Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 I have been on LDN since Nov 2006 after 7 years on Avonex. I started with 3 mg then increased to 3.5 about 9 months ago. I have been under an extreme amount of stress for the past 4 months and 2 weeks ago some of my symptoms have gotten much worse. I can barely walk and holding a pen is difficult. I have SPMS and did start the high vitamins mentioned for those who are on LDN and think they are having a relapse. I am getting a little scared. In February, my husband wrote a letter to me telling me he couldn't deal with the MS and wanted to be with someone who was physically fit. He's still with me and working on his feelings, but it's always in my mind and now with this, I'm remaining hopeful. My question is ... is there anything else I can do to help my condition? If I go to my doctor, she will want to do steroids and insist I start another treatment. Advice? Input? Dorene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 > > I have been on LDN since Nov 2006 after 7 years on Avonex. I started > with 3 mg then increased to 3.5 about 9 months ago. I have been under > an extreme amount of stress for the past 4 months and 2 weeks ago some > of my symptoms have gotten much worse. I can barely walk and holding a > pen is difficult. I have SPMS and did start the high vitamins > mentioned for those who are on LDN and think they are having a > relapse. I am getting a little scared. In February, my husband wrote > a letter to me telling me he couldn't deal with the MS and wanted to be > with someone who was physically fit. He's still with me and working on > his feelings, but it's always in my mind and now with this, I'm > remaining hopeful. My question is ... is there anything else I can do > to help my condition? If I go to my doctor, she will want to do > steroids and insist I start another treatment. Advice? Input? > > Dorene > ========== Let the bastard go and take him for everything he's worth. He's not good enough for you. He's the one causing your stress and LDN cannot perform properly under undue stress. Get rid of the thing causing the stress. I know, easier said than done but is he more important than you? You have to decide who to coddle, him or yourself. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 Just to play the devil's advocate, but is it possible your husband doesn't like the person MS has caused YOU to become and not that he just wants a physically fit person to be with? I only ask because I know what MS has done to me. I am pre-occupied with the disease which makes me irritable and self-centered. I know sometimes my girlfriend gets tired of me complaining and worrying as she has her own health problems and I fail to consider her feelings and needs. There are always three sides to a story: yours, mine and the truth. Art -- > > I have been on LDN since Nov 2006 after 7 years on Avonex. I started > with 3 mg then increased to 3.5 about 9 months ago. I have been under > an extreme amount of stress for the past 4 months and 2 weeks ago some > of my symptoms have gotten much worse. I can barely walk and holding a > pen is difficult. I have SPMS and did start the high vitamins > mentioned for those who are on LDN and think they are having a > relapse. I am getting a little scared. In February, my husband wrote > a letter to me telling me he couldn't deal with the MS and wanted to be > with someone who was physically fit. He's still with me and working on > his feelings, but it's always in my mind and now with this, I'm > remaining hopeful. My question is ... is there anything else I can do > to help my condition? If I go to my doctor, she will want to do > steroids and insist I start another treatment. Advice? Input? > > Dorene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 Art, I totally agree with you about MS changing who we are. My husband has been great through all this but I sometimes wonder if I'm damaging who he is just like the disease is damaging me. I often forget how hard this is on the people around me. I get so self absorbed that sometimes I think I'd be better off living alone than to put the people I love through this too, but I've voiced that thought to my husband and he told me that I don't have that right. Oh well, all we can do is do the best we can. Doreen, My big question is, "why did your husband write you a letter?" Sounds like part of his problem is communication. By your dates it seems like he's had time to come to grips with your disease. Is he talking out of frustration or is he really tired of it all. The stress of not knowing is the worst thing possible. The truth will set you free. Take Care,TonetteRRMS since 1996, SPMS since 2007 From: Art <rtee54@...>Subject: [low dose naltrexone] Re: Relapse?low dose naltrexone Date: Wednesday, June 4, 2008, 5:09 PM Just to play the devil's advocate, but is it possible your husband doesn't like the person MS has caused YOU to become and not that he just wants a physically fit person to be with? I only ask because I know what MS has done to me. I am pre-occupied with the disease which makes me irritable and self-centered. I know sometimes my girlfriend gets tired of me complaining and worrying as she has her own health problems and I fail to consider her feelings and needs. There are always three sides to a story: yours, mine and the truth.Art-->> I have been on LDN since Nov 2006 after 7 years on Avonex. I started > with 3 mg then increased to 3.5 about 9 months ago. I have been under > an extreme amount of stress for the past 4 months and 2 weeks ago some > of my symptoms have gotten much worse. I can barely walk and holding a > pen is difficult. I have SPMS and did start the high vitamins > mentioned for those who are on LDN and think they are having a > relapse. I am getting a little scared. In February, my husband wrote > a letter to me telling me he couldn't deal with the MS and wanted to be > with someone who was physically fit. He's still with me and working on > his feelings, but it's always in my mind and now with this, I'm > remaining hopeful. My question is ... is there anything else I can do > to help my condition? If I go to my doctor, she will want to do > steroids and insist I start another treatment. Advice? Input?> > Dorene> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 Stress is making oxidative stress in our body, I suggest that you follow Dr. Lawrences protocol to avoid a flare, and at the same time increase your dose to 4.5 mg. Use all the vitamines and antioxidants as he suggests, and use yoga or EFT to calm down and treat your stress. It's not easy to deal with your situation now, but you have to heal your self to avoid future problems. With all the best from Ingrid [low dose naltrexone] Re: Relapse?>> I have been on LDN since Nov 2006 after 7 years on Avonex. I started > with 3 mg then increased to 3.5 about 9 months ago. I have been under > an extreme amount of stress for the past 4 months and 2 weeks ago some > of my symptoms have gotten much worse. I can barely walk and holding a > pen is difficult. I have SPMS and did start the high vitamins > mentioned for those who are on LDN and think they are having a > relapse. I am getting a little scared. In February, my husband wrote > a letter to me telling me he couldn't deal with the MS and wanted to be > with someone who was physically fit. He's still with me and working on > his feelings, but it's always in my mind and now with this, I'm > remaining hopeful. My question is ... is there anything else I can do > to help my condition? If I go to my doctor, she will want to do > steroids and insist I start another treatment. Advice? Input?> > Dorene>==========Let the bastard go and take him for everything he's worth. He's not good enough for you.He's the one causing your stress and LDN cannot perform properly under undue stress. Get rid of the thing causing the stress. I know, easier said than done but is he more important than you? You have to decide who to coddle, him or yourself.------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 > > Art, > I totally agree with you about MS changing who we are. & nbsp; My husband has been great through all this but I sometimes wonder if I'm damaging who he is just like the disease is damaging me. & nbsp; I often forget how hard this is on the people around me. & nbsp; I get so self absorbed that sometimes I think I'd be better off living alone than to put the people I love through this too, but I've voiced that thought to my husband and he told me that I don't have that right. & nbsp; Oh well, all we can do is do the best we can. > Take Care, > Tonette ======= Tonette, Your husband is sticking to the marriage vows he took, For better, For worse. I hope LDN makes life for you 2 for the better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 Hi Dorene, Don’t worry about losing your husband. If he truly was the right man for you, it wouldn’t matter what disease you had. My husband has had MS for over 30 years, we’ve been married 29 years. I would never think of leaving him for that reason. I could probably think of a few other reasons, but not that reason, (just kidding). If the tables were turned and he had MS you would probably be by his side. You deserve someone that would be by your side. My girl friends husband did the same thing to her and they were married over 20 years. She was doing fine by herself after the divorce and in time found the man of her dreams. Someone that will be with her through good times and bad times. That what you deserve! Did you talk to your doctor about increasing the dose of LDN? I’ve heard that you can take as much as 5 mg. You might need a higher dose to get back under control or maybe you will have to stay on a higher dose for it to work for you. Donna ************************************************************* I have been on LDN since Nov 2006 after 7 years on Avonex. I started with 3 mg then increased to 3.5 about 9 months ago. I have been under an extreme amount of stress for the past 4 months and 2 weeks ago some of my symptoms have gotten much worse. I can barely walk and holding a pen is difficult. I have SPMS and did start the high vitamins mentioned for those who are on LDN and think they are having a relapse. I am getting a little scared. In February, my husband wrote a letter to me telling me he couldn't deal with the MS and wanted to be with someone who was physically fit. He's still with me and working on his feelings, but it's always in my mind and now with this, I'm remaining hopeful. My question is ... is there anything else I can do to help my condition? If I go to my doctor, she will want to do steroids and insist I start another treatment. Advice? Input? Dorene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2008 Report Share Posted June 5, 2008 When I was using Avonex, Copaxone, Novantrone, IV Solumedrol and oral Prednisone, and other worthless treatments my personality became that of an ill, moody monster. Thank you government controlled FDA and big pharmaceutical companies for your 'wonderful MS medications'! I really do appreciate risking congestive heart failure, leukemia, suicidal thoughts AND an increase in MS symptoms AND disease progression. I am so happy I was able to fill your bank accounts with my hard earned money. And a special thank you to the wealthy,influential folks who could really help us funding LDN research, but don't. Bill Gates, Warren Buffett, Dell etal... (expletives deleted). Had I started LDN sooner I wouldn't be dealing with the physcical problems I now have. I have NO doubt about this statement. -Art Diagnosed with MS April 1988 Using LDN since March 2005 My MS/LDN story: http://tinyurl.com/5tcp6r -- > > Art, > I became the same way - irritable, self-centered and always > preoccupied with 'something' MSish. I became a real bitch for a while > - sorry to be so expressive but it's true. LDN has helped me to > 'lighten' up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2008 Report Share Posted June 9, 2008 Hi Dorene:I am no stranger to the fact that relationships undergo a lot of challenges when one partner is faced with a serious health issue. My partner did not cope well, and he did leave me for another woman. Apparently, he perfers the two-breasted variety.But even though my marriage didn't make it, I don't really agree that you should automatically assume that your relationship is over, but that it needs to be "renegotiated." Couples counselling could help quite a bit. Obviously he is an honest man, as he stated right up front what he is coping with and what he wishes in his life. He wants a healthy partner. Don't we all? But life is not always clean and clear and without challenges. Those challenges, including diagnosis, are very revealling. They reveal our own character, our flaws, our strengths. Really hard, soul deep truths that we are at times even unaware we even possessed these character traits.Most people are unprepared for this in a marriage. His life has been altered, so has yours. I bet you wish you were healthy too, and I can bet you are doing everything you can in order to increase your quality of life. So is he. If dealt with honestly, this could be a truly magnificent time for both of you. I have known couples who really work through these challenges and come out knowing just how much they love each other.In my case, I found out the truth of my husband's commitment to me. Unlike your husband, who gave you fair warning of pending emotional disaster, mine could not find the character we both needed within our marriage. If you really love him, work it out. Face your truths head on. I wish you all the very best for both of you.-Anne. low dose naltrexoneFrom: ddunbar34hotmail (DOT) comDate: Wed, 4 Jun 2008 03:18:53 +0000Subject: [low dose naltrexone] Relapse? I have been on LDN since Nov 2006 after 7 years on Avonex. I started with 3 mg then increased to 3.5 about 9 months ago. I have been under an extreme amount of stress for the past 4 months and 2 weeks ago some of my symptoms have gotten much worse. I can barely walk and holding a pen is difficult. I have SPMS and did start the high vitamins mentioned for those who are on LDN and think they are having a relapse. I am getting a little scared. In February, my husband wrote a letter to me telling me he couldn't deal with the MS and wanted to be with someone who was physically fit. He's still with me and working on his feelings, but it's always in my mind and now with this, I'm remaining hopeful. My question is ... is there anything else I can do to help my condition? If I go to my doctor, she will want to do steroids and insist I start another treatment. Advice? Input?Dorene Postez plus de 500 photos par mois et partagez-les avec votre famille et vos amis! Rendez-vous dès maintenant gratuitement sur Windows Live Space Cliquez ici! Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2009 Report Share Posted September 15, 2009 I think you meant to send this to the list instead of me! I am forwarding it. _____ From: Andy Detwiler [mailto:andy@...] Sent: Tuesday, September 15, 2009 1:59 PM msadams@... Subject: RE: [ ] relapse? Ellen, Have you checked mold? Your symptoms might be indicative of that. Andy Detwiler Co-Founder, CEO <http://www.virtuaresearch.com/> Virtua Research 2 Oliver St. Suite 1003 Boston, MA 02109 877 402 0506 cid:image001.gif@... The Modeling Company Virtua Research archives and reviews outgoing and incoming e-mail and such e-mail may be produced at the request of regulators. Sender accepts no liability for any errors or omissions arising as a result of transmission. Use by other than the intended recipient(s) is prohibited . This is neither an offer nor a solicitation of an offer to buy or sell securities. Opinions or estimates constitute our best judgment at this time and are subject to change without notice. Information upon which this material is based was obtained from sources believed to be reliable but has not been verified. Additional information is available upon request. Although Virtua Research attempts to sweep e-mail and attachments for viruses, it does not guarantee that either are virus-free and accepts no liability for any From: [mailto: ] On Behalf Of Sent: Tuesday, September 15, 2009 11:50 AM Subject: RE: [ ] relapse? Careful with extreme thirst. It can be an indicator of Diabetes! You should be looked at by a doctor! > [ ] relapse? > > Hi all, > I had Lyme in 06 and used Buhner's protocol. I have been > symptom free for 2 years. > 3 weeks ago i had the flu, for one week, then I got a sinus > infection, then a bronchial cough, now this third week, I am > experiencing exhaustion such as I never have except for when > I had Lyme. > > So I'm thinking - maybe a relapse. > > Another thing I have is extrme thirst, a throat so dry that > it wakes me up at night. Has anyone had this associated with Lyme? > I haven't come across this symptom. > > Appreciate any feedback. > > Thanks, > ellen > > > > ------------------------------------ > > Buy Healing Lyme: Natural Healing And Prevention of Lyme > Borreliosis And Its Coinfections by Buhner at one of > these locations: > http://tinyurl.com/3bgm5d > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2009 Report Share Posted September 15, 2009 If it's a virus, at least you could take LOMATIUM , an anti-viral herb which completely cured and eradicated my herpes simplex lip sores, and which also saved the Washoe Indian tribe from the 1918 pandemic flu. ----purpleffoxglove@... Quote Link to comment Share on other sites More sharing options...
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