New subscriber

[Guest guest]

Hi ,

Welcome to the group. Sounds like Lyme to me! Lots of your story/symptoms

are

similar to mine. I had it (along with Babesiosis and probably Ehrlichiosis)

about 6

years before diagnosis. Felt like dying by the time I was diagnosed. Am much

better now

so there's hope. I went from doctor to doctor (and I'm a doctor! believe me, it

didn't

help.) If only I had trained in suburbia instead of Greenwich Village. The

infectious

disease I saw most often was AIDS.

Eileen, NJ

[Guest guest]

uhh ohb a nutty lawyer is on the loose!!!!

j/j

[Guest guest]

m2hmghb@... wrote:

>

> hi all old subscriber coming back.....hopefully it has changed and

> hopefully

> so have i.

>

Welcome Back !! But we both know you haven't changed, nor would we

want you to!!

Lovette

[Guest guest]

> > Hello to everyone.

> > I am new here and would like for you all to take the time and

> read

> > my story. I will try and make it brief but would like your

> opinion.

> > I would like to start off by saying that I have been clinically

> > diagnosed with Lyme disease.

> > It all started with a strange rash in the fall of 97. Wasn't

the

> > typical bullseye rash either. Looked like what I would imagine

> > ringworn to look like. Went to the Dr. cause it wouldn't go away

> and

> > was spreading a bit across my chest. My Dr. at the time tested

me

> > for syphilis (boy did I get freaked) Came back negative. The

rash

> > eventually went away.

> > Now that brings me to the spring of the following year 98. I

was

> > doing some stomach crunches and noticed a black dot on my stomach

> > area. Come to find out it was a very tiny tick that I thought was

a

> > mole. I pulled it out and went about my business. Unfortunately

> > can't remember what month this happened but know it was warm

> > outside. That September, I began to feel my legs seemed like

> > rubber. They felt wobbly and strange. Then my left arm began

> > tingling like it was going to fall asleep. I also began to feel

> weak

> > and sick to my stomach. Thought I was having a stroke. My heart

> > rate was pretty high and ended up practically fainting. Went to

> ER.

> > They said the only thing they could find was that I was

> dehydrated.

> > They pumped me up with fluids and sent me on my way. The rest of

> > that week I continued to feel ill and also began to have intense

> > anxiety. By November I noticed that my long hair began to fall

and

> > break off near the roots. It got so bad that I had to cut it off

> > almost to my shoulders. My hair had gotten significantly thinner

> and

> > I thought that I was going to go bald. In the winter months other

> > strange things began to happen: My fingernails would get numb

and

> I

> > battled with intense depression and anxiety that several types of

> > antidepressants would not take care of. I also began to battle

with

> a

> > fatigue that I had never had before. It was a fatigue that would

> > drive me to bed. I had no stamina left in my body at times and

> > thought it was just real bad PMS. Then by March/April my legs

> began

> > to feel strange again. This time my thigh muscles felt like I

had

> > just lifted 500 pound weights. My thumbs began to twitch

> > uncontrollably and I would get these real weird waves on anxiety

> that

> > would literally leave me next to faint. I went to the ER again

in

> > May because I began to feel very ill. Intense fatigue took hold

of

> > my entire body and my muscles were twitching all over. I began

to

> > run a fever for 2 days of close to 100' and then the top of my

foot

> > went numb. I began to shake without stopping for days on end and

> > literally had to be carried to go to the bathroom because I was

so

> > weak. I remember crying out that I thought that something was

> > invading my nervous system but everyone just thought I was COO-

> KOO!

> > This illness lasted about 2 weeks from the time it started. I

also

> > did not mention that during these episodes I had insomnia. By

the

> > end of June I began to have trouble breathing. Had 2 chest x-

rays

> > that came back clean and a pulminary function test done, also

came

> > back fine. I remember feeling a heaviness to my lungs and I had

a

> > dry cough. Sometimes I felt like I didn't have enough air in my

> > lungs to even finish a sentence. After that I began to experience

> > something like sleep apnea. As each month passed i would have a

few

> > days out of that month that I would run a low grade fever. In

the

> > fall I began to feel very shaky and a lot of muscle pain. My

face

> > would get slightly numb and my eye lid would droop affecting my

> > vision. I twitched constantly and then began to have tremors of

> the

> > head and hands. I would also get a feeling of total debilitating

> > fatigue that would cause me to appear like a limp rag. A friend

of

> > mine began asking me if I had ever been bitten by a tick and

that's

> > when the whole Lyme thing started for me. I was put on Doxy for 5

> > weeks and during the 2nd to 3rd week my symptoms intensified and

i

> > could hardly hold my own head up because my neck muscles were so

> > weak. My throat felt constricted and I basically thought I was

> dying

> > of some horrible neurological disease. I found an Infectious

> Disease

> > Dr who put me on IV Rocephin for 6 weeks and that was the first

> time

> > I began to slowly feel normal once again. I had already gone to 1

> > neurologist who basically told me I was a lunatic and my DR. sent

> me

> > to have an MRI done which came back normal. The neurologist who

> > thought I was crazy also gave me an EMG and that was also fine.

He

> > basically sent me on my way. I then was sent to a neurologist

from

> > Hopkins by the INfectious Disease Dr. As I was done with my

> IV

> > he checked me out looked at my MRI and said " YOU ABSOLUTELY DON'T

> > HAVE MS OR PARKINSONS " as this was a huge fear of mine. Finally

> > found a LLMD in March of last year and he clinically diagnosed

Lyme

> > disease. When I had gotten my first Lyme test done the results

> > read " Probably Negative " The other 2 times that I had western

> blots

> > done were while I was on IV and they apparently came back

> negative.

> > My LLMD put me on oral antibiotics (Ceftin) and I was doing fair

on

> > them. In May and June I felt almost normal only to begin to feel

> ill

> > again in August. In September my LLMD added Questran to my

Ceftin

> > and 2 weeks into that I have once again gotten deathly sick with

> all

> > neurological symptoms. My muscle and nerve function would

> basically

> > do their own thing leaving me feeling that I had no more control

> over

> > my own body. Tremors, numbness, tingling, off

> balance,weak/fatigued,

> > hearing problems,insomnia,nausea, head aches,ice cold hands and

> > feet,smell sensitivity, and diharea (spelling?), memory

problems.

> >

> > Well, that's it in a nutshell (HARDLY) but there just isn't a

> > shorter version of this story. Please let me know if this even

> > sounds like Lyme to you. believe it or not I still doubt my

> > diagnosis and live in fear when I get this sick. I surely would

> like

> > to hear what anyone has to say. Thank-you so much for your time.

[Guest guest]

> Hi !

> Welcome to the group......you are in the right place. Your story

> does sound like Lyme and hopefully, you are on your way to feeling

> better now that you are seeing a LLMD. Please - I feel the same

way

> about calling my doctor all the time - they must cringe when they

> hear me on the phone. I feel like a major PIA but remember one

thing

> - doctors are there to help you!!!!!! I remind myself that all the

> time, especially when I'm feeling really sick.

> Anyway - this group is a wonderful place for support &

> advice.....just reading the posts has helped me A LOT. So stay

tuned

> and welcome!

>

,

Thank-you for your comfort as I really am having a horrible time

right now. I have been reading many of the posts and do find others

who struggle just as bad. I guess I just have to be patient and hope

that I begin to feel well enough to get back in the real world again.

[Guest guest]

> In a message dated 10/31/2000 11:21:24 PM Eastern Standard Time,

> shrews36@a... writes:

>

>

> > . I found an Infectious Disease

> > Dr who put me on IV Rocephin for 6 weeks and that was the first

time

> >

>

> Dear /Shrews,

>

> Welcome here, and YES, you almost definitely do have Lyme.

> Your story is so much like my own.

> And, I, too, improved so much on Rocephin.

> Be careful, however, to take Milk Thistle to protect your liver,

and I'm not

> sure what is best, but someone here can tell you, ... you need to

take

> something to protect your gallbladder also, unless you've already

had it

> removed.

> Your LLMD, most likely, will be taking blood samples every week or

two while

> you are on IV Rocephin, and will test for liver enzymes. You will

see that

> the milk thistle will get them right down to normal; otherwise,

they will go

> way up.

>

> You will, like most of us, need prolonged treatment.

> We all hope & pray for a cure someday.

>

> Hugs,

> a Aida from NJ

Dear a,

Unfortunately i am not on IV anymore. I had the IV treatment Last

November which lasted for 6 weeks. Then I was put on Ceftin and

also tried Doxy a few times but it made my stomach sick even after

eating. That's when my Dr. said I could just take the Ceftin if it

aggreed better with me. I am hoping that I will be treated again on

IV because that was the only time that I began to feel better. My

LLMD told me that if my LUAT test comes back highly positive he has

no problem putting me back on IV. With my luck it'll come back

negative and boy will I be depressed! Thanks again for you words of

encouragement a.

[Guest guest]

> Hi ,

> Welcome to the group. Sounds like Lyme to me! Lots of your

story/symptoms are

> similar to mine. I had it (along with Babesiosis and probably

Ehrlichiosis) about 6

> years before diagnosis. Felt like dying by the time I was

diagnosed. Am much better now

> so there's hope. I went from doctor to doctor (and I'm a doctor!

believe me, it didn't

> help.) If only I had trained in suburbia instead of Greenwich

Village. The infectious

> disease I saw most often was AIDS.

> Eileen, NJ

Dear Eileen,

Thanks for you reply. I find much comfort when I hear others tell

me " Sounds like Lyme to me " Not that it's great having Lyme but

there seems to at least be hope in terms of treatment. Just always

live in fear of getting this sick again. What kind of Dr. are you if

you don't mind me asking? What a medical journey to go on especially

being in the same type of field, huh? Wow!! I'm happy that you

finally found out what it was that was making you so ill. I have

been fighting this thing for about 3 years (symptomatically) and

began treatment with a clinical diagnosis in October of last year.

Can't believe that here it is the anniversary of when I actually

thought I was dying of some horriffic neurological disease and here I

go again. Now I'm always going to dread the month of October.

Well, thank-you so much for your response.

[Guest guest]

Dear and Merry-

My story is the same.....with the chills, fever, fatigue, I would seriously

get a PCR blood test done with IGENEX labs only (www.igenex.com) for the

co-infections of babesiosis and ehrlichiosis. Sounds very much like it is

definitely babesiosis with the above symptoms. I have had the symptoms and my

husband almost died because of the co-infections. He never tested positive on

ANY tests (WB, Luat, ELISA, etc) until he did the PCR blood test for all and

it was sent to Igenex. The breathing is really scary--heart racing, heart

pain, etc.

I am now 98% better and have maintained that for some time now. I have been

treated aggresively and have not only done meds, but alternatives. People

have to realize also that you cannot be on one antibiotic and that is it. You

have to change antibiotics every few months because these spirochetes are

pleomorphic--they change and adapt. An excellent source to learn about lyme

is Dr. Jernigan's " Surviving Lyme Disease Using Alternative Meds " .

www.jnutra.com

I did his protocol solely and unfortunately it did not work. BUT his info is

right on the money. I feel you HAVE to have antibiotics too.

Just some info from personal experience.

sue in nj

[Guest guest]

My doctor told me that having too much gas can

" farting " - his words exactly.

mean that your stomach isn't producing enough

hydrochloric acid.

LIZ D

New

subscriber

Hi. I'm new to this list, and I can reassure you that I'm not going

to post like madman in the future as I'm doing now, but I hope

to

communicate...

A presentation:

I'm a 36 years old male ( " Helge " is different from " Helga " ) who are

not terribly plagued, but do have some annoying digestive

irregularities: letting out gas and having a variable quality of the

feces (sometimes thin and " explosive " ). My bathroom " product " has

also become slightly narrow, maybe indicating that the walls of the

big intestines have deposits on them. I think a " solid " cortisone

cure, against a serious case of lupus, might have started it all.

I finally went to a colon hydrotherapist (this cure has now spread to

Norway from Germany and the US). I have later found that this may not

be the best bang for the money as far as colon cleanse is concerned,

but anyway: we discovered that it was difficult, and painful for me,

to get the thingie at the end of the hose into the rectum (sorry, my

dictionary is not at hand). We managed one session, though. After

doing some reading, I strongly suspected it was my prostate: I had

also some other symptoms (slight pains, frequent urination, and a

couple of others I won't bother you with). And an urologist certainly

agreed with me: I had prostatitis, although it's difficult to find

out by tests. And he does believe that it's certainly plausible that

the bacteria have come from the colon: digestive problems often

co-occur with prostatitis. Since I have lupus (the immune system

attacks the body, but it's a stable and not severe case by now), I

take some pills which suppress the immune system a little bit, which

makes me more prone to infections, too (although I'm not plagued by

that in other respects). Actually, the urologists told me that my

mental health was important, too: I should not expose myself to

negative stress.

Now, I have so far had to stop two antibiotic cures because of first

a side-effect (achilles tendonitis, of all things), then an allergic

reaction. My plan now is to cleanse the colon, and then, somehow, try

to get rid of the bacteria as best as I can, and a couple of my other

posts follow up on, in particular, the first part of it.

-- Helge

--- rabbitbrain@...

--- EarthLink: It's your Internet.

[Guest guest]

Hi, Jan-

I joined this group about a month ago and have been lurking, reading

ya'lls conversations and trying to get to " know " everyone.

I was in LA in 2001. Drove south then across AZ, NM and TX to NO for

Mardi Gras. Had a great time, loved NO and want to go back for Jazz

Fest but if I ever go back for Mardi Gras, I'll be one of those who

leaves on Lundi Gras [the day before Mardi Gras]. LOL!

I'm single, 54 years old and work for HarperSanFrancisco book

publishers in San Francisco running the Mail/Copy Center. I like jazz

[mostly songs from the 1920s and '30s], R and B and New Orleans music

[Zydeco, cajun, funk, traditional jazz, etc.].

My cats are Bella, who I've had since Oct. 1998 when I adopted her

from the vet where she'd been abandoned. Her human had brought her in

for boarding but never retrieved her. She's a black meduim hair with

yellow eyes and is 6 1/2 years old. Sammy F.C. is my boy kitty. He's

a green eyed 6 year old brown and gray short haired classic tabby.

Both cats were sent to me by Bast, the cat I had from the day he was

born until he crossed to the Rainbow Bridge at the age of fifteen.

I'm the editor of a column in an online newsletter for an Internet

cat discussion forum.

I tend to ramble on so I'll stop here and let ya'll ask anything else

you might want to know about me. BTW, this seems like a friendly

group of people. And I'm glad I'm not the only angel with the raggedy

wings here. LOL!

CatmanLou

Bella & Sammy F.C.

> > Hello everyone,

> > How was your fourth of July yesterday??

>

> Hi, folks-

>

> I don't think I've posted to this Group yet. My name is Lou [a.k.a.

> CatmanLou] and I live in San Francisco with two cats.

[Guest guest]

> Welcome, I kind of guessed your location from the name.. Hope

you have a nice trip the the grand canyon. So is the name like the

Bob Seger song..

> " That's why I'm going to CatmanLou! " -dz-

LOL! Wharf Kitty is a catchat character who is based on a real cat I

used to see up at Fisherman's Wharf years ago. Catchat is the fun

fantasy topic on Feline-L, which is the cat discussion group I belong

to. It's the List's cats having adventures, parties, etc. The last

adventure was a Caribbean cruise. My cats were there. Sammy leads a

jazz band called Sammy F.C. and the Flurffles and they had a gig

playing on the cruise. =8-D All in virtual reality of course. We try

to work in cat related spelling like mewzic, purrsonality,

purrmision, etc. into the stories. It gives us a chance to see the

world from a cat's point of view. It also lets us get a little nutso.

LOL!

CatmanLou came from CatmanBast, which was my cat Bast's email name

when he had his own account. The story behind that is that on a whim

I set up an email account with GoPlay. GoPlay folded suddenly a few

years ago when they lost a major sponsor. Anyway, I wanted to use the

name Catman but that was already taken. It was suggested that I use

Catman1 but I said " F*** that, it's Catman or it's something else, it

ain't gonna be catman with a number after it! " LOL! I tried

CatmanBast and it worked. CatmanBast became Bast's nickname and

eventually I started using the nickname CatmanLou. After all, Lou can

be either male or female but CatmanLou can't. LOL!

Lou, Bella and Sammy F.C.

[Guest guest]

Well, the way to travel in the late '60s and early '70s was hitch-

hiking or getting a Drive-A-Way car. For those who don't know that

means you'd be paid to transport someone's car for them. The owner

would fly to their new home and have you drive the car. I wonder if

people still do that.

I used to hitch rides all over the Bay Area and up and down the

coast. HWY 1 through Big Sur is a beautiful road. Last time I was

down there we drove to Point Lobos just south of Monterey. It was a

birthday gift for me. After Pt. Lobos we drove to the Nepenthe for

dinner. That's the place that Orson Wells built for...I think it was

Rita Hayworth when they were married. Anyway, he built it for his

wife and today it's an inn and restaurant with fantastic views of the

Pacific.

I hitch-hiked from Camp Hill, PA just outside of burg back in

the early 1970s. That was the last time I did anything like that.

These days, there are too many crazies out there to do something like

that.

L

> I have somewhat of a roamer myself. I was born in Texas, grew up in

Wisconsin, hitchiked around quite a bit after high school. We hitched

through Vegas and then to LA and we up the coast hwy 1 & 101, much of

which I understand is now gone to the mudslides. It was a beauty of a

trip though. We stayed in Berkely for a while. (People's Park). I

lived in Denver for 8 years and have now settled to Green Bay, where

I've been for the past 12 years. -dz-

[Guest guest]

Hi,

I am subscribing to this list to a request to a member of

who is also a member of another list which was begun by a doctor and

myself in December of 1998. This list deals exclusively with Flaxseed

Oil and Cottage Cheese in relation to cancer.

Briefly, shortly after my 69th birthday I was diagnosed on Valentine's

day [some valentine!!] in 1991 with advanced Prostate Cancer stage 4 -

1. There was as yet no bone metastasis. The history has been long with

quite a little experimentation. There was a Prostectomy scheduled for

March 19, 1991 which was aborted when there was found to be extensive

involvement in the lymph glands. My PSA at the time of diagnosis was

75. Gleason scores were not done then at this lab at that time but the

doctor told me that most Prostate Cancer was slow growing but that some

was very aggressive. He said mine was not the most aggressive but not

slow growing.

I am not afraid of dying. I am not concerned at all with what lies

ahead except for a feeling of anticipation so I have been very much

interested in trying things of an alternative nature with Prostate

cancer. My Oncologist is working with me and I believe is as interested

as I am concerning the use of Flaxseed Oil. He told me he knows about

that and has seen it work succaessfully for long periods of time.

What follows is my latest update composed after returning yesterday from

an appointment with my doctor. If it is of help to anyone that is with

which we are concerned.

Cliff Beckwith www.beckwithfamily.com

*************

Dear Friends,

This may be the most significant update in a couple of years or more

involving my use of Flaxseed Oil/Cottage cheese with at least a

semi-aggressive Prostate Cancer]

I will list only the relevant PSAs and observations.

PSA July 16 2003 4.5

PSA Sept 3 2003 10.3 [i had used Androgel for 5 weeks to boost

testosterone - with me it

backfired]

PSA Nov 25 2003 4.7 [down after quiting Androgel]

PSA Jan 8 2004 6.2 [testosterone below 50]

Now going to 3 month intervals instead of 6 week intervals:

April 14 2004 10.8

July 7 2004 23.2

Oct 6 2004 24.9

Dec 29 2004 49.5

Feb 18 2005 49.1 [ seven weeks later]

Comments:

About Jan 8 of 2004 I began the use of Ellagic Acid. I had seen

references to experimental work that indicated that ellagic acid was

quite effective against Prostate Cancer. I had found a good source.

The next PSA in April increased more than half to 10.8

Three months later the PSA was 23.2; more than doubled. Not Panic time

but puzzling.

It was decided to increase the FO/CC to 5 tablespoons a day and stay

with DIM.

A few weeks later I learned from a good friend who writes for a Prostate

Cancer publication, The Quest, that Lycopene was effective in many

instances against Prostate Cancer but that it takes a really significant

amount; 3 twelve ounce glasses of tomato juice a day. I added that

around September 2004.

The October PSA was up but not significantly and we stayed with 5 Tbsps

of Flaxseed Oil a day, heavy ellagic acid and Lycopene primarily.

Three months later, December 29, 2004, the PSA had doubled to 49.5!!

A couple of weeks previous to Dec 29 I had learned from the Flaxseed Oil

2 list that Dr. Budwig did not use antioxidants as that robbed electrons

that the Flaxseed Oil supplied to cells. Then I learned that both

ellagic acid and Lycopene are powerful antioxidants. Also, other

supplements that we use a lot are antioxidants.

The thought occurred that I might be destroying the effect of the

Flaxseed oil and actually doing very little.

I had eliminated the Lycopene and Ellagic Acid as soon as I learned of

the relationships between Flaxseed Oil and the antioxidants and the

doctor suggested we go for six or seven weeks and see what happened. If

the PSA was still rising I would resort to a Lupron shot and see if I

might still not be refactory.

After a few nights of dreams and " sweating blood " a little I got the PSA

today and it has not risen. The Flaxseed Oil, without the interference

of the antioxidants, seems to have stopped the rise cold!

It is my continued belief that conventional medicine has no answer to

metastatic Prostate Cancer and it is entirely possible that Flaxseed Oil

can provide what is needed for a lot men with advanced Prostate Cancer

to survive and enjoy life a little longer.

The work of Dr. Reinhold Vieth in Toronto with vitamin D3,

chelocalciferol, may well be a big help as well and will not conflict

with Flaxseed Oil.

Cliff

[Guest guest]

Welcome to the most wonderful group ever....wish you great success on your journey - lucky you that you have the opportunity to work with - I am jealous!!!! We went to our first conference in Jan. and was one of our wonderful therapists - they were all wonderful but really connected with her. This has been a life changing experience for us and we have seen amazing results and continue to see changes everyday!!! My heart and love goes to all of them and Dr. Masgutova.....we are forever connected and want to just spread the word to anyone and everyone....Blessings, Tricia and Holly Borsch

From: Eileen Brown <eileenmbrown@...>Subject: new subscriber Date: Sunday, March 7, 2010, 7:23 PM

Hello-My name is Eileen, my 23 month old son was just diagnosed ASD and has severe dsypraxia that affectshis postural control (balance), motor planning, and speech and eating.I've heard that Dr. M's techiniques can really help so we're going to try it.We just had him evaluated by Dr. M at a conference in San Ramon in CA, and we live in San .We've started our home therapy program and are looking forward to working with on our home therapy program and getting it kicked off.thanks,Eileen in San , CA