so on top of the pain I had an addiction or dependancy on them, not that I think I didn't need something, but looking back I took way too many of them over time. I found a pain specialist that took me off the vicodin and put me on oxycontin, now you may hear allot of negatives about this drug but to me, it saved me ! I only had to take it 2x a day and that was it, it helped me get through the rough times with the pain and it made a difference in my ability to function. I have been employed throughout my illness and I feel the pain meds helped alot with that, I refused to give up my life because of my illness.

Anyhow just thought I would throw it out there, it is easy for people who do not have pain to be judgmental about taking drugs, but they have not had to walk in those shoes, or they might just change their tune.

Hugs