Re: Inappropriate chelation

[Guest guest]

,

Thanks for posting this and thanks for being on this list. Those

are precisely the reports that keep me plugging away with Andy's

protocol (and reading the frequent-dose-chelation list). I can't

imagine the sadness/guilt I would feel if I inflicted this kind of

pain on my son. And trying to clean up that mess? No thanks.

Anne

>

>

> Why is it that Andy refers to his chelation protocol as appropriate

> and other chelation methods as inappropriate? Well, first of all

it

> is because his protocol was designed to take metals out of the

human

> body in the safest way possible, considering the make up of the

body

> and the behavior of chelators in the body.

>

> And also because adults report over, and over, and over, and over

> again about how awful the inappropriate chelation methods were for

> them and how they get better quickly and easily on Andy's protocol.

>

> In autism mercury you have a shortage of those adult reports.

Here is

> one that came in today. Usually the inappropriate methods are

> combined - in this case DMPS and EDTA by IV, plus high dose oral

DMSA:

>

> frequent-dose-

chelation/message/21691

>

> and usually the real report is one line in a long post, that

someone

> could miss if they weren't following closely:

>

> " i chelated, as recommended by my doctor, with the iV edta and

dmps a

> couple times... not much of a problem just some fatigue..

>

> then, on the third chelation, out of nowhere.... WHAMO!, i had the

> worst side effects. i thought i was going to die. literally. i

> couldn't stand up or think. very nauseated. soo dizzy. i even

> programed 911 into my cell phone because i worried i wouldn't be

able

> to dial fast enough if i was going down.

>

> this reaction was when i added in the recommended oral dmsa (100mg)

> the day after chelation. "

>

> I pass on these messages when I have the chance because I am

concerned

> about parents who are getting mixed messages from doctors and

experts

> and because of those poor young kids who can't verbalize what is

> happening to them.

>

[Guest guest]

[ ] Inappropriate chelation

Why is it that Andy refers to his chelation protocol as appropriate

and other chelation methods as inappropriate? Well, first of all it

is because his protocol was designed to take metals out of the human

body in the safest way possible, considering the make up of the body

and the behavior of chelators in the body.

And also because adults report over, and over, and over, and over

again about how awful the inappropriate chelation methods were for

them and how they get better quickly and easily on Andy's protocol.

In autism mercury you have a shortage of those adult reports. Here is

one that came in today. Usually the inappropriate methods are

combined - in this case DMPS and EDTA by IV, plus high dose oral DMSA:

frequent-dose-chelation/message/21691

and usually the real report is one line in a long post, that someone

could miss if they weren't following closely:

" i chelated, as recommended by my doctor, with the iV edta and dmps a

couple times... not much of a problem just some fatigue..

then, on the third chelation, out of nowhere.... WHAMO!, i had the

worst side effects. i thought i was going to die. literally. i

couldn't stand up or think. very nauseated. soo dizzy. i even

programed 911 into my cell phone because i worried i wouldn't be able

to dial fast enough if i was going down.

this reaction was when i added in the recommended oral dmsa (100mg)

the day after chelation. "

I pass on these messages when I have the chance because I am concerned

about parents who are getting mixed messages from doctors and experts

and because of those poor young kids who can't verbalize what is

happening to them.

[Guest guest]

Thanks, for taking the time to illuminate what happens when you use unwise

chelation protocols. Not that there is a shortage of bad reports on other lists,

but the regressions are attributed to various other reasons, not the

inappropriate protocols.

[ ] Inappropriate chelation

Why is it that Andy refers to his chelation protocol as appropriate

and other chelation methods as inappropriate? Well, first of all it

is because his protocol was designed to take metals out of the human

body in the safest way possible, considering the make up of the body

and the behavior of chelators in the body.

And also because adults report over, and over, and over, and over

again about how awful the inappropriate chelation methods were for

them and how they get better quickly and easily on Andy's protocol.

In autism mercury you have a shortage of those adult reports. Here is

one that came in today. Usually the inappropriate methods are

combined - in this case DMPS and EDTA by IV, plus high dose oral DMSA:

frequent-dose-chelation/message/21691

and usually the real report is one line in a long post, that someone

could miss if they weren't following closely:

" i chelated, as recommended by my doctor, with the iV edta and dmps a

couple times... not much of a problem just some fatigue..

then, on the third chelation, out of nowhere.... WHAMO!, i had the

worst side effects. i thought i was going to die. literally. i

couldn't stand up or think. very nauseated. soo dizzy. i even

programed 911 into my cell phone because i worried i wouldn't be able

to dial fast enough if i was going down.

this reaction was when i added in the recommended oral dmsa (100mg)

the day after chelation. "

I pass on these messages when I have the chance because I am concerned

about parents who are getting mixed messages from doctors and experts

and because of those poor young kids who can't verbalize what is

happening to them.

[Guest guest]

I started out extremely skeptical of Andy's claims and protocol. For one

thing, I didn't WANT to believe them - mostly because I didn't want to have

to keep waking up at night. So I was determined to find holes in what he

had to say.

But after about six months of looking hard at everything written about

chelation I could find, I'm a believer. I haven't seen anyone intelligently

refute Andy's reasoning. I haven't even seen anyone try. Mostly I see

" experts " (doctors mostly) ignore what he has to say because it's convenient

to do so, and perhaps because they're too lazy or egotistical to inform

themselves and do it logically. As far as I can tell, Andy's the only

person who's really taken the time to study the chemistry and

pharmacokinetics of chelating agents, and think things through carefully.

Dean

[Guest guest]

Let me just add this - the one thing I do believe Andy was wrong about was

the dose. Experience seems to show that people should start off at far

lower doses than he originally proponed.

Dean

RE: [ ] Inappropriate chelation

I started out extremely skeptical of Andy's claims and protocol. For one

thing, I didn't WANT to believe them - mostly because I didn't want to

have

to keep waking up at night. So I was determined to find holes in what he

had to say.

But after about six months of looking hard at everything written about

chelation I could find, I'm a believer. I haven't seen anyone

intelligently

refute Andy's reasoning. I haven't even seen anyone try. Mostly I see

" experts " (doctors mostly) ignore what he has to say because it's

convenient

to do so, and perhaps because they're too lazy or egotistical to inform

themselves and do it logically. As far as I can tell, Andy's the only

person who's really taken the time to study the chemistry and

pharmacokinetics of chelating agents, and think things through carefully.

Dean

[Guest guest]

Lower than the 1/8-1/2 mg per lb?

>

> Let me just add this - the one thing I do believe Andy was wrong

about was

> the dose. Experience seems to show that people should start off at

far

> lower doses than he originally proponed.

>

> Dean

>

>

>

> RE: [ ] Inappropriate chelation

>

>

> I started out extremely skeptical of Andy's claims and protocol.

For one

> thing, I didn't WANT to believe them - mostly because I didn't

want to

> have

> to keep waking up at night. So I was determined to find holes in

what he

> had to say.

>

> But after about six months of looking hard at everything written

about

> chelation I could find, I'm a believer. I haven't seen anyone

> intelligently

> refute Andy's reasoning. I haven't even seen anyone try. Mostly I

see

> " experts " (doctors mostly) ignore what he has to say because it's

> convenient

> to do so, and perhaps because they're too lazy or egotistical to

inform

> themselves and do it logically. As far as I can tell, Andy's the

only

> person who's really taken the time to study the chemistry and

> pharmacokinetics of chelating agents, and think things through

carefully.

>

> Dean

>

>

[Guest guest]

On the frequent-dose-chelation group, which completely agrees with Andy in

every way (except perhaps dose), they recommend that people start at 12.5 mg

per dose, and less if they have trouble tolerating it. For an average-size

male, that's 1/16 mg per lb or less. My wife could not tolerate any dose

greater than 3 mg when she started, which for her is 1/40 mg per dose. I

would say that 1/8 mg per lb for a starting dose is on the aggressive side.

Dean

RE: [ ] Inappropriate chelation

>

>

> I started out extremely skeptical of Andy's claims and protocol.

For one

> thing, I didn't WANT to believe them - mostly because I didn't

want to

> have

> to keep waking up at night. So I was determined to find holes in

what he

> had to say.

>

> But after about six months of looking hard at everything written

about

> chelation I could find, I'm a believer. I haven't seen anyone

> intelligently

> refute Andy's reasoning. I haven't even seen anyone try. Mostly I

see

> " experts " (doctors mostly) ignore what he has to say because it's

> convenient

> to do so, and perhaps because they're too lazy or egotistical to

inform

> themselves and do it logically. As far as I can tell, Andy's the

only

> person who's really taken the time to study the chemistry and

> pharmacokinetics of chelating agents, and think things through

carefully.

>

> Dean

>

>

[Guest guest]

>

> Let me just add this - the one thing I do believe Andy was wrong

about was

> the dose. Experience seems to show that people should start off at far

> lower doses than he originally proponed.

>

And, unfortunately, lots of people try a dose that is too high for

them and then the side effects scare them off completely. Andy has

emphasized in posts over the years to lower the dose when side effects

are extreme.

> Dean

>

>

>

> RE: [ ] Inappropriate chelation

>

>

> I started out extremely skeptical of Andy's claims and protocol.

For one

> thing, I didn't WANT to believe them - mostly because I didn't want to

> have

> to keep waking up at night. So I was determined to find holes in

what he

> had to say.

>

> But after about six months of looking hard at everything written about

> chelation I could find, I'm a believer. I haven't seen anyone

> intelligently

> refute Andy's reasoning. I haven't even seen anyone try. Mostly I see

> " experts " (doctors mostly) ignore what he has to say because it's

> convenient

> to do so, and perhaps because they're too lazy or egotistical to

inform

> themselves and do it logically. As far as I can tell, Andy's the only

> person who's really taken the time to study the chemistry and

> pharmacokinetics of chelating agents, and think things through

carefully.

>

> Dean

>

>

[Guest guest]

> And, unfortunately, lots of people try a dose that is too high for

> them and then the side effects scare them off completely.

Yes, very sadly this happened to an adult friend of mine with DMSA at 25 mgs.

VERY bad side

effects and no way will she try again.

Nell

[Guest guest]

Yes.

The most likely reason most autistic children will never get better is that

their parents

listen to doctors who tell them 'nothing can be done.' Next is the doctors who

tell them

chelation is dangerous and can't help. Third in line is this situation where

they try

something random and get scared.

Fear leads to bad decisions. Caution and concern and learning from experience

are

necessary, but fear is an impediment.

Andy

>

> > And, unfortunately, lots of people try a dose that is too high for

> > them and then the side effects scare them off completely.

>

> Yes, very sadly this happened to an adult friend of mine with DMSA at 25 mgs.

VERY bad

side

> effects and no way will she try again.

>

> Nell

>