All focus lost -PANDAS- something else?

[Guest guest]

My son made a slow and steady decline since an illness in August. He

was misdiagnosed and ended up going untreated for strep. His PANDAS

profile was horribly bad. He has had one Bicillin injection so far

with no changes.

What little focus he had is gone. He's spacier than usual. He has none

of his normal symptoms of yeast so I don't think that's an issue.

Can this be from the PANDAS? This morning was so bad that we were both

in tears by 9am and we both cried the whole ride to school.

He was doing incredible six months ago and now things have been so

bad, and getting worse over the last few months that my hope of even

getting him back to where he was six months ago seems hopeless.

Kerrie

Sent from my iPhone

On Jan 4, 2008, at 9:45 AM, " noaholiviaian " <phaselow@...> wrote:

> Kristi,

>

> I tend to agree with the 'don't bother' suggestion. With someone who

> takes such a negative stance on alternative medicine, simply offering

> websites isn't going to change his/her mind and will only aggravate

> you and alienate your father/daughter relationship.

>

> That has just been my experience. Honestly, I've come to embrace

> my 'black sheep' status. I just add names to my 'I told you so' list

> for use in the (near) future.

>

> I'm sorry he isn't more supportive. Not all people can think for

> themselves when it comes to medicine.

>

> As far as gaining their trust for future financial support. I would

> send them to ARI's website. Dr. Rimland was such a good man.

> Regardless of how you feel about DAN!, the website is well organized

> and the docs DO come with solid credentials.

>

> http://www.autism.com/

>

> Generation Rescue is good, too. It also contains a link to the ARI

> recovery video.

>

> http://www.generationrescue.org/index.html

>

> As far as being a money racket. The doc I saw for the first time

> yesterday spent 3.5 hours with me and my son and only charged me

> $400. Labs included. Dr. Usman charges more than that for an hour.

> Since insurance pays for little to none of our treatment (they'll pay

> for the physical blood draw but not the tests to the tune of $20),

> you as a patient get to SEE the charges and not just your insurance

> claim that comes through saying you owe the $30 deductible or

> whatever. Medicine on ALL levels is expensive and the overhead for a

> clinic is insane. I'd love to tell you what my anesthesiologist

> husband charges per unit (15 minutes, I think), but I'm embarassed.

> He doesn't always collect it, but they charge it!

>

> Does he like McCarthy? She has a recovered child and a book to

> boot.

>

> Pam

>

>

>

>

>>

>> Yes. Many.

>>

>> Ask your father why alternative MD " s aren't surgeons if they want

> to loot? They can make

>> thousands of dollars an hour cutting unnecessarily, maybe a couple

> of hundred if they

>> charge very high fees doing unnecessary consultations. And the

> patients in the

>> consultations are conscious and can ask awkward questions if it is

> just looting.

>>

>> Personally I'd suggest just ignoring him and if he wants the

> pleasure of your and your

>> child's company he can be nice about it all. However if you want

> to do something I'd

>> suggest getting the ARI DVD showing a bunch of recovered kids.

>>

>> Andy

>>

>>> My father tends to think all alternative medicine is nothing but

> a money

>>> racket. His big question for me is...do you know of any reliable

> recovery

>>> stories? I would like to give him a website to look at. I have

> the best chance of

>>> getting him to read the materials if I just give him one

> website. Therefore,

>>> if you were me...what one website would you recommend with

> recovery stories

>>> being very important. I feel I need to get my parents on board

> as I may need

>>> their financial help with all of this. Thank you so much.

>>>

>>> Kristi in Alabama

>>>

>>>

>>> **************

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