Guest guest Posted May 24, 2008 Report Share Posted May 24, 2008 --Hi Jewel, We have a site for those with autoimmune thyroid disease using LDN. It is www.ahsta.com I have Graves Disease, and have been on LDN for about 3 months now. I was hypo due to RAI. I will be getting labs done ASAP, however, I am fairly certain that LDN has caused an increase in thyroid production, and that I am flipping back to the hyper side. There is a warning for LDN that those with thyroid issues may find a prompt increase in thyroid function after starting LDN, so it is important to check labs often. Unfortunately for me, I do not have a local doctor working with me, and no health insurance, so I must pay out of pocket for all testing. I order my LDN from a pharmacy in Canada, without a RX. It has made all the difference in the world for me. It is said to reduce antibodies, but I do not have labs to support that, as I can not get antibody testing here. All I know for sure is that I feel better than I have in 20 years, and it is ALL due to LDN> Good luck, Saundra - In low dose naltrexone@..., " jewelbox29 " <jewelbox29@...> wrote: > > Hi > I was directed here by someone on another site, to which I had posed a > question regarding LDN and hashimotos thyroiditis. > I was diagnosed with Hashi's in 2001-I still have so many symptoms with > it and would like to know if LDN would benefit me? > > The moderator of the other group said he thought it had been used for > people with autoimmune thyroiditis but you would have to be monitored > closely by a doctor for your thyroid levels. > My questions is: Does anyone know if it would actually help regenerate > the thyroid-or would it just help with reduction in antibodies? > Any help regarding this would be greatly appreciated-I'm always > hesitant to try any new medication. > Thanks > Jewel > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2008 Report Share Posted May 24, 2008 it will stop the inflamation and bring down the antibodies > > Hi > I was directed here by someone on another site, to which I had posed a > question regarding LDN and hashimotos thyroiditis. > I was diagnosed with Hashi's in 2001-I still have so many symptoms with > it and would like to know if LDN would benefit me? > > The moderator of the other group said he thought it had been used for > people with autoimmune thyroiditis but you would have to be monitored > closely by a doctor for your thyroid levels. > My questions is: Does anyone know if it would actually help regenerate > the thyroid-or would it just help with reduction in antibodies? > Any help regarding this would be greatly appreciated-I'm always > hesitant to try any new medication. > Thanks > Jewel > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2008 Report Share Posted May 24, 2008 Hi Jewel, I have Hashimotos thyroiditis. I take Armour thyroid and cytomel. My doctor told me about LDN. I started on 1.5 mg a couple of weeks ago and had a thyroid function test on Friday. My doctor did say I may have to decrease my thyroid medication as I increase the LDN. She has me scheduled to increase the LDN every 2 weeks by 1.5 mg. After being on each new dose for 2 weeks, I get another thyroid function test. Even on such a low dose, I felt better pretty quickly. > > > > > > > Hi > > I was directed here by someone on another site, to which I had > posed a > > question regarding LDN and hashimotos thyroiditis. > > I was diagnosed with Hashi's in 2001-I still have so many symptoms > with > > it and would like to know if LDN would benefit me? > > > > The moderator of the other group said he thought it had been used > for > > people with autoimmune thyroiditis but you would have to be > monitored > > closely by a doctor for your thyroid levels. > > My questions is: Does anyone know if it would actually help > regenerate > > the thyroid-or would it just help with reduction in antibodies? > > Any help regarding this would be greatly appreciated-I'm always > > hesitant to try any new medication. > > Thanks > > Jewel > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 Hi , Just to make sure I understood you correctly... .... your doctor is having you take thyroid labs every 2wks to coincide with the increasing of your LDN dose. Also, which thyroid tests are you having done ??? And do you know how many thyroid patients your doctor has using LDN therapy ??? Thanks... Jann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 Jann, My doctor wrote 3 scripts for blood tests as I increase LDN. I'm supposed to go up to 3 mg. on Tues.,but will wait for blood test results. I may have to decrease my thyroid meds as I increase the LDN. The blood tests do coincide with the LDN increase. The thyroid function test includes a TSH, Total T4, Free T4, and T3. The reason she gave me a script for the blood tests is because it's a 45 minute drive to her office. I ended up going to her for the blood tests anyway because it was less expensive. I think I'm the guinea pig for LDN and Hashi's. My doctor has other people on LDN for other things, but I'm her only patient on it with Hashi's. She is the one who approached me about LDN. I had never heard of it before, but I'm sure glad I changed doctors and decided to go to her. In low dose naltrexone , " jannz2 " <jbreslin@...> wrote: > > Hi , > > Just to make sure I understood you correctly... > > ... your doctor is having you take thyroid labs every 2wks to coincide > with the increasing of your LDN dose. > > Also, which thyroid tests are you having done ??? > > And do you know how many thyroid patients your doctor has using LDN > therapy ??? > > Thanks... > Jann > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 Hi all, This is amazing. Did anyone else had their own doctor recommend LDN for a thyroid problem. Most doctors/endocrinolist's I have spoken to have no clue about this LDN protocol. They do after I get finished with them. The bottom line is that results will speak for themselves. I need to get those antibodies to zero. Thanks, Tronicworlds > > > > Hi , > > > > Just to make sure I understood you correctly... > > > > ... your doctor is having you take thyroid labs every 2wks to coincide > > with the increasing of your LDN dose. > > > > Also, which thyroid tests are you having done ??? > > > > And do you know how many thyroid patients your doctor has using LDN > > therapy ??? > > > > Thanks... > > Jann > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 I'm very lucky as far as my doctor goes. She is an M.D. that practices alternative medicine. I live in a rural area and she is even further in the mountains, so I feel truly lucky to have someone within a 45 minute drive. I had heard about her for years, but she was never been on my insurance plan, but now she is. > > > Hi all, > > This is amazing. > > Did anyone else had their own doctor recommend LDN for a thyroid > problem. Most doctors/endocrinolist's I have spoken to have no clue > about this LDN protocol. They do after I get finished with them. > > The bottom line is that results will speak for themselves. I need to > get those antibodies to zero. > > Thanks, > Tronicworlds > > > > > > > > > > Hi , > > > > > > Just to make sure I understood you correctly... > > > > > > ... your doctor is having you take thyroid labs every 2wks to coincide > > > with the increasing of your LDN dose. > > > > > > Also, which thyroid tests are you having done ??? > > > > > > And do you know how many thyroid patients your doctor has using LDN > > > therapy ??? > > > > > > Thanks... > > > Jann > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 Hi , Is there a reason why your doctor isn't testing for " Free T3 " ?? That's the active form of thyroid hormone...and I would think one of the more important levels to monitor -- especially with the LDN. --??-- When I test my thyroid levels I test: TSH, Free T3, Free T4 and TPO (antibodies). These indicators are what I'm using to measure my progress with LDN and are the ones I used to establish a benchmark before starting LDN. I decided to try LDN (a second time) without being on THR (thyroid meds) so my LDN experiment is coming from being in a hypo status vs euthyroid. And since I went hypo - as a result of stopping THR - all my thyroid levels went up and also my cholesterol. I'm also retesting my cholesterol level with the VAP test - it's a more comprehensive cholesterol test and gives you a lot more information that the old one that doctors have been using forever. Also, there is one test I wish I had thought to benchmark ahead of starting LDN and that is the adrenals. Because of the symbiotic relationship between the adrenals and the thyroid I think it would be beneficial to have the adrenals measurement as a " before " and " after " . I recently did an adrenal test and I was VERY low...however, since I didn't benchmark ahead of starting LDN...I don't know if I already had this condition BEFORE starting LDN. Best wishes... Jann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2008 Report Share Posted May 27, 2008 Jann, I'm going to call my doctor tomorrow and find out which specific tests she ran. I should also have the test results in a day or two. Even though I've been on 1.5 mgs of LDN today, she doesn't want me to increase until receiving the blood test results. I'm sure my adrenals are shot. I've been in school for 7 years (and I'm no spring chicken!) I decided later in life that I wanted to be a teacher. I got my undergrad in '06, starting teaching and just finished my Master's. The stress has been incredible and mostly self-induced, but I was a more conscientious student this time around. My chiropractor recommended concentrated liquid licorice for adrenals. She orders it from New Zealand, but haven't received it yet. Would like to hear how you do with LDN and Hashi's. Did you just start taking LDN? Thanks for all the insight. > Hi , > > Is there a reason why your doctor isn't testing for " Free T3 " ?? > That's the active form of thyroid hormone...and I would think one of > the more important levels to monitor -- especially with the LDN. --??-- > > When I test my thyroid levels I test: TSH, Free T3, Free T4 and TPO > (antibodies). These indicators are what I'm using to measure my > progress with LDN and are the ones I used to establish a benchmark > before starting LDN. > > I decided to try LDN (a second time) without being on THR (thyroid > meds) so my LDN experiment is coming from being in a hypo status vs > euthyroid. And since I went hypo - as a result of stopping THR - all > my thyroid levels went up and also my cholesterol. I'm also > retesting my cholesterol level with the VAP test - it's a more > comprehensive cholesterol test and gives you a lot more information > that the old one that doctors have been using forever. > > Also, there is one test I wish I had thought to benchmark ahead of > starting LDN and that is the adrenals. Because of the symbiotic > relationship between the adrenals and the thyroid I think it would be > beneficial to have the adrenals measurement as a " before " and " after " . > I recently did an adrenal test and I was VERY low...however, since I > didn't benchmark ahead of starting LDN...I don't know if I already had > this condition BEFORE starting LDN. > > Best wishes... > Jann > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 My experience has been that it has not affected my Hashimoto's antibodies at all. I still use levothyroxine in approximately the same dose as I have been using for over 10 years.My antibody count was slightly reduced last year and my thyroid nodules has shrunk. At first I thought these two occurrences may have been due to LDN, but I learned that with long term use of levothyroxine reduced antibody count and nodule shrinkage is common.So there is no way I can accurately say LDN has helped my Hashimoto's Disease.JackieFrom: TLBee <tanialbee2002@...>Subject: [low dose naltrexone] LDN and hashi'slow dose naltrexone Date: Friday, May 14, 2010, 7:30 AMHi. I'm new to the group and wanted some information on LDN. Is it helpful for people with hashi's? Since it boosts immune system is it a cure? Or do you have to continue thyroid meds?Thanks,~Tania------------------------------------ Quote Link to comment Share on other sites More sharing options...
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