Re: Re: obstructions/Ingrid or anyone

[Guest guest]

SAUNDRA - this is what i've been sending to some, personally!! what they are speaking of is what you're saying you had!! swollen, inflamed, possibly strictures, during flares!! these are not necessarily OBSTRUCTIONS, that require hospitalization and possibly surgery???!!! IMHO they are two different things!!

everytime that swelling takes place doesn't mean we're OBSTRUCTED!!

marshiris@...Gas prices getting you down? Search AOL Autos for fuel-efficient used cars.

[Guest guest]

SAUNDRA - that's exactly what i spoke about yesterday!! what we continually call OBSTRUCTION doesn't necessarily mean we have one!! most times, our intestine is STRICTURED with inflammation, ulcers, sores, etc. and........as i stated - a real OBSTRUCTION would require immediate surgery, i think!! if the problems corrects itself, as yours did, saundra, it was only a strictured problem, not an OBSTRUCTION!! i already have a stricture in the ileum; and when i eat something i shouldn't, that's when it becomes TIGHT, and i suffer the same pain i have when in a flare-up!! only thing - it will eventually dissipate; usually after a few bowel movements, when the bulky feces has finally MOVED pass that stricture!! sometimes, it takes hours, like saundra's & sometimes it happens sooner - depends on what i ate & how much of it has to MOVE!! I always know when it is a true flare; because the pain keeps reverberating, lets up, but keeps coming back stronger (more & more painful), each time it comes back!!

marshiris@...

Gas prices getting you down? Search AOL Autos for fuel-efficient used cars.

[Guest guest]

So what is it associated with, do you know? I never got any diagnosis..I just lived with it. I would go to the hospital several times a year, they would keep me until the swelling in the intestines went down (always seen it on an x-ray) and then send me home. NEVER Told me what it was or could be!! And like I said, I had chronic diahrrea for years and years. I just know there is a reason, and it sure would be nice to know what it might be.Thanks again,Saundra Renz

Earth, protect her for she is our life!!!--_._,___

[Guest guest]

Saundra,

how did they treat you in the hospital? Did you take LDN while in

the hospital? Your symptoms sure sound like CD or UC.

At 05:56 AM 6/29/2008 -0700, you wrote:

So what is it associated with, do

you know? I never got any diagnosis..I just lived with it. I would go to

the hospital several times a year, they would keep me until the swelling

in the intestines went down (always seen it on an x-ray) and then send me

home. NEVER Told me what it was or could be!! And like I said, I had

chronic diahrrea for years and years. I just know there is a reason, and

it sure would be nice to know what it might be.

Thanks again,

Saundra Renz

Earth, protect her for she is our life!!!

--

_._,___

[Guest guest]

This was before I ever heard of LDN, so I wasn't taking it. They just kept me for observation...except the one time my intestines were swollen shut. That time I was on a morphine pump, and they said if it didn't go away on its own(which they said usually happens) I would have to have surgery. IT took a good 18 hours before I didn't need the morphine anymore. But they still never told me what it could be. I know I had a lot of colonoscopies, but nothing was ever found.Saundra Renz

Earth, protect her for she is our life!!!

So what is it associated with, do

you know? I never got any diagnosis..I just lived with it. I would go to

the hospital several times a year, they would keep me until the swelling

in the intestines went down (always seen it on an x-ray) and then send me

home. NEVER Told me what it was or could be!! And like I said, I had

chronic diahrrea for years and years. I just know there is a reason, and

it sure would be nice to know what it might be.

Thanks again,

Saundra Renz

Earth, protect her for she is our life!!!

--

_._,___

[Guest guest]

CASTANARO - thanks for that in-depth exlanation of what strictures & obstrustons are!! very informative!!

and, like you said, what we eat is ultra-important!! my stricture "acts up" when i eat fibrous foods. i am not to eat fiber at all, when in a flare-up; it wouldn't give me much chance of healing in that area. fiber would "scrub" the sore-spot too much!! after the flare, i have to be extremely careful & add only small portions, to my diet plan.

marshiris@...

Gas prices getting you down? Search AOL Autos for fuel-efficient used cars.

[Guest guest]

Let me add my .02 cents to this. As stated below here, an obstruction can definitely be a surgical issue, but most times not. Many people have strictures from a variety of scources - Crohns, IBS, previous surgery (may be from adhesions). Generally, it is hard to predict when one will obstruct in these cases, but eventually, the peristaltic action moves things along, but it is usually a rather unpleasant couple days.... If the obstruction is due to a tumor, this is a more serious issue, and usually surgical intervention is needed. Some other things may mimic obstructions. After some types of surgery, patients experience an "ileus", where the nerves are essentially in shock and peristalsis pretty much stops. No peristalsis, nothing moves. You can imagine. This ususlaly clears up quickly also. You can also obstruct in your esophagus. This is particularly nasty and requires a scope to try to dig

out or push through the pork chop or whatever.....(usually it is a hunk of meat of some sort....chew your food well) So bottom line is an obstruction can be due to strictures or other issues. If the strictures are due to adhesions from some other surgery, they can go in laparoscopically and snip the bands of adhesion many times very successfully. If due to Crohns, and it is becoming routine and problematic, or not resolving on its own, they would probably do a bowel resection, so I would follow the eating advice from those on this list to try to avoid that.marshiris@... wrote: SAUNDRA - that's exactly what i spoke about yesterday!! what we continually call OBSTRUCTION doesn't necessarily mean we have one!! most times, our intestine is STRICTURED with inflammation, ulcers, sores, etc. and........as i stated - a real OBSTRUCTION would require immediate surgery, i think!! if the problems corrects itself, as yours did, saundra, it was only a strictured problem, not an OBSTRUCTION!! i already have a stricture in the ileum; and when i eat something i shouldn't, that's when it becomes TIGHT, and i suffer the same pain i have when in a flare-up!! only thing - it will eventually dissipate; usually after a few bowel movements, when the bulky feces has finally MOVED pass that stricture!! sometimes, it takes hours, like saundra's &

sometimes it happens sooner - depends on what i ate & how much of it has to MOVE!! I always know when it is a true flare; because the pain keeps reverberating, lets up, but keeps coming back stronger (more & more painful), each time it comes back!! marshirisaol Gas prices getting you down? Search AOL Autos for fuel-efficient used cars.

[Guest guest]

OK, TY! I know Orange juice and alcohol used to be triggers for me. But, since LDN, nothing bothers me too much.Saundra Renz

Earth, protect her for she is our life!!!From: marshiris@... <marshiris@...>Subject: Re: [low dose naltrexone] Re: obstructions/Ingrid or anyonelow dose naltrexone Date: Sunday, June 29, 2008, 9:21 AM

SAUNDRA - that's exactly what i spoke about yesterday!! what we continually call OBSTRUCTION doesn't necessarily mean we have one!! most times, our intestine is STRICTURED with inflammation, ulcers, sores, etc. and........as i stated - a real OBSTRUCTION would require immediate surgery, i think!! if the problems corrects itself, as yours did, saundra, it was only a strictured problem, not an OBSTRUCTION! ! i already have a stricture in the ileum; and when i eat something i shouldn't, that's when it becomes TIGHT, and i suffer the same pain i have when in a flare-up!! only thing - it will eventually dissipate; usually after a few bowel movements, when the bulky feces has finally MOVED pass that stricture!! sometimes, it takes hours, like saundra's & sometimes it happens sooner - depends on what i ate & how much of it has to MOVE!! I always know when it is a true flare; because the pain keeps reverberating, lets up, but keeps coming back stronger (more & more painful), each time it comes back!!

marshirisaol (DOT) com

Gas prices getting you down? Search AOL Autos for fuel-efficient used cars.

[Guest guest]

Hi,

Saundra, I just wonder: do you still have this diarrhea, and - have you still no clue why?

I agree with , go and check if it could be celiac disease.

I also suggest that you have to get examined due to small intestine disease of one or

another kind....

I have inflammation in my small intestines - Crohns - it leads to diarrhea, some needs to

visit the bathroom just 4 -5 times a day, and some needs to stay there all day when they

have this disease. Crohns could be either in the small bowel or in the big bowel (or in both),

even in duodenum, in the stomach and even up all the way to the mouth.

Crohns in the intestines needs another examination (x ray w. barium), Crohns in the bowel

needs colonoscopy.

My GP ment colonoscopy and gastroscopy was enough. Since they didn't see anything there,

he ment I had no trouble.

I had to search and investigate myself on the net (thank G. for the net)....and found there

were still some options left- amongst them - x-ray with barium to look at the small intestines.

So, diarrhea has a cause, don't give up!

Hope LDN has calmed down yours - as it did with mine within some few weeks.

Ingrid

[low dose naltrexone] Re: obstructions/Ingrid or anyoneHave you ever been tested for celiac disease? That won't show up on a colonscopy as it involves the small intestine. I had problems for years until I finally found a doctor that looked further than telling me it was nerves causing all my problems. All it takes is a blood antibody test, although you must have been eating gluten (wheat, rye or barley) in order for the testing to be accurate. Worth a shot anyway. V> > > So what is it associated with, do> you know? I never got any diagnosis..I just lived with it. I would go to> the hospital several times a year, they would keep me until the swelling> in the intestines went down (always seen it on an x-ray) and then send me> home. NEVER Told me what it

was or could be!! And like I said, I had> chronic diahrrea for years and years. I just know there is a reason, and> it sure would be nice to know what it might be.> > Thanks again,> > > Saundra Renz> > Earth, protect her for she is our life!!!> > > --> > _._,___>------------------------------------

[Guest guest]

Just FYI. There is a relatively new procedure called "Double Balloon Endoscopy". They can pretty much go through the whole alimentary canal and come out the other end.... so in some places you can actually get a good look and biopsy of the small bowel. I will have to check to see if they can make a Dx of celiac disease via this approach. But it is the difinitive diagnostic tool for small bowel issues. Not done everywhere, few GIs can do this. Bcmaribob7 <myrv@...> wrote: Have you ever been tested for celiac disease? That won't show up on a colonscopy as it involves the small intestine. I had problems for years until I finally found a doctor that looked further than telling me it was nerves causing all my problems. All it takes is a blood antibody test, although you must have been eating gluten (wheat, rye or barley) in order for the testing to be accurate. Worth a shot anyway. V> > > So what is it associated with, do> you know? I never got any diagnosis..I just lived with it. I would go to> the hospital several times a year, they would keep me until the swelling> in the intestines went down (always seen it on an x-ray) and then send me> home. NEVER Told me what it was or could be!! And like I said, I had> chronic diahrrea for years and years. I just know there is a reason, and> it sure would be nice to know what it might be.> > Thanks again,> > > Saundra Renz> > Earth, protect her for she is our life!!!> > > --> > _._,___>

[Guest guest]

Thanks ,No, I have never been tested for Celiac's. I would love to be, but with no health insurance, and since starting LDN, the diahrrea has dissapeared, it seems pointless at this time.Then again, as I write this, I think about how the LDN doesn't seem to work as well as it used to, so maybe I can get my doctor to test. Or, I suppose I could follow a Celiac's diet, and see if that helps.Thanks again for the possibility.Saundra Renz

Earth, protect her for she is our life!!!From: maribob7 <myrv@...>Subject: [low dose naltrexone] Re: obstructions/Ingrid or anyonelow dose naltrexone Date: Sunday, June 29, 2008, 2:21 PM

Have you ever been tested for celiac disease? That won't show up on a

colonscopy as it involves the small intestine. I had problems for

years until I finally found a doctor that looked further than telling

me it was nerves causing all my problems. All it takes is a blood

antibody test, although you must have been eating gluten (wheat, rye

or barley) in order for the testing to be accurate. Worth a shot

anyway. V

>

>

> So what is it associated with, do

> you know? I never got any diagnosis..I just lived with it. I would

go to

> the hospital several times a year, they would keep me until the

swelling

> in the intestines went down (always seen it on an x-ray) and then

send me

> home. NEVER Told me what it was or could be!! And like I said, I had

> chronic diahrrea for years and years. I just know there is a

reason, and

> it sure would be nice to know what it might be.

>

> Thanks again,

>

>

> Saundra Renz

>

> Earth, protect her for she is our life!!!

>

>

> --

>

> _._,___

>

[Guest guest]

Ingrid,I had the barium ex-rays, the scopes, many times. They never found anything.I no longer have the diahrrea since starting LDN...thank G_D...but remember, that was one of the things that got worse for me before it got better. That was when I knew it was SOMETHING..something that LDN was taking care of. I just wish I KNEW what so I could manage things accordingly, you know? And yes, some days I would have to go like 6-10 times a day. It actually affected how and when I went out of the house. Even for those 3 days I stopped LDN, the diahrrea returned, full force. So obviously there is something going on.Saundra Renz

Earth, protect her for she is our life!!!From: Gunn Dybfest <gunn.ingrid@...>Subject: Re: [low dose naltrexone] Re: obstructions/Ingrid or anyonelow dose naltrexone Date: Sunday, June 29, 2008, 4:37 PM

Hi,

Saundra, I just wonder: do you still have this diarrhea, and - have you still no clue why?

I agree with , go and check if it could be celiac disease.

I also suggest that you have to get examined due to small intestine disease of one or

another kind....

I have inflammation in my small intestines - Crohns - it leads to diarrhea, some needs to

visit the bathroom just 4 -5 times a day, and some needs to stay there all day when they

have this disease. Crohns could be either in the small bowel or in the big bowel (or in both),

even in duodenum, in the stomach and even up all the way to the mouth.

Crohns in the intestines needs another examination (x ray w. barium), Crohns in the bowel

needs colonoscopy.

My GP ment colonoscopy and gastroscopy was enough. Since they didn't see anything there,

he ment I had no trouble.

I had to search and investigate myself on the net (thank G. for the net)....and found there

were still some options left- amongst them - x-ray with barium to look at the small intestines.

So, diarrhea has a cause, don't give up!

Hope LDN has calmed down yours - as it did with mine within some few weeks.

Ingrid

[low dose naltrexone] Re: obstructions/ Ingrid or anyoneHave you ever been tested for celiac disease? That won't show up on a colonscopy as it involves the small intestine. I had problems for years until I finally found a doctor that looked further than telling me it was nerves causing all my problems. All it takes is a blood antibody test, although you must have been eating gluten (wheat, rye or barley) in order for the testing to be accurate. Worth a shot anyway. V> > > So what is it associated with, do> you know? I never got any diagnosis..I just lived with it. I would go to> the hospital several times a year, they would keep me until the swelling> in the intestines went down (always seen it on an x-ray) and then send me> home. NEVER Told me what it

was or could be!! And like I said, I had> chronic diahrrea for years and years. I just know there is a reason, and> it sure would be nice to know what it might be.> > Thanks again,> > > Saundra Renz> > Earth, protect her for she is our life!!!> > > --> > _._,___>------------ --------- --------- ------

[Guest guest]

Saundra,

Ileus - severe pain or cramps could be due to hernia, or it could be due to intestinal problems or diseases like IBD of any kind. (IBD=inflammated bowel disease). Or IBS = Irritable bowel disease. Or it could be some other mechanical problem in the intestines.

Or a lot of other diseases that I have no clue about ;-)

Diarrhea could be due to a lot of different diseases. If you have a change in bowel habits, always remember to visit your GP!

The result could be all from stress related to serious diseases. Never accept anything else than a full examination with all kind of scopes, scans and tests there is....

Nice to read that you have been so much better now!

:-) Ingrid

[low dose naltrexone] Re: obstructions/Ingrid or anyone-I see everyone speak of obstructions. If you remember, I had diahrreafor years before starting LDN. I also went to the hospital severaltimes with an Illius (sp?) where my intestines would swell, almostshut. Once they even kept me overnight. IT is horribly painfull.Still, no diagnosis from all of that.Like I said, LDN has completely rid me of diahrrea, but I waswondering if anyone has any thoughts on this? Maybe I did have mildIC, or something along those lines?Thanks,Saundra------------------------------------

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