Guest guest Posted April 14, 2001 Report Share Posted April 14, 2001 I think we should save personal messages like " thank you " messages etc for personal correspondance to reduce the amount of mail which is not relevant for the whole List. This List receives many emails a day and much of it can be reduced; I'm sure many would agree. Thanks - Vito >From: Rabbitbrain@... >Reply-bowel cleanse >bowel cleanse >Subject: RE: Re: I agree (was: strange garlic story) >Date: Sat, 14 Apr 2001 21:21:33 -0700 > >I agree with the 'thank you's' Barbara, to leave them out. >I realy want to post a great big thank you everytime I have >been enlightened but I haven't. Just to let the group know >I am very pleased with ALL the comments and help I have recieved. > >LIZ D > > > > [Original Message] > > From: <barbinohio@...> > > <bowel cleanse > > > Date: 4/13/01 11:26:27 AM > > Subject: Re: I agree (was: strange garlic story) > > > > > > > p.s. Tho I am not the moderator of this list I would like to > > pretend I am for the moment and encourage everyone on the list to > > consider the subject line when posting or replying since I have > > noticed that they rarely match and that makes reading the archives to > > find something, really difficult > > > > > > I totally agree with you. Sometimes I have to read every message > > because I'm not sure what's going to be in there! Also, what about > > the thank you's. I hate not to say thank you to someone who's given > > some help, but at the same time it makes it harder to weed thru the > > messages. What do you think? > > > > Barbara > > > > > > Subscription email: > > mailto:bowel cleanse-subscribe > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2008 Report Share Posted May 19, 2008 Hello, I am new to this list and joined to learn more about LDN. I am a medical professional and have encouraged a good freind with MS to try it. After a few weeks, the results are very encouraging. Here is my suggestion: In reading a number of posts, I think it would be helpful to name the disease one is talking about - MS, Crohns, Fibro, etc in order to make sense of the issue. Some do this now, but I have been confused by a number of posts and not able to discern what the issue is that has improved or relapsed. Let's hope this list helps encourage more studies and eventual FDA approval - too many physicians are reluctant to Rx this even though nothing else is working for many diseases. I live near Akron, Ohio and there is an LDN trial going on now at the Oak Clinic, a highly respected regional center for MS research and treatment. I hope those results give some credibility to the LDN champions. I am normally a skeptic but this is no snake oil in my opinion. Best regards, Bob C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2008 Report Share Posted May 19, 2008 Hello Bob, Glad to hear your opinion. I am excited for the day when more health care professionals will be more supportive of LDN. I just saw a new neurologist - for MS - and he thinks I'm doing VooDoo. > > Hello, I am new to this list and joined to learn more about LDN. I am > a medical professional and have encouraged a good freind with MS to > try it. After a few weeks, the results are very encouraging. > > Here is my suggestion: In reading a number of posts, I think it would > be helpful to name the disease one is talking about - MS, Crohns, > Fibro, etc in order to make sense of the issue. Some do this now, but > I have been confused by a number of posts and not able to discern what > the issue is that has improved or relapsed. > > Let's hope this list helps encourage more studies and eventual FDA > approval - too many physicians are reluctant to Rx this even though > nothing else is working for many diseases. I live near Akron, Ohio > and there is an LDN trial going on now at the Oak Clinic, a highly > respected regional center for MS research and treatment. I hope those > results give some credibility to the LDN champions. I am normally a > skeptic but this is no snake oil in my opinion. > Best regards, > Bob C. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2008 Report Share Posted May 20, 2008 Bob, Over at http://www.ahsta.com/ (Alternative Health Solutions for Thyroid Autoimmunity) we are hoping to generate enough careful data to interest our own doctors in LDN. We have a survey going for anyone with thyroid disease trying LDN, for instance. My own interest is LDN for Thyroid Eye Disease / Graves' Ophthalmopathy, as there are very few treatments for it except rehab surgery. I hope you stop by the site sometime. Best regards, a > > > > Hello, I am new to this list and joined to learn more about LDN. I am > > a medical professional and have encouraged a good freind with MS to > > try it. After a few weeks, the results are very encouraging. > > > > Here is my suggestion: In reading a number of posts, I think it would > > be helpful to name the disease one is talking about - MS, Crohns, > > Fibro, etc in order to make sense of the issue. Some do this now, but > > I have been confused by a number of posts and not able to discern what > > the issue is that has improved or relapsed. > > > > Let's hope this list helps encourage more studies and eventual FDA > > approval - too many physicians are reluctant to Rx this even though > > nothing else is working for many diseases. I live near Akron, Ohio > > and there is an LDN trial going on now at the Oak Clinic, a highly > > respected regional center for MS research and treatment. I hope those > > results give some credibility to the LDN champions. I am normally a > > skeptic but this is no snake oil in my opinion. > > Best regards, > > Bob C. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2008 Report Share Posted May 20, 2008 Just want to reintroduce myself to the list so there are no misunderstandings. I am not a doctor - but have wiorked in the medical profession ummm....for a number of decades. Here's what I do - I am a director of a number of departments in a medium sized hospital, and as such have access to many physicians to which I have the potential to spread the word. 1. Director of surgery - we have several expert breast specialists and of course general surgeons who treat Crohns. 2. Director of Endocopy Suite - this is where I'll be querying the GI docs about Crohns and other bowel inflammatory diseases. 3. Director of a neuro Lab - self explanatory - many neurologists. 4. Director of a Pain Management Center - what the heck do we do for fibro? No one has an answer. I am not a big fan of "alternative" medicine - have seen it fail MOST times, and too many proponents of acupuncture, acupressure, reflexology, reiki, aromatherapy, etc are CHARLATANS. I am speaking from PERSONAL experience in a series of hundreds of patients, not one or two anecdotes. We have had several good MDs investigate and experiment with some of these treatments with results usually akin to placebo effect. We have a regional expert of acupuncture, and he probably has the best results, though even he admits up to 50% is in the mind over matter. I really was suspicious of LDN because whenever you see all these diseases listed a red flag goes up. But more and more evidence is indicating that in some autoimmune diseases, this has real potential. A local MS clinic is currently doing trials and i can't wait to find out the results. I hope this doesn't turn out to be like the many miracle drugs that don't stand the test of time, but the mere fact that this is such a unique approach and appears to work whare other treatments fail is extemely encouraging! We in medicine work to put ourselves out of business! Bob C marshiris@... wrote: BOB C. - thanks for your professional opinion of LDN!! i'm sure, if seen, some sceptics may change their minds about it!! marshirisaol Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2008 Report Share Posted May 20, 2008 Many of us here are not big fans of " conventional " medicine anymore. Too many times we've seen it fail and at a cost to OUR health. Doesn't make us too happy, especially considering the money involved and who's pocket it goes in to. What hospital do you work for and where? Art H. -- > BOB C. - thanks for your professional opinion of LDN!! i'm sure, if seen, some sceptics may change their minds about it!! > > marshiris@... > > > > > --------------------------------- > Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2008 Report Share Posted May 20, 2008 This is my MS/LDN story. http://preview.tinyurl.com/5tcp6r It doesn't come close to the anger and pain I truly feel, especially towards conventional medicine. How many times I have read here ill, desperate people going to their doctors being refused a prescription for LDN. For what reason? So they can pocket a kick-back from medicine saleman to promote the " accepted cure of the day " . Had I started LDN sooner I wouldn't be dealing with the problems I do now. The FDA-approved MS meds are dangerous, expensive and ineffective and people, REAL people, suffer because of them. With all due respect sir I doubt very much your comment of: " We in medicine work to put ourselves out of business! " I find this insulting to my intelligence because I feel it is not true. Those who can truly help us will not because there is no money to be made using LDN. Sick people are cash cows for the rich and greedy. Art -- > > BOB C. - thanks for your professional opinion of > LDN!! i'm sure, if seen, some sceptics may change their minds about > it!! > > > > marshiris@ > > > > > > > > > > --------------------------------- > > Wondering what's for Dinner Tonight? Get new twists on family > favorites at AOL Food. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2008 Report Share Posted May 20, 2008 Well, I for one can attest to the fact that it does work for me!!! Graves disease dx in Feb 07, Radioactive Iodine in Mar, 07. Severely HYPO by Oct. 07....suicidal and living in hell. Labs in Feb 08. showed " within normal range " ...which was by no means " normal " for me...still hypo, but doctors(plural here) not willing to do anything about it. Began LDN in Mar 08..within a couple of days, I had my life back!!!!!! Thank you LDN and this group!! Of course there is no single drug that can work for every ailment. However, I have seen first hand this one work for more than any other drug out there, and with next to no side effects,and the ones that are possible are not worrisome or dangerous. I applaud your effort to research this drug, and keep the doctors informed. We need more people in your position. But, forgive me for my lack of trust in the medical community as a whole. They failed me miserably, leaving me to fight on my own....no biggie really, as this is what I am used to. Besides, ultimately, my problems were of my own doing....lifestyle choices without regards to consequences. Water over the bridge now though. And as far as pharmaceutical companies go...I have chosen to believe nothing they say...until I prove it on my own. FDA...nothing but a joke, funded by the pharmaceutical companies...too big of a conflict of interest for me to put my trust in. In closing, thank you for being a funnel for information, getting it to doctors whom are willing to listen. But sometimes, the best we can do is nothing more than a leap of faith. Saundra > I am not a doctor - but have wiorked in the medical profession ummm....for a number of decades. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 Bob, I agree...with most of what you said..LOL. Unfortunately, mostly with the liability issues the doctors are constantly facing. Too bad that somewhere along the line personal responsibility got left at the wayside, leaving long lines for malpractice suits. One MUST take personal responsibility for their health and the management of it. More than once since I have been dx with Graves Disease, I have been rx'd a med that was dangerous to take. Luckily, I read the information that comes with each rx. Since my doc, and the pharmacist missed it, who should have been held accountable had I taken it? IMO, it should have been ME< and me alone. Unfortunately, most want to be told what to do, and then complain when they take no personal interest in what they are told. Thank you for trying to get the word out. Let's hope the results continue to be positive for folks. So far, so good on this end. Saundra 12.5 months post RAI (the last time I listened to a doctor, without taking personal interest in their decision) > > Saundra, > I am very excited when I see some of these results. I think a lot of > doctors just don't want to stray from what they are trained to > prescribe, and worry about liability. Quote Link to comment Share on other sites More sharing options...
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