New to the list

[Guest guest]

Hi Jeanne, Well, I am not a doctor, but from what I have read and the

experiences of several friends, it could be leaky gut syndrome, or giardia,

which doesn't always show up in tests. If it was me, I would try pure

colostrum. It heals leaky gut syndrome and kills some parasites and reduces

candida and is just good for the bowel and the rest of the body. It is tough

when you are playing a guessing game. But I have just seen this do so much for

so many people and so I am eager to recommend it.

www.immunetree.com is a good place to read up. Their is the only pure one on

the market.

You can contact me privately for more info.

Donna

New to the list

Hi I am new to the list. I have had chronic diarrehea for always it

seems. I am tired of it. I am tired of feeling not always up to

par. I definitely need some life altering changes. So any questions

you may have for me that will help you guide me ask away. I have

various blood tests and I have no disease processes going on. I was

told at the age of 20 I had a spastic colon.. I just need help to

get on the road to health

Jeanne

[Guest guest]

What makes you think that theirs is the only pure one on the market?

Just curious because I " m taking Symbiotic New Life colostrum cause

someone told me THEY were the purest on the market LOL

Barbara

> Hi Jeanne, Well, I am not a doctor, but from what I have read and

the experiences of several friends, it could be leaky gut syndrome, or

giardia, which doesn't always show up in tests. If it was me, I

would try pure colostrum. It heals leaky gut syndrome and kills some

parasites and reduces candida and is just good for the bowel and the

rest of the body. It is tough when you are playing a guessing game.

But I have just seen this do so much for so many people and so I am

eager to recommend it.

>

> www.immunetree.com is a good place to read up. Their is the only

pure one on the market.

>

> You can contact me privately for more info.

> Donna

> New to the list

>

>

> Hi I am new to the list. I have had chronic diarrehea for

always it

> seems. I am tired of it. I am tired of feeling not always up

to

> par. I definitely need some life altering changes. So any

questions

> you may have for me that will help you guide me ask away. I

have

> various blood tests and I have no disease processes going on. I

was

> told at the age of 20 I had a spastic colon.. I just need help

to

> get on the road to health

> Jeanne

>

>

>

>

[Guest guest]

There is an active Ohio lyme association. They would be your best

bet on doc info. If someone on this list does not contact you about

the assn. then go to http://www.lymenet.org or

http://www.lymealliance.org and find the support groups section.

[Guest guest]

Isis, is correct. See a Lyme Literate MD, asap. Rita

[ ] New to the List

> Hello. I'd like to introduce myself to everyone. I am Isis Coble.

> I'm African American, 52 years old, and I live in Mendocino County,

> California. I have had an on again/ off again diagnosis of tertiary

> Lyme disease since 1983, and probably contracted it in 1969! I have

> been seeking help for most of my adult life with this continuing

> autoimmune illness. I've been through most of the major symptoms of

> Lyme, have seen lots of specialists and have reached the point where

> my symptoms are permanent and progressively worsening.I abreact to

> antibiotics, have tried many many alternative treatments, and keep

> looking for help. My most recent symptoms are involved with enormous

> weight gain and intensely painful edema of the feet, legs, neck, back

> and hands. I'm in bed, most of the time, being kept as comfortable

> as possible with a cocktail of medication, nutritional suppliments

> deep meditation, writing and producing ART!

> I, of course, have an additonal diagnosis of CFIDS/ fibro. I am

> tired of fighting about diagnosis and cure. My favorite researcher

> decided that my history and symptoms were so complicated that he

> informed me that I had an " ideosyncratic autoimmune illness "

> called 'Isis Coble Syndrome'. Among my many challenges are being

> unable to be employed any more, being on SSDI/SSI with a hugely

> limited income, and having only public medical insurance (MediCal and

> MediCare). (Did I mention brain scramble and lots of

> muscular/skeletal pain?) I am interested in information about long

> term symptomology, research into the causes of sero-negativity,

> antibiotic reactivity, and public insurance payment for new

> treatments, including hyperbaric treatments. I am truly tired of

> experiencing doctors walk into a room, see an older, fat Black woman,

> on Aid, with weird symptoms, on chronic pain meds and watch them

> think.. " Umm hmm..... " I'm also tired of meeting the new alternative

> medical practitioner with the latest 'cure' who blames me if it

> doesn't work. And, I am willing to keep looking for help.

> Suggestions are welcome. I'd like to chat or correspond with others

> who are focusing on dealing with longterm chronic illness and what I

> call " positive mental adjustments " . Let me hear from you. It's good

> to meet you all. Welcome to the Zen of all diseases.. you only have

> NOW!

>

>

>

>

>

[Guest guest]

You need a LLMD ASAP. I am sure someone on the list can refer you to one in

the CA area.

[ ] New to the List

> Hello. I'd like to introduce myself to everyone. I am Isis Coble.

> I'm African American, 52 years old, and I live in Mendocino County,

> California. I have had an on again/ off again diagnosis of tertiary

> Lyme disease since 1983, and probably contracted it in 1969! I have

> been seeking help for most of my adult life with this continuing

> autoimmune illness. I've been through most of the major symptoms of

> Lyme, have seen lots of specialists and have reached the point where

> my symptoms are permanent and progressively worsening.I abreact to

> antibiotics, have tried many many alternative treatments, and keep

> looking for help. My most recent symptoms are involved with enormous

> weight gain and intensely painful edema of the feet, legs, neck, back

> and hands. I'm in bed, most of the time, being kept as comfortable

> as possible with a cocktail of medication, nutritional suppliments

> deep meditation, writing and producing ART!

> I, of course, have an additonal diagnosis of CFIDS/ fibro. I am

> tired of fighting about diagnosis and cure. My favorite researcher

> decided that my history and symptoms were so complicated that he

> informed me that I had an " ideosyncratic autoimmune illness "

> called 'Isis Coble Syndrome'. Among my many challenges are being

> unable to be employed any more, being on SSDI/SSI with a hugely

> limited income, and having only public medical insurance (MediCal and

> MediCare). (Did I mention brain scramble and lots of

> muscular/skeletal pain?) I am interested in information about long

> term symptomology, research into the causes of sero-negativity,

> antibiotic reactivity, and public insurance payment for new

> treatments, including hyperbaric treatments. I am truly tired of

> experiencing doctors walk into a room, see an older, fat Black woman,

> on Aid, with weird symptoms, on chronic pain meds and watch them

> think.. " Umm hmm..... " I'm also tired of meeting the new alternative

> medical practitioner with the latest 'cure' who blames me if it

> doesn't work. And, I am willing to keep looking for help.

> Suggestions are welcome. I'd like to chat or correspond with others

> who are focusing on dealing with longterm chronic illness and what I

> call " positive mental adjustments " . Let me hear from you. It's good

> to meet you all. Welcome to the Zen of all diseases.. you only have

> NOW!

>

>

>

>

>

[Guest guest]

Hi Isis,

I am interested in information about long

> term symptomology, research into the causes of sero-negativity,

> antibiotic reactivity, and public insurance payment for new

> treatments, including hyperbaric treatments.

I am usually looking around at articles thinking " someday I'll send

this to my old primary care, that loser. " so if I come across

something I think you might be interested in, I will try to remember

to send it your way or post it here. Used to be I was getting my

PhD in psychology, since last year it's been Lyme.

It is not easy and I have only had this for one year. I'm 31, euro-

american, grew up where there were no deer and sometimes I wish I

never left my backwards thinking blue collar neighborhood south of

Boston. Someday I might finish my degree, lyme permitting. If I

could, I would switch to microbiology right now and find a way to

diagnose lyme for real.

Sometimes reading and posting on this board makes me depressed

because I worry for my future, I hear about people who have had Lyme

for so long and who are older and stronger than me and who still

have the same problems with doctors that I have. I have always

thought as I got older I would gain power. That is true to some

extent, but there are limits. For example, as I get older, I become

subject to increasing misogyny and other stereotypes about

(hysterical) women. That is a huge impediment to adequate treatment

for this and other medical problems. In fact, it's worse than an

impediment. Not only does it get in the way, it actually causes

more problems, exacerbates the ones I have, what do you call an

impediment that actively creates more problems? " Obstacle " seems

like a much too innocent word.

If I get out of this intact, I will be so strong, that is what I

keep telling myself. I am gaining so much experience, so much

knowledge, so much. But what happens if I don't get out of it

intact? What if I go through years and years too? Will it wear me

down and if it does, what will it wear me into? How will this

evolve in me? How will it evolve me?

I think the thing that pisses me off the most when I think about

this is that it is 2003, not 1976. There has been research. It is

out there. It isn't all good, but some of it sheds some light on

things. But why don't the doctors know any of it?

I was diagnosed with a blood test in CT, what you'd think is the

heart of lyme research (hahahahahahaha). I started doxy just days

after being bitten. I had " the rash " which grew to the size of a

saucer and was rapidly approaching dessert dish proportions. And I

did not get better, I got worse. Hey, I'm pretty sure if I

type " nervous system " " invasion " and " Lyme disease " into Google

right now I will get hundreds of hits and some of them might be

about how Lyme can invade the CNS earlier than is commonly thought.

I guess that is why I could never be a doctor. I don't think I

could ever be so confident that my brain is plugged into the all

knowing doctor hive.

I wanted to think that long term Lyme only happened to people like

you, who were bitten before they even knew what Lyme was. I wanted

to think that the neurological problems and the apparent immune

system disorder only happened if treatment was delayed by years and

years, that it couldn't happen if treatment started right away. I

can't believe that anymore and that scares me and it makes me angry.

I am horrified to see my partner's sister going through this right

now, exactly like I did. She was bitten in June, started doxy

within days of the bite. She's 21 and funny and energetic, but now

she's sick and getting sicker and she lacks a strong voice to use

with her physician who is sweeping her under the lyme carpet. It

nearly makes me cry. She's about to graduate college, loose her

insurance, and because of research biases and ignorant doctors who

won't even read what little research there is, she will have chronic

lyme problems.

Where do we find hope in this? Is it in being strong? I use that,

but I don't know how long that will last.

-

[Guest guest]

Hi ,

Wonderful to meet you, sorry it is because you aren't feeling well.

Hopefully we can be of service to you in helping you find a path to

wellness.

I follow the same regimen and books as explained (extremely well

I might add) in his message. I was quite ill for some time and now I

am not largely due to following the s Moritz materials. Almost

all of my symptoms have gone and I am continuing the work to really

improve my overall health. I focus on gaining " radiant " health...and

I feel much better than I have in years.

There is a lot of good material available to you here as well as on

Curezone.com (by the way, s Moritz also has a forum there for

questions) you can learn a lot by reading these as well.

I remain in the forum to help others as well as learn new things.

Keep up the good work...

Deborah

[Guest guest]

Hi Tim and Elliott,

> SO what I need to ask you is what do I feed them to

> help them not lose weight while not allowing candida to eat?! I know

> almonds and red meats (we normally avoid that but I guess we could for

> a while).

Undenatured whey is mentioned in the doctor's desktop reference for

that purpose. Cold-processed whey will increase the ability of the

immune system, reduce toxin load and probably eczema, and will

provide the most bioavailable protein, twice as bioavailable as lean

beef. It increases metabolic rate so will allow weight normalisation,

i.e. reduce fat deposits in people who need that, and importantly,

will increase muscle mass in everyone.

> I am also going to get organic meats from now on (are you

> guys going broke too?!?!). Also, I have to find some power bars or

> something that are ok on this candida killing diet....and some

snacks

> and deserts which are not sugar

Undenatured whey can also be the snack or dessert you seek. There are

sugar-free sweetening options; the whey shake I use contains

sucralose, which is a very sweet sugar that is only needed in trace

amounts and provides no calories.

regards,

Duncan Crow

[Guest guest]

One of the major reasons we got sick, and the candida grew out of

proportion was from eating PROCCESED foods. Foods that come in cans,

foods that have things like pesticides and chemical fertilizers.

Foods that have been altered. Things unatural to us.

Is taking cold PROCESSED whey a good thing?

Read this article on sucralose..

http://www.mercola.com/2000/dec/3/sucralose_dangers.htm

Think about what you're putting in your bodies!!!!!

There are a lot of things out there that can make you feel better

without actually helping you to get better.

Rick

> Hi Tim and Elliott,

>

> > SO what I need to ask you is what do I feed them to

> > help them not lose weight while not allowing candida to eat?! I

know

> > almonds and red meats (we normally avoid that but I guess we

could for

> > a while).

>

> Undenatured whey is mentioned in the doctor's desktop reference for

> that purpose. Cold-processed whey will increase the ability of the

> immune system, reduce toxin load and probably eczema, and will

> provide the most bioavailable protein, twice as bioavailable as

lean

> beef. It increases metabolic rate so will allow weight

normalisation,

> i.e. reduce fat deposits in people who need that, and importantly,

> will increase muscle mass in everyone.

>

> > I am also going to get organic meats from now on (are you

> > guys going broke too?!?!). Also, I have to find some power bars

or

> > something that are ok on this candida killing diet....and some

> snacks

> > and deserts which are not sugar

>

> Undenatured whey can also be the snack or dessert you seek. There

are

> sugar-free sweetening options; the whey shake I use contains

> sucralose, which is a very sweet sugar that is only needed in trace

> amounts and provides no calories.

>

> regards,

>

> Duncan Crow

[Guest guest]

I'm with you on this one Rick. I think to ultimately heal,

physically, mentally and emotionally, we need to walk away from

certain aspects of modern life including synthetic foods, supps and

products (not to mention harried lifesytle). no this not easy in the

short term, but in the long term, your body will thank you for it.

anytime I think of doing something new for my health, I ask myself,

will this bring real healing, or is it a crutch to allow me to avoid

treating myself correctly and keep on doing the things that got me

sick in the first place. for awhile I was a supplement junkie, never

want to go back to that.

> > Hi Tim and Elliott,

> >

> > > SO what I need to ask you is what do I feed them to

> > > help them not lose weight while not allowing candida to eat?!

I

> know

> > > almonds and red meats (we normally avoid that but I guess we

> could for

> > > a while).

> >

> > Undenatured whey is mentioned in the doctor's desktop reference

for

> > that purpose. Cold-processed whey will increase the ability of

the

> > immune system, reduce toxin load and probably eczema, and will

> > provide the most bioavailable protein, twice as bioavailable as

> lean

> > beef. It increases metabolic rate so will allow weight

> normalisation,

> > i.e. reduce fat deposits in people who need that, and

importantly,

> > will increase muscle mass in everyone.

> >

> > > I am also going to get organic meats from now on (are you

> > > guys going broke too?!?!). Also, I have to find some power

bars

> or

> > > something that are ok on this candida killing diet....and some

> > snacks

> > > and deserts which are not sugar

> >

> > Undenatured whey can also be the snack or dessert you seek. There

> are

> > sugar-free sweetening options; the whey shake I use contains

> > sucralose, which is a very sweet sugar that is only needed in

trace

> > amounts and provides no calories.

> >

> > regards,

> >

> > Duncan Crow

[Guest guest]

> One of the major reasons we got sick, and the candida grew out of

> proportion was from eating PROCCESED foods. Foods that come in cans,

> foods that have things like pesticides and chemical fertilizers. Foods

> that have been altered. Things unatural to us.

>

> Is taking cold PROCESSED whey a good thing?

Cheese and yogurt, sauerkraut, kefir, are processed .... by various

methods.

In the case of whey it means handled delicately in a factory so the

parts we don't want from the milk, the casein, fat and lactose are

removed without breaking the glutathione precursors. This type of

whey also contains the highest biological value of protein on the

planet.

>

>

> Read this article on sucralose..

>

> http://www.mercola.com/2000/dec/3/sucralose_dangers.htm

>

More realistically, because sucralose is a sugar that's at least 300

times as sweet as table sugar, you're only getting about .02 g - that

is, two-hundredths - of a gram to make the sweetness of 6 grams of

sugar. There are several cold-processed wheys that contain sugar as a

sweetener instead. There are also a few that are unsweetened.

Duncan Crow

[Guest guest]

Carla:

You've come to the right place for encouragement and advice and kind, kind people.

My interest in your post was sparked when you said you had mercury poisoning, had your amalgams removed and STILL have Candida. I was under the impression that once the mercury was gone, the Candida would leave (the reasoning being that the Candida proliferates to help you deal with the mercury toxicity).

What a disappointment!

However, there may light at the end of the tunnel for you - there are a number of people on this forum who say they have had success with liver cleanses to rid themselves of Candida - you may have heard mention of Mortitz' book, "The Key to Health and Rejuvenation"? - but since I have mercury problems, I haven't done a flush yet, I will leave it to the experts on LC's to guide you there.

In the meantime, to help alleviate your symptoms, you might try cutting out all grains, dairy and sugars from your diet for awhile. Eat lots of raw vegetables (salads) and proteins (meat, chicken, fish) and start taking some natural antifungals. Raw garlic is good. Pau d'Arco tea. And they should be rotated because Candida builds an immunity to things rapidly.

As the Message so often goes here, everybody's body is different so read everything you can - visit web sites like the Curezone and others - and do what feels right for you.

And back to the subject of your mercury poisoning, could you tell me, once you got rid of the amalgams, how did you get rid of your mercury toxicity?

And finally, what part of the UK are you in?

Cheers - and to your good health - p

Re: new to the list

hi im carla, new to group. had mercury poisoning and severe candida chemical sensitivities, food allergies for 3 yrs. had amalgam fillings removed 2 yrs ago.i was 7 stone and really couldnt get out of bed..doctors thought i had depression.....blah. i am now back at work but have to be careful with my chemicle and food allergies.i take acidophilus everyday but could do with some advice about what else i can take to rid me of this candida. i dont eat any processed foods but occasionally bread and biscuits when i have a craving.my husband has been great but people think im mad when i say i had mercury poisoning. i have oral thrush constantly and skin itching, panic attacks occasionally.

anyone found a cure yet?

carla.uk.

[Guest guest]

hi penny

just read your mail. i really dont know if the toxicity has gone yet or if its just the candida allergies. i do try to stick to a sensible diet but get sugar and bread cravings. i bought some caprylic acid and essensial fatty acid supplements. do you know of any kind of bread i could eat? my doctor is sending me to an allergist and hopefully pinpoint what affects me. i cant even wear deodorant. sorry to hear you had mercury poisoning. they still use mercury here. cant believe they put poison in peoples mouths.it has ruined years of our lives.

i can only wear cotton clothes. Polyester makes me itch. do you get these symptoms? where are you from? i live in Northamptonshire,uk.

i am now 55 kg. so am now a normal weight .

i use ECOVER washing liquid as no perfume in it . do you have chemical sensitivities?

it is nice to relate to people who understand what its like.

thanks

CARLA UK.Penny <penelopea@...> wrote:

Carla:

You've come to the right place for encouragement and advice and kind, kind people.

My interest in your post was sparked when you said you had mercury poisoning, had your amalgams removed and STILL have Candida. I was under the impression that once the mercury was gone, the Candida would leave (the reasoning being that the Candida proliferates to help you deal with the mercury toxicity).

What a disappointment!

However, there may light at the end of the tunnel for you - there are a number of people on this forum who say they have had success with liver cleanses to rid themselves of Candida - you may have heard mention of Mortitz' book, "The Key to Health and Rejuvenation"? - but since I have mercury problems, I haven't done a flush yet, I will leave it to the experts on LC's to guide you there.

In the meantime, to help alleviate your symptoms, you might try cutting out all grains, dairy and sugars from your diet for awhile. Eat lots of raw vegetables (salads) and proteins (meat, chicken, fish) and start taking some natural antifungals. Raw garlic is good. Pau d'Arco tea. And they should be rotated because Candida builds an immunity to things rapidly.

As the Message so often goes here, everybody's body is different so read everything you can - visit web sites like the Curezone and others - and do what feels right for you.

And back to the subject of your mercury poisoning, could you tell me, once you got rid of the amalgams, how did you get rid of your mercury toxicity?

And finally, what part of the UK are you in?

Cheers - and to your good health - p

Re: new to the list

hi im carla, new to group. had mercury poisoning and severe candida chemical sensitivities, food allergies for 3 yrs. had amalgam fillings removed 2 yrs ago.i was 7 stone and really couldnt get out of bed..doctors thought i had depression.....blah. i am now back at work but have to be careful with my chemicle and food allergies.i take acidophilus everyday but could do with some advice about what else i can take to rid me of this candida. i dont eat any processed foods but occasionally bread and biscuits when i have a craving.my husband has been great but people think im mad when i say i had mercury poisoning. i have oral thrush constantly and skin itching, panic attacks occasionally.

anyone found a cure yet?

carla.uk.

[Guest guest]

Hi Carla:

First of all, after you had your mercury amalgam fillings removed, did you chelate the mercury from your body? Might seem like a stupid question, but you didn't mention it. - p

Re: new to the list

hi penny

just read your mail. i really dont know if the toxicity has gone yet or if its just the candida allergies. i do try to stick to a sensible diet but get sugar and bread cravings. i bought some caprylic acid and essensial fatty acid supplements. do you know of any kind of bread i could eat? my doctor is sending me to an allergist and hopefully pinpoint what affects me. i cant even wear deodorant. sorry to hear you had mercury poisoning. they still use mercury here. cant believe they put poison in peoples mouths.it has ruined years of our lives.

i can only wear cotton clothes. Polyester makes me itch. do you get these symptoms? where are you from? i live in Northamptonshire,uk.

i am now 55 kg. so am now a normal weight .

i use ECOVER washing liquid as no perfume in it . do you have chemical sensitivities?

it is nice to relate to people who understand what its like.

thanks

CARLA UK.

[Guest guest]

Welcome, you certainly came to the right place. Anytime you want to talk go for it. And we've been known to share more than our hepc. I am Sharon, 48, live in Houston Texas Did 48 weeks of peg-intron in 2001-2002 and have been undetectable. We are here to share the journey with you.

SharonBarbara <vynca_minor@...> wrote:

Hello!I'm Barbara, from Indiana, and I just found out yesterday that I have Hep C. I'm a phlebotomist, and had a needle stick about a week ago, so they did all the necessary bloodwork. I'm HIV neg, but came up Hep C positive. They ran the confirmation PCR and I guess my viral load is high enough that it is not a new infection. So, I've made an appointment with a gastroenterologist and am waiting to see what happens from here.I spent five hours yesterday reading about Hep C, so I have an idea of what kind of treatment I have to look forward to. I thought joining a support group like this one may help me to vent, give me info, and just have another means of support. So, thanks for being here for me.__________________________________________________

[Guest guest]

>

> Right now i am only one day on the diet, I am excited but yet

scared that

> everything is different, if that makes sense. thanks Bee for the

group, i

> have hope too THANKS JESSICA

Welcome, ....it IS a lot of information to take in and requires

many changes....it's wise to do it slowly, get the diet down pat and

then start on the supplements, antifungals, etc. per Bee's

recommendations. Working on it slowly helps you integrate everything

into your life for lasting change, not just a temporary fix.

You can do it!

jackie

[Guest guest]

Welcome to our group . I'm glad you found us! You are welcome

for the group and the information. Read and enjoy! There is a very

bright future ahead of you. Please do take one step at a time so you

do not overwhelm your body, or yourself. The body needs time to

adjust to changes in its own way.

Please keep in touch and let us know how you are progressing. And of

course we are here for support and to answer questions.

The best in health, Bee

>

> Hello all, it's nice to be here. I am at the point where I am

overwhelmed > with this condition and at wit ends. It has been a

very long 5 years but I > want to say, you all have given me hope.

i have learned so much in the last week and want to say thank you.

I still have alot to go to understadn this all, Right now i am

only one day on the diet, I am excited but yet scared that

> everything is different, if that makes sense. thanks Bee for the

group, i > have hope too THANKS JESSICA

[Guest guest]

My name is Dawn and I live outside of Pittsburgh (eastern side). I am 38 and

married to an awesome (and understanding) husband and we I just began

methotrexate (tonight is my second week) following 5+ years on

Sulfasalazine....which I am still on along with zanaflex, lodine and

ultracet.....my new rheumatologist also has me doing physical therapy

Welcome Dawn, My doctor has me on both methotrexate, and Sulfasalazine plus

vicodin, soma, and humira... So I have some side effects, different times... I

was getting head aches but they now have stopped... So I don't know... A lot of

the meds give a lot of us side effects of some kind and I expect it... Being on

a lot of different ones, it could be any of them or all... Not sure I am helping

here lol... Just know without the drugs I would be a basket case...

Love and Peace Always

Shaun and

Barb

[Guest guest]

Hi Dawn. Welcome to the group. It sounds like you have a good Rheumy who

is on top of things. I'm not familiar with zaneflex and I've never heard

of taking iodine for PA. I'd be interested in knowing more about that. I

take Plaquinel and Enbrel and Ultracet. I'm on a break from the Enbrel

now due to UTI issues and eye infections. The Enbrel has given my life

back to me. I did not know how much the fatigue was effecting me long

before my last big flare (which made it do difficult for me to walk that

I had to use wheel chairs at the super market and mall). I could not

work during this time but now I am selling cars and you will be the

first to know that I finally sold my first one TODAY. Wha hoo! So life

is better for me now minus the infections that I'm trying to get cleared

up. I have a daughter who is 11 and has been in a psyche facility twice

this year with great results. She has Asperger's Syndrome (high

functioning autism), OCD and Mood Disorder. She's very affectionate and

loves jokes so she's not typical in that way. She is fascinating to me

but sometimes things get very difficult for her and we know when it's

time to go to the hospital. My sister has Manic Depression and just got

out of a hospital for a few weeks. She is amazing as well...very strong

like my . I am thankful for people in your profession and have a

great deal of respect for what you do. I think that you'll be blessed by

this group and learn a great deal as well as get an enormous amount of

support...and a chuckle now and then (the meds can make us goofy...I'm

sure it's the meds). Sorry that you have to be here but glad to have

you onboard. -Betz in the Hudson Valley region of New York (but I'm

really a rebel from the south and have the twang to prove it)

>

> I found the list a few days ago but, haven't had a chance to respond

> yet. My name is Dawn and I live outside of Pittsburgh (eastern side).

> I am 38 and married to an awesome (and understanding) husband and we

> have a daughter who will be 9 in October. I work as a Clinical

> Psychotherapist supervising an Outpatient Mental Health Clinic. My job

> work load has me working 50+ hours a week. We also show and breed

> dogs. I was diagnosed 6-7 years ago with PA following what the

> orthpedic specialist thought was a knee injury......I just began

> methotrexate(tonight is my second week) following 5+ years on

> Sulfasalazine....which I am still on along with zanaflex, lodine and

> ultracet.....my new rheumatologist also has me doing physical therapy

3

> times a week (aquatic which I love).

>

> I am having some " minor " side effect issues with the methotrexate.

>

> I thought the list would be helpful in finding what others do to

manage

> their PA.

>

> Thanks,

> Dawn B.

>

[Guest guest]

Dawn - what side effects are you having with the MTX? I am also on

my second dose of MTX and the second dose went a lot better than the

first. The problems I had the first week were extreme nausea,

dizziness, and itching all over my trunk. The day after the first

dose, I was OK. Just a little nauseous. The second day after the

first dose I was so sick that I couldn't pick my head up off the

pillow or turn my head to the side without the room spinning and

getting really sick to my stomach. It was still bad, but better on

day 3 (could sit up), and still some nausea but better again on day

4.

The itching started the day after the first dose. It was bad enough

that I kept looking to make sure I wasn't breaking out in hives. It

was mostly just that one day. But maybe the bad nausea just made my

not notice the itching - lol!

Anyway, the rheumy told me to take Zantac (over-the-counter) the day

before and the day after my MTX dose for the nausea. I took my

second dose of MTX on Wednesday night and so far I've only had mild

nausea and one brief spell of dizziness when I woke up in the middle

of the night last night. No itching this time at all! I'm so

happy!!!

You should call your rheumy and tell about what side effects you're

having. There might be something that can help!

Welcome to the list,

sherry z

>

> I found the list a few days ago but, haven't had a chance to

respond

> yet. My name is Dawn and I live outside of Pittsburgh (eastern

side).

> I am 38 and married to an awesome (and understanding) husband and

we

> have a daughter who will be 9 in October. I work as a Clinical

> Psychotherapist supervising an Outpatient Mental Health Clinic.

My job

> work load has me working 50+ hours a week. We also show and breed

> dogs. I was diagnosed 6-7 years ago with PA following what the

> orthpedic specialist thought was a knee injury......I just began

> methotrexate(tonight is my second week) following 5+ years on

> Sulfasalazine....which I am still on along with zanaflex, lodine

and

> ultracet.....my new rheumatologist also has me doing physical

therapy 3

> times a week (aquatic which I love).

>

> I am having some " minor " side effect issues with the methotrexate.

>

> I thought the list would be helpful in finding what others do to

manage

> their PA.

>

> Thanks,

> Dawn B.

>

[Guest guest]

WELCOME DAWN!

We are a diverse group here, you can find an answer to most any problem.

We look forward to hearing more about your PA experience. I've been on mtx

for almost 4 years now and some of the side effects still trouble me. Till

later,

Janet in Ca

[Guest guest]

Hi. ive lived with PA for 33 years and Im still only young!! I feel that the

damage has already been done to my joints and it too late to take

Methotrexate or similiar, would like to know what others think?

[Editor's Note: I for one, couldn't disagree more. I doubt PA is done with you

and by taking Methotrexate or another of the DMARDS, you could help to slow down

FURTHER progression of the disease. I've lived with PA for 41 years and cannot

imagine not staying on meds for the rest of my life. MTX and a number of other

meds are called DMARDS for good reason - because they modify the disease. Doing

nothing virtually guarantees the disease will continue to destroy you day after

day. Kathy F.]

>From: cameronparkmom@...

>Reply-

>

>Subject: Re: [ ] New to the list

>Date: Mon, 7 Aug 2006 14:17:15 EDT

>

>WELCOME DAWN!

>

>We are a diverse group here, you can find an answer to most any problem.

>We look forward to hearing more about your PA experience. I've been on

>mtx

>for almost 4 years now and some of the side effects still trouble me.

>Till

>later,

>

>Janet in Ca

>

>

>

[Guest guest]

I was in a big flare about two years back, it was in my hair, down my back,

arms, legs, knee's, and some under breast, between my legs ect... I was in a lot

of pain... MTX and other drugs have cleared a lot of that up for now, and the

pain killers sure make life a bit easier... You should try to do some of them,

if nothing more then some slight relief... Sure we have to change drugs now and

then, try new things... But its so much better now then when I didn't get any

help and was suffering...

Love and Peace Always

Shaun and Barb

[Guest guest]

In a message dated 05/08/2006 21:37:49 GMT Daylight Time,

earlylitelistmail@... writes:

I found the list a few days ago but, haven't had a chance to respond

yet. My name is Dawn and I live outside of Pittsburgh (eastern side).

I am 38 and married to an awesome (and understanding) husband and we

have a daughter who will be 9 in October

Hi Dawn,

Welcome to the group. I'm glad you found us but sorry that you are in the

position that you had to. Well, we already have something in common! You are

married to an awesome husband and I AM an awesome husband. lol Actually if my

wife

was standing over me now she would be saying sarcastically, 'Yes, that's

right . Have you taken your medication!' lol I'm talking rubbish as

usual.

I hope you have settled in ok with the group and you are not too tired to

read the mail. Doing 50+ hours a week at work? I bet you wouldn't mind but it is

only a part time job! lol

Only kidding. Its a lot to take on when you have this disease so I hope you

are ok.

What problems are you having with the MTX?

I'm glad you are enjoying the aquatic physiotherapy. I hope it helps.

Take care,

[Guest guest]

In a message dated 08/08/2006 01:28:22 GMT Daylight Time,

janettew@... writes:

Hi. ive lived with PA for 33 years and Im still only young!! I feel that the

damage has already been done to my joints and it too late to take

Methotrexate or similiar, would like to know what others think?

Hi ,

Welcome to the group. It's never too late to start drugs capable of halting

this disease in its tracks. To leave it would be asking for things to get even

worse for you. Go to your Rheumy , if you have one and let them see what

they can do for you. If you have any questions, just ask. Someone will be

able to help.

Take care,