Guest guest Posted June 1, 2008 Report Share Posted June 1, 2008 We are dealing with Crohn's, not MS, but diet is extremely important in my son's case. From what I have seen, many people with chronic disease of any type HAVE to be on some version of a diet like you're describing, but there are still those who don't need the diet at all. I have wondered if the patients who do not see an improvement on LDN might benefit from trying LDN combined with diet before they give up. With Crohn's it's gluten free, lactose free and yeast free. For some strange reason, tomatoes are also a common problem with Crohn's and other intestinal disease- maybe due to the tendency to mold. Maybe it wouldn't hurt for your friend to try LDN without diet and if it doesn't work like it should, try adding diet before giving up. I have heard of food problems getting better or going away on LDN. I'm hoping this will happen eventually for my son, but for now the LDN works only in conjunction with diet- but it works great. > > I was talking to someone who has MS today about LDN. She was interested in going on it. I told her besides taking the LDN she should follow a gluten free, lactose free diet. She wasn't sure if she could do it. > I would appreciate if you could respond to this and let me know if you're doing LDN alone or with diet. > TIA > Betty > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2008 Report Share Posted June 1, 2008 in tomatoes the problem is probably histamines.if you take away the peel and the soft part where the seeds are then there is no problems. > > > > I was talking to someone who has MS today about LDN. She was > interested in going on it. I told her besides taking the LDN she should > follow a gluten free, lactose free diet. She wasn't sure if she could > do it. > > I would appreciate if you could respond to this and let me know if > you're doing LDN alone or with diet. > > TIA > > Betty > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2008 Report Share Posted June 1, 2008 I follow a diet free of gluten, casein, sugar, soy and red meat. Why some May have problems with or fail LDN http://tinyurl.com/52ol6m Dr. McCandless on this subject: http://tinyurl.com/6ykpgx -Art Diagnosed with MS April 1988 Using LDN since March 2005 My MS/LDN Story: http://tinyurl.com/5tcp6r -- > > I was talking to someone who has MS today about LDN. She was interested in going on it. I told her besides taking the LDN she should follow a gluten free, lactose free diet. She wasn't sure if she could do it. > I would appreciate if you could respond to this and let me know if you're doing LDN alone or with diet. > TIA > Betty > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2008 Report Share Posted June 3, 2008 Hi, I'm usually giving the same advice as you, Sherry, and I do agree; people can try without a diet, and if LDN isn't working as they expect, then try to go on a diet. Some in here just change to a healthier diet, learning to be careful i.e. with too much red meat, reducing sugar, avoiding too much fat. I am sure most of us can do this if we want to have a healthier body. Due to Crohns or another IBD, people often already have a fantastic diet that they are following (SCD or The Makers or Gluten-Sugar-Dairy-Soyfree, mixes betw. those) before they start using LDN, and they of course continue with that. I don't use a diet at all. I have Crohns. But I eat healthy and avoid some of my problem food. As Crohnies everybody has their triggers or problem food. Still; I have just one really healthy rule that I follow: I eat home made yogurt, SCD yogurt. It helps a lot. (And it's so tasty!!) Containing billions of probiotics and no lactose. Just because it's home made. MS'ers don't have the same problematic relationship to their nutrition. So combining LDN and food will be a matter of taste and desire, you have to find out if it's worth the loss of some unhealthy habits. Good luck convincing your friend! :-)Ingrid [low dose naltrexone] Re: LDN, Diet and MSWe are dealing with Crohn's, not MS, but diet is extremely important in my son's case. From what I have seen, many people with chronic disease of any type HAVE to be on some version of a diet like you're describing, but there are still those who don't need the diet at all. I have wondered if the patients who do not see an improvement on LDN might benefit from trying LDN combined with diet before they give up. With Crohn's it's gluten free, lactose free and yeast free. For some strange reason, tomatoes are also a common problem with Crohn's and other intestinal disease- maybe due to the tendency to mold.Maybe it wouldn't hurt for your friend to try LDN without diet and if it doesn't work like it should, try adding diet before giving up.I have heard of food problems getting better or going away on LDN. I'm hoping this will happen eventually for my son, but for now the LDN works only in conjunction with diet- but it works great.>> I was talking to someone who has MS today about LDN. She was interested in going on it. I told her besides taking the LDN she should follow a gluten free, lactose free diet. She wasn't sure if she could do it.> I would appreciate if you could respond to this and let me know if you're doing LDN alone or with diet.> TIA> Betty>------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 A little off the topic of LDN but related. Reply to Gunn Dybfest - As someone with MS who has dramatically improved the symptoms of her disease solely through organic nutrition, elimination of questionable foods and additives, taking supplements, etc., I must take exception to your statement, "MS'ers don't have the same problematic relationship to their nutrition." Although I'm sure you have effects that are far more 'dramatic', don't ever think that diet is not linked to MS, it definately is and I am living proof. Maybe I don't get the same spasms, pain, diarrhea, etc but the effects from food are just as impactful, you just can't see them....cog fog, fatigue, numb limbs, optic neuritis. It's all linked, it's just our bodies attack different areas than the gastro-intestinal system. I have tried to tell others with MS how diet has improved my health and urged them to do the same, but most are not willing to make the dramatic changes in lifestyle to improve their health. I guess it's just easier to 'inject' yourself daily and hope for the best. We all need to remember, "you are what you eat." or as they say in IT....."garbage in, garbage out." Peace.... ~joni Gunn Dybfest <gunn.ingrid@...> wrote: Hi, I'm usually giving the same advice as you, Sherry, and I do agree; people can try without a diet, and if LDN isn't working as they expect, then try to go on a diet. Some in here just change to a healthier diet, learning to be careful i.e. with too much red meat, reducing sugar, avoiding too much fat. I am sure most of us can do this if we want to have a healthier body. Due to Crohns or another IBD, people often already have a fantastic diet that they are following (SCD or The Makers or Gluten-Sugar-Dairy-Soyfree, mixes betw. those) before they start using LDN, and they of course continue with that. I don't use a diet at all. I have Crohns. But I eat healthy and avoid some of my problem food. As Crohnies everybody has their triggers or problem food. Still; I have just one really healthy rule that I follow: I eat home made yogurt, SCD yogurt. It helps a lot. (And it's so tasty!!) Containing billions of probiotics and no lactose. Just because it's home made. MS'ers don't have the same problematic relationship to their nutrition. So combining LDN and food will be a matter of taste and desire, you have to find out if it's worth the loss of some unhealthy habits. Good luck convincing your friend! :-)Ingrid [low dose naltrexone] Re: LDN, Diet and MSWe are dealing with Crohn's, not MS, but diet is extremely important in my son's case. From what I have seen, many people with chronic disease of any type HAVE to be on some version of a diet like you're describing, but there are still those who don't need the diet at all. I have wondered if the patients who do not see an improvement on LDN might benefit from trying LDN combined with diet before they give up. With Crohn's it's gluten free, lactose free and yeast free. For some strange reason, tomatoes are also a common problem with Crohn's and other intestinal disease- maybe due to the tendency to mold.Maybe it wouldn't hurt for your friend to try LDN without diet and if it doesn't work like it should, try adding diet before giving up.I have heard of food problems getting better or going away on LDN. I'm hoping this will happen eventually for my son, but for now the LDN works only in conjunction with diet- but it works great.>> I was talking to someone who has MS today about LDN. She was interested in going on it. I told her besides taking the LDN she should follow a gluten free, lactose free diet. She wasn't sure if she could do it.> I would appreciate if you could respond to this and let me know if you're doing LDN alone or with diet.> TIA> Betty>------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 FIFO, GIGO I'D SAY DIET AND MS have a lot to do with each other. Maybe not critically, in that the body reacts immediately, but allergens will trigger MS attacks. CHOCOLATE with MS may be responsible for many SX and attacks, I know it's poison to me. I started doing a lot better when I left my family and had to start feeding myself. I started having a salad as a or with a meal nearly every day and it helps keep things moving. Before that it wasn't. [low dose naltrexone] Re: LDN, Diet and MSWe are dealing with Crohn's, not MS, but diet is extremely important in my son's case. From what I have seen, many people with chronic disease of any type HAVE to be on some version of a diet like you're describing, but there are still those who don't need the diet at all. I have wondered if the patients who do not see an improvement on LDN might benefit from trying LDN combined with diet before they give up. With Crohn's it's gluten free, lactose free and yeast free. For some strange reason, tomatoes are also a common problem with Crohn's and other intestinal disease- maybe due to the tendency to mold.Maybe it wouldn't hurt for your friend to try LDN without diet and if it doesn't work like it should, try adding diet before giving up.I have heard of food problems getting better or going away on LDN. I'm hoping this will happen eventually for my son, but for now the LDN works only in conjunction with diet- but it works great.>> I was talking to someone who has MS today about LDN. She was interested in going on it. I told her besides taking the LDN she should follow a gluten free, lactose free diet. She wasn't sure if she could do it.> I would appreciate if you could respond to this and let me know if you're doing LDN alone or with diet.> TIA> Betty>------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 Yes, but I didn't write: MS'ers DON'T HAVE a problematic relationship to their nutrition.... I wrote ....don't have the SAME problematic relationship to their nutrition.....(as those with IBD or Crohns) and I am almost 100 % sure that I can prove it... And of course I agree with you, all people need to learn to be careful what they eat, specially us with autoimmune diseases, cancers or other severe diseases. I have used an other forum, one of the largest online, that has 70 000 posts about Crohns....and I've found out that just a few want to change their diets trying to get better, I mean, using a diet that is known to bring us in remission. Most people, I think 8 of 10 are afraid of changing direction and try something new. Taking 100 % responsibility for our own health and in a dramatic way make changes seems scaring for us. We don't want to learn how to make our own gluten free bread, we don't want to avoid prosessed food, we don't want to eat too much vegetables and we don't want to stop using sugar for the rest of our life. We are sitting at a Crohns forum and are desperate to tell everybody that we're feeling sick, at the same time we eat chocolate, icecream, tons of cakes and read meat every day. We know what make us sick, but we don't avoid it. We know there are diets that can help, maybe not 100 %, but close to. We are listing up 10 different types of meds that we are using, or have used, but they don't work anymore, we are crying out in despair that we have to do our 3rd or 4th surgery and get an even shorter intestines, there are Crohnies having only some inches left of 6 - 8 meters of small intestines. Changing the nutrition? NOPE. Using LDN? NOPE. We don't want to listen to those that talks about diets or LDN, if they talks more now, we will ban them!! and keep them out there some place, so we can sit in here and chat about our chocolates, icecreams, cakes, prosessed food, all our medicines and our miserable health. ;-) Ingrid [low dose naltrexone] Re: LDN, Diet and MSWe are dealing with Crohn's, not MS, but diet is extremely important in my son's case. From what I have seen, many people with chronic disease of any type HAVE to be on some version of a diet like you're describing, but there are still those who don't need the diet at all. I have wondered if the patients who do not see an improvement on LDN might benefit from trying LDN combined with diet before they give up. With Crohn's it's gluten free, lactose free and yeast free. For some strange reason, tomatoes are also a common problem with Crohn's and other intestinal disease- maybe due to the tendency to mold.Maybe it wouldn't hurt for your friend to try LDN without diet and if it doesn't work like it should, try adding diet before giving up.I have heard of food problems getting better or going away on LDN. I'm hoping this will happen eventually for my son, but for now the LDN works only in conjunction with diet- but it works great.>> I was talking to someone who has MS today about LDN. She was interested in going on it. I told her besides taking the LDN she should follow a gluten free, lactose free diet. She wasn't sure if she could do it.> I would appreciate if you could respond to this and let me know if you're doing LDN alone or with diet.> TIA> Betty>------------ --------- --------- ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2008 Report Share Posted June 6, 2008 Hi, I have had MS for approx 10 mths. Dx in Sept 07, started LDN in Oct 07. I have not changed my diet in any way. Food, for me, does not seem to affect my MS. But again, I do not have the fatigue issue or sun sensitivity either. Kristie [low dose naltrexone] LDN, Diet and MS I was talking to someone who has MS today about LDN. She was interested in going on it. I told her besides taking the LDN she should follow a gluten free, lactose free diet. She wasn't sure if she could do it.I would appreciate if you could respond to this and let me know if you're doing LDN alone or with diet.TIABetty Internal Virus Database is out-of-date.Checked by AVG.Version: 7.5.430 / Virus Database: 268.14.6/536 - Release Date: 11/16/2006 3:51 PM Quote Link to comment Share on other sites More sharing options...
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