Re: LDN Update 2 weeks

[Guest guest]

Hello,

Newbie mom reporting in about my 19-yr-old daughter, diagnosed with RR

MS 3 1/2 yrs ago.

She had been having problems with her right arm for the past 4 months

and showed several new lesions on MRIs, which led her neurologist to

start steroid pulses. This made her much worse and led us to

abandoning the doctor, the steroids and Copaxone.

She has been on LDN for 2 weeks. Prescribed by phone consult with Dr

Sullivan; he suggested one month at 1.5, one month at 3.0, and then

try 4.5. We got 150 1.5 capsules from Skips for $50.

The very first day on LDN (1.5) the pain in her arm went away. The arm

is still weak, but with the pain gone, daughter is starting to use it

again. No probs with sleep. On two occasions she has complained about

stiffness in one leg, but doesn't seem to be too big a deal.

I had intended that darling daughter continue her Copaxone, at least

every other day, but she has had it with injections. Supplements: Dr

Gilhooly's AM/PM Baseline, probiotics, fish oil. Other meds: Yaz (bc)

and Singulair (asthma). Maybe later the LDN will allow her to drop the

asthma med.

My summer plans include trying to encourage DD to examine her diet.

Wish us luck.

[Guest guest]

Great news !

Since your daughter got an MRI before starting LDN, would you consider a follow up one later and sharing your results. I will send you a post on the MRI collection request.

Thanks

Aletha

[low dose naltrexone] Re: LDN Update 2 weeks

Hello,Newbie mom reporting in about my 19-yr-old daughter, diagnosed with RRMS 3 1/2 yrs ago.She had been having problems with her right arm for the past 4 monthsand showed several new lesions on MRIs, which led her neurologist tostart steroid pulses. This made her much worse and led us toabandoning the doctor, the steroids and Copaxone. She has been on LDN for 2 weeks. Prescribed by phone consult with DrSullivan; he suggested one month at 1.5, one month at 3.0, and thentry 4.5. We got 150 1.5 capsules from Skips for $50.The very first day on LDN (1.5) the pain in her arm went away. The armis still weak, but with the pain gone, daughter is starting to use itagain. No probs with sleep. On two occasions she has complained aboutstiffness in one leg, but doesn't seem to be too big a deal.I had intended that darling daughter continue her Copaxone, at leastevery other day, but she has had it with injections. Supplements: DrGilhooly's AM/PM Baseline, probiotics, fish oil. Other meds: Yaz (bc)and Singulair (asthma). Maybe later the LDN will allow her to drop theasthma med.My summer plans include trying to encourage DD to examine her diet.Wish us luck.