Blood Clots

[Guest guest]

Hi Avis,

Has she tried marjuana? Doctors rarely suggest it, but it does work in

difficult cases.

Zavie

Zavie (age 70)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.6 log reduction Apr/08

3.6 log reduction Sep/08has been a while since you posted

e-mail: zmiller@...

Tel: 613-726-1117

Tel: 561-429-3309 in Florida

Fax: 309-296-0807

Cell: 613-282-0204

ID: zaviem

YM: zaviemiller

Skype: Zavie

_____

From: [mailto: ] On Behalf Of

avisallen@...

Sent: April-01-09 2:27 PM

Subject: [ ] Blood clots

Hi, all - I have a serious problem with

my cousin, Dona. A short time ago,

I asked about Aranesp side effects and

was able to speak with their direct phone.

They did not feel her sudden extreme

balance problem (and nausea) could be

their product. They mailed her some

material which stated if there were

balance problems and nausea, could

possibly by blood clots. About a week

ago, she had sudden pain in legs and an

ultrasound was done. She does have them in legs and says she more or

less

screams all night. Her onc said she could

take Darvon (prescribed to her long ago

in Houston). But there was no other

pain med available if on Gleevec. Today

she is about passing out from pain. She

called MDACC but they said entirely up to

her local Dr. It seems to me I have read

some of your emails that indicated you

were on something stronger than Darvon

(PDR says for mild to moderate pain.)

She was sent to ER from the imaging dept. for a blood-thinner shot and

has had

a few days of those. Mon. she began

Coumadin, but there has been no relief

from her nights spent screaming.

Btw, Houston said on phone she absolutely could not do the Coumadin.

Yesterday, however, they would not state

any painkillers as they leave all meds to

local Drs. (!) Anyway, she wants me to

ask whether any of you have had blood

clots or on any stronger-than-Darvon med.

Her local onc is totally worthless, and has

been since 2000, but not much choice in

Tucson.

Thank you for " listening. "

Avis (Hertz Nurtle)

Dona dx Dec. 2000

Gleevec 400 mg (now 300) on

clinical trial (Dr. Talpaz)

Now Dr. Cortes

Zavie's list #141