New to the list

[Guest guest]

Lori,

I do not have the same thing you do. I have AIH, but I also did not lose

weight as most people are supposed to. For some the Prednisone helps them

gain back lostr weight, but not me!

Tami (AIH)

[Guest guest]

Hi Jody,

My name is and I am 17 and I have had AIH for about 4 years. If you

have any questions I will try to answere them.

>From: ** <angel2@...>

>Reply- onelist

> onelist

>Subject: [ ] New to the list

>Date: Tue, 29 Jun 1999 11:41:00

>

>From: ** <angel2@...>

>

>Hello everyone. My name is Jody and Im new to this list. I'm hoping I can

>find out information about AIH or any other type of autoimmune liver

>disease.

>I have not yet found a doctor who can diagnose the cluster of symptoms and

>lab results that seem to not be getting better.

>I have had Fibromyalgia and an unknown autoimmune disease for the last 10

>or so years. I will list my symptoms and a breif summary of my lab work in

>hopes that one of you can see a similarity and perhaps help my doctor make

>a diagnosis.

>Fibromyalgia = fatigue, joint and muscle pain, unable to achieve deep

>sleep, weight gain, depression.

>Autoimmune disease = possibly psoriatic arthritis or Sjogren's Disease.

>elevated sedrates as high as 60. ANA was positive for years then turned up

>negative. Just recently it has again turned abnormal. RF neg. Swelling of

>joints.

>The newest thing is my liver. In 1996 I was admitted to the hospital with

>acute pain, poss cholelithiasis or cholecystitis. They weren't sure so they

>did a laporatomy to explore the abdomen. They removed my gallbladder which

>did show moderate cholecystitis. A month later the pain returned. I was

>admitted for ERCP with elevated liver enzymes, primarily ALT, AST, ALK

>PHOS, GGT. They found a stone in the CBD but were unable to retrieve it. I

>got pancreatitis from the ERCP and the doctor managed to obstructed the

>bile duct so my bilirubin shot up and I became Jaundice. They opened me up

>again from belly button to diaphram. The stone was removed. He had to

>rebuild my CBD because the ERCP doc ripped it up trying to get the stone.

>A few months after that the pain was still there only not as acute. I

>monitored my LFTs and they stayed slightly elevated for months. In June of

>98 the pain became acute again. I was admitted. Had ERCP which did not

>produce a stone. My enzymes again were elevated. I had another ERCP and

>they did sphincterotomy and widened the bile duct to 8mm from 2mm which

>seemed to help. The pain was back to the minor ache and the enzymes

>returned to the lower levels..Mostly just the ALT and GGT and ALK PHOS. all

>else were normal.

>I am now preparing for a liver consult at Stanford in August. I am

>researching autoimmune disease's affect on the liver which is how I

>discovered you all.

>My SM ab and Mitochondrial ab are normal. My enzymes are climbing again and

>the pain is back.

>My thoughts are that its Sjogrens affect on the liver but Im really not

>sure. If any of you see a similarity with your own liver problems I would

>greatly appreciate your imput..

>Also, if you know of any lab testing that might be beneficial please put

>that in also. Im phlebotomist and can run pretty much anything I want here

>

>Thanks in advace for taking the time to read this long email and giving

>your suggestions.

>

>Jody

>

>

>---------------------------

[Guest guest]

,

Thanks for responding so quickly.. How did your doctor's finally diagnos

you? What blood work abnormalities do you have? What are you symptoms?

thats a good start

JodyAt 11:40 AM 6/29/99 MDT, you wrote:

>From: <teers@...>

>

>Hi Jody,

>My name is and I am 17 and I have had AIH for about 4 years. If you

>have any questions I will try to answere them.

>

>

>

>>From: ** <angel2@...>

>>Reply- onelist

>> onelist

>>Subject: [ ] New to the list

>>Date: Tue, 29 Jun 1999 11:41:00

>>

>>From: ** <angel2@...>

>>

>>Hello everyone. My name is Jody and Im new to this list. I'm hoping I can

>>find out information about AIH or any other type of autoimmune liver

>>disease.

>>I have not yet found a doctor who can diagnose the cluster of symptoms and

>>lab results that seem to not be getting better.

>>I have had Fibromyalgia and an unknown autoimmune disease for the last 10

>>or so years. I will list my symptoms and a breif summary of my lab work in

>>hopes that one of you can see a similarity and perhaps help my doctor make

>>a diagnosis.

>>Fibromyalgia = fatigue, joint and muscle pain, unable to achieve deep

>>sleep, weight gain, depression.

>>Autoimmune disease = possibly psoriatic arthritis or Sjogren's Disease.

>>elevated sedrates as high as 60. ANA was positive for years then turned up

>>negative. Just recently it has again turned abnormal. RF neg. Swelling of

>>joints.

>>The newest thing is my liver. In 1996 I was admitted to the hospital with

>>acute pain, poss cholelithiasis or cholecystitis. They weren't sure so they

>>did a laporatomy to explore the abdomen. They removed my gallbladder which

>>did show moderate cholecystitis. A month later the pain returned. I was

>>admitted for ERCP with elevated liver enzymes, primarily ALT, AST, ALK

>>PHOS, GGT. They found a stone in the CBD but were unable to retrieve it. I

>>got pancreatitis from the ERCP and the doctor managed to obstructed the

>>bile duct so my bilirubin shot up and I became Jaundice. They opened me up

>>again from belly button to diaphram. The stone was removed. He had to

>>rebuild my CBD because the ERCP doc ripped it up trying to get the stone.

>>A few months after that the pain was still there only not as acute. I

>>monitored my LFTs and they stayed slightly elevated for months. In June of

>>98 the pain became acute again. I was admitted. Had ERCP which did not

>>produce a stone. My enzymes again were elevated. I had another ERCP and

>>they did sphincterotomy and widened the bile duct to 8mm from 2mm which

>>seemed to help. The pain was back to the minor ache and the enzymes

>>returned to the lower levels..Mostly just the ALT and GGT and ALK PHOS. all

>>else were normal.

>>I am now preparing for a liver consult at Stanford in August. I am

>>researching autoimmune disease's affect on the liver which is how I

>>discovered you all.

>>My SM ab and Mitochondrial ab are normal. My enzymes are climbing again and

>>the pain is back.

>>My thoughts are that its Sjogrens affect on the liver but Im really not

>>sure. If any of you see a similarity with your own liver problems I would

>>greatly appreciate your imput..

>>Also, if you know of any lab testing that might be beneficial please put

>>that in also. Im phlebotomist and can run pretty much anything I want here

>>

>>Thanks in advace for taking the time to read this long email and giving

>>your suggestions.

>>

>>Jody

>>

>>

>>---------------------------

[Guest guest]

Jody,

My liver emzymes where really high. I had really bad symptoms. I had head

aches. I was iritable, anerexic, I lost a lot of weight. I had hair loss.

I was tired all the time, and cold too. I had low grade fevers all the

time. The list goes on and on.

It for ever it seemed like to get diagnosed. I ended up in the er with a

bowl obstuction. After I had gotton all of the taken care of, I still never

got well. The hospital in our town is not the greatest. I was not

comfortable going there. My mom told them to figure out what was wrong.

They did a thyroid test and found that my thyroid was hypo. I went to a

thyroid specialist and he said I looked extremely yellow so he did live

function test, and other test I am not for sure what they are. they all

came back really high so he sent me to a liver specialist. He did a liver

biopsy and told me what was wrong. He told me all of my options of

treatment and told me that the most effective one is Prednisone and Immuran,

or maybe even immuran alone. The liver biopsy showed scarring.

Now I am doing great. I am off of prednison. I only take 50 mg of immuran.

I feel much better than I did four years ago, or even a year ago.

If you have any other questions please feel free to ask.

>From: ** <angel2@...>

>Reply- onelist

> onelist

>Subject: Re: [ ] New to the list

>Date: Tue, 29 Jun 1999 11:55:06

>

>From: ** <angel2@...>

>

>,

>Thanks for responding so quickly.. How did your doctor's finally diagnos

>you? What blood work abnormalities do you have? What are you symptoms?

> thats a good start

>

>JodyAt 11:40 AM 6/29/99 MDT, you wrote:

> >From: <teers@...>

> >

> >Hi Jody,

> >My name is and I am 17 and I have had AIH for about 4 years. If

>you

> >have any questions I will try to answere them.

> >

> >

> >

> >>From: ** <angel2@...>

> >>Reply- onelist

> >> onelist

> >>Subject: [ ] New to the list

> >>Date: Tue, 29 Jun 1999 11:41:00

> >>

> >>From: ** <angel2@...>

> >>

> >>Hello everyone. My name is Jody and Im new to this list. I'm hoping I

>can

> >>find out information about AIH or any other type of autoimmune liver

> >>disease.

> >>I have not yet found a doctor who can diagnose the cluster of symptoms

>and

> >>lab results that seem to not be getting better.

> >>I have had Fibromyalgia and an unknown autoimmune disease for the last

>10

> >>or so years. I will list my symptoms and a breif summary of my lab work

>in

> >>hopes that one of you can see a similarity and perhaps help my doctor

>make

> >>a diagnosis.

> >>Fibromyalgia = fatigue, joint and muscle pain, unable to achieve deep

> >>sleep, weight gain, depression.

> >>Autoimmune disease = possibly psoriatic arthritis or Sjogren's Disease.

> >>elevated sedrates as high as 60. ANA was positive for years then turned

>up

> >>negative. Just recently it has again turned abnormal. RF neg. Swelling

>of

> >>joints.

> >>The newest thing is my liver. In 1996 I was admitted to the hospital

>with

> >>acute pain, poss cholelithiasis or cholecystitis. They weren't sure so

>they

> >>did a laporatomy to explore the abdomen. They removed my gallbladder

>which

> >>did show moderate cholecystitis. A month later the pain returned. I was

> >>admitted for ERCP with elevated liver enzymes, primarily ALT, AST, ALK

> >>PHOS, GGT. They found a stone in the CBD but were unable to retrieve it.

>I

> >>got pancreatitis from the ERCP and the doctor managed to obstructed the

> >>bile duct so my bilirubin shot up and I became Jaundice. They opened me

>up

> >>again from belly button to diaphram. The stone was removed. He had to

> >>rebuild my CBD because the ERCP doc ripped it up trying to get the

>stone.

> >>A few months after that the pain was still there only not as acute. I

> >>monitored my LFTs and they stayed slightly elevated for months. In June

>of

> >>98 the pain became acute again. I was admitted. Had ERCP which did not

> >>produce a stone. My enzymes again were elevated. I had another ERCP and

> >>they did sphincterotomy and widened the bile duct to 8mm from 2mm which

> >>seemed to help. The pain was back to the minor ache and the enzymes

> >>returned to the lower levels..Mostly just the ALT and GGT and ALK PHOS.

>all

> >>else were normal.

> >>I am now preparing for a liver consult at Stanford in August. I am

> >>researching autoimmune disease's affect on the liver which is how I

> >>discovered you all.

> >>My SM ab and Mitochondrial ab are normal. My enzymes are climbing again

>and

> >>the pain is back.

> >>My thoughts are that its Sjogrens affect on the liver but Im really not

> >>sure. If any of you see a similarity with your own liver problems I

>would

> >>greatly appreciate your imput..

> >>Also, if you know of any lab testing that might be beneficial please put

> >>that in also. Im phlebotomist and can run pretty much anything I want

>here

> >>

> >>Thanks in advace for taking the time to read this long email and giving

> >>your suggestions.

> >>

> >>Jody

> >>

> >>

> >>---------------------------

[Guest guest]

Hi

I too have Sjogren's but I didn't know it could affect the liver. Hmmmmmm.

Also had an ERCP that caused pancreatitis. I have been diagnosed with

overlapping AIH/PSC. My Alk. Phos. and GGT are always high (last time Alk.

Phos. was 475 and GGT was 904). I was on Actigall for 10 months and the

nausea was so bad I chose to discontinue it. Since then have tried Urso but

it nauseated me too much also. I've been on prednisone since Feb. 1991 in

varying doses. My AST and ALT respond to the pred. but not the Alk. Phos. or

GGT. Also have been diagnosed with a form of Lupus besides the Sjogren's.

I now also have to take high blood pressure medication (maybe from the

prednisone?) Oh well.. what can we do? Just keep on taking it one day at a

time I guess.

TTFN,

Dianne A.

[Guest guest]

This is to Jody, SueB. Leona, Diane and ...

Welcome to all of you who are new..I am sorry that you have to be here

though......we have talked about the trouble with schools and how to

get help that you deserve with out a battle...To all you others....I'm

Luanne...My son Tyler is 16 1/2 and is the reason I'm here. He like all of

you have several health issues...He has had Crohns and Rhuematoid Arthritis

since he was 10....Now he also has AIH and PSC...Even on some of the strong

medications he was on such as cyclosporin(used on transplant patients) enbrel

(a very strong arthritis med.) pred and many others....this PSC and AIH

popped up....who knew...so another med is added...actigal...which now is hard

to get so he takes urso....He has no problem with those meds and they are now

helping to get his counts done....Before the actigal his ALT'S , AST's were

in the 300's and GGT's in the 900's. His docs were really baffled because

the other meds which are also used for liver diseases were letting these

counts happen...So off for the liver biopsy and ERCP(which he also had

problems with his pancreas)...Thus the conclusion was AIH and PSC. Luackily

....so far...the actigal(or urso) is bringing down the counts....He too had

problem with his spleen...being very large...was in hospital for that for 2

weeks...had to wear a spleen guard to protect him from being bumped and

spleen rupturing....no physical stuff at all...tough for a 16 yr old boy.....

Like I said his counts are better although his whites are low at 2.2 and

playlets are low again 40,000(should be about 250,000).

He goes to Childrens Hospital in Philadelphia PA. He had a check up on tues

with all his docs and they were pleased...now we are hoping to stablize here

for a while...

Today he is having problem walking because the arthritis is bad in his hip

and knee....

His doctors explain his medical condition as a very hyped up immune

system...Randomly attacking where it chooses and of course leaving damage....

I hope I have put some light on some of your thoughts ...Anyone who would

like to talk or vent I'm hear....

To ...not sure if I got back to you about the 504 plan...we did it and

so hoping that next year will be a lot different...

Hope you all have a nice week-end....

Luanne Ty's mom

[Guest guest]

Dear Sharon:

I am a naturopath practicing in New Zealand. The story you present is one

I " ve heard and dealt with hundreds of times.Hypothyroid simply zaps energy

and creates untold metabolic hassles.

The first thing to do is to restore thyroid function. That is done with a

remedy developed at this clinic that actually does restore thyroid function,

quickly, and permanently, naturally.

Then progesterone cream complements the hormonal cascade very nicely.

I'll add an attachment that will give you further data. If you wish more

data please request from this address.

best wishes,

Earl

[Guest guest]

Earl Conroy,

Please post how to get the remedy to restore thyroid function quickly,

permanetly and naturally.

Kip King

Earl Conroy wrote:

>

> Dear Sharon:

> I am a naturopath practicing in New Zealand. The story you present is one

> I " ve heard and dealt with hundreds of times.Hypothyroid simply zaps energy

> and creates untold metabolic hassles.

> The first thing to do is to restore thyroid function. That is done with a

> remedy developed at this clinic that actually does restore thyroid function,

> quickly, and permanently, naturally.

> Then progesterone cream complements the hormonal cascade very nicely.

> I'll add an attachment that will give you further data. If you wish more

> data please request from this address.

> best wishes,

> Earl

>

> ------------------------------------------------------------------------

> Name: THE DOWNHILL SYNDROME.doc

> THE DOWNHILL SYNDROME.doc Type: Microsoft Word Document

(application/msword)

> Encoding: base64

>

> Name: THYROID DYSFUNCTION.doc

> THYROID DYSFUNCTION.doc Type: Microsoft Word Document

(application/msword)

> Encoding: base64

[Guest guest]

Dear Kip:

The remedy that restores thyroid function is called Thyrodine. I'll attach

data that you may find useful

The Thyrodine costs US$40 postpaid, paid by VISA or MC or cheque.

Should you decide to order some, write and tell me your thyroid therapy

history and I may be able to make some useful suggestions about how to take

the Thyrodine and possibly other ancillary remedies that may be indicated.

best wishes,

Earl

[Guest guest]

Earl,

what is your email address?

Dawn

Blaidd

email: blaidd@...

webpage: http://blaidd.home.texas.net/

ICQ#15014644

Join the Wolfdog Alliance Webring :

http://blaidd.home.texas.net/wolfdogalliance.html

[Guest guest]

Dear Dawn:

Did I send you my e-mail address??

We also have a new web site. You'll need to access it from your address

aspect on the third line on top of your browser.

www.thyrodine.com

This has much data on all aspects of thyroid dysfunction.

best wishes,

Earl

[Guest guest]

Hi ,

I AM new to this list.

Does candida contribute to weight gain...have been overweight all my life...Am

hoping to be able to follow an anti-candida food plan to finally lose my extra

weight that has now caused me to have diabetes type II.

Take care & be well.

Bright blessings.

Love & light.

Cyndi

--

On Tue, 25 Jul 2000 12:30:01 elisabeth wrote:

>hello

>I'm new to the list =O)

>my name is elisabeth and I'm 23 years old. I've had candida for a year but only

gained weight the last 3 months (10 kilo's in 3 months).

>People at work thought I was pregnant and commented on that all the time.

>When I started my diet I lost 4 kilos in 10 days....what a relief! those 4

kilos were only water but it helps to think of those 4 kilos when I struggle on

the diet.

>

>

>

>beth

>

>if anybody would like to see what I look like here's the

adresshttp://home.no.net/eplekake

>...(the site is in Norwegian only, I hope to add an english version soon)

>

Angelfire for your free web-based e-mail. http://www.angelfire.com

[Guest guest]

In a message dated 07/25/2000 7:16:24 AM Eastern Daylight Time,

eplekake@... writes:

<< hello

I'm new to the list =O)

my name is elisabeth and I'm 23 years old. I've had candida for a year but

only gained weight the last 3 months (10 kilo's in 3 months).

People at work thought I was pregnant and commented on that all the time.

When I started my diet I lost 4 kilos in 10 days....what a relief! those 4

kilos were only water but it helps to think of those 4 kilos when I struggle

on the diet. >>

Welcome to the list, beth I hope you enjoy what we have to offer.

I've not been on this list long (geesh, maybe only 2 weeks? - See what I

mean by brain fog, ppl? I can't even remember how long I've been on the

list!) and I really enjoy it. The people here are really funny and are very

good friends, in my experience.

2000/7/25 3:09:19 pm EST

~~~

Some people come into our lives and quickly go

Leaving bruises and scars on our hearts and souls

Some stay awhile and leave gentle footprints

Of Love and Respect on our hearts

And we are never, ever the same.

(^..^)~ (^..^)~ (^..^)~ (^..^)~ (^..^)~

[Guest guest]

In a message dated 07/25/2000 1:32:14 PM Eastern Daylight Time,

artemis.agency@... writes:

<< I am certain that candida causes diabetes. >>

Is there a chance that Candida also causes Polycystic Ovary Syndrome? I was

diagnosed with that in January.

Love,

2000/7/25 3:27:49 pm EST

~~~

Some people come into our lives and quickly go

Leaving bruises and scars on our hearts and souls

Some stay awhile and leave gentle footprints

Of Love and Respect on our hearts

And we are never, ever the same.

(^..^)~ (^..^)~ (^..^)~ (^..^)~ (^..^)~

[Guest guest]

Welcome Cyndi

It is thought that Candida causes overweight when it gets into the

pancreas and causes it to malfunction. When it gets into the adrenals is

causes underweight.

I am certain that candida causes diabetes.

Lee

[Guest guest]

Hi Lee,

My doctor believes that hypoglycemia, thyroid, chronic fatigue, and fibromyalgia

are

problems related to the candida. Candida affects all of your organs and thus

starts

causing dysfunction in all of them. It is the toxins that are a by product of

candida that

causes our bodies organs and glands to malfunction. As each organ becomes more

disabled,

the other organs try to cope, and are on over load. Then, they start to

malfunction also.

Bonnie

" artemis.agency@... " wrote:

> Welcome Cyndi

>

> It is thought that Candida causes overweight when it gets into the

> pancreas and causes it to malfunction. When it gets into the adrenals is

> causes underweight.

>

> I am certain that candida causes diabetes.

>

> Lee

>

> ------------------------------------------------------------------------

> Free Conference Calling with Firetalk!

> Click Here!

> 1/5480/12/_/469673/_/964546257/

> ------------------------------------------------------------------------

>

> Send blank message to candidiasis-unsubscribeonelist if you want to

UNSUBSCRIBE !

>

[Guest guest]

<<...hypoglycemia, thyroid, chronic fatigue, and fibromyalgia are

> problems related to the candida. Candida affects all of your organs and

thus starts

> causing dysfunction in all of them. It is the toxins that are a by

product of candida that

> causes our bodies organs and glands to malfunction. As each organ becomes

more disabled,

> the other organs try to cope, and are on over load. Then, they start to

malfunction also.>>

That is heavy duty stuff. I believe I have been experiencing the same thing

if not something similar. I think I have been getting die-off symptoms

frequently. It wasn't until this year that I have felt that I identified

the problem and attacked it.

I encourage all you soldiers in this candida war to keep fighting.

[Guest guest]

Is there anything we can do? I already had Fibromyalgia and diagnosed years

ago with thyroid. I got off my candida diet. I was starving!! My mother

liked to have a fit ( I am only 47). She is alot milder than what she use

to be. I live next to her. But I could always move again in order to have

peace. Sometimes she does push my buttons and have learned that I can push

back. Getting back to the candida. Someone wrote in before, when you get off

your meds and don't stay on your diet you will have symptoms again. I have

about decided to stay on the diet. It is just not worth it.

Re: new to the list

<<...hypoglycemia, thyroid, chronic fatigue, and fibromyalgia are

> problems related to the candida. Candida affects all of your organs and

thus starts

> causing dysfunction in all of them. It is the toxins that are a by

product of candida that

> causes our bodies organs and glands to malfunction. As each organ becomes

more disabled,

> the other organs try to cope, and are on over load. Then, they start to

malfunction also.>>

That is heavy duty stuff. I believe I have been experiencing the same thing

if not something similar. I think I have been getting die-off symptoms

frequently. It wasn't until this year that I have felt that I identified

the problem and attacked it.

I encourage all you soldiers in this candida war to keep fighting.

Send blank message to candidiasis-unsubscribeonelist if you want to

UNSUBSCRIBE !

[Guest guest]

<<I couldn't eat more than one meal per day because it hurt too much and I allways fell asleep afterwards. Now I eat 5 times (allways hungry!!) and I don't gain anything.

>>

I have to skip lunch every day during the workweek in order to stay awake. I also have a terrible problem with concentration.

In 1997 something traumatic happened and I dropped 40lbs. I can now eat a lot without gaining. But back when I was overweight I struggled to keep it off.

[Guest guest]

so nice to meet you ...I am from Canada

New to the list

Hi to all,I am new to the list and let me intriduce myselfMy name is Santilario, I am from Spain, 35 and work as a Traditional Feng Shui consultant.Due to a hashimmotto I am hypothyroid in treatment with 125 mcg Levothroid. Not too bad even though I am not the one I used to be.The problem in Spain, is that it is practically impossible to find a nice doctor, friendly enough to talk to. Last year I went to what I was told to be the best private hospital in Spain in Pamplona, even though it was incredibly expensive, but I thought it was worthy if I only could ask as many questins as I have stucked in my throat (LOL)... well, it was sooo sad. The doctor treat me so bad...and I was soo frustrated that I havent checked my "levels" since then.I think this list is awsome and full of information as I go through the archives.My first question is : What is the relationship between dental metal fillings and hypothyroid? I have plenty of them!!With love,PS Anyone from Spain??

[Guest guest]

> My first question is : What is the relationship between dental

metal

> fillings and hypothyroid? I have plenty of them!!

>

> With love,

>

> PS Anyone from Spain??

Welcome to the list ! To answer your question...mercury

displaces iodine, which is essential to thyroid function...here's

some sites to check-out:

http://emporium.turnpike.net/P/PDHA/mercury/asr.htm

http://www.talkinternational.com/1569.htm

....you'll find quite the discussion on the bowel cleanse list, with

tons of links about the toxicity of mercury amalgams...

[Guest guest]

-Dear ,

Goodness gracious we have alot of Texicans here on the list!<vbg>

I too live in the Lone Star State and aint never seen a tick on my

person however ticks arn`t the only carriers of this, mosquitos,

gnats, flees, and boy howdy do we have the flees here in Texas. There

are several types of insect vectors that carry this. Remember the

food chain as well in the insect world, I had heard that the " our "

fire ants have been eating up the tick population, so there you have

it. I bet them fire ants have the Borella as well, and if you have

not been stung by one you are lucky! You wont get much info from our

Dept.of Health about Lyme here in Texas,,its downplayed a bit, we are

real lucky tho we have a State Senator whose daughter and himself

contracted this disease otherwise we would be in a pickle like the

folks in New York and the east coast, they have so much difficulty

with the Insurance folks and regulators.

This disease takes no prisoners, I just met a gal with chronic

migraines that worked at Nasa who was diagnoised with Lyme, she didnt

have them myalgia

pains or stiffneck but had severe headaches...but she tested big

time on the Igenex Luat. So

with this disease you never know. I suspect this disease is far more

prevalent than anyone could possibly realize,, and imitates many

other diseases. Igenex has a brande new test out and is very

accurate. You can call them at thier 1-800 and learn whats the best

test for you.

The word is get tested, and if it comes out negative, try it again,,

you just never know with this Lyme stuff. Some folks take a while to

show up positive, have you been on allergy meds?

Good luck.

-- In @y..., rbrookeherrin@j... wrote:

> Hi everyone,

>

> I am new to the list. I am currently undergoing the allergy

> treatment EPD for the symptoms of fatigue, depression, and

insomnia,

> mainly. I have tons of allergies and this could account for my

> symptoms. But several people on the EPD list have turned out to be

> positive for Lyme, which is causing their allergies. I wonder

what

> my odds are for being infected with Lyme. I have lived in Dallas,

Tx

> my whole life, and have rarely gone into areas where Lyme is

> endemic. I have no pain or aching (except 2-3 times in one wrist-

> and this symptom can be connected to allergies) , no fibromyalgia

or

> stiffness, or other nerve symptoms that stand out as persistent or

> unusual. I do not remember any tick bites, or rashes.

> I also wonder what are the best test(s) to get from Igenex for

> someone who would have been infected for quite some time.

>

>

[Guest guest]

Nope, no allergy meds. Why do you ask? I do have to take an

antifungal drug before my next shot, and am also taking 7 days of

tinidazole before my next shot. How long should you wait after

taking abx to get tested for Lyme?

> > Hi everyone,

> >

> > I am new to the list. I am currently undergoing the allergy

> > treatment EPD for the symptoms of fatigue, depression, and

> insomnia,

> > mainly. I have tons of allergies and this could account for my

> > symptoms. But several people on the EPD list have turned out to

be

> > positive for Lyme, which is causing their allergies. I wonder

> what

> > my odds are for being infected with Lyme. I have lived in

Dallas,

> Tx

> > my whole life, and have rarely gone into areas where Lyme is

> > endemic. I have no pain or aching (except 2-3 times in one wrist-

> > and this symptom can be connected to allergies) , no fibromyalgia

> or

> > stiffness, or other nerve symptoms that stand out as persistent

or

> > unusual. I do not remember any tick bites, or rashes.

> > I also wonder what are the best test(s) to get from Igenex for

> > someone who would have been infected for quite some time.

> >

> >

[Guest guest]

Hi Carol, I'm Judy from Fl. but just wanted to say Hi

and the people at this site are really great. I only

recently discovered this group so I have been reading

more than mailing.I know how good I felt when they

responded to my questions. I have AIH and have good

and bad days more good ones though. You have to keep a

positive attitude and prayer doesnt hurt either. My

daughter and husband are stationed in San Diego, I

know thats a distance from you. I know with a 22mo.

child you need all the energy you can get.

Judy/pens.Fl.

--- caroljshemwell@... wrote:

> Hi everyone, I've been reading your list for the

> last few weeks and

> have learned alot. I was diagnoised with AIH at the

> end of January,

> after going to the doctor for a cough that had been

> hanging around

> since October of last year. I'm a divorced mom of a

> 22 month old and

> we have been on our own since right before she was

> born. So needless

> to say I hadn't had a full nights sleep in about 2

> years, so the

> extra fatigue and depression like feelings I was

> having I dissregard

> as just being stressed and needing a vacation.

>

> When I finally saw a doctor they noticed I was

> jaundice, and had my

> blood test run on my liver, and they didn't like

> what they saw. Two

> days later I was having an ultra sound but, the GP,

> said he couldn't

> see anything but some inflamation and referred me to

> a G.I. and I had

> more blood tests. It was a week later exactly from

> the day I went to

> have my cough checked out to the day I saw my G.I.,

> and by then I'd

> gone from light yellow to dark orange and the whites

> of my eyes were

> orange. I had a biopsy done the day after the

> doctor saw me, and he

> told me just from the blood work that he was pretty

> sure I had AIH.

> I had no idea what he meant and was completely

> clueless to the

> changes this would make in my life, and the people

> around me. By the

> time I had my biopsy my total bili was 20 and I was

> turning a cast of

> green, my liver counts were both in 2800 to 3000

> range, and I was

> very week and extremly exhausted.

>

> My doc says that from the time I saw the GP to the

> time I met him my

> liver had started to collapse in on itself. Before

> he had the

> results he started me on 60mg of predisone, and then

> called me in a

> day early when he got my biopsy results. When I saw

> him he just

> looked at me and said that my biopsy was bad(no

> softening the blow).

> He started talking about all the specialist that

> were reviewing my

> liver samples and they all confirmed that I had AIH,

> and that if the

> medicine hadn't had any effect with the blood tests

> that he would

> need to send me to USFC to be put into the

> transplant program. Then

> he told me I would need to have complete rest

> indefinately.

>

> Well I'm happy to say that my first set of labs from

> that day my

> levels dropped by 1/3, and he decided not to refer

> me just yet for a

> transplant. I am now down to 20 mg of predisone and

> 50 mg of

> Imuran. I have the typical side effects from the

> predisone, moon

> face, weight gain, and the lovely facial hair, but

> hey I still have

> my liver for now anyway.

>

> I'm blessed by a great support group with my family,

> and friends from

> church. I know that it was all the prayers that

> were being said that

> has made my doctor constantly amazed at my progress.

> But I still get

> scared. I know now that this disease will be a part

> of my life

> forever, and that I have to make changes as not to

> over tax my

> system. I'm starting back to work in July

> part-time. Hopefully I

> won't have a relapse as my meds are decreased.

>

> I am really glad to have found this place, and to

> talk with other

> people who have the same illness. I live in

> Northern CA actually in

> The Silicon Valley, and if there are any others on

> the board in the

> Bay Area please say hi.

>

> Thanks for listening.

>

> Carol, AIH 1/01

>

>

__________________________________________________

[Guest guest]

<< So any questions

you may have for me that will help you guide me ask away. I have

various blood tests and I have no disease processes going on. I was

told at the age of 20 I had a spastic colon.. I just need help to

get on the road to health

Jeanne >>

******************

Hi, Jeanne,

Listen, what type of diet are you on? Tell us what you're eating, basically.

Go to liverdoctor.com and check out Dr. Cabot's website. Her books

and products helps liver & bowel problems. Your spastic colon may get a

wonderful benefit if you do eat the right type of foods. Now, I'm not saying

that you don't eat the right foods, so don't take me wrong, please. I've

already encountered a person who flew off the handle because I mentioned

food. So please don't get me wrong here.

However, truly Dr. Cabot is an expert. She's not only an MD, but

she's also a naturopatic doctor. In my opinion, she understands the

workings of the human body pretty good, and she will lead you in the right

direction. The things that we eat have a very huge effect on our well-being.

Let us know what happens.

Take care,

Susie