Re: Starting Round 1 Tomorrow; advice?

[Guest guest]

Here's what I found for the contents of Chelex. Is this what you're using?

Here's the ingredients:

DMSA 100mg

EDTA (as calcium EDTA) 300mg

Cilantro 300 mg

Chlorella 300mg

Allicin (as organic garlic extract) 6000 mg

Fulvic Acid (as Humet-R) 160mg

N-Acetyl-L-Cysteine 200 mg

Alpha-Lipoic Acid 100 mg.

Other ingredients: HPMC,magnesium stearate and stearic acid.

Serving size is 4 capsules/30 per container.

XYMOGEN exclusive Professional Formulas " CHELEX " Proprietary Chelation

Formula www.xymogen.com

If this is it, it's contrary to Andy's protocol. He does not recommend

cilantro or chlorella. If your son tolerates DMSA, then EDTA is unnecessary

to chelate lead, and contra-indicated if he has mercury.

I can't say that Andy's right about everything and that giving your son

Chelex will damage him. But Andy's been proven right often enough, and has

seriously studied the question enough (far more than your doc, I guarantee

it), that I would be loathe to risk doing something he considers dangerous

and just hoping it turns out okay.

Can you just get some DMSA? Why not just start out giving your son a small

dose every 4 hours for 3 days. You can lie to the doc and tell him you're

doing Chelex, or you can tell him honestly that based on your research,

you're more comfortable doing it this way. If he respects that, you have a

great doc. If he tosses you out, I think you're still better off doing it

Andy's way on your own, than doing a risky protocol with the approval of

your doc. You're not really on your own actually, as you can tap the

experience and support of everyone here.

Dean

[ ] Starting Round 1 Tomorrow; advice?

Hi Everyone,

I am new to this group and have some questions for you all before I

begin round 1 of chelation tomorrow. I have a 13 year old son who

has developmental dyspraxia that I am about to chelate using chelex.

He is high in lead and moderately high in mercury.

I am wondering about the dose and timing. My doctor is lovely

and is the only person here in Edmonton, Alberta Canada that has

remotely taken an interest and done any testing for my son. It has

taken me years and years to find him and I absolutely do not want to

alienate him but.... I am concerned that he told me to give chelex

every 8 hours and not every 4. All of the other instructions follow

Andy Cutlers protocol for DMSA (ie. 3 on, 11 off) use but this one.

I have purchased some empty gel-caps. Should I just split the dose

of the Chelex and administer every 4 hours on my own? Any advice on

splitting the dose? Techniques?

My boy did wonderfully on the challenge just using DMSA and responds well

to sulpher type products (low glutathione kid and tests low in sulfates). My

doctor has had good results using this for many of his kids (and adults as

well) using this product (which has ALA in it as well as DMSA) and really

swears by it and the success that he has had with other kids. So... are any

of you on Chelex already? I use the CoQ10 by Xmyogen and I have heard

fabulous things about their PC formulations. In addition, this company seems

to be getting glowing reviews as to the quality of their

neutraceuticals..... But I haven't heard of any of my moms using the Chelex

so am a little weary.... like to give everything I do the 'mom once over'

before I start!

So... any advice to a chelation newbie (but a therapy old-timer!)

I would also love to hear any success stories of people getting rid

of the lead in older children..... encouragement would be wonderful.

My son is extremely high functioning but the lead is certainly

affecting him and his abilities. I so hope that I am not too late.

The doctor believes that Mark will do extremely well and can make a

lot of gains with chelation.

Any thoughts, words of encouragement would be appreciated.

Janice

Mother of Mark, 13

[Guest guest]

I agree with Dean. This stuff has too much stuff, and too much

stuff that Andy has spoken against, to make me comfortable. If your

son didn't do well, you wouldn't know what the problem is, and it

might be a significant problem.

Anne

>

> Here's what I found for the contents of Chelex. Is this what

you're using?

>

> Here's the ingredients:

> DMSA 100mg

> EDTA (as calcium EDTA) 300mg

> Cilantro 300 mg

> Chlorella 300mg

> Allicin (as organic garlic extract) 6000 mg

> Fulvic Acid (as Humet-R) 160mg

> N-Acetyl-L-Cysteine 200 mg

> Alpha-Lipoic Acid 100 mg.

> Other ingredients: HPMC,magnesium stearate and stearic acid.

> Serving size is 4 capsules/30 per container.

> XYMOGEN exclusive Professional Formulas " CHELEX " Proprietary

Chelation

> Formula www.xymogen.com

>

> If this is it, it's contrary to Andy's protocol. He does not

recommend

> cilantro or chlorella. If your son tolerates DMSA, then EDTA is

unnecessary

> to chelate lead, and contra-indicated if he has mercury.

>

> I can't say that Andy's right about everything and that giving

your son

> Chelex will damage him. But Andy's been proven right often

enough, and has

> seriously studied the question enough (far more than your doc, I

guarantee

> it), that I would be loathe to risk doing something he considers

dangerous

> and just hoping it turns out okay.

>

> Can you just get some DMSA? Why not just start out giving your

son a small

> dose every 4 hours for 3 days. You can lie to the doc and tell

him you're

> doing Chelex, or you can tell him honestly that based on your

research,

> you're more comfortable doing it this way. If he respects that,

you have a

> great doc. If he tosses you out, I think you're still better off

doing it

> Andy's way on your own, than doing a risky protocol with the

approval of

> your doc. You're not really on your own actually, as you can tap

the

> experience and support of everyone here.

>

> Dean

>

>

>

>

>

>

> [ ] Starting Round 1 Tomorrow; advice?

>

>

> Hi Everyone,

>

> I am new to this group and have some questions for you all

before I

> begin round 1 of chelation tomorrow. I have a 13 year old son who

> has developmental dyspraxia that I am about to chelate using

chelex.

> He is high in lead and moderately high in mercury.

>

> I am wondering about the dose and timing. My doctor is lovely

> and is the only person here in Edmonton, Alberta Canada that has

> remotely taken an interest and done any testing for my son. It

has

> taken me years and years to find him and I absolutely do not

want to

> alienate him but.... I am concerned that he told me to give

chelex

> every 8 hours and not every 4. All of the other instructions

follow

> Andy Cutlers protocol for DMSA (ie. 3 on, 11 off) use but this

one.

>

> I have purchased some empty gel-caps. Should I just split the

dose

> of the Chelex and administer every 4 hours on my own? Any advice

on

> splitting the dose? Techniques?

>

> My boy did wonderfully on the challenge just using DMSA and

responds well

> to sulpher type products (low glutathione kid and tests low in

sulfates). My

> doctor has had good results using this for many of his kids (and

adults as

> well) using this product (which has ALA in it as well as DMSA) and

really

> swears by it and the success that he has had with other kids.

So... are any

> of you on Chelex already? I use the CoQ10 by Xmyogen and I have

heard

> fabulous things about their PC formulations. In addition, this

company seems

> to be getting glowing reviews as to the quality of their

> neutraceuticals..... But I haven't heard of any of my moms using

the Chelex

> so am a little weary.... like to give everything I do the 'mom

once over'

> before I start!

>

> So... any advice to a chelation newbie (but a therapy old-timer!)

>

> I would also love to hear any success stories of people getting

rid

> of the lead in older children..... encouragement would be

wonderful.

> My son is extremely high functioning but the lead is certainly

> affecting him and his abilities. I so hope that I am not too

late.

> The doctor believes that Mark will do extremely well and can

make a

> lot of gains with chelation.

>

> Any thoughts, words of encouragement would be appreciated.

>

> Janice

> Mother of Mark, 13

>

>

[Guest guest]

I agree with the others. 100 mg ALA! Whew, that is a lot. Most

chelating adults don't even use that much. And even if your son

doesn't have a high mercury load that is still a lot to start out

with and like Anne stated there are so many ingredients here you

won't know what is causing the problem in the event that one should

occur.

My humble advice would be to chelate with Andy's protocol and explain

to your doctor that you don't feel comfortable with giving your son

all of those ingredients at once. Most likely he will be agreeable

to that, if not then you can't really trust much of anything that he

is recommending anyway.

Sheresa

> >

> > Here's what I found for the contents of Chelex. Is this what

> you're using?

> >

> > Here's the ingredients:

> > DMSA 100mg

> > EDTA (as calcium EDTA) 300mg

> > Cilantro 300 mg

> > Chlorella 300mg

> > Allicin (as organic garlic extract) 6000 mg

> > Fulvic Acid (as Humet-R) 160mg

> > N-Acetyl-L-Cysteine 200 mg

> > Alpha-Lipoic Acid 100 mg.

> > Other ingredients: HPMC,magnesium stearate and stearic acid.

> > Serving size is 4 capsules/30 per container.

> > XYMOGEN exclusive Professional Formulas " CHELEX " Proprietary

> Chelation

> > Formula www.xymogen.com

> >

> > If this is it, it's contrary to Andy's protocol. He does not

> recommend

> > cilantro or chlorella. If your son tolerates DMSA, then EDTA is

> unnecessary

> > to chelate lead, and contra-indicated if he has mercury.

> >

> > I can't say that Andy's right about everything and that giving

> your son

> > Chelex will damage him. But Andy's been proven right often

> enough, and has

> > seriously studied the question enough (far more than your doc, I

> guarantee

> > it), that I would be loathe to risk doing something he considers

> dangerous

> > and just hoping it turns out okay.

> >

> > Can you just get some DMSA? Why not just start out giving your

> son a small

> > dose every 4 hours for 3 days. You can lie to the doc and tell

> him you're

> > doing Chelex, or you can tell him honestly that based on your

> research,

> > you're more comfortable doing it this way. If he respects that,

> you have a

> > great doc. If he tosses you out, I think you're still better off

> doing it

> > Andy's way on your own, than doing a risky protocol with the

> approval of

> > your doc. You're not really on your own actually, as you can tap

> the

> > experience and support of everyone here.

> >

> > Dean

> >

> >

> >

> >

> >

> >

> > [ ] Starting Round 1 Tomorrow; advice?

> >

> >

> > Hi Everyone,

> >

> > I am new to this group and have some questions for you all

> before I

> > begin round 1 of chelation tomorrow. I have a 13 year old son

who

> > has developmental dyspraxia that I am about to chelate using

> chelex.

> > He is high in lead and moderately high in mercury.

> >

> > I am wondering about the dose and timing. My doctor is lovely

> > and is the only person here in Edmonton, Alberta Canada that has

> > remotely taken an interest and done any testing for my son. It

> has

> > taken me years and years to find him and I absolutely do not

> want to

> > alienate him but.... I am concerned that he told me to give

> chelex

> > every 8 hours and not every 4. All of the other instructions

> follow

> > Andy Cutlers protocol for DMSA (ie. 3 on, 11 off) use but this

> one.

> >

> > I have purchased some empty gel-caps. Should I just split the

> dose

> > of the Chelex and administer every 4 hours on my own? Any

advice

> on

> > splitting the dose? Techniques?

> >

> > My boy did wonderfully on the challenge just using DMSA and

> responds well

> > to sulpher type products (low glutathione kid and tests low in

> sulfates). My

> > doctor has had good results using this for many of his kids (and

> adults as

> > well) using this product (which has ALA in it as well as DMSA)

and

> really

> > swears by it and the success that he has had with other kids.

> So... are any

> > of you on Chelex already? I use the CoQ10 by Xmyogen and I have

> heard

> > fabulous things about their PC formulations. In addition, this

> company seems

> > to be getting glowing reviews as to the quality of their

> > neutraceuticals..... But I haven't heard of any of my moms using

> the Chelex

> > so am a little weary.... like to give everything I do the 'mom

> once over'

> > before I start!

> >

> > So... any advice to a chelation newbie (but a therapy old-

timer!)

> >

> > I would also love to hear any success stories of people getting

> rid

> > of the lead in older children..... encouragement would be

> wonderful.

> > My son is extremely high functioning but the lead is certainly

> > affecting him and his abilities. I so hope that I am not too

> late.

> > The doctor believes that Mark will do extremely well and can

> make a

> > lot of gains with chelation.

> >

> > Any thoughts, words of encouragement would be appreciated.

> >

> > Janice

> > Mother of Mark, 13

> >

> >

[Guest guest]

>. I am concerned that he told me to give chelex

> every 8 hours and not every 4. All of the other instructions follow

> Andy Cutlers protocol for DMSA (ie. 3 on, 11 off) use but this one.

Janice,

If it has DMSA, you need to give it every 4 hours or less. If it has ALA too,

you have to give

it every 3 hours or less (4 at night). If you think the doctor would have a

problem with

this, you can just do it without talking about it. But he may not care.

> I have purchased some empty gel-caps. Should I just split the dose

> of the Chelex and administer every 4 hours on my own? Any advice on splitting

the

dose? Techniques?

Is it in capsules? You can carefully unscrew the full cap and divide it by

pouring it into

empty caps. I used a dish with a sloping side so I could lay the caps down

without spilling

while I kept dividing.

>

> My boy did wonderfully on the challenge just using DMSA and responds well to

sulpher

type products (low glutathione kid and tests low in sulfates).

If he's low in sulfates, Epsom baths will feel really really good.

Good luck, I hope it goes well!

Nell

[Guest guest]

>

> Here's what I found for the contents of Chelex. Is this what you're using?

>

> Here's the ingredients:

> DMSA 100mg

> EDTA (as calcium EDTA) 300mg

> Cilantro 300 mg

> Chlorella 300mg

Ow -- with chlorella and cilantro you have a good possibility of making him

worse. You can

check the files for some reports of people who've tried using those products.

Nell

[Guest guest]

I love Xymogen products also, have used many but Chelex is not good to use for

chelation because of the EDTA and Chlorella and even the NAC is a problem as too

much of this is not recommended. Better to start with just Dmsa and/or Ala at

the recommended 1/8-1/4 mg per lb.

[ ] Starting Round 1 Tomorrow; advice?

Hi Everyone,

I am new to this group and have some questions for you all before I

begin round 1 of chelation tomorrow. I have a 13 year old son who

has developmental dyspraxia that I am about to chelate using chelex.

He is high in lead and moderately high in mercury.

I am wondering about the dose and timing. My doctor is lovely

and is the only person here in Edmonton, Alberta Canada that has

remotely taken an interest and done any testing for my son. It has

taken me years and years to find him and I absolutely do not want to

alienate him but.... I am concerned that he told me to give chelex

every 8 hours and not every 4. All of the other instructions follow

Andy Cutlers protocol for DMSA (ie. 3 on, 11 off) use but this one.

I have purchased some empty gel-caps. Should I just split the dose

of the Chelex and administer every 4 hours on my own? Any advice on splitting

the dose? Techniques?

My boy did wonderfully on the challenge just using DMSA and responds well to

sulpher type products (low glutathione kid and tests low in sulfates). My doctor

has had good results using this for many of his kids (and adults as well) using

this product (which has ALA in it as well as DMSA) and really swears by it and

the success that he has had with other kids. So... are any of you on Chelex

already? I use the CoQ10 by Xmyogen and I have heard fabulous things about their

PC formulations. In addition, this company seems to be getting glowing reviews

as to the quality of their neutraceuticals..... But I haven't heard of any of my

moms using the Chelex so am a little weary.... like to give everything I do the

'mom once over' before I start!

So... any advice to a chelation newbie (but a therapy old-timer!)

I would also love to hear any success stories of people getting rid

of the lead in older children..... encouragement would be wonderful.

My son is extremely high functioning but the lead is certainly

affecting him and his abilities. I so hope that I am not too late.

The doctor believes that Mark will do extremely well and can make a

lot of gains with chelation.

Any thoughts, words of encouragement would be appreciated.

Janice

Mother of Mark, 13

[Guest guest]

Thank you all for your replies....

I haven't decided yet what to do! I do have some DMSA that I can split for the

round 1.

I feel extremely torn..... I love this doctor! He does all of the right

testing.... metametrix labs, etc. I have read that Dr. Cave uses Chelex on some

of her patients and thought that would be okay for my Mark..... Oh, what to do!

Thinking out loud here as I really want to get started.... follow my thought

process and lend me a hand....

I have done NDF with my son which has chlorella and cilantro in it (at much

higher doses than 300 mg) so I am not too worried about that but there may be a

synergistic affect that I don't know about. We have also done a round of ALA

only and Mark tolerates it very well. I know that oral EDTA is very weak and if

you look at the ingredient listing on many food products (canned items) you will

find EDTA..... so not an issue for me.

The NAC, we already supplement and the garlic doesn't worry me either but the

timing of the doses DOES bother me. Also.... the objections of the people I

trust.... the parents.... this also BOTHERS me. I have given and gotten a lot

of good advice on these boards and I hesitate not to follow it....

Mark at 13 weighs in at about 110 lbs and is 5'8'' so he is not kid-sized any

more..... If I were to do DMSA only, what would be the recommended dose every 4

hours?

He did very well on the challenge. His fluency of language increased

substantially and his gross motor and attention were noticeably improved. I

know he has got to get the lead out... and I want to begin this long process

asap since he will be hitting puberty soon and then his chances for a complete

recovery dwindle substantially.

aaaaah! I hate these types of decisions! So... how much DMSA if I split the

rest of my challenge dose? Should I completely toss the Chelex or could I at

least try a low dose (split by three perhaps and give every 3 hours to

accomodate the ALA) and see what happens? I hate to not even give Xymogen a try

since my doctor swears by it for his other patients.....

Has no one ever tried this product? Help!

Janice

[Guest guest]

Janice,

Several years ago, I started my 17 yr old on 50mg dmsa. She was

approx 120# at the time. Only later when I began to chelate myself

with the same dose did I realize how HORRIBLE it could be!! We

dropped back to approx 12.5 mg. It was much more tolerable. We've

work our way up to 25mg now. I'm not sure I'll ever try 50mg again!!!

It doesn't matter how much you like the guy-only that he knows what

he is doing! Acc to most of the long term advice on this list, his

protocol is not one that I would try for myself or anyone else. fwiw,

my grandson at age 3 was lead and mercury toxic. The docs[all 'nice'

people] were just monitoring the blood lead levels which got up to 50-

no interventions! They had no clue about the mercury toxicity but

thanks to the simple hair test and the help of this group, it was

plain as day. His mom, my oldest daughter, was willing to provide

supplements and chelate 'low and slow' as advised here. She had

watched as her younger sister went down the tubes developmentally and

did not want her darling to suffer he same fate. She would probably

still be waiting for treatment for a sick and retarded 8 yr old.

Instead, she has a normal second grader, funny, smart, social - all

the things I had prayed for for his aunt.

>

>

> ----- Original Message -----

> From: Janice

>

> I feel extremely torn..... I love this doctor!

>

> ====>Yes, this is hard and when you're almost lucky if you can't

afford a dr, no conflicting opinions. If it helps any I have read

accounts by adults who used EDTA and/or Chlorella/cilantro who got a

lot worse, described in detail how much brain fog and how much more

dysfunctional they became.

>

> you look at the ingredient listing on many food products (canned

items) you will find EDTA..... so not an issue for me.

>

> ====>Very small amounts in canned foods, certainly no way near

300 mgs in the 4 capsule dose.

>

> Mark at 13 weighs in at about 110 lbs and is 5'8'' so he is not

kid-sized any more..... If I were to do DMSA only, what would be the

recommended dose every 4 hours?

>

> ====>The standard dosing is 1/8-1/4 mg per lb but adults of this

size often do better with much less to start, maybe just 10 mgs the

first round, you can increase then.

>

> aaaaah! I hate these types of decisions! So... how much DMSA if I

split the rest of my challenge dose? Should I completely toss the

Chelex or could I at least try a low dose

>

> ====>Based on the bad reports of the adults I have read, I'd toss

it, really a shame, I know, but worse would be your boy getting worse.

>

>

>

> Has no one ever tried this product? Help!

>

> ====>I think most people here stay clear of something like this

as it has so many of the things that are not recommended for people

who are mercury toxic.

>

> Good luck!

>

>

>

> Janice

>

>