Guest guest Posted May 31, 2002 Report Share Posted May 31, 2002 Hi. I am new to this group. I am a 39-year-old mom. I have a brain stem glioma, diagnosed 10/00. I have not done anything conventional for it, but I jice, do lots of supplements, do PolyMVA and recently returned from the CSCT Clinic in Tijuana. I am starting to write a book--sort of a " cancer primer " or the newly diagnsed--and I would like some input, from anyone who has time to write. (Email me privately if you like.) Questions to use as guidelines: What do you wish you had known right off the bat? What books/tapes/etc. do you wish you had known about sooner? What were some of the things people said tht you wish they hadn't? (Ex. My father-in-law said " Don't wait too long " when he found out I was not doing radation.) What good things did people do? (Some friends cleaned my house; another friend sent a box of books about healing.) What else do you think I should tell soemeone as they first confront the dagnosis? Thanks! really, really appreciate any input. Biemiller Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2002 Report Share Posted May 31, 2002 , Here is what I came up with for your question " What do you wish you had known right off the bat? " any suggestions or additions are welcomed. DO NOTHING at first, way too many people are plugged into the medical/pharmaceutical industrial complex and relying on infomation from these " experts " . First do nothing - go sit under a tree. Ponder. On the other hand Lance Armstrong was in denial for so long and did nothing -- when he was finally diagnosed it was prudent for him to start treatment ASAP. 2nd stage. Learn to relax. Many experts feel that fear and worry - stress - is the underlying cause of 80 per cent of all our health problems. Learn to breathe, walk in fresh air take a warm bath in 10 cups of epson salts nightly. 3nd stage collect information. Read everthing you can about cancer and your specific cancer. Search the Internet. Find people who have had your specific cancer and survived - what did they do. Go visit with " alternative " and mainstream health providers. 4th stage engage energy as Bernie Siegel said " The most important thing is to pick a therapy you believe in and proceed with a positive attitude. " Make the appropiate changes and commit to your program. Have a suppport network in place. Rand , Herbalist __________________________________________________ Biemiller <biemillers@...> wrote: Hi. I am new to this group. I am a 39-year-old mom. I have a brain stem glioma, diagnosed 10/00. I have not done anything conventional for it, but I jice, do lots of supplements, do PolyMVA and recently returned from the CSCT Clinic in Tijuana. I am starting to write a book--sort of a " cancer primer " or the newly diagnsed--and I would like some input, from anyone who has time to write. (Email me privately if you like.) Questions to use as guidelines: What do you wish you had known right off the bat? What books/tapes/etc. do you wish you had known about sooner? What were some of the things people said tht you wish they hadn't? (Ex. My father-in-law said " Don't wait too long " when he found out I was not doing radation.) What good things did people do? (Some friends cleaned my house; another friend sent a box of books about healing.) What else do you think I should tell soemeone as they first confront the dagnosis? Thanks! really, really appreciate any input. Biemiller Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2002 Report Share Posted May 31, 2002 http://hills.ccsf.cc.ca.us/~jinouy01 \\\ =(o o)= ++++++++++++++++++++++++++++++--V---+++++++++++++++++++++++++++++++ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2008 Report Share Posted February 14, 2008 Sam, She should treat herself like you and Gracia. Can you talk her into that. She obviously is not getting any help doing what she has been doing. You're not a doctor but what you are doing is working for you. I am not being rude, I think it is worth a try....what the heck. Or she should go a larger hospital as suggested maybe someone there will not have their head in the sand. Venizia In hypothyroidism , " Sam " <k9gang@...> wrote: > > I am conversing with someone who has been trying to get on Armour > Thyroid for quite a while. She is extremely hypothyroid and quite ill. > Her synthroid dose is continually being raised and is now at 900mcg, > plus they are giving her weekly IV infusion of T4. She is getting worse > and is quite myxedemic (extremely low " numbers " ). Still trying to get > on Armour, her current doctor (who has prescribed Armour in the past) > again told 'no' and it was suggested she go to a larger hospital for > the same treatment. She is in a non-metropolitan area (in the infamous > midwest goiter-belt) with few options for doctors, and on MedicAid. > > Opinions? Suggestions? > > Sam > (thyroidless since 1990) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2008 Report Share Posted February 14, 2008 I know...I've tried - sent her the info to do so, but she doesn't have the means. Sam > > > > I am conversing with someone who has been trying to get on Armour > > Thyroid for quite a while. She is extremely hypothyroid and quite ill. > > Her synthroid dose is continually being raised and is now at 900mcg, > > plus they are giving her weekly IV infusion of T4. She is getting worse > > and is quite myxedemic (extremely low " numbers " ). Still trying to get > > on Armour, her current doctor (who has prescribed Armour in the past) > > again told 'no' and it was suggested she go to a larger hospital for > > the same treatment. She is in a non-metropolitan area (in the infamous > > midwest goiter-belt) with few options for doctors, and on MedicAid. > > > > Opinions? Suggestions? > > > > Sam > > (thyroidless since 1990) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2008 Report Share Posted February 14, 2008 exactly what city and state is she in or near? Roni Sam <k9gang@...> wrote: I am conversing with someone who has been trying to get on Armour Thyroid for quite a while. She is extremely hypothyroid and quite ill. Her synthroid dose is continually being raised and is now at 900mcg, plus they are giving her weekly IV infusion of T4. She is getting worse and is quite myxedemic (extremely low " numbers " ). Still trying to get on Armour, her current doctor (who has prescribed Armour in the past) again told 'no' and it was suggested she go to a larger hospital for the same treatment. She is in a non-metropolitan area (in the infamous midwest goiter-belt) with few options for doctors, and on MedicAid. Opinions? Suggestions? Sam (thyroidless since 1990) --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
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