LDN and Lyme Disease

[Guest guest]

I just wanted to post a bulletin regarding Lyme Disease and LDN. I

have been taking 4.5mg of LDN for a little over two months now. I am

also on IV and oral abx. I have been on the IV abx for a year and the

oral abx for two years in August. I have really noticed an

improvement in my different symptoms since starting the LDN. At first

I had trouble sleeping, but that passed in about a week. I really

think the boost in my immune system has been a big plus. I plan to

continue taking the LDN for as long as I still have symptoms and I can

get my Lyme Literate Medical Doctor to keep refilling my RX.

Regards,

[Guest guest]

Hi o,

There are Lyme specialist docs who prescribe LDN for people with chronic lyme.

Ariella

>

> Good afternoon,

>

> I am new on the subject LDN and am trying to figure out if it's beneficial for

chronic Lyme disease as well. I am not sure if I have developed autoimmunity,

but would like to find out if LDN is useful in general fighting Lyme and the

other co-infections which I have. I heard that with Lyme one should better not

introduce LDN… So I am not sure what to do.

>

> Thanks!

> o

>

[Guest guest]

Yep...you and I are in a similar boat. I don't know how well LDN helps.....but

it sure doesn't hurt and helped me confirm that Lyme is the crux of my issues.

I'm on my eighth month of abx treatment + LDN at 4.5/mg. I'm worse than I was 2

years ago....but I think its because of collateral damage done in my CNS

fighting this infection passively for 30 years and actively for one year. I'm

still ambulatory, but have difficulties most days.

I know that neural tissue is the slowest healing tissue in the body and this

thing has scarred me right in my upper motor neuron of my spinal chord.....so I

have a long row to hoe before I'm recovered but my LLMD is optimistic and says

my prognosis is very good.

It is my opinion that Lyme IS the cause for my MS. If you look at the ecology

of this bacteria (borellia), how it morphs, how it hides, and how it triggers

autoimmune responses in various types of tissue.....its very clear that it IS a,

if not THE causative agent in many, many disorders.....MS included.

Lyme isn't just carried by ticks as the CDC and IDSA would have you believe. I

have read independent statistical studies that confirm that it IS carried by

mosquitoes. In fact, it is carried by any insect vector that passes blood

between hosts. But you can bet you'll never hear about it in the main stream

media. As long as its seen as " tick borne " , its not very threatening to people.

The political nature of this disease and the mainstream medical establishments

reaction to it just pisses me off.

Just watch the documentary, " Under Our Skin " and you'll see what I mean.

Sorry for the rant.

KenC.

>

> Would agree and add for me, LDN helped me confirm I had LYME, and been

> on LDN since they told me I had RRMS, 8 months or so on LDN now, 3

> mg/night, along with my first 4 months of varying monthly antibiotics

> now. I got worse when I got off LDN.

>

>

>

> My original post attached......

>

>

>

> ________________________________

>

> From: low dose naltrexone

> [mailto:low dose naltrexone ] On Behalf Of , Bradley

> J.

> Sent: Friday, February 19, 2010 8:34 AM

> zahavi; low dose naltrexone

> Subject: RE: [low dose naltrexone] advice needed

>

> I have been reading here for years now, trying to figure where I fit in.

>

> Thank you ALL for your input, without it I wouldn't have tried LDN, and

> I don't think I would be doing as well as I AM.

>

> I started with an initial MS diagnosis when I began having double vision

> problems for 3 months the summer of 2007, it eventually corrected on its

> own.

>

> The initial ELISA LYME tests, on spinal fluid, the summers of 2007 and

> 2008 were negative, my first local Western Blot the fall of 2009, was

> " negative " with only one band positive, but thanks to those of you that

> have talked about IGENEX Western Blot and LYME LITERATE doctors, I found

> both. My IGENEX Western Blot winter of 2009 confirmed I have had

> untreated Lyme the last 3.5 years, OR MORE, not MS. I have not tried

> any MS CRAB Drugs, although copaxone was suggested. I have had 7 Brain

> MRI's so far showing plaques that look like MS. Never found the tick.

> TOLD IT COULD EVEN BE FROM A MOSQUITO!

>

> The opinion of this " LYMIE " is LDN can be critical in not only helping

> with LYME, but also in determining you have it!

>

> LDN is an important reason I figured out I had LYME and pursued more and

> better LYME tests! Four weeks in on LDN I had major " flare up " and was

> in bed unable to walk straight for a week. Later I found this can

> happen with those with undiagnosed Lyme, but I can't find this web post

> now? I stayed on the LDN (not sure this was best thing to do now, but I

> did it) and LDN had helped with energy and brain fog, almost

> immediately, and I believe throughout. The second doctor I found to

> prescribe LDN believes in 3 mg /night, so I started there and am back on

> at 3 mg /night this week. STILL HELPING!

>

> I tried to get off of LDN in last few weeks, as I started antibiotics,

> and I got worse, slurring when speaking, problems with walking (not sure

> if it is the antibiotic after 2.5 months, or getting off the LDN, or

> both) , after 3 days back on LDN, I am feeling better, not slurring, and

> walking better. The antibiotics/getting off LDN last 2 weeks, has been

> nothing like what I believe was my initial HERX 4 weeks in on LDN, when

> I assume my immune system was turned back on and started going after the

> LYME.

>

> I have been to a LYME literate Doctor in December 2009, and started on

> 4 months of ANTIBIOTICS, 2.5 months in now) before I check back in May

> 2010. Was told I could get worse before better, but thinking now LDN is

> keeping me better than worse.

>

> I am 43 year old male with no other health issue before this!

>

> I am willing to take anyone else's input who has been through this

> especially if I might have something wrong, or am missing something

> here. I am still early in the process, ~6 months on LDN, and believe

> this has been going on just 3.5 years, a relatively short time to some,

> but it seems like forever to me. I try to read here regularly, but not

> to say I could have missed a few posts!

>

> I still wonder if I am going to be told I have something else before

> this is over, in addition to the LYME, co-infections of some sort. It

> took 4 LYME tests before I was told I have LYME! Someone posted they

> had LYME and MS? MAYBE THEY ARE ONE IN THE SAME?!

>

> Again, thank you ALL for posting on LDN here!

>

>

[Guest guest]

,

What tests did you retake to confirm your immune system was

normalized?

From:

low dose naltrexone [mailto:low dose naltrexone ] On

Behalf Of Torrey

Sent: Tuesday, April 20, 2010 9:53 AM

low dose naltrexone

Subject: [low dose naltrexone] Re:LDN and Lyme disease

LDN does not fight pathogen infections like Lyme and it's

co-infections, but it helps in the battle. LDN is very good in helping

with the pain and helps normalize a dysfunctional immune system, which is a

common problem. That being said, a normal immune system is no match for these

stealth pathogens...LDN is a good adjunct therapy. LDN can give Lyme

patients better brain clarity, more energy, and less aches and pains.

I have been a patient advocate for Lyme for 9 years now, and

I recommend patients talk to their doctors about taking LDN. I don't know why

someone would say not take LDN...if your immune is very low (hypo

humoral) it normalizes it...if your immune is too high (hyper

humoral-autoimmune state) it normalizes it.

I have been on the drug since the end of August 2009. During

my last doctor visit in Feb, my immune tests showed the drug has normalized my

immune.

I hope this helps.